JayCS’s Fibro Blog

2023-07-25 Tuesday - from 17:00 on histamine energy, seizure-ish, tongue burning → GABA sublingually helped the seizure-ishness immediately. But was this energy also the increase +50% in eleuthero? Added 600mg GABA after 1st meal. Before the 3h sleep stint I only took one gulp for the GABA dose, instead of as usual several sips.

What … worked / went wrong … today?:

:white_check_mark: Sleep no more than 8h, early sun, air all day, screen curfew at 8.
(Not hot till about Aug 4th, so no insect bites.)
:white_check_mark: Adjusting the supps seemed to improve things. I doubt it’s the decrease in quercetin, but maybe the increase in eleuthero, and/or the decrease in theanine, all 3 first thing in the mornings.

How was I today?:

After and apart from table tennis I was surprisingly OK-ish for the rest of the day, managed an hour meeting with a colleague that came round, in the evening I managed to cycle to a shop pretty quickly over a hill and back. My intuition thought it was histamine.
Feeling 85%-ish (:white_check_mark:), energy today (:white_check_mark:), sleep Monday night (:white_check_mark:), sleep Tuesday night :white_check_mark:, nausea 0(-10)% (:white_check_mark:), fog 10% (:white_check_mark:).

Today working mainly on … changed supp doses, table tennis, sleep

(it was EGCg, not methylene blue that came today, maybe tomorrow),

1) Early circadian rhythm for a) energy/sleep & b) Ache

7’ workout? no, but table tennis 2:2

1st meal a bit later, 2nd & 3rd early (slight intermittent fasting): :white_check_mark: :white_check_mark: (:white_check_mark:),
whilst keeping food amount up (:white_check_mark:)/(:x:)(:white_check_mark:)/(:x:)(:white_check_mark:)/(:x:). IF = 13/11 (eating from ~9:30 to ~20:00)
Bed early / up early :white_check_mark::white_check_mark:, screen time down (:white_check_mark:) → Effective sleep :white_check_mark:.
“PEM” :x: vs. “Ache without exertion” = post postural Ache :x:, OK once I get moving.

:ping_pong: 6-8 games most days since June 20th, often winning (but hardly talking, not counting/picking up balls), break of two weeks, July 22nd: 3:1, July 23rd: 0:1 → 3:1. July 24th: 0:1 → 3:1. , July 25th 2:2, but maybe cos one side worse than the other. But I was losing energy at the end. - A few hours later better.

1a) EXHAUSTIBILITY today: “82%-". Energy up from 25th, down from June 30th, after great increase starting 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile/envelope (= moderate, with "3h rest").

R rest: 100% exhaustion 20% of the time (3h),
VS very slow: 60% exhaustion 20% of the time (3h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 30% of the time (5h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 8h07, up 3x (45'), all deep. Before sleep 60%/4, so didn't even feel like a FCS. 80%/1-2/5% drymouth30-40% sore throat10-15% (airing 1.5h did NOT increase it, altho it's got pretty cold) tongue10-15% nausea0(-10)% sinuses0-30% headache0-20% zombie0-20% ✅, everything else OK ➔ Feeling 80-70% well, Ache 2-4-2 of 7 ✅/❌/✅, getting up: 70%/4-2 ✅. 1x FCS after sleep ✅. Was the 3h length of the last stint and waking up with a sinus headache praps both caused by drinking less before it (1 gulp instead of several sips for the night GABA)? And the sinus headache improved from drinking for the B-supps and/or the cold shower?

3rd meal time :white_check_mark:, screen time (:white_check_mark:), tired :white_check_mark:. GABA A2/+A3/, plus 2 small (100mg?) additional sublingual doses, and +600mg after first meal.
A3 A4:0 teeth0 p0 FA/CS#0 HWB#0 Sleep 21:50- 3rd # is LBU
0:10? 35’ 6 80%/1/5% p0 st2 sip fw2’ fl0’ deep/ air/ A4/
drymouth30% sore throat10% tongue10%
1:55 5’ 80%/2/5% p0 st2 sip fw2’ fl0’ deep/ air//- A5/
drymouth30% sore throat10% tongue10%
3:35 5’ 80%/2/5% p0 st5 1gulp-not-sip fw2’ fl0’ deep/ air-// A6/ (1 gulp)
drymouth40% sore throat10% (despite airing 1.5h) tongue25% nostrils5/0% zombie20%
-6:42 70%/4-2/5% p0 st4-2 sip deep/ air/ B/
drymouth40% sore throat15% tongue15% headache20% nausea10% sinuses30% SINUS HEADACHE - altho or because my last sleep stint was 3h? → FCS#1, praps +1 GABA after 30’? Was that length from gulping the A6 instead of sipping? And increasing the dry mouth of course… And was it then the dryness causing the slight sinus headache with less nausea? Decreased after B supps with lots of almond milk and then cold shower, so I can’t be sure which helped, I could have only seen if I’d not cold showered after all - oh well, next time.
1x FCS :white_check_mark:
Sum: 6h42+2h10-(35+5+5=)45’ = 8h52-45’ = 8h07, up 3x (45’), all deep. Before sleep 60%/4, so didn’t even feel like a FCS. 80%/1-2/5% drymouth30-40% sore throat10-15% (airing 1.5h did NOT increase it, altho it’s got pretty cold) tongue10-15% nausea0(-10)% sinuses0-30% headache0-20% zombie0-20%. Was the 3h length of the last stint and waking up with a sinus headache praps both caused by drinking less before it (1 gulp instead of several sips for the night GABA)? And the sinus headache improved from drinking for the B-supps and/or the cold shower?

1b) ACTIVITIESACHE = PEM (Post exertional malaise): TT 2:2 (moving 20%, talking 10%, counting 0%) ➔ 80%/3 :white_check_mark:, gardening/moving ➔ 80%/2 :white_check_mark:, talking 1h ➔ 80%/3 :white_check_mark:. White lips50% (:white_check_mark:)
1c) REST/STIFFNESS ➔ ACHE At night st2-5 → 80%/1-2 :white_check_mark:. Getting up - for how long?: st4-2 → 80%/2-3 :x:, later postpostural :x:.
TIREDNESS ➔ ACHE from 21:00 ON. 60%/4 :x:. Maybe the Ache at night is also tiredness ache, not just postpostural. If that gets better from being up a bit it could still be both. Most important is to not succumb to that but just go back to bed quickly, get it all done with.
The STIFFNESS quickly comes up when not moving.

2) Histamine/MCAS symptoms - Evening energy seizure-ish with a bit more tongue burning.

Nauseous sinus burning headache: A bit getting up (:x:), but quickly resolved after B-supps, drinking & fast cold shower.
Tongue burning: Yep, a bit , from histamine I guess :x:.
Excitement :white_check_mark: - calmed down, now it’s just a bit of emotional exhaustion mixing in with trying to use the improved energy.

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. ENERGY DOWN to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, energy increased June 20th to 30th (>20%), and usually still quite higher after (16-20%), further symptoms down too. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken theirs seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before. Stopped antihistamine I think in April, cos of zombification, dry mouth and I think more, and sleep still good from everything else. Once for dentist June 23rd wouldn’t have been necessary.

3) Docs:

Last DOC update July 20th (added 25th): Got my onco labs at last: only eosinophilia visible to me (put the research on the 25th), GP has no idea, which warrants getting a "2nd" opinion, in absence of a 1st. July 13th: Unsuccessfully asked for my onco lab results. June 24th/25th: Teeth problems resolved for the time being. Waiting for onco report, “2nd” opinion or not? (“B symptoms” = night sweats, appetite, weight starting Feb/March resolved in June.) Click for details…
Click for details: Update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

4) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

Abdominal issues now OK again. :white_check_mark:
My wife says my hands are dry, so when I write/think 0% (e.g. at night) that maybe should read I dunno 50%? And 50% is 100%. Tell-tale to play cards and having to deal 4x as slow, cos my hands are too dry to grip the cards…

Annoyances
Neck almost OK 25th/26th.
:one: Tea tree oil on onychia :white_check_mark: and fungus on my right foot. :white_check_mark: Improvement not as quick as usual, but slowly getting there, all 4 places are improved, and I’m able to use tea tree oil at least once a day without soothing it with calendula essence in between.
:two: Beau’s lines on thumbnails: Reduce washing (:x: - drinking/peeing/doing “too” much), olive oil soap :white_check_mark:, moisturize :x:. 7/8mm healthier thumbnail now.
:three: Slight gum inflammation from stuck food (:white_check_mark:): free :white_check_mark:.

1) Symptoms well under control: GI (via elimination), pee (via GABA: ENOUGH? YES, ADDED! - but maybe a bit too much, gotta go easy again ✅), LOCAL PAINS (exercises, back: via using wall/door for support) ✅. Details...

except GI: stools loose0% :white_check_mark:, appetite :white_check_mark:, pee pain: 2p1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN / WIND ✅ (alternating, so layering), THIRST (✅), dry mouth (day and) at night ❌. Last SEIZURES July 25th: seizure-ish 3-4x, so gotta keep GABA up. July 17th: 18:30 19:55 after thunderstorm. July 7th seizure-ish 4x... Jun 23rd 4x, Jun 16th, Jun 6th 2x ❌, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: July 23rd & 16th, May 31st (all 3 cos distracted), before that Apr 4th ✅. JAW solved for the time being since June 23rd. ✅

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Dry mouth (day and) at night has always been a problem, a stronger added real thirst making me drink a fourth litre of almond milk a day came up in April. Stopping the antihistamine completely has praps helped stop it become painfully sticky at night, so I don’t use the gel much any more.
Last focal seizures: Last SEIZURES July 25th: seizure-ish 3-4x. July 17th: 18:30 19:55 after thunderstorm. July 7th seizur-ish 4x. Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Generally, mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. July 23rd cos distracted by the Kami stress. July 16th I was concentrating on testing if hazelnuts increase my nicotinic acid flush with my 3rd meal, and disregarded a slight throat pressure, which went totally wrong, was the last straw for an esophagus block, so had to get it out, lots came out, incl. supps, and needed to wait quite a bit afterwards. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more… - June 23rd: OK, the fillings were enough, solved for the time being

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. July 25th: Increased eleuthero, decreased theanine and quercetin, added EGCG, all 4 in the B-supps. Creatine? Next: Methylene blue! LDN!
SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK? Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no EGCg or pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jun 16th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 3x1x(50%, incl. L-theanine?).113g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 3x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0.1g, myo-inositol 1x2x0.5g/1!d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 3x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x1x.5g, resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (2+2+1)x0.6=3.0g (as much as B3). Plus rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated Jun 16th.
“16:00” preparing pills
“17:30” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xvC#1, 2Cr#1, PF#2, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1% Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc.
B=11/ ’ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +1-2The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=20 with meal: 1xB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 2xTMG#2 2xEleu 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jun 16th

Pf: A1+A2+A3, vB2: 1C,1D, 1A. vB3: 2C,2D.1A, vB5: C,DA. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3,a4, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. (pine: C,D.) Qc: B.E.A1.A3. Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 6MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, Ru, 2 Sa, Sily, 2Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jun 16th: correct?
A1=7+1 Pf#1 Qc1#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2, Ga#1:0.3g, Hon#1, Q10, 0Se, 1TMG#1 (?Rup). = 12?
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, 0EGCg, Fev/MSM#1, Qc#3, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#4 Gi#2 Ol#1 0Pin#1 2TMG#2 2xEleu 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=13 vB2#3 "2"vB3#3 vB5#3 3xCr#3 Ga#5 Gi#3 Ol#2 0Pin#2 2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today:

Eosinophilia (researched Fri/Sat before I went to my GP):

I have double what I should have, that’s called eosinophilia, a form of leukocytosis. But unlike that, not all my white blood cells are up, my lymphocytes are actually slightly under the normal range (which happens after infection). Eosinophilia may be due to

  • IgE-allergies - which I don’t have, but who knows, knowing MCAS.
  • parasites - no idea, but the summits have been revelling in parasites, so maybe I can find an idea there. Examples the German wp names are liver fluke, nematodes and ectoparasites incl. insects.
    The antigenes of either can bind to mast cells, which release histamine, which attracts eosinophiles. Well so the eosinophilia may be due to the overboarding histamine.
    Other reasons can be fungi or foreign matter, mast cell tumors, rarely lymphomas, only German wikipedia says this.
    English wikipedia adds “During an allergic reaction, the release of histamine from mast cells causes vasodilation which allows eosinophils to migrate from the blood and localize in affected tissues. Accumulation of eosinophils in tissues can be significantly damaging. Eosinophils, like other granulocytes, contain granules (or sacs) filled with digestive enzymes and cytotoxic proteins which under normal conditions are used to destroy parasites but in eosinophilia these agents can damage healthy tissues. In addition to these agents, the granules in eosinophils also contain inflammatory molecules and cytokines which can recruit more eosinophils and other inflammatory cells to the area and hence amplify and perpetuate the damage.”
    So too many eosinophils can damage by many different substances they carry.
    German wikipedia says that a higher count means I may be recovering from something, but as my states are chronic, I’m not sure of that at all.
    Following up in the next bloods is more important than looking at my last ones, but looking there, they were in the lower region December 2022 and before that continually higher.
    And look at what I can do naturally about it, but partly that’s inflammation, and anti-inflammatory spices I don’t tolerate and all others I’m taking already. What I don’t do yet is shirish (Albizia lebbeck),neem I’m not sure, Anantmool (Hemidesmus Indicus) anti allergic and immuno modulator, “great energy enhancer too”, tulsi (Ocimum sanctum) autoimmune and cancer, says this ayurveda site.
    aPTT is a bit low, TPZ a bit high. Albumin I’m not sure, of 3x2=6 values 2 are too low.
    Urine a bit too alkaline, probably cos vegetarian, I could eat certain things to lower it (best for me to tolerate would be Brussels sprouts).

Nicotinic acid:

This is one thing I’d maybe forgotten to note about what B3 does:
“In a rough explanation, niacin is a methyl absorber and affects the homocysteine system by absorbing the methyl groups that B9 and B12 would use to metabolize homocysteine. I would always take B9 and B12 with it, although NAC also lowers homocysteine in the studys I’ve seen.”

“You don’t need more sleep”…

Laura Frontiero sent a newsletter with that message, saying sleep is only part of it. Well I think that’s a bit too short and to the point. But I agree that I’ve realized that trying to sleep more than 8h has harmed me. But: less than 7h effective sleep mid term also harms me.

Quality of life

Lessons in self-care: Got to continue reducing to 1 gulp at night, despite thirst, to try to reduce the pee urge.
Reasons to be cheerful:
a) At work, my wife saw a kingfisher with a fish in its mouth after she heard a big splash that sounded like a big fish.
b) After trying to watch for slight differences in the white neck of the wood pigeons, I found a bigger one with the 2nd from bottom white horizontal line longer than the other 5, and in the evening a smaller one, adult, with shorter white lines, the first cooed, so will more likely be male, the 2nd I’m assuming female, altho females do also coo sometimes.
c) Learning to distinguish individuals is always a step nearer to them, and watching details a step nearer to happiness…
d) Next step nearer to happiness is calling or even giving names, what about Duey (from duo = two) for the male. But of course losing some-one with names is harder than losing some-thing. I need to become like an old-time farmer, knowing their names, but also that they’ll be chopped up sometime - like we all need to die.
e) Black with white Tiger provoked an alarm by Robin (who had 2 babies and still has at least 1), and the way I talked to him was too ambivalent, so I gently drove him away.
Simplified: Maybe.
Foggies: Dunno.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-07-26 Wednesday -

What … worked / went wrong … today?:

:white_check_mark: Sleep no more than 8h, early sun, air all day, screen curfew at 8.
(Not hot till about Aug 4th, so no insect bites.)

How was I today?:

Feeling 85%-ish (:white_check_mark:), energy today (:white_check_mark:), sleep Tuesday night (:white_check_mark:), sleep Wednesday night :white_check_mark:, nausea 0% (:white_check_mark:), fog 10% (:white_check_mark:).

Today working mainly on … changed supp doses, energy (tough), gum, new PQQ supplier, better & cheaper, safety of microcrystalline cellulose isn’t clear to me, Jen(nifer) Mann’s polyvagal exercise, concentrating on keeping sleep breaks short.

Need to check eleuthero -27g vs. eleutheroides 4.5mg dosage?

1) Early circadian rhythm for a) energy/sleep & b) Ache

7’ workout? No, but 2nd time TT :ping_pong: :roll_eyes:

1st meal a bit later, 2nd & 3rd early (slight intermittent fasting): :white_check_mark: (Wedn. morning starting maybe 8:30…, evening ending 20:15?, Thursday morning starting 8:00)(:white_check_mark:) (:white_check_mark:),
whilst keeping food amount up :white_check_mark::white_check_mark::white_check_mark: (always easier if I have something cooked…). IF = 13/11 (from ~9:00 to ~20:00), altho I was hungry early in the morning, but that ebbed after a time.
Bed early / up early (:white_check_mark:):white_check_mark:, screen time down (:white_check_mark:) → Effective sleep :white_check_mark:.
“PEM” :x: vs. “Ache without exertion” = post postural Ache :white_check_mark:.

:ping_pong: 6-8 games most days since June 20th, often winning (but hardly talking, not counting/picking up balls), break of two weeks, July 22nd: 3:1, July 23rd: 0:1 → 3:1. July 24th: 0:1 → 3:1., July 25th 2:2, July 26th 4:0 (tough), later 20’ (even tougher).

1a) EXHAUSTIBILITY today: “82%-". Energy down from June 30th, after great increase starting 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile/envelope (= moderate, with "3h rest").

R rest: 100% exhaustion 20% of the time (3h),
VS very slow: 60% exhaustion 20% of the time (3h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 30% of the time (5h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 7h07, up 5x (23'), all deep. 80%/2/5% drymouth30% sore throat10-20-10% tongue(10-)20% ✅, everything else OK ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅. 1x FCS ✅. Got cold at 3, put my thickest winter duvet partly then completely over both the summer and medium one, wondering whether cold showering additionally would have lengthened sleep stints, cos simply GABA gulping didn't. Stint lengths were 1h+1h+1h+1h+1.5h+1h5h. The only new connection I can draw from yesterday is that I aired for 1.5h before the stint. At most that would seem the cold from the airing was better for sleep than the warmth of the duvets and would suggest cold showering more for longer stints and thus praps deeper sleep. I did feel zombified 20% as opposed to tonight, but can't see what from. Not sure if I took A2 & A3, and the spoon I put in the A2 tub didn't remind me, why not? - praps something more striking, a bigger spoon.

3rd meal time (:white_check_mark:), screen time (:white_check_mark:), tired :x:, that’s why I was up a bit longer than 10. GABA A2/+A3/ - or didn’t I??
A3 A4:0 teeth0 p0 FA/CS#0 HWB#0 Sleep 22:25- 3rd # is LBU
23:35 5’ 80%/2/5% p0 st3 gulp fw2’ fl0’ deep/ air/ A4/
drymouth30% sore throat10% tongue10%
0:35 5’ 80%/2/5% p0 st2 gulp fw2’ fl0’ deep/ air/ A5/
drymouth30% sore throat10% tongue20%
1:40 5’ 80%/4/5% p0 st2 gulp fw2’ fl0’ deep/ air/ A6/
drymouth40% sore throat20% tongue20%
2:55 4’ 80%/4/5% p0 st2 gulp fw2’ fl0’ deep/ air/ A7/
drymouth40% sore throat20% tongue20%. Cold → 3rd duvet… What iv I now cold showered instead?
4:25 4’ 80%/4/5% p0 st2 gulp fw2’ fl0’ deep/ air/ A8/
drymouth40% sore throat10% tongue20%. And what if I’d cold showered here? Praps try gulping tomorrow with 1 or more cold showers? Despite because of feeling cold? Only good thing is getting lots of GABA in.
-5:55 80%/2/5% p0 st2! gulp deep/ air/ B/
drymouth40% sore throat10% tongue20%, hardly PPM, standing in the cold/draught, still FCS no problem.
1x FCS :white_check_mark: (morning)
Sum: 1h35+5h55-(5+5+5+4+4=)23’ = 7h30-23’ = 7h07, up 5x (23’), all deep. 80%/2/5% drymouth30% sore throat10-20-10% tongue(10-)20%. Got cold at 3, put my thickest winter duvet partly then completely over both the summer and medium one, wondering whether cold showering additionally would have lengthened sleep stints, cos simply GABA gulping didn’t. Stint lengths were 1h+1h+1h+1h+1.5h+1h5h. The only new connection I can draw from yesterday is that I aired for 1.5h before the stint. Also I felt zombified 20% as opposed to tonight, but can’t see what from.

1b) ACTIVITIESACHE = PEM (Post exertional malaise): TT 4:0 at 10:00 and later 20’ against someone else (moving 20%, talking 10% (later 30%, may have been the problem, counting 0%) ➔ 10:00 35’ ➔ 80%/5 :x:, 17:00 20’ ➔ 70%/5-6 :x:, gardening/moving ➔ 80%/2 :white_check_mark:, talking ➔ 80%/3-6 :x:. White lips50 (:x:)
1c) REST/STIFFNESS ➔ ACHE At night st3 → 80%/2 :white_check_mark: Getting up st2 :white_check_mark:, but 80%/4 :x:, so the Ache in this case was not associated with stiffness, but just with the posture of lying still. Good thing about shorter sleep stints is less stiffness. The Ache may have been more because of not cold showering.

2) Histamine/MCAS symptoms

Nauseous sinus burning headache: Nope :white_check_mark: (only a rest Wednesday morning from Tuesday night).
Tongue burning: Yep, 20% most or all of the night :x:. What from?
Excitement :x: - only playing :ping_pong: with someone I don’t know that well.
I can’t judge the interaction of B3 with food the next few days, because I got my pills confused so had to reduce the amount to not overdose. At least not if I don’t get any flush reaction. But there doesn’t seem to be a pattern: It always seems to me that the flush only comes up when I eat, and 2nd meal today was only veggies, so different to 1st.

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. ENERGY DOWN to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, energy increased June 20th to 30th (>20%), and usually still quite higher after (16-20%), further symptoms down too. Increasing a little from July 25th, but still only 4 games possible. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken theirs seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before. Stopped antihistamine I think in April, cos of zombification, dry mouth and I think more, and sleep still good from everything else. Once for dentist June 23rd wouldn’t have been necessary.

3) Docs:

Last DOC update July 26th: Phoned urologists/oncologists, the man at the reception was very friendly and asked helpful interested questions, I'm not used to that at all, and I got an appt. for next Monday, 31st, already, praps cos of the summer holidays. The urologist I'm assigned to has 3 reviews that sound promising, and "looks OK", young, interested and caring, like the reviews say. July 20th (added 25th): Got my onco labs at last: only eosinophilia visible to me (put the research on the 25th), GP has no idea, which warrants getting a "2nd" opinion, in absence of a 1st. July 13th: Unsuccessfully asked for my onco lab results. June 24th/25th: Teeth problems resolved for the time being. Waiting for onco report, “2nd” opinion or not? (“B symptoms” = night sweats, appetite, weight starting Feb/March resolved in June.) Click for details…
Click for details: Update July 26th: Got a cancer appt. on 31st. June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

4) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

Annoyances
:one: Tea tree oil on onychia :white_check_mark: and fungus on my right foot. :white_check_mark: Improvement not as quick as usual.
:two: Beau’s lines on thumbnails: Reduce washing :white_check_mark:, olive oil soap :white_check_mark:, moisturize :white_check_mark:/:x:. 7/8mm healthier thumbnail now.
:three: Slight gum inflammation from stuck food (:white_check_mark:): free :white_check_mark:.
Calendula essence for gum as well as CoV, praps umckaloabo too! :white_check_mark:

1) Symptoms well under control: GI (via elimination), pee (via GABA: enough ✅), LOCAL PAINS (exercises, back: via using wall/door for support) ✅. Jen(nifer) Mann's polyvagal exercise on the last summit were really good, tried them today. Details...

except GI: stools loose0% :white_check_mark:, appetite :white_check_mark:, pee pain: 0p1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN / WIND ✅ (colder, so more on), THIRST (✅), dry mouth (day and) at night ❌. Last SEIZURES: July 25th seizure-ish 3-4x, so GABA up. July 17th: 18:30 19:55 after thunderstorm. July 7th seizure-ish 4x... Jun 23rd 4x, Jun 16th, Jun 6th 2x ❌, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: July 23rd & 16th, May 31st (all 3 cos distracted), before that Apr 4th ✅. JAW solved for the time being since June 23rd. ✅

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Dry mouth (day and) at night has always been a problem, a stronger added real thirst making me drink a fourth litre of almond milk a day came up in April. Stopping the antihistamine completely has praps helped stop it become painfully sticky at night, so I don’t use the gel much any more.
Last focal seizures: July 25th: seizure-ish 3-4x. July 17th: 18:30 19:55 after thunderstorm. July 7th seizur-ish 4x. Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Generally, mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. July 23rd cos distracted by the Kami stress. July 16th I was concentrating on testing if hazelnuts increase my nicotinic acid flush with my 3rd meal, and disregarded a slight throat pressure, which went totally wrong, was the last straw for an esophagus block, so had to get it out, lots came out, incl. supps, and needed to wait quite a bit afterwards. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more… - June 23rd: OK, the fillings were enough, solved for the time being.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. July 25th (updated almost everything too): Increased eleuthero, decrease theanine to 2x0.1g and quercetin, added EGCG, all 4 in the B-supps. Next: Methylene blue! (1mg/kg in the mornings, but may have to reduce GABA!) LDN! (Which filler? Or sublingual?) Creatine?
SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK. EGCg again, eleuthero up to 3 and above, quercetin down cos of more rutin than suggested, next: theanine down to 2x0.1g? Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, rupatadine/Rupafin, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of July 26th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before EGCg 3x1x(50%, incl. L-theanine?)113mg, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 3x4.5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0-0.1g, myo-inositol 1x2x0.5g/1!-2d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 2!x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 3!x1x.5g (down in B-supps cos more rutin than suggested), resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (1-2+1-2+1)x0.6=3.0g (as much as B3). NO rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated July 26th.
“16:00” preparing pills
“17:30” A1 PF#1:0, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xC#1, 2Cr#1, PF#(2->)1, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#(3->)2, 0.3gGABA & .6glu & Qc#2 Hon#2 + 1%:0 Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc., A5-A8, according to pee pain and seizure-ishness
B=11/ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3:0 Rs#1 2xSAM-e EGCg (from July 26th again) 3xEleu (forward from C to B-batch, maybe slowly increasing, even to 4g/d!) + Fev/MSM#1 + Sily +0.2->0.1The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
C=20 with meal: 1xB2#2 1-2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 1-2xTMG#2 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 1-2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 1-2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#(4=)3, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), July 26th

Pf: A1:0+A2+A3, vB2: 1C,1D, 1A. vB3: 1-2C,1-2D.1A, vB5: C+D+A. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3-a6(-a8), Gi: C,D0,D Glutathione: 2-3x after meals. Hon:A2.A3. MgThreo: 2C,2D,2A. Oliv: C,D. (pine: C,D.) Qc: (B.)E.A1.A3. Ro:B,E Rs:B,E SINGLE: A1: 0xMgMal, luteolin. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (ubiquinone <150mg/d!, not ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): R-ALA, EGCg, 3xeleu, Ru, 2 Sa, Sily, Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. vit. D3/K2-MK7 saturdays. (A2:0Se)
TALLIES July 26th:
A1=7+1 Pf#0 Qc#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1-2xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2->1, Ga#1:0.3g, Hon#1, Q10, 0Se, 1-2TMG#1 (0 Rup). = 12-14.
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3->2, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2 etc.
B=11 ALA, EGCg, Eleu more, Fev/MSM#1, Qc#3:0, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#(4+) Gi#2 Ol#1 0Pin#1 2TMG#2 (Eleu in B) 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=11-13 vB2#3 1-2xB3#3 vB5#3 3xCr#3 Ga#(5+) Gi#3 Ol#2 0Pin#2 1-2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=5 Ell, Qc#(4->)3, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today:

Fillers like microcrystalline cellulose:

Development: keeping neurotransmitters and sleep in balance is like a tight rope walk

– that occurred to me while wondering how come my energy is rising again I feel keeping my symptoms and energy under control.

