JayCS’s Fibro Blog

2023-07-10 Monday -

What … worked / went wrong … today?:

Sleep no more than 8h, early sun, air all day, screen curfew at 8.

How was I today?:

Feeling 85%-ish (:white_check_mark:), energy today (:white_check_mark:), sleep Sunday night (:white_check_mark:), sleep Monday night (:white_check_mark:), bite itch (:x:). Nausea 0(-10)% (:white_check_mark:), fog 10% :white_check_mark:.

Today working mainly on … energy…

1) Early circadian rhythm for a) energy/sleep & b) Ache

7’ workout? Nope, but tomorrow.

Meal times early :white_check_mark: (:white_check_mark:) (:white_check_mark:). Bed early / up early (:white_check_mark:) :white_check_mark:. Screen time :white_check_mark: → Effective sleep (:white_check_mark:). “PEM” (:white_check_mark:) vs. “Ache without exertion” :white_check_mark: - a thought that table tennis is actually not too good for me…

:ping_pong: 6-8 games most days since June 20th, often winning (but hardly talking, not counting/picking up balls).
STAIRS: :ladder: I’ve decreased the exhaustibility score from 84 to 82, because I still quite often go up the stairs 2 at a time.
However I just realized that I sometimes(?) use my arms to drag myself up when I do, so maybe I should take note, cos as opposed to table tennis it’s something I do regularly throughout the day and can show how much energy I really have.
Just now at 6:30 I did go up 2 at a time, using my arms, however that was after I’d just done the same.

1a) EXHAUSTIBILITY today: “82%-". Energy down from June 30th, after great increase starting 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile (= moderate, with "3h rest").

R rest: 100% exhaustion 20% of the time (3h),
VS very slow: 60% exhaustion 20% of the time (3h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 30% of the time (5h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 7h35, up 4x (22'), all deep. 90-80%/1/5% drymouth30% sore throat10-30-10% tongue10% itch 10-20%, short upon getting up: nausea10% + headache20)%. ✅, everything else OK ➔ Feeling 90-80% well, Ache 1 of 7 ✅, getting up: 80%/1 ✅. 1x FCS ✅. At night I felt I was up a lot, but thinking about it now and looking at just being up 4x it seems I was just dreaming being up a lot.

Meal time :white_check_mark:, screen time :white_check_mark:, tired :white_check_mark:. GABA A2/+A3/
A3/ A4:0 teeth0 p0 FCS#1 HWB#0 Sleep 22:15- 3rd # is LBU
23:55 6’ 90%/1/5% p0 st3 sip fw2’ fl0’ deep/ air/ A4/
drymouth30% sore throat10% tongue10% itch10% stools loose0%
1:29 6’ 90%/1/5% p0 st3 sip fw2’ fl0’ deep/ air/ A5/
drymouth30% sore throat10% tongue10% itch10%
3:40 5’ 80%/1/5% p0 st4 sip fw2’ fl0’ deep/ air/ A6/
drymouth30% sore throat30% tongue10% itch20%
4:30 5’ 80%/1/5% p0 st4 sip fw2’ fl0’ deep/ air/ A6/
drymouth30% sore throat30% tongue10% itch20%
-6:12 80%/1/5% p0 st2 fdeep/ air/ B drymouth30% sore throat10% tongue10% itch20%, PLUS nausea10% headache20% after getting up.
1x FCS :white_check_mark:
Sum: 1h45+6h12-(6+6+5+5=)22’ = 7h57-22’ = 7h35, up 4x (22’), all deep. 90-80%/1/5% drymouth30% sore throat10-30-10% tongue10% itch 10-20%, short upon getting up: nausea10% + headache20)%.

1b) ACTIVITIESACHE = PEM (Post exertional malaise): no TT, gardening/moving ➔ 80%/2 :white_check_mark:, talking / phoning 5’ ➔ 80%/4-5 :x:. White lips: don’t know, asked wife, but she didn’t answer.
1c) REST/STIFFNESS ➔ ACHE 80-90%/1-0 :white_check_mark:.

2) Histamine/MCAS symptoms

Nauseous sinus burning headache: Nope, or hardly, not quite sure :white_check_mark:.
Tongue burning: Less (:x:). From cranberries? :white_check_mark: (Or mustard?) I need to watch peanut butter a bit, which I’ve been eating lots of every day for weeks to months without noticing problems, whether immediate or later. OK, stopping cranberries is correlating with less tongue burning… but I have also stopped mustard. What I haven’t stopped is eating old dairy, past expiry date - never had problems with that.
Insect bite itch see up top.
Excitement :white_check_mark:.

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. ENERGY DOWN to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, energy increased June 20th to 30th (>20%), and usually still quite higher after (16-20%), further symptoms down too. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

3) Docs:

I forgot to ask my cardio on Friday if intermittent fasting is OK for hyperlipidemia, cos I was told by my lipidologist to keep 4-5 hours between meals. But on 2nd thoughts she’ll have no idea, and looking it up: That’s not the problem at all, it’s good for hyperlipidemia as well as cell regeneration and many other things, the problem is my loss of appetite and weight and struggling to get my weight back up again. So my compromise of later first and earlier third meal will be enough.

Last DOC update (July 5th...) June 24th/25th: Teeth problems resolved for the time being. Waiting for onco report, "2nd" opinion or not? ("B symptoms" = night sweats, appetite, weight starting Feb/March resolved in June.) Click for details...
Click for details: Update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

4) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

1) Symptoms well under control: GI (via elimination), pee (via GABA: ENOUGH? ✅), LOCAL PAINS (exercises, back: via using wall/door for support). Details...

except GI: stools loose0% :white_check_mark:, appetite :white_check_mark:, pee pain: 4xp1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN good, but "always" in shade / no WIND ✅, THIRST (❌), dry mouth (day and) at night ❌. Last SEIZURES July 7th seizur-ish 4x... Jun 23rd 4x, Jun 16th, Jun 6th 2x ❌, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: May 31st, before that Apr 4th ✅. JAW solved for the time being since June 23rd. ✅

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Dry mouth (day and) at night has always been a problem, a stronger added real thirst making me drink a fourth litre of almond milk a day came up in April. Stopping the antihistamine completely has praps helped stop it become painfully sticky at night, so I don’t use the gel much any more.
Last focal seizures: Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more… - June 23rd: OK, the fillings were enough, solved for the time being.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Creatine? Methylene blue?
SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK. Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no EGCg or pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jun 16th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 0x1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0.1g, myo-inositol 1x2x0.5g/1!d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 3x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x1x.5g, resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (2+2+1)x0.6=3.0g (as much as B3). Plus rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated Jun 16th.
“16:00” preparing pills
“17:30” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xvC#1, 2Cr#1, PF#2, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1% Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc.
B=11/ ’ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +1-2The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=20 with meal: 1xB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 2xTMG#2 2xEleu 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jun 16th

Pf: A1+A2+A3, vB2: 1C,1D, 1A. vB3: 2C,2D.1A, vB5: C,DA. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3,a4, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. (pine: C,D.) Qc: B.E.A1.A3. Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 6MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, Ru, 2 Sa, Sily, 2Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jun 16th: correct?
A1=7+1 Pf#1 Qc1#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2, Ga#1:0.3g, Hon#1, Q10, 0Se, 1TMG#1 (?Rup). = 12?
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, 0EGCg, Fev/MSM#1, Qc#3, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#4 Gi#2 Ol#1 0Pin#1 2TMG#2 2xEleu 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=13 vB2#3 "2"vB3#3 vB5#3 3xCr#3 Ga#5 Gi#3 Ol#2 0Pin#2 2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today: First for work, then started on Lorrie Rivers’ ME/CFS & Long Covid Summit with a promising start with “Dr. Been” - who is confirming a lot of what I’m doing or have heard lately…

Quality of life

Lessons in self-care:
a) Going on to our small meadow when it’s sunny always leads to insect bites, so I then prefer sitting at the cellar door. Just now I went on to it to pick up 500+ cherries and got 2-3 bites in 20 mins.
b) Same in the evening, altho I felt it was only 10 mins. But I spose 1 minute is enough. And silly me forgot to spray the essential oils on. So hope now the cold show and heat treatment helps instead.
Reasons to be cheerful:
a) Oleander and starflower blooming for the first time today.
b) Caught feeding time with squirrel, many blue and great tits, pigeons, seems they like eating at the same time.
c) Brought my wife’s good binoculars down to look at and try to identify a climbing plant 10 metres high in our cornel cherry, beautiful white “starry” blossoms hard to see, a bit like deutzia (‘snow flower’). I’d seen the vines/lianas at the bottom in autumn and not knowing what they are, stopped myself from dismantling them apparently just in time. I’m thinking they might be lonicera, but not sure yet.
d) Now using those binoculars for things nearer like the birds and the squirrel, which increases appreciation of their beauty and allowed me to see which of the tits are babies and which adults.
e) Still challenging to distinguish the pigeons, only one, Spotty has one small white spot on his left neck, is a male.
f) Some pigeons need to battle once in a while. Cause it always goes well and they are on one level it’s a bit like a friendly boxing fight, so we quite enjoy it and laugh about it now.
g) One of the baby woodpigeons just flew directly less than a yard from where I’m sitting (down from our pavilion-frame = pergola) and looked at me as if wanting to introduce themselves. (Actually whilst I’m just looking up if I can find any way to distinguish woodpigeons.)
h) 11:00 feeding time again: Red Squirrel, Wood Pigeon - I think male, a dunnock.
i) I can calm a Blackbird “tiger alarm” down if I sit near to the nest, as protection, even if I can’t see Tiger myself, cos they’re in the garden next door. This contradicts what I’d previously thought that it worries them if we’re too close. And what my wife thought for years that it was a “human alarm” or because of dusk. Praps it’s the compromise - not too close, so that they can enter the nest better. I just repeated this, and doing so calmed him down in 2 minutes. I’m not quite in view of the nest, but about 3 yards away around the corner, and between where he’s shouting / looking and the nest. Getting to be quite a “game”, 5x in a row.
Simplified:
a) Using a larger sunshade as well as the umbrella is keeping me cooler - out of the sun.
Foggies: No.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-07-11 Tuesday - terribly histaminey insect bite night

What … worked / went wrong … today?:

Sleep no more than 8h, early sun, air all day, screen curfew at 8. :white_check_mark:.
Insect bite oils :white_check_mark: - not enough to help :x:, histamine overload :x:, bad night, up 9x :x:. So: linen and more eucalyptus oil to protect, and lavender etc. and more cold showers to alleviate.

How was I today?:

Feeling 85%-ish (:white_check_mark:), energy today (:white_check_mark:), sleep Tuesday night :white_check_mark:, sleep Wednesday night (:x:), bite itch: 8-9 bites on legs :x:. Nausea 0(-10)% (:white_check_mark:), fog 10% (:white_check_mark:).

Today working mainly on … 2) bite itch: putting oils on regularly

1) Early circadian rhythm for a) energy/sleep & b) Ache

7’ workout at 8:30, actually 7’ by repeating one of the easier exercises, wall sit. Feel like repeating except push-ups.

Meal times early :white_check_mark::white_check_mark::white_check_mark:. Bed early / up early :white_check_mark:(:white_check_mark:). screen time :white_check_mark:→ itch and more made me struggle a lot with effective sleep (:x:). “PEM” (:white_check_mark:) vs. “Ache without exertion” (:white_check_mark:).

:ping_pong: 6-8 games most days since June 20th, often winning (but hardly talking, not counting/picking up balls).

1a) EXHAUSTIBILITY today: “82%-". Energy down from June 30th, after great increase starting 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile (= moderate, with "?3h rest").

R rest: 100% exhaustion 20% of the time (3h),
VS very slow: 60% exhaustion 20% of the time (3h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 30% of the time (5h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 7h48, up 9x (67') - can't have been particularly deep, over 1h of sleep was only the 2h after each of the 2 cold showers. Feeling well from my conditions was probably 80-90%, but this was overriden by the severe burden & sick-feeling from the itching. "80"%(40%)/1/5% drymouth30% (different/slightly more from antihistamine) sore throat10% tongue10% itch 20-70-30% nostril/s0-10% nausea(0-30)% stomach0(-30)% headache0-1x5% ✅/❌, sinuses OK ➔ Feeling 80/40% well, Ache 1 of 7 ✅/❌, getting up: 80/40%/1 ✅/❌. 3x FCS ✅✅✅

Meal time :white_check_mark:, screen time :white_check_mark:, tired (:white_check_mark:). GABA A2/+A3/
A3 A4:0 teeth0 p0 FCS#1 (I’ve always forgotten that recently. Sleep 22:05- 3rd # is LBU
23:05 12’ 80%/1/5% p0 st3 sip fw2’ fl0’ deep/ air/ A4/
drymouth30% sore throat10% tongue10% itch30% → cold calf shower, no help.
23:28 6’ itch70%, esp. on calves → hot water/spoon (7+2 bites), then clicking on my left calf, no help,
23:39 3’ antihistamine about 8% of a 10mg tablet. Then tried pressure, a little help.
0:00 7’ heat again.
0:17 9’ full fast (30’‘) cold shower again… So the itch was slightly reduced and the cold shower made sure of sleep.
2:31 7’ 80%/1/5% p0 st3 sip fw4’ fl0’ deep/ air0 A5/
drymouth30% sore throat10% tongue10% itch20%.
Now gently rolling thunder and lightning (Wetterleuchten). Antihistamine making me feel slightly zombified, but OK, itch down a little, hopfeully enough to not have to cold shower again, cos then that’ll be tough on my skin…
Door open cos of a noisy fly, that slightly closed nostrils…:
3:40 5’ Thunder.
80%/1/5% p0 st3 sip fw2’ fl0’ deep/ air0 A6/:0
drymouth30% sore throat10% tongue10% itch30% nostrils0/10%
Dry mouth (and eyes) a bit different due to the anithistamine, but not really more.
4:13 5’ Thunder. Forgot GABA… Hope itch lets me sleep again.
80%/1/5% p0 st3 sip fw2’ fl0’ deep/ air0 A6/
drymouth30% sore throat10% tongue10% itch40% nostrils0/10% stomach nausea 30%
4:35 Dry mouth from anithistamine → GABA, & itch → FCS#3
13’ Thunder.Forgot GABA… Hope itch lets me sleep again.
80%/1/5% p0 st3 sip fw2’ fl0’ deep/ air0 A7/
drymouth30% sore throat10% tongue10% itch40% nostrils0/10%
stomach nausea 30%
Caught the 2nd giant moth that’d been disgusting my wife, she’d made me a really funny big piece of paper how yucky the two were.
-7:00 “60”%/1/5% drymouth30% tongue10% itch 30% nostril/s10% nausea30% stomach30% sinuses0% headache0-15% all morning.
3x FCS :white_check_mark::white_check_mark::white_check_mark:
“80”%(40%)/1/5% drymouth30% (different/slightly more from antihistamine) sore throat10% tongue10% itch 20-70-30% nostril/s0-10% nausea(0-30)% stomach0(-30)% headache0-15%
Sum: 7h00+1h55-(12+6+3+7+9+7+5+5+13)67’ = 8h55-67’ = 7h48, up 9x (67’) - can’t have been particularly deep, over 1h of sleep was only the 2h after each of the 2 cold showers. Feeling well from my conditions was probably 80-90%, but this was overriden by the severe burden & sick-feeling from the itching. “80”%(40%)/1/5% drymouth30% (different/slightly more from antihistamine) sore throat10% tongue10% itch 20-70-30% nostril/s0-10% nausea(0-30)% stomach0(-30)% headache0-1x5%

1b) ACTIVITIESACHE = PEM (Post exertional malaise): no TT, gardening/moving ➔ 80%/2 :white_check_mark:, phoning with kid 45’ ➔ 80%/3 :x:
1c) REST/STIFFNESS ➔ ACHE 80-90%/1-0 :white_check_mark:

2) Histamine/MCAS symptoms: I need to put on MUCH more insect protection and/or thin trousers when on my mini-meadow, and when bitten - cold shower more, and use a lavender spray, at least the morning after I found that more effective than heat and tea tree oil, whilst the speck of antihistamine was enough to cause long slight headache, but not enough to help much.

Nauseous sinus burning headache: No sinus burning, but nausea and headache :x: - I think rather from the 8% of the antihistamine and not from sleeping badly.
Tongue burning: Less :white_check_mark:. Pretty sure it was the cranberries.

Insect bite itch: :lotion_bottle: Eucalyptus oil on at 9:00 :white_check_mark:, 14:00 - stayed in and away from the “meadow”, and 19:00 :white_check_mark:. The oil on in the morning didn’t stop me from getting 2-3 further bites, so I’ve now got 6 on my left leg. My wife chided me to wear trousers, and I assume she’s right. But in this hot weather I first wanted to try using more oil on my legs, it wasn’t enough before, and that actually prevented further bites. However the itch of these 8 bites got so bad in the evening with me feeling ill, that I started suspecting it was worsened from eating baked beans. These will have high histamine, but don’t make my tongue burn. But maybe on my histamine load aside from that?? Cold showers: once before bed, twice at night. ~8% of my antihistamine, despite headache risk.

Excitement down :white_check_mark:, despite storm.

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. ENERGY DOWN to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, energy increased June 20th to 30th (>20%), and usually still quite higher after (16-20%), further symptoms down too. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

3) Docs:

Last DOC update (July 5th...) June 24th/25th: Teeth problems resolved for the time being. Waiting for onco report, "2nd" opinion or not? ("B symptoms" = night sweats, appetite, weight starting Feb/March resolved in June.) Click for details...
Click for details: Update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

4) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

1) Symptoms well under control: GI (via elimination), pee (via GABA: ENOUGH? ✅), LOCAL PAINS (exercises, back: via using wall/door for support). Details...

except GI: stools loose0% :white_check_mark:, appetite :white_check_mark:, pee pain: 4xp1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: lots of SUN incl. heat / not much WIND ✅, THIRST (❌), dry mouth (day and) at night ❌. Last SEIZURES July 7th seizure-ish 4x... Jun 23rd 4x, Jun 16th, Jun 6th 2x ❌, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: May 31st, before that Apr 4th ✅. JAW solved for the time being since June 23rd. ✅

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Dry mouth (day and) at night has always been a problem, a stronger added real thirst making me drink a fourth litre of almond milk a day came up in April. Stopping the antihistamine completely has praps helped stop it become painfully sticky at night, so I don’t use the gel much any more.
Last focal seizures: Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more… - June 23rd: OK, the fillings were enough, solved for the time being.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Creatine? Methylene blue?
SELF-PHYSIO (click for details): OK? Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK? Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no EGCg or pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jun 16th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 0x1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0.1g, myo-inositol 1x2x0.5g/1!d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 3x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x1x.5g, resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (2+2+1)x0.6=3.0g (as much as B3). Plus rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated Jun 16th.
“16:00” preparing pills
“17:30” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xvC#1, 2Cr#1, PF#2, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1% Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc.
B=11/ ’ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +1-2The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=20 with meal: 1xB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 2xTMG#2 2xEleu 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jun 16th

Pf: A1+A2+A3, vB2: 1C,1D, 1A. vB3: 2C,2D.1A, vB5: C,DA. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3,a4, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. (pine: C,D.) Qc: B.E.A1.A3. Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 6MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, Ru, 2 Sa, Sily, 2Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jun 16th: correct?
A1=7+1 Pf#1 Qc1#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2, Ga#1:0.3g, Hon#1, Q10, 0Se, 1TMG#1 (?Rup). = 12?
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, 0EGCg, Fev/MSM#1, Qc#3, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#4 Gi#2 Ol#1 0Pin#1 2TMG#2 2xEleu 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=13 vB2#3 "2"vB3#3 vB5#3 3xCr#3 Ga#5 Gi#3 Ol#2 0Pin#2 2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today: Watching Lorrie Rivers’ ME/CFS & Long CoV summit (which includes “vaccine injury”) day 1, see next blog entry.

Intermittent fasting: Intermittent Fasting: Is It for You?

Quality of life

Lessons in self-care:

The chutes / snakes in the game chutes and ladders (snakes & ladders) are a brilliant symbol for the more severe backlashes / PEM after overdoing it, used by Dr. Lapp in summit talk #5.

I always wonder if my quick exhaustibility is now more CFS/PEM type than fibromyalgia or jab-triggered MCAS, that’s one reason to be here. And this image is extremely helpful to me to describe how backlashes from something I do for one to several hours can last for weeks or months.
Cos to get that under control we need to see it as drastically as it is, esp. as doesn’t fit at all to our “pre-condition experiences”.
Is this a “normal”, much-used image in the CFS “world”? In the fibro “world” we usually come to the agreement that the Spoon Theory used to be a fairly good expression for the energy depletion in all our conditions, whilst we had no better image, but that actually the image of an old battery or laptop with an old battery is far more fitting.
I spose all of these images express different bits of the complex picture.

At the moment I’m detailling my energy profile on my (fibro) blog to express that I usually no longer have any “fast” (“100%”) energy, like pre-jab/MCAS, but that I can get quite a lot done if I use my “moderate” and “slow” energy (for sometimes 10 hours a day), rather than my fast energy for 10 minutes and then having to rest for the rest of the day (5 minutes of 80-90% can be OK if I’m careful). Which I spose means I’m avoiding the chutes, just plodding along.
The only ladders I can see are praps sun and air and less screens, they’ve brought my total energy up from “10” to “20”%. But even avoiding chutes isn’t going to get me win the energy game, unless I redefine the goal…: 20% is the new 100%. And 100% quality of life cos I have all other symptoms under control.

I’m trying to grasp and stammer for an image that describes how using only this slow and moderate energy is good for me. I’m thinking of the story Tranquilla Trampletrue, The Persistent Tortoise by Michael Ende (Neverending Story etc.) - plodding along she misses the event she’s trying to get to, but is there just in time a year later. Hmmpf, not too keen on that image. But it’s being happy while trundling along that is the most important “event”, also keeping up hope for true sustainable ladders and using the many short ones in our toolbox to get up in the higher regions of the game… Good thing about my version of the game is I’ve been able to learn to avoid my chutes, I think for others that’s probably like the real game difficult to avoid. But you see I seem to keep coming back to … chutes/snakes and ladders, with the aim not in “winning” but keeping in the middle or upper region as long as possible! And not overtaxing the ladders, which often turn into chutes.

Reasons to be cheerful:
a) I can regularly hear the Blackbird babies begging when dad or mum throttles in with food. Dad always announcing him coming with a short song.
b) Red squirrel for a change, not red-black squirrel, just visited us, after baby robin, baby pigeon and then baby blackbird. As it keeps coming back, my wife pointed out it’s smaller than the other red one and the dark one, so might also be a teenager.
c) How weird: Two pigeons made love, quicker than usual, and when they were finished, a 3rd came flying down to them, and then happened what I’ve never seen before with more than one dove: They stayed static for about 5 minutes, then only veeery short scratching movements for another 10’, first the lady then the gent turning away from the 3rd party.
Simplified:
a) I can easily use the 4 steps of the cellar entrance for workout exercises like chair steps and chair triceps. (Just not today, cos it’ll make the itching worse)
b) I can stand in the cellar entrance before the 4 steps to ground level and work at my laptop on a pedestal for a different posture, much more flexible than on the table in my room, which is limited in size, whilst now I have a stone “table” all around where I’m standing, so can turn left & right in different angles.
Foggies: Don’t think so, except the bites making me mad and jittery.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

‘Research’ Tuesday: Watching Lorrie Rivers’ ME/CFS & Long CoV summit (which includes “vaccine injury”) day 1.

