JayCS’s Fibro Blog

2023-07-12 Wednesday - ah, lavender got a grip on the bite itch

What … worked / went wrong … today?:

Energy: Sleep no more than 8h, early sun, air all day, screen curfew at 8.
Bites: Eucalyptus lavishly, more linen, lavender etc., more cold showers.

How was I today?:

Feeling 85%-ish (:white_check_mark:), energy today (:white_check_mark:), sleep Tuesday night (:white_check_mark:), sleep Wednesday night :x:, bite itch :x:. Nausea 0 :white_check_mark:, fog 10% :white_check_mark:.

Today working mainly on … bite itch: putting lavender on regularly

1) Early circadian rhythm for a) energy/sleep & b) Ache

7’ workout? No, cos of the bites.

Meal times early :white_check_mark: (:white_check_mark:) (:white_check_mark:). Bed early / up early (:white_check_mark:):white_check_mark:. screen time (:white_check_mark:) → Effective sleep :white_check_mark:. “PEM” (:white_check_mark:) vs. “Ache without exertion” (:white_check_mark:).

:ping_pong: 6-8 games most days since June 20th, often winning (but hardly talking, not counting/picking up balls). Break from July 7th, so workouts instead.

1a) EXHAUSTIBILITY today: “82%-". Energy down from June 30th, after great increase starting 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile/envelope (= moderate, with "?3h rest").

R rest: 100% exhaustion 20% of the time (3h),
VS very slow: 60% exhaustion 20% of the time (3h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 30% of the time (5h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 7h33, up 2x (20'), all deep. 90%/1/5% drymouth30% sore throat10% tongue10% itch10% ✅, everything else OK ➔ Feeling 90% well, Ache 1 of 7 ✅, getting up: 90%/1 ✅. 1x FCS ✅

Meal time :white_check_mark:, screen time (:white_check_mark:), tired :white_check_mark:/:x:. GABA A2?+A3?
A3 A4:0 teeth0 p0 FCS#1 Sleep 22:30- 3rd # is LBU
1:20 10’ 90%/1/5% p0 st3 sip fw6’ deep/ air/ A4/
drymouth30% sore throat10% tongue10% itch10% → lavender
4:23 10’ 90%/1/5% p0 st3 sip fw6’ deep/ air/ A5/
drymouth30% sore throat10% tongue10% itch10% → lavender
-6:23 90%/1/5% p0 st3 sip A6/ drymouth30% sore throat10% tongue10% itch10% → lavender
1x FCS :white_check_mark:
Sum: 6h23+1h30-(10+10)20’ = 7h53-20’ = 7h33, up 2x (20’), all deep. 90%/1/5% drymouth30% sore throat10% tongue10% itch10%

1b) ACTIVITIESACHE = PEM (Post exertional malaise): workouts 8:15 7’ ➔ 80%/2 :white_check_mark:, gardening/moving ➔ 80%/2 :white_check_mark:, talking ➔ 80%/3-4 :x:.
1c) REST/STIFFNESS ➔ ACHE 90%/1 :white_check_mark:.

2) Histamine/MCAS symptoms

Nauseous sinus burning headache: Nope :white_check_mark:.
Tongue burning: Yep :x:, after last meal - no cranberries, but cooked carrots that somehow didn’t taste good any more, so too old, off? After a time whilst I couldn’t detect it really having gone bad, I threw the rest away. For lunch I had aged hard cheese which I had to some (generously) of away. So that might be another trigger. Lucky I didn’t have any GI problems though.
Insect bite itch: Trousers and lavender spray.
To decrease: lavender spray :white_check_mark:, tea tree oil (:white_check_mark:), olive oil, salt-water-paste (bit of water) :white_check_mark:, hot spoon (:white_check_mark:).
Excitement :white_check_mark:.

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. ENERGY DOWN to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, energy increased June 20th to 30th (>20%), and usually still quite higher after (16-20%), further symptoms down too. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

3) Docs:

Got an 800€ bill for the bloods 2.8 months ago I haven’t got any onco report on yet. So I’ll be going to my GP, ask him if he got anything, and then phone if I can at least have the blood results please…

Last DOC update (July 5th...) June 24th/25th: Teeth problems resolved for the time being. Waiting for onco report, "2nd" opinion or not? ("B symptoms" = night sweats, appetite, weight starting Feb/March resolved in June.) Click for details...
Click for details: Update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

4) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

1) Symptoms well under control: GI (via elimination), pee (via GABA: ENOUGH? ✅), LOCAL PAINS (exercises, back: via using wall/door for support). Details...

except GI: stools loose0% :white_check_mark:, appetite :white_check_mark:, pee pain: 4xp1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: bit of SUN / bit of WIND ✅, THIRST (✅), dry mouth (day and) at night - cough, or was that yesterday night? ❌. Last SEIZURES July 7th seizure-ish 4x... Jun 23rd 4x, Jun 16th, Jun 6th 2x ❌, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: May 31st, before that Apr 4th ✅. JAW solved for the time being since June 23rd. ✅