Quality of life

Lessons in self-care: Wary of playing table tennis a 2nd time and I shouldn’t really have played at all, I quickly realized, so kept it to 20’, couldn’t manage to stop, and talking 5’ after, they asked about my blog, which I shouldn’t’ve delved into. Why did I? Appreciation/recognition for myself, embarrassingly, but also so people get a gist of what I’m doing for myself and how that might help others. It confirms what I thought: I can tell people beforehand that I can’t talk, but it’s so hard for both sides not to. Sees double trouble, cos talking with my colleague Tuesday went OK for an hour. Not always easy to see. Question remains for me when I should accept, and my feeling is that talking to people that I don’t know well is worst.
Reasons to be cheerful: Pigeon’s coming closer now, I can recognize Duey pretty quickly. But it’s not him on our nest, maybe he’s the dad. Or Kami’s dad. Or both.
Simplified: Putting small metal “tables” for various uses outside together, but may be simpler to not use them after all, just leaving them around for a while in case I can come up with a use for them.
Foggies: I put in 2 GABA capsules instead of 1 into C, but can’t identify which of the 4 should be in there. Took a while for me to realize I just have to identify one capsule by taste and the rest back into C.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-07-26 … Wednesday’s research…

Fillers like microcrystalline cellulose:

I know some people need to keep to cheap supps, but it’s still good for everyone to know how generally risky some things are or are not, for instance I was wondering about asking for cellulose in LDN capsules.

Short version: best avoid SiO2 (nanoparticles), aluminium seals (heat) and talcum (natural asbestos) in/on supps. Microcrystalline cellulose in supps seems safe for our guts, and is minimal in comparison to via processed food.

Looking for a new PQQ supplier I’ve only found a few alternatives to amzn. One, biotikon.de, says:

  • Nanoparticles may be contained in industrially manufactured siiicon dioxide, SiO2. Not in that manufactured from common horsetail.
  • Aluminium seals are put on bottles by heating with high frequency EMF.
  • Talcum powder in tablets and capsules can contain asbestos.

The SiO2 is backed up by “the” reputable German consumer association and by Bio Suisse stopping it. Talcum may contain natural asbestos and that’s not regulated properly ().

I can well imagine these three and always avoid them, but the page also implies that microcrystalline cellulose (MCC) also contains nanoparticles. Another site says no: micro- is micro, not nano. Delving further, I’ve found that

  • microcrystalline is defined by law as >5 µm, so doesn’t allow nano- in it, so the 2nd opinion is correct,
  • there is also such a different thing as nanocrystalline cellulose (NCC),
  • 3rd opinion: MCC it hasn’t yet been proven that it isn’t taken up by our gut.

Checking that last one, a 2020 study by EFSA (for the EU what the FDA & USDA are in the US) says it’s considered safe for all the animals we eat (and the environment) if it’s up to food quality standard, rather than feed quality. For the consumer they say:

“JECFA (1990), SCF (1994), EFSA AFC Panel (2004) and EFSA ANS Panel (2018) all considered it unnecessary to set an ADI for celluloses, including microcrystalline cellulose, based on a low toxicity, resistance to digestion and almost no absorption in the human gastrointestinal tract.

This may not be perfect, but it sounds like people eating conventional food are getting a lot in other products anyway, and this 2017 study says that it is improving food (e.g. by reducing the bad fats). Checking the amounts here: it’s 4% for dairy (FDA), 3,5% for meat etc. (USDA). In organic food in Germany, cellulose is only allowed in HPMC capsules and recently in gelatine. At the moment I’m eating let’s say 500g/d of dairy. If that weren’t organic, that would be up to 20g/d MCC. In comparison my HPMC contain 140mg, I take 80-100/d = 14g/d. and LDN capsules with cellulose would contain maybe 200mg, now if I took 9/d of 1.5mg capsules that’d tally to ~2g/d, which is a lot less than in my other capsules.

Thursday I found a seemingly very pure & cheap PQQ product which again claims that microcrystalline cellulose can contain nanoparticles as impurity.

The healthline article on cellulose isn’t helpful, cos it only talks about cellulose, not its microcrystalline manufactured version.

2023-07-27 Thursday - energy up a bit more (:ping_pong: 5:1)

What … worked / went wrong … today?:

:white_check_mark: Sleep no more than 8h, early sun, air all day, screen curfew at 8.
(Not hot till about Aug 4th, so no insect bites.)
:white_check_mark: Single gulps definitely decreased sleep breaks, but :x: maybe contributed to the sinus headache in the morning.

How was I today?:

Feeling 85%-ish (:white_check_mark:), energy today (:white_check_mark:), sleep Wednesday night :white_check_mark:, sleep Thursday night :white_check_mark:, nausea 0(-10)% (:white_check_mark:), fog 10% (:white_check_mark:).

Today working mainly on … tracking results of changed supp doses, improving table tennis energy, dosage of methylene blue, decreasing sleep breaks, bringing gum inflammation & foot fungus and the rest of the neck strain down

Questions:
:question: eleuthero dosage -27g vs. eleutheroides 4.5mg dosage?
:exclamation: Mine are 225mg root, 2% of that eleutheroides = 4,5mg, as said above. The max. dose some Chinese suggest is then 120 capsules, that’s a whole bottle per day (12,35€…). But the normal high dose would be 1g, so 4 cps., and I’ve increased from 2 to 3 now.
:question: Methylene blue: 1mg/kg in the mornings, but may have to reduce GABA! How much of a 1% solution?
:exclamation: On earthclinic it implies 1 drop.
:question: LDN: Which filler? Or sublingual?
:exclamation: Don’t want to trouble the pharmacy too much, otherwise they might say no. I can always try to change later if it doesn’t work out.

1) Early circadian rhythm for a) energy/sleep & b) Ache

7’ workout? Nope, enough from longer table tennis.

1st meal a bit later, 2nd & 3rd early (slight intermittent fasting): :white_check_mark: :white_check_mark: (:white_check_mark:),
whilst keeping food amount up :white_check_mark:(:white_check_mark:)(:white_check_mark:). IF = 12/12 (from 8:30 to 20:30)
Bed early / up early :white_check_mark::white_check_mark:, screen time down (:white_check_mark:)→ Effective sleep :white_check_mark:.
“PEM” :white_check_mark: vs. “Ache without exertion” = post postural Ache :x:.
I started feeling “post exertional” at 19:00…

:ping_pong: 6-8 games most days since June 20th, often winning (but hardly talking, not counting/picking up balls), break of two weeks, July 22nd: 3:1, July 23rd: 0:1 → 3:1. July 24th: 0:1 → 3:1. July 25th 2:2, July 26th 4:0 (tough), later 20’ (even tougher), July 27th 0:1 → 5:1, easy, despite rain, better and easier when not concentrating.

1a) EXHAUSTIBILITY today: “82%-". Energy down from June 30th, after great increase starting 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile/envelope (= moderate, with "3h rest").

R rest: 100% exhaustion 20% of the time (3h),
VS very slow: 60% exhaustion 20% of the time (3h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 30% of the time (5h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

"SLEEP (click for details): 7h48, up 3x (12'), all deep. 80%/2/5(-15)% drymouth30-40% sore throat10-15% tongue15-20% nostril/s0-20% nausea5% sinuses0-10% headache0-10% ✅, everything else OK ➔ Feeling ?90% well, Ache 2 of 7 ✅, getting up: ?90%/2 ✅. 1x FCS ✅". Slight sinus headache that have been thirst, so quickly took B-supps/drink and no FCS yet! Pretty much worked without cold shower or GABA, now methylene blue. But the FCS did then help.

3rd meal time :white_check_mark:/:x:, screen time :white_check_mark:/:x:, tired :white_check_mark:/:x:. GABA A2/+A3/
A3 A4:0 teeth0 p0 FA/CS#0 HWB#0 Sleep 22:10- 3rd # is LBU
0:25 4’ 80%/2/5% p0 st2 gulp fw2’ fl0’ deep/ air0 A4/
drymouth30% sore throat10% tongue15%
2:40 4’ 80%/2/5% p0 st2 gulp fw2’ fl0’ deep/ air0 A5/
drymouth40% sore throat10% tongue20%
4:37 4’ 80%/2/15% (p0) st2 gulp fw2’ fl0’ deep/ air0 A6/
drymouth40% sore throat15% tongue20%
-6:10 80%/2/5% (p0) st2 gulp fw2’ fl0’ deep/ air0 A6/
drymouth40% sore throat15% tongue20% nausea5% nostrils0/20% sinuses10% headache10%: that will be thirst, so quickly B-supps/drink and no FCS yet! Pretty much worked without cold shower or GABA, now methylene blue.
1x FCS :white_check_mark: (morning, after a while, to see if the drinking alone is enough, and it did improve it a bit, FCS a bit more.)
Sum: 1h50+6h10-(4+4+4=)12’ = 8h-12’ = 7h48, up 3x (12’), all deep. 80%/2/5(-15)% drymouth30-40% sore throat10-15% tongue15-20% nostril/s0-20% nausea5% sinuses0-10% headache0-10%

1b) ACTIVITIESACHE = PEM (Post exertional malaise): TT 0:1 → 5:1 (moving 20%, talking 10%, counting 0%) ➔ 80%/3 :white_check_mark:, gardening/moving ➔ 80%/2 :white_check_mark: (but only about an hour or so, cos raining all day), talking ➔ 80%/3-4 :x:. White lips50% (:x:)
1c) REST/STIFFNESS ➔ ACHE At night st3 → 80%/3 :white_check_mark:/:x: Getting up - for how long?: st3 → 80%/3 (:x:), later no less :x:.

2) Histamine/MCAS symptoms

Nauseous sinus burning headache: Slightly, maybe thirst? (:white_check_mark:).
Tongue burning: Yep, slightly (:white_check_mark:).
Excitement: no reason :white_check_mark:, but a friend of ours came round at 19:00 and I couldn’t listen, couldn’t partake except a few minutes in between.

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. ENERGY DOWN to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, energy increased June 20th to 30th (>20%), and usually still quite higher after (16-20%), further symptoms down too. Increasing a little from July 25th.. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken theirs seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before. Stopped antihistamine I think in April, cos of zombification, dry mouth and I think more, and sleep still good from everything else. Once for dentist June 23rd wouldn’t have been necessary.

3) Docs:

Need to prepare copies of the last reports, so the same thing doesn’t happen as with the other doc.

Last DOC update July 26th: Phoned urologists/oncologists, the man at the reception was very friendly and asked helpful interested questions, I'm not used to that at all, and I got an appt. for next Monday, 31st, already, praps cos of the summer holidays. The urologist I'm assigned to has 3 reviews that sound promising, and "looks OK", young, interested and caring, like the reviews say. July 20th (added 25th): Got my onco labs at last: only eosinophilia visible to me (put the research on the 25th), GP has no idea, which warrants getting a "2nd" opinion, in absence of a 1st. July 13th: Unsuccessfully asked for my onco lab results. June 24th/25th: Teeth problems resolved for the time being. Waiting for onco report, “2nd” opinion or not? (“B symptoms” = night sweats, appetite, weight starting Feb/March resolved in June.) Click for details…
Click for details: Update July 26th: Got a cancer appt. on 31st. June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

4) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

Annoyances
:one: Tea tree oil on onychia :white_check_mark: and fungus on my right foot. :white_check_mark: Improvement not as quick as usual. About half gone.
:two: Beau’s lines on thumbnails: Reduce washing :white_check_mark:, olive oil soap :white_check_mark:, moisturize :x:. 7/8mm healthier thumbnail now.
:three: Slight gum inflammation from stuck food (:white_check_mark:): free :white_check_mark:.
Calendula essence for gum as well as CoV, praps umckaloabo too! 2x :white_check_mark:

1) Symptoms well under control: GI (via elimination), pee (via GABA: enough ✅ - have to watch out with the methylene blue), LOCAL PAINS (exercises, back: via using wall/door for support) ✅. Details...

except GI: stools loose0% :white_check_mark:, appetite :white_check_mark:, pee pain: 0p1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN / WIND ✅ (layering off and on all the time), THIRST (✅), dry mouth (day and) at night ❌. Last SEIZURES: July 25th seizure-ish 3-4x, so GABA up. July 17th: 18:30 19:55 after thunderstorm. July 7th seizure-ish 4x... Jun 23rd 4x, Jun 16th, Jun 6th 2x ❌, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: July 23rd & 16th, May 31st (all 3 cos distracted), before that Apr 4th ✅. JAW solved for the time being since June 23rd. ✅

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Dry mouth (day and) at night has always been a problem, a stronger added real thirst making me drink a fourth litre of almond milk a day came up in April. Stopping the antihistamine completely has praps helped stop it become painfully sticky at night, so I don’t use the gel much any more.
Last focal seizures: July 25th: seizure-ish 3-4x. July 17th: 18:30 19:55 after thunderstorm. July 7th seizur-ish 4x. Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Generally, mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. July 23rd cos distracted by the Kami stress. July 16th I was concentrating on testing if hazelnuts increase my nicotinic acid flush with my 3rd meal, and disregarded a slight throat pressure, which went totally wrong, was the last straw for an esophagus block, so had to get it out, lots came out, incl. supps, and needed to wait quite a bit afterwards. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more… - June 23rd: OK, the fillings were enough, solved for the time being.

Methylene blue trial early Friday morning: Making me jittery, of all things?

Details in Friday’s entry.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. July 25th (updated almost everything too): Increased eleuthero, decrease theanine to 2x0.1g and quercetin, added EGCG, all 4 in the B-supps. Next: Methylene blue! LDN! Creatine?
SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

:white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK. EGCg again, eleuthero up to 3 and above, quercetin down cos of more rutin than suggested, next: theanine down to 2x0.1g? Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, rupatadine/Rupafin, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of July 26th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before EGCg 3x1x(50%, incl. L-theanine?)113mg, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 3x4.5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0-0.1g, myo-inositol 1x2x0.5g/1!-2d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 2!x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 3!x1x.5g (down in B-supps cos more rutin than suggested), resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (1-2+1-2+1)x0.6=3.0g (as much as B3). NO rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated July 26th.
“16:00” preparing pills
“17:30” A1 PF#1:0, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xC#1, 2Cr#1, PF#(2->)1, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#(3->)2, 0.3gGABA & .6glu & Qc#2 Hon#2 + 1%:0 Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc., A5-A8, according to pee pain and seizure-ishness
B=11/ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3:0 Rs#1 2xSAM-e EGCg (from July 26th again) 3xEleu (forward from C to B-batch, maybe slowly increasing, even to 4g/d!) + Fev/MSM#1 + Sily +0.2->0.1The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
C=20 with meal: 1xB2#2 1-2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 1-2xTMG#2 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 1-2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 1-2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#(4=)3, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), July 26th

Pf: A1:0+A2+A3, vB2: 1C,1D, 1A. vB3: 1-2C,1-2D.1A, vB5: C+D+A. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3-a6(-a8), Gi: C,D0,D Glutathione: 2-3x after meals. Hon:A2.A3. MgThreo: 2C,2D,2A. Oliv: C,D. (pine: C,D.) Qc: (B.)E.A1.A3. Ro:B,E Rs:B,E SINGLE: A1: 0xMgMal, luteolin. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (ubiquinone <150mg/d!, not ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): R-ALA, EGCg, 3xeleu, Ru, 2 Sa, Sily, Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. vit. D3/K2-MK7 saturdays. (A2:0Se)
TALLIES July 26th:
A1=7+1 Pf#0 Qc#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1-2xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2->1, Ga#1:0.3g, Hon#1, Q10, 0Se, 1-2TMG#1 (0 Rup). = 12-14.
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3->2, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2 etc.
B=11 ALA, EGCg, Eleu more, Fev/MSM#1, Qc#3:0, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#(4+) Gi#2 Ol#1 0Pin#1 2TMG#2 (Eleu in B) 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=11-13 vB2#3 1-2xB3#3 vB5#3 3xCr#3 Ga#(5+) Gi#3 Ol#2 0Pin#2 1-2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=5 Ell, Qc#(4->)3, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today:

a) Found a new PQQ supplier - purest and cheapest.
b) The questions up top.

Quality of life

Lessons in self-care: Made sure I didn’t talk/listen much in the evening to our friend, even tho it seems daft.
Reasons to be cheerful:
a) Getting Wood Pigeon Duey even nearer, to about 2 feet, but one small but quick move and he’s off.
b) Went in the street with binoculars to find who was calling out with such a high note - it was a chaffinch, who flew over to on to the lime in front of my window, but his colours were unclear and I only recognized him when he sang, still wasn’t sure if it was still the same bird. Then 5 minutes later (praps attracted by youtube chaffinch song/call) he came down right in front of my open window and I could well see the beautiful colouring even without binoculars, and heard both song and call alternately. On youtube I could see how wonderful it looks when he “calls” his song phrase, they way he “addresses” the world with head & eyes, not just with the song.
c) Minimal sun is cheering. Looked into it behind the clouds first thing until the clouds went away too much, got too bright. Always amazing how bright even a cloudy sky can be, and that ther’s very often a glimpse of blue sky in the grey, and also areas of thinner clouds, where it’s very bright too, sometimes almost too bright if you look too long, even without seeing any sun behind it at all.
d) The package of the methylene blue has had several parts stuck over, so that sending it inside Germany doesn’t let “anyone” think it’s for oral use.
e) Robin with both babies came along, one with an orange breast, the other still light brown.
Simplified: Put a big bit of paper in the supps box to remind me of the A2+A3-GABA. But with methylene blue I shouldn’t take too much!
Foggies: Dunno.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-07-28 Friday - Methylene Blue trial day #1: off to a bad start, video call with my sis was lovely, but threw me off of my supps & schedule

What … worked / went wrong … today?:

:white_check_mark: Sleep no more than 8h, early sun, air all day, screen curfew at 8.
(Not hot till about Aug 4th, so no insect bites.)
:x: Wide awake at around 3, histamine time

How was I today?:

Feeling 85%-ish (:white_check_mark:), energy today (:white_check_mark:), sleep Thursday night :white_check_mark:, sleep Friday night :x:, nausea 0(-10)% (:white_check_mark:), fog 10% (:white_check_mark:).

Today working mainly on … changed supp doses, table tennis, methylene blue dose and esp. effects

1) Early circadian rhythm for a) energy/sleep & b) Ache

7’ workout? TT was enough, video call put everything else out of the question.

1st meal a bit later, 2nd & 3rd early (slight intermittent fasting): :white_check_mark: (:white_check_mark:) (:x:),
whilst keeping food amount up :white_check_mark:(:white_check_mark:) (:white_check_mark:). IF = 12/12 (from ~8:30 to ~20:30) 2nd meal complicated: hazelnuts caused a congestion, so had to wait and was distracted from videoing, but ate some more after.
Bed early / up early (:white_check_mark:) :white_check_mark:, screen time down (:white_check_mark:) → Effective sleep (:x:).
“PEM” :x: vs. “Ache without exertion” = post postural Ache :x:. Starting to watch exactly where any Ache or pain is, up to now less widespread in one moment than I thought.

:ping_pong: 6-8 games most days since June 20th, often winning (but hardly talking, not counting/picking up balls), break of two weeks, July 22nd: 3:1, July 23rd: 0:1 → 3:1. July 24th: 0:1 → 3:1. July 25th 2:2, July 26th 4:0 (tough), later 20’ (even tougher), July 27th 0:1 → 5:1, easy, despite rain, better and easier when not concentrating. July 28th 3:1 I think, something stopped us.

1a) EXHAUSTIBILITY today: “82%-". Energy down from June 30th, after great increase starting 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile/envelope (= moderate, with "3h rest").

R rest: 100% exhaustion 20% of the time (3h),
VS very slow: 60% exhaustion 20% of the time (3h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 30% of the time (5h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 6h04, up 5x (1h36), all deep, cos I got up pretty soon when I wasn't, at 3, and tried to do something about it, cost me 1h though... 80%/2/5% (back exercises at 3:30) drymouth30% sore throat5-25% tongue15% (❌), everything else OK ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅. 1x FCS ✅

3rd meal time (:x:), screen time :white_check_mark:(), tired :white_check_mark:. GABA A2/+A3/
A3 A4:0 teeth0 p0 FA/CS#0 HWB#0 Sleep 22:33- 3rd # is LBU
23:57 10’ 80%/2/5% p0 st2 sip fw2’ fl4’ deep/ air/ A4/
drymouth30% sore throat5% tongue15% gel0 cold mouth & wrist rinse
1:28 8’ 80%/2/5% p0 st2 sip fw2’ fl0’ deep/ air/ A5/
drymouth30% sore throat5% tongue15% gel0 cold mouth & wrist rinse, before & after supp. Delayed getting up, not sure if that’s good for anything.
2:50 6’ 80%/2/5% p0 st2-1 sip fw2’ fl0’ deep/ air/ A5/
drymouth30% sore throat5% tongue15% gel? cold mouth & wrist rinse, before & after supp iS STIFFNESS JUST TENDONITIS? GULP: PLACE PILL AT BACK! DON’T NEED WATER FOR MB.
(3:01 17’ FCS#1 fw5’ st1 air//-) HEARD A SWIFT? AIR MORE?
3:30 BACK EXERCISES COS TENSE / HEART THUMPING AND AWAKE. IS THAT METHYLENE BLUE? OR FAIRLY NORMAL AFTER COLD SHOWER? WHEN & WHY DO COLD SHOWERS SOMETIMES GO WRONG? A6/ STOMACH ACHE FROM CALENDULA ESSENCE: DON’T TAKE AT NIGHT! 6 - 45’ LAST! web +10’ -4:25
-6:15 6’ 80%/2/5% p0 st2-1 sip deep/ air/ drymouth30% sore throat25% due to airing 2h tongue15%. OK, SORE THROAT, DESPITE IT BEING FAIRLY WARM OUTSIDE (& HUMID). REMEMBER TO KEEP DRAUGHT DOWN IN THE MORNINGS. B/ + MB/ 2/3 of a drop.
1x FCS :white_check_mark: (at 3)
Sum: 6h15+1h25-(10+8+6+17+55=)96’ = 7h40-1h36 = 6h04, up 5x (1h36), all deep, cos I got up pretty soon when I wasn’t. 80%/2/5% (back exercises at 3:30) drymouth30% sore throat5-25% tongue15%.

1b) ACTIVITIESACHE = PEM (Post exertional malaise): TT 3:(1) (moving 20%, talking 10%, counting 0%) ➔ 80%/3 :white_check_mark:, gardening/moving ➔ 80%/2 :white_check_mark:, talking with sister ➔ 80%/2 :white_check_mark:. White lips50% (:x:)
1c) REST/STIFFNESS ➔ ACHE At night st3 → 80%/2-1 :white_check_mark: Getting up - for how long: st3 for a few minutes → 80%/1 :white_check_mark:,

2) Histamine/MCAS symptoms

Nauseous sinus burning headache: Nope! :white_check_mark:. But did drink a bit more than the night before.
Tongue burning: A little :white_check_mark:. (Counting it as 15% most of the time, cos the left side of my tongue is hurting more, that’s a sign.)
Excitement :white_check_mark:: The video call wasn’t stressful by itself, cos we were despite serious topics laughing our heads off all the time. But my attention got so caught up in it that I forgot some self-care. That may count as some moderate “excitement”, but not too much, and well worth it.

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. ENERGY DOWN to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, energy increased June 20th to 30th (>20%), and usually still quite higher after (16-20%), further symptoms down too. Increasing a little from July 25th.. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken theirs seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before. Stopped antihistamine I think in April, cos of zombification, dry mouth and I think more, and sleep still good from everything else. Once for dentist June 23rd wouldn’t have been necessary.

3) Docs:

Last DOC update July 26th: Phoned urologists/oncologists, the man at the reception was very friendly and asked helpful interested questions, I'm not used to that at all, and I got an appt. for next Monday, 31st, already, praps cos of the summer holidays. The urologist I'm assigned to has 3 reviews that sound promising, and "looks OK", young, interested and caring, like the reviews say. July 20th (added 25th): Got my onco labs at last: only eosinophilia visible to me (put the research on the 25th), GP has no idea, which warrants getting a "2nd" opinion, in absence of a 1st. July 13th: Unsuccessfully asked for my onco lab results. June 24th/25th: Teeth problems resolved for the time being. Waiting for onco report, “2nd” opinion or not? (“B symptoms” = night sweats, appetite, weight starting Feb/March resolved in June.) Click for details…
Click for details: Update July 26th: Got a cancer appt. on 31st. June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

4) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

Annoyances
:one: Tea tree oil on onychia :white_check_mark: and fungus on my right foot. :white_check_mark: Improvement not as quick as usual. But improving.
:two: Beau’s lines on thumbnails: Reduce washing :white_check_mark:, olive oil soap :white_check_mark:, moisturize :white_check_mark:/:x:. 7/8mm healthier thumbnail now. Increasing.
:three: Slight gum inflammation from stuck food (:white_check_mark:): free :white_check_mark:. -
Calendula essence for gum as well as CoV, praps umckaloabo too! :white_check_mark: Improving.

1) Symptoms well under control: GI (via elimination), pee (via GABA: ENOUGH ✅), LOCAL PAINS (exercises, back: via using wall/door for support) ✅. Details...

except GI: stools loose0% :white_check_mark:, appetite :white_check_mark:, pee pain: 0p1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN / WIND ✅ (layering off and on all the time), THIRST (✅), dry mouth (day and) at night ❌. Last SEIZURES: July 25th seizure-ish 3-4x, so GABA up. July 17th: 18:30 19:55 after thunderstorm. July 7th seizure-ish 4x... Jun 23rd 4x, Jun 16th, Jun 6th 2x ❌, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: July 23rd & 16th, May 31st (all 3 cos distracted), before that Apr 4th ✅. JAW solved for the time being since June 23rd. ✅

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Dry mouth (day and) at night has always been a problem, a stronger added real thirst making me drink a fourth litre of almond milk a day came up in April. Stopping the antihistamine completely has praps helped stop it become painfully sticky at night, so I don’t use the gel much any more.
Last focal seizures: July 25th: seizure-ish 3-4x. July 17th: 18:30 19:55 after thunderstorm. July 7th seizur-ish 4x. Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Generally, mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. July 23rd cos distracted by the Kami stress. July 16th I was concentrating on testing if hazelnuts increase my nicotinic acid flush with my 3rd meal, and disregarded a slight throat pressure, which went totally wrong, was the last straw for an esophagus block, so had to get it out, lots came out, incl. supps, and needed to wait quite a bit afterwards. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more… - June 23rd: OK, the fillings were enough, solved for the time being.

Methylene blue trial, day #1

Yes, my energy is up anyway, but I’m curious what it’ll do.
I put 1 drop (1% solution) in half a glass of water (cos I don’t tolerate water well, stomach-wise). 1% is 1g/100ml, but still doesn’t tell me how much is in a drop.
I was expecting GI problems, so I took a sip on an empty stomach. After I had no problems half an hour later another 2 sips, together that was about 40% of the glass, so 40% of the drop. However much is in one drop… That’s hopefully under the stickers on the box of the flask.
First problem: Very slight energy, but jittery (like when I took taurine).
2nd problem: Slight acid belching while eating muesli.
3rd problem: Slight stomach ache.
Cognitive enhancement: Occasional very slick table tennis points, playing closely over the metal net, but also an unexpected dulling, not even able to follow my mate’s counting.
Energy/Ache: No help, it’s sort of vibrating my cells, instead of increasing its stamina/sustainability.
9:30-10:20 During and after table tennis an Ache, playing wasn’t fun like it was the last days, I gladly agreed to ending after (only) 4 games.
10:30 light heartburn. Actually the heartburn might even be the water.
13:30 heartburn only very light in between.
19:30 Quite a bit of energy, but not at ease with it, and hot’n’sweaty altho it’s not hot, ‘thermostat broken’.
3:00 wide awake - and insomnia is one of the side effects.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. July 25th (updated almost everything too): Increased eleuthero, decrease theanine to 2x0.1g and quercetin, added EGCG, all 4 in the B-supps. Next: Methylene blue! LDN! Creatine?
SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, xtwist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK. EGCg again, eleuthero up to 3 and above, quercetin down cos of more rutin than suggested, next: theanine down to 2x0.1g? Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, rupatadine/Rupafin, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of July 26th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before EGCg 3x1x(50%, incl. L-theanine?)113mg, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 3x4.5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0-0.1g, myo-inositol 1x2x0.5g/1!-2d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 2!x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 3!x1x.5g (down in B-supps cos more rutin than suggested), resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (1-2+1-2+1)x0.6=3.0g (as much as B3). NO rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated July 26th.
“16:00” preparing pills
“17:30” A1 PF#1:0, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xC#1, 2Cr#1, PF#(2->)1, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#(3->)2, 0.3gGABA & .6glu & Qc#2 Hon#2 + 1%:0 Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc., A5-A8, according to pee pain and seizure-ishness
B=11/ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3:0 Rs#1 2xSAM-e EGCg (from July 26th again) 3xEleu (forward from C to B-batch, maybe slowly increasing, even to 4g/d!) + Fev/MSM#1 + Sily +0.2->0.1The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
C=20 with meal: 1xB2#2 1-2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 1-2xTMG#2 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 1-2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 1-2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#(4=)3, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), July 26th

Pf: A1:0+A2+A3, vB2: 1C,1D, 1A. vB3: 1-2C,1-2D.1A, vB5: C+D+A. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3-a6(-a8), Gi: C,D0,D Glutathione: 2-3x after meals. Hon:A2.A3. MgThreo: 2C,2D,2A. Oliv: C,D. (pine: C,D.) Qc: (B.)E.A1.A3. Ro:B,E Rs:B,E SINGLE: A1: 0xMgMal, luteolin. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (ubiquinone <150mg/d!, not ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): R-ALA, EGCg, 3xeleu, Ru, 2 Sa, Sily, Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. vit. D3/K2-MK7 saturdays. (A2:0Se)
TALLIES July 26th:
A1=7+1 Pf#0 Qc#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1-2xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2->1, Ga#1:0.3g, Hon#1, Q10, 0Se, 1-2TMG#1 (0 Rup). = 12-14.
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3->2, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2 etc.
B=11 ALA, EGCg, Eleu more, Fev/MSM#1, Qc#3:0, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#(4+) Gi#2 Ol#1 0Pin#1 2TMG#2 (Eleu in B) 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=11-13 vB2#3 1-2xB3#3 vB5#3 3xCr#3 Ga#(5+) Gi#3 Ol#2 0Pin#2 1-2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=5 Ell, Qc#(4->)3, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today:

Had a quick search if there was something else to night shift, cos I did have some screen time tonight and it’d be good if even that had green light reduced. Someone recommended the mac’s “accessibility” function and turn that into “greyscale”. That’s silly tho, because it’s black and white, and the white still has blue and green light in it. In newer versions there’s a color filter, that would be ideal.