1) Mobeen Syed - “Dr. Been”

Long CoV: Autoimmune tendencies, but better recovery than ME/CFS.
Iodine spray 1% before and after going out seems to help.
Nose warmers or muffler! To protect nose: The cold and drastic changes in temperature reduces the immune capability in the nose. Keep nose warm.
Hydrogen peroxide inhalers may be useful, hesitant because it can also cause injury like iodine can too.
Research, concerning: Recent: Spike protein stays in the bone marrow of the skull (and rest), so maybe it’s not via the BBB. Infects meninges, then vascular system, BBB, enters brain. Can cause injury of the brain cells. Even people with mild CoV had an overall reduction in brain size, they thought praps from the anosmia. New is that it’s longer term via spike protein. Possible that the vaccine generated spike protein does that too.
Neurogenesis/Neurogeneration, allowing neuroplasticity: Mainstream knew about it, regular docs always thought not easy or not possible much. 5-7000 neurons for the new memories of new experiences, by 50 the hippocampus is replaced with new cells, and not as „stable“ as thought.
Reticular activating system is simplified like a switch turning the lights on, like splashing water on face. Also neurogeneration.
Keep brain cells clean: By sleeping. With brain fog & neurological symptoms try a fast 13-15h, if the 13th hour is when we are sleeping, that is the best opportunity to not only clean itself, but also perform autophagy. So fast from 3pm to 5am. Alertness, memory, „calculations“ - important aspect. May not be necessary if you don’t have brain fog etc.
Massaging habits for all of us: Bony projection behind the ear, mastoid process, sternocleidomastoideus beauty muscle, neck muscle. Under it are deep cervical lymph nodes, pressing on it, milking it downwards, easier hand on the other side, if easier with oil/lotion. Allows lymphatic flow of the brain to improve. Washes trash collected outside the cells. At least a break from brain fog. And spinal bumps by moving yourself back up down forth, similarly from side to side pump, circulates fluids in the brain system. Immediate benefit - temporary, gives break.

Long CoV/vaccine injury main recommendations: These massages and autophagy: cell cleaning. Makes cells inflammatory. Part of aging too. Intermittent fasting. To clean out the cells inside. 16:8. If you can’t (cancer, pregnancy etc.) Coffee triggers it, resveratrol.
Deep tissue massage for LongCoV and CFS - in the myalgias is reduced flow thru the muscles, lactic acid etc., causes pain, fatigue etc.
Methylene Blue - good, but not with SSRIs
Photobiomodulation: Near-infrared light
Both help rehabilitate mitochondria, can cause electron transport change produce ATP again, not cytochrome C.
*One quarter are bed ridden. Sun early morning and late evening. One third red light, 2 thirds near red light: passes thru clothes for four inches. Light with near infra red light. Front back skull. *
Allopathic: LDN and fluvoxamine/Luvox. But wait long enough, LDN needs at least 2 months.
Magnesium: for POTS - Selene infusions with Vit. C and magnesium.
*Plants: Stay near plants - plants with fragrance are releasing oils, cause stress hormones to reduce, esp. cortisol, norepinephrine, epinephrine. If not outside, inside. *
If no light: Candle light, sit near it. Fireplace.
[Back to nature came to my mind from what he said at the end.]
Youtube Channel Drbeen Medical Lectures - YouTube

Rest:
2) Rivers: Overview 3) Howard: RESET 4) Hirsch 5) Lapp 6) Teitelbaum.

  1. Lorrie Rivers overview
    Good for beginners, people interested in her as a coach,
  2. Alex Howard D1 Alex Howard - YouTube
    It’s a bit about everything, there’s not just one thing to help. A program (like his “RESET”) can make it more accessible and intense than one on one. RESET = Recognize Examine Stop Emotions and Transform. Reset nervous system thru mindfulness etc. “If it wasn’t going to be CoV, it was going to be something else that would be the tipping point.”
  3. Evan Hirsch: 4 step process
    Like I’ve often reported.
  4. Dr. Charles Lapp, MD - Overview, New Research
    (Lorrie says they’ll be talking about Low Dose Naltrexone, Metabolic dysfunction, musculoskeletal disorders, but he doesn’t have much to say, and LDN: wrong…) LDN: "became sort of the go to medication for fibromyalgia pain because it was safe and effective for fibromyalgia pain. And it remains that way today, I think it’s the number one choice " - what a load of rubbish this guy is talking… “virtually had no side effects and good effect”, “very very safe”. This contradicts almost everything I’ve read about it… Also him defining fibromyalgia as the condition with the tender points all over… Ivermectin hasn’t been effective for Long CoV, same with fluvoxamine. NAC better for glutathione than it itself (but I don’t tolerate NAC). But then mentioning guaifenesin again shows he’s not on “New Research”, unfitting title… But Lorrie tried to keep him in check several times. But see below under development for his very helpful “Chutes and Ladders” image.
  5. Dr. Jacob Teitelbaum, MD - SHINE Protocol:
    Asked by Lorrie about her severe side effects to melatonin, he immediately said “toss it”. [which is what I had to do, too.] For those sensitive to everything he says mould toxicity is the “next step” and suggests two brain “Rewire” programs, I understood NAF vs. DNF rewire. Altogether very like the last Teitelbaum talk, of course, so I won’t repeat. It’s kind of fun listening to him, altho I quite a lot isn’t for me.

2023-07-12 Wednesday - ah, lavender got a grip on the bite itch

What … worked / went wrong … today?:

Energy: Sleep no more than 8h, early sun, air all day, screen curfew at 8.
Bites: Eucalyptus lavishly, more linen, lavender etc., more cold showers.

How was I today?:

Feeling 85%-ish (:white_check_mark:), energy today (:white_check_mark:), sleep Tuesday night (:white_check_mark:), sleep Wednesday night :x:, bite itch :x:. Nausea 0 :white_check_mark:, fog 10% :white_check_mark:.

Today working mainly on … bite itch: putting lavender on regularly

1) Early circadian rhythm for a) energy/sleep & b) Ache

7’ workout? No, cos of the bites.

Meal times early :white_check_mark: (:white_check_mark:) (:white_check_mark:). Bed early / up early (:white_check_mark:):white_check_mark:. screen time (:white_check_mark:) → Effective sleep :white_check_mark:. “PEM” (:white_check_mark:) vs. “Ache without exertion” (:white_check_mark:).

:ping_pong: 6-8 games most days since June 20th, often winning (but hardly talking, not counting/picking up balls). Break from July 7th, so workouts instead.

1a) EXHAUSTIBILITY today: “82%-". Energy down from June 30th, after great increase starting 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile/envelope (= moderate, with "?3h rest").

R rest: 100% exhaustion 20% of the time (3h),
VS very slow: 60% exhaustion 20% of the time (3h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 30% of the time (5h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 7h33, up 2x (20'), all deep. 90%/1/5% drymouth30% sore throat10% tongue10% itch10% ✅, everything else OK ➔ Feeling 90% well, Ache 1 of 7 ✅, getting up: 90%/1 ✅. 1x FCS ✅

Meal time :white_check_mark:, screen time (:white_check_mark:), tired :white_check_mark:/:x:. GABA A2?+A3?
A3 A4:0 teeth0 p0 FCS#1 Sleep 22:30- 3rd # is LBU
1:20 10’ 90%/1/5% p0 st3 sip fw6’ deep/ air/ A4/
drymouth30% sore throat10% tongue10% itch10% → lavender
4:23 10’ 90%/1/5% p0 st3 sip fw6’ deep/ air/ A5/
drymouth30% sore throat10% tongue10% itch10% → lavender
-6:23 90%/1/5% p0 st3 sip A6/ drymouth30% sore throat10% tongue10% itch10% → lavender
1x FCS :white_check_mark:
Sum: 6h23+1h30-(10+10)20’ = 7h53-20’ = 7h33, up 2x (20’), all deep. 90%/1/5% drymouth30% sore throat10% tongue10% itch10%

1b) ACTIVITIESACHE = PEM (Post exertional malaise): workouts 8:15 7’ ➔ 80%/2 :white_check_mark:, gardening/moving ➔ 80%/2 :white_check_mark:, talking ➔ 80%/3-4 :x:.
1c) REST/STIFFNESS ➔ ACHE 90%/1 :white_check_mark:.

2) Histamine/MCAS symptoms

Nauseous sinus burning headache: Nope :white_check_mark:.
Tongue burning: Yep :x:, after last meal - no cranberries, but cooked carrots that somehow didn’t taste good any more, so too old, off? After a time whilst I couldn’t detect it really having gone bad, I threw the rest away. For lunch I had aged hard cheese which I had to some (generously) of away. So that might be another trigger. Lucky I didn’t have any GI problems though.
Insect bite itch: Trousers and lavender spray.
To decrease: lavender spray :white_check_mark:, tea tree oil (:white_check_mark:), olive oil, salt-water-paste (bit of water) :white_check_mark:, hot spoon (:white_check_mark:).
Excitement :white_check_mark:.

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. ENERGY DOWN to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, energy increased June 20th to 30th (>20%), and usually still quite higher after (16-20%), further symptoms down too. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

3) Docs:

Got an 800€ bill for the bloods 2.8 months ago I haven’t got any onco report on yet. So I’ll be going to my GP, ask him if he got anything, and then phone if I can at least have the blood results please…

Last DOC update (July 5th...) June 24th/25th: Teeth problems resolved for the time being. Waiting for onco report, "2nd" opinion or not? ("B symptoms" = night sweats, appetite, weight starting Feb/March resolved in June.) Click for details...
Click for details: Update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

4) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

1) Symptoms well under control: GI (via elimination), pee (via GABA: ENOUGH? ✅), LOCAL PAINS (exercises, back: via using wall/door for support). Details...

except GI: stools loose0% :white_check_mark:, appetite :white_check_mark:, pee pain: 4xp1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: bit of SUN / bit of WIND ✅, THIRST (✅), dry mouth (day and) at night - cough, or was that yesterday night? ❌. Last SEIZURES July 7th seizure-ish 4x... Jun 23rd 4x, Jun 16th, Jun 6th 2x ❌, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: May 31st, before that Apr 4th ✅. JAW solved for the time being since June 23rd. ✅

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Dry mouth (day and) at night has always been a problem, a stronger added real thirst making me drink a fourth litre of almond milk a day came up in April. Stopping the antihistamine completely has praps helped stop it become painfully sticky at night, so I don’t use the gel much any more.
Last focal seizures: Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more… - June 23rd: OK, the fillings were enough, solved for the time being.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Creatine? Methylene blue?
SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK. Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no EGCg or pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jun 16th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 0x1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0.1g, myo-inositol 1x2x0.5g/1!d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 3x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x1x.5g, resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (2+2+1)x0.6=3.0g (as much as B3). Plus rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated Jun 16th.
“16:00” preparing pills
“17:30” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xvC#1, 2Cr#1, PF#2, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1% Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc.
B=11/ ’ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +1-2The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=20 with meal: 1xB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 2xTMG#2 2xEleu 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jun 16th

Pf: A1+A2+A3, vB2: 1C,1D, 1A. vB3: 2C,2D.1A, vB5: C,DA. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3,a4, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. (pine: C,D.) Qc: B.E.A1.A3. Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 6MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, Ru, 2 Sa, Sily, 2Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jun 16th: correct?
A1=7+1 Pf#1 Qc1#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2, Ga#1:0.3g, Hon#1, Q10, 0Se, 1TMG#1 (?Rup). = 12?
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, 0EGCg, Fev/MSM#1, Qc#3, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#4 Gi#2 Ol#1 0Pin#1 2TMG#2 2xEleu 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=13 vB2#3 "2"vB3#3 vB5#3 3xCr#3 Ga#5 Gi#3 Ol#2 0Pin#2 2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today: Watching Lorrie Rivers’ ME/CFS & Long CoV summit (which includes “vaccine injury”) day 2

  1. Rubin: Soil Based Organisms as probiotics - not for me.

  2. Dr. Jess Peatross & Kim Rogers - Parasites - Prevention and Treatment:
    Symptoms to watch out for don’t fit for me:

  • Worser(?) on the full moons, anxiety and insomnia
  • rectal itching “is a really big one”
  • Dairy sensitivity
  • Paroxysm / Teeth grinding esp. later at night,
    sugar & other cravings for processed food
  • crossover with autoimmunity, joint pains, digestive issues in general, SIBO, mould… - versiculations …
  1. Nichols - Psychobiome
    We have biomes in gut, sinuses, skin, also “viromes” (viruses) and mykobiome (fungi and yeast).
    One compound made by bacteria is Peptidoglykin(sp?), a lot to do with brain function, neuroplasticity etc.
    Relationship between bacteria, directly via blood stream, or indirectly via inflammation, or indirectly via the vagal nerve from the gut to the brain, e.g. GABA very clearly. Dysbiosis can be an umbrella term for some kind of parasite / viral / bacterial issue.

Serotonin and depression: SSRI do help some, altho there is not less serotonin, so newest research is trying to find out why, one idea is that they increase nootrophic factors, like BDNF. Research now shows that neuroplasticity doesn’t stop, but nootrophic. SSRIs also reduce anti-inflammatory and antioxidant, reduces inflammation in the brain. A lot of inflammation in depression, linked to markers like cytokine. Even possible using SSRIs too long can reduce serotonin, a study found.
In his opinion neurochemical imbalance has no good backing for being a root cause for mental illness, better gut biome changes and psychobiome, chronic infectous triggering autoimmunity and neuroinflammation.
Of course bad experiences, trauma and disease processes, physiologic changes, mental health and brain issues. It goes both ways. Like CoV → encephalopathy.
Infections can cause mood or even personality changes, or both together.
*Physiology of the mind not as separate - co-arising mental & physical, physiologic and psychologic doing a dance together, *
*whatever arises there’s some correlation(?), so good Mind-Body-Practice in tandem with functional medicine. Perceived stress is worse than the same stress not perceived as dangerous. So immune system doesn’t just react to the externals - inner inputs, the way you’re relating to outer things. Purpose, capacity to rewrite and rewire your thinking around stress and a stressful event important. Epigenetic changes can be passed down for generations - via gene expression. *
After diet, sleep, mind-body-practice etc., for mental health issues specifically: VERY individual, not something for depression or short-term use of ashwagandha for anxiety, lavender oil for depression, but that’s too like drug-based, better to look for the causes, probiotic strains = psychobiome peptidoglykins - bifidobacterium longum 1714 (more peptidoglykins), occasionally with b.l. 35624 strain. Intestinal Permeability: Leaky Gut… glutamine is too quick, cos if it’s SIBO glutamine won’t help much. Spore-biased Probiotics again, bif. longum, work on sleep, stress, diet, mind-body-practice, movement, praps ashwagandha. Looking for chronic infections and toxin accumulations. Breath-work, but detailed - there’s so much to try, each are worlds …. that you can spend a lifetime on, not just diet & lifestyle. For breath-work recommends Patrick McKeown, Dan Hanson (Australia).

Quality of life

Lessons in self-care:
Reducing screen time in the evenings means I need more screen time in the mornings for work, summit. In the evening I did allow myself to identify some more new plants.
Reasons to be cheerful:
a) Baby pigeon is now still trying to be fed, but parents refuse.
b) More of the flowers I planted coming up. Thought they weren’t going to…
Simplified: “Cellar door” organization getting better all the time.
Foggies: No, concentrated.

Development

Found a similar list to my 17 today with 15 types of fatigue: 15 types of Sjögren's Fatigue - Sjögren Europe by Teri Rumpf. Funnily like me starting with 11 and building. I think mine may be more detailed in that I concentrate only on qualitative differences, whilst they partly list triggers, like doctors, peopling, illness, aging.

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-07-13 Thursday - being a crocodile :crocodile: chasing kids in slo-mo :white_check_mark:, getting milk instead of almond milk :x:

What … worked / went wrong … today?:

:white_check_mark: Sleep no more than 8h, early sun, air all day, screen curfew at 8.
:white_check_mark: Eucalyptus lavishly, more linen, lavender etc. alternately, more cold showers.
:x: Seemingly fairly energetic I quite often felt my limits, but
:white_check_mark: moving as energy-effectively as possible whilst being a crocodile “chasing” (slo-mo) my grandchild (& other kids) had just the right amount of exhaustion at the end, not too much backlash, esp. considering bowel problem from milk.

How was I today?:

Feeling 85%-ish (:white_check_mark:), energy today (:white_check_mark:), sleep Wednesday night :white_check_mark:, sleep Thursday night (:white_check_mark:), bite itch (:white_check_mark:). Nausea 0(-10)% (:white_check_mark:), fog 10% (:white_check_mark:) - but when talking higher, about 30%.

Today working mainly on … energy: workout(s?), IF: decreasing eating window 9-8

1) Early circadian rhythm for a) energy/sleep & b) Ache

7’ workout 8:15 :white_check_mark:, not another one, cos I knew I’d be chasing my grandchild around… :white_check_mark:

Meal times early :white_check_mark: :white_check_mark: (:white_check_mark:). Bed early / up early (:white_check_mark:)/(:x:). screen time (:white_check_mark:) → Effective sleep (:white_check_mark:). “PEM” (:white_check_mark:) vs. “Ache without exertion” (:white_check_mark:).

:ping_pong: 6-8 games most days since June 20th, often winning (but hardly talking, not counting/picking up balls).

1a) EXHAUSTIBILITY today: “82%-". Energy down from June 30th, after great increase starting 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile/envelope (= moderate, with "?3h rest").

R rest: 100% exhaustion 20% of the time (3h),
VS very slow: 60% exhaustion 20% of the time (3h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 30% of the time (5h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 8h05, up 5x (53'), all deep. Up regularly as opposed to last night and despite hardly bite itch is from pee urge together with slight pee pain. Last idea was it's histamine like a few hours ago, which would then again be from the hard cheese at 14:00, not from the milk.at 16:00. Praps also taking sleep supps too late. Last sleep break I should probably have kept shorter, it took a time to get back to sleep and then probaly slept too long, incl. the 'bad' dream, see 'foggies'. 80%/2/5% drymouth30% sore throat5-10% tongue10% itch 10-20% nausea0-30% stomach20-30% ✅/❌, everything else OK ➔ Feeling 90-80% well, Ache 1 of 7 ✅, getting up: 80%/1 ✅. 1x FCS ✅

Meal time :white_check_mark:, screen time (:white_check_mark:), tired (:white_check_mark:). GABA A2/+A3/
A3 A4:0 teeth0 p0 FCS#1 HWB#0 heartburn & reflux → almond milk, slightly seizure-ish → more GABA Sleep 22:25- 3rd # is LBU
23:22 9’ 90%/1/5% p0 st3 sip fw2’ fl3’ deep/ air0 A4/
drymouth30% sore throat5% tongue10% nausea5% stomach5%
0:52 4’ 90%/1/5% p0 st3 sip fw2’ fl0’ deep/ air/ A5/
drymouth30% sore throat5% tongue10% nausea5% stomach5%
1:56 7’ 80%/2/5% p1 st3 sip fw2’ fl0’ deep/ air/ A6/
drymouth30% sore throat10% tongue10% nausea10% stomach10% itch 20% (I think scratched one by mistake once, treated with tea tree oil and joint stuff)
3:41 7’ 80%/2/5% p0 st3 sip fw2’ fl0’ deep/ air/ A7/
drymouth30% sore throat10% tongue10% nausea0% stomach0% itch 10% - pee urge / slight pain sometimes is histamine? From hard cheese?
5:16 26’ 6 80%/2/5% p0 st3 sip fw2’ fl0’ deep/ air/ A8/
drymouth30% sore throat10% tongue10% nausea30% stomach20-30% itch 20-10%
-7:23 80%/1/5% p0 st3 sip fw2’ fl0’ deep/ air/ A8/
drymouth30% sore throat10% tongue10% nausea0% stomach0% itch 0%
1x FCS :white_check_mark:
Sum: 1h35+7h23-(9+4+7+7+26=)53’ = 8h58-53’ = 8h05, up 5x (53’), all deep. Up regularly as opposed to last night and despite hardly bite itch is from pee urge together with slight pee pain. Last idea was it’s histamine like a few hours ago, which would then again be from the hard cheese at 14:00, not from the milk.at 16:00. Praps also taking sleep supps too late. Last sleep break I should probably have kept shorter, it took a time to get back to sleep and then probaly slept too long, incl. the ‘bad’ dream, see ‘foggies’. 80%/2/5% drymouth30% sore throat5-10% tongue10% itch 10-20% nausea0-30% stomach20-30%

1b) ACTIVITIESACHE = PEM (Post exertional malaise): workout#1 8:15 (I put that on yesterday by mistake, when I thought) ➔ 90%/2 :white_check_mark:, gardening/moving ➔ 80%/2 :white_check_mark:, chasing kids in slo-mo ➔ 90%/3 :x:. talking ➔ 80%/3 :x:. White lips60-100? (:x:) wax-coloured? (:x:) (:question:)
1c) REST/STIFFNESS ➔ ACHE 90%/1 :white_check_mark:,

2) Histamine/MCAS symptoms

Nauseous sinus burning headache: Nope :white_check_mark:, but at 19:00 (right sided, normally both sided). First thought it was from drinking milk at 16:00 by mistake, but that has no histamine, so I think it might have been eating hard cheese at 14:00.
Tongue burning: Only a bit. From cranberries? (Or mustard?)
Insect bite itch: :lotion_bottle: Oils on once :white_check_mark:, but trousers on all day :white_check_mark:. (My wife got badly bitten in her right foot 4x, tiny, hardly visible.)
To decrease, alternately: lavender spray :white_check_mark:, tea tree oil :white_check_mark:, olive oil, salt-water-paste (bit of water) :white_check_mark:, hot spoon.
Excitement :white_check_mark:?.

I keep getting weird strong B3 once I start eating, I wonder if that’d be the same if I left a time between supps and eating. Also strange that I now get the same reaction whether I take 2 or 1 per meal. Not always, sometimes not at all.

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. ENERGY DOWN to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, energy increased June 20th to 30th (>20%), and usually still quite higher after (16-20%), further symptoms down too. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

3) Docs:

Got the onco lab bill, but still no report from my onco visit on Apr 24th. So I phoned them for the lab results, but they said they’re not allowed, he’ll call back. I bet he doesn’t. He didn’t.

Last DOC update July 13th: Unsuccessfully asked for my onco lab results. June 24th/25th: Teeth problems resolved for the time being. Waiting for onco report, "2nd" opinion or not? ("B symptoms" = night sweats, appetite, weight starting Feb/March resolved in June.) Click for details...
Click for details: Update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

4) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

For once, my wife convinced me to ask for an almond milk in a café this afternoon. I was away when it came, 2 people asked if it is really almond milk, they said yes. It was very white, looked like milk and then tasted like milk, which was nice, so I was trying to figure out how that can be, but after 100ml decided this can’t be almond milk. Turned out it wasn’t. I was sure I wouldn’t get problems, but I did, I got bloating, gas - later smelly (drank some fennel tea), and 3h later at 19:00 seemed to have a sinus problem, altho it doesn’t seem to have histamine, see above. Slight problems till 18 hours later.