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Dry mouth (day and) at night has always been a problem, a stronger added real thirst making me drink a fourth litre of almond milk a day came up in April. Stopping the antihistamine completely has praps helped stop it become painfully sticky at night, so I don’t use the gel much any more.
Last focal seizures: Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more… - June 23rd: OK, the fillings were enough, solved for the time being.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Creatine? Methylene blue?
SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK. Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no EGCg or pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jun 16th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 0x1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0.1g, myo-inositol 1x2x0.5g/1!d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 3x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x1x.5g, resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (2+2+1)x0.6=3.0g (as much as B3). Plus rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated Jun 16th.
“16:00” preparing pills
“17:30” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xvC#1, 2Cr#1, PF#2, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1% Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc.
B=11/ ’ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +1-2The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=20 with meal: 1xB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 2xTMG#2 2xEleu 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jun 16th

Pf: A1+A2+A3, vB2: 1C,1D, 1A. vB3: 2C,2D.1A, vB5: C,DA. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3,a4, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. (pine: C,D.) Qc: B.E.A1.A3. Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 6MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, Ru, 2 Sa, Sily, 2Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jun 16th: correct?
A1=7+1 Pf#1 Qc1#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2, Ga#1:0.3g, Hon#1, Q10, 0Se, 1TMG#1 (?Rup). = 12?
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, 0EGCg, Fev/MSM#1, Qc#3, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#4 Gi#2 Ol#1 0Pin#1 2TMG#2 2xEleu 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=13 vB2#3 "2"vB3#3 vB5#3 3xCr#3 Ga#5 Gi#3 Ol#2 0Pin#2 2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today: Watching Lorrie Rivers’ ME/CFS & Long CoV summit (which includes “vaccine injury”) day 2

  1. Rubin: Soil Based Organisms as probiotics - not for me.

  2. Dr. Jess Peatross & Kim Rogers - Parasites - Prevention and Treatment:
    Symptoms to watch out for don’t fit for me:

  • Worser(?) on the full moons, anxiety and insomnia
  • rectal itching “is a really big one”
  • Dairy sensitivity
  • Paroxysm / Teeth grinding esp. later at night,
    sugar & other cravings for processed food
  • crossover with autoimmunity, joint pains, digestive issues in general, SIBO, mould… - versiculations …
  1. Nichols - Psychobiome
    We have biomes in gut, sinuses, skin, also “viromes” (viruses) and mykobiome (fungi and yeast).
    One compound made by bacteria is Peptidoglykin(sp?), a lot to do with brain function, neuroplasticity etc.
    Relationship between bacteria, directly via blood stream, or indirectly via inflammation, or indirectly via the vagal nerve from the gut to the brain, e.g. GABA very clearly. Dysbiosis can be an umbrella term for some kind of parasite / viral / bacterial issue.

Serotonin and depression: SSRI do help some, altho there is not less serotonin, so newest research is trying to find out why, one idea is that they increase nootrophic factors, like BDNF. Research now shows that neuroplasticity doesn’t stop, but nootrophic. SSRIs also reduce anti-inflammatory and antioxidant, reduces inflammation in the brain. A lot of inflammation in depression, linked to markers like cytokine. Even possible using SSRIs too long can reduce serotonin, a study found.
In his opinion neurochemical imbalance has no good backing for being a root cause for mental illness, better gut biome changes and psychobiome, chronic infectous triggering autoimmunity and neuroinflammation.
Of course bad experiences, trauma and disease processes, physiologic changes, mental health and brain issues. It goes both ways. Like CoV → encephalopathy.
Infections can cause mood or even personality changes, or both together.
*Physiology of the mind not as separate - co-arising mental & physical, physiologic and psychologic doing a dance together, *
*whatever arises there’s some correlation(?), so good Mind-Body-Practice in tandem with functional medicine. Perceived stress is worse than the same stress not perceived as dangerous. So immune system doesn’t just react to the externals - inner inputs, the way you’re relating to outer things. Purpose, capacity to rewrite and rewire your thinking around stress and a stressful event important. Epigenetic changes can be passed down for generations - via gene expression. *
After diet, sleep, mind-body-practice etc., for mental health issues specifically: VERY individual, not something for depression or short-term use of ashwagandha for anxiety, lavender oil for depression, but that’s too like drug-based, better to look for the causes, probiotic strains = psychobiome peptidoglykins - bifidobacterium longum 1714 (more peptidoglykins), occasionally with b.l. 35624 strain. Intestinal Permeability: Leaky Gut… glutamine is too quick, cos if it’s SIBO glutamine won’t help much. Spore-biased Probiotics again, bif. longum, work on sleep, stress, diet, mind-body-practice, movement, praps ashwagandha. Looking for chronic infections and toxin accumulations. Breath-work, but detailed - there’s so much to try, each are worlds …. that you can spend a lifetime on, not just diet & lifestyle. For breath-work recommends Patrick McKeown, Dan Hanson (Australia).

Quality of life

Lessons in self-care:
Reducing screen time in the evenings means I need more screen time in the mornings for work, summit. In the evening I did allow myself to identify some more new plants.
Reasons to be cheerful:
a) Baby pigeon is now still trying to be fed, but parents refuse.
b) More of the flowers I planted coming up. Thought they weren’t going to…
Simplified: “Cellar door” organization getting better all the time.
Foggies: No, concentrated.

Development

Found a similar list to my 17 today with 15 types of fatigue: 15 types of Sjögren's Fatigue - Sjögren Europe by Teri Rumpf. Funnily like me starting with 11 and building. I think mine may be more detailed in that I concentrate only on qualitative differences, whilst they partly list triggers, like doctors, peopling, illness, aging.

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023