Quality of life

Lessons in self-care: Video call and developed lots of ideas as precepts or questions at night while wide awake.
a) Oh dear, video talking to my sister after 6 weeks was so great that we did it for 2h, that’s only possible with her. But we touched upon so many issues deeply that it was well worth it and it wasn’t the physical backlash that was a problem, but the mental one, that I needed lots of “revenge procrastination” or me-time that was anti-self-care. So I left out my D-supps, hazelnuts blocking caused a big break in my 2nd meal, then to “procrastinate” i worked thru lots of health newsletters etc., had to come down, but wife similar, so had a late sit in garden.
b) Is stiffness just tendonitis? Need to watch where exactly the stiffness and ache are to maybe decrease their length.
c) For gulping at night I need to remember to place the pill at the back of the mouth to save liquid.
d) ! don’t need water for the methylene blue at all if I can increase to whole drops, as it seems.
e) I don’t think I can air more at night, because the temperature changes will be too much as well as the noise outside.
f) I did my forgotten back exercises at night, cos I was awake and slightly tense with heart thumping anyway. IS THAT METHYLENE BLUE? OR FAIRLY NORMAL AFTER COLD SHOWER?
g) When & why do cold showers sometimes go wrong? I’d think when I’m too hypered and then it beams me up instead of down. Would warm showers then work?
h) I got stomach ache from the calendula essence: shouldn’t take that at night, if possible, and it was, cos I’d need to drink more almond milk to calm the acid again!
i) Remember(-ed) to keep the draught down in the mornings by shutting my door when I open the window to greet the first sun whilst taking my B-supps.

Reasons to be cheerful: Mainly birds, but also plants and video call
a) Duey’s call (2-3x) is: ||: hígh low médium-low, medium :||
b) Chaffinch’s 2nd call version is ||: high low low (low) :||. Songs & call a lot louder than the smaller birds.
c) Chaffinch again in our garden, beautiful. A few weeks ago I was wondering why he never comes to us, but today, all around. Now I realize I hadn’t been recognizing him.
d) Trees wonderful.
e) Wonderful to speak with my sis deeply, started off with our garden wild animals.
f) At night I seem to have heard a swift. I’ve always heard strange bird type noises, but it never occurred to me that they actually fly all night.
g) Jays here again for a short time early Saturday.
h) Pigeons’ calls are all accented like Dueys, but faster/slower, higher/lower, straighter/slides. So the one I described a day or two ago I’ll call Slider, and this morning I heard “Quickie” and “Stresser” (well he does sound a bit like a stressor too, but he so really implores to be heard).
i) Duey has two black stripes under the white wing strip, not sure if he’s holding his wings differently. But looking at the pics a few days ago at least one of the black stripes is there, now I’ll look at others to see them.
j) I had to coax Duey to take food near me. For the first time I felt he wanted to be sure that it’s OK, wanted me to talk with him. Scratching my ear I did very slowly today so he isn’t afraid. Waving an insect away irritated, I had to explain and coax back again. But I’m wondering if it’s Duey or a Triey, cos the longer white stripe now appears to be the 3rd from bottom - ah, but the short white stripe I wasn’t counting.
m) So many reasons that I had to take out some things to fit the whole text in… :grin:
Simplified: I’m thinking about and talking to a neighbour how I can simplify my cellar entrance, too much stuff to move around at the moment. Some of it is “luxury”, to see how I can use it best.

Foggies: Dunno.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-07-29 Saturday - methylene blue trial, day #2 (2/3 drop): nothing!

What … worked / went wrong … today?:

:white_check_mark: Sleep no more than 8h, early sun, air all day,
:x: screen curfew at 8 - watched 35’ of a nature programme with my wife.
(Not hot till about Aug 4th, so no insect bites.)
:x: Methylene blue no help, but also :white_check_mark: no problems? - Likely again that it made me be wide awake after having had to get up at 3, thoughts going thru my mind.

How was I today?:

Feeling 85%-ish (:white_check_mark:), energy today (:white_check_mark:), sleep Friday night (:x:), sleep Saturday night :white_check_mark:, nausea 0-20% :white_check_mark:, fog 10% (:white_check_mark:).

Today working mainly on … changed supp amounts, table tennis, methylene blue, watching where exactly in the body I sense stiffness (temporary “tendonitis”?) and Ache

1) Early circadian rhythm for a) energy/sleep & b) Ache

7’ workout?: No, but carried one pavement slab 20 yards

1st meal a bit later, 2nd & 3rd early (slight intermittent fasting): :white_check_mark:(:x:)(:white_check_mark:),
whilst keeping food amount up :white_check_mark::white_check_mark::white_check_mark:. IF = 12/12 (from 8:30 to 20:30)
Bed early / up early :white_check_mark::white_check_mark:, screen time down (:x:) (watched 35’ of a video from 20:45 on) → Effective sleep :white_check_mark:.
“PEM” :x: vs. “Ache without exertion” = post postural Ache :x:.

:ping_pong: 6-8 games most days since June 20th, often winning (but hardly talking, not counting/picking up balls), break of two weeks, July 22nd: 3:1, July 23rd: 0:1 → 3:1. July 24th: 0:1 → 3:1. July 25th 2:2, July 26th 4:0 (tough), later 20’ (even tougher), July 27th 0:1 → 5:1, easy, despite rain, better and easier when not concentrating.
July 28th 3:(1) I think, something stopped us. July 29th 3:(1), shower stopped us. (The lost games my mate cheated as often by wetting the ball to have a chance.)

1a) EXHAUSTIBILITY today: “82%-". Energy down from June 30th, after great increase starting 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile/envelope (= moderate, with "3h rest").

R rest: 100% exhaustion 20% of the time (3h),
VS very slow: 60% exhaustion 20% of the time (3h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 30% of the time (5h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 8h22, up 4x (28'), all deep. 80-70%/2/5% drymouth30-50% sore throat10% tongue10% nausea0-20% stomach0-30% sinuses0-30-20% headache0-30-20% stools loose0-20% "zombie"0-10% ✅, everything else OK ➔ Feeling 80-70% well, Ache 2 of 7 ✅-❌, getting up: 790%/2 ❌. 1x FCS ✅. Hard to get up for toilet at night, but also hard to get back to sleep once thoughts and overheating had got hold of me, this time NSDR after the FCS worked well, despite more methylene blue. Nausea sinus headache caused by thirst.

3rd meal time :white_check_mark:/:x:, screen time :white_check_mark:/:x:, tired :white_check_mark:/:x:. GABA A2?+A3?
A3 A4:0 teeth0 p0 FA/CS#0 HWB#0 Sleep 21:50- 3rd # is LBU
23.42 4 80%/2/5% p1 st3 sip fw2’ fl0’ deep/ air0 A4/
drymouth30% sore throat10% tongue20% stools loose10%.
1:12 9’ 80%/2/5% p0 st3 sip fw2’ fl0’ deep/ air/ A5/
drymouth30% sore throat10% tongue10% HARD TO GET UP!
3:27 6’ 70%/2/5% p0 st3 sip fw2’ fl0’ deep/ air/ A6/
drymouth50% sore throat10% tongue10% HARD TO GET UP! AND TO BACK!
nausea10% stomach5% sinuses20% headache20% stools loose0% zombie10% gel/
3:52 9’ thoughts & overheating → FCS#1
60%/2/5% p0 st1 sip fw2’ fl0’ deep/ air0 A7 with 3 sips
drymouth30% sore throat10% tongue10%
nausea20% stomach30% sinuses30% headache30% → NSDR (heard 10’ of 1h)
-6:40 70%/2/5% p0 st1 sip fw2’ fl0’ deep/ air/ B
drymouth50% sore throat10% tongue10%
ausea20% stomach10% sinuses20% headache20%
1x FCS :white_check_mark:
Sum: 2h10+6h40-(4+9+6+9=)28’ = 8h50-28’ = 8h22, up 4x (28’), all deep. 80-70%/2/5% drymouth30-50% sore throat10% tongue10% nausea0-20% stomach0-30% sinuses0-30-20% headache0-30-20% stools loose0-20% "zombie"0-10%. Hard to get up for toilet at night, but also hard to get back to sleep once thoughts and overheating had got hold of me, this time NSDR after the FCS worked well.

1b) ACTIVITIESACHE = PEM (Post exertional malaise): TT 3:(1) (moving 20%, talking 10%, counting 0%) ➔ 80%/3 :white_check_mark:, gardening/moving ➔ 80%/2 :white_check_mark:, hardly talking, but a 30’ walk went surprisingly well, only local pains in right ankle, left neck and nausea, so something I’ll be repeating ➔ 80%/2 :white_check_mark:. White lips50% (:x:)
1c) REST/STIFFNESS ➔ ACHE At night st3-1 → 80-70%/3 :x:, getting up - st2 for 30’(?) → 80%/2 :white_check_mark: (later stiff from PEM-Ache, after a little garden work :x:)
Where stiffness, where Ache? During table tennis both was mainly in my lower back, so I twisted in the breaks more, to try to reduce backlashes.

2) Histamine/MCAS symptoms

Nauseous sinus burning headache: Nope. :white_check_mark:.
Tongue burning: A little (:white_check_mark:).
Excitement :white_check_mark: - most in the nature documentary in the evening, esp. :x: for 5’ in one ‘dangerous’ scene more at the beginning.

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. ENERGY DOWN to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, energy increased June 20th to 30th (>20%), and usually still quite higher after (16-20%), further symptoms down too. Increasing a little from July 25th.. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken theirs seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before. Stopped antihistamine I think in April, cos of zombification, dry mouth and I think more, and sleep still good from everything else. Once for dentist June 23rd wouldn’t have been necessary.

3) Docs:

Last DOC update July 26th: Phoned urologists/oncologists, the man at the reception was very friendly and asked helpful interested questions, I'm not used to that at all, and I got an appt. for next Monday, 31st, already, praps cos of the summer holidays. The urologist I'm assigned to has 3 reviews that sound promising, and "looks OK", young, interested and caring, like the reviews say. July 20th (added 25th): Got my onco labs at last: only eosinophilia visible to me (put the research on the 25th), GP has no idea, which warrants getting a "2nd" opinion, in absence of a 1st. July 13th: Unsuccessfully asked for my onco lab results. June 24th/25th: Teeth problems resolved for the time being. Waiting for onco report, “2nd” opinion or not? (“B symptoms” = night sweats, appetite, weight starting Feb/March resolved in June.) Click for details…
Click for details: Update July 26th: Got a cancer appt. on 31st. June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

4) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

Annoyances
:one: Tea tree oil on onychia :white_check_mark: and fungus on my right foot. :white_check_mark: Going pretty well now :white_check_mark:.
:two: Beau’s lines on thumbnails: Reduce washing :white_check_mark:, olive oil soap :white_check_mark:, moisturize :white_check_mark:/:x:. 7/8mm healthier thumbnail now. Improving.
:three: Slight gum inflammation from stuck food (:white_check_mark:): free :white_check_mark:.
Calendula essence for gum as well as CoV, praps umckaloabo too! :white_check_mark:. Improved, only a slight pain when I go in with an interstitial toothbrush.

1) Symptoms well under control: GI (via elimination), pee (via GABA: ENOUGH? ✅), LOCAL PAINS (exercises, back: via using wall/door for support) ✅. Details...

except GI: stools loose0% :white_check_mark:, appetite :white_check_mark:, pee pain: 0p1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN / WIND ✅ (layering off and on all the time), THIRST (✅), dry mouth (day and) at night ❌. Last SEIZURES: July 25th seizure-ish 3-4x, so GABA up. July 17th: 18:30 19:55 after thunderstorm. July 7th seizure-ish 4x... Jun 23rd 4x, Jun 16th, Jun 6th 2x ❌, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: July 23rd & 16th, May 31st (all 3 cos distracted), before that Apr 4th ✅. JAW solved for the time being since June 23rd. ✅

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Dry mouth (day and) at night has always been a problem, a stronger added real thirst making me drink a fourth litre of almond milk a day came up in April. Stopping the antihistamine completely has praps helped stop it become painfully sticky at night, so I don’t use the gel much any more.
Last focal seizures: July 25th: seizure-ish 3-4x. July 17th: 18:30 19:55 after thunderstorm. July 7th seizur-ish 4x. Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Generally, mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. July 23rd cos distracted by the Kami stress. July 16th I was concentrating on testing if hazelnuts increase my nicotinic acid flush with my 3rd meal, and disregarded a slight throat pressure, which went totally wrong, was the last straw for an esophagus block, so had to get it out, lots came out, incl. supps, and needed to wait quite a bit afterwards. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more… - June 23rd: OK, the fillings were enough, solved for the time being.

Methylene blue trial, day #2 2/3 drop:

No heartburn today.´from the rest of the drop/glass, no jitteriness, no acid belching, no stomach ache, couldn’t detect any cognitive effects, but wouldn’t deny a little energy bonus. But likely again MB that made me be wide awake after having had to get up at 3, thoughts going thru my mind. So insomnia is the side effect I have to keep an eye on.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. July 25th (updated almost everything too): Increased eleuthero, decrease theanine to 2x0.1g and quercetin, added EGCG, all 4 in the B-supps. Next: Methylene blue! LDN! Creatine?
SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK. EGCg again, eleuthero up to 3 and above, quercetin down cos of more rutin than suggested, next: theanine down to 2x0.1g? Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, rupatadine/Rupafin, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of July 26th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before EGCg 3x1x(50%, incl. L-theanine?)113mg, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 3x4.5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0-0.1g, myo-inositol 1x2x0.5g/1!-2d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 2!x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 3!x1x.5g (down in B-supps cos more rutin than suggested), resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (1-2+1-2+1)x0.6=3.0g (as much as B3). NO rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated July 26th.
“16:00” preparing pills
“17:30” A1 PF#1:0, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xC#1, 2Cr#1, PF#(2->)1, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#(3->)2, 0.3gGABA & .6glu & Qc#2 Hon#2 + 1%:0 Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc., A5-A8, according to pee pain and seizure-ishness
B=11/ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3:0 Rs#1 2xSAM-e EGCg (from July 26th again) 3xEleu (forward from C to B-batch, maybe slowly increasing, even to 4g/d!) + Fev/MSM#1 + Sily +0.2->0.1The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
C=20 with meal: 1xB2#2 1-2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 1-2xTMG#2 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 1-2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 1-2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#(4=)3, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), July 26th

Pf: A1:0+A2+A3, vB2: 1C,1D, 1A. vB3: 1-2C,1-2D.1A, vB5: C+D+A. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3-a6(-a8), Gi: C,D0,D Glutathione: 2-3x after meals. Hon:A2.A3. MgThreo: 2C,2D,2A. Oliv: C,D. (pine: C,D.) Qc: (B.)E.A1.A3. Ro:B,E Rs:B,E SINGLE: A1: 0xMgMal, luteolin. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (ubiquinone <150mg/d!, not ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): R-ALA, EGCg, 3xeleu, Ru, 2 Sa, Sily, Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. vit. D3/K2-MK7 saturdays. (A2:0Se)
TALLIES July 26th:
A1=7+1 Pf#0 Qc#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1-2xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2->1, Ga#1:0.3g, Hon#1, Q10, 0Se, 1-2TMG#1 (0 Rup). = 12-14.
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3->2, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2 etc.
B=11 ALA, EGCg, Eleu more, Fev/MSM#1, Qc#3:0, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#(4+) Gi#2 Ol#1 0Pin#1 2TMG#2 (Eleu in B) 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=11-13 vB2#3 1-2xB3#3 vB5#3 3xCr#3 Ga#(5+) Gi#3 Ol#2 0Pin#2 1-2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=5 Ell, Qc#(4->)3, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today:

Methylene Blue: Dosage? (didn’t fit in yesterday’s entry)

Drops can easily come out of a dropper in different sizes Applikationshilfen: Wenn Tropfen nicht gleich Tropfen ist | PTA-Forum
This converter assumes 1 ml is 20 drops, so 1 drop is 0.05ml = 5%, a twentieth of a ml. A 1% solution means 1g/100ml OR 0.01g/1ml OR 1000mg/100ml OR 10mg/1ml. So 1 drop is 5% of that, so 5% of 10mg, which is 0.5mg. Sherr says take 1mg/kg body weight, let’s say roughly 80kg, so roughly 80mg. Now I’m getting flustered. 80mg is 8ml, which is 8x20 = 160 drops?
Well, on a table it does for ME/CFS actually similarly say 0.5mg/kg, so half that, and comes up with 80 drops. So starting with half a drop is on the very safe side, and apparently necessary! That page also mentions strange tastes and smell of body and urine as a marker to see when I’m over the sweet spot. I think I’ll increase by half a drop a day. Or one if my confidence increases.
Looked up John Lieurance about this: The studies with cytokine storm after taking with SSRIs used doses of 40-180-280mg/d. Standard is 0.5-4mg/kg. - That confirms the above a bit better.

Quality of life

Lessons in self-care: I’m procrastinating about paperwork, sort of OK, but it came up at night, so I’d best start and get it over with.
Reasons to be cheerful:
a) New? pigeon call: ||: hígh downslide médium-low-slide, high :|| Much bigger black stripe under the white stripe than I’ve seen in Duey up to now, but the white neck area is similar, so not sure if this isn’t him. Sitting to the left of our garden.
b) After a rainburst I had a close look and found a few new angles and things to do.
c) After Duey chases someone else, he often just 2 repetitions, not 3.
d) I spose I misheard his “tune” first, whilst listening more closely. Still haven’t quite got it right.
e) 11:00 Chaffinch near again.
f) Praps the ?females white neck area has 4 stripes, and the green metallic one above has 6, and that seems more than Duey’s.
g) pigeon to the right ||: hígh low deep-low, middle :||
h) pigeon to the left, praps Duey ||: hígh downslide deep-low, middle :||
i) Pigeon with shorter white neck area, praps less lines, more a rhombus with the shorter long side towards the head, and not a triangle like Duey has: female? His wife? Black lines much thinner.
m) Trying to find the source, probably bird, of a knocking noise recently in the direction of our lilac tree, I heard something like a gently jay noise. A few minutes later there was a jay louder in neighbour’s cherry. I’m wondering if the knocking is trying to get or increase a hole in a tree like a woodpecker.
n) Jackdaws have increased (via migration too) to 400-500 now, what a chatter!
o) Heard the well-beknown “rain call” of a chaffinch, but then at the same time also the other call I’d been wondering and then found out what it is, so there’s two, one ‘conventional’, one ‘modern’.
Simplified:
I’m now using two garden chairs to put my laptop and the lead on, much easier, and also allows to put the big sun&rain&wind shade on it too.
Foggies: No.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-07-30 Sunday - Methylene blue trial, day #3, 1 drop

What … worked / went wrong … today?:

:white_check_mark: Sleep no more than 8h (well a bit longer :x:, but I just couldn’t make it earlier), early sun, Monday: fairly (:white_check_mark:), air all day, screen curfew at 8.
:x: Methylene blue no help, but also :white_check_mark: “no” problems, except :x: wide awake at 3, no this time 4.
(Not hot till about Aug 4th, so no insect bites.)

How was I today?:

Feeling 85%-ish (:white_check_mark:), energy today (:white_check_mark:), sleep Saturday night (:white_check_mark:), sleep Sunday night (:white_check_mark:) (using FCS + NSDR, maybe slept too long), nausea 0-20% (:x:), fog 10% (:white_check_mark:).

Today working mainly on … watching changed supp effects, esp. methylene blue, watching where exactly in the body I sense stiffness (temporary “tendonitis”?) and Ache

1) Early circadian rhythm for a) energy/sleep & b) Ache

7’ workout? No, but re-planted 10 small (20cm) plants, which was a strain at the edge of my capacity.

1st meal a bit later, 2nd & 3rd early (slight intermittent fasting): :white_check_mark: (:white_check_mark:) (:white_check_mark:),
whilst keeping food amount up :white_check_mark::white_check_mark::white_check_mark:. IF = 13/11 (from 9:45 to ?~20:30)
Bed early / up early (:white_check_mark:)/(:x:) (:white_check_mark:)/(:x:), screen time down (:white_check_mark:)/(:x:) → Effective sleep (:white_check_mark:)/(:x:).
“PEM” :x: vs. “Ache without exertion” = post postural Ache :x:.
20’ moving 10 small plants in the garden lead to tendonitis-stiffness in all joints and a heaviness.

:ping_pong: 6-8 games most days since June 20th, often winning (but hardly talking, not counting/picking up balls), break of two weeks, July 22nd: 3:1, July 23rd: 0:1 → 3:1. July 24th: 0:1 → 3:1. July 25th 2:2, July 26th 4:0 (tough), later 20’ (even tougher), July 27th 0:1 → 5:1, easy, despite rain, better and easier when not concentrating, July 28th 3:(1) I think, something stopped us. July 29th 3:(1), shower stopped us. (The lost games my mate cheated as often by wetting the ball to have a chance.) July 30th: 4:0, but tough.

1a) EXHAUSTIBILITY today: “82%-". Energy down from June 30th, after great increase starting 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile/envelope (= moderate, with "3h rest").

R rest: 100% exhaustion 20% of the time (3h),
VS very slow: 60% exhaustion 20% of the time (3h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 30% of the time (5h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 8h31, up 5x (32'), all deep, only a few minutes of NSDR was enough ✅. 80%/2/5% drymouth30% sore throat15-20% tongue20% itch5%? dryhands10%? stomach5% sinuses0-10%. (✅), everything else OK ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅. 1x FCS ✅ at 4:35, but very successful, maybe 2h of sleep till slightly awake, then could carry on till almost 3h.

3rd meal time (:white_check_mark:), screen time :white_check_mark:, tired :white_check_mark:. GABA A2/+A3/
A3 A4:0 teeth0 p0 FA/CS#0 HWB#0 Sleep 22:20- 3rd # is LBU
23:55 5’ 80%/2/5% p0 st2 sip fw2’ fl0’ deep/ air/ A4/
drymouth30% sore throat30% tongue20% nausea5% stomach10% sinuses10% stool loose0% zombie5% eeth0
1:15 5’ 80%/2/5% p0 st2 sip fw2’ fl0’ deep/ air/ A5/
drymouth30% sore throat20% tongue20% nausea0% stomach5%
2:05 5’ 80%/2/5% p0 st2 sip fw2’ fl0’ deep/ air/ A6/
drymouth30% sore throat15% tongue20% stomach5%
4:23 5’ 80%/2/5% p0 st2 sip fw2’ fl0’ deep/ air/ A7/
drymouth30% sore throat15% tongue20% stomach5%
4:35 12’ FCS#1 NSDR
-7:23 (woke up praps an hour earlier, but felt very sleepy) sinuses10% nausea10%
80%/2/5% p0 st2 sip fw2’ fl0’ deep/ air/ A7/
drymouth30% sore throat15% tongue20% stomach5%
1x FCS :white_check_mark: at 4:35
Sum: 7h23+1h40-(5+5+5+5+12=)32’ = 9h03-32’ = 8h31, up 5x (32’), all deep. 80%/2/5% drymouth30% sore throat15-20% tongue20% itch?5% dryhands?10% stomach5% sinuses0-10%. 1x FCS :white_check_mark: at 4:35.

1b) ACTIVITIESACHE = PEM (Post exertional malaise): TT 4:0 (moving 30%, talking 10%, counting 0%), gardening/moving ➔ 80%/4 :x:, talking ➔ 80%/3 :x:. White lips40% ((:x:))
1c) REST/STIFFNESS ➔ ACHE At night st2 → 80%/2 :white_check_mark:, Getting up st2 → 80%/2 (:white_check_mark:, Later on Monday morning more from uro exam :x:.
Where stiffness, where Ache? Both in all joints incl. fingers. Heaviness, so I have less control of my movements, which makes ‘real’ light garden work hard when I have to go between plants and try not to hurt them, which I today did not manage, cos I try to go easy on them but then often stumble. But that way a few flowers find their way to our kitchen tables.

2) Histamine/MCAS symptoms

Nauseous sinus burning headache: A bit most of the day :x:.
Tongue burning: A bit (:x:).
Insect bite itch: Didn’t think oils necessary :x:, happened in the garden again.
To decrease: lavender spray :white_check_mark: was enough.
Excitement :x: - the sorrow about Kami and our helplessness came up again via my wife in the evening. Nervous about the uro appt., cos it was gonna be a strain. (How much I didn’t realize…)

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. ENERGY DOWN to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, energy increased June 20th to 30th (>20%), and usually still quite higher after (16-20%), further symptoms down too. Increasing a little from July 25th.. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken theirs seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before. Stopped antihistamine I think in April, cos of zombification, dry mouth and I think more, and sleep still good from everything else. Once for dentist June 23rd wouldn’t have been necessary.

3) Docs:

Last DOC update July 26th: Phoned urologists/oncologists, the man at the reception was very friendly and asked helpful interested questions, I'm not used to that at all, and I got an appt. for next Monday, 31st, already, praps cos of the summer holidays. The urologist I'm assigned to has 3 reviews that sound promising, and "looks OK", young, interested and caring, like the reviews say. July 20th (added 25th): Got my onco labs at last: only eosinophilia visible to me (put the research on the 25th), GP has no idea, which warrants getting a "2nd" opinion, in absence of a 1st. July 13th: Unsuccessfully asked for my onco lab results. June 24th/25th: Teeth problems resolved for the time being. Waiting for onco report, “2nd” opinion or not? (“B symptoms” = night sweats, appetite, weight starting Feb/March resolved in June.) Click for details…
Click for details: Update July 26th: Got a cancer appt. on 31st. June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

4) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

Annoyances
:one: Tea tree oil on onychia :white_check_mark: and fungus on my right foot. :white_check_mark: Improving.
:two: Beau’s lines on thumbnails: Reduce washing :white_check_mark:, olive oil soap :white_check_mark:, moisturize :x:. 7/8mm healthier thumbnail now. I feel it’s better not to cut my thumbnails much.
:three: Slight gum inflammation from stuck food (:white_check_mark:): free :white_check_mark:.
Calendula essence for gum as well as CoV, praps umckaloabo too! :white_check_mark:
Actually my neck is still strained 10 days later, cos I stopped massager too early. Makes itself felt strongest in the occasional table tennis movement, but also general contributing to stiffness. :x:

1) Symptoms well under control: GI (via elimination), pee (via GABA: ENOUGH ✅), LOCAL PAINS (exercises, back: via using wall/door for support) ✅. Details...

except GI: stools loose0% :white_check_mark:, appetite :white_check_mark:, pee pain: 0p1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN / WIND ✅ (layering off and on all the time), I'm not mentioning RAIN, altho my wife thinks it's bad for me, but it's not nowadays, used to it now, THIRST (✅), dry mouth (day and) at night ❌. Last SEIZURES: July 25th seizure-ish 3-4x, so GABA up. July 17th: 18:30 19:55 after thunderstorm. July 7th seizure-ish 4x... Jun 23rd 4x, Jun 16th, Jun 6th 2x ❌, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: July 23rd & 16th, May 31st (all 3 cos distracted), before that Apr 4th ✅. JAW solved for the time being since June 23rd. ✅

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Dry mouth (day and) at night has always been a problem, a stronger added real thirst making me drink a fourth litre of almond milk a day came up in April. Stopping the antihistamine completely has praps helped stop it become painfully sticky at night, so I don’t use the gel much any more.
Last focal seizures: July 25th: seizure-ish 3-4x. July 17th: 18:30 19:55 after thunderstorm. July 7th seizur-ish 4x. Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Generally, mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. July 23rd cos distracted by the Kami stress. July 16th I was concentrating on testing if hazelnuts increase my nicotinic acid flush with my 3rd meal, and disregarded a slight throat pressure, which went totally wrong, was the last straw for an esophagus block, so had to get it out, lots came out, incl. supps, and needed to wait quite a bit afterwards. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more… - June 23rd: OK, the fillings were enough, solved for the time being.