1) Symptoms well under control: GI (via elimination), pee (via GABA: TONIGHT MORE, cos occasionallly p1, trickly as well as slightly seizure-ish once ✅), LOCAL PAINS (exercises, back: via using wall/door for support). Details...

except GI: stools loose0% :white_check_mark:, but 100ml of milk instead of the ordered almond milk caused bloating, gas, once a bit smelly, a bit of a bowel upheaval and sick feeling, 18h later moderate sharp pain on the right of abdomen, but not that long :x:, appetite :white_check_mark:, pee pain: 2xp1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN / WIND ✅, THIRST (❌), dry mouth (day and) at night ❌. Last SEIZURES July 7th seizur-ish 4x... Jun 23rd 4x, Jun 16th, Jun 6th 2x ❌, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: May 31st, before that Apr 4th ✅. JAW solved for the time being since June 23rd. ✅

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Dry mouth (day and) at night has always been a problem, a stronger added real thirst making me drink a fourth litre of almond milk a day came up in April. Stopping the antihistamine completely has praps helped stop it become painfully sticky at night, so I don’t use the gel much any more.
Last focal seizures: Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more… - June 23rd: OK, the fillings were enough, solved for the time being.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Creatine? Methylene blue?
SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK. Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no EGCg or pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jun 16th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 0x1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0.1g, myo-inositol 1x2x0.5g/1!d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 3x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x1x.5g, resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (2+2+1)x0.6=3.0g (as much as B3). Plus rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated Jun 16th.
“16:00” preparing pills
“17:30” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xvC#1, 2Cr#1, PF#2, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1% Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc.
B=11/ ’ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +1-2The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=20 with meal: 1xB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 2xTMG#2 2xEleu 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jun 16th

Pf: A1+A2+A3, vB2: 1C,1D, 1A. vB3: 2C,2D.1A, vB5: C,DA. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3,a4, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. (pine: C,D.) Qc: B.E.A1.A3. Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 6MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, Ru, 2 Sa, Sily, 2Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jun 16th: correct?
A1=7+1 Pf#1 Qc1#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2, Ga#1:0.3g, Hon#1, Q10, 0Se, 1TMG#1 (?Rup). = 12?
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, 0EGCg, Fev/MSM#1, Qc#3, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#4 Gi#2 Ol#1 0Pin#1 2TMG#2 2xEleu 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=13 vB2#3 "2"vB3#3 vB5#3 3xCr#3 Ga#5 Gi#3 Ol#2 0Pin#2 2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today: Watching Lorrie Rivers’ ME/CFS & Long CoV summit (which includes “vaccine injury”) day 3, see next blog entry: Peers!: Spike Proteins, Pretorious: Microclotting, Hoffman!: MCAS, Dempsey: Women, Lim: Dysautonomia, Levy: Oral Health.

Quality of life

Lessons in self-care: I feel I did well with summit, work, the kids and my wife. In the aftermath I could have curfewed monitors and sleep earlier. Need to re-envision the doc that said closer to 9 than to 10.
Reasons to be cheerful:
a) My old conifer branches draped everywhere now have the same reddish bronze as the redder squirrel.
b) Identified quite a few new flowers.
c) Great to see the kids and manage to “chase” them around a bit.
d) Peacock butterfly sitting before me, great tit landed on my cycle a few yards away.
Simplified:
a) Few more tricks for the cellar door.
b) Simplified movements while slo-mo chasing the kids, deliberating each move very carefully.
Foggies:
a) I’ve been saying no foggies, but actually every time I talk to people at the moment I get my words confused pretty quickly.
b) Made a glass of artichokes fall and smash in the vinyl, but cleaning up I at least managed well & quickly. However that came up again in my last sleep stint dreaming about an overflowing toilet with glass involvement, so apparently I didn’t cope with it emotionally as well as it had seemed - or praps it was just OK like this.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

Day 3 of Lorrie Rivers’ ME/CFS & Long CoV summit (which includes “vaccine injury”):

1) Peers!: Spike Proteins,
2) Pretorious: Microclotting,
3) Hoffman!: MCAS,
4) Dempsey: Women,
5) Lim: Dysautonomia,
6) Levy: Oral Health

1+3: Solid “functional medicine” stuff, but as ever I’d prefer all of them to be a bit more humble with what they think.

1) Dr. Tina Peers, MD - Spike Proteins, Most Helpful Therapies

Viral spike protein + in injections synthetic viral spoke. Hijacks the ribosomes, code to make synthetic spike proteins. CoV: 10T spike proteins in upper airways, few systemically. The injections are systemic and don’t stay in the deltoid as they assumed, didn’t do any bio-distribution studies. Japanese study found all over the body, systemic. Billions of mRNA in previously healthy cells, trillions of spike protein. Both types toxic. What they do is complex, working on it. Causes micro-filaments in the blood stream which probably forms clots, responsible for heart attacks & strokes. T-lymphocytes clump, together a zombie cell, dysfunctional. immunosuppression, susceptible to infections and cancer, mor shingles, herpes zoster, EBV reactivating, microtoxins more potent, Lyme. Downregulates 3 cancer-protective genes., sort out pre-cancer cells: PRBG, Brecca 1, P53 gene: master quality control gene, checks new cells, can remove parts or whole of wrongly made cells, turned down by the spike protein. Upregulates 17 cancer-causing genes, incl. in young people, really rare cancers. If you have new symptoms don’t ignore them, check them out, incl. pain, discomfort, bowel habit. Causes myocarditis and endotheliitis (cells lining arteries). Inflammation of the endothelium, possibly resulting in aneurysms or plaque on inside of artery. Thru BBB Preon disease: demence, Alzheimer, MS, ALS.

Spike proteins super-toxic, probably the most toxic things known to man.

Destroys autophagy, house-keeping of sick cells. 50 processes of autophagy, but 30 of them are switched off by the spike protein. → things we can & must do to switch on autophagy again, new developments.
LongCoV is a type of stronger ME/CFS, post viral fatigue on steroids. Slightly abnormal mast cells, immune response.
Spike proteins continue to be triggered in gut & blood stream, even 15 months after infection. Hyper-inflammation, mast cells. LongCoV with injection even more spikes. Those without LongCoV may have had previously untreated MCAS, was fine, wasn’t too bad, but then it really reacts. The patients who has very severe non-immediate reaction, prolonged adverse event: More neurological symptoms: Maybe along the nerves, a lot of neuro-inflammation.
Spike proteins steal tryptophan, which produces ATP, also to serotonin, so depletion of serotonin. When we can get that reversed feel happy again, normal self. Extremely challenging very healthy, next minute shot down, can’t even manage self-care, very scary and heart-breaking to be so sick. See doctors, don’t get help. Beyond all our experiences, but some have background for good recommendations to try. Honest with what we know and don’t. Try. Lucky none dangerous, so suck it and see. Different things for different people, but pool we can pull from that generally work from in somebody, sometimes help dramatically. Lorrie: Like a bad kayak trip, but glimpse lilies = getting better. Difficult, cos once cells hyper-stimulated, starts to overreact to everything, some patients 2 foods chicken & rice, another 1 food, chicken, apart from that hospital with mini anaphylactic shock. Scared to try any new supplement, med. Looking after is a special vocation. Rewarding when they get better. Little tweaks here and there can make all the difference. Lady with mastocytosis rather than MCAS (too many mast cells). Waiting list 2 years, teacher, struggling all the time, immunologists couldn’t help, With her 2 months ago in Feburary: Same low histamine diet, antihistamines, vitamins and minerals, mast cell stabilizer, quercetin and ketotifen, Low Dose Naltrexone, ldnresearchtrust.org
No sugar, processed foods.

Increase autophagy get rid of spike.
For everybody, Long-CoV, vacc-adverse reactions, or anyone who’s had CoV or the vaccine or has been near anyone, cos we all have the spike protein in us.

  • Intermittent fasting: no breakfast.
  • sauna
  • far-infrared light
  • resveratrol
  • cold showers, cold water swimming
    To clear the spike: zerospike.org/en
    Interviews, papers, >2000 pages of documentation and data, testimonials, Dr. Stephanie Sennef.

Took ordinary NAC mixed with spike protein, mixed with spike protein, denatured 12-15% of the spike, when used up, spike was back to how it was. With the NAC subatomic energy - quantum physics. Then it got rid of 99% of the spike protein. Urine test: no by-products of the spike protein, build up more and more. Augmented NAC, then metabolites of spike protein, flushed - augmentednac.com.
3x/d for 3 months, 1x/d thereafter, more again for prophylaxis if too much with others. For everyone: First normal NAC for a couple of weeks and activated charcoal, to detox liver, cos liver really busy with augmented NAC, Herx reaction red in face. Antihistamine. Lasted 36 hours. Contacted them: It’s a detox. She Day 6, husband Day 2, 6 hours. Then start with one capsule augmented NAC, then 2, then 3. Previously undiagnosed untreated MCAS, supersensitive, low histamine diet, ketotifen, tolerating more.Doesn’t get rid of the old spike, but new ones. Another product: Vedicinals 9 blocks all receptors vedicinals.com Combination with augmented NAC
ARC device British company boosts ATP production 3-5 fold, helps against 5G.
20L off per Link. In US only equine version allowed.
https://store.augmentednac.com/?via=827874 Code: W2FFBD32
ARCLR – For the UK site with a £20 (GBP) discount. This code will work for the AE and A4H Complete Kit

Also spike reducing: Fisetin, melatonin, quercetin, → metformin (14 days after CoV, cos it blocks spike going into mast cells. 500mg/d for a couple of days, 2x500mg/d for 4 days, 1000mg+500mg for 9 days) if had acute CoV, even if a long time ago.
Ivermectin in some patients. Blocks the spike protein entry into cells. 50%. If useful, double. 0.3mg/kg/d with food for a few days, if better 0.6mg/kg/d, esp. if neurological twitching, contractions. Anti-inflammatory, mast cell stabilizer, anti-parasitic, anti-viral, anti-bacterial, anti-cancer. She says super-safe to take, despite everything else that’s been said.
Encourage organic if possible, Or put veggies etc. in vinegar and baking soda, rinse, dry to remove pesticides etc, no left-overs, not processed.
Structure water
Fisetin reducing dementia, Parkinson’s, Huntington’s, CJD, MS, ALS, all of which spike increases the risk of.
B vitamins, omega 3, quercetin, vit. C reduces chance of Alzheimer’s. Possibly 99% preventable.
Lorrie: „We need to de-spike“.

Vedicinals 9:
Baicalin
Quercetin
Luteolin
Rutin
Hesperidin
Curcumin
Epigallocatechin-Gallate
Piperine
Glycyrrhizin

3) Bruce Hoffman: MCAS

Medical PTSD! ;-D
Paleo-auto-immune anti-histamine, maybe anti-oxalate, anti-FODMAPS - key: cell membrane hast to be repaired, mitochondria seduced back to action, autonomic nervous system regulated. Downregulation of sympathetic stress response. Eat impeccably. High fatty acid diet. Not just omega 3, also omega 6. Coconut oil for cooking, duck fat, ghee but from a particular force without casein protein residue, can’t make your own ghee.
Trauma, self or ancestral, makes it difficult to regulate the autonomic nervous system, attachment styles, resilient ego structure.
CoV - one pathway is mast cell activation, they activate BBB and gut barrier, → microglia activation / inflammation → inflammatory mediators → brain fog. QEEGs, neuro-quant-MRIs, lymphocyte panels - usually TH2-dominance, mitochondria: IGL test very important for chronic fatigue states to see how much ATP is being produced, mitochondrial DNA outside cell, toxins impeding DNA adducts
Intravenous phospholipids, glutathione, vitamins, minerals, intravenous NADH etc.
Not just biologically: antecedents, mediators, triggers incl. early developmental trauma, help people adjust to their changing body. Takes about a year of intense work.
It’s never just one thing.
Diet: Supplying the mitochondria with paleo- ketogenic anti-inflammatory low-histamine low-oxalate.
Labs: GI maps test, genova stool test, intra labs celiac testing, dunwood … precision lab polysaccharide test, SIBO test. Look at them: Low elastale, fat, eosinophile cos microbiome is very important. It’s the trend of these as biomakers, not each single one exactly.
Intravenous is for those that don’t tolerate anything.
Hormones esp. post-menopausal and most stress.
Nobody is eating the right fats, array of fatty acids. Body-bio-balanced oil, body-balanced phosphatidal cholin, activation products 5C blend, black cumin oils, sea buckthorn oils. Measure all the fatty acids.
Don’t cook with olive oil, causes high inflammatory markers, lipid peroxides, cos they’re oxidizing all their fats. Issue of bile production, not enough lipase.
Give everybody tadka(?), oxbar(?), beta-plass(?).
Can’t say no to your parents, cut off your ancestors, that is part of the problem. [hmmm… not easy at all…]

6) Dr. Thomas Levy, MD - Spike Proteins, Oral Health

„connection between chronic infections in the body, particularly in the mouth, and overall health. The speaker stresses the significance of addressing chronically infected teeth, gums, tonsils, and sinuses, as they can negatively impact one’s well-being. Even asymptomatic abscesses and infected teeth can release toxins and pro-oxidants, contributing to diseases like diabetes, high blood pressure, heart disease, and breast disease. The use of a 3D cone beam examination is recommended for the accurate detection of these hidden infections. Additionally, the discussion touches on hydrogen peroxide nebulization as a treatment for conditions like COVID-19, the importance of a healthy gut by addressing chronic pathogen colonization, and the role of bio-oxidative therapies, antioxidants, proteolytic enzymes, and chelation in managing chronic illnesses.“

Whether virus or not it’s a pathogen.
„Spike Protein Syndrome“ SPS. toxin, so oxidant, they oxidize. All disease is precipitated by excess oxidation. Replicates itself, so continual toxin load.

Ozone dialysis.
Sometimes very long enormous (100g) vitamin C in Lyme, 22nd
3d cone beam examination of the mouth.
Teeth can affect tonsils, both invisibly
3D X-Ray.
Virtually impossible to get a traditional coronary disease or heart attack without infected teeth.
Books
Hydrogen peroxide nebulization knock out advanced CoV.
Long term infections, swallowing pathogens, seed gut, change microbiome, leaky gut.
Vitamin C, methylene blue
Hydrogen peroxide 3% and nebulizer yourself possible - with infection
Protocol in books?
tellevymd@yahoo.com
Free ebooks and articles about Long CoV
High dose intravenous vitamin C
Ozone dialysis
Methylene Blue
Photodynamic irradition with red light therapy to further activate methylene blue.
HBOT under pressure is well worth the high cost, if possible.
Very important hydrogen peroxide nebulization: For some even as a mono-therapy, chops the head off the virus. Nothing negative. For Long CoV + ME/CFS
Has nothing to do with bleach, it’s H2O2, related to water, natural in the body.
If directly doing oxidizing and onti-oxidant that will neutralize each other, but staggering is no problem. (?)
Proteolytic enzymes, like Nattokinase, lumbrokinase, serrapeptase, bromelain, Acetyl-cysteine, until better, then
just Nattokinase alone all life. (from fermented miso, not possible to overdose)
10-11.000 units/per day instead of 3: many more benefits.
EDTA ETHYLENEDIAMINETETRAACETIC ACID (EDTA) D-DIMER
vitamin C with if possible hydrocortisone to push it into the cell.
He believes that methylene blue could substitute vitamin C via the electron flow.
„Don’t believe for a second your doctor knows better than you do…“ (exceptions…)

„INTRODUCTION
BACKGROUND INFORMATION
SPIKE PROTEINS
IS SPIKE PROTEIN A TOXIN
SPIKE PROTEIN AND LONG HAUL COVID
CONNECTION BETWEEN ORAL HEALTH AND CHRONIC ILLNESS
MOUTH EXAMINATION
NEBULIZATION
NEBULIZATION AND CROHN’S DISEASE
SELF NEBULIZATION
REACH OUT TO DR. THOMAS LEVY
RECOMMENDATION FOR FOR TREATING LONG HAUL
VITAMIN C AND OZONE DIALYSIS
HYPERBARIC OXYGEN TREATMENT
NEBULIZATION
ANTIOXIDANTS
D-DIMER
ETHYLENEDIAMINETETRAACETIC ACID (EDTA)
METHYLENE BLUE
METHYLENE BLUE OR VITAMIN C
CONCLUSION

"Dr. Levy is a board-certified cardiologist and a bar-certified attorney. After practicing adult cardiology for 15 years, he began to research the enormous toxicity associated with much dental work, as well as the pronounced ability of properly administered vitamin C to neutralize this toxicity. He has now written eleven books, with several addressing the wide-ranging properties of vitamin C in neutralizing all toxins and resolving most infections, as well as its vital role in the effective treatment of heart disease and cancer. Others address the important roles of dental toxicity and nutrition in disease and health.

Recently inducted into the Orthomolecular Medicine Hall of Fame, Dr. Levy continues to research the impact of the orthomolecular application of vitamin C and antioxidants in general on chronic degenerative diseases. His ongoing research involves documenting that all diseases are different forms and degrees of focal scurvy, arising from increased oxidative stress, especially intracellularly and that they all benefit from protocols that optimize the antioxidant levels in the body. He regularly gives lectures on this information at medical conferences around the world.

He has now written 13 books including Hidden Epidemic and most recently Rapid Virus Recovery. You can download a free copy of these titles by clicking on the book name and filling in the form.“

2023-07-14 Friday - doc, getting 10kg straw, all the kids there was nice, but quickly knocked me out… (felt cold and a bit unwell at night, slight headache in the morning praps from hard cheese)

What … worked / went wrong … today?:

:white_check_mark: Sleep no more than 8h, early sun, air all day, screen curfew at 8.
:white_check_mark: Trousers, but in the evening eucalyptus lavishly.

How was I today?:

Feeling 85%-ish (:white_check_mark:), energy today (:white_check_mark:), sleep Thursday night (:white_check_mark:), sleep Friday night (:white_check_mark:), bite itch (:white_check_mark:). Nausea 0(-10)% (:white_check_mark:), fog 10% (:white_check_mark:).

Today working mainly on … trying to glean something new from the ME/CFS/Long CoV summit.

1) Early circadian rhythm for a) energy/sleep & b) Ache

7’ workout? Cycling to get 10kg straw was enough challenge.

Meal times early :white_check_mark: (:white_check_mark:) (:x:).(but not my fault), Bed early / up early (:x:) :white_check_mark:. screen time (:white_check_mark:) → Effective sleep :white_check_mark:. “PEM” :x: vs. “Ache without exertion” = post postural Ache :x:.

:ping_pong: 6-8 games most days since June 20th, often winning (but hardly talking, not counting/picking up balls).

1a) EXHAUSTIBILITY today: “82%-". Energy down from June 30th, after great increase starting 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile/envelope (= moderate, with "?3h rest").

R rest: 100% exhaustion 20% of the time (3h),
VS very slow: 60% exhaustion 20% of the time (3h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 30% of the time (5h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 7h27, up 4x (28'), all deep. ✅ 80-70%/1?-3/5% st3-4 drymouth30% sore throat10% tongue10% itch10% nostril/s0-30% stomach0-40% sinuses0-10% headache0-10% stools loose -30% (slightly constipated getting up) (❌), everything else OK ➔ Feeling 80-70% well, Ache (1)-3 of 7 ✅, getting up: 70%/4 ✅. 1x FCS ✅

Meal time (:x:), screen time :white_check_mark:, tired :white_check_mark:. GABA A2/+A3/
A3 A4:0 teeth0 p0 FA/CS#0 HWB#0 Sleep 2235- 3rd # is LBU
0:31 7’ 80%/1/5% p0 st3 sip fw2’ fl0’ deep/ air/ A4/
drymouth30% sore throat10% tongue10% itch10% teeth/
2:12 4’ 80%/2/5% p0 st3 sip fw2’ fl0’ deep/ air/ A5/
drymouth30% sore throat10% tongue10% itch10% nostril/s0/20% → socks on
3:30 12’ 80%/3/5% p0 st3 sip fw2’ fl0’ deep/ air//-> A6/
drymouth30% sore throat10% tongue10% itch10% trousers & warmer T-shirt on stomach0 → 30%
4:45 5’ 70%/3/5% p0 st4 sip fw2’ fl0’ deep/ air->// A7/
drymouth30% sore throat10% tongue10% itch10% stomach40% REMEMBER STOMACH PAINS. BEEN NEGLECTING PPM Post Postural Stiffness. Higher tonight, but praps PEM from yesterday??
-6:30 70%/3/5% st4 deep (partly doze?)/ B drymouth30% sore throat10% tongue10% itch10% stomach40% stools loose -30% sinuses0-10% headache0-10% teeth
1x FCS :white_check_mark:
Sum: 1h25+6h30-(7+4+12+5=)28’ = 7h55-28’ = 7h27, up 4x (28’), all deep. 80-70%/1?-3/5% st3-4 drymouth30% sore throat10% tongue10% itch10% nostril/s0-30% stomach0-40% sinuses0-10% headache0-10% stools loose -30% (slightly constipated getting up)

1b) ACTIVITIESACHE = PEM (Post exertional malaise): no TT but doc, getting 10kg straw ➔ 80%/3 :white_check_mark:, all the kids there was nice, but quickly knocked me out… ➔ 80%/5-6 :x:, gardening/moving ➔ 80%/2 :white_check_mark:, talking, anything above 5’ ➔ 80%/4-6 :x:. White lips100% :x: wax-coloured :x:
1c) REST/STIFFNESS ➔ ACHE st3-4 → 80-70%/2-3 :white_check_mark:, Later varied (:white_check_mark:)/:x:.

2) Histamine/MCAS symptoms

2 thick slivers of hard cheese in the evening might have caused…:
Nauseous sinus burning headache: A little upon getting up (:x:).
Tongue burning: OK-ish :white_check_mark:.
Insect bite itch: :lotion_bottle: 20:30 :white_check_mark:.
To decrease: lavender spray, tea tree oil, olive oil, salt-water-paste (bit of water), hot spoon.
Excitement :white_check_mark:.
Very strong B3 skin burning again at first meal Saturday, esp. very red neck. If it’s histamine increasing it, then quite a bit of that meal is hazel, cashew, figs, whilst cherries (in this case dried sour cherries) are controversial.

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. ENERGY DOWN to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, energy increased June 20th to 30th (>20%), and usually still quite higher after (16-20%), further symptoms down too. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

3) Docs:

My GP said he’d phone my onco doc asking for a report… Probably won’t work either…

Last DOC update July 13th: Unsuccessfully asked for my onco lab results. June 24th/25th: Teeth problems resolved for the time being. Waiting for onco report, “2nd” opinion or not? (“B symptoms” = night sweats, appetite, weight starting Feb/March resolved in June.) Click for details…
Click for details: Update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

4) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

1) Symptoms well under control: GI (via elimination), pee (via GABA: ENOUGH/ ✅), LOCAL PAINS (exercises, back: via using wall/door for support). Details...

except GI: stools loose0% :white_check_mark:, appetite :white_check_mark:, pee pain: 0p1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN / WIND ✅, THIRST (❌), dry mouth (day and) at night ❌. Last SEIZURES July 7th seizur-ish 4x... Jun 23rd 4x, Jun 16th, Jun 6th 2x ❌, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: May 31st, before that Apr 4th ✅. JAW solved for the time being since June 23rd. ✅

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Dry mouth (day and) at night has always been a problem, a stronger added real thirst making me drink a fourth litre of almond milk a day came up in April. Stopping the antihistamine completely has praps helped stop it become painfully sticky at night, so I don’t use the gel much any more.
Last focal seizures: Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more… - June 23rd: OK, the fillings were enough, solved for the time being.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Creatine? Methylene blue?
SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK. Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no EGCg or pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jun 16th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 0x1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0.1g, myo-inositol 1x2x0.5g/1!d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 3x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x1x.5g, resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (2+2+1)x0.6=3.0g (as much as B3). Plus rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated Jun 16th.
“16:00” preparing pills
“17:30” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xvC#1, 2Cr#1, PF#2, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1% Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc.
B=11/ ’ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +1-2The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=20 with meal: 1xB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 2xTMG#2 2xEleu 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jun 16th

Pf: A1+A2+A3, vB2: 1C,1D, 1A. vB3: 2C,2D.1A, vB5: C,DA. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3,a4, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. (pine: C,D.) Qc: B.E.A1.A3. Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 6MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, Ru, 2 Sa, Sily, 2Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jun 16th: correct?
A1=7+1 Pf#1 Qc1#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2, Ga#1:0.3g, Hon#1, Q10, 0Se, 1TMG#1 (?Rup). = 12?
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, 0EGCg, Fev/MSM#1, Qc#3, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#4 Gi#2 Ol#1 0Pin#1 2TMG#2 2xEleu 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=13 vB2#3 "2"vB3#3 vB5#3 3xCr#3 Ga#5 Gi#3 Ol#2 0Pin#2 2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today: Watching Lorrie Rivers’ ME/CFS & Long CoV summit (which includes “vaccine injury”) day…

Our WiFi hasn’t been good enough to watch the videos quickly, so I have to be inside

Quality of life

Lessons in self-care: Important to have a long time out when the kids got too much.
Reasons to be cheerful:
a) Kids were sweet, but such a strain, so noisy whatever they say or do.
b) 5 beautiful jays in the garden Saturday morning, but I need to help protect the nestlings.
Simplified: Adapted where I place things in front of the cellar again.
Foggies: Dropped things, hard to talk.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-07-15 Saturday - backlash… keeping slow! “PEM” from Thurs & Fri, and/or “PPA” (post postural Ache/stiffness) up from 1-2 to 3-4 most of the day.

