I find “fatigue” a very vague term, so I don’t use it myself, because I’ve found exact analysis helps find triggers and relief and explain docs & physios better.
For the (A) tiredness part I use
dozy, either getting up 4-8x per night or in stints in the day, when my mind is awake, but I may want/need to sleep,
drowsy, when both mind & body are tired and
numb, in my head, due more to meds like amitriptyline and CBD which I have stopped taking coz of that.
I also separate
itchy eyes from tiredness, because sometimes that suggests to me I’m tired altho my body doesn’t (dry eyes), sometimes it does,
part of my tiredness I’ve been realizing/testing the last few weeks is the
feverishness-feeling, which I thought was separate, but I now believe is not, because I now nap successfully then, and make my overall sleep more effective
For (B) the missing energy I have
quick exhaustibility (energy spurts, I’m an odd one there)
then outright exhaustion of the muscles,
feebleness, dullness, in mind & body,
( C) a deep ‘fatigued’ pain
the Big Ache, due to overdoing it (both different to the sore muscles I used to have),
plus D) mentally
the inner fatigue, which I think a lot of people have, esp. with ME/CFS, may be sort of listless and have to do with depressiveness/depression, but I only seldom have. I also guess
brain fog belongs in here too.
Hi JayCS! I applaud you for being very detailed. I’m sure this benefits you as well as your doctors, in that it helps you get the best possible care. For me, fatigue is when my whole body says “ no more” until you rest. When I experience fatigue, my eyes aren’t tired. Resting means I have to stop what I’m doing and sit or lie down with my eyes open or closed. I don’t fall asleep when I “ rest”. When I’m tired, my body, including my eyes, say “ you need to take a nap” or “ you need to go to sleep “. I have chronic fatigue with my fibromyalgia. It seems like I’m always calculating what I should or should not do. What I can and cannot do. Another familiar name is pacing.
Hey Freedom
There’s also a theory known as ‘Spoon Theory’. Spoons represent my energy and I start my day with, lets say, 10 spoons. I get up, I shower, I dress, I have breakfast. That’s taken 5 spoons. I’ve used 1/2 of my daily ‘spoons’ or energy and I haven’t even left the house yet. Then I have to drive to see my doctor, that’s at least 2 more spoons just to get there, then I have to drive home that’s another 2 spoons, leaving me with a grand total of one spoon. Now, I could use that one spoon to cook my dinner, but usually that take 2 spoons. I could take a spoon from tomorrow’s spoon quota but that leaves me with less energy, less spoons for tomorrow. Or I don’t bother with dinner and just end up eating breakfast cereal as I only need one spoon for that.
It can be a huge juggling act.
Here’s a write up by Christine Miserandino’s, the lady who came up with the ‘Spoon Theory’
The Spoon Theory - But You Dont Look Sick? support for those with invisible illness or chronic illness
Merl from the Modsupport Team
Hi Freedom - yes, what you call fatigue (I’d say the reason is my #7 & 9) I also think is the main type.
Half an hour after getting up from a good night’s sleep tonight, despite various pains, and the flares yesterday, my body doesn’t want me to stop too (due to - and slight + + ) - but sometimes it needs a bit of pushing, sometimes it doesn’t. I’m going to go for a very careful push. This I’d also call fatigue, but ‘none of the above’, so that’d be feebleness, dullness, in mind & body, which I’ll put up above too as , because it has to do with missing energy. Also just added brain fog #11, does that fit, d’you think?
And spoons don’t necessarily need tiredness, pain or inner fatigue, but mainly missing energy, so - (Christine Miserandino has Lupus). Not saying Lupus doesn’t mean pain, but the energy-level is only a small part of fibro I’d argue. Our Ache and pains don’t necessarily take our energy down, but they make everything harder and if we don’t pace in time they’ll get more and more too, until it gets us down like a rugby/football tackle.
Types of fatigue – revisited 2022 (6 types added)
For the (A) tiredness part I use
- dozy, either in my sleep breaks or in stints in the day (mind awake, but need to sleep),
- drowsy, when both mind & body are tired,
- “wired-but-tired” / chatterbrain: body (& mind) dead tired, but something’s electrifying my mind (cortisol?)
- numb / zombified, in my head, due more to meds like amitriptyline and CBD (so stopped).
- itchy eyes sometimes are just fatigued dry eyes, sometimes also a sign of tiredness,
-
a feverishness-feeling all over, esp. arms (napping & better night sleep improves it).
For (B) the missing energy I have - quick exhaustibility (normal energy spurts of a few minutes, then brakes on)
- then outright exhaustion of the muscles,
- feebleness, weakness, dullness, in mind & body,
- nausea from moving,
-
lazy mode (not moving much) to prevent 7-10 happening = “potential” fatigue
( C) a deep ‘fatigued’ pain &/or stiffness (squealing due to “brakes on”) - the Big Ache, due to overdoing it (B7-9 all different to the sore muscles I used to get),
-
stiffness as a kind of muscular/tendon fatigue
plus (D) mentally (lack of mental energy) - brain fog/fibro fog as mental fatigue (wanting to, not heavy, but not able to think).
- inner fatigue, praps listless, lethargic (wanting, but inner heaviness),
- inner lack of motivation / drive without depressiveness (not wanting, without negative mood),
- depressiveness/depression (negative mood)
Since my MCAS-flare I’ve lost 6), at least after the 2nd jab. After the 1st I still sometimes had energy spurts, esp. in the evening, which actually might be more typical for MCAS/histamine/cortisol problems.
Someone put me on to another one that I feel belongs here:
“18”. Eyesight going blurry / fuzzy,
I think is more connected to (B.8) outright exhaustion than (C.13) stiffness as a kind of muscular/tendon fatigue of the lens / eye muscles.
However closing the eyes for a longer period helps it recover, which would fit more to a more temporary kind of stiffness that’s alleviated by resting for a short time, rather than long exhaustion that isn’t. On the other hand stiffness normally isn’t alleviated by rest, it’s alleviated by gentle movement, so praps it’s a short term kind of exhaustion that in my case can often recover quicker than other muscles.
I first noticed this during osteopathy and thought it was only from the treatment, but since then also in other situations. Still I think the deep relaxation of osteopathy helps ‘rest’ more intensely. (I often notice that more “active” rest helps recover faster.)