Methylene blue trial, day #3, 1 dr.: No help, no harm in the daytime… awake at night again, this time later, at 4:30, but the combo of FCS + NSDR worked at treat this time.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. July 25th (updated almost everything too): Increased eleuthero, decrease theanine to 2x0.1g and quercetin, added EGCG, all 4 in the B-supps. Next: Methylene blue! LDN! Creatine?
SELF-PHYSIO (click for details): OK (back exercises not quite enough). Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

:white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK. July 25th: EGCg again, eleuthero up to 3 and above, quercetin down cos of more rutin than suggested, next: theanine divided to 2x0.1g? Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, rupatadine/Rupafin, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of July 26th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before EGCg 3x1x(50%, incl. L-theanine?)113mg, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 3x4.5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0-0.1g, myo-inositol 1x2x0.5g/1!-2d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 2!x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 3!x1x.5g (down in B-supps cos more rutin than suggested), resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (1-2+1-2+1)x0.6=3.0g (as much as B3). NO rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated July 26th.
“16:00” preparing pills
“17:30” A1 PF#1:0, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xC#1, 2Cr#1, PF#(2->)1, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#(3->)2, 0.3gGABA & .6glu & Qc#2 Hon#2 + 1%:0 Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc., A5-A8, according to pee pain and seizure-ishness
B=11/ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3:0 Rs#1 2xSAM-e EGCg (from July 26th again) 3xEleu (forward from C to B-batch, maybe slowly increasing, even to 4g/d!) + Fev/MSM#1 + Sily +0.2->0.1The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
C=20 with meal: 1xB2#2 1-2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 1-2xTMG#2 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 1-2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 1-2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#(4=)3, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), July 26th

Pf: A1:0+A2+A3, vB2: 1C,1D, 1A. vB3: 1-2C,1-2D.1A, vB5: C+D+A. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3-a6(-a8), Gi: C,D0,D Glutathione: 2-3x after meals. Hon:A2.A3. MgThreo: 2C,2D,2A. Oliv: C,D. (pine: C,D.) Qc: (B.)E.A1.A3. Ro:B,E Rs:B,E SINGLE: A1: 0xMgMal, luteolin. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (ubiquinone <150mg/d!, not ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): R-ALA, EGCg, 3xeleu, Ru, 2 Sa, Sily, Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. vit. D3/K2-MK7 saturdays. (A2:0Se)
TALLIES July 26th:
A1=7+1 Pf#0 Qc#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1-2xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2->1, Ga#1:0.3g, Hon#1, Q10, 0Se, 1-2TMG#1 (0 Rup). = 12-14.
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3->2, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2 etc.
B=11 ALA, EGCg, Eleu more, Fev/MSM#1, Qc#3:0, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#(4+) Gi#2 Ol#1 0Pin#1 2TMG#2 (Eleu in B) 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=11-13 vB2#3 1-2xB3#3 vB5#3 3xCr#3 Ga#(5+) Gi#3 Ol#2 0Pin#2 1-2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=5 Ell, Qc#(4->)3, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today:

Quality of life

Lessons in self-care:
Just a bit of gardening was a lot of strain, so curbed everything else.
Reasons to be cheerful:
a) Duey’s turn on the nest all of this morning, really relaxed, hardly any neck to be seen, eyes closing a lot of them. Even with me looking at him thru binoculars - we know each other well. Blackbirds often know from 10 yards away and more that I’m looking at them thru binoculars and scarper loudly protesting at the lack of privacy. Saw what I think is his wife later on the pavilion.
b) Now I’m listening to the pigeon’s so much, I’m inadvertantly singing their melodies! :grin:
c) Great to have some suneyes (oxeyes) on the kitchen table now. The 4 I chopped off by mistake are fairly small, so next I’ll take some bigger ones, as they are now 150 minus 4 that’s a good area to start clipping.
Simplified:
a) I sometimes wonder whether others are savvy enough to not need to simplify as much. Maybe some things. Whilst I’m more creative with new ideas that then need to be simplified. Talking with a savvy old neighbour, I realize that.
b) Preparing supps I’m now looking better where to position all the boxes so it’s simple and quick.
Foggies: Slightly dulled head making even garden work harder.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-07-31 Monday - Extremely painful uro=prostate exam. (Methylene blue trial, day #4: 0 drops)

What … worked / went wrong … today?:

:white_check_mark: Sleep no more than 8h, early sun, air all day, screen curfew at 8.
:x: 3 bites now, despite all the rain. Lavender & hot spoons help most.
No methylene blue… … :white_check_mark: “no” problems, except :x: insomnia - wide awake at 3.
:x: The uro exam went wrong, big backlash.

How was I today?:

Feeling 50%-ish :x:, energy today :x:, sleep Sunday night (:white_check_mark:), sleep Monday night (:white_check_mark:)/(:x:), nausea 0-10-30% :x:, fog 30-50% (:x:).
Bite with strong itch on left elbow, then a 2nd on right foot and a 3rd on lower back. :x:
Pain from the uro exam was 8 (crying out & crying). The local pain strangely went down immediately after - as long as I leave it alone. The overall pain/Ache stayed 6 for quite a few hours, then 5 another few hours. At 18:15 I was able to cycle fairly nimbly and with energy, but still not able to walk or talk properly, sort of comes in bursts. At 16:00 a forum post made me remember to relax more which helped decrease tension and took the bite out of the pain. But (new) local pains in various parts of my body came and went. My bladder pain increased to p3 from the general Ache. Headache off an on 0-20%-50%, with nausea 0-20%.

Today working mainly on … thinking about how to go about the appointment, then after coping with and decreasing the exam pain, and also watching where exactly in the body I sense stiffness (temporary “tendonitis”?) and Ache

1) Early circadian rhythm for a) energy/sleep & b) Ache

7’ workout? No chance.

1st meal a bit later, 2nd & 3rd early (slight intermittent fasting): :white_check_mark: (:white_check_mark:)/(:x:) (:white_check_mark:)/(:x:),
whilst keeping food amount up (:white_check_mark:)/(:x:)(:white_check_mark:)/(:x:)(:white_check_mark:)/(:x:). IF = 13/11 (from ~9:00 to ~20:00)
Bed early / up early (:white_check_mark:) / (:white_check_mark:), screen time down (:white_check_mark:) (but → Effective sleep (:white_check_mark:) - praps it’s not the methylene blue, it’s the screen time that’s causing more insomnia.
“PEM” :x: vs. “Ache without exertion” = post postural Ache :x:.
Stiffness and PEM were everywhere and connected first, when resting after the exam, the PPA increased and partly took over, so moving was necessary.

:ping_pong: 6-8 games most days since June 20th, often winning (but hardly talking, not counting/picking up balls), break of two weeks, July 22nd: 3:1, July 23rd: 0:1 → 3:1. July 24th: 0:1 → 3:1. July 25th 2:2, July 26th 4:0 (tough), later 20’ (even tougher), July 27th 0:1 → 5:1, easy, despite rain, better and easier when not concentrating. July 28th 3:(1). July 29th 3:(1), both stopped. July 30th: 4:0, but tough. July 31st I couldn’t.

1a) EXHAUSTIBILITY today: “92%-87%" ❌. Energy down from June 30th, after great increase starting 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile/envelope (= rest / very slow, with "10h rest"), due to the painful exam. ❌

R rest: 100% exhaustion 60% of the time (10h),
VS very slow: 60% exhaustion 25% of the time (4h),
S slow: 40% exhaustion 10% of the time (1h),
M medium: 20% exhaustion 5% of the time (1h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 8h22, up 4x (63'), all deep, 10' NSDR, ✅ 80%/3-4-/5(-10)% drymouth30% sore throat20-0% tongue10-20-10% itch 20-30-50-20% (itchy at 4:40 despite cold shower at 2:15) nostril/s0% nausea5-0% stomach5-0% sinuses0% headache10-0-10% (✅), everything else OK ✅ ➔ Feeling 80% well, Ache 3-4-3 of 7 (❌), getting up: 80%/3-2 ✅. 1x FCS ✅ at 2:15.

3rd meal time :white_check_mark:/:x:, screen time :white_check_mark:/:x:, tired :white_check_mark:/:x:. GABA A2?+A3?
A3 A4:0 teeth0 p0 FA/CS#0 HWB#0 cream/ Sleep 22:10- 3rd # is LBU
23:50 15’ 80%/3/5% p0 st3 sip fw2’ fl0’ music10’ deep/ air/ A4/ drymouth30% sore throat20% tongue10% itch20% nausea5% stomach5% headache10%
1:45 17’ 80%/4-3/5% p0 st3 sip fw2’ fl0’ mails3’ music8’ deep/ air/ A5/ drymouth30% sore throat20% tongue10% itch30% → salt no help.
2:14 14’ itch30% FCS p0 + tea tree oil, BITE ON RIGHT FOOT + NSDR A6/
4:42 17’ itch50% 15’ 80%/3/5% p0 st2 sip fw2’ fl0’ music0’ deep/ air/ A7/ rest “like 23:50”. Lavender from the cellar hope that works.
-7:35 80%/3/5% p0 st2 sip fw2’ deep/ air/ A8:0 “like 23:50”, except sorethroat0% nausea0% stomach0% back itchy from not doing exercises
Sum: 7h35+1h50-(15+17+14+17)63’ = 9h25-63’ = 8h22, up 4x (63’), all deep, 10’ NSDR, 80%/3-4-/5(-10)% drymouth30% sore throat20-0% tongue10-20-10% itch 20-30-50-20% (itchy at 4:40 despite cold shower at 2:15) nostril/s0% nausea5-0% stomach5-0% sinuses0% headache10-0-10% 1x FCS :white_check_mark: at 2:15.

1b) ACTIVITIESACHE = PEM (Post exertional malaise): no TT possible, gardening/moving ➔ 80%/3(4) (:white_check_mark:), talking with doc ➔ 80%/4 :x:, that was strain enough, which may have caused more. White lips50% (:x:), strangely not worse than the past days.
1c) REST/STIFFNESS ➔ ACHE At night st3 → 80%/4-3 :x: Getting up - for how long?: st3 → 80%/3 (:x:), later less :white_check_mark:
Where stiffness, where Ache? Everywhere, partly, but not always connected, e.g. at 18:00.

2) Histamine/MCAS symptoms

Nauseous sinus burning headache: Yes, from the exam :x:.
Tongue burning: Yep (:x:). Already at night, maybe the methylene blue? Not worse after the exam, altho I’m not sure if the normalized energy from early Tuesday morning on is histamine from it, or real.
Insect bite itch - too much rain, I thought, but to decrease yesterday’s bite, which got worse: lavender spray, a 2nd bite came up at night (right foot) and a 3rd I got in the early morning in the garden (lower back). Sunday’s elbow bite is the itchiest.
Excitement :white_check_mark:: Yep, the talking tension before, during the appointment, and getting home with the bus (my wife had wanted to drive me there, but was still out and about). Not really after getting home, as I had to cancel meeting up with the kids, my wife had to alone. No more at night, either, I felt too awake, but no excitement. Wondering if cold showering before bed will reduce the wakfuleness later.

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. ENERGY DOWN to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, energy increased June 20th to 30th (>20%), and usually still quite higher after (16-20%), further symptoms down too. Increasing a little from July 25th.. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken theirs seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before. Stopped antihistamine I think in April, cos of zombification, dry mouth and I think more, and sleep still good from everything else. Once for dentist June 23rd wouldn’t have been necessary.

3) Docs:

The uro/prostate exam today caused pain 8, cried out, sweating, cried after several times.
He thinks something’s wrong esp. due to the frequency and wants to look inside the bladder next week. Not sure if I’ll be able to yet, but let’s see. Prescribed phytosterols from pine kernels 65mg, which I’d researched 2021-11-01, but only for decreasing cholesterol, and perhaps CVD & IBS, but controversial.
I emphasized the cancer problem and that I’d realized that morning that the bloods I’d got from the cancer doc can’t have been complete, cos for instance I didn’t know some of the bloods he’d taken, but the PSA-level wasn’t on there, which had been elevated before, and also no other typical tumour marker. He emphasized that he was only urologist and only worked specifically on prostate cancer. But he also especially noted without me having said it that the PSA last time was too high.
He was wanting to take other tumor markers, too. However I couldn’t think after the procedure, and asked at the reception what he might have said, they just confirmed fill in the rest of the questionnaire and make an appointment for a bladder in(tro)spection. They didn’t think of bloods, cos everything was in a different order to normal. I’d started with urine, then a talk with the doc including ultrasound finding no problems anywhere, then the exam that brought things to a halt. But I couldn’t/shouldn’t have had them done anyway, I was in so much pain. Have to see how the next few days go before I (re-)arrange a blood and bladder exam.
I’ve decided to get the product he prescribed rather than an alternative one, despite it containing gelatine, TiO2 and other crap.

Last DOC update July 31st: Uro exam extremely painful, so forgot bloods - would have been tough anyway. Urine sample was no problem. The talk was disappointing in that he is nice, but definitely no oncologist, so it will still only be a pointer for cancer. July 26th: Phoned urologists/oncologists, the man at the reception was very friendly and asked helpful interested questions, I'm not used to that at all, and I got an appt. for next Monday, 31st, already, praps cos of the summer holidays. The urologist I'm assigned to has 3 reviews that sound promising, and "looks OK", young, interested and caring, like the reviews say. July 20th (added 25th): Got my onco labs at last: only eosinophilia visible to me (put the research on the 25th), GP has no idea, which warrants getting a "2nd" opinion, in absence of a 1st. July 13th: Unsuccessfully asked for my onco lab results. June 24th/25th: Teeth problems resolved for the time being. Waiting for onco report, “2nd” opinion or not? (“B symptoms” = night sweats, appetite, weight starting Feb/March resolved in June.) Click for details…
Click for details: Update July 26th: Got a cancer appt. on 31st. June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

4) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

Annoyances
:one: Tea tree oil on onychia :white_check_mark: and fungus on my right foot. :white_check_mark: Improvement not as quick as usual.
:two: Beau’s lines on thumbnails: Reduce washing :white_check_mark:, olive oil soap :white_check_mark:, moisturize :white_check_mark:/:x:. 7/8mm healthier thumbnail now.
:three: Slight gum inflammation from stuck food (:white_check_mark:): free :white_check_mark:.
Calendula essence for gum as well as CoV, praps umckaloabo too! :white_check_mark:

1) Symptoms well under control: GI (via elimination), pee (via GABA: ENOUGH ✅), LOCAL PAINS (exercises, back: via using wall/door for support) ✅, massager on my strained left neck helped. Details...

except GI: stools loose0% :white_check_mark:, appetite :white_check_mark:, pee pain: 5p3 :x:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN / WIND ✅ (layering off and on all the time), THIRST (✅), dry mouth (day and) at night ❌. Last SEIZURES: July 25th seizure-ish 3-4x, so GABA up. July 17th: 18:30 19:55 after thunderstorm. July 7th seizure-ish 4x... Jun 23rd 4x, Jun 16th, Jun 6th 2x ❌, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: July 23rd & 16th, May 31st (all 3 cos distracted), before that Apr 4th ✅. JAW solved for the time being since June 23rd. ✅

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Dry mouth (day and) at night has always been a problem, a stronger added real thirst making me drink a fourth litre of almond milk a day came up in April. Stopping the antihistamine completely has praps helped stop it become painfully sticky at night, so I don’t use the gel much any more.
Last focal seizures: July 25th: seizure-ish 3-4x. July 17th: 18:30 19:55 after thunderstorm. July 7th seizur-ish 4x. Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Generally, mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. July 23rd cos distracted by the Kami stress. July 16th I was concentrating on testing if hazelnuts increase my nicotinic acid flush with my 3rd meal, and disregarded a slight throat pressure, which went totally wrong, was the last straw for an esophagus block, so had to get it out, lots came out, incl. supps, and needed to wait quite a bit afterwards. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more… - June 23rd: OK, the fillings were enough, solved for the time being.

Methylene blue trial, day #4: 0 drops, sort of forgot, but also wanted to see what happens at night after 3 awake nights. But tonight it was itching from 2 bites that disturbed my sleep at 2 and made a FCS necessary. Not conclusive enough to blame the insomnia of the past days on the methylene blue, so I’ll go back up to 1 drop and then continue +1.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. July 25th (updated almost everything too): Increased eleuthero, decrease theanine to 2x0.1g and quercetin, added EGCG, all 4 in the B-supps. Next: Methylene blue! LDN! Creatine?
SELF-PHYSIO (click for details): OK, except forgot back exercises. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

:white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK. July 25th: EGCg again, eleuthero up to 3 and above, quercetin down cos of more rutin than suggested, next: theanine divided up into 2x0.1g? Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, rupatadine/Rupafin, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of July 26th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before EGCg 3x1x(50%, incl. L-theanine?)113mg, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 3x4.5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0-0.1g, myo-inositol 1x2x0.5g/1!-2d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 2!x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 3!x1x.5g (down in B-supps cos more rutin than suggested), resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (1-2+1-2+1)x0.6=3.0g (as much as B3). NO rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated July 26th.
“16:00” preparing pills
“17:30” A1 PF#1:0, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xC#1, 2Cr#1, PF#(2->)1, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#(3->)2, 0.3gGABA & .6glu & Qc#2 Hon#2 + 1%:0 Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc., A5-A8, according to pee pain and seizure-ishness
B=11/ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3:0 Rs#1 2xSAM-e EGCg (from July 26th again) 3xEleu (forward from C to B-batch, maybe slowly increasing, even to 4g/d!) + Fev/MSM#1 + Sily +0.2->0.1The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
C=20 with meal: 1xB2#2 1-2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 1-2xTMG#2 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 1-2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 1-2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#(4=)3, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), July 26th

Pf: A1:0+A2+A3, vB2: 1C,1D, 1A. vB3: 1-2C,1-2D.1A, vB5: C+D+A. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3-a6(-a8), Gi: C,D0,D Glutathione: 2-3x after meals. Hon:A2.A3. MgThreo: 2C,2D,2A. Oliv: C,D. (pine: C,D.) Qc: (B.)E.A1.A3. Ro:B,E Rs:B,E SINGLE: A1: 0xMgMal, luteolin. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (ubiquinone <150mg/d!, not ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): R-ALA, EGCg, 3xeleu, Ru, 2 Sa, Sily, Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. vit. D3/K2-MK7 saturdays. (A2:0Se)
TALLIES July 26th:
A1=7+1 Pf#0 Qc#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1-2xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2->1, Ga#1:0.3g, Hon#1, Q10, 0Se, 1-2TMG#1 (0 Rup). = 12-14.
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3->2, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2 etc.
B=11 ALA, EGCg, Eleu more, Fev/MSM#1, Qc#3:0, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#(4+) Gi#2 Ol#1 0Pin#1 2TMG#2 (Eleu in B) 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=11-13 vB2#3 1-2xB3#3 vB5#3 3xCr#3 Ga#(5+) Gi#3 Ol#2 0Pin#2 1-2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=5 Ell, Qc#(4->)3, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today:

Quality of life

Lessons in self-care: I should have prepared myself better, but I just didn’t realize how much uro and how little onco that appointment was gonna be, and just had a look thru the reports and saw I’d got them all with me and then concentrated on getting there on time and not stressing too much about it…
Reasons to be cheerful:
a) One of my 2(-3?) sunflowers is blooming fuller and fuller. I was wondering how much it’d mean to me - turns out a lot, esp. after reading that the insects love them. Hope the metal sticks, appropriately yellow, can support them enough even though there’s regularly quite some strong winds. Maybe I can also tie them to a really strong pillar too, come to think of it.
b) First hedgehog of the year on his way into my garden.
c) Thinking of swifts as “watcher of the skies” I had a look for more videos and found a nice 12’ one by the BBC (AutumnWatch) saying the babies can go without food for 10 days in case the adults can’t manage to feed them.
Simplified: My sleep details I can praps best refer to previous sleep breaks instead of repeating, that’ll make the min-max tally easier and shorten the entry. And re-position the FCS-note together with when I did it.
Foggies: The severe pain from the uro exam deleted that I probably was sposed to have blood taken.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-08-01 Tuesday - Methylene blue trial, day #5: 1 drop. Seeming improvement not sustainable

What … worked / went wrong … today?:

:white_check_mark: Sleep bit more than 8h, fairly early sun, air all day, screen curfew at 8.
:x: 4 (5) bites now, despite all the rain, lavender & hot spoons help most.
:x: Methylene blue no help, but also :white_check_mark: “no” problems, except :x: insomnia - wide awake at .

How was I today?:

Feeling 85%-ish (:white_check_mark:), energy today (:x:), sleep Monday night (:white_check_mark:), sleep Tuesday night :white_check_mark:, nausea 0% (:white_check_mark:), fog 10% (:white_check_mark:).
Bite with itch on left elbow, right foot and 2 (3) on left lower back.

2nd Shop at 12:00 was too much, had to walk back very slowly.
Cycle-walk to shop and quite a bit further with my wife at 18:00 was OK. Last shop at 20:45 went OK too. The Ache all day is 3-4 (Wednesday higher again).

Today working mainly on … recovering from the uro exam watching changed supp effects, esp. methylene blue, watching where exactly in the body I sense stiffness (temporary “tendonitis”?) and Ache

1) Early circadian rhythm for a) energy/sleep & b) Ache

7’ workout? No chance.

1st meal a bit later, 2nd & 3rd early (slight intermittent fasting): :white_check_mark: :white_check_mark: :white_check_mark:,
whilst keeping food amount up :white_check_mark:(:white_check_mark:)(:white_check_mark:). IF = 14/10 (from ~10:00 to ~20:00)
Bed early / up early :white_check_mark::white_check_mark:, screen time down :white_check_mark::white_check_mark:→ Effective sleep :white_check_mark:.
“PEM” :x: vs. “Ache without exertion” = post postural Ache :x:.

:ping_pong: 6-8 games most days since June 20th, often winning (but hardly talking, not counting/picking up balls), break of two weeks, July 22nd: 3:1, July 23rd: 0:1 → 3:1. July 24th: 0:1 → 3:1. July 25th 2:2, July 26th 4:0 (tough), later 20’ (even tougher), July 27th 0:1 → 5:1, easy, despite rain, better and easier when not concentrating. July 28th 3:(1). July 29th 3:(1), both stopped. July 30th: 4:0, but tough. July 31st/Aug 1st impossible.

1a) EXHAUSTIBILITY today: “88%-". Energy down from June 30th, after great increase starting 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile/envelope (= still down, with "8h rest").

R rest: 100% exhaustion 20% of the time (8h),
VS very slow: 60% exhaustion 20% of the time (6h),
S slow: 40% exhaustion 30% of the time (1h),
M medium: 20% exhaustion 30% of the time (1h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 7h28, up 4x (24'), all deep ✅. 70%/2/15-5% drymouth30% sore throat5% tongue20% itch 50% (better from hot spoon) nostril/s5-0% ✅. everything else OK ✅ ➔ Feeling 70% well, Ache 2 of 7 ❌, getting up: 70%/3 ❌. 1x FCS ✅ morning at 6:15.

3rd meal time :white_check_mark:, screen time :white_check_mark:, tired :white_check_mark:. GABA A2+A3
A3 A4:0 teeth/ p0 FA/CS#0 HWB#0 Sleep 22:15- 3rd # is LBU
23:45 5’ 70%/2/15% p0 st2 sip fw2’ fl0’ deep/ air/ A4/
drymouth30% sore throat5% tongue20% itch50% nostril/s5/0%
1:00 5’ like 23:45, except A5/
2:28 10’ like 23:45, except A6/, hot spoon on bite itches.
3:10 4’ like 23:45, except A7. Woke up from noises (breakdown truck & talking), having left middle window open, which wasn’t bad for throat and good for air.
-6:07 like 23:45, except B/
Sum: 1h45+6h07-(5+5+10+4=)24’ = 7h52-24’ = 7h28, up 4x (24’), all deep. 70%/2/15-5% drymouth30% sore throat5% tongue20% itch 50% (better from hot spoon) nostril/s5-0%. 1x FCS :white_check_mark: morning at 6:15

1b) ACTIVITIESACHE = PEM (Post exertional malaise): no TT possible gardening/moving ➔ 80%/3-4 :x:, talking ➔ 80%/?3-4 :x:. White lips: dunno.
1c) REST/STIFFNESS ➔ ACHE At night st2 :white_check_mark:, altho 70%/2 :x: Getting up - for how long?: st2-3 → 80%/2 :white_check_mark:/:x:, Later less? :white_check_mark:/:x:. Stiffness less than PEM-Ache.
Where stiffness, where Ache? Ache all over, stiffness less than that.

2) Histamine/MCAS symptoms

Nauseous sinus burning headache: Well not sinus burning, but nauseous headache, esp. whilst on a “cycle walk” :x: (Wednesday too).
Tongue burning: At night 20% :x:, daytime less.
Insect bite itch: :lotion_bottle: Oils :x::x::x:.
To decrease: lavender spray :white_check_mark:, tea tree oil :white_check_mark:, olive oil, salt-water-paste (bit of water) :white_check_mark:, but what helped most was hot spoon :white_check_mark::white_check_mark:.
Excitement: avoiding in every way possible, incl. news etc. :white_check_mark:
Eating 100ml of soy yogurt twice a day is no additional problem (or does it explain the slight increase in tongue burning at night?)

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. ENERGY DOWN to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, energy increased June 20th to 30th (>20%), and usually still quite higher after (16-20%), further symptoms down too. Increasing a little from July 25th.. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken theirs seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before. Stopped antihistamine I think in April, cos of zombification, dry mouth and I think more, and sleep still good from everything else. Once for dentist June 23rd wouldn’t have been necessary.

3) Docs:

Phoned about the forgotten bloods and got an appointment for them for next Monday and delayed the bladder exam 2 weeks, which my wife and I are discussing if it’s worth the pain and probably week long backlash. I researched what pain is normally to be expected in comparison to the finger exam, but they both said: “Not much”.

Last DOC update Aug 1st: Phoned about the forgotten bloods. July 31st: Uro exam extremely painful, so forgot bloods - would have been tough anyway. Urine sample was no problem. The talk was disappointing in that he is nice, but definitely no oncologist, so it will still only be a pointer for cancer. July 26th: Phoned urologists/oncologists, the man at the reception was very friendly and asked helpful interested questions, I'm not used to that at all, and I got an appt. for next Monday, 31st, already, praps cos of the summer holidays. The urologist I'm assigned to has 3 reviews that sound promising, and "looks OK", young, interested and caring, like the reviews say. July 20th (added 25th): Got my onco labs at last: only eosinophilia visible to me (put the research on the 25th), GP has no idea, which warrants getting a "2nd" opinion, in absence of a 1st. July 13th: Unsuccessfully asked for my onco lab results. June 24th/25th: Teeth problems resolved for the time being. Waiting for onco report, “2nd” opinion or not? (“B symptoms” = night sweats, appetite, weight starting Feb/March resolved in June.) Click for details…
Click for details: Update July 26th: Got a cancer appt. on 31st. June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

4) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

Annoyances
:one: Tea tree oil on onychia :white_check_mark: and fungus on my right foot. :white_check_mark: Fungus almost gone, onychia better.
:two: Beau’s lines on thumbnails: Reduce washing :white_check_mark:, olive oil soap :white_check_mark:, moisturize :white_check_mark:/:x:. 7/8mm healthier thumbnail now. I think increasing, still no new lines coming up.
:three: Slight gum inflammation from stuck food (:white_check_mark:): free :white_check_mark:.
Calendula essence for gum as well as CoV, praps umckaloabo too! :x:, I am brushing that space free with an interstitial brush several times a day, esp. whenever I feel anything in there, sometimes it hardly hurts, but always a little bit.

Headache and seizure-ish from 17:00 on, 5-6x almost happened, 21:20 I finally took slurped 100mg GABA. Not sure why, maybe just part of the flare from the finger exam.