What … worked / went wrong … today?:

:white_check_mark: Sleep no more than 8h, early sun, air all day, screen curfew at 8.
:white_check_mark: Eucalyptus lavishly, more linen, salt paste instead of lavender on evening bite, more cold showers unnecessary.

How was I today?:

Feeling 85%-ish (:white_check_mark:), energy today (:white_check_mark:), sleep Saturday night (:white_check_mark:), sleep Sunday night :white_check_mark:, bite itch (:white_check_mark:). Nausea 0% :white_check_mark:, fog 10% (:white_check_mark:).

Today working mainly on … day 5 and 6 of the summit quick & early, as well as reducing the more extreme B3 flush (hazelnuts? rather than almonds?), bite itch (1 on my left shoulder).

1) Early circadian rhythm for a) energy/sleep & b) Ache

Also reducing my meal window recently intermittent fasting

:bulb: Put my Better Breath nasal strips on when wearing a mask, whilst not yet trying out the iodine nasal spray idea, since I’ve realized me masking for 30’ can cause me to feel oxygen deficient for 2-3h.
7’ workout? Too much backlash from the kids Thurs/Fri.

Meal times early :white_check_mark: :white_check_mark: (:x:, cos of wife). Bed early / up early (:white_check_mark:) :white_check_mark:. screen time :white_check_mark: → Effective sleep (:white_check_mark:)/(:x:). “PEM” :x: vs. “Ache without exertion” = post postural Ache :x: - however praps the increased post postural Ache today is part of the PEM post exertional malaise due to the kids Thurs/Fri.

:ping_pong: 6-8 games most days since June 20th, often winning (but hardly talking, not counting/picking up balls).

1a) EXHAUSTIBILITY today: “82%-". Energy down from June 30th, after great increase starting 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile/envelope (= moderate, with "3h rest").

R rest: 100% exhaustion 20% of the time (3h),
VS very slow: 60% exhaustion 20% of the time (3h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 30% of the time (5h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): h ✅/❌, everything else OK ➔ Feeling ?90% well, Ache 2 of 7 ✅, getting up: ?90%/2 ✅. ?1x FCS ✅

Meal time :white_check_mark:/:x:, screen time :white_check_mark:/:x:, tired :white_check_mark:/:x:. GABA A2?+A3?
A3 A4:0 teeth0 p0 FA/CS#0 HWB#0 Sleep 22:27- 3rd # is LBU
0:17 40’ 6 80%/1/5% p0 st3 sip fw2’ fl3’ deep/ air/ A4/
drymouth30% sore throat10% tongue10% itch5% nostril/s10/0%.
Bedclothes: wet20% → change T-shirt.
2:58 16’ 80%/1/5% p0 st3 sip fw3’ fl3’ deep/ air/ A5/
drymouth30% sore throat10% tongue10% itch5% nostril/s5/0%
4:53 5’ 80%/1/5% p0 st3 sip fw3’ fl0’ deep/ air/ A6/
drymouth30% sore throat10% tongue15% itch0% nostril/s0/10%
-6:32 80%/1/5% p0 st3 sip fw3’ fl0’ deep/ drymouth30% sore throat5% tongue10% itch0% nostril/s0/5%
1x FCS :white_check_mark:
MIN-MAX PROGRESSION
?80%/?2-3/?5(-25)% drymouth?30% sore throat10-?20% tongue10-?20% itch 0-?20% nostril/s0-?10% dryhands0% nausea?0% stomach0-?30% sinuses0-?10% headache0-?10% stools0 loose% zombie0-?10%
Sum: h+h-()’ = h-’ = h, up x ('), all deep.

1b) ACTIVITIESACHE = PEM (Post exertional malaise): TT :0 (moving ?40%, talking ?20%, counting ?10%) ➔ 80%/3 :white_check_mark:, gardening/moving ➔ 80%/?2 :white_check_mark:, talking ➔ 80%/?3 :x:. White lips60-100? (:x:) wax-coloured? (:x:) (:question:)
1c) REST/STIFFNESS ➔ ACHE At night st3 → 80%/3 :white_check_mark:/:x: Getting up - for how long?: st3 → 80%/3 :white_check_mark:/:x:, Later less? :white_check_mark:/:x:

2) Histamine/MCAS symptoms

Nauseous sinus burning headache: Nope :white_check_mark:.
Tongue burning: Hardly (:white_check_mark:), after having reduced cranberries… (Or mustard?) But need to sort out the increased B3 flush before I sort out the cranberries. So hazelnuts or almonds, Sunday morning I tried almonds without hazelnuts after no hazelnuts yesterday was accompanied by no B3 flush. :bulb: & :man_student: What I’ve learnt from this is that the flush from nicotinic acid may be associated with histamine, not just with prostaglandine, I’ll be going on to this in the course of the day (next blog entries).
Insect bite itch: :lotion_bottle: Oils on not necessary at 9:00 :white_check_mark:, 14:00 :white_check_mark:, but at 19:00 :white_check_mark: - however
To decrease: lavender spray, tea tree oil, olive oil, salt-water-paste (bit of water), hot spoon.
Excitement :white_check_mark: - the shock of finding the baby blackbird Sunday morning is causing sinus burning, not sure if that’s from crying or also histamine. Seems ridiculous to bury a bird, so that its bacteria can eat it up instead of the green bottle flies and bigger animals, but emotionally it’s helpful, so ‘healthy’.

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. ENERGY DOWN to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, energy increased June 20th to 30th (>20%), and usually still quite higher after (16-20%), further symptoms down too. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

3) Docs:

The doc sometimes works on Saturdays, I know, but didn’t phone me today before his holidays. But maybe report next week? :face_with_monocle: :roll_eyes:

Last DOC update July 13th: Unsuccessfully asked for my onco lab results. June 24th/25th: Teeth problems resolved for the time being. Waiting for onco report, “2nd” opinion or not? (“B symptoms” = night sweats, appetite, weight starting Feb/March resolved in June.) Click for details…
Click for details: Update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

4) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

Small annoyances I’d mentioned on the 5th are still partly there:
:one: Still treating the onychia of my right big toe 1x daily with calendula / tea tree oil, and it’s getting slightly better, but need to increase that, also again some red “spots” have got considerably worse and sometimes itchy, so I have to tackle them once again. Funny how it’s almost always only my right foot, and it’s constantly, once I’ve got one thing sorted a few days later something else starts up. Sometimes I keep treating preventatively, then it stays OK, and then I start forgetting and something starts up again a few days later. It seems to be the weakest part of my body in that respect. That may have to do with circulation / Raynauld’s or with the size of that foot, which is bigger so fits in shoes worse.
:two: My thumbs have recovered again, but the nails are terribly marked, so as my doc said, I have some deficiency issue. Which doesn’t help much, altho I could research if there’s anything I could increase.
:three: Stomach pain before meals due to having changed apple type has improved since I’ve changed to jonagold. Gala is now there again, but imported from Argentina, that’s normally no option for me. Altho my wife says if it’s the best sort for my stomach not to concern myself about it.
:four: Strain in lumbar region from cherry picking has constantly increased not my back problems, but my overall stiffness, better on days without wind, where not many cherries are falling.

1) Symptoms well under control: GI (via elimination), pee (via GABA: ENOUGH? ✅), LOCAL PAINS (exercises, back: via using wall/door for support). Details...

except GI: stools loose0% :white_check_mark:, appetite :white_check_mark:, pee pain: 0p1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: no problems with SUN or WIND ✅✅, THIRST (✅), dry mouth (day and) at night ❌. Last SEIZURES July 7th seizur-ish 4x... Jun 23rd 4x, Jun 16th, Jun 6th 2x ❌, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: May 31st, before that Apr 4th ✅. JAW solved for the time being since June 23rd. ✅

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Dry mouth (day and) at night has always been a problem, a stronger added real thirst making me drink a fourth litre of almond milk a day came up in April. Stopping the antihistamine completely has praps helped stop it become painfully sticky at night, so I don’t use the gel much any more.
Last focal seizures: Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more… - June 23rd: OK, the fillings were enough, solved for the time being.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Creatine? Methylene blue?
SELF-PHYSIO (click for details): OK? Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK? Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no EGCg or pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jun 16th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 0x1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0.1g, myo-inositol 1x2x0.5g/1!d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 3x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x1x.5g, resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (2+2+1)x0.6=3.0g (as much as B3). Plus rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated Jun 16th.
“16:00” preparing pills
“17:30” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xvC#1, 2Cr#1, PF#2, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1% Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc.
B=11/ ’ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +1-2The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=20 with meal: 1xB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 2xTMG#2 2xEleu 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jun 16th

Pf: A1+A2+A3, vB2: 1C,1D, 1A. vB3: 2C,2D.1A, vB5: C,DA. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3,a4, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. (pine: C,D.) Qc: B.E.A1.A3. Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 6MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, Ru, 2 Sa, Sily, 2Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jun 16th: correct?
A1=7+1 Pf#1 Qc1#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2, Ga#1:0.3g, Hon#1, Q10, 0Se, 1TMG#1 (?Rup). = 12?
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, 0EGCg, Fev/MSM#1, Qc#3, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#4 Gi#2 Ol#1 0Pin#1 2TMG#2 2xEleu 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=13 vB2#3 "2"vB3#3 vB5#3 3xCr#3 Ga#5 Gi#3 Ol#2 0Pin#2 2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today: Watching Lorrie Rivers’ ME/CFS & Long CoV summit (which includes “vaccine injury”) day 5 & 6:

5.1 Mann & Rabin - CFS School - Jen Mann did a combination of vagal nerve exercises I’ll be coming back to.
5.2 Heidt: Hormones - more general, nothing specific to me.
5.3 Cort: Recent Studies - also more general.
5.4 Baxter - Long Covid Podcast: Interesting that she like uses breathing exercises, yoga nidra and cold water, but aside from that more her case history. Funny she said she can’t switch off like Luke turns C3PO off, which her partner(?) can - when I’m socializing I actually now switch off very quickly without being able to say much about it.
5.7 Jason: Energy Envelopes: Psychologist Leonard Jason with similar ways of approaching energy like mine:
Mind set what can you do instead of what can’t you do.
10% or 5% of your energy - perceived energy. If your extended energy is 70 or 80 but your available energy is 20 or 30. Energy envelope is close to your available energy. Careful before and after an event.
Health first. Society where energy is the mainstream drug. When people say you look good, you still need to prioritize: only work or only family."
My comment on Hanson: Good to delve into energy envelopes, and first time I’ve seen someone else than me put available energy as a percentage. This is not completely subjective in my case, I originally started comparing to say 10 hours of energy (at least) per day I used to have available I went down to 3 hours per day from fibro and then half an hour less with each jab.
But I’m realizing that this concept is just referring to keeping to your overall limits / sweet spots, whilst mine of an energy profile helps me see how much of which intensity levels of energy I can use. So I’ve never have any times of 100% intensity like with just fibro since the 3rd jab, so I’d always be on 0% amount of 100% intensity, but using my energy profile I can manage much more than that by slowing down and busing an 80% amount of 60-80% intensity.
Day 6: - nothing helpful for me, listened thru 2-4 and a bit of the rest.
6.1: Rivers - Safe and Sound Protocol.
6.2: Riggs - Polyvagal, nervous system.
6.3: Adrienne Rivera - Breathwork.
6.4: Dan Hanson - Breathwork. Buteyko method for everyday constant use, rather than Wim Hof’s “super-ventilation” and some Pranayama, which is more like going to the gym, hormesis, stressing the body.
My Comment: Good to see the difference, but for me it’s only Wim Hof’s that does enough for me. Interestingly I did it while listening to Hanson, and without high preparation realized I was managing long breath-holds, I think because of getting so much oxygen all day.

Quality of life

Lessons in self-care: Kept everything down today, like workout, to not increase the backlash.
Reasons to be cheerful:
a) Many other baby birds have made it - but I found the baby blackbird we’ve been looking to protect ripped apart this (Sunday) morning first thing. I guess that was a bird of prey, cos it was very cleanly cut, and I hope their kids benefit from that meal. We actually saw a new gigantic one circling far above yesterday afternoon, it was majestic and beautiful, two carrion crows as entourage (like one after a heron a few weeks ago, now I’m beginning to realize where the English name comes from, in German they are just called raven crows). However I’d’ve thought it was a bird of prey that works from the side (like the sparrowhawk that’s preyed here), not above (like our local kestrels or this , cos the nest was very well hidden and the babies not fully-fledged. My wife comforted me, reminding me the babies had had a good time all their life, well looked after and fed by mum and dad. I’m watching out but get the feeling everyone in the garden is subdued now. But my wife heard one of the fully-fledged baby blackbirds of our neighbour.
Simplified: To not forget to take my landline phone downstairs after re-charging it, I can put it on my tray together with my re-charger. That might also help simplify other things I forget.
Foggies: Dropping 2 things was OK. But slow thinking needing breaks and switching tasks necessary, as very often, so “10%” is the least I should grade that subjectively.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-07-16 Sunday - sadness cos of dead baby blackbird and garden went all quiet (but praps cos of very windy weather). We buried him and went to our local quarry gardens to get our minds off of him. Wind, and sometimes burning sun was OK, pain just from walking in the gardens.

What … worked / went wrong … today?:

:white_check_mark: Sleep no more than 8h, early sun, air all day, screen curfew at 8. This is improving my wind and sun tolerance :white_check_mark:.
:white_check_mark: Eucalyptus lavishly, more linen, lavender etc. alternately, more cold showers.
:x: 14 hazelnuts may have increased my flush with my 2nd meal, itchy.
:x: 11 hazelnuts was the last straw for an esophagus block with my 3rd meal.

How was I today?:

Feeling 70%-ish cos of sadness, and altogether Ache (:x:), energy today (:white_check_mark:)/(:x:), sleep Saturday night :white_check_mark:, sleep Sunday night (:white_check_mark:)/(:x:), bite itch - 1 bite (:white_check_mark:). Nausea 0(-10)% (:white_check_mark:), fog 10% (:white_check_mark:).

Today working mainly on … bite itch: putting oils on regularly

1) Early circadian rhythm for a) energy/sleep & b) Ache

7’ workout? Nope, but quarry gardens for an hour, very slow walking, many breaks, 2x10’ slow cycling there and back was overdoing it.

1st meal a bit later, 2nd & 3rd early (slight intermittent fasting): :white_check_mark: (:x:) - cos of the gardens, (:x:) - cos of bird watching to get the dead one out of system.
but keeping food amount up :white_check_mark::white_check_mark:(:x:), 3rd went wrong cos of block.
Bed early / up early (:white_check_mark:) :white_check_mark:), screen time down (:white_check_mark:) → Effective sleep (:x:), so sleep supps earlier from now on.
“PEM” :x: vs. “Ache without exertion” = post postural Ache :x:.

:ping_pong: 6-8 games most days since June 20th, often winning (but hardly talking, not counting/picking up balls). - Wouldn’t have been able to play much today, I don’t think.

The idea of the energy “envelope” (which just means energy limits) made me unsure whether tracking my energy profile is that necessary, once I’ve established that I need to minimize the fast energy, and can sense when to. I’ll keep the tracking up, since it’s not changing much anyway these past few weeks, just in case. But I’m not concentrating on it, can’t see a sense in doing that at the moment.

1a) EXHAUSTIBILITY today: “84%". Energy down from June 30th, after great increase starting 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile (= moderate, with "3h+ rest").

R rest: 100% exhaustion 20% of the time (3h),
VS very slow: 60% exhaustion 20% of the time (3h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 30% of the time (5h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 6h22, up 4x (1h20), all deep, but wired once I woke up from 11 till 1, so I need to pull the sleep supps forwards and I spose sleep too - waking up shortly before 6 I delayed toilet to wake & get up at 6, but that meant <7h, so I need to go to bed before 10 tonight and do enough nice things. Wired meant less stiffness. 80%/2(-1)/5% drymouth30% sore throat10-5% tongue5-10% itch5% nostril/s0-5% stomach0(-40)%. (✅), everything else OK ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 90%/1 ✅. 1x FCS ✅

3rd meal time (:white_check_mark:), screen time (:white_check_mark:), tired :white_check_mark:, but wired later, so still take sleep supps early even if tired. GABA A2/+A3/
A3:0 A4:0 teeth0 p0 FA/CS#0 HWB#0 Sleep 22:30- 3rd # is LBU
23:38 42’ 80%/2/5% p0 st2! sip fw17’ fl17’ deep/ air/ A3/ A4/ (seem to have forgotten Saturday evening, as I had a double load in the tub today) drymouth30% sore throat5% tongue5% itch5% teeth0
0:29 Too wired, and the length & type of that last break didn’t help.
Need a sharp intervention now. 6 26’. A5/ But wired explains why stiffness down to 2.
2:28 6’ 80%/2/5% p0 st2! sip fw2’ fl0’ deep/ air/ A6/
drymouth30% sore throat10% tongue10% itch5%
3:47 6’ 80%/2/5% p0 st2! sip fw2’ fl0’ deep/ air/ A7/
drymouth30% sore throat10% tongue10% itch5%
-6:12 80%/1/5% p0 st2! deep/ air/ B/ drymouth30% sore throat5% tongue5% itch5% nostril/s10/0% stomach40%
1x FCS :white_check_mark:
Sum: 1h30+6h12-(42+26+6+6)80’ = 7h42-80’ = 6h22, up 4x (1h20), all deep, but wired once I woke up from 11 till 1, so I need to pull the sleep supps forwards and I spose sleep too - waking up shortly before 6 I delayed toilet to wake & get up at 6, but that meant <7h, so I need to go to bed before 10 tonight and do enough nice things. 80%/2(-1)/5% drymouth30% sore throat10-5% tongue5-10% itch5% nostril/s0-5% stomach0(-40)%.

1b) ACTIVITIESACHE = PEM (Post exertional malaise): no TT, but quarry gardens with a lot of rest ➔ 80%/5 :x:, hardly moving after that, but when I did it seemed fairly OK ➔ 80%/2-3 :white_check_mark:, not talking much. White lips80% / looked bad (:x:).
1c) REST/STIFFNESS ➔ ACHE At night st3 → 80%/3 :white_check_mark:/:x: Getting up - for how long?: st3 → 80%/3 :white_check_mark:/:x:, Later less? :white_check_mark:/:x:
How stiffly I go up and down stairs has been changing hourly the past few days, from very slowly to pretty fast…

2) Histamine/MCAS symptoms

:x: After 2nd meal I didn’t have a flush, so I ended with 14 hazelnuts at 15:00, and got a little itchy flush at 15:11 for about 20 mins.
:x: But testing 11 hazelnuts with my 3rd meal went totally wrong, was the last straw for an esophagus block, so had to get it out, lots came out, incl. supps.
Nauseous sinus burning headache: Nope? :white_check_mark:.
Tongue burning: Nope :white_check_mark: - no cranberries? (Not during the B3 flush either tho, whether from hazelnuts or something else.)
Insect bite itch: :lotion_bottle: No oils on at 9:00 :x:, 14:00 :x: and 19:00 :white_check_mark:?. Too distracted to think of it.
To decrease: lavender spray :white_check_mark: on shoulder, tea tree oil, olive oil, salt-water-paste (bit of water), hot spoon.
Excitement :white_check_mark: - as already posted in Saturday’s entry: the shock of finding the baby blackbird Sunday morning caused sinus burning, not sure if that’s from crying or also histamine.

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. ENERGY DOWN to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, energy increased June 20th to 30th (>20%), and usually still quite higher after (16-20%), further symptoms down too. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

3) Docs:

Last DOC update July 13th: Unsuccessfully asked for my onco lab results. June 24th/25th: Teeth problems resolved for the time being. Waiting for onco report, “2nd” opinion or not? (“B symptoms” = night sweats, appetite, weight starting Feb/March resolved in June.) Click for details…
Click for details: Update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

4) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

Annoyances 1+2, whilst 3 and 4 are OK now.
:one: Tea tree oil on onychia and fungus on my right foot at 22:00 and 7:30. Next calendula, cos the skin is getting frail.
:two: Thumb nails: Beau’s lines?? But why always and only on my thumbs.

1) Symptoms well under control: GI (via elimination), pee (via GABA: ENOUGH? ✅), LOCAL PAINS (exercises, back: via using wall/door for support). Details...

except GI: stools loose0% :white_check_mark:, appetite :white_check_mark:, pee pain: 0p1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN / WIND ✅/❌?, THIRST (✅), dry mouth (day and) at night ❌. Last SEIZURES July 7th seizur-ish 4x... Jun 23rd 4x, Jun 16th, Jun 6th 2x ❌, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: July 16th, May 31st, before that Apr 4th ✅. JAW solved for the time being since June 23rd. ✅

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Dry mouth (day and) at night has always been a problem, a stronger added real thirst making me drink a fourth litre of almond milk a day came up in April. Stopping the antihistamine completely has praps helped stop it become painfully sticky at night, so I don’t use the gel much any more.
Last focal seizures: Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: July 16th I was concentrating on testing if hazelnuts increase my nicotinic acid flush with my 3rd meal, and disregarded a slight throat pressure, which went totally wrong, was the last straw for an esophagus block, so had to get it out, lots came out, incl. supps, and needed to wait quite a bit afterwards.
Mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more… - June 23rd: OK, the fillings were enough, solved for the time being.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Creatine? Methylene blue?
SELF-PHYSIO (click for details): OK? Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK? Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no EGCg or pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jun 16th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 0x1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0.1g, myo-inositol 1x2x0.5g/1!d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 3x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x1x.5g, resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (2+2+1)x0.6=3.0g (as much as B3). Plus rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated Jun 16th.
“16:00” preparing pills
“17:30” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xvC#1, 2Cr#1, PF#2, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1% Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc.
B=11/ ’ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +1-2The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=20 with meal: 1xB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 2xTMG#2 2xEleu 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jun 16th

Pf: A1+A2+A3, vB2: 1C,1D, 1A. vB3: 2C,2D.1A, vB5: C,DA. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3,a4, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. (pine: C,D.) Qc: B.E.A1.A3. Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 6MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, Ru, 2 Sa, Sily, 2Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jun 16th: correct?
A1=7+1 Pf#1 Qc1#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2, Ga#1:0.3g, Hon#1, Q10, 0Se, 1TMG#1 (?Rup). = 12?
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, 0EGCg, Fev/MSM#1, Qc#3, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#4 Gi#2 Ol#1 0Pin#1 2TMG#2 2xEleu 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=13 vB2#3 "2"vB3#3 vB5#3 3xCr#3 Ga#5 Gi#3 Ol#2 0Pin#2 2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today: 1) My Beau’s lines are from dry thumbtips, 2) Methylene blue not allowed, so not regulated, in Germany, except for emergencies, see next blog entry…

Histamine effect of nicotinamide (B3 flush) I’ll do in the course of Monday.