1) Symptoms well under control: GI (via elimination), pee (via GABA: ENOUGH - needed to increase, for pee & seizure-ishness, which worked ✅), LOCAL PAINS (exercises, back: via using wall/door for support) ✅. Details...

except GI: stools loose0% :white_check_mark:, appetite :white_check_mark:, pee pain: 5p1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN / WIND ✅ (layering off and on all the time), THIRST (✅), dry mouth (day and) at night ❌. Last SEIZURES: Aug 1st: 4-5x seizure-ish, so again GABA up, added 2x sublingual. July 25th seizure-ish 3-4x, so GABA up. July 17th: 2x. July 7th seizure-ish 4x... Jun 23rd 4x, Jun 16th, Jun 6th 2x ❌, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: July 23rd & 16th, May 31st (all 3 cos distracted), before that Apr 4th ✅. JAW solved for the time being since June 23rd. ✅

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Dry mouth (day and) at night has always been a problem, a stronger added real thirst making me drink a fourth litre of almond milk a day came up in April. Stopping the antihistamine completely has praps helped stop it become painfully sticky at night, so I don’t use the gel much any more.
Last focal seizures: Aug 1st: 4-5x seizure-ish, so again GABA up, added 2x sublingual. July 25th: seizure-ish 3-4x. July 17th: 18:30 19:55 after thunderstorm. July 7th seizur-ish 4x. Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Generally, mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. July 23rd cos distracted by the Kami stress. July 16th I was concentrating on testing if hazelnuts increase my nicotinic acid flush with my 3rd meal, and disregarded a slight throat pressure, which went totally wrong, was the last straw for an esophagus block, so had to get it out, lots came out, incl. supps, and needed to wait quite a bit afterwards. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more… - June 23rd: OK, the fillings were enough, solved for the time being.

Methylene blue trial, day #5: 1 drop - no effects at all, not even insomnia.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. July 25th (updated almost everything too): Increased eleuthero, decrease theanine to 2x0.1g and quercetin, added EGCG, all 4 in the B-supps. Next: Methylene blue! LDN! Creatine?
SELF-PHYSIO (click for details): OK: Caught up on back exercises. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

:white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK. July 25th: EGCg again, eleuthero up to 3 and above, quercetin down cos of more rutin than suggested, next: theanine divided up into 2x0.1g? Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, rupatadine/Rupafin, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of July 26th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before EGCg 3x1x(50%, incl. L-theanine?)113mg, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 3x4.5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0-0.1g, myo-inositol 1x2x0.5g/1!-2d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 2!x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 3!x1x.5g (down in B-supps cos more rutin than suggested), resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (1-2+1-2+1)x0.6=3.0g (as much as B3). NO rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated July 26th.
“16:00” preparing pills
“17:30” A1 PF#1:0, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xC#1, 2Cr#1, PF#(2->)1, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#(3->)2, 0.3gGABA & .6glu & Qc#2 Hon#2 + 1%:0 Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc., A5-A8, according to pee pain and seizure-ishness
B=11/ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3:0 Rs#1 2xSAM-e EGCg (from July 26th again) 3xEleu (forward from C to B-batch, maybe slowly increasing, even to 4g/d!) + Fev/MSM#1 + Sily +0.2->0.1The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
C=20 with meal: 1xB2#2 1-2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 1-2xTMG#2 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 1-2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 1-2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#(4=)3, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), July 26th

Pf: A1:0+A2+A3, vB2: 1C,1D, 1A. vB3: 1-2C,1-2D.1A, vB5: C+D+A. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3-a6(-a8), Gi: C,D0,D Glutathione: 2-3x after meals. Hon:A2.A3. MgThreo: 2C,2D,2A. Oliv: C,D. (pine: C,D.) Qc: (B.)E.A1.A3. Ro:B,E Rs:B,E SINGLE: A1: 0xMgMal, luteolin. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (ubiquinone <150mg/d!, not ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): R-ALA, EGCg, 3xeleu, Ru, 2 Sa, Sily, Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. vit. D3/K2-MK7 saturdays. (A2:0Se)
TALLIES July 26th:
A1=7+1 Pf#0 Qc#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1-2xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2->1, Ga#1:0.3g, Hon#1, Q10, 0Se, 1-2TMG#1 (0 Rup). = 12-14.
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3->2, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2 etc.
B=11 ALA, EGCg, Eleu more, Fev/MSM#1, Qc#3:0, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#(4+) Gi#2 Ol#1 0Pin#1 2TMG#2 (Eleu in B) 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=11-13 vB2#3 1-2xB3#3 vB5#3 3xCr#3 Ga#(5+) Gi#3 Ol#2 0Pin#2 1-2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=5 Ell, Qc#(4->)3, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today: Bladder stuff and more, can’t remember, bit of forum stuff.

Quality of life

Lessons in self-care: Very slow, despite feeling better, no sense in trying to do too much, esp. if the seizures are being
Reasons to be cheerful:
a) 2 new flowers!
(Why did Duey appear to coo another female than the one on their nest? Is he two-timing? :astonished:)
Simplified: Reduced cellar entrance stuff.
Foggies:
a) I seem to have brought the paper rubbish bin in before it was emptied, cos it’s as ever half full. I was sure I’d looked and it felt empty too. :face_with_monocle:
b) Still dulled and slow (Wednesday worse again).

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-08-02 Wednesday - Recovering. Methylene blue trial, day #6: 2 drops.

What … worked / went wrong … today?:

:white_check_mark: Sleep no more than 8h, early sun, air all day, screen curfew at 8.
:white_check_mark: Hot spoon helping insect bites.
:x: Methylene blue no help, but also :white_check_mark: “no” problems.

How was I today?:

Feeling 70%-ish (:x:), energy today (:x:), sleep Tuesday night :white_check_mark:, sleep Wednesday night :white_check_mark:, nausea 0(-10)% (:white_check_mark:), fog 30% (:white_check_mark:).
:x: 5 bites now, despite all the rain. Lavender & a hot spoon help most. :white_check_mark:

Today working mainly on … recovery from Monday’s uro exam, watching changed supp effects, esp. methylene blue, watching where exactly in the body I sense stiffness (temporary “tendonitis”?) and Ache

1) Early circadian rhythm for a) energy/sleep & b) Ache

7’ workout? No chance.

1st meal a bit later, 2nd & 3rd early (slight intermittent fasting): :white_check_mark: :white_check_mark: :white_check_mark:,
whilst keeping food amount up :white_check_mark: :white_check_mark: :white_check_mark:. IF = 13/11 (from 9:00 to 20:00)
Bed early / up early (:white_check_mark:):white_check_mark:, screen time down (:x:) → Effective sleep :white_check_mark:.
“PEM” :x: vs. “Ache without exertion” = post postural Ache :x:, but more from PEM.

:ping_pong: Since June 20th often winning (but hardly talking, not counting/picking up balls). First, 2-3 weeks 6-8 games a day, then 2 weeks holiday break, July 22nd-26th only 4 games a day, mostly won. July 27th 0:1 → 5:1, easy. July 28th-30th 4 games. Since July 31st impossible cos of uro.

1a) EXHAUSTIBILITY today: “88%". Energy down from June 30th, after great increase starting 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile/envelope (= slow, with "8h rest").

R rest: 100% exhaustion 20% of the time (8h),
VS very slow: 60% exhaustion 20% of the time (6h),
S slow: 40% exhaustion 30% of the time (1h),
M medium: 20% exhaustion 30% of the time (1h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 7h32, up 5x (28'), all deep, pretty good considering methylene blue and screen time only down 1h before sleep. 80%/2/5% drymouth30% sore throat5-0% tongue10% itch30% nostril/s0-10% nausea5% stomach5% dryhands10-0% sinuses0-30% headache0-5% zombie5% 1x FCS ✅ at 6:30 ✅/❌, everything else OK ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅.

3rd meal time :white_check_mark:, screen time :x: (till 21:10), tired (:white_check_mark:). GABA A2/+A3/
21:15-22:15 hedgehog(s?) - firethorn, patio, taxus, barrel, cellar, hotel.
A3 A4:0 teeth0 p0 FA/CS#0 HWB#0 Sleep 22:20- 3rd # is LBU
23:30 8’ 80%/2/5% p0 st3 sip fw2’ deep/ air0 A4/
drymouth30% sore throat5% tongue10% itch30% nostril/s0/0% nausea5% stomach5% dryhands10% sinuses0-5% headache0-5% zombie5% plugs0 cream0
0:55 6’, like 23:30 except: A5/ itch10%
0:20 5’ like 0:55, except A6/
3:30 5’, like 0:55, except A7/ & nostril/s10/0%
5:00 4’, like 3:30, except A8/ & sinuses30% Feel cold, so 3rd duvet.
-6:20, like 5:00 except B/
Sum: 1h40?+6h20-(8+6+5+5+4=)28’ = 8h-28’ = 7h32, up 5x (28’), all deep, pretty good considering methylene blue and screen time only down 1h before sleep. 80%/2/5% drymouth30% sore throat5-0% tongue10% itch30% nostril/s0-10% nausea5% stomach5% dryhands10-0% sinuses0-30% headache0-5% zombie5% 1x FCS :white_check_mark: at 6:30

1b) ACTIVITIESACHE = PEM (Post exertional malaise): TT & talking impossible :x:, gardening/moving ➔ 80%/4 :white_check_mark:. White lips: Dunno.
1c) REST/STIFFNESS ➔ ACHE At night st3 → 80%/3-4 :x: Getting up & all day: st3 → 80%/4-6 :x:,
Where stiffness, where Ache? Everywhere, Ache more than stiffness, better Thursday morning.

2) Histamine/MCAS symptoms

Nauseous sinus burning headache: Nope :white_check_mark:… Burning sinuses alone at 17:00 :x:.
Tongue burning: A little :x:.
Insect bite itch: :lotion_bottle: Oils unnecessary, as it’s pouring almost all the time and I can’t even get into the garden much. But still put it on for just 5’, learning from Monday morning…
To decrease: lavender spray :white_check_mark:, tea tree oil :white_check_mark:, olive oil, salt-water-paste (bit of water), hot spoon.
Excitement: nope :white_check_mark:.

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. ENERGY DOWN to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, energy increased June 20th to 30th (>20%), and usually still quite higher after (16-20%), further symptoms down too. Increasing a little from July 25th.. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken theirs seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before. Stopped antihistamine I think in April, cos of zombification, dry mouth and I think more, and sleep still good from everything else. Once for dentist June 23rd wouldn’t have been necessary.

3) Docs:

Last DOC update Aug 1st: Phoned about the forgotten bloods, going Monday. July 31st: Uro exam extremely painful, so forgot bloods - would have been tough anyway. Urine sample was no problem. The talk was disappointing in that he is nice, but definitely no oncologist, so it will still only be a pointer for cancer. July 26th: Phoned urologists/oncologists, the man at the reception was very friendly and asked helpful interested questions, I'm not used to that at all, and I got an appt. for next Monday, 31st, already, praps cos of the summer holidays. The urologist I'm assigned to has 3 reviews that sound promising, and "looks OK", young, interested and caring, like the reviews say. July 20th (added 25th): Got my onco labs at last: only eosinophilia visible to me (put the research on the 25th), GP has no idea, which warrants getting a "2nd" opinion, in absence of a 1st. July 13th: Unsuccessfully asked for my onco lab results. June 24th/25th: Teeth problems resolved for the time being. Waiting for onco report, “2nd” opinion or not? (“B symptoms” = night sweats, appetite, weight starting Feb/March resolved in June.) Click for details…
Click for details: Update July 26th: Got a cancer appt. on 31st. June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

4) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

Annoyances
:one: Tea tree oil on onychia :white_check_mark: and fungus on my right foot. :white_check_mark: Improving.
:two: Beau’s lines on thumbnails: Reduce washing (:white_check_mark:), olive oil soap :white_check_mark:, moisturize :x:. 7/8mm healthier thumbnail now, improving.
:three: Slight gum inflammation from stuck food (:white_check_mark:): free :white_check_mark:.
Calendula essence for gum as well as CoV, praps umckaloabo too! - not enough :x:.

1) Symptoms well under control: GI (via elimination), pee (via GABA: ENOUGH/ ✅), LOCAL PAINS (exercises, back: via using wall/door for support) ✅. Details...

except GI: stools loose0% :white_check_mark:, appetite :white_check_mark:, pee pain: 3p1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN / WIND ✅ (layering off and on all the time), THIRST (✅), dry mouth (day and) at night ❌. Last SEIZURES: Last SEIZURES: Aug 1st: 4-5x seizure-ish, so again GABA up, added 2x sublingual. July 25th seizure-ish 3-4x, so GABA up. July 17th: 2x. July 7th seizure-ish 4x Jun 23rd 4x, Jun 16th, Jun 6th 2x ❌, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: July 23rd & 16th, May 31st (all 3 cos distracted), before that Apr 4th ✅. JAW solved for the time being since June 23rd. ✅

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Dry mouth (day and) at night has always been a problem, a stronger added real thirst making me drink a fourth litre of almond milk a day came up in April. Stopping the antihistamine completely has praps helped stop it become painfully sticky at night, so I don’t use the gel much any more.
Last focal seizures: July 25th: seizure-ish 3-4x. July 17th: 18:30 19:55 after thunderstorm. July 7th seizur-ish 4x. Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Generally, mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. July 23rd cos distracted by the Kami stress. July 16th I was concentrating on testing if hazelnuts increase my nicotinic acid flush with my 3rd meal, and disregarded a slight throat pressure, which went totally wrong, was the last straw for an esophagus block, so had to get it out, lots came out, incl. supps, and needed to wait quite a bit afterwards. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more… - June 23rd: OK, the fillings were enough, solved for the time being.

Methylene blue trial, day #6: 2 drops, zero effect :x:.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. July 25th (updated almost everything too): Increased eleuthero, decrease theanine to 2x0.1g and quercetin, added EGCG, all 4 in the B-supps. Next: Methylene blue! LDN! Creatine?
SELF-PHYSIO (click for details): OK. May have caught up with the left out back exercises on ?Monday. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

:white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK. July 25th: EGCg again, eleuthero up to 3 and above, quercetin down cos of more rutin than suggested, next: theanine divided up into 2x0.1g? Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, rupatadine/Rupafin, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of July 26th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before EGCg 3x1x(50%, incl. L-theanine?)113mg, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 3x4.5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0-0.1g, myo-inositol 1x2x0.5g/1!-2d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 2!x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 3!x1x.5g (down in B-supps cos more rutin than suggested), resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (1-2+1-2+1)x0.6=3.0g (as much as B3). NO rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated July 26th.
“16:00” preparing pills
“17:30” A1 PF#1:0, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xC#1, 2Cr#1, PF#(2->)1, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#(3->)2, 0.3gGABA & .6glu & Qc#2 Hon#2 + 1%:0 Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc., A5-A8, according to pee pain and seizure-ishness
B=11/ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3:0 Rs#1 2xSAM-e EGCg (from July 26th again) 3xEleu (forward from C to B-batch, maybe slowly increasing, even to 4g/d!) + Fev/MSM#1 + Sily +0.2->0.1The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
C=20 with meal: 1xB2#2 1-2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 1-2xTMG#2 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 1-2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 1-2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#(4=)3, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), July 26th

Pf: A1:0+A2+A3, vB2: 1C,1D, 1A. vB3: 1-2C,1-2D.1A, vB5: C+D+A. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3-a6(-a8), Gi: C,D0,D Glutathione: 2-3x after meals. Hon:A2.A3. MgThreo: 2C,2D,2A. Oliv: C,D. (pine: C,D.) Qc: (B.)E.A1.A3. Ro:B,E Rs:B,E SINGLE: A1: 0xMgMal, luteolin. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (ubiquinone <150mg/d!, not ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): R-ALA, EGCg, 3xeleu, Ru, 2 Sa, Sily, Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. vit. D3/K2-MK7 saturdays. (A2:0Se)
TALLIES July 26th:
A1=7+1 Pf#0 Qc#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1-2xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2->1, Ga#1:0.3g, Hon#1, Q10, 0Se, 1-2TMG#1 (0 Rup). = 12-14.
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3->2, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2 etc.
B=11 ALA, EGCg, Eleu more, Fev/MSM#1, Qc#3:0, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#(4+) Gi#2 Ol#1 0Pin#1 2TMG#2 (Eleu in B) 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=11-13 vB2#3 1-2xB3#3 vB5#3 3xCr#3 Ga#(5+) Gi#3 Ol#2 0Pin#2 1-2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=5 Ell, Qc#(4->)3, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today:

Bits’n’bobs.

Quality of life

Lessons in self-care: It’s OK, takin’ it easy.
Reasons to be cheerful:
a) Don’t really feel too under pressure to do anything much, floating on it.
b) 21:15-22:15 hedgehog(s?) - firethorn, patio, taxus, barrel, cellar, “hotel” (big dead wood heap for insects and mammals)…
Simplified: Sleep details may have a few mistakes in them, but definitely worth it to decrease sleep break and tally time.
Foggies: Sooo sloooow.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-08-03 Thursday - Recovering, slightly better. Methylene blue trial, day #7 2 or 3 drops, can’t remember… - Headache till sleep like more often at the moment.

What … worked / went wrong … today?:

:white_check_mark: Sleep no more than 8h, early sun, air all day, screen curfew at 8.
:white_check_mark: 5 insect bites not disturbing sleep any more.
:x: Methylene blue no help, but also :white_check_mark: “no” problems.
:x: Got a new kind of bladder pain at 7:15 (Fri). Is that one of the 2 new supps or has to do with the uro exam? If it were methylene blue, I’d expect my urine to be bluer at this time, it’s not at all. I took it only minutes before, I can’t imagine it reacting that fast, altho my gut does often do so, and that’s feeling queasy at night (slightly firm and slightly painful).
:white_check_mark: Stopped draught more, still allowing open window / cold wet air, which seems fairly OK, and the oxygen better for me.

How was I today?:

Feeling 80%-ish (:white_check_mark:), energy today (:x:), sleep Wednesday night (:white_check_mark:), sleep Thursday night :white_check_mark:, nausea 0(-10)% (:white_check_mark:), fog 10% (:white_check_mark:).
:white_check_mark: 4 (5) bites there, but itch is reduced.

Today working mainly on … recovery, watching changed supp effects, esp. methylene blue (GI side effects??), watching balance of “tendonitis”-stiffness and Ache

1) Early circadian rhythm for a) energy/sleep & b) Ache

7’ workout? Nope: 20’ shop, 20’ garden. 3’ phone call, that’s it / too much.

1st meal a bit later, 2nd & 3rd early (slight intermittent fasting): :white_check_mark: (:x:) (:white_check_mark:),
whilst keeping food amount up (:white_check_mark:)(:white_check_mark:)(:white_check_mark:). IF = 13/11 (from ~9:00 to ~20:00) (I think)
Bed early / up early (:x:)(:white_check_mark:), screen time down (:white_check_mark:) → Effective sleep :white_check_mark:.
“PEM” :x: vs. “Ache without exertion” = post postural Ache :x:.

:ping_pong: Since June 20th often winning (but hardly talking, not counting/picking up balls). First, 2-3 weeks 6-8 games a day, then 2 weeks holiday break, July 22nd-26th only 4 games a day, mostly won. July 27th 0:1 → 5:1, easy. July 28th-30th 4 games. Since July 31st impossible cos of uro.

1a) EXHAUSTIBILITY today: “88%". Energy down from June 30th, after great increase starting 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile/envelope (= slow, with "8h rest").

R rest: 100% exhaustion 20% of the time (8h),
VS very slow: 60% exhaustion 20% of the time (6h),
S slow: 40% exhaustion 30% of the time (1h),
M medium: 20% exhaustion 30% of the time (1h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 7h19, up 5x (43'), all deep ✅. 80%/2-3/5% drymouth30% sore throat10% tongue20% itch 20% nostril/s0-10% nausea0(-20)% stools loose!-20% everything else OK ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/4 ❌. 1x FCS ✅ at 7:00-ish.

3rd meal time (:x:), screen time (:white_check_mark:), tired :white_check_mark:. GABA A2/+A3/
A3 A4:0 teeth0 p0 FA/CS#0 HWB#0 Sleep 22:55- 3rd # is LBU
0:22 9’ 80%/2/5% p0 st3 sip fw2’ fl0’ mails3’ deep/ air/ A4/
drymouth30% sore throat10% tongue20% itch20% nostril/s0/10%
2:05 20’ 6, like 0:22 except mails0’ A5/
4:00 5’, like 2:05, except A6 + pain in ball of left foot → massager/stretches, dry mouth 40%, +3rd duvet.
5:29 6’, like 4:00, except A7, stoolsloose-20%, p3.
6:41 3’, like 2:05 (duvet off again) except A8, short nausea20%
-6:57 like 2:05, except B
Sum: 1h05+6h57-(9+20+5+6+3=)43’ = 8h02-43’ = above.

1b) ACTIVITIESACHE = PEM (Post exertional malaise): TT impossible (body- and rain-wise), gardening/moving ➔ 80%/3-4 (:white_check_mark:), no talking ➔ 80%/4 :x:. White lips60-100? (:x:) wax-coloured? (:x:) (:question:)
1c) REST/STIFFNESS ➔ ACHE At night st3 → 80%/2 :white_check_mark: Getting up - for how long?: st2 :white_check_mark: → 80%/4 :x:, Later less? :white_check_mark:/:x:
Where stiffness, where Ache? Again stiffness much better than Ache, whilst alternately high (p4) and low (p0) pee pain seems to come from the Ache?

2) Histamine/MCAS symptoms

Nauseous sinus burning headache: Nope :white_check_mark:.
Tongue burning: A little (:x:).
Insect bite itch: Oils unnecessary. Decreasing unncesesary. :white_check_mark:
Excitement: 3’ phone call with the kids caused a headache, had to stop and text sorry :x:. I think I need to text more and phone less.

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. ENERGY DOWN to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, energy increased June 20th to 30th (>20%), and usually still quite higher after (16-20%), further symptoms down too. Increasing a little from July 25th.. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken theirs seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before. Stopped antihistamine I think in April, cos of zombification, dry mouth and I think more, and sleep still good from everything else. Once for dentist June 23rd wouldn’t have been necessary.

3) Docs:

The amount of PEM/Ache at the moment, I’m not at all sure I’ll manage the bloods on Monday, but I won’t cancel it today, see on Monday.

Last DOC update Aug 1st: Phoned about the forgotten bloods. July 31st: Uro exam extremely painful, so forgot bloods - would have been tough anyway. Urine sample was no problem. The talk was disappointing in that he is nice, but definitely no oncologist, so it will still only be a pointer for cancer. July 26th: Phoned urologists/oncologists, the man at the reception was very friendly and asked helpful interested questions, I'm not used to that at all, and I got an appt. for next Monday, 31st, already, praps cos of the summer holidays. The urologist I'm assigned to has 3 reviews that sound promising, and "looks OK", young, interested and caring, like the reviews say. July 20th (added 25th): Got my onco labs at last: only eosinophilia visible to me (put the research on the 25th), GP has no idea, which warrants getting a "2nd" opinion, in absence of a 1st. July 13th: Unsuccessfully asked for my onco lab results. June 24th/25th: Teeth problems resolved for the time being. Waiting for onco report, “2nd” opinion or not? (“B symptoms” = night sweats, appetite, weight starting Feb/March resolved in June.) Click for details…
Click for details: Update July 26th: Got a cancer appt. on 31st. June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

4) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

Annoyances
:one: Tea tree oil on onychia :white_check_mark: and fungus on my right foot. :white_check_mark: Improved.
:two: Beau’s lines on thumbnails: Reduce washing :white_check_mark:, olive oil soap :white_check_mark:, moisturize :x:. 7/8mm healthier thumbnail now.
:three: Slight gum inflammation from stuck food (:white_check_mark:): free :white_check_mark:. Didn’t hurt after 2nd meal. :white_check_mark:
Calendula essence for gum as well as CoV, praps umckaloabo too! :white_check_mark:

1) Symptoms well under control: GI (via elimination), pee (via GABA: ENOUGH ✅), but still alternately bad, p4 ❌, LOCAL PAINS (exercises, back: via using wall/door for support) ✅. Details...

except GI: stools loose0% :white_check_mark:, appetite :white_check_mark:, pee pain: 4p3-4 :x:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN / WIND ✅ (layering off and on all the time), THIRST (✅), dry mouth (day and) at night ❌. Last SEIZURES: Last SEIZURES: Aug 1st: 4-5x seizure-ish, so again GABA up, added 2x sublingual. July 25th seizure-ish 3-4x, so GABA up. July 17th: 2x. July 7th seizure-ish 4x. Jun 23rd 4x, Jun 16th, Jun 6th 2x ❌, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: July 23rd & 16th, May 31st (all 3 cos distracted), before that Apr 4th ✅. JAW solved for the time being since June 23rd. ✅

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Dry mouth (day and) at night has always been a problem, a stronger added real thirst making me drink a fourth litre of almond milk a day came up in April. Stopping the antihistamine completely has praps helped stop it become painfully sticky at night, so I don’t use the gel much any more.
Last focal seizures: Aug 1st: 4-5x seizure-ish, July 25th: seizure-ish 3-4x. July 17th: 18:30 19:55 after thunderstorm. July 7th seizur-ish 4x. Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Generally, mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. July 23rd cos distracted by the Kami stress. July 16th I was concentrating on testing if hazelnuts increase my nicotinic acid flush with my 3rd meal, and disregarded a slight throat pressure, which went totally wrong, was the last straw for an esophagus block, so had to get it out, lots came out, incl. supps, and needed to wait quite a bit afterwards. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more… - June 23rd: OK, the fillings were enough, solved for the time being.

Methylene blue trial, day #7 2-3 drops, if at all negative effects on Ache, pee pain, headache and GI. Or is that the plant polysterols?

I need to take the plant polysterols with or after food, but keep forgetting it then, take it 2h later, so now need to change tactics/habit by taking it to the table/food.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Aug 1st methylene blue + pine bark + EGCg + polysterols, Aug 5th Feverfew & PQQ again. July 25th (updated almost everything too): Increased eleuthero, decrease theanine to 2x0.1g and quercetin, added EGCG, all 4 in the B-supps. Next: Methylene blue! LDN! Creatine?
SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

:white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK. July 25th: EGCg again, eleuthero up to 3 and above, quercetin down cos of more rutin than suggested, next: theanine divided up into 2x0.1g? Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, rupatadine/Rupafin, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of July 26th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before EGCg 3x1x(50%, incl. L-theanine?)113mg, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 3x4.5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0-0.1g, myo-inositol 1x2x0.5g/1!-2d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 2!x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 3!x1x.5g (down in B-supps cos more rutin than suggested), resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (1-2+1-2+1)x0.6=3.0g (as much as B3). NO rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated July 26th.
“16:00” preparing pills
“17:30” A1 PF#1:0, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xC#1, 2Cr#1, PF#(2->)1, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#(3->)2, 0.3gGABA & .6glu & Qc#2 Hon#2 + 1%:0 Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc., A5-A8, according to pee pain and seizure-ishness
B=11/ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3:0 Rs#1 2xSAM-e EGCg (from July 26th again) 3xEleu (forward from C to B-batch, maybe slowly increasing, even to 4g/d!) + Fev/MSM#1 + Sily +0.2->0.1The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
C=20 with meal: 1xB2#2 1-2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 1-2xTMG#2 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 1-2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 1-2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#(4=)3, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), July 26th

Pf: A1:0+A2+A3, vB2: 1C,1D, 1A. vB3: 1-2C,1-2D.1A, vB5: C+D+A. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3-a6(-a8), Gi: C,D0,D Glutathione: 2-3x after meals. Hon:A2.A3. MgThreo: 2C,2D,2A. Oliv: C,D. (pine: C,D.) Qc: (B.)E.A1.A3. Ro:B,E Rs:B,E SINGLE: A1: 0xMgMal, luteolin. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (ubiquinone <150mg/d!, not ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): R-ALA, EGCg, 3xeleu, Ru, 2 Sa, Sily, Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. vit. D3/K2-MK7 saturdays. (A2:0Se)
TALLIES July 26th:
A1=7+1 Pf#0 Qc#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1-2xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2->1, Ga#1:0.3g, Hon#1, Q10, 0Se, 1-2TMG#1 (0 Rup). = 12-14.
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3->2, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2 etc.
B=11 ALA, EGCg, Eleu more, Fev/MSM#1, Qc#3:0, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#(4+) Gi#2 Ol#1 0Pin#1 2TMG#2 (Eleu in B) 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=11-13 vB2#3 1-2xB3#3 vB5#3 3xCr#3 Ga#(5+) Gi#3 Ol#2 0Pin#2 1-2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=5 Ell, Qc#(4->)3, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today:

Quality of life

Lessons in self-care: I’m still doing a bit with my wife, cos I don’t want to ruin her time off work, and she’s careful and keeps asking if it’s OK.
Reasons to be cheerful:
a) Pigeon caressing each other is sweet.
b) Dunnock came to me. I’ve started not to look, just to sense. Pigeons are OK with looking, but not dunnocks or blackbirds, they’re sensitive even to binoculars pointed at them.
c) So many suneyes, that I could cut some and put the outside to light up the night for every passerby and in front of the house entrance.
d) No hedgehog this evening, probably cos it was raining cats and dogs almost all the time, even more than the past weeks.
Simplified: I’ve shortened the sleep details even more and may start to try to find further things that I’ve been doubling too much.
Foggies:
a) Foggy - head dulled.
b) I put my try somewhere where it didn’t fit. But I thought it should, so I put it there all the same, something needed to be pushed aside, turned out it was a cup half full with water and a spoon (for my bite itches), So fun guaranteed, spilled it all over stuff, then was slow deciding what to do… but saved everything. Cleverly I found the wet towel I used on a newspaper page…
c) Managed to put a “roof” over my cellar entrance, but have smacked against it 5x, got at least 2 cuts & bruises from it.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-08-04 Friday - Worse again, really bad actually, Ache of 4-5 all day - after Methylene blue trial, day #8: 4 drops… - so I’ll do 0 drops tomorrow and 4 again on Sunday.