Quality of life

Lessons in self-care: A break from slow walking in the gardens lying down for 10’ was a good idea - I was thinking praps going directly home would’ve been better, but it wasn’t. I should have listened to my wife before.
Reasons to be cheerful:
a) (Baby?) Red Squirrel visited us several times, Monday morning the Dark Red Squirrel.
b) Wonderful enormous variety of plants in our local quarry gardens.
c) Wow, in the evening all the Blue and Great Tits came, 2 baby (youth) Blackbirds, both baby Pigeons, and got fed together (I thought they were getting too old), the 2 reddish Mice and the one grey one, what a lively flurry!
d) In the evening whilst dead heading for relaxation I disturbed one of the baby blackbirds sleeping under the wheelbarrow, and at the same time we heard cats, errhm tigers, in the background, but we couldn’t coax her higher, she just hurried forwards a few steps. So we’re just praying she’ll make it thru the night and get cleverer. Trust.
e) Several times one of our birds came very close for a short time.
Simplified:
a) Used a cable to watch service on the balcony, since Wi-Fi isn’t working continuously in the cellar enterance now we’ve changed providers, even tho in the flat it’s usually much quicker than before.
b) Outhoused a cleaning process that was slightly smelly.
c) Keeping almond milk tetrapaks closer but not where they get smelly.
Foggies: Quite a few.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

Sunday’s ‘Research’: 1) Beau’s lines on my thumbnails 2) Try methylene blue?

1) My Beau’s lines of the thumbnails - I think they are that - to me seem most likely from washing my hands with the wrong soap for a few months too much, next would be calcium or zinc deficiency (wp). This would correlate to long times where my thumbtips hurt a lot, and this getting better from washing my hands less and switching my soap back to the olive oil one from a different brand. What’s moving up the nail now is much better again.

https://nailsfaq.com/beaus-lines-what-causes-ridges-on-nails: Ridges on nails that caused by physical interactions
We live in a modern world that requires us to wash our hands several times a day. Most times, we wash our hands with soap and warm water. However, some people might use much stronger soap for their sensitive skin. Together with hot water, they clean our hands but also take away the natural oil on the skin, especially on the cuticle.
This oil is needed for the cuticles to slide or spring back as the nails continue to grow outward. When this oil is missing or dries out, the cuticles are dry and stuck to the nail surface, and move out with the nails. If this situation continues, you will have overgrown and thick cuticles.

beau’s lines on thumbnails are more pronounced or visible because cuticles on thumbs are usually dryer than those on other fingers."
Health Harvard does suggest reduced circulation / Raynauld’s, but mine is more in the feet (probably explaining the problems of my right foot), hardly in my hands.
Another more reliable seeming site, prevention.com, recommends 1. moisturize, 2. Keep neat 3. Don’t pick at or bite 4. Buff gently 5. Don’t mess with cuticle 6. Reduce water exposure (Wash your hands when it’s necessary, but try not to overdo it. “Washing your hands too often strips your skin of its natural oils and emollients, resulting in dryness and even hand eczema, which can cause nail changes,” says Dr. González. The same goes for prolonged water exposure, like when washing dishes. - The nail cells absorb water, expand, and then contract when they dry out, which can weaken the bonds between nail cells over time, says Dr. Hart. - When you do have to wash your hands, switch to a moisturizing hand soap, suggests Dr. Shainhouse, such as Live Clean Coconut Milk Moisturizing Hand Soap and follow up with a dose of your go-to moisturizer. If your hands are constantly immersed in water, consider wearing cotton-lined rubber gloves to protect your hands and nails—and when that’s not practical, moisturize regularly.) 7. Healthy diet 8. Prescription-strength nail hardener 9. Ridge filler 10. Polish easier on your nails 11. Give a breather. “In manicuring, the nails are exposed to prolonged water exposure,”

2) Methylene blue or not? I’m even finding it hard to find reliable sites and products in Germany, so I’m concentrating on German links to find product names and information.

Short answer: it’s not allowed as food or supplement in the EU, so won’t be regulated properly. But then again supps are always a certain risk. And one I found seems sort of reliable and made in Germany.
Long answer:
Here a German pharmacy newspaper says that a sort named ProveBlue was then (2011) being synthesized without heavy metals Notfallmedizin: Methylenblau in besserer Qualität. That doesn’t sound too good to me. But it’s for intravenous use, that’s not what I’d need it for anyway. And here (2010) a brand called BLUEbact by Heltsch, a 1% solution.
uncutnews is a German page which sounds similar to what I’ve been hearing on the summits from US functional docs, but the site name is “conspiracy theoretical”. However Ärzteblatt is reputable and recommends its use for malaria, which sounds OK. Here in 2020 it says that a 0.5% spray and a 1% normal solution together with 10% DMSO, can be found at www.alchemist.de. The 1% solution contains 0.5mg in every drop, 20 drops 10mg. And here it talks about intravenous use in a way that I can see that there is not much more German information around. The product on alchemist does not say it is pharmaceutically approved, the site does not look particularly reliable, I’d think a nerd, who might have got a good supplier, or not, and the product sheet it promises is a dead link. The page referring to it also mentions this source which again is esoterical/conspiracist and in turn names but impromperly connects to this one, which again is esoterical/conspiracist and links to a product on A. which says it’s for colouring - that won’t be heavy metal free! I don’t want to rely on eBay or the Big A, which is something one doc on the summit also said. But I could still use them to find products which I can then research.
The most reliable one I can find on A. (MitoBlue Premium nootropics…) is one of which the product info looks extremely reliable, however the brand name is “GENERIC” - which doesn’t exactly sound like a reliable manufacturer, plus it states that it’s not allowed for food or supplement in the EU. One very recent German reviewer using it orally says it’s great, but someone asking back about the lab results is answered “please contact us directly” by the retailer who again does not sound reliable. As long as it’s not allowed here, there will likely not be a reliable source. And it not being allowed suggests it shouldn’t be. That’s the good thing about restrictive legislation. Unless that’s because of course it is synthetic, so is no food. “Methylenblau ist gemäß der EU Novel Food Verordnung in Deutschland und der Europäischen Union nicht als Lebens- oder Nahrungsergänzungsmittel zugelassen. Verkauf als Laborchemikalie und zu Dekorationszwecken.”
Should I take chances with a synthetic substance that might contain heavy metals and isn’t allowed in the EU? After all LDN is also risky and I’m willing to try that.

Hi JayCS! Have you heard of the song “ Black Bird “ by The Beetles? Very empowering lyrics and if you look up what the song is about, it is quite inspirational.

1 Like

Hi Freedom! :wave: :smiley:
Yeah, thanks for the reminder! I love the Beatles’ original of Blackbird, but also the Bobby McFerrin a cappella version, where he imitates the flight sound when they’re flying really quick (like to and from the nest…).
And thanks for the pointer, I often forget to listen to lyrics, concentrate more on the music, you’re so right with that!

2023-07-17 Monday - hazelnut theory disproven, 2 focal seizures after the excitement of a thunderstorm (the thrilling atmosphere, but whilst it was pouring also distributing rain water in all my remaining tubs in the best bit of 1 hour of rain so far this year, 7L/m2/h, and quickly cleaning a gutter).

What … worked / went wrong … today?:

:white_check_mark: Sleep no more than 8h, early sun, air all day, screen curfew at 8.
Wrenching sleep time forward brought me down 6h22 sleep, I hope I’ve learnt my lesson and’ll go to bed before 10! -
:x: Didn’t. Plus too long sleep breaks. Gotta keep at it, again pulling everything forward from the morning on.
:white_check_mark: Eucalyptus lavishly, trousers (lavender etc. alternately, more cold showers not necessary)

How was I today?:

Feeling 85%-ish (:white_check_mark:), energy today (:white_check_mark:), sleep Sunday night (:white_check_mark:), sleep Monday night (:white_check_mark:), no bites :white_check_mark:. Nausea 0% :white_check_mark:, fog 10% (:white_check_mark:).

Today working mainly on … (work & garden… and) hazelnuts, result: NOT increasing the B3 flush.

1) Early circadian rhythm for a) energy/sleep & b) Ache

7’ workout? Nope, work distracted.

1st meal a bit later, 2nd & 3rd early (slight intermittent fasting): :white_check_mark: (:x:) (:white_check_mark:) = 13:11,
whilst keeping food amount up :white_check_mark:(:white_check_mark:)(:white_check_mark:)/(:x:).
Bed early / up early (:white_check_mark:)(:white_check_mark:, screen time down (:white_check_mark:) → Effective sleep (:white_check_mark:).
“PEM” :x: vs. “Ache without exertion” = post postural Ache :x: - higher cos of not sleeping enough. Better Tuesday morning.

:ping_pong: 6-8 games most days since June 20th, often winning (but hardly talking, not counting/picking up balls), now 2nd week of a 2 week break.

1a) EXHAUSTIBILITY today: “84%". Energy down from June 30th, after great increase starting 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile/envelope (= moderate, with "?3h rest").

R rest: 100% exhaustion 20% of the time (3h),
VS very slow: 60% exhaustion 20% of the time (3h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 30% of the time (5h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 7h49 ✅, up 5x (1h16)(❌), all deep ✅. Waking up every hour first, altho I'd taken the sleep meds at 7 and was really tired, then at 3 even a longer break necessary. I guess it'd be fine if I could keep that down to 15', I think I used to manage keeping it shorter, I'll try that. 80%/2-4/5% drymouth30% sore throat10% tongue10% nostril/s0-10% zombie0-10% (✅), everything else OK ➔ Feeling 80% well, Ache 2-4 of 7 ✅-❌, getting up: 90%/2 ✅. 1x FCS ✅.

3rd meal time (:white_check_mark:), screen time (:white_check_mark:), tired :white_check_mark:. GABA A2/+A3/
A3 A4:0 teeth0 p0 FA/CS#0 HWB#0 Sleep 22:15- 3rd # is LBU
23:20 4’ 80%/2/5% p0 st3 sip fw2’ fl0’ deep/ air/ A4
drymouth30% sore throat10% tongue10%
0:05 8’ 80%/2/5% p0 st3 sip fw4’ fl4’ deep/ air/ A5
drymouth30% sore throat10% tongue10%
1:25 19’ 80%/2/5% p0 st3 sip fw16’ fl2’ deep/ air/0 A6
drymouth30% sore throat10% tongue10% zombie10%
3:12 40’ 6 80%/2/5% p0 st3 sip fw2’ fl0’ deep/ air/ A7
drymouth30% sore throat10% tongue10% zombie10%
5:42 5’ 80%/4/5% p0 st3 sip fw2’ fl0’ deep/ air/ A8
drymouth30% sore throat10% tongue10% zombie10% PPA 40% nostril/s0/10%
-7:20 5’ 80%/3/5% p0 st2 fw2’ fl0’ deep/ air/ B
drymouth30% sore throat10% tongue10% zombie10% PPA 40%
1x FCS :white_check_mark:
Sum: 1h45+7h20-(4+8+19+40+5=)76’ = 9h05-1h16 = 7h49, up 5x (1h16), all deep. 80%/2-4/5% drymouth30% sore throat10% tongue10% nostril/s0-10% zombie0-10%

1b) ACTIVITIESACHE = PEM (Post exertional malaise): no TT, no workout, but gardening/moving a bit was quite OK ➔ 80%/2 :white_check_mark:, talking: 20’ phone call ➔ 80%/3-4 :white_check_mark:. White lips60% (:white_check_mark:)
1c) REST/STIFFNESS ➔ ACHE At night st3-4 → 80%/3-4 (:x:) Getting up - for how long?: st3 → 80%/3, but only for 15’ Tuesday :white_check_mark:, later mostly less :white_check_mark:.
1d) INSOMNIA ➔ ACHE In the evening Ache rose to 4 and fog 50%, I dropped cards, made many playing mistakes… :x: - and this will have been from sleeping 6h22 Sunday night as well as taking sleep supps properly and early (except A2-GABA).

2) Histamine/MCAS symptoms

Nauseous sinus burning headache: Nope :white_check_mark:. But sneezed - after 9 hazelnuts half an hour after supps on an otherwise empty stomach - but no other hazelnut problems today either, so that hypothesis is disproven, the severe flush is for some reason just from the B3, sometimes more, sometimes less.
Tongue burning: Nope :white_check_mark:. Cranberry trial up next.
Insect bite itch: :lotion_bottle: Oils on at 9:00 :white_check_mark:.
Decrease not necessary :white_check_mark:.
Excitement :white_check_mark: - during thunderstorm, seizures after it subsided at 18:30 at and again at 20:00.

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. ENERGY DOWN to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, energy increased June 20th to 30th (>20%), and usually still quite higher after (16-20%), further symptoms down too. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

3) Docs:

To see if the onco doc sent a report to the GP, I need to remember to go before they close for holidays.

Last DOC update July 13th: Unsuccessfully asked for my onco lab results. June 24th/25th: Teeth problems resolved for the time being. Waiting for onco report, “2nd” opinion or not? (“B symptoms” = night sweats, appetite, weight starting Feb/March resolved in June.) Click for details…
Click for details: Update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

4) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

Annoyances 1+2 (3 and 4 are OK now).
:one: Tea tree oil on onychia :white_check_mark: and fungus on my right foot. :white_check_mark:
:two: Beau’s lines on thumbnails: Reduce washing :white_check_mark:, olive oil soap :white_check_mark:, moisturize :white_check_mark:/:x:.

1) Symptoms well under control: GI (via elimination), pee (via GABA: ENOUGH: didn't seem to be the past few days, cos of the seizures today and slight pee pain, but today ✅), LOCAL PAINS (exercises, back: via using wall/door for support) ✅. Details...

except GI: stools loose0% :white_check_mark:, appetite :white_check_mark:, pee pain: 3p1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN / WIND ✅, THIRST (✅), dry mouth (day and) at night ❌. Last SEIZURES July 17th: 18:30 19:55 after thunderstorm. July 7th seizur-ish 4x... Jun 23rd 4x, Jun 16th, Jun 6th 2x ❌, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: July 16th, May 31st, before that Apr 4th ✅. JAW solved for the time being since June 23rd. ✅

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Dry mouth (day and) at night has always been a problem, a stronger added real thirst making me drink a fourth litre of almond milk a day came up in April. Stopping the antihistamine completely has praps helped stop it become painfully sticky at night, so I don’t use the gel much any more.
Last focal seizures: July 17th: 18:30 19:55 after thunderstorm. July 7th seizur-ish 4x. Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Generally, mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. July 16th I was concentrating on testing if hazelnuts increase my nicotinic acid flush with my 3rd meal, and disregarded a slight throat pressure, which went totally wrong, was the last straw for an esophagus block, so had to get it out, lots came out, incl. supps, and needed to wait quite a bit afterwards. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more… - June 23rd: OK, the fillings were enough, solved for the time being.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Creatine? Methylene blue?
SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK. Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no EGCg or pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jun 16th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 0x1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0.1g, myo-inositol 1x2x0.5g/1!d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 3x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x1x.5g, resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (2+2+1)x0.6=3.0g (as much as B3). Plus rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated Jun 16th.
“16:00” preparing pills
“17:30” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xvC#1, 2Cr#1, PF#2, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1% Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc.
B=11/ ’ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +1-2The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=20 with meal: 1xB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 2xTMG#2 2xEleu 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jun 16th

Pf: A1+A2+A3, vB2: 1C,1D, 1A. vB3: 2C,2D.1A, vB5: C,DA. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3,a4, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. (pine: C,D.) Qc: B.E.A1.A3. Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 6MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, Ru, 2 Sa, Sily, 2Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jun 16th: correct?
A1=7+1 Pf#1 Qc1#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2, Ga#1:0.3g, Hon#1, Q10, 0Se, 1TMG#1 (?Rup). = 12?
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, 0EGCg, Fev/MSM#1, Qc#3, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#4 Gi#2 Ol#1 0Pin#1 2TMG#2 2xEleu 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=13 vB2#3 "2"vB3#3 vB5#3 3xCr#3 Ga#5 Gi#3 Ol#2 0Pin#2 2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today: No.

Quality of life

Lessons in self-care:
a) Took care to change clothes after the storm, maybe not soon enough, but washing hair and blow drying was a good help, I was starting to feel a bit cold-ish.
b) Now I’ve got the main part of work done in a lot of rush, and needing recovery from it, I need to strike the right balance between continuing under less drive & inner pressure, but still getting more done, cos there’s still lots.
Reasons to be cheerful:
a) Being outside in the storm was real fun.
b) Tuesday morning our local bullfinch has come into our cherry, I’d be wondering why he never comes to us. Not that I love the repetition as much as Blackbird, which I’m (we’re) missing greatly.
c) As if to comfort me, a great tit and a pigeon just came really close to the cellar entrance, Dark Squirrel is here at the feeding places now too, and also coming closer.
d) Astonishing how squirrel’s learnt to twist-jump-fall into the feeding “boxes” on a wall, they had difficulty at the beginning, but now no problem.
e) One of the Baby Blackbird just came over again, maybe the one who was sleeping under the wheelbarrow the other evening, and now Dad Blackbird too.
f) A colleague just wrote, feel like writing back immediately. Need to try to connect to my sister this week, both didn’t manage.
g) It’s a great feeling to have managed a big ending part of the work load Monday.
Simplified: Cleaned the bin for the “rest” rubbish really easily, using a spade and only 3L of water. It’d become smelly and got lots of fruit flies from all the cherries I’d put in, so all the cherry fly maggots don’t go back into any earth. Started using the cardboard and all the many paper bags that we were putting in the bin for recycling it. Not much effort, but not as yucky.
Foggies: Having to correct sound-alike words fairly often, like writing listen instead of lesson.

Development

The Ache and fog in the evening from sleeping less (6h22 deep sleep) reminded me how it used to be, and how crucial it has been after all for many of my symptoms to get my insomnia under control. May not have increased my energy much, but everything else it has.

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-07-18 Tuesday - day not easy, but night tough and morning sad awakening

What … worked / went wrong … today?:

:white_check_mark: Sleep no more than 8h, early sun, air all day, screen curfew at 8.
:white_check_mark: Eucalyptus lavishly (more linen, lavender etc. alternately, more cold showers.)

How was I today?:

Feeling 85%-ish (:white_check_mark:), energy today (:white_check_mark:), sleep Monday night (:white_check_mark:), sleep Tuesday night (:white_check_mark:/:x:), no bites :white_check_mark:. Nausea 0% :white_check_mark:, fog 10% (:white_check_mark:).

Today working mainly on … (garden and getting other things done and) sleep hygiene - which went completely wrong

1) Early circadian rhythm for a) energy/sleep & b) Ache

At 18:30 I start going into ‘tired’ mode, but less at 20:00, so no help.
7’ workout? Nope, 20’ shop was more than enough, Ache of 4 after that.

1st meal a bit later, 2nd & 3rd early (slight intermittent fasting): :white_check_mark:(:x:)(:white_check_mark:/:x:),
whilst keeping food amount up (:white_check_mark:)(:white_check_mark:)(:white_check_mark:)
Bed early / up early :white_check_mark::white_check_mark:, screen time down :white_check_mark: → Effective sleep (:white_check_mark:)/(:x:).
“PEM” :x: vs. “Ache without exertion” = post postural Ache :x:.

:ping_pong: 6-8 games most days since June 20th, often winning (but hardly talking, not counting/picking up balls), now 2nd week of a 2 week break till Friday.

1a) EXHAUSTIBILITY today: “82%-". Energy down from June 30th, after great increase starting 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile/envelope (= moderate, with "3h rest").

R rest: 100% exhaustion 20% of the time (3h),
VS very slow: 60% exhaustion 20% of the time (3h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 30% of the time (5h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 6h39, up 8x (1h30), 5 of that deep. My back started up (despite back exercises) so I needed the 1st cold shower at 11, that backfired and hypered me for a time, then another pee urge, so had to take a longer break, dry cough showed my dry mouth playing up, not sure it the pee frequency was from drinking so much for all the GABA or from histamine alone, at 5 annoying thoughts, so a very short cold shower, but that wasn't enough. So only "longer" sleep period was the 1.5h from 4:45... to 5:17... No sure what went wrong, was sleep too early, or even too late?, was the cold shower too late? ❌, everything else OK ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 90%/2 ✅. 2x FCS ✅✅ - didn't seem necessary before sleep, but it didn't as planned keep sleep breaks shorter.

3rd meal time (:white_check_mark:), screen time :white_check_mark:, tired :white_check_mark: - but “too” early. GABA A2/+A3/
A3 A4:0 teeth0 p0 FA/CS#0 HWB#0 Sleep 21:55- 3rd # is LBU
22:40 7’ 80%/1/5% p0 st2 sip fw4’ fl0’ deep/ air/ A5/
drymouth30% sore throat10% tongue10%.
23:10 4’ 80%/1/5% p0 st2 sip fw2’ fl0’ deep/ air/ A6/
drymouth30% sore throat10% tongue10%.
23:22 18’ 80%/1/25% (rare!) → FCS#2+teeth/ p0 st2 sip fw5’ fl0’ deep/ air/ A7/
drymouth30% sore throat10% tongue10%.
0:15 40’ 6 FCS had backfired and hypered me for 20’, as I started calming down pee urge. Not sure if I should try something else, but my back was still playing up, dry cough twice → gel/.
1:54 4’ 80%/1/5% p0 st2 sip fw2’ fl0’ deep/ air/ A8/
drymouth30% sore throat10% tongue10%. stomach20%
3:15 4’ 80%/1/5% p0 st2 sip fw2’ fl0’ deep/ air/ A9/
drymouth30% sore throat10% tongue10%. stomach5%
High pee frequency and amounts - histamine?
4:41 4’ 80%/1/5% p0 st2 sip fw2’ fl0’ deep/ air/ A9/
drymouth30% sore throat10% tongue10%. nostrils 0/20% → more bed clothes, I’d already been feeling col before., stools loose0%, slight abdomen pressure after stomach20%. I DRANK 1L of ALMOND MILK TONIGHT FOR THE GABA. Still thirsty gel/
5:17 9’ stressful thoughts, and annoying lower back unrest, so trying a very short cold shower, 10 seconds. - then breathing awareness exercises and praps NSDR gel/
-6:04 I almost dropped off using breathing and self-NSDR, maybe should have used Ally’s. But the annoying thoughts came up again, so time to get up and get them implemented today. 80%/1/5% p0 st2 DOZE drymouth30% sore throat10% tongue10%. nostrils 0/20%
2x FCS :white_check_mark::white_check_mark:
MIN-MAX PROGRESSION
?80%/?2-3/?5-25!% drymouth?30% sore throat10-?20% tongue10-?20% itch 0-?20% nostril/s0-?10% dryhands0% nausea?0% stomach0-?30% sinuses0-?10% headache0-?10% stools0 loose% zombie0-?10%
Sum: 2h05+6h04-(7+4+18+40+4+4+4+9=)90’ = 8h09-1h30 = 6h39, up 8x (1h30), 5 of that deep. My back started up (despite back exercises) so I needed the 1st cold shower at 11, that backfired and hypered me for a time, then another pee urge, so had to take a longer break, dry cough showed my dry mouth playing up, not sure it the pee frequency was from drinking so much for all the GABA or from histamine alone, at 5 annoying thoughts, so a very short cold shower, but that wasn’t enough. So only “longer” sleep period was the 1.5h from 4:45… to 5:17… No sure what went wrong, was sleep too early, or even too late?, was the cold shower too late?

1b) ACTIVITIESACHE = PEM (Post exertional malaise): no TT, no workout, not much gardening/moving ➔ 80%/2 :white_check_mark:, shop ➔ 80%/4 :x:, not talking much. White lips & face colour OK-ish.
1c) REST/STIFFNESS ➔ ACHE At night st3 → 80%/3 (:white_check_mark:). Getting up - for how long?: st3 → 80%/3 (:white_check_mark:). - Cortisol of course reduces stiffness but causes insomnia.