What … worked / went wrong … today?:

:white_check_mark: Sleep no more than 8h, early sun, air all day, screen curfew at 8.
:white_check_mark: Insect bites OK.
:x: Methylene blue no help, starting :x: to doubt this is :white_check_mark: “no” problem(s)”.

How was I today?:

Feeling 60%-ish (:white_check_mark:), energy today :x:, sleep Thursday night :white_check_mark:, sleep Friday night :white_check_mark:, nausea 0% (:white_check_mark:), fog 30% (:x:). Yeah, funny, as often: good sleep, bad days. :roll_eyes:
:white_check_mark: 4 (5) bites still there, but not itching too much, if they are, lavender helps.

Today working mainly on … watching changed supp effects, esp. methylene blue, watching where exactly in the body I sense stiffness (temporary “tendonitis”?) and Ache

1) Early circadian rhythm for a) energy/sleep & b) Ache

7’ workout? Nope: to 1-2 shops, waiting outside, all extremely slow.

1st meal a bit later, 2nd & 3rd early (slight intermittent fasting): :white_check_mark:(:white_check_mark:)((:x:),
whilst keeping food amount up :white_check_mark:(:white_check_mark:)(:white_check_mark:). IF = 12.5/11.5 (from ~9:30 to ~21:00)
Bed early / up early (:x:) :white_check_mark:), screen time down :x: → Effective sleep :white_check_mark:.
“PEM” :x: much more than “Ache without exertion” = post postural Ache :x:.

:ping_pong: Since June 20th often winning (but hardly talking, not counting/picking up balls). First, 2-3 weeks 6-8 games a day, then 2 weeks holiday break, July 22nd-26th only 4 games a day, mostly won. July 27th 0:1 → 5:1, easy. July 28th-30th 4 games. Since July 31st impossible cos of uro.

1a) EXHAUSTIBILITY today: “82%-". Energy down from June 30th, after great increase starting 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile/envelope (= slow, with "8h rest"). Actually I've only just realized I've been leaving "moderate" a lot, instead of changing it to "slow".

R rest: 100% exhaustion 20% of the time (8h),
VS very slow: 60% exhaustion 20% of the time (6h),
S slow: 40% exhaustion 30% of the time (1h),
M medium: 20% exhaustion 30% of the time (1h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 6h57, up 4x (36'), all deep ✅, 80%/2/5 drymouth30% sore throat5% tongue20% nostril/s5-15% sinuses0(-20)% headache0(-5)% (stools loose-10%) everything else OK ✅ ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅. 1x FCS ✅ at 6:15

3rd meal time :white_check_mark:/:x:, screen time :white_check_mark:/:x:, tired :white_check_mark:/:x:. GABA A2?+A3?
A3 A4:0 teeth0 p0 FA/CS#0 HWB#0 Sleep 22:30- 3rd # is LBU
0:35 15’ 80%/2/5% p0 st2 sip fw2’ fl8’ deep/ air/ A4/
drymouth30% sore throat5% tongue20% itch10% nostril/s0/5%
2:10 6’ like 0:35 except fl0’ A5/ tch0% nostril/s0/15% stools loose-10%
3:35 6’ like 2:10 except A6/ & nostrils less
4:37 9’ (x6) like 2:10 except A7/ & nostrils less
6:03 (pinguins in satnding under wrter a lake!) like 2:10 (incl. st2-1!) except B/, sinuses20% headache5%
Sum: 6h03+1h30-(15+6+6+9=)36’ = 7h33-36’ =

1b) ACTIVITIESACHE = PEM (Post exertional malaise): TT impossible despite rain easing off, gardening/moving ➔ 80%/(4-5) :white_check_mark: (a bit of gardening didn’t worsen too much, perhaps +1-2, talking ➔ 80%/5 :x:. White lips 50% (:white_check_mark:).
1c) REST/STIFFNESS ➔ ACHE At night st2 → 80%/2 :white_check_mark: Getting up still: st2 → 80%/2 :white_check_mark:.
Where stiffness, where Ache? Ache and stiffness both high Friday, less Friday night and Saturday morning, where the stiffness seems to be coming from the muscles, not the tendons (‘joints’).

2) Histamine/MCAS symptoms

Nauseous sinus burning headache: Nope :white_check_mark:.
Tongue burning: Still 20% at night, 10% in the daytime :x:. I’m thinking it’s associated with the dry mouth, and it’s not the side of the tongue as in walnut and other histamine reactions.
Insect bite itch: :lotion_bottle: Oils on :white_check_mark:, to decrease: lavender spray :white_check_mark:.
Excitement: avoided :white_check_mark:.

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. ENERGY DOWN to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, energy increased June 20th to 30th (>20%), and usually still quite higher after (16-20%), further symptoms down too. Increasing a little from July 25th.. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken theirs seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before. Stopped antihistamine I think in April, cos of zombification, dry mouth and I think more, and sleep still good from everything else. Once for dentist June 23rd wouldn’t have been necessary.

3) Docs:

Last DOC update Aug 1st: Phoned about the forgotten bloods. July 31st: Uro exam extremely painful, so forgot bloods - would have been tough anyway. Urine sample was no problem. The talk was disappointing in that he is nice, but definitely no oncologist, so it will still only be a pointer for cancer. July 26th: Phoned urologists/oncologists, the man at the reception was very friendly and asked helpful interested questions, I'm not used to that at all, and I got an appt. for next Monday, 31st, already, praps cos of the summer holidays. The urologist I'm assigned to has 3 reviews that sound promising, and "looks OK", young, interested and caring, like the reviews say. July 20th (added 25th): Got my onco labs at last: only eosinophilia visible to me (put the research on the 25th), GP has no idea, which warrants getting a "2nd" opinion, in absence of a 1st. July 13th: Unsuccessfully asked for my onco lab results. June 24th/25th: Teeth problems resolved for the time being. Waiting for onco report, “2nd” opinion or not? (“B symptoms” = night sweats, appetite, weight starting Feb/March resolved in June.) Click for details…
Click for details: Update July 26th: Got a cancer appt. on 31st. June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

4) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

Annoyances
:one: Tea tree oil on onychia :white_check_mark: and fungus on my right foot. :white_check_mark: Fungus all improved, 2 of 4 almost gone, 2 1/4 of what it was. Onychia still a small-er lump: patience!
:two: Beau’s lines on thumbnails: Reduce washing :white_check_mark:, olive oil soap :white_check_mark:, moisturize :x:: how? - See research: tea tree oil. 7/8mm healthier thumbnail now. When I cut my nails the other day, I made sure to leave it long enough that it doesn’t start hurting, which I think is stressing the nail bed cause the skin then gets too tight, maybe from lack of protection.
:three: Slight gum inflammation from stuck food (:white_check_mark:): free :white_check_mark:.
Calendula essence for gum as well as CoV, praps umckaloabo too! :white_check_mark:
:four: I never lose pee at night, why?

1) Symptoms well under control: GI (via elimination), pee sometimes high, with the Ache, sometimes 0 (via GABA: ENOUGH ✅), LOCAL PAINS (exercises, back: via using wall/door for support) ✅. Details...

except GI: stools loose0% :white_check_mark:, appetite :white_check_mark:, pee pain: 2p3-4 (:white_check_mark:), lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN / WIND ✅ (layering off and on all the time), THIRST (✅), dry mouth (day and) at night ❌. Last SEIZURES: Last SEIZURES: Aug 1st: 4-5x seizure-ish, so again GABA up, added 2x sublingual. July 25th seizure-ish 3-4x, so GABA up. July 17th: 2x. July 7th seizure-ish 4x. Jun 23rd 4x, Jun 16th, Jun 6th 2x ❌, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: July 23rd & 16th, May 31st (all 3 cos distracted), before that Apr 4th ✅. JAW solved for the time being since June 23rd. ✅

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Dry mouth (day and) at night has always been a problem, a stronger added real thirst making me drink a fourth litre of almond milk a day came up in April. Stopping the antihistamine completely has praps helped stop it become painfully sticky at night, so I don’t use the gel much any more.
Last focal seizures: Aug 1st: 4-5x seizure-ish. July 25th: seizure-ish 3-4x. July 17th: 18:30 19:55 after thunderstorm. July 7th seizur-ish 4x. Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Generally, mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. July 23rd cos distracted by the Kami stress. July 16th I was concentrating on testing if hazelnuts increase my nicotinic acid flush with my 3rd meal, and disregarded a slight throat pressure, which went totally wrong, was the last straw for an esophagus block, so had to get it out, lots came out, incl. supps, and needed to wait quite a bit afterwards. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more… - June 23rd: OK, the fillings were enough, solved for the time being.

Methylene blue trial, day

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Aug ~1st: pine bark again, + methylene blue + polysterols, Aug 5th Feverfew & PQQ again. July 25th (updated almost everything too): Increased eleuthero, decrease theanine to 2x0.1g and quercetin, added EGCG, all 4 in the B-supps. Next: Methylene blue! LDN! Creatine?
SELF-PHYSIO (click for details): OK? Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

:white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK. Aug ~1st: pine bark again, + methylene blue + polysterols, Aug 5th Feverfew & PQQ again. July 25th: EGCg again, eleuthero up to 3 and above, quercetin down cos of more rutin than suggested, next: theanine divided up into 2x0.1g? Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, rupatadine/Rupafin, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of July 26th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before EGCg 3x1x(50%, incl. L-theanine?)113mg, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 3x4.5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0-0.1g, myo-inositol 1x2x0.5g/1!-2d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 2!x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x1x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 3!x1x.5g (down in B-supps cos more rutin than suggested), resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (1-2+1-2+1)x0.6=3.0g (as much as B3). NO rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated July 26th.
“16:00” preparing pills
“17:30” A1 PF#1:0, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xC#1, 2Cr#1, PF#(2->)1, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#(3->)2, 0.3gGABA & .6glu & Qc#2 Hon#2 + 1%:0 Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc., A5-A8, according to pee pain and seizure-ishness
B=11/ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3:0 Rs#1 2xSAM-e EGCg (from July 26th again) 3xEleu (forward from C to B-batch, maybe slowly increasing, even to 4g/d!) + Fev/MSM#1 + Sily +0.2->0.1The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
C=20 with meal: 1xB2#2 1-2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1, pine#1, 1-2xTMG#2 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 1-2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 1-2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#(4=)3, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), July 26th

Pf: A1:0+A2+A3, vB2: 1C,1D, 1A. vB3: 1-2C,1-2D.1A, vB5: C+D+A. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3-a6(-a8), Gi: C,D0,D Glutathione: 2-3x after meals. Hon:A2.A3. MgThreo: 2C,2D,2A. Oliv: C,D. pine: C,D. Qc: (B.)E.A1.A3. Ro:B,E Rs:B,E SINGLE: A1: 0xMgMal, luteolin. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (ubiquinone <150mg/d!, not ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): R-ALA, EGCg, 3xeleu, Ru, 2 Sa, Sily, Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. vit. D3/K2-MK7 saturdays. (A2:0Se)
TALLIES July 26th:
A1=7+1 Pf#0 Qc#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1-2xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2->1, Ga#1:0.3g, Hon#1, Q10, 0Se, 1-2TMG#1 (0 Rup). = 12-14.
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3->2, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2 etc.
B=11 ALA, EGCg, Eleu more, Fev/MSM#1, Qc#3:0, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#(4+) Gi#2 Ol#1 0Pin#1 2TMG#2 (Eleu in B) 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=11-13 vB2#3 1-2xB3#3 vB5#3 3xCr#3 Ga#(5+) Gi#3 Ol#2 0Pin#2 1-2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=5 Ell, Qc#(4->)3, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today:

Chris Masterjohn sent something semi-critical about methylene blue in his newsletter, not revealing the details yet, but bottom line: good if you need it, not good if you don’t:

  • How Methylene Blue Works
    • A Redox-Reactive Dye
    • The Blue Bottle Experiment
    • Methylene Blue Radicals, Photoexcited States, and Demethylated Metabolites
    • Methylene Blue Can Oxidize and Reduce Many Targets
    • Methylene Blue Can Rewire the Mitochondrial Respiratory Chain
    • Rewiring the Respiratory Chain Does Not Make It Better
    • Methylene Blue Increases Hydrogen Peroxide
    • Hydrogen Peroxide Kills Microbes, Has Hormetic Benefits, But Is Still Ultimately Toxic
    • Methylene Blue Causes Redox Cycling of Hemoglobin
    • Methylene Blue Is a Strong Monoamine Oxidase A Inhibitor
    • Methylene Blue Inhibits Nitric Oxide Synthase
    • Mechanistic Conclusions
  • Is Methylene Blue Fundamentally Hormetic?
  • Methylene Blue Fails in Alzheimer’s, and Causes a Worrisome Side Effect
  • Whether Methylene Blue Helps Or Hurts Depends on Whether You Need It
  • Natural Alternatives for Hormesis and Rewiring the Respiratory Chain
  • Who Should Use Methylene Blue?

This article, video, and podcast is currently reserved for Masterpass members and will become available to the general publish [ehrm: public] on September 1…
Also I keep reading posts on phoenixrising

Quality of life

Lessons in self-care: Got to separate my supp tubs (17:00 vs. 20:00) better!
Reasons to be cheerful:
a) Had a look at a brilliant new long big official graffiti wall.
b) Still managed to re-plant things.
c) Got a pretty big hydrangea cheaper via a friend. Not my fave, but it’ll liven up.
Simplified: Some.
Foggies:
a) head dulled I put my try somewhere where it didn’t fit. But I thought it should, so I put it there all the same, something needed to be pushed aside, turned out it was a cup half full with water and a spoon (for my bite itches), So fun guaranteed, spilled it all over stuff, then was slow deciding what to do… but saved everything.
b) Bungled my supps up once again, probably 3 of my 17:00 tomorrow ones in my 19:00 ones today, so much too much today, too close to meal and too little tomorrow.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-08-05 Saturday - Methylene blue trial, day #9: 0 drops today, 4 drops Sunday. Better most of the day while :ping_pong:, some re-planting and 1 shop, but often up to 4-5 fairly quick recovery in between, but any 20’ of activity caused that.

What … worked / went wrong … today?:

:white_check_mark: Sleep no more than 8h, early sun, air all day, screen curfew at 8.
:x:? Methylene blue no help, :x: better without today, but it was already better before - not - taking it.

How was I today?:

Feeling 80-70%-ish (:white_check_mark:), energy today (:white_check_mark:-:x:), sleep Friday night (:white_check_mark:), sleep Saturday night (:white_check_mark:)/(:x:), nausea 0(-10)% (:white_check_mark:), fog 10% (:white_check_mark:).
:white_check_mark: Insect bites OK.

Today working mainly on … watching changed supp effects, esp. methylene blue (jumping from 4 to 0 drops), watching where exactly in the body I sense stiffness (temporary “tendonitis”?) and Ache: TODAY realized my stiffness can come from only the muscles, not just only from the tendons.

1) Early circadian rhythm for a) energy/sleep & b) Ache

7’ workout? Nope, re-planting was more than enough.

1st meal a bit later, 2nd & 3rd early (slight intermittent fasting): :white_check_mark: (:x:)(:x:),
whilst keeping food amount up :white_check_mark: (:white_check_mark:)/(:x:)(:white_check_mark:)/(:x:). IF = 12.5/11.5 (from /9:30 to /21:00)
Bed early / up early (:white_check_mark:)/(:x:) (:white_check_mark:)/(:x:), screen time down (:white_check_mark:)/(:x:) → Effective sleep (:white_check_mark:)/(:x:).
“PEM” (TT :white_check_mark:/ talking :x:, evening/shop :x:) vs. “Ache without exertion” = post postural Ache (:white_check_mark:).

:ping_pong: Since June 20th often winning (but hardly talking, not counting/picking up balls). First, 2-3 weeks 6-8 games a day, then 2 weeks holiday break, July 22nd-26th only 4 games a day, mostly won. July 27th 0:1 → 5:1, easy. July 28th-30th 4 games. July 31st to Aug 4th impossible cos of uro, Aug 5th 2:0.

1a) EXHAUSTIBILITY today: “86%+". Energy down from June 30th, after great increase starting 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile/envelope (= moderate?/slow?, with "?3h rest").

R rest: 100% exhaustion 20% of the time (3h),
VS very slow: 60% exhaustion 20% of the time (3h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 30% of the time (5h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 8h16, up 4x (30'), all deep ✅. 70-80%/2/5% drymouth30% sore throat0-50-5%❌ tongue40-20%❌ nostril/s10(-0)% dryhands0-70-10%❌, everything else OK ➔ Feeling 70% well, Ache 2 of 7 ❌, getting up: 80%/2 ✅. 1x FCS ✅ at 7:15

3rd meal time :white_check_mark:/:x:, screen time :white_check_mark:/:x:, tired :white_check_mark:/:x:. GABA A2?+A3?
A3 A4:0 teeth0 p0 FA/CS#0 HWB#0 Sleep 22:10- 3rd # is LBU
23:30 6 ’ 70%/2/5% p3 st3 sip fw2’ fl0’ deep/ air/ A4/
drymouth30% sore throat10% tongue40% nostril/s0/10%
0:30 6’ like 23:30 except p1 st2 A5/ sore throat50% (strange: what from?) → calendula essence.
2:00 12’ (fw’ 6’) like 0:30 except p1 st2 A6/ sore throat40% → calendula essence.
4:30 6’ like 2:00 except A7/ stomach20% dryhands70% → cream → 10%
-6:56 like 4:30 except 80%/ B/ stomach5% dryhands10% → cream incl. thumbtips tongue20% nostrils0% sore throat5%
Sum: 1h50+6h56-(6+6+12+6)30’ = 8h46-30’ = 8h16, up 4x (30’), all deep. 70-80%/2/5% drymouth30% sore throat0-50-5% tongue40-20% nostril/s10(-0)% dryhands0-70-10%. 1x FCS :white_check_mark: at 7:15

1b) ACTIVITIESACHE = PEM (Post exertional malaise): TT 2:0 (moving 10%, talking 10% (but afterwards 5’ was much too long), counting 0%) ➔ 80%/3 :white_check_mark:, gardening/moving ➔ 80%/2 :white_check_mark:, talking ➔ 80%/3-5 :x:. White lips40% (:white_check_mark:)
1c) REST/STIFFNESS ➔ ACHE Friday night st2 → 80%/2 :white_check_mark:, Saturday night :white_check_mark:. Getting up: st2/1 → 80%/2 :white_check_mark:, - Saturday till doing too much, Sunday probably too.
Where stiffness, where Ache? Stiffness in the muscles rather than tendons, that’s something new to see, I wonder how often, maybe I’ve been missing that.

2) Histamine/MCAS symptoms

:new: New one today: Taxus twigs in my eyes trying to get a tiny tree out made my eyes burn, couldn’t focus, and I knew that was its toxin, but I didn’t realize it was that, later some sinus burning for an hour, then tongue burning till 7am, plus sore throat from midnight to maybe 6am. Suggests that my regular sore throats at night are from mast cells there too, something I’d thought before.
Nauseous sinus burning headache: An hour (:white_check_mark:).
Tongue burning: Friday night :x:, Saturday esp. seemingly after the taxus twigs, worse at night :x:.
Insect bite itch: :lotion_bottle: Oils on at 9:00 :white_check_mark:, 14:00 :white_check_mark:.
To decrease (new bite on left elbow again…): lavender spray :white_check_mark: tea tree oil :white_check_mark: - well actually it was lavender oil for good sleep I used first :white_check_mark:, olive oil, salt-water-paste (bit of water), hot spoon. - got the bite itch down very quickly, so maybe treating it as soon as it came up was helpful this time?

Excitement: kept it down :white_check_mark:, but I think any “talking” with anyone else than my wife (depending of course ;-)), is usually “excitement”, whether it’s something I’m passionate about, positively or negatively, sometimes even if it’s only sort of interesting, and even if when it gets boring. That will be the reason for talking having become a problem. Like the 5 minutes talking after table tennis: A topic I felt was important, altho no conflict with my mate at all, and after 2 minutes I realized it’s too much.

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. ENERGY DOWN to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, energy increased June 20th to 30th (>20%), and usually still quite higher after (16-20%), further symptoms down too. Increasing a little from July 25th.. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken theirs seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before. Stopped antihistamine I think in April, cos of zombification, dry mouth and I think more, and sleep still good from everything else. Once for dentist June 23rd wouldn’t have been necessary.

3) Docs:

Last DOC update Aug 1st: Phoned about the forgotten bloods. July 31st: Uro exam extremely painful, so forgot bloods - would have been tough anyway. Urine sample was no problem. The talk was disappointing in that he is nice, but definitely no oncologist, so it will still only be a pointer for cancer. July 26th: Phoned urologists/oncologists, the man at the reception was very friendly and asked helpful interested questions, I'm not used to that at all, and I got an appt. for next Monday, 31st, already, praps cos of the summer holidays. The urologist I'm assigned to has 3 reviews that sound promising, and "looks OK", young, interested and caring, like the reviews say. July 20th (added 25th): Got my onco labs at last: only eosinophilia visible to me (put the research on the 25th), GP has no idea, which warrants getting a "2nd" opinion, in absence of a 1st. July 13th: Unsuccessfully asked for my onco lab results. June 24th/25th: Teeth problems resolved for the time being. Waiting for onco report, “2nd” opinion or not? (“B symptoms” = night sweats, appetite, weight starting Feb/March resolved in June.) Click for details…
Click for details: Update July 26th: Got a cancer appt. on 31st. June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

4) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

Annoyances
:one: Tea tree oil on onychia :white_check_mark: and fungus on my right foot. :white_check_mark: Improved.
:two: Beau’s lines on thumbnails: Reduce washing :white_check_mark:, olive oil soap :white_check_mark:, moisturize :white_check_mark:/:x: with oils like tea tree oil, olive oil, better than hand cream. 7/8mm healthier thumbnail now.
:three: Slight gum inflammation from stuck food (:white_check_mark:): free :white_check_mark:.
Calendula essence for gum as well as CoV, praps umckaloabo too! :white_check_mark:
:four: I never lose pee at night, why?
:new: Eyes burning and unfocused, I’m pretty sure it’s cos I got taxus twigs in my eyes several times, trying to get a small tree under it out. My wife took it lightly when I said it’s poisonous, but… Eyes got better when at the shop, but worse again after 21:00, better at night and gone in the morning. (At night it went on to histamine-y symptoms like tongue and sore throat).

1) Symptoms well under control: GI (via elimination), pee (✅) (via GABA: ENOUGH/), LOCAL PAINS (exercises, back: via using wall/door for support) ✅. Details...

except GI: stools loose0% :white_check_mark:, appetite :white_check_mark:, pee pain: 2p1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN / WIND ?✅ (layering off and on all the time), THIRST (✅), dry mouth (day and) at night ❌. Last SEIZURES: Last SEIZURES: Aug 1st: 4-5x seizure-ish, so again GABA up, added 2x sublingual. July 25th seizure-ish 3-4x, so GABA up. July 17th: 2x. July 7th seizure-ish 4x. Jun 23rd 4x, Jun 16th, Jun 6th 2x ❌, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: July 23rd & 16th, May 31st (all 3 cos distracted), before that Apr 4th ✅. JAW solved for the time being since June 23rd. ✅

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Dry mouth (day and) at night has always been a problem, a stronger added real thirst making me drink a fourth litre of almond milk a day came up in April. Stopping the antihistamine completely has praps helped stop it become painfully sticky at night, so I don’t use the gel much any more.
Last focal seizures: Aug 1st: 4-5x seizure-ish. July 25th: seizure-ish 3-4x. July 17th: 18:30 19:55 after thunderstorm. July 7th seizur-ish 4x. Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Generally, mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. July 23rd cos distracted by the Kami stress. July 16th I was concentrating on testing if hazelnuts increase my nicotinic acid flush with my 3rd meal, and disregarded a slight throat pressure, which went totally wrong, was the last straw for an esophagus block, so had to get it out, lots came out, incl. supps, and needed to wait quite a bit afterwards. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more… - June 23rd: OK, the fillings were enough, solved for the time being.

Methylene blue trial, day #6: 0 drops, a bit better better Ache/pain day, so let’s see what effects Sunday may bring with suddenly back to 4 drops…

Tallying the supp costs, that had been 470€+20€/m, I’m checking a few things not everything, coming out 423+20€/m (+ phytosterols = 435+20€): B3/TMG I’m only using 3, not 5 at the moment, it varies, GABA even more, PQQ is 5€/m cheaper, taking less quercetin (3/4) and theanine (1€ instead of 6€) is cheaper. EGCg more expensive cos it’s not been available in the previous brand, I’d waited quite a few months. After taking it all the time for a month or so, I’ve stopped taking DAO, makes a bit of difference what I eat, but not that much. Ellagic acid I’d filled in too high. I’ve written /2 there, not sure, gotta check the dosage, seems OK tho, 2.2g/d. Increasing eleuthero increases it from 6 to 9 to praps 12/m. Methylene blue for 1 drop costs 0.028€, that’s 0,84/m, for 4 drops: 3,36€/m, no idea where that’s going tho. Not as cheap as was said and I’d thought - once you get up into ranges of 80 drops some docs recommend that’s 67,2/ml, unless I’ve calculated wrong - isn’t easy. There may be cheaper sources, but as it’s not allowed in EU that’ll be difficult. I’ll count 5€/m for the time being. I’m not using as much protein powder as I once did before I lost my appetite in January, so I’ll put down a quarter of that. (Added phytosterols everywhere, wrongly polysterols.)*

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - Aug 6th: 40 supps (was 42), costs 435€/m (was 470) +20€/m cps. Aug ~1st: pine bark again, + methylene blue + phytosterols, Aug 5th Feverfew & PQQ again. July 25th (updated almost everything too): Increased eleuthero, decrease theanine to 2x0.1g and quercetin, added EGCG, all 4 in the B-supps. Next: Methylene blue! LDN! Creatine?
SELF-PHYSIO (click for details): OK. Managed to Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Aug 6th: 40 supps (was 42), costs 435€/m (was 470) +20€/m cps. Schedule TODAY: OK. Aug ~1st: pine bark again, + methylene blue + phytosterols, Aug 5th Feverfew & PQQ again. July 25th: EGCg again, eleuthero up to 3 and above, quercetin down cos of more rutin than suggested, next: theanine divided up into 2x0.1g? Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, rupatadine/Rupafin, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Aug 6th (40 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before EGCg 3x1x(50%, incl. L-theanine?)113mg, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 3x4.5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0-0.1g, myo-inositol 1x2x0.5g/1!-2d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 2!x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x1x.5g, polysterols 2x1x65mg, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 3!x1x.5g (down in B-supps cos more rutin than suggested), resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (1-2+1-2+1)x0.6=3.0g (as much as B3). NO rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated July 26th.
“16:00” preparing pills
“17:30” A1 PF#1:0, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xC#1, 2Cr#1, PF#(2->)1, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe. 2x gluthatione, 1x polysterols.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#(3->)2, 0.3gGABA & .6glu & Qc#2 Hon#2 + 1%:0 Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc., A5-A8, according to pee pain and seizure-ishness
B=11/ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3:0 Rs#1 2xSAM-e EGCg (from July 26th again) 3xEleu (forward from C to B-batch, maybe slowly increasing, even to 4g/d!) + Fev/MSM#1 + Sily +0.2->0.1The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
C=20 with meal: 1xB2#2 1-2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1, pine#1, 1-2xTMG#2 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 1-2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 1-2xTMG#3
2x gluthatione, 1x polysterols
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#(4=)3, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), July 26th

Pf: A1:0+A2+A3, vB2: 1C,1D, 1A. vB3: 1-2C,1-2D.1A, vB5: C+D+A. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3-a6(-a8), Gi: C,D0,D Glutathione: 2-3x after meals. Hon:A2.A3. MgThreo: 2C,2D,2A. Oliv: C,D. pine: C,D. Phy with glutathione after meals. Qc: (B.)E.A1.A3. Ro:B,E Rs:B,E SINGLE: A1: 0xMgMal, luteolin. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (ubiquinone <150mg/d!, not ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): R-ALA, EGCg, 3xeleu, Ru, 2 Sa, Sily, Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. vit. D3/K2-MK7 saturdays. (A2:0Se)
TALLIES July 26th:
A1=7+1 Pf#0 Qc#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1-2xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2->1, Ga#1:0.3g, Hon#1, Q10, 0Se, 1-2TMG#1 (0 Rup). = 12-14.
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14. sometimes 2x glutathione + 1x phytosterols, esp. if forgotten.
A3=5 Pf#3->2, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2 etc.
B=11 ALA, EGCg, Eleu more, Fev/MSM#1, Qc#3:0, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#(4+) Gi#2 Ol#1 0Pin#1 2TMG#2 (Eleu in B) 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt+1xphytosterols
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=11-13 vB2#3 1-2xB3#3 vB5#3 3xCr#3 Ga#(5+) Gi#3 Ol#2 0Pin#2 1-2TMG#3 Fev/MSM#2
after meal: 2xGlutt+1xphytosterols
E=5 Ell, Qc#(4->)3, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today: Forum bits’n’bobs.

Quality of life

Lessons in self-care: Good today to do some activities, even if only short, cos the backlash of a few hours is worth it - today.
Reasons to be cheerful:
a) Managing a little table tennis again, whatever the cost.
b) Re-planting more.
c) Baby robin very close while re-planting, recorded.
d) Mouse, actually called a “bank vole” in English also came close, could also record him, but
e) Robin just fluttered away and I saw he’d got something big, so I looked what it could be and saw the tongue burning walnuts right next to me I was gonna give to the birds anyway. He seems to love 'em, that’s great, didn’t realize that. If I leave those up front he’ll get it rather than Squirrel.
Simplified:
a) To get up from toilet better by “falling” forwards, I now turn before, as there’s
otherwise a wall right in front of me, which complicates matters… :wink:
b) Minimizing and slowing down movement to manage more.

Foggies: Foggy - head dulled I put my try somewhere where it didn’t fit. But I thought it should, so I put it there all the same, something needed to be pushed aside, turned out it was a cup half full with water and a spoon (for my bite itches), So fun guaranteed, spilled it all over stuff, then was slow deciding what to do… but saved everything.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-08-06 Sunday - Methylene blue trial, day #10 = 4 drops, worse again, giving up or micro-dosing. Better in the evening from 20:00 on, not stiff doing back exercises at 22:00, fairly clear headed, just a bit sort of tired-knackered, and quite good Monday morning.

If methylene blue is not helping, but causing new problems does that mean I haven’t got a mitochondrial problem after all?

What … worked / went wrong … today?:

:white_check_mark: Sleep no more than 8h, early sun, air all day, screen curfew at 8.
:white_check_mark: Insect bites OK.
:x: Methylene blue no help, only problems.

How was I today?:

Feeling 75%-ish (:white_check_mark:), energy today (:x:), sleep Saturday night :white_check_mark:, sleep Sunday night :white_check_mark:, nausea 0% :white_check_mark:, fog 30% (:x:).

Today working mainly on … watching changed supp effects, esp. methylene blue, watching where exactly in the body I sense stiffness (temporary “tendonitis”?) and Ache

1) Early circadian rhythm for a) energy/sleep & b) Ache

7’ workout? TT & garden was enough/too much.

1st meal a bit later, 2nd & 3rd early (slight intermittent fasting): :white_check_mark: :white_check_mark: (:x:),
whilst keeping food amount up :white_check_mark::white_check_mark::white_check_mark:. IF = 12.5h/11.5h (from /9:30 to ~21:00)
Bed early / up early (:white_check_mark:) (:white_check_mark:), screen time down (:x:) → Effective sleep :white_check_mark:.
“PEM” :x: vs. “Ache without exertion” = post postural Ache :x:. Definitely both today, but neither Monday morning.

:ping_pong: Since June 20th often winning (but hardly talking, not counting/picking up balls). First, 2-3 weeks 6-8 games a day, then 2 weeks holiday break, July 22nd-26th only 4 games a day, mostly won. July 27th 0:1 → 5:1, easy. July 28th-30th 4 games. July 31st to Aug 4th impossible cos of uro, Aug 5th 2:0, 6th 1:1.

1a) EXHAUSTIBILITY today: “88%". Energy down from June 30th, after great increase starting 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile/envelope (= slow, with "8h rest").

R rest: 100% exhaustion 50% of the time (8h),
VS very slow: 60% exhaustion 40% of the time (6h),
S slow: 40% exhaustion 10% of the time (2h),
M medium: 20% exhaustion 0% of the time (0h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 7h12, up 4x (63'), all deep ✅. 80%/2/5% drymouth30%(❌) sore throat10% tongue20%(❌) nostril/s0-10% dryhands20-0% stomach0-40❌-10% stools0 loose-10%, everything else OK ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 90%/2 ✅. 1x FCS ✅ at 7:15.

3rd meal time :white_check_mark:/:x:, screen time :white_check_mark:/:x:, tired :white_check_mark:/:x:. GABA A2?+A3?
A3 A4:0 teeth0 p0 FA/CS#0 HWB#0 Sleep 22:50- 3rd # is LBU
0:14 23’ 80%/2/15% p0 st2 sip fw2’ fl20’ deep/ air/ A4/
drymouth30% sore throat10% tongue20% nostril/s10/0% teeth0
1:48 22’ like 0:14 except A5/ nostrils 0% fw15’ fl0’
3:55 7’ like 1:48 except A6/ fw2’ stomach 40%.dryhands20%->cream/
5:52 11’ like 3:55 except A7/ stomach 20% nostrils 0/10%.stools loose-10%
-7:05 like 5:52 except B/ stomach 10% nostrils 0/5% tongue 10% stools loose0%
Sum: 1h10+7h05-(23+22+7+11)63’ = 8h15-63’ = 7h12, up 4x (63’), all deep. 80%/2/5% drymouth30% sore throat10% tongue20% nostril/s0-10% dryhands20-0% stomach0-40-10% stools0 loose-10% 1x FCS :white_check_mark: at 7:15.

1b) ACTIVITIESACHE = PEM (Post exertional malaise): TT 1:1 (moving 10%, talking 10%, counting 0%) ➔ 80%/3-4 :x:, but exhausted, gardening/moving ➔ 80%/2-3 :white_check_mark:, not talking, otherwise ➔ 80%/3-4 :x:, went to an exhibition for 30’-40’, had to walk, cos of the uro bloods tomorrow, walked as ponderously as possible, as it said there’s some graphic/troubling photos my wife had a look and told me which areas to keep away from, I did glance, but only quick, lots of troubling sad stuff, which is completely OK, just not for me anymore. White lips 40 (:white_check_mark:).
1c) REST/STIFFNESS ➔ ACHE At night st3-2 → 80%/3 :white_check_mark: Getting up - for how long?: Sunday morning st2 → 80%/3 :white_check_mark:, Monday morning st1 → 80%/2 :white_check_mark:, stayed that way :white_check_mark:.
Where stiffness, where Ache? Both in muscles, rather than tendons.
5:55 Where do I feel the Post postural Ache? Hardly muscle/tendon stiffness, hardly muscle Ache? And that continued, much better after stopping the methylene blue.

2) Histamine/MCAS symptoms

Nauseous sinus burning headache: Nope :white_check_mark:.
Tongue burning: A little (:x:). If that were from the uro exam, shouldn’t it be improving as the Ache from it is improving…?
Insect bite itch: :lotion_bottle: Oils on at ~11:00 :white_check_mark:, ~19:00 :white_check_mark:.
Excitement: From the exhibition a bit (:white_check_mark:), kept everything else down.

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. ENERGY DOWN to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, energy increased June 20th to 30th (>20%), and usually still quite higher after (16-20%), further symptoms down too. Increasing a little from July 25th.. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken theirs seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before. Stopped antihistamine I think in April, cos of zombification, dry mouth and I think more, and sleep still good from everything else. Once for dentist June 23rd wouldn’t have been necessary.

3) Docs:

Wrote down to ask tomorrow if he can do a biopsy incl. mast cells on when he does the bladder exam on the 21st. Also can’t remember if I mentioned thirst and dryness.

Last DOC update Aug 1st: Phoned about the forgotten bloods, going tomorrow. July 31st: Uro exam extremely painful, so forgot bloods - would have been tough anyway. Urine sample was no problem. The talk was disappointing in that he is nice, but definitely no oncologist, so it will still only be a pointer for cancer. July 26th: Phoned urologists/oncologists, the man at the reception was very friendly and asked helpful interested questions, I'm not used to that at all, and I got an appt. for next Monday, 31st, already, praps cos of the summer holidays. The urologist I'm assigned to has 3 reviews that sound promising, and "looks OK", young, interested and caring, like the reviews say. July 20th (added 25th): Got my onco labs at last: only eosinophilia visible to me (put the research on the 25th), GP has no idea, which warrants getting a "2nd" opinion, in absence of a 1st. July 13th: Unsuccessfully asked for my onco lab results. June 24th/25th: Teeth problems resolved for the time being. Waiting for onco report, “2nd” opinion or not? (“B symptoms” = night sweats, appetite, weight starting Feb/March resolved in June.) Click for details…
Click for details: Update July 26th: Got a cancer appt. on 31st. June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

4) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

Annoyances
:one: Tea tree oil on onychia :white_check_mark: and fungus on my right foot. :white_check_mark: Improvement not as quick as usual.
:two: Beau’s lines on thumbnails: Reduce washing :white_check_mark:, olive oil soap :white_check_mark:, moisturize :white_check_mark:/:x:. 7/8mm healthier thumbnail now. I’ve been reducing my use of the olive oil soap and that’s worsening the dryness, got to get that right way round in my head, I keep thinking soap is bad, but not this one.
:three: Slight gum inflammation from stuck food (:white_check_mark:): free :white_check_mark:.
Calendula essence for gum as well as CoV, praps umckaloabo too! :white_check_mark:
:four: I never lose pee at night, why?
15:20 I realized I was about to lose a drop of pee, so had to go to loo, after I’d just been 14:45 and 15:15 (5’ and 30’ ago). 16:25.

1) Symptoms well under control: GI (via elimination), pee (✅) (via GABA: ENOUGH ✅), LOCAL PAINS (exercises, back: via using wall/door for support) ✅ - right knee a bit out of nowhere, I think I can afford to just do simple stretches, otherwise I need to get the massager on it if it stays like that (pain of 3-4, but only short). Details...

except GI: stools loose0% :white_check_mark:, appetite :white_check_mark:, pee pain: 3p1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN / WIND ✅ (layering off and on all the time), THIRST (✅), dry mouth (day and) at night ❌. Last SEIZURES: Last SEIZURES: Aug 1st: 4-5x seizure-ish, so again GABA up, added 2x sublingual. July 25th seizure-ish 3-4x, so GABA up. July 17th: 2x. July 7th seizure-ish 4x. Jun 23rd 4x, Jun 16th, Jun 6th 2x ❌, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: July 23rd & 16th, May 31st (all 3 cos distracted), before that Apr 4th ✅. JAW solved for the time being since June 23rd. ✅

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Dry mouth (day and) at night has always been a problem, a stronger added real thirst making me drink a fourth litre of almond milk a day came up in April. Stopping the antihistamine completely has praps helped stop it become painfully sticky at night, so I don’t use the gel much any more.
Last focal seizures: Aug 1st: 4-5x seizure-ish. July 25th: seizure-ish 3-4x. July 17th: 18:30 19:55 after thunderstorm. July 7th seizur-ish 4x. Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Generally, mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. July 23rd cos distracted by the Kami stress. July 16th I was concentrating on testing if hazelnuts increase my nicotinic acid flush with my 3rd meal, and disregarded a slight throat pressure, which went totally wrong, was the last straw for an esophagus block, so had to get it out, lots came out, incl. supps, and needed to wait quite a bit afterwards. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more… - June 23rd: OK, the fillings were enough, solved for the time being.

Methylene blue trial, day #10 = 4 drops, worse again, so giving it up for the time being.

“I have heard the late ray peat mentioning he used it at doses similar to thyroid.Like around 40mcg” - I found that by people talking about methylene blue, so that may be an alternative to dumping it - 40mcg would be an 11th of one drop, so like I started.

I’d forgotten the phytosterols I got from my urologist, that’s +13€ → 435€/m, +1 supp.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - Aug 6th: 40 supps (was 42), costs 435€/m (was 470) +20€/m cps. Aug ~1st: pine bark again, + methylene blue + phytosterols, Aug 5th Feverfew & PQQ again. July 25th (updated almost everything too): Increased eleuthero, decrease theanine to 2x0.1g and quercetin, added EGCG, all 4 in the B-supps. Next: Methylene blue! LDN! Creatine?
SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

:white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Aug 6th: 40 supps (was 42), costs 435€/m (was 470) +20€/m cps. Schedule TODAY: OK. Aug ~1st: pine bark again, + methylene blue + phytosterols, Aug 5th Feverfew & PQQ again. July 25th: EGCg again, eleuthero up to 3 and above, quercetin down cos of more rutin than suggested, next: theanine divided up into 2x0.1g? Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, rupatadine/Rupafin, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of July 26th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before EGCg 3x1x(50%, incl. L-theanine?)113mg, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 3x4.5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0-0.1g, myo-inositol 1x2x0.5g/1!-2d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 2!x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x1x.5g, phytosterols 2x1x65mg, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 3!x1x.5g (down in B-supps cos more rutin than suggested), resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (1-2+1-2+1)x0.6=3.0g (as much as B3). NO rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated July 26th.
“16:00” preparing pills
“17:30” A1 PF#1:0, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xC#1, 2Cr#1, PF#(2->)1, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe. 1 phytosterols + 2 glutathione
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#(3->)2, 0.3gGABA & .6glu & Qc#2 Hon#2 + 1%:0 Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc., A5-A8, according to pee pain and seizure-ishness
B=11/ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3:0 Rs#1 2xSAM-e EGCg (from July 26th again) 3xEleu (forward from C to B-batch, maybe slowly increasing, even to 4g/d!) + Fev/MSM#1 + Sily +0.2->0.1The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
C=20 with meal: 1xB2#2 1-2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1, pine#1, 1-2xTMG#2 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol. 1 phytosterols + 2 glutathione
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 1-2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 1-2xTMG#3
0 xylitol. 1 phytosterols + 2 glutathione
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#(4=)3, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), July 26th

Pf: A1:0+A2+A3, vB2: 1C,1D, 1A. vB3: 1-2C,1-2D.1A, vB5: C+D+A. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3-a6(-a8), Gi: C,D0,D Glutathione: 2-3x after meals. Hon:A2.A3. MgThreo: 2C,2D,2A. Oliv: C,D. pine: C,D. Phytosterols with glutathione after meals. Qc: (B.)E.A1.A3. Ro:B,E Rs:B,E SINGLE: A1: 0xMgMal, luteolin. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (ubiquinone <150mg/d!, not ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): R-ALA, EGCg, 3xeleu, Ru, 2 Sa, Sily, Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. vit. D3/K2-MK7 saturdays. (A2:0Se)
TALLIES July 26th:
A1=7+1 Pf#0 Qc#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1-2xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2->1, Ga#1:0.3g, Hon#1, Q10, 0Se, 1-2TMG#1 (0 Rup). = 12-14.
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3->2, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2 etc.
B=11 ALA, EGCg, Eleu more, Fev/MSM#1, Qc#3:0, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#(4+) Gi#2 Ol#1 0Pin#1 2TMG#2 (Eleu in B) 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=11-13 vB2#3 1-2xB3#3 vB5#3 3xCr#3 Ga#(5+) Gi#3 Ol#2 0Pin#2 1-2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=5 Ell, Qc#(4->)3, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today:

To close sum tabs I excerpted stuff about methylene blue, bladder pain with mast cell and reasons for severe thirst.

Quality of life

Lessons in self-care:
a) Not doing much once again.
b) Spent too much time in the kitchen getting things sorted on the laptop my wife uses, cos she’ll be away and might wanna take it with her (and doesn’t know her way around it much).
Reasons to be cheerful:
a) Garden time with my wife was nice.
b) We saw a pigeon not fully grown up eating elderberries two gardens from ours. He was almost full size, had a small white ring around the eyes (binoculars), but no white neck yet and a lighter coloured beak. Maybe the twin of Kami, hope so.
c) By using the plant identifying tool I found that a flower I’d thought was a very different kind of marigold was actually “golden tickseed” (coreopsis) - very beautiful.
Simplified: If I rub the tea tree oil on my fungus with my thumbs then they’ll get moisturized at the same time. (There’s another similar one where I also fill 2 needs with one deed - wouldn’t want to use the “bird” phrase now, would I… ;-)).
Foggies:
a) Foggy - head dulled I put my tray somewhere where it didn’t fit. But I thought it should, so I put it there all the same, something needed to be pushed aside, turned out it was a cup half full with water and a spoon (for my bite itches), So fun guaranteed, spilled it all over stuff, then was slow deciding what to do… but saved everything.
b) Things keep falling cos I haven’t got things well under control.

Development

My wife asked if I wasn’t scared of uro/cancer results. Nope I’m taking it as it comes. .

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-08-07 Monday - Methylene blue trial, day #11: 0 drops = better again.

What … worked / went wrong … today?:

:white_check_mark: Sleep no more than 8h, early sun, air all day, screen curfew at 8 :white_check_mark:.
:white_check_mark: Insect bites OK.
:white_check_mark: Stopping methylene blue as it seemed :x: no help, only :x: problems, but praps micro-dosing sometime?

How was I today?:

Feeling 85%-ish (:white_check_mark:), energy today (:white_check_mark:), sleep Sunday night :white_check_mark:, sleep Monday night :white_check_mark:, nausea 0% (:white_check_mark:), fog 10% (:white_check_mark:).

Today working mainly on … watching changed supp effects, esp. methylene blue, watching where exactly in the body I sense stiffness (temporary “tendonitis”?) and Ache, getting & keeping energy back

1) Early circadian rhythm for a) energy/sleep & b) Ache

7’ workout? Nope, no after 6 games of table tennis and a bit more tougher garden stuff and a cycle walk in the evening too.

1st meal a bit later, 2nd & 3rd early (slight intermittent fasting): :white_check_mark: (:white_check_mark:) (:x:),
whilst keeping food amount up :white_check_mark::white_check_mark::white_check_mark:. IF = 13/11 (from /9:45 to /20:45)
Bed early / up early (:x:) (:white_check_mark:), screen time down (:white_check_mark:) → Effective sleep :white_check_mark:.
“PEM” (:white_check_mark:) vs. “Ache without exertion” = post postural Ache (:white_check_mark:). Better today, despite getting bloods taken!

:ping_pong: Since June 20th often winning (but hardly talking, not counting/picking up balls). First, 2-3 weeks 6-8 games a day, then 2 weeks holiday break, July 22nd-26th only 4 games a day, mostly won. July 27th 0:1 → 5:1, easy. July 28th-30th 4 games. July 31st to Aug 4th impossible cos of uro, Aug 5th 2:0, 6th 1:1, 7th 3:3 (=5:1?)

1a) EXHAUSTIBILITY today: “82%". Energy down from June 30th, after great increase starting 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile/envelope (= moderate, with "3h rest").

R rest: 100% exhaustion 20% of the time (3h),
VS very slow: 60% exhaustion 20% of the time (3h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 30% of the time (5h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 7h07, up 4x (1h05), all deep ✅. 3:45 massager cos of neck pains, stretches cos of tight left calf (which then as ever got worse, so massager at 7, that helped. drymouth30% sore throat5-10-20% tongue20% nostril/s0-?10%, everything else OK ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅. 1x FCS at 7:15 ✅.

3rd meal time (:white_check_mark:), screen time (:white_check_mark:), tired (:white_check_mark:). GABA A2/+A3/
A3 A4:0 teeth0 p0 FA/CS#0 HWB#0 Sleep 22:45- 3rd # is LBU
23:52 40’ 6 80%/2/5% p0 st2 sip fw2’ fl0’ deep/ air/ A4/
drymouth30% sore throat5% tongue20% A5/ teeth0
1:46 9’ like 23:52 except 70%/3/5% st4->3 fw6’ A6/ gel/ sore throat20%
3:36 13’ like 1:46 except 75%/2/5% st2/1 fw2’ A7/ sore throat10% massager cos of neck pains, stretches cos of tight left calve.
5:28 3’ like 3:36 except 75%/2/5% st2 fw2’ A8/ sore throat10%. no ex.
-6:57 like 5:8 except B/ sore throat 20% (had felt cold but no 3rd duvet), massager on left calf.
Sum: 1h15+6h57-(40+9+13+3=)65’ = 8h12-1h05 =

1b) ACTIVITIESACHE = PEM (Post exertional malaise): TT 5:1 (3:3, but mate ‘cheating’ ;-)) (moving 20%, talking 5%, counting 0%) ➔ 80%/2 :white_check_mark:, gardening/moving ➔ 80%/2 :white_check_mark:, talking ➔ 80%/3 :x:. White lips50% (:white_check_mark:).
1c) REST/STIFFNESS ➔ ACHE At night st3 → 80%/3 :white_check_mark:/:x: Getting up st2 → 80%/2 :white_check_mark:, later too.
Where stiffness, where Ache? Both much less today Monday, starting before getting up, similar Tuesday.

2) Histamine/MCAS symptoms

Nauseous sinus burning headache: Nope :white_check_mark:.
Tongue burning: A little (:x:).
Insect bite itch: no oils, no decreasing nec.
Excitement (:white_check_mark:): going to get the bloods done by bus and back takes some getting used to, on the way back the bus was so full I had to stand and mask.

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. ENERGY DOWN to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, energy increased June 20th to 30th (>20%), and usually still quite higher after (16-20%), further symptoms down too. Increasing a little from July 25th.. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken theirs seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before. Stopped antihistamine I think in April, cos of zombification, dry mouth and I think more, and sleep still good from everything else. Once for dentist June 23rd wouldn’t have been necessary.

3) Docs:

Aug 7th: Bloods taken for uro/onco - no problem, just she strangely asked what I want taken, so I said: everything.

Last DOC update Aug 7th: Bloods taken for uro/onco. Aug 1st: Phoned about the forgotten bloods. July 31st: Uro exam extremely painful, so forgot bloods - would have been tough anyway. Urine sample was no problem. The talk was disappointing in that he is nice, but definitely no oncologist, so it will still only be a pointer for cancer. July 26th: Phoned urologists/oncologists, the man at the reception was very friendly and asked helpful interested questions, I'm not used to that at all, and I got an appt. for next Monday, 31st, already, praps cos of the summer holidays. The urologist I'm assigned to has 3 reviews that sound promising, and "looks OK", young, interested and caring, like the reviews say. July 20th (added 25th): Got my onco labs at last: only eosinophilia visible to me (put the research on the 25th), GP has no idea, which warrants getting a "2nd" opinion, in absence of a 1st. July 13th: Unsuccessfully asked for my onco lab results. June 24th/25th: Teeth problems resolved for the time being. Waiting for onco report, “2nd” opinion or not? (“B symptoms” = night sweats, appetite, weight starting Feb/March resolved in June.) Click for details…
Click for details: Update Aug 7th: Uro/onco bloods. July 26th: Got a cancer appt. on 31st. June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

4) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

Annoyances
:one: Tea tree oil on onychia :white_check_mark: and fungus on my right foot. :white_check_mark: Almost done.
:two: Beau’s lines on thumbnails: Reduce washing :white_check_mark:, olive oil soap :white_check_mark:, moisturize :white_check_mark:/:x:. 7/8mm healthier thumbnail now.
:three: Slight gum inflammation from stuck food (:white_check_mark:): free :white_check_mark:.
Calendula essence for gum as well as CoV, praps umckaloabo too! :white_check_mark:
:four: I never lose pee at night, why?
:five: Neck and base of neck still has tendonitis & stiffness :x: from the Kami shock: massager at 3:45 :white_check_mark:
:six: Calf tightness :x:: stretches made it only temporarily better, than worse, but massager then helped in the morning :white_check_mark:.
:seven: Right knee seems OK :white_check_mark:.
:eight: Right foot seems OK now :white_check_mark:.

Loose stools 80% at 16:00 and 19:00, bloating after that - what from? Ahhh: Too many fresh blueberries! I’ve been eating tons and had another 400g or so today for the 2nd meal. They stop if you eat some dried, but mine were fresh, my wife had got me 2kg, so I’ve been eating loads of 'em, I love 'em. Great reason to eat lots of dark chocolate now ;).

1) Symptoms well under control: GI (via elimination), pee (via GABA: ENOUGH? ✅), LOCAL PAINS (exercises, back: via using wall/door for support) ✅. Details...

except GI: stools loose80% :white_check_mark:, appetite :white_check_mark:, pee pain: 3p1-2 :white_check_mark:, lower back unrest :white_check_mark:.

2) Symptoms fairly under control - click for details on Weather: SUN / WIND ✅ (layering off and on all the time), THIRST (✅), dry mouth (day and) at night ❌. Last SEIZURES: Last SEIZURES: Aug 1st: 4-5x seizure-ish, so again GABA up, added 2x sublingual. July 25th seizure-ish 3-4x, so GABA up. July 17th: 2x. July 7th seizure-ish 4x. Jun 23rd 4x, Jun 16th, Jun 6th 2x ❌, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: July 23rd & 16th, May 31st (all 3 cos distracted), before that Apr 4th ✅. JAW solved for the time being since June 23rd. ✅

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Dry mouth (day and) at night has always been a problem, a stronger added real thirst making me drink a fourth litre of almond milk a day came up in April. Stopping the antihistamine completely has praps helped stop it become painfully sticky at night, so I don’t use the gel much any more.
Last focal seizures: Aug 1st: 4-5x seizure-ish. July 25th: seizure-ish 3-4x. July 17th: 18:30 19:55 after thunderstorm. July 7th seizur-ish 4x. Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Generally, mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. July 23rd cos distracted by the Kami stress. July 16th I was concentrating on testing if hazelnuts increase my nicotinic acid flush with my 3rd meal, and disregarded a slight throat pressure, which went totally wrong, was the last straw for an esophagus block, so had to get it out, lots came out, incl. supps, and needed to wait quite a bit afterwards. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more… - June 23rd: OK, the fillings were enough, solved for the time being.

Methylene blue trial, day #11: 0 drops better again. Maybe micro-dosing, maybe there is a rest in my body which is doing some good?

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - Aug 6th: 40 supps (was 42), costs 435€/m (was 470) +20€/m cps. Aug ~1st: pine bark again, + methylene blue + polysterols, Aug 5th Feverfew & PQQ again. July 25th (updated almost everything too): Increased eleuthero, decrease theanine to 2x0.1g and quercetin, added EGCG, all 4 in the B-supps. Next: Methylene blue! LDN! Creatine?
SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

:white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Aug 6th: 40 supps (was 42), costs 435€/m (was 470) +20€/m cps. Schedule TODAY: OK. Aug ~1st: pine bark again, + methylene blue + phytosterols, Aug 5th Feverfew & PQQ again. July 25th: EGCg again, eleuthero up to 3 and above, quercetin down cos of more rutin than suggested, next: theanine divided up into 2x0.1g? Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, rupatadine/Rupafin, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of July 26th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before EGCg 3x1x(50%, incl. L-theanine?)113mg, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 3x4.5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0-0.1g, myo-inositol 1x2x0.5g/1!-2d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 2!x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x1x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 3!x1x.5g (down in B-supps cos more rutin than suggested), resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (1-2+1-2+1)x0.6=3.0g (as much as B3). NO rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated July 26th.
“16:00” preparing pills
“17:30” A1 PF#1:0, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xC#1, 2Cr#1, PF#(2->)1, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ Back exercises. 2x glutathione, 1x phytosterols
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#(3->)2, 0.3gGABA & .6glu & Qc#2 Hon#2 + 1%:0 Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc., A5-A8, according to pee pain and seizure-ishness
B=11/ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3:0 Rs#1 2xSAM-e EGCg (from July 26th again) 3xEleu (forward from C to B-batch, maybe slowly increasing, even to 4g/d!) + Fev/MSM#1 + Sily +0.2->0.1The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
C=20 with meal: 1xB2#2 1-2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1, pine#1, 1-2xTMG#2 2threo. PEA Rutin = 20. (vit.D3 1/wk)
2x glutathione, 1x phytosterols
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 1-2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 1-2xTMG#3
2x glutathione, 1x phytosterols
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#(4=)3, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), July 26th

Pf: A1:0+A2+A3, vB2: 1C,1D, 1A. vB3: 1-2C,1-2D.1A, vB5: C+D+A. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3-a6(-a8), Gi: C,D0,D Glutathione: 2-3x after meals. Hon:A2.A3. MgThreo: 2C,2D,2A. Oliv: C,D. pine: C,D. Qc: (B.)E.A1.A3. Ro:B,E Rs:B,E SINGLE: A1: 0xMgMal, luteolin. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (ubiquinone <150mg/d!, not ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): R-ALA, EGCg, 3xeleu, Ru, 2 Sa, Sily, Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. vit. D3/K2-MK7 saturdays. (A2:0Se)
TALLIES July 26th:
A1=7+1 Pf#0 Qc#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1-2xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2->1, Ga#1:0.3g, Hon#1, Q10, 0Se, 1-2TMG#1 (0 Rup). = 12-14.
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3->2, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2 etc.
B=11 ALA, EGCg, Eleu more, Fev/MSM#1, Qc#3:0, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#(4+) Gi#2 Ol#1 0Pin#1 2TMG#2 (Eleu in B) 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=11-13 vB2#3 1-2xB3#3 vB5#3 3xCr#3 Ga#(5+) Gi#3 Ol#2 0Pin#2 1-2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=5 Ell, Qc#(4->)3, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today: Bits’n’bobs.