2) Histamine/MCAS symptoms

Nauseous sinus burning headache: Nope :white_check_mark:.
Tongue burning: Hardly :white_check_mark:. Cranberry trial next.
Insect bite itch: :lotion_bottle: Oils unncessary. Cos I wanted to leave the Baby Blackbird in peace I didn’t go in the garden much.
Excitement before getting up from annoying thoughts :x:, after getting up sad cos of the 2nd dead Baby Blackbird :x: - that looked so cute & cuddly yesterday.

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. ENERGY DOWN to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, energy increased June 20th to 30th (>20%), and usually still quite higher after (16-20%), further symptoms down too. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

3) Docs:

Last DOC update July 13th: Unsuccessfully asked for my onco lab results. June 24th/25th: Teeth problems resolved for the time being. Waiting for onco report, “2nd” opinion or not? (“B symptoms” = night sweats, appetite, weight starting Feb/March resolved in June.) Click for details…
Click for details: Update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

4) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

Annoyances 1+2 (3 and 4 are OK now).
:one: Tea tree oil on onychia :white_check_mark::white_check_mark: and fungus on my right foot. :white_check_mark::white_check_mark:
:two: Beau’s lines on thumbnails: Reduce washing :white_check_mark:, olive oil soap :white_check_mark:, moisturize :x:.

1) Symptoms well under control: GI (via elimination), pee (via GABA: ENOUGH ✅), LOCAL PAINS (exercises, back: via using wall/door for support) ✅, but still bad lower back at night ❌, not sure why. Details...

except GI: stools loose0% :white_check_mark:, appetite :white_check_mark:, pee pain: 0p1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN / WIND ✅ THIRST (❌), dry mouth (day and) at night ❌❌. Last SEIZURES July 17th: 18:30 19:55 after thunderstorm. July 7th seizur-ish 4x... Jun 23rd 4x, Jun 16th, Jun 6th 2x ❌, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: July 16th, May 31st, before that Apr 4th ✅. JAW solved for the time being since June 23rd. ✅

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Dry mouth (day and) at night has always been a problem, a stronger added real thirst making me drink a fourth litre of almond milk a day came up in April. Stopping the antihistamine completely has praps helped stop it become painfully sticky at night, so I don’t use the gel much any more.
Last focal seizures: July 17th: 18:30 19:55 after thunderstorm. July 7th seizur-ish 4x. Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Generally, mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. July 16th I was concentrating on testing if hazelnuts increase my nicotinic acid flush with my 3rd meal, and disregarded a slight throat pressure, which went totally wrong, was the last straw for an esophagus block, so had to get it out, lots came out, incl. supps, and needed to wait quite a bit afterwards. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more… - June 23rd: OK, the fillings were enough, solved for the time being.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Creatine? Methylene blue?
SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK. Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no EGCg or pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jun 16th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 0x1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0.1g, myo-inositol 1x2x0.5g/1!d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 3x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x1x.5g, resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (2+2+1)x0.6=3.0g (as much as B3). Plus rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated Jun 16th.
“16:00” preparing pills
“17:30” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xvC#1, 2Cr#1, PF#2, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1% Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc.
B=11/ ’ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +1-2The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=20 with meal: 1xB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 2xTMG#2 2xEleu 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jun 16th

Pf: A1+A2+A3, vB2: 1C,1D, 1A. vB3: 2C,2D.1A, vB5: C,DA. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3,a4, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. (pine: C,D.) Qc: B.E.A1.A3. Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 6MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, Ru, 2 Sa, Sily, 2Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jun 16th: correct?
A1=7+1 Pf#1 Qc1#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2, Ga#1:0.3g, Hon#1, Q10, 0Se, 1TMG#1 (?Rup). = 12?
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, 0EGCg, Fev/MSM#1, Qc#3, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#4 Gi#2 Ol#1 0Pin#1 2TMG#2 2xEleu 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=13 vB2#3 "2"vB3#3 vB5#3 3xCr#3 Ga#5 Gi#3 Ol#2 0Pin#2 2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today:

I couldn’t believe when someone said amitriptyline works for her itching.
There is actually some evidence for it, however mainly for neuropathic itchiness - like also for more neuropathic pain, so mine seems to be neither, as amitriptyline didn’t do anything for me except harm: Use of oral antidepressants in patients with chronic pruritus: A systematic review - PubMed
A total of 35 studies evaluating the oral use of fluoxetine, fluvoxamine, paroxetine, sertraline, amitriptyline, nortriptyline, doxepin, and mirtazapine were included. The majority of included articles showed a marked improvement of pruritus during treatment with oral antidepressants.
and Tricyclic antidepressants. Amitriptyline, nortriptyline | DermNet
Tricyclic antidepressants are sometimes successfully prescribed for pruritus (itch), especially when this is of neuropathic origin…
Tricyclic medication has some antihistamine H1 blocking activity and may be useful in the treatment of urticaria even when conventional antihistamines have failed.
Patients need to be warned that pain/itch relief is not immediate as it may take several weeks for the drug to become fully effective.

Quality of life

Lessons in self-care: Not sure what’s going wrong at night, need to come up with an idea.
Reasons to be cheerful:
a) Chirping brought a new pigeon nest to my attention, this time easier to see…
b) but it was a cute little Baby Blackbird snuggling on the ground under our giant buxus, which I could focus on too with binoculars, once I’d seen Mum darting out and back for food…
c) so praps it was only one of the Blackbird Chicks that got mutilated and this was praps another, but doesn’t have to be on the nest anymore.
d) Wonderful how interesting flowers are growing from earth I’d been able to take from someone else’s garden, a dark coloured petunia, and the “poison berry” (apple of Peru or Sodom).
e) Watching Blackbird Mum thru binoculars bathing & preening to take a break from feeding the Chick, the water flying around appeared to almost splatter on me, like the effect in 3D films - but better. :smile:
f) Amazing how flowers turn to the sun, esp. sunflowers, we have 2 opposite our house which don’t need to turn, but two in our garden that very clearly change position all day.
g) Also amazing where my 2 sunflowers have grown. I planted seeds all over the garden, the 2 places they actually grew is in earth between two small pots on the stone terrace! and between two concrete slabs near a metal balcony post.
h) The Blackbird Chick has been in the same place for hours. When I heard Chick chirping for food and looked thru the binoculars I heard the Mum talk from afar and Chick answer every time immediately, and then continue chirping for food. Hope Chick’ll make it. My wife says in German we have the word ‘branchling’ for birds that are no longer ‘nestlings’. But this one is an earthling. :face_with_monocle: That would seem to be the most risky sort.
i) So many things have got better in the last months, I think actually after the l3rd jab, another example being that I can now lie on my arms when sleeping…
j) Not sure if this is a foggy or not: When I went to bed I decided not to cold shower yet. But first I was thinking of doing so, so took most of my clothes of, except the 3 inner pairs of left socks. When my back and body was playing up a bit later, I took everything up and realized I’d put the 2 outer pairs of right socks over my 5 left pairs, so had 7 pairs on my right foot, and 3 on the other. And didn’t really realize it… (That’s only possible because my outer woolen socks have enormous ankle holes)
k) I looked in the sky this Wedn. morning and decided to look into Heaven at the same time - need to do that more often again.
l) My wife prepared me for the sad shock that the 2nd Baby Blackbird didn’t make the night either. A group of Jays with a Baby were around, but the body seemed cold, so maybe it wasn’t them, they were just wanting to make use of it. Luckily all the other Babies were around again, and partly very near, that was comforting.
Simplified:
Foggies: Making a mess of my stuff by not closing the almond milk lid properly wasn’t a real foggy, just a nuisance.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-07-19 Wednesday - tough day, but a good night.

What … worked / went wrong … today?: Everything?

:white_check_mark: Sleep no more than 8h, early sun, air all day, screen curfew at 8.
:white_check_mark: Eucalyptus not necessary.
:x: But sleep, eating times, thinking, foggies…

How was I today?:

Feeling 75%-ish (:x:), energy today (:x:), sleep Tuesday night (:x:), sleep Wednesday night :white_check_mark:, no bite itch :white_check_mark:. Nausea 0% :white_check_mark:, fog 10% (:white_check_mark:).

Today working mainly on … sleep…

1) Early circadian rhythm for a) energy/sleep & b) Ache

7’ workout? Nope, not up to trying, cos I wanted to get the thoughts off my check soon, so they don’t come up again at night.

1st meal a bit later, 2nd & 3rd early (slight intermittent fasting): :white_check_mark: (:x:) (:x:),
whilst keeping food amount up :white_check_mark::white_check_mark::white_check_mark:
Bed early / up early :white_check_mark::white_check_mark:, screen time down (:white_check_mark:) → Effective sleep :white_check_mark:.
“PEM” :x: vs. “Ache without exertion” = post postural Ache :x:. Ache sometimes severe after

::ping_pong: 6-8 games most days since June 20th, often winning (but hardly talking, not counting/picking up balls), now 2nd week of a 2 week break till this Friday.

1a) EXHAUSTIBILITY today: “84%". Energy down from June 30th, after great increase starting 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile/envelope (= moderate, with "8h rest").

R rest: 100% exhaustion 50% of the time (8h),
VS very slow: 60% exhaustion 30% of the time (5h),
S slow: 40% exhaustion 20% of the time (3h),
M medium: 20% exhaustion 0% of the time (0h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): h ✅/❌, everything else OK ➔ Feeling ?90% well, Ache 2 of 7 ✅, getting up: ?90%/2 ✅. ?1x FCS ✅

3rd meal time :white_check_mark:/:x:, screen time :white_check_mark:/:x:, tired :white_check_mark:/:x:. GABA A2?+A3?
A/3 A4:0 teeth0 p0 FA/CS#0 HWB#0 Sleep 22:15- 3rd # is LBU
23:22 6’ 80%/2-3/5% p3-4 st3 sip fw3’ fl0’ deep/ air/ A4/
drymouth30% sore throat10% tongue10% nostril/s20-5/0% sinuses10%
0:57 5’ 80%/2-3/5% p1 st4 sip fw2’ fl0’ deep/ air/ A5/
drymouth30% sore throat10% tongue10% nostril/s20-5/0% sinuses10% zombie30%
2:50 5’ 80%/2-3/5% p0 st3 sip fw2’ fl0’ deep/ air/ A6/
drymouth30% sore throat10% tongue10% nostril/s0/20% sinuses20% zombie30%
4:58 x6 5’ 80%/2-3/15% p0 st3 sip fw2’ fl0’ deep/ air/ A7/
drymouth30% sore throat10% tongue10% nostril/s0/10% sinuses20% headache10% zombie30%
-6:25 5’ 80%/1/5% p0 st2 sip fw2’ fl0’ deep/ air/ B/
drymouth30% sore throat10% tongue10% nostril/s0/0% sinuses30% headache20% zombie10%
1x FCS :white_check_mark:
MIN-MAX PROGRESSION
?80%/?2-3/?5(-25)% drymouth?30% sore throat10-?20% tongue10-?20% itch 0-?20% nostril/s0-?10% dryhands0% nausea?0% stomach0-?30% sinuses0-?10% headache0-?10% stools0 loose% zombie0-?10%
Sum: h+h-()’ = h-’ = h, up x ('), all deep. Good that I tonight was able to supress the urge for a longer sleep break, I’ll try keeping that up.

1b) ACTIVITIESACHE = PEM (Post exertional malaise): no TT, gardening/moving ➔ 80%/(2) :white_check_mark:, talking ➔ 80%/?5 :x:. White lips80%.
1c) REST/STIFFNESS ➔ ACHE At night st3 → 80%/3-4 :white_check_mark:/:x: Getting up - for how long?: st3 → 80%/3-4 :x:, Kept that way or quickly went up again.

2) Histamine/MCAS symptoms

Nauseous sinus burning headache: from being sad :x:.
Tongue burning: Hardly :white_check_mark:. Tried half a walnut in muesli at 8:10
No Insect bite itch.
Excitement :white_check_mark: 2nd Baby Blackbird dead didn’t do me good., all day.

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. ENERGY DOWN to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, energy increased June 20th to 30th (>20%), and usually still quite higher after (16-20%), further symptoms down too. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

3) Docs:

Forgot GP and pharmacy, so tomorrow.

Last DOC update July 13th: Unsuccessfully asked for my onco lab results. June 24th/25th: Teeth problems resolved for the time being. Waiting for onco report, “2nd” opinion or not? (“B symptoms” = night sweats, appetite, weight starting Feb/March resolved in June.) Click for details…
Click for details: Update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

4) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

Annoyances 1+2 (3 and 4 are OK now).
:one: Tea tree oil on onychia :white_check_mark: and fungus on my right foot. :white_check_mark:
:two: Beau’s lines on thumbnails: Reduce washing :white_check_mark:, olive oil soap :white_check_mark:, moisturize :white_check_mark:/:x:.

1) Symptoms well under control: GI (via elimination), pee (via GABA: ENOUGH? ✅), LOCAL PAINS (exercises, back: via using wall/door for support) ✅. Bad back at night was OK in the daytime. Details...

except GI: stools loose0% :white_check_mark:, appetite :white_check_mark:, pee pain: 0p1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN / WIND ✅, THIRST (✅), dry mouth (day and) at night ❌. Last SEIZURES July 17th: 18:30 19:55 after thunderstorm. July 7th seizur-ish 4x... Jun 23rd 4x, Jun 16th, Jun 6th 2x ❌, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: July 16th, May 31st, before that Apr 4th ✅. JAW solved for the time being since June 23rd. ✅

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Dry mouth (day and) at night has always been a problem, a stronger added real thirst making me drink a fourth litre of almond milk a day came up in April. Stopping the antihistamine completely has praps helped stop it become painfully sticky at night, so I don’t use the gel much any more.
Last focal seizures: July 17th: 18:30 19:55 after thunderstorm. July 7th seizur-ish 4x. Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Generally, mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. July 16th I was concentrating on testing if hazelnuts increase my nicotinic acid flush with my 3rd meal, and disregarded a slight throat pressure, which went totally wrong, was the last straw for an esophagus block, so had to get it out, lots came out, incl. supps, and needed to wait quite a bit afterwards. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more… - June 23rd: OK, the fillings were enough, solved for the time being.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Creatine? Methylene blue?
SELF-PHYSIO (click for details): OK? Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK. Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no EGCg or pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jun 16th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 0x1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0.1g, myo-inositol 1x2x0.5g/1!d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 3x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x1x.5g, resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (2+2+1)x0.6=3.0g (as much as B3). Plus rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated Jun 16th.
“16:00” preparing pills
“17:30” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xvC#1, 2Cr#1, PF#2, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1% Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc.
B=11/ ’ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +1-2The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=20 with meal: 1xB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 2xTMG#2 2xEleu 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jun 16th

Pf: A1+A2+A3, vB2: 1C,1D, 1A. vB3: 2C,2D.1A, vB5: C,DA. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3,a4, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. (pine: C,D.) Qc: B.E.A1.A3. Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 6MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, Ru, 2 Sa, Sily, 2Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jun 16th: correct?
A1=7+1 Pf#1 Qc1#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2, Ga#1:0.3g, Hon#1, Q10, 0Se, 1TMG#1 (?Rup). = 12?
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, 0EGCg, Fev/MSM#1, Qc#3, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#4 Gi#2 Ol#1 0Pin#1 2TMG#2 2xEleu 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=13 vB2#3 "2"vB3#3 vB5#3 3xCr#3 Ga#5 Gi#3 Ol#2 0Pin#2 2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today:

Quality of life

Lessons in self-care: Had to really watch out, after that night and morning.
Reasons to be cheerful:
a) The whole Jay family with 2 kids kept visiting us today, and
b) at 18:00 a Pigeon Youth and the Adult Jay were feeding at the same time,
c) so Pigeons aren’t scared of the Jay at least.
d) A Blackbird Youth didn’t get nervous either, nor did all Tits, Squirrel (red today), Robin,
e) But their screeching sounds dangerous, I hope the Pigeon Hatching doesn’t get nervous.
e) Nice that a colleague visited me for half an hour, but I wasn’t really up to it, so my Ache was all over the place.
f) Pigeon Mum and Youth preening themselves next to each other.
g) Song thrush visited our backyard, not directly our own garden, in the evening with the power of 5 other birds.
h) All the jays were back in the afternoon & evening, 2 of 5-6 are Youths that still need to be fed.
i) None of the blackbirds was scared of the jays, the 2 Youths are still around.
j) We buried the 2nd Blackbird Baby again, and are desperately hoping the others make it, or at least aren’t killed in our garden… I will remember Baby like I saw him last, his face was different, so to me it was someone different - only ook a quick peek.
Simplified:
Foggies: Quite a bit, cos of sleeping bad, having thoughts on my mind that needed sorting and writing, the dead Baby Blackbird made me feel heavy all day, my almond milk ran all over my stuff cos I hadn’t shut the lid properly, hours later I found it’d run into my supp boxes for the afternoon, so had to do them again. I forgot GP and pharmacy, couldn’t keep track of doing things early at all, on a short cycle-walk I scraped 2 knuckles on a wall, I wasn’t able to keep the bike straight much at all.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-07-20 Thursday - friend and wife visited me/us for his birthday, what a precious gesture, Friday morning a 3rd shock in the garden, going deep, traumatic, causing Ache and neck pain - after again a good night’s sleep.

What … worked / went wrong … today?:

:white_check_mark: Sleep no more than 8h, early sun, air all day, screen curfew at 8.
:white_check_mark: Eucalyptus lavishly (more linen, lavender etc. alternately, more cold showers.)
:x: Lots of ache and stiffness, stil. pushed thru a bit, without too much backlash :white_check_mark:.

How was I today?:

Feeling 85%-ish (:white_check_mark:), energy today (:white_check_mark:), sleep Wednesday night :white_check_mark:, sleep Thursday night :white_check_mark:, no bites. Nausea 0% (:white_check_mark:), fog 10% (:white_check_mark:).

Today working mainly on … sleep, food, getting an LDN prescription - ordered 1g of the substance, now I need to tell my cardio exactly how I need the prescription.

1) Early circadian rhythm for a) energy/sleep & b) Ache

7’ workout? Nope, lots of errands.

1st meal a bit later, 2nd & 3rd early (slight intermittent fasting): (:white_check_mark:) :x: (:x:),
whilst keeping food amount up :white_check_mark::white_check_mark::white_check_mark:.
Bed early / up early (:x:) / (:white_check_mark:), screen time down (:x:) → Effective sleep :white_check_mark:. No-screen time was prolonged from 21:00 to close to 23:00 by going to bed late, due to all my wife did today.
“PEM” :x: vs. “Ache without exertion” = post postural Ache :x:.

::ping_pong: 6-8 games most days since June 20th, often winning (but hardly talking, not counting/picking up balls), now 2nd week of a 2 week break till tomorrow.

1a) EXHAUSTIBILITY today: “84%-". Energy down from June 30th, after great increase starting 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile/envelope (= moderate, with "5h rest").

R rest: 100% exhaustion 40% of the time (6h),
VS very slow: 60% exhaustion 30% of the time (5h),
S slow: 40% exhaustion 25% of the time (4h),
M medium: 20% exhaustion 5% of the time (1h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 7h49, up 5x (26'), all deep. In sleep breaks I noticed having a very sleepy head, but at the same time not zombified. Occasionally after a short break I seemed hypered, but managed to quickly overcome that. 80%/1/5% drymouth30% sore throat20-10% tongue20-10% nostril/s0-10% stomach0-60-10%. ✅, everything else OK ➔ Feeling 80% well, Ache 1 of 7 ✅, getting up: 80%/1 ✅. 1x FCS ✅

3rd meal time (:x:), screen time (:x:), tired :x: (why not, too much screen to catch up with mails?). GABA A2/+A3/
A3/ A4:0 teeth0 p0 FCS#1 HWB#0 Sleep 22:50- 3rd # is LBU
0:00 7’ 80%/1/5% (altho I thought back might be bad after doing back exercises in the evening) p0 st3 sip fw2’ fl0’ deep/ air/ A4/
drymouth30% sore throat10% tongue30% (half walnut) stools loose0% teeth(/)
1:10 5’ 80%/1/5% p0 (strong urge from all the drinking) st3 sip fw2’ fl0’ deep/ air/ A5/ drymouth30% sore throat10% tongue30% (half walnut) teeth(0) dry cough → gel/
2:40 5’ 80%/1/5% p0 st4 sip fw2’ fl0’ deep/ air/ A6/ drymouth30% sore throat20% tongue30% (half walnut) teeth(0)
4:10 5’ 80%/1/5% p0 (lots, but no urge, stomach woke up) st4 sip fw2’ fl0’ deep/ air/ A7/ drymouth30% sore throat20% tongue30% (half walnut) teeth(0) stomach 60% → Gastricumeel.
5:45 4’ 80%/1/5% p0 st2 sip fw2’ fl0’ deep/ air/ A8/ drymouth30% sore throat20% tongue20% (half walnut) teeth(0) stomach 20% nostrils0/10%
-7:05 80%/1/5% p0 st2 deep/ air/ B/ drymouth30% sore throat10% tongue20% (half walnut) teeth(0) stomach 10%
1x FCS :white_check_mark:
Sum: 7h05+1h10-(7+5+5+5+4=)26’ = 8h15-26’ = 7h49, up 5x (26’), all deep. In sleep breaks I noticed having a very sleepy head, but at the same time not zombified. 80%/1/5% drymouth30% sore throat20-10% tongue20-10% nostril/s0-10% stomach0-60-10%.

1b) ACTIVITIESACHE = PEM (Post exertional malaise): no TT, no workout, 4 errands ➔ 80%/3 :white_check_mark:, working thru my latest mails, gardening/moving ➔ 80%/2 :white_check_mark:, talking (with friends off and on for 3h, but friends who very much understand and allow me to do everything I need) ➔ 80%/4-5 :x:, but not too much backlash. White lips: Dunno.

1c) REST/STIFFNESS ➔ ACHE At night st3 → 80%/3 :white_check_mark: Getting up + most of the day: st3-5 = fairly severe stiffness → 80%/3-4 :x:, later no less :x:, except in the later evening and in between for a short time, where I managed to scurry up and down stairs. But often every movement very laboured, unstable, often needed to balance using my arms like on a tightrope, something I haven’t written here, but often do.

2) Histamine/MCAS symptoms

Nauseous sinus burning headache: Nope :white_check_mark:.
Tongue burning: Yep :x:. From the half a walnut Wednesday at 8:10. Ebbed off Thursday evening, so 36h, not quite as long as last time.
Insect bite itch: :lotion_bottle: Oil on lavishly at 13:00 :white_check_mark:. To decrease: not necessary. Itch Friday 9:00, but maybe a pick.
Excitement :x:: Pigeon, a 3rd seemingly dead bird Friday morning directly in my cellar entrance where I always sit, brought me over the edge, it ripped me apart in a way I’ve seldom had in my life. Traumatic and the emotional caused physical pain. My wife comforted me and looked for herself and found Baby Pigeon had hurt themselves in our cellar (she’d opened the door to increase airing to our flat), lying on their back, but still breathing, managed to get up, right wing drooping. Got to see how I cope with this death row candidate, see self-care.

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. ENERGY DOWN to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, energy increased June 20th to 30th (>20%), and usually still quite higher after (16-20%), further symptoms down too. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

3) Docs:

July 20th: Got my onco labs at last, nothing out of the ordinary at all, except eosinophilia.

Last DOC update July 13th: Unsuccessfully asked for my onco lab results. June 24th/25th: Teeth problems resolved for the time being. Waiting for onco report, “2nd” opinion or not? (“B symptoms” = night sweats, appetite, weight starting Feb/March resolved in June.) Click for details…
Click for details: Update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

4) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

Annoyances 1+2 (3 and 4 are OK now).
:one: Tea tree oil on onychia :white_check_mark: and fungus on my right foot. :white_check_mark:
:two: Beau’s lines on thumbnails: Reduce washing :white_check_mark:, olive oil soap :white_check_mark:, moisturize :x: - but at least looked for some suitable cream, can’t find any, so will ask my wife or buy.

1) Symptoms well under control: GI (via elimination), pee (via GABA: not sure if it's enough, I do now have p2 sometimes on most days (✅), LOCAL PAINS (exercises, back: via using wall/door for support) ✅. Details...

except GI: stools loose0% :white_check_mark:, appetite :white_check_mark:, pee pain: 2p1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN (even outright sun for a time) / WIND ✅, THIRST (✅), dry mouth (day and) at night ❌. Last SEIZURES July 17th: 18:30 19:55 after thunderstorm. July 7th seizur-ish 4x... Jun 23rd 4x, Jun 16th, Jun 6th 2x ❌, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: July 16th, May 31st, before that Apr 4th ✅. JAW solved for the time being since June 23rd. ✅

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Dry mouth (day and) at night has always been a problem, a stronger added real thirst making me drink a fourth litre of almond milk a day came up in April. Stopping the antihistamine completely has praps helped stop it become painfully sticky at night, so I don’t use the gel much any more.
Last focal seizures: July 17th: 18:30 19:55 after thunderstorm. July 7th seizur-ish 4x. Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Generally, mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. July 16th I was concentrating on testing if hazelnuts increase my nicotinic acid flush with my 3rd meal, and disregarded a slight throat pressure, which went totally wrong, was the last straw for an esophagus block, so had to get it out, lots came out, incl. supps, and needed to wait quite a bit afterwards. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more… - June 23rd: OK, the fillings were enough, solved for the time being.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. LDN next!(?) Creatine? Methylene blue?
SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK. Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no EGCg or pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jun 16th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 0x1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0.1g, myo-inositol 1x2x0.5g/1!d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 3x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x1x.5g, resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (2+2+1)x0.6=3.0g (as much as B3). Plus rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated Jun 16th.
“16:00” preparing pills
“17:30” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xvC#1, 2Cr#1, PF#2, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1% Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc.
B=11/ ’ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +1-2The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=20 with meal: 1xB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 2xTMG#2 2xEleu 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jun 16th

Pf: A1+A2+A3, vB2: 1C,1D, 1A. vB3: 2C,2D.1A, vB5: C,DA. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3,a4, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. (pine: C,D.) Qc: B.E.A1.A3. Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 6MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, Ru, 2 Sa, Sily, 2Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jun 16th: correct?
A1=7+1 Pf#1 Qc1#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2, Ga#1:0.3g, Hon#1, Q10, 0Se, 1TMG#1 (?Rup). = 12?
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, 0EGCg, Fev/MSM#1, Qc#3, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#4 Gi#2 Ol#1 0Pin#1 2TMG#2 2xEleu 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=13 vB2#3 "2"vB3#3 vB5#3 3xCr#3 Ga#5 Gi#3 Ol#2 0Pin#2 2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today: Started on sleep devices, after the RSM mailed details of a webinar in November.

Quality of life

Lessons in self-care: The 3rd seemingly dead bird brought me over the edge, I need to be very nice to myself today. Try to remember that dying (and killing) is nature. And keep my love of the garden untainted by the pain these losses are causing me. When I thought it was dead it was a matter of coping with losses, now it’s in limbo, cos they won’t last long, and I’m neither emotionally capable of bringing them to a vet, nor of investing any more in a poor creature that will likely be killed anyway. I’ll pray. My wife comforted me as best she could, altho she was getting very late for work.
Reasons to be cheerful:
a) A Friend indeed who puts me first on a birthday and comes round, chuffed and happy!
b) Baby Blackbird chirping.
c) Well, Baby Pigeon is alive… up to now… :roll_eyes:
Simplified: No.
Foggies: Finding words.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-07-21 Friday - Kamikaze Pigeon - still alive, put under a big guinea pig cage in the garden - hope :bird: - will it make the night?

Under rhododendron, with additional protection, water, oat flakes…

What … worked / went wrong … today?:

:white_check_mark: Sleep no more than 8h, early sun, air all day, screen curfew at 8.
:white_check_mark: Eucalyptus lavishly (more linen, lavender etc. alternately, more cold showers.)
:x:/:white_check_mark: Couldn’t avoid all that stress, but good sleep and awaking…

How was I today?:

Feeling 85%-ish (:white_check_mark:), energy today (:x:), sleep Thursday night :white_check_mark:, sleep Friday night :white_check_mark:, no bite itch (:white_check_mark:). Nausea 0% :white_check_mark:, fog 30% from the stress (:x:). Have I been ticking energy as good the past few days!!! Well, it all gets relative, doesn’t it…

Today working mainly on … itch (bite or pick): putting oils on regularly, sleep, staying sane

whilst Kamikaze Pigeon is spending his praps last hours in the sun in a more hidden area of our garden.

1) Early circadian rhythm for a) energy/sleep & b) Ache

7’ workout? Probably need to, to get the stress out of my body from finding Kamikaze Pigeon. Ah, no, moving pavement blocks instead to see if I can use that as a base for a rock garden.

1st meal a bit later, 2nd & 3rd early (slight intermittent fasting): :white_check_mark: (:white_check_mark:) (:x:), but aiming for 13:11.
whilst keeping food amount up :white_check_mark: (:white_check_mark:)(:white_check_mark:).
Bed early / up early (:white_check_mark:) :white_check_mark:, screen time down :white_check_mark: → Effective sleep :white_check_mark:.
“PEM” :x: vs. “Ache without exertion” = post postural Ache :white_check_mark:.

:ping_pong: 6-8 games most days since June 20th, often winning (but hardly talking, not counting/picking up balls), now 2nd week of a 2 week break till today.

1a) EXHAUSTIBILITY today: “85%". Energy down from June 30th, after great increase starting 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile/envelope (= moderate, with "6h rest").

R rest: 100% exhaustion 40% of the time (6h),
VS very slow: 60% exhaustion 30% of the time (5h),
S slow: 40% exhaustion 25% of the time (4h),
M medium: 20% exhaustion 5% of the time (1h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 7h19, up 4x (20'), all deep. 80%/2-1/5% drymouth30% sore throat10% tongue20% dryhands20-0% (cream), stomach30-10-30-10-%, neck50% -> massager. ✅, everything else OK ➔ Feeling 80% well, Ache 2-1 of 7 ✅, getting up: 90%/1 ✅. 1x FCS ✅

3rd meal time (:x:), screen time :white_check_mark:, tired (:white_check_mark:). GABA A2/+A3/
A3/ A4:0 teeth0 p0 FCS#1 HWB#0 Sleep 22:18- 3rd # is LBU
23:28 5’ 80%/2/5% p0 st3 sip fw2’ fl0’ deep/ air/ A4/
drymouth30% sore throat10% tongue20% stomach30% stools loose10%
0:24 5’ 80%/2/5% p0 st2 sip fw2’ fl0’ deep/ air/ A5/
drymouth30% sore throat10% tongue20% stomach10%
1:42 5’ 80%/2/5% p0 st2 sip fw2’ fl0’ deep/ air/ A6/
drymouth30% sore throat10% tongue20% stomach30% dryhands20% > cream, > 0%
3:24 5’ 80%/2/5% p0 st2 sip fw2’ fl0’ deep/ air/ A7/
drymouth30% sore throat10% tongue20% stomach10% -NECK50% → massager
-5:57 90%/1/5% p0 st2 sip fw2’ fl0’ deep/ air/ A8:0
drymouth30% sore throat10% tongue20% stomach0%
1x FCS :white_check_mark:
Sum: 5h57+1h42-(5+5+5+5=)20’ = 7h39-20’ = 7h19, up 4x (20’), all deep. 80%/2-1/5% drymouth30% sore throat10% tongue20% dryhands20-0% (cream), stomach30-10-30-10-%, neck50% → massager.

1b) ACTIVITIESACHE = PEM (Post exertional malaise): no TT, no workout TT, but carrying 6 pavement blocks a bit to and from my wheelbarrow, I think pumping up the darn wheel was worse than that ➔ 80%/3 :white_check_mark:, not much gardening/moving aside of that ➔ 80%/2 :white_check_mark:, talking ➔ 80%/3-5 :x:. White lips: dunno.
1c) REST/STIFFNESS ➔ ACHE At night st3 → 80%/3 :white_check_mark: Getting up - for how long?: st2 → 90%/1 :white_check_mark:, Later a bit more :x:, generally OK-ish, but emotionally shattered.

2) Histamine/MCAS symptoms

Nauseous sinus burning headache: Nope :white_check_mark:.
Tongue burning: Yep, from the walnut half >48h ago :x:. So no cranberry trial yet!
Insect bite itch: :lotion_bottle: Oils on at 9:00 :white_check_mark:?, 14:00 :white_check_mark:? and 19:00 :white_check_mark:?.
To decrease: lavender spray, tea tree oil, olive oil, salt-water-paste (bit of water), hot spoon.
Excitement :x::x::x: - Kamikaze Baby Pigeon is gonna keep my whole system “busy” today… trying to keep sane. My wife called my emotional state upon seeing seemingly dead Pigeon a “nervous breakdown”. I’ve often wondered what people mean by that. But I spose just that, over the edge, lost all emotional control, total emotional pain. She thinks there was despair / exasperation about my own state in there. The strain put a strain on one of my weak points, my neck, so I’m having to treat that with stretches and massager.

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. ENERGY DOWN to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, energy increased June 20th to 30th (>20%), and usually still quite higher after (16-20%), further symptoms down too. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

3) Docs:

Got to clarify if the pharmacy needs a capsule size.
Looking for that I find an online pharmacy offering ultra low dose naltrexone at 7-25mcg!?
But I’ve found a US online pharmacy stating the exact amounts here. 150mg needs 13.75g cellulose, that’d make 1% = 140mg capsules for 1.5mg. Here it seems size #2 would be closest with 222-444mg, but still too big (and very small in case I want to partion it).
Drat, I thought my cardio was still available, they’re taking a break till August 6th. Oh well, no need to rush then.

Last DOC update July 20th (added 25th): Got my onco labs at last: only eosinophilia visible to me, asked GP, says he has no idea, which warrants getting a "2nd" opinion, in absence of a 1st. July 13th: Unsuccessfully asked for my onco lab results. June 24th/25th: Teeth problems resolved for the time being. Waiting for onco report, “2nd” opinion or not? (“B symptoms” = night sweats, appetite, weight starting Feb/March resolved in June.) Click for details…
Click for details: Update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

4) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

Annoyances
:one: Tea tree oil on onychia :white_check_mark: and fungus on my right foot. :white_check_mark: Improvement not as quick as usual.
:two: Beau’s lines on thumbnails: Reduce washing :white_check_mark:, olive oil soap :white_check_mark:, moisturize :white_check_mark:/:x:. 7/8mm healthier thumbnail now.

1) Symptoms well under control: GI (via elimination), pee (via GABA: ENOUGH? ✅), LOCAL PAINS (exercises, back: via using wall/door for support) ✅. Details...

except GI: stools loose0% :white_check_mark:, appetite :white_check_mark:, pee pain: 0p1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN / WIND ✅/❌?, THIRST (✅), dry mouth (day and) at night ❌. Last SEIZURES July 17th: 18:30 19:55 after thunderstorm. July 7th seizur-ish 4x... Jun 23rd 4x, Jun 16th, Jun 6th 2x ❌, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: July 16th, May 31st, before that Apr 4th ✅. JAW solved for the time being since June 23rd. ✅

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Dry mouth (day and) at night has always been a problem, a stronger added real thirst making me drink a fourth litre of almond milk a day came up in April. Stopping the antihistamine completely has praps helped stop it become painfully sticky at night, so I don’t use the gel much any more.
Last focal seizures: July 17th: 18:30 19:55 after thunderstorm. July 7th seizur-ish 4x. Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Generally, mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. July 16th I was concentrating on testing if hazelnuts increase my nicotinic acid flush with my 3rd meal, and disregarded a slight throat pressure, which went totally wrong, was the last straw for an esophagus block, so had to get it out, lots came out, incl. supps, and needed to wait quite a bit afterwards. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more… - June 23rd: OK, the fillings were enough, solved for the time being.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Creatine? Methylene blue?
SELF-PHYSIO (click for details): OK? Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK? Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no EGCg or pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jun 16th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 0x1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0.1g, myo-inositol 1x2x0.5g/1!d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 3x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x1x.5g, resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (2+2+1)x0.6=3.0g (as much as B3). Plus rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated Jun 16th.
“16:00” preparing pills
“17:30” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xvC#1, 2Cr#1, PF#2, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1% Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc.
B=11/ ’ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +1-2The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=20 with meal: 1xB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 2xTMG#2 2xEleu 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jun 16th

Pf: A1+A2+A3, vB2: 1C,1D, 1A. vB3: 2C,2D.1A, vB5: C,DA. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3,a4, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. (pine: C,D.) Qc: B.E.A1.A3. Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 6MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, Ru, 2 Sa, Sily, 2Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jun 16th: correct?
A1=7+1 Pf#1 Qc1#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2, Ga#1:0.3g, Hon#1, Q10, 0Se, 1TMG#1 (?Rup). = 12?
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, 0EGCg, Fev/MSM#1, Qc#3, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#4 Gi#2 Ol#1 0Pin#1 2TMG#2 2xEleu 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=13 vB2#3 "2"vB3#3 vB5#3 3xCr#3 Ga#5 Gi#3 Ol#2 0Pin#2 2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today:

Worked out LDN prescription details for my doc - today in a break for 2 weeks tho, I’d thought Monday.
Wondering if iodine spray would be a compromise rather than masking, which is definitely bad for me, but recent studies aren’t conclusive.
As said yesterday I’ve been looking at sleep devices in studies like Penzel et al. 2021, Hazuga et al. 2023 and articles like in Nature.
I’ve realized I’ve often written Shelsick instead of Hugh Selsick, for the sleep expert (praps cos Schäl sick is a German dialect word and band name).
(Looked up the “gigantic” bird of prey a few days ago, and believe it can’t have been an eagle, so must have been a buzzard, judging by the wing form.)

Quality of life

Lessons in self-care: Trying to make my peace with the garden being a hospice for Kamikaze Baby Pigeon. Now sitting comfortably half-sun half-shade between all the shining oxeyes.
In the evening still alive and wake, so we put a guinea pig cage over Kami, and oats and water in.
Reasons to be cheerful:
a) I’m still so chuffed about our friend coming around to us for his birthday I had to text him that.
b) 2-3 new flowers coming up for the past few days, dunno if I’ve mentioned the zinnia, definitely not the sweetpeas yet.
c) The oxeyes (German: garden suneye) really are a sun in the night, and even in the daytime, and haven’t needed to deadhead any, they’re getting more and more.
Simplified: 2-3 things.
Foggies: Funny words.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-07-22 Saturday - hospice garden, doubts, kids

What … worked / went wrong … today?:

:white_check_mark: Sleep no more than 8h, early sun, air all day, :x: screen curfew at 8.
:white_check_mark: Eucalyptus lavishly wasn’t necessary, not much sun (more linen, lavender etc. alternately, more cold showers.)
:white_check_mark: :exploding_head: Around 21:00 I suddenly felt ‘normal’, energetic, not stiff. Haven’t had that for ages. Maybe a build-up of cortisol/histamine thru 2 days stress and sorrow. Maybe the acceptance that Kami now had to die anyway was liberating.

How was I today?:

Feeling 60%-ish (:x:) - yesterday too, actually, come to think of it, energy today (:x:), at 21:00 90%-ish (:white_check_mark:), energy seemingly good (:white_check_mark:), sleep Friday night :white_check_mark:, sleep Saturday night (:x: - good, considering), no bite itch (:white_check_mark:). Nausea 0% (:white_check_mark:), fog 10% (:white_check_mark:).

Today working mainly on … keeping sadness under control.

1) Early circadian rhythm for a) energy/sleep & b) Ache

7’ workout? No, but TT 3:1.

1st meal a bit later, 2nd & 3rd early (slight intermittent fasting): :white_check_mark: (:white_check_mark:) (:x:),
whilst keeping food amount up :white_check_mark::white_check_mark:(:x:) (evening less, cos I wanted to get to my shop before 21:00)
Bed early / up early (:white_check_mark:) (:white_check_mark:), screen time down :x: → Effective sleep (:white_check_mark: - considering).
“PEM” :x: vs. “Ache without exertion” = post postural Ache (:white_check_mark:).

:ping_pong: 6-8 games most days since June 20th, often winning (but hardly talking, not counting/picking up balls), break of two weeks, July 22nd: 3:(1), i.e. 3 easily, the 4th it was costing too much energy.

1a) EXHAUSTIBILITY today: “85%-". Energy down from June 30th, after great increase starting 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile/envelope (= moderate, with "6h rest").

R rest: 100% exhaustion 40% of the time (6h),
VS very slow: 60% exhaustion 30% of the time (5h),
S slow: 40% exhaustion 25% of the time (4h),
M medium: 20% exhaustion 5% of the time (1h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 6h59, up x (1h23), quite a lot deep, but also troubled and NSDR 30' (didn't hear a lot of about 1h30, so must have slept). 80%/1/5% drymouth30% sore throat10% tongue10%s stools loose30%. Massager on neck a few times helped. (✅), troubled (❌), everything else OK ➔ Feeling 80% well, Ache 1 of 7 ✅, getting up: 80%/1 ✅. 1x FCS ✅

3rd meal time (:x:), screen time :x:, tired (:x:) - histamine. GABA A2/+A3/
A3 A4:0 teeth0 p0 FA/CS#0 HWB#0 Sleep 22:25- 3rd # is LBU
23:07 10’ 80%/1/5% p0 st3 sip fw2’ fl0’ deep/ air/ A4/
drymouth30% sore throat10% tongue10% wife prolonged / stressed / electrified and needing to pee again, but wife in bathroom.
23:27 44’ p0 at last, stools loose30%, burning. Wired. Thoughts all over the place. fl35’ NSDR/YoNi. 0:11 26’ - of that 10’ sleep.
0:37 22’ 6 80%/1/5% p0 st3 sip fw2’ fl0’ deep/ air/ A5/
drymouth30% sore throat10% tongue10% NECK BETTER
2:44 4’ 80%/1/5% p0 st3 sip fw2’ fl0’ deep/ air/ A6/
drymouth30% sore throat10% tongue10%
4:17 4’ 80%/1/5% p0 st3 sip fw2’ fl0’ deep/ air/ A7/
drymouth30% sore throat10% tongue10% (Troubled)
5:35 4’ 80%/1/5% p0 st3 sip fw2’ fl0’ deep/ air/ A8/
drymouth30% sore throat10% tongue10% (Troubled)
6:12 5’ 80%/1/5% p0 st3 sip deep/ air/
drymouth30% sore throat10% tongue10% (Troubled) (nostrils0/5%)
6:47 80%/1/5% p0 st3 sip deep/ air/ B/
drymouth30% sore throat10% tongue10% (Troubled) (nostrils0/5%)
1x FCS :white_check_mark:
Sum: 1h35+6h47-(44+22+4+4+4+5=)83’ = 8h22-1h23 = 6h59, up x (1h23), quite a lot deep, but also troubled and NSDR 30’ (didn’t hear a lot of about 1h30, so must have slept). 80%/1/5% drymouth30% sore throat10% tongue10%s stools loose30%. Massager on neck a few times helped.

1b) ACTIVITIESACHE = PEM (Post exertional malaise): TT 3:(1) (moving 20%, talking 10%, counting 0%) ➔ 80%/5 :x:, hardly gardening/moving ➔ 80%/2-3 :white_check_mark:, talking/listening ➔ 70-60%/3-4 :x:, but a a little while after the kids felt much better ➔ 90%/1 :white_check_mark: White lips: dunno.
1c) REST/STIFFNESS ➔ ACHE At night st3 → 80%/2 :white_check_mark: Getting up - for how long?: st3 → 80%/3 (:white_check_mark:), Later same, but much less at 21:00 :white_check_mark:.

2) Histamine/MCAS symptoms

Nauseous sinus burning headache: Nope :white_check_mark:.
Tongue burning: Yep :x:. Someone remind me to keep those darn walnuts out of my gob. So still not trying cranberries.
No insect bites.
Excitement :x: - sorrow about Kamikaze Pigeon, my wife too.

What we had to do... - "don't read".

I keep having to turn Kami back over, the broken wing was actually bleeding, losing colour and movement. After hope cos most food was gone in the early morning having fallen over may have cost much too much energy. Gotta keep an eye there. Or praps not, for our own health’s sake.
Was the better energy/stiffness at 21:00 due to histamine? Kept my sleep troubled all night. We’d taken the cage off, couldn’t move anyway, in the morning head gone - I’ve never been so relieved at such a sight. Until I saw my wife completely withdrawn, and it was already an additional issue for me in the evening how bad she was taking it and couldn’t talk about what was wrong, cos it was something else. Now I’m troubled again, cos I’m pretty sure she felt she had to do it, which isn’t quite as bad as if I’d done it myself, but almost.

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. ENERGY DOWN to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, energy increased June 20th to 30th (>20%), and usually still quite higher after (16-20%), further symptoms down too. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

3) Docs:

Last DOC update July 20th (added 25th): Got my onco labs at last: only eosinophilia visible to me, GP has no idea, which warrants getting a "2nd" opinion, in absence of a 1st. July 13th: Unsuccessfully asked for my onco lab results. June 24th/25th: Teeth problems resolved for the time being. Waiting for onco report, “2nd” opinion or not? (“B symptoms” = night sweats, appetite, weight starting Feb/March resolved in June.) Click for details…
Click for details: Update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

4) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

Annoyances
:one: Tea tree oil on onychia :white_check_mark: and fungus on my right foot. :white_check_mark: Improvement not as quick as usual.
:two: Beau’s lines on thumbnails: Reduce washing (:x:), olive oil soap :white_check_mark:, moisturize :x:. 7/8mm healthier thumbnail now.

1) Symptoms well under control: GI (via elimination), pee (via GABA: ENOUGH? ✅), LOCAL PAINS (exercises, back: via using wall/door for support) ✅. Strained neck from the breakdown can hurt a lot in some positions, but not all the time at least. And in those positions (like picking something up) I can just give my neck some support with my other hand. More massager, not long and both sides is best. Definitely stretching. Details...

except GI: stools loose0% :white_check_mark:, appetite :white_check_mark:, pee pain: 0p1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN / WIND ✅, THIRST (✅), dry mouth (day and) at night ❌. Last SEIZURES July 17th: 18:30 19:55 after thunderstorm. July 7th seizur-ish 4x... Jun 23rd 4x, Jun 16th, Jun 6th 2x ❌, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: July 16th, May 31st, before that Apr 4th ✅. JAW solved for the time being since June 23rd. ✅

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Dry mouth (day and) at night has always been a problem, a stronger added real thirst making me drink a fourth litre of almond milk a day came up in April. Stopping the antihistamine completely has praps helped stop it become painfully sticky at night, so I don’t use the gel much any more.
Last focal seizures: July 17th: 18:30 19:55 after thunderstorm. July 7th seizur-ish 4x. Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Generally, mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. July 16th I was concentrating on testing if hazelnuts increase my nicotinic acid flush with my 3rd meal, and disregarded a slight throat pressure, which went totally wrong, was the last straw for an esophagus block, so had to get it out, lots came out, incl. supps, and needed to wait quite a bit afterwards. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more… - June 23rd: OK, the fillings were enough, solved for the time being.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Creatine? Methylene blue?
SELF-PHYSIO (click for details): OK: No, forgot back exercises cos of Kami. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK. Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no EGCg or pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jun 16th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 0x1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0.1g, myo-inositol 1x2x0.5g/1!d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 3x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x1x.5g, resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (2+2+1)x0.6=3.0g (as much as B3). Plus rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated Jun 16th.
“16:00” preparing pills
“17:30” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xvC#1, 2Cr#1, PF#2, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1% Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc.
B=11/ ’ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +1-2The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=20 with meal: 1xB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 2xTMG#2 2xEleu 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jun 16th

Pf: A1+A2+A3, vB2: 1C,1D, 1A. vB3: 2C,2D.1A, vB5: C,DA. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3,a4, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. (pine: C,D.) Qc: B.E.A1.A3. Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 6MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, Ru, 2 Sa, Sily, 2Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jun 16th: correct?
A1=7+1 Pf#1 Qc1#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2, Ga#1:0.3g, Hon#1, Q10, 0Se, 1TMG#1 (?Rup). = 12?
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, 0EGCg, Fev/MSM#1, Qc#3, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#4 Gi#2 Ol#1 0Pin#1 2TMG#2 2xEleu 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=13 vB2#3 "2"vB3#3 vB5#3 3xCr#3 Ga#5 Gi#3 Ol#2 0Pin#2 2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today:

Quality of life

Lessons in self-care: Allowing sorrow. But it’s tough. Only a pigeon.
Reasons to be cheerful:
a) Robin coming up close for food.
b) Mouse jumped across a path.
c) Nice to see the kids without their kids.
d) Robin sitting on my ‘sculpture’ with 2 kids begging for food.
Simplified: Dunno.
Foggies: Words and more.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-07-23 Sunday - recovering, good for the kestrel…

What … worked / went wrong … today?:

:white_check_mark: Sleep no more than 8h, early sun, air all day, screen curfew at 8.
(Not hot till about Aug 4th, so no insect bites.)

How was I today?:

Feeling 65%-ish (:x:), energy today (:white_check_mark:), sleep Saturday night (:white_check_mark:), sleep Sunday night (:white_check_mark:), nausea 0-70% (:x:), fog 10-20% (:x:).

Today working mainly on …

1) Early circadian rhythm for a) energy/sleep & b) Ache

7’ workout? Wouldn’t be bad, for the sorrow. But not really up to it. But table tennis later on.

1st meal a bit later, 2nd & 3rd early (slight intermittent fasting): :white_check_mark:(:x:)(:x:), 13:11,
whilst keeping food amount up :white_check_mark: (:white_check_mark:)(:white_check_mark:).
Bed early / up early :white_check_mark:(:white_check_mark:), screen time down :white_check_mark: → Effective sleep :white_check_mark:.
“PEM” :x: vs. “Ache without exertion” = post postural Ache :white_check_mark:.
Wife had to pull my (tighter) jeans off in the evenings, after she saw my searching to despairing look at them.

:ping_pong: 6-8 games most days since June 20th, often winning (but hardly talking, not counting/picking up balls), break of two weeks, July 22nd: 3:1, July 23rd: 0:1 → 3:1. Seems I still haven’t regained the ability to do 6, let alone 8 games - did I really manage 8 games or didn’t I mean 4-6?! No, looking up I do see a few times 7-8 games, like 8:0 on June 29th - but that was early on that day, later worse.

1a) EXHAUSTIBILITY today: “86%-". Energy down from June 30th, after great increase starting 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile/envelope (= moderate, with "6h rest").

R rest: 100% exhaustion 40% of the time (6h),
VS very slow: 60% exhaustion 30% of the time (5h),
S slow: 40% exhaustion 25% of the time (4h),
M medium: 20% exhaustion 5% of the time (1h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 8h19, up 4/5x (53'), all deep. 50-80%/3-1/5% drymouth30% sore throat10% tongue10-15-10% nostril/s0-10% nausea0-70-10% stomach0%! sinuses70-20% headache0-40-15% stools loose10% (zombie10%) ✅&❌, everything else OK ➔ Feeling 40-75% well, Ache 3-1 of 7 ❌, getting up: 75%/1 ✅. 1x FCS ✅

3rd meal time (:white_check_mark:), screen time :white_check_mark:, tired :white_check_mark:. GABA A2/+A3/
A3 A4:0 teeth0 p0 FA/CS#0 HWB#0 Sleep 22:45- 3rd # is LBU
0:09 5’ 75%/3/5% p0 st3 sip fw2’ fl0’ deep/ air/ A4/
drymouth30% sore throat10% tongue10% sinuses20%
1:55 25’ 50%/1/5% p0 st1 sip fw2’ fl10’ deep/ air/ A5/
drymouth30% sore throat10% tongue15% nostril/s10/0% nausea60% stomach0% sinuses70% headache40% → cold water splash in face
teeth/
2:30 15’ 40%/1/5% p0 st1 sip fw2’ fl0’ deep/ air/ A6:0
drymouth30% sore throat10% tongue15% nostril/s0/0% nausea50-70% → nux vomica stomach0% sinuses70% headache40% → FCS#1, long sleeve on after. No direct improvement.
4:26 4’ 50%/1/5% p0 st2 sip fw2’ fl0’ deep/ air/ A6/
drymouth30% sore throat10% tongue15% nostril/s0/0% nausea50% stomach0% sinuses50% headache30%
6:27 4’ 70%/1/5% p0 st2 sip fw2’ fl0’ deep/ air0 A7/
drymouth30% sore throat10% tongue10% nostril/s0/0% nausea20/30% stomach0% sinuses30% headache20%
-7:57 75%/1/5% p0 st2 deep/ drymouth30% sore throat10% tongue10% nostril/s0/0% nausea10-30% stomach0% sinuses20% headache15%
1x FCS :white_check_mark:
Sum: 1h15+7h57-(5+25+15+4+4=)53’ = 9h12-53’ = 8h19, up 4/5x (53’), all deep. 50-80%/3-1/5% drymouth30% sore throat10% tongue10-15-10% nostril/s0-10% nausea0-70-10% stomach0%! sinuses70-20% headache0-40-15% stools loose10% (zombie10%)

1b) ACTIVITIESACHE = PEM (Post exertional malaise): TT 3:1 (moving 20%, talking 20%, counting 0%) ➔ 80%/5 :x:, gardening/moving ➔ 80%/2 :white_check_mark:, talking ➔ 80%/3 :x:. White lips: dunno, gotta check that more.
1c) REST/STIFFNESS ➔ ACHE At night st2 → 80%/3-1 (:white_check_mark:) Getting up - for how long?: st3 not for long → 80%/2 :white_check_mark:. Histamine did decrease stiffness for a time, but then it increased a lot again in the evening.

2) Histamine/MCAS symptoms

Nauseous sinus burning headache: from about 17:00 on :x:, nausea went up to 70% at night, was wondering whether I could keep it in, but maybe not GI, not sure. Cold splash didn’t help, but cold shower. Continuing Monday morning.
Tongue burning: 10% = Hardly :white_check_mark:, but increased to 15% during the main histamine flash at 2-5 (:x:).
Excitement :x: - sorrow. But relief hearing that it wasn’t my wife that was Dr. Death, so very probably a local kestrel, relief also that Kami’s made it and helped kestrel babies in the process. Histamine overload first caused some stress energy and reduced stiffness in the evening (fun, cos it makes me feel ‘normal’) and then the nauseous sinus burning headache.
The various MCAS symptom areas are fairly independent of one another, but tonight I did get a sorer tongue again from the histamine flash.

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. ENERGY DOWN to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, energy increased June 20th to 30th (>20%), and usually still quite higher after (16-20%), further symptoms down too. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken theirs seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before. Forgot to add: Stopped antihistamine I think in April, cos of zombification, dry mouth, increased thirst and I think more, and sleep still good from everything else.

3) Docs:

Last DOC update July 20th (added 25th): Got my onco labs at last: only eosinophilia visible to me (put the research on the 25th), GP has no idea, which warrants getting a "2nd" opinion, in absence of a 1st. July 13th: Unsuccessfully asked for my onco lab results. June 24th/25th: Teeth problems resolved for the time being. Waiting for onco report, “2nd” opinion or not? (“B symptoms” = night sweats, appetite, weight starting Feb/March resolved in June.) Click for details…
Click for details: Update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

4) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

Since drinking the milk Thursday(?) week I had a slight stabbing pain first in my right side under the ribs, now regularly (daily a few minutes, or praps longer) on my left side. gotta keep note of that. Could be from how I’m twist-stretch-sitting in the cellar entrance:
“Slight stabbing pain under left ribs, height of navel, above middle of the thigh.”
But I’ve had all kinds of GI symptoms since my “breakdown” Friday morning.
And changing positions more seems to be helping.

Annoyances
:one: Tea tree oil on onychia :white_check_mark: and fungus on my right foot. :white_check_mark: Improvement not as quick as usual.
:two: Beau’s lines on thumbnails: Reduce washing :white_check_mark:, olive oil soap :white_check_mark:, moisturize :white_check_mark:/:x:. 7/8mm healthier thumbnail now.

1) Symptoms well under control: GI (via elimination) - the abdominal stabs may be posture, but generally I've had all kinds of GI problems after my "breakdown" Friday morning, but I have also been getting heartburn the past few days, got to watch that more, will recover soon, pee (via GABA: ENOUGH? ✅), LOCAL PAINS (exercises, back: via using wall/door for support) ✅. Details...

except GI: stools loose0-20% :white_check_mark:, appetite (:white_check_mark:), pee pain: 2p1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN / WIND ✅ (colder, so a lot more on first, but that was too much, had to take it off again as soon as I did something, cos of rain it got very humid), THIRST (✅), dry mouth (day and) at night ❌. Last SEIZURES July 17th: 18:30 19:55 after thunderstorm. July 7th seizur-ish 4x... Jun 23rd 4x, Jun 16th, Jun 6th 2x ❌, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: July 23rd & 16th, May 31st (all 3 cos distracted), before that Apr 4th ✅. JAW solved for the time being since June 23rd. ✅

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Dry mouth (day and) at night has always been a problem, a stronger added real thirst making me drink a fourth litre of almond milk a day came up in April. Stopping the antihistamine completely has praps helped stop it become painfully sticky at night, so I don’t use the gel much any more.
Last focal seizures: July 17th: 18:30 19:55 after thunderstorm. July 7th seizur-ish 4x. Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Generally, mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. July 23rd cos distracted by the Kami stress. July 16th I was concentrating on testing if hazelnuts increase my nicotinic acid flush with my 3rd meal, and disregarded a slight throat pressure, which went totally wrong, was the last straw for an esophagus block, so had to get it out, lots came out, incl. supps, and needed to wait quite a bit afterwards. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more… - June 23rd: OK, the fillings were enough, solved for the time being.

Checking a few supp dosages today, I realized (July 23rd) I’d been encapsulating around 600mg of theanine per day, instead of 100-200mg. Ah, now, stopping that will put me on the right track again, don’t you think ;). Thought it might be tricky to encapsulate properly, but the trickiest is getting the lid off, takes 2-3 seconds, then filling the lid and putting the rest back into the tub will be about right, don’t even need a spoon.
Rutin is also not quite right, 557mg I take instead of the 200mg Hoffman recommends, however it’s similar to Quercetin, so I could think about not taking 1 of the 4 500mg quercetin capsules.
The ginseng-relative eleuthero on the other hand I’m taking 0.45g/d of and could take up to 1g/d, it’s proven not to increase blood pressure, possible side effects would be * anxiety * depressed mood * drowsiness * headache * insomnia * irritability. Some things to watch out for, I think I’ll try one more in the mornings.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Creatine? Methylene blue?
SELF-PHYSIO (click for details): OK, but tough doing back exercises in the evening, cos too stiff again. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK. Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no EGCg or pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jun 16th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 0x1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0.1g, myo-inositol 1x2x0.5g/1!d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 3x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x1x.5g, resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (2+2+1)x0.6=3.0g (as much as B3). Plus rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated Jun 16th.
“16:00” preparing pills
“17:30” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xvC#1, 2Cr#1, PF#2, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1% Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc.
B=11/ ’ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +1-2The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=20 with meal: 1xB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 2xTMG#2 2xEleu 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jun 16th

Pf: A1+A2+A3, vB2: 1C,1D, 1A. vB3: 2C,2D.1A, vB5: C,DA. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3,a4, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. (pine: C,D.) Qc: B.E.A1.A3. Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 6MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, Ru, 2 Sa, Sily, 2Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jun 16th: correct?
A1=7+1 Pf#1 Qc1#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2, Ga#1:0.3g, Hon#1, Q10, 0Se, 1TMG#1 (?Rup). = 12?
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, 0EGCg, Fev/MSM#1, Qc#3, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#4 Gi#2 Ol#1 0Pin#1 2TMG#2 2xEleu 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=13 vB2#3 "2"vB3#3 vB5#3 3xCr#3 Ga#5 Gi#3 Ol#2 0Pin#2 2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today:

Re-checked some supp dosages, cos I wasn’t sure, and turned out I have to reduce theanine, can reduce quercetin and can increase eleuthero. Plus a few forum bits’n’bobs.

Quality of life

Lessons in self-care:
a) Made sure not to look at Kami long.
b) Learning to adapt my “hope scale” to the bird survival - like to my own.
Reasons to be cheerful:
a) Glad it wasn’t my wife but probably a kestrel, that was Dr. Death for Kami.
b) Recovering - slowly but surely.
Simplified: Thinking about what to write I changed the position of my laptop “table”. That’s also cos of the abdominal stabs. Seems to help.
Foggies: Mixing up words again, once I didn’t even realize it myself, but a feast for my wife.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-07-24 Monday - tension easing

What … worked / went wrong … today?:

:white_check_mark: Sleep no more than 8h, early sun, air all day, screen curfew at 8: Few sleep breaks, but a bit short, slightly under 7h Monday night.
(Not hot till about Aug 4th, so no insect bites.)
:white_check_mark: Recovering.
:white_check_mark: Massager on neck only 1 minute, but both sides, and regularly.

How was I today?:

Feeling 75%-80-ish (:x:-:white_check_mark:), energy today (:x:-:white_check_mark:), sleep Sunday night (:white_check_mark:), sleep Monday night (:white_check_mark:)/(:x:), nausea 70-0-10-0% (:x:-:white_check_mark:), fog 10% (:white_check_mark:).

Today working mainly on … changing some supp doses, getting used to table tennis again, neck, ordered EGCg yesterday, methylene blue today

1) Early circadian rhythm for a) energy/sleep & b) Ache

7’ workout? nope, but table tennis.

1st meal a bit later, 2nd & 3rd early (slight intermittent fasting): :white_check_mark: quite late, (:x:) late also, (:white_check_mark:) - trying earlier didn’t work out.
whilst keeping food amount up :white_check_mark:(:white_check_mark:)(:x:), IF 14:10 didn’t work out, only managed half the amount in the evening I should be eating.
Bed early / up early (:white_check_mark:):white_check_mark:, screen time down (:white_check_mark:) → Effective sleep :white_check_mark:.
“PEM” :x: vs. “Ache without exertion” = post postural Ache :white_check_mark:.

:ping_pong: 6-8 games most days since June 20th, often winning (but hardly talking, not counting/picking up balls), break of two weeks, July 22nd: 3:1, July 23rd: 0:1 → 3:1. July 24th: 0:1 → 3:1.

1a) EXHAUSTIBILITY today: “85%". Histamine energy in the evening like the previous 2 days, so a good time to go to the shops, before the tiredness kicks in strongly. Energy down from June 30th, after great increase starting 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile/envelope (= moderate, with "6h rest").

R rest: 100% exhaustion 40% of the time (6h),
VS very slow: 60% exhaustion 30% of the time (5h),
S slow: 40% exhaustion 25% of the time (4h),
M medium: 20% exhaustion 5% of the time (1h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 6h42, up 2-3x (45-54'), all deep, except last 10' lying down didn't work out, probably histamine/cortisol still up a bit. 80%/1/5% drymouth30% sore throat0-30-0% (airing 2h) tongue20-10% ✅, everything else OK ➔ Feeling 80% well, Ache 1 of 7 ✅, getting up: 90%/1 ✅. 1x FCS ✅

3rd meal time (:white_check_mark:), screen time (:white_check_mark:), tired (:white_check_mark:). GABA A2/+A3/
A3/ A4:0 teeth/ p0 FCS#1 HWB#0 Sleep 22:15- (cos of nice snuggling time with wife and the pigs and stuff) 3rd # is LBU
0:08 10’ 80%/1/5% p0 st3 sip fw7’ fl?’ deep/ air//-> A4/
drymouth30% sore throat10% tongue20%
2:14 35’ 6 80%/1/5% p0 st1 sip fw10’ fl9’ deep/ air/->// A5/
drymouth30% sore throat30% from leaving window open tongue20%
5:35 9’ (hurt ri. test.) 80%/1/5% p0 st1 sip fw2’ fl0’ deep/ air/ A6/
drymouth30% sore throat0% tongue10%
-5:56 80%/1/5% p0 st1 sip fw2’ fl0’ deep/ air/ B/
drymouth30% sore throat0% tongue10%. 80% = Feeling 90% well, a bit wired & tired.
1x FCS :white_check_mark:
Sum: 1h40+5h56-(10+35+9=)54’ = 7h36-54’ = 6h42, up 2-3x (45-54’), all deep, except last 10’ lying down didn’t work out. 80%/1/5% drymouth30% sore throat0-30-0% (airing 2h) tongue20-10%

1b) ACTIVITIESACHE = PEM (Post exertional malaise): TT 0:1 → 3:1 (moving 20%, talking 10%, counting 0%) ➔ 80%/5 :x:, gardening/moving ➔ 80%/2 :white_check_mark:, a longer (20’) talk with a neighbour was relaxed :white_check_mark:, but apart from that hardly talking, cos if I did ➔ 80%/3-4 :x:. White lips50% (:white_check_mark:)
1c) REST/STIFFNESS ➔ ACHE Evening st1-2 from histamine, then Sunday night st3 → 80%/3 :white_check_mark:/:x: Getting up - for how long?: st2-3 → 80%/2-3 :white_check_mark:, later less :white_check_mark:, Monday evening st1-2 from histamine, Monday night st1 → 80%/1 :white_check_mark: Getting up - for st1 → 80%/1 :white_check_mark:. st1 means I can walk fairly naturally, but actually getting up is quite a problem, maybe in the combination of trying to save energy.

2) Histamine/MCAS symptoms

Nauseous sinus burning headache: In the morning slight, remainder from the night peak :x:, in the evening together with the histamine energy nausea and a headache more at the top of my head, not frontal, not sinuses :x:.
Tongue burning: Yep, increased a bit with the histamine energy in the evening :x:.
No insect bites.
Excitement :white_check_mark: - none, just when the images come up again for a short time, the tension is easing, haven’t been able to tidy up where we tried to care, I’ll do it in an “odd” moment.

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. ENERGY DOWN to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, energy increased June 20th to 30th (>20%), and usually still quite higher after (16-20%), further symptoms down too. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken theirs seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before. Stopped antihistamine I think in April, cos of zombification, dry mouth and I think more, and sleep still good from everything else. Once for dentist June 23rd wouldn’t have been necessary.

3) Docs:

Last DOC update July 20th (added 25th): Got my onco labs at last: only eosinophilia visible to me (put the research on the 25th), GP has no idea, which warrants getting a "2nd" opinion, in absence of a 1st. July 13th: Unsuccessfully asked for my onco lab results. June 24th/25th: Teeth problems resolved for the time being. Waiting for onco report, “2nd” opinion or not? (“B symptoms” = night sweats, appetite, weight starting Feb/March resolved in June.) Click for details…
Click for details: Update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

4) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

Abdominal issues improving constantly, hardly any in the night.

Annoyances
:one: Tea tree oil on onychia :white_check_mark: and fungus on my right foot. :white_check_mark: Improvement not as quick as usual, but is happening.
:two: Beau’s lines on thumbnails: Reduce washing :white_check_mark:, olive oil soap :white_check_mark:, moisturize :white_check_mark:/:x:. 7/8mm healthier thumbnail now, still OK.
:three: Now there’s a slighter gum inflammation problem from food getting stuck in front of the tooth that’s just been done, which is better behind. But I’m working at keeping it freer and that seems to be helping. Can’t afford to be lax on that.

1) Symptoms well under control: GI (via elimination), pee (via GABA: a bit less tonight, so maybe add some ✅), LOCAL PAINS (exercises, back: via using wall/door for support) ✅. Details...

except GI: stools loose0% :white_check_mark:, appetite :white_check_mark:, pee pain: 0p1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN / WIND ✅ (alternating, so changing layers quickly, seem to be sweating easily, probably from the hsitamine), THIRST (✅), dry mouth (day and) at night ❌. Last SEIZURES July 17th: 18:30 19:55 after thunderstorm. July 7th seizure-ish 4x... Jun 23rd 4x, Jun 16th, Jun 6th 2x ❌, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: July 23rd & 16th, May 31st (all 3 cos distracted), before that Apr 4th ✅. JAW solved for the time being since June 23rd. ✅

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Dry mouth (day and) at night has always been a problem, a stronger added real thirst making me drink a fourth litre of almond milk a day came up in April. Stopping the antihistamine completely has praps helped stop it become painfully sticky at night, so I don’t use the gel much any more.
Last focal seizures: July 17th: 18:30 19:55 after thunderstorm. July 7th seizur-ish 4x. Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Generally, mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. July 23rd cos distracted by the Kami stress. July 16th I was concentrating on testing if hazelnuts increase my nicotinic acid flush with my 3rd meal, and disregarded a slight throat pressure, which went totally wrong, was the last straw for an esophagus block, so had to get it out, lots came out, incl. supps, and needed to wait quite a bit afterwards. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more… - June 23rd: OK, the fillings were enough, solved for the time being.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Creatine (got it, but maybe just try it for specific events, as I don't think it'll be sustainable energy?) ordered methylene blue, neck 5x1'
SELF-PHYSIO (click for details): OK, neck 5x1'. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK. Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no EGCg or pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jun 16th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 0x1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0.1g, myo-inositol 1x2x0.5g/1!d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 3x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x1x.5g, resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (2+2+1)x0.6=3.0g (as much as B3). Plus rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated Jun 16th.
“16:00” preparing pills
“17:30” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xvC#1, 2Cr#1, PF#2, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1% Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc.
B=11/ ’ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +1-2The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=20 with meal: 1xB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 2xTMG#2 2xEleu 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jun 16th

Pf: A1+A2+A3, vB2: 1C,1D, 1A. vB3: 2C,2D.1A, vB5: C,DA. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3,a4, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. (pine: C,D.) Qc: B.E.A1.A3. Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 6MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, Ru, 2 Sa, Sily, 2Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jun 16th: correct?
A1=7+1 Pf#1 Qc1#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2, Ga#1:0.3g, Hon#1, Q10, 0Se, 1TMG#1 (?Rup). = 12?
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, 0EGCg, Fev/MSM#1, Qc#3, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#4 Gi#2 Ol#1 0Pin#1 2TMG#2 2xEleu 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=13 vB2#3 "2"vB3#3 vB5#3 3xCr#3 Ga#5 Gi#3 Ol#2 0Pin#2 2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today: Only for supps.

Quality of life

Lessons in self-care: Tension easing, taking care of that.
Reasons to be cheerful:
a) Kami’s dad is coming closer to get sunflower seeds, no problem, looking at me asking … for more or help…?
b) The next (wood) pigeon’s nest may be releasing the next chicks - praps one’ll survive? The fledglings - “squabs” - leave the nest after 25-32 days, can fly then. More or less :roll_eyes:.
c) Pigeon cooing at front of house has many variations, cooing up to 6-7x instead of 3x, the upbeats have a a quirky very suiting fifth slide upward, the main beat has a urge to it, the 2nd of the phrase a third downwards. It’s four-four time, with 2 eighths on the 3rd beat and the upbeat on the last eighth. Getting the hang of how to coo at last.
d) Such a to do this morning, must be quite a few different bird types around, magpie, woodpecker and a few jacks in the background, the sparrow pair and 2-3 I can’t identify. The pigeons are quiet after the first coo at 6.
Simplified: Putting up the sunshades for the rain and wind worked a treat.
Foggies: Few words.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023