Quality of life

Lessons in self-care: Got to ´start getting used to bus, however now I’m feeling better I can cycle a bit more again.
Reasons to be cheerful:
a) Bloods no problem.
b) Much better suddenly!
c) Re-planting even more in the garden. First they have problems, but then I re-position, put more earth around the base and now most are doing fine.
d) Pigeons getting closer.
Simplified: I think there was one thing. Of course having more energy simplifies everything…
Foggies: Foggy - head dulled I put my try somewhere where it didn’t fit. But I thought it should, so I put it there all the same, something needed to be pushed aside, turned out it was a cup half full with water and a spoon (for my bite itches), So fun guaranteed, spilled it all over stuff, then was slow deciding what to do… but saved everything.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-08-08 Tuesday - Methylene blue day #12: 0. 2nd better day.

What … worked / went wrong … today?:

:white_check_mark: Sleep no more than 8h, early sun, air all day, screen curfew at 8.
:white_check_mark: No insect bites.
:white_check_mark: Much more energy, partly cos the uro exam trigger has worn off, but mainly from :white_check_mark: stopping the methylene blue and from :white_check_mark: having started off and adjusted my supps again.

How was I today?:

Feeling 85%-ish (:white_check_mark:), energy today (:white_check_mark:), sleep Monday night (:white_check_mark:), sleep Tuesday night :white_check_mark:, nausea 0(-10)% (:white_check_mark:), fog 10% (:white_check_mark:), no bites :white_check_mark: .

Today working mainly on … getting & keeping energy back, watching changed supp effects, watching where/how I sense stiffness and Ache, - LDN or micro-dosing methylene blue next?

1) Early circadian rhythm for a) energy/sleep & b) Ache

7’ workout? Nope, but quite a bit altogether.

1st meal a bit later, 2nd & 3rd early (slight intermittent fasting): :white_check_mark: (:x:) (:x:),
whilst keeping food amount up :white_check_mark:(:white_check_mark:)(:white_check_mark:). IF = 12/12 (from /9:00 to /21:00)
Bed early / up early (:white_check_mark:) (:white_check_mark:), screen time down (:white_check_mark:) → Effective sleep :white_check_mark:.
“PEM” (:white_check_mark:) vs. “Ache without exertion” = post postural Ache (:white_check_mark:). Had much less of both - when the limits become more generous we see them less, but they were there all the time.

:ping_pong: Since June 20th often winning (but hardly talking, not counting/picking up balls). First, 2-3 weeks 6-8 games a day, then 2 weeks holiday break, July 22nd-26th only 4 games a day, mostly won. July 27th 0:1 → 5:1, easy. July 28th-30th 4 games. July 31st to Aug 4th impossible cos of uro, Aug 5th 2:0, 6th 1:1, 7th “5:1”, 8th 5:1.

1a) EXHAUSTIBILITY today: “82%". Energy down from June 30th, after great increase starting 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile/envelope (= moderate, with "3h rest").

R rest: 100% exhaustion 20% of the time (3h),
VS very slow: 60% exhaustion 20% of the time (3h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 30% of the time (5h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 7h48, up 4x (30'), all deep. 80-70%/2/5% drymouth30% sore throat10% tongue10% nausea0-10-5% headache0-30-40% ✅/❌, everything else OK ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅. 1x FCS ✅ at 7:15

3rd meal time (:x:), screen time (:white_check_mark:), tired (:white_check_mark:). GABA A2/+A3/
A3 A4:0 teeth0 p0 FA/CS#0 HWB#0 Sleep 22:45- 3rd # is LBU
0:12 14’ 80%/2/5% p0 st3-2 sip fw10’ fl0’ deep/ air/ A4/
drymouth30% sore throat10% tongue10 teeth0
2:05 4’ like 0:12 except fw2’ A5/ cold → long sleeve on.
3:38 8’ ike 2:05 except A6/ (70%/3/5%, nausea 10% headache 30%) teeth/
6:04 4’ like 3:38 except A7/ (") SENSE OF BALANCE WONKY!.
-7:03 like 6:04 except B/ (60%/1/5%, nausea5% head40%) BALANCE!
Sum: 1h15+7h03-(14+4+8+4=)30’ = 8h18-30’ =

1b) ACTIVITIESACHE = PEM (Post exertional malaise): TT 5:1 (moving 15%, talking 10%, counting 0%) ➔ 80%/3 :white_check_mark:, gardening/moving ➔ 80%/2 :white_check_mark:, talking (short) ➔ 80%/3 (:white_check_mark:). White lips: dunno.
1c) REST/STIFFNESS ➔ ACHE At night st2 → 80%/2 :white_check_mark:. Getting up all clouded over by vertigo & nausea… :x:
Where stiffness, where Ache? Much less.

2) Histamine/MCAS symptoms

Nauseous sinus burning headache: Nope :white_check_mark:, but just sinus burning from when we went into a supermarket till later in the evening.
Tongue burning: Less :white_check_mark:.
No insect bite itch. :white_check_mark:
Excitement :white_check_mark:, nothing that could cause that, but I would maybe have tolerated more today.

I NEED TO UPDATE THE ENERGY CURVE HERE:

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. ENERGY DOWN to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, energy increased June 20th to 30th (>20%), and usually still quite higher after (16-20%), further symptoms down too. Increasing a little from July 25th.. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken theirs seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before. Stopped antihistamine I think in April, cos of zombification, dry mouth and I think more, and sleep still good from everything else. Once for dentist June 23rd wouldn’t have been necessary.

3) Docs:

Last DOC update Aug 7th: Bloods taken for uro/onco. Aug 1st: Phoned about the forgotten bloods. July 31st: Uro exam extremely painful, so forgot bloods - would have been tough anyway. Urine sample was no problem. The talk was disappointing in that he is nice, but definitely no oncologist, so it will still only be a pointer for cancer. July 26th: Phoned urologists/oncologists, the man at the reception was very friendly and asked helpful interested questions, I'm not used to that at all, and I got an appt. for next Monday, 31st, already, praps cos of the summer holidays. The urologist I'm assigned to has 3 reviews that sound promising, and "looks OK", young, interested and caring, like the reviews say. July 20th (added 25th): Got my onco labs at last: only eosinophilia visible to me (put the research on the 25th), GP has no idea, which warrants getting a "2nd" opinion, in absence of a 1st. July 13th: Unsuccessfully asked for my onco lab results. June 24th/25th: Teeth problems resolved for the time being. Waiting for onco report, “2nd” opinion or not? (“B symptoms” = night sweats, appetite, weight starting Feb/March resolved in June.) Click for details…
Click for details: Aug 7th: Bloods taken for uro/onco. Update July 26th: Got a cancer appt. on 31st. June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

4) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

Annoyances
:one: Tea tree oil on onychia :white_check_mark: and fungus on my right foot. :white_check_mark: Improved.
:two: Beau’s lines on thumbnails: Reduce washing :white_check_mark:, olive oil soap :white_check_mark:, moisturize :white_check_mark:/:x:. 7/8mm healthier thumbnail now.
:three: Slight gum inflammation from stuck food (:white_check_mark:): free :white_check_mark:.
Calendula essence for gum as well as CoV, praps umckaloabo too! :white_check_mark:
:four: I never lose pee at night, why?
:five: Neck and base of neck: massager :white_check_mark:, but still stretching
:six: Calf tightness :x:: massager :white_check_mark:, and stretching.
:seven: Right knee seems OK :white_check_mark:.
:eight: Right foot seems OK now :white_check_mark:, and stretching.

1) Symptoms well under control: GI (via elimination) - just about OK with less blueberries, pee (via GABA: ENOUGH ✅) - less now the Ache is down, LOCAL PAINS (exercises, back: via using wall/door for support) ✅. Details...

except GI: stools loose10% :white_check_mark:, appetite :white_check_mark:, pee pain: 2p1-2 :white_check_mark:, lower back unrest :white_check_mark:.

Esophagus block today from carrots, then chocolate over that was then too much, altho chocolate normally is never a problem.

2) Symptoms fairly under control - click for details on Weather: SUN / WIND ✅ (layering off and on all the time), THIRST (✅), dry mouth (day and) at night ❌. Last SEIZURES: Last SEIZURES: Aug 1st: 4-5x seizure-ish, so again GABA up, added 2x sublingual. July 25th seizure-ish 3-4x, so GABA up. July 17th: 2x. July 7th seizure-ish 4x. Jun 23rd 4x, Jun 16th, Jun 6th 2x ❌, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: Aug 8th, July 23rd & 16th, May 31st (all 3 cos distracted), before that Apr 4th ✅. JAW solved for the time being since June 23rd. ✅

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Dry mouth (day and) at night has always been a problem, a stronger added real thirst making me drink a fourth litre of almond milk a day came up in April. Stopping the antihistamine completely has praps helped stop it become painfully sticky at night, so I don’t use the gel much any more.
Last focal seizures: Aug 1st: 4-5x seizure-ish. July 25th: seizure-ish 3-4x. July 17th: 18:30 19:55 after thunderstorm. July 7th seizur-ish 4x. Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Generally, mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. Aug 8th carrots. July 23rd cos distracted by the Kami stress. July 16th I was concentrating on testing if hazelnuts increase my nicotinic acid flush with my 3rd meal, and disregarded a slight throat pressure, which went totally wrong, was the last straw for an esophagus block, so had to get it out, lots came out, incl. supps, and needed to wait quite a bit afterwards. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more… - June 23rd: OK, the fillings were enough, solved for the time being.

Methylene blue trial, day #12: 0.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - Aug 6th: 40 supps (was 42), costs 435€/m (was 470) +20€/m cps. Aug ~1st: pine bark again, + methylene blue + polysterols, Aug 5th Feverfew & PQQ again. July 25th (updated almost everything too): Increased eleuthero, decrease theanine to 2x0.1g and quercetin, added EGCG, all 4 in the B-supps. Next: Methylene blue! LDN! Creatine?
SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

:white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Aug 6th: 40 supps (was 42), costs 435€/m (was 470) +20€/m cps. Schedule TODAY: OK. Aug ~1st: pine bark again, + methylene blue + phytosterols, Aug 5th Feverfew & PQQ again. July 25th: EGCg again, eleuthero up to 3 and above, quercetin down cos of more rutin than suggested, next: theanine divided up into 2x0.1g? Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, rupatadine/Rupafin, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of July 26th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before EGCg 3x1x(50%, incl. L-theanine?)113mg, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 3x4.5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0-0.1g, myo-inositol 1x2x0.5g/1!-2d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 2!x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x1x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 3!x1x.5g (down in B-supps cos more rutin than suggested), resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (1-2+1-2+1)x0.6=3.0g (as much as B3). NO rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated July 26th.
“16:00” preparing pills
“17:30” A1 PF#1:0, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xC#1, 2Cr#1, PF#(2->)1, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ Back exercises. 2x glutathione, 1x phytosterols
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#(3->)2, 0.3gGABA & .6glu & Qc#2 Hon#2 + 1%:0 Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc., A5-A8, according to pee pain and seizure-ishness
B=11/ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3:0 Rs#1 2xSAM-e EGCg (from July 26th again) 3xEleu (forward from C to B-batch, maybe slowly increasing, even to 4g/d!) + Fev/MSM#1 + Sily +0.2->0.1The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
C=20 with meal: 1xB2#2 1-2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1, pine#1, 1-2xTMG#2 2threo. PEA Rutin = 20. (vit.D3 1/wk)
2x glutathione, 1x phytosterols
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 1-2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 1-2xTMG#3
2x glutathione, 1x phytosterols
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#(4=)3, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), July 26th

Pf: A1:0+A2+A3, vB2: 1C,1D, 1A. vB3: 1-2C,1-2D.1A, vB5: C+D+A. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3-a6(-a8), Gi: C,D0,D Glutathione: 2-3x after meals. Hon:A2.A3. MgThreo: 2C,2D,2A. Oliv: C,D. pine: C,D. Qc: (B.)E.A1.A3. Ro:B,E Rs:B,E SINGLE: A1: 0xMgMal, luteolin. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (ubiquinone <150mg/d!, not ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): R-ALA, EGCg, 3xeleu, Ru, 2 Sa, Sily, Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. vit. D3/K2-MK7 saturdays. (A2:0Se)
TALLIES July 26th:
A1=7+1 Pf#0 Qc#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1-2xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2->1, Ga#1:0.3g, Hon#1, Q10, 0Se, 1-2TMG#1 (0 Rup). = 12-14.
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3->2, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2 etc.
B=11 ALA, EGCg, Eleu more, Fev/MSM#1, Qc#3:0, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#(4+) Gi#2 Ol#1 0Pin#1 2TMG#2 (Eleu in B) 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=11-13 vB2#3 1-2xB3#3 vB5#3 3xCr#3 Ga#(5+) Gi#3 Ol#2 0Pin#2 1-2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=5 Ell, Qc#(4->)3, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today: Bits’n’bobs

Quality of life

Lessons in self-care: Carefully dosed, so still some energy left in the evening for shop and looking at 2 public pieces of art, the graffiti a 2nd time, this time at length.
Reasons to be cheerful: Wow, bit more normality 2nd day in a row.
Simplified: Dunno.
Foggies: Not much at all.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-08-09 Wednesday - vertigo & nausea, so emergency dept. from 13:00 to 19:00 with stroke suspicion, probably not, but 19:00 monitoring station for a few days… (methylene blue day #13: 0.

What … worked / went wrong … today?:

:white_check_mark: Sleep no more than 8h, early sun, but :x: no air all day, :x: no screen curfew at 8, but not much screen a lot of the day, just waiting.
:white_check_mark: No insect bites.
:x: Lots went wrong…

How was I today?:

Feeling 50%-ish :x:, energy today (:x:), sleep Tuesday night (:white_check_mark:), sleep Wednesday night (:white_check_mark:) (considering), nausea 0(-10)% (:white_check_mark:), fog 10% (:white_check_mark:), no bites :white_check_mark:.

Today working mainly on … getting a cause of the vertigo and wonky gait found.

1) Early circadian rhythm for a) energy/sleep & b) Ache

7’ workout? No chance.

1st meal a bit later, 2nd & 3rd early (slight intermittent fasting): :white_check_mark: at 12:00, at 18:00 + a bit at 20:30 (:white_check_mark:)/(:x:), all messed up cos of vertigo/nausea.
whilst keeping food amount up (:white_check_mark:)(:white_check_mark:)(:white_check_mark:). IF = 15/9 (from 12:00 to ~21:00)
Bed early / up early (:white_check_mark:) :white_check_mark:, screen time down (:x:) → Effective sleep (:white_check_mark:).
“PEM” :x: vs. “Ache without exertion” = post postural Ache :x:.

:ping_pong: Since June 20th often winning (but hardly talking, not counting/picking up balls). First, 2-3 weeks 6-8 games a day, then 2 weeks holiday break, July 22nd-26th only 4 games a day, mostly won. July 27th 0:1 → 5:1, easy. July 28th-30th 4 games. July 31st to Aug 4th impossible cos of uro backlash, Aug 5th 2:0, 6th 1:1, 7th “5:1”, 8th 5:1, 9th on impossible cos of stroke suspicion.
Exhaustibility unclear, I don’t think it’s gone up, actually.

1a) EXHAUSTIBILITY today: “?%-". Energy down from June 30th, after great increase starting 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile/envelope (= ?, with "? rest").
SLEEP (click for details): 7h39, up 5x (21'), not particularly deep ❌ from all the beeps of the monitors, but good considering ✅, 70%/2/5% drymouth30% sore throat0-20% tongue10-20% nostril/s0-10% nausea0-10?% headache0-10% ✅, everything else OK ➔ Feeling 70% well, Ache 2 of 7 ✅, getting up: 70%/2 ✅. 1x FCS ✅ at 7:15.

3rd meal time :x:, screen time :x:, tired :white_check_mark:. GABA A2:0+A3:0
A3:0 A4:0 teeth0 p0 FA/CS#0 HWB#0 Sleep 22:30- 3rd # is LBU
5x3’ 70%/2/15% p0 st2 sip fw0’ fl0’ deep/ air//- A4/
Sum: 1h30+6h30-(5*3=)21’ = 8h-21’ =

1b) ACTIVITIESACHE = PEM (Post exertional malaise): So much rest that even some short talking is no problem ➔ 80%/?3 :x:. White lips: dunno.
1c) REST/STIFFNESS ➔ ACHE At night st3 → 80%/3 :white_check_mark:/:x: Getting up - for how long?: st3 → 80%/3 :white_check_mark:/:x:, Later less? :white_check_mark:/:x:
Where stiffness, where Ache? Everywhere, but not too much, cos so much rest.

2) Histamine/MCAS symptoms

Nauseous sinus burning headache: Nope :white_check_mark:.
Tongue burning: Slight :white_check_mark:.
Excitement :white_check_mark:: only the sheer amount of interviews with all the docs is a bit of a lot, and when co-patient had loud-speaking visitors for 2.5h.

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. ENERGY DOWN to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, energy increased June 20th to 30th (>20%), and usually still quite higher after (16-20%), further symptoms down too. Increasing a little from July 25th.. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken theirs seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before. Stopped antihistamine I think in April, cos of zombification, dry mouth and I think more, and sleep still good from everything else. Once for dentist June 23rd wouldn’t have been necessary.

3) Docs:

Last DOC update Aug 9th: Suspicion of stroke cos of severe vertigo, wonky gait, high blood pressure. Aug 7th: Bloods taken for uro/onco. Aug 1st: Phoned about the forgotten bloods. July 31st: Uro exam extremely painful, so forgot bloods - would have been tough anyway. Urine sample was no problem. The talk was disappointing in that he is nice, but definitely no oncologist, so it will still only be a pointer for cancer. July 26th: Phoned urologists/oncologists, the man at the reception was very friendly and asked helpful interested questions, I'm not used to that at all, and I got an appt. for next Monday, 31st, already, praps cos of the summer holidays. The urologist I'm assigned to has 3 reviews that sound promising, and "looks OK", young, interested and caring, like the reviews say. July 20th (added 25th): Got my onco labs at last: only eosinophilia visible to me (put the research on the 25th), GP has no idea, which warrants getting a "2nd" opinion, in absence of a 1st. July 13th: Unsuccessfully asked for my onco lab results. June 24th/25th: Teeth problems resolved for the time being. Waiting for onco report, “2nd” opinion or not? (“B symptoms” = night sweats, appetite, weight starting Feb/March resolved in June.) Click for details…
Click for details: Aug 9th: Suspicion of stroke cos of severe vertigo, wonky gait, high blood pressure. Aug 7th: Bloods taken for uro/onco. Update July 26th: Got a cancer appt. on 31st. June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

4) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

Annoyances
:one: Tea tree oil on onychia :white_check_mark: and fungus on my right foot. :white_check_mark: Improved.
:two: Beau’s lines on thumbnails: Reduce washing :white_check_mark:, olive oil soap :white_check_mark:, moisturize :white_check_mark:/:x:. 7/8mm healthier thumbnail now.
:three: Slight gum inflammation from stuck food (:white_check_mark:): free :white_check_mark:.
Calendula essence for gum as well as CoV, praps umckaloabo too! :white_check_mark:
:four: I never lose pee at night, why?
:five: Neck and base of neck: massager :white_check_mark:
:six: Calf tightness :white_check_mark:: no massager

1) Symptoms well under control: GI (via elimination), pee (via GABA: ENOUGH. ✅), LOCAL PAINS (exercises, back: via using wall/door for support) ✅. Details...

except GI: stools loose0% :white_check_mark:, appetite :white_check_mark:, pee pain: 0p1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN / WIND ?✅ (layering off and on all the time), THIRST (✅), dry mouth (day and) at night ❌. Last SEIZURES: Last SEIZURES: Aug 8th: 2x. Aug 1st: 4-5x seizure-ish, so again GABA up, added 2x sublingual. July 25th seizure-ish 3-4x, so GABA up. July 17th: 2x. July 7th seizure-ish 4x. Jun 23rd 4x, Jun 16th, Jun 6th 2x, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: Aug 8th, July 23rd & 16th, May 31st (all 3 cos distracted), before that Apr 4th ✅. JAW solved for the time being since June 23rd. ✅

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Dry mouth (day and) at night has always been a problem, a stronger added real thirst making me drink a fourth litre of almond milk a day came up in April. Stopping the antihistamine completely has praps helped stop it become painfully sticky at night, so I don’t use the gel much any more.
Last focal seizures: Aug 9th: 13:42 first full focal flare, right hand before, 15:40 2nd, not right hand before. Aug 1st: 4-5x seizure-ish. July 25th: seizure-ish 3-4x. July 17th: 18:30 19:55 after thunderstorm. July 7th seizur-ish 4x. Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Generally, mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. Aug 8th: carrot, then chocolate. July 23rd cos distracted by the Kami stress. July 16th I was concentrating on testing if hazelnuts increase my nicotinic acid flush with my 3rd meal, and disregarded a slight throat pressure, which went totally wrong, was the last straw for an esophagus block, so had to get it out, lots came out, incl. supps, and needed to wait quite a bit afterwards. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more… - June 23rd: OK, the fillings were enough, solved for the time being.

Methylene blue trial, day #13: 0

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - Aug 6th: 40 supps (was 42), costs 435€/m (was 470) +20€/m cps. Aug ~1st: pine bark again, + methylene blue + polysterols, Aug 5th Feverfew & PQQ again. July 25th (updated almost everything too): Increased eleuthero, decrease theanine to 2x0.1g and quercetin, added EGCG, all 4 in the B-supps. Next: Methylene blue! LDN! Creatine?
SELF-PHYSIO (click for details): All too late and too little today. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

:white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Aug 6th: 40 supps (was 42), costs 435€/m (was 470) +20€/m cps. Schedule TODAY: not OK, but no bad reactions, cos managed the most important bits.. Aug ~1st: pine bark again, + methylene blue + phytosterols, Aug 5th Feverfew & PQQ again. July 25th: EGCg again, eleuthero up to 3 and above, quercetin down cos of more rutin than suggested, next: theanine divided up into 2x0.1g? Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, rupatadine/Rupafin, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of July 26th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before EGCg 3x1x(50%, incl. L-theanine?)113mg, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 3x4.5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0-0.1g, myo-inositol 1x2x0.5g/1!-2d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 2!x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x1x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 3!x1x.5g (down in B-supps cos more rutin than suggested), resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (1-2+1-2+1)x0.6=3.0g (as much as B3). NO rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated July 26th.
“16:00” preparing pills
“17:30” A1 PF#1:0, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xC#1, 2Cr#1, PF#(2->)1, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ Back exercises. 2x glutathione, 1x phytosterols
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#(3->)2, 0.3gGABA & .6glu & Qc#2 Hon#2 + 1%:0 Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc., A5-A8, according to pee pain and seizure-ishness
B=11/ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3:0 Rs#1 2xSAM-e EGCg (from July 26th again) 3xEleu (forward from C to B-batch, maybe slowly increasing, even to 4g/d!) + Fev/MSM#1 + Sily +0.2->0.1The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
C=20 with meal: 1xB2#2 1-2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1, pine#1, 1-2xTMG#2 2threo. PEA Rutin = 20. (vit.D3 1/wk)
2x glutathione, 1x phytosterols
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 1-2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 1-2xTMG#3
2x glutathione, 1x phytosterols
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#(4=)3, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), July 26th

Pf: A1:0+A2+A3, vB2: 1C,1D, 1A. vB3: 1-2C,1-2D.1A, vB5: C+D+A. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3-a6(-a8), Gi: C,D0,D Glutathione: 2-3x after meals. Hon:A2.A3. MgThreo: 2C,2D,2A. Oliv: C,D. pine: C,D. Qc: (B.)E.A1.A3. Ro:B,E Rs:B,E SINGLE: A1: 0xMgMal, luteolin. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (ubiquinone <150mg/d!, not ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): R-ALA, EGCg, 3xeleu, Ru, 2 Sa, Sily, Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. vit. D3/K2-MK7 saturdays. (A2:0Se)
TALLIES July 26th:
A1=7+1 Pf#0 Qc#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1-2xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2->1, Ga#1:0.3g, Hon#1, Q10, 0Se, 1-2TMG#1 (0 Rup). = 12-14.
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3->2, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2 etc.
B=11 ALA, EGCg, Eleu more, Fev/MSM#1, Qc#3:0, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#(4+) Gi#2 Ol#1 0Pin#1 2TMG#2 (Eleu in B) 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=11-13 vB2#3 1-2xB3#3 vB5#3 3xCr#3 Ga#(5+) Gi#3 Ol#2 0Pin#2 1-2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=5 Ell, Qc#(4->)3, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today: Nope.

Quality of life

Lessons in self-care: Takin’ it easy. Maybe building up energy?
Reasons to be cheerful: Much better knowing and saying and doing what I need even in a foreign environment like a hospital.
Simplified: Well, life is pretty simple on a hospital ward, but my exotic needs do make for a few surprises, for myself it’s already simplified, I think the simplest thing is: saying what I need.
Foggies: Not doing much to see fog effects, but most of the time something has been dulled in my head…

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-08-10 Thursday - Lots of tests and help in the stroke unit - results up to now: no stroke. (Methylene blue day #14: 0.)

What … worked / went wrong … today?:

:white_check_mark: Sleep no more than 8h, early sun, as much air as possible (the window kept being closed…), screen curfew at 8 - well, less after 8, anyway.
:white_check_mark: Lots of scans, bloods, talks, help.

How was I today?:

Feeling 80%-ish (:white_check_mark:), energy today (:white_check_mark:) - not sure, sleep Wednesday night (:white_check_mark: - considering), sleep Thursday night :white_check_mark:, nausea 0(-10)% (:white_check_mark:), fog 10% (:white_check_mark:), no bites :white_check_mark: .

Today working mainly on … loads of bloods, scans, balancing exercises.

1) Early circadian rhythm for a) energy/sleep & b) Ache

7’ workout? No chance, not “allowed” to, but also not able.

1st meal a bit later, 2nd & 3rd early (slight intermittent fasting): :white_check_mark: (:white_check_mark:) (:white_check_mark:),
whilst keeping food amount up (:white_check_mark:)(:white_check_mark:)(:white_check_mark:). IF = 13/11 (from ~9:00 to ~20:00)
Bed early / up early :white_check_mark: :white_check_mark:, screen time down (:white_check_mark:) → Effective sleep :white_check_mark:.
Not much “PEM” :white_check_mark: vs. “Ache without exertion” = post postural Ache :white_check_mark:.
But Friday morning PEM: Arms very heavy trying to encapsulate supps.

:ping_pong: Since June 20th often winning (but hardly talking, not counting/picking up balls). First, 2-3 weeks 6-8 games a day, then 2 weeks holiday break, July 22nd-26th only 4 games a day, mostly won. July 27th 0:1 → 5:1, easy. July 28th-30th 4 games. July 31st to Aug 4th impossible cos of uro, Aug 5th 2:0, 6th 1:1, 7th “5:1”, 8th 5:1, from 9th on impossible cos of stroke exclusion.

1a) EXHAUSTIBILITY today: “88%". Energy down from June 30th, after great increase starting 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile/envelope (= very slow, with "14h rest") - seemed as if I might be able to do more, if I weren't being monitored, but Friday morning I wasn't.

R rest: 100% exhaustion 90% of the time (14h),
VS very slow: 60% exhaustion 20% of the time (1h),
S slow: 40% exhaustion 5% of the time (1h),
M medium: 20% exhaustion 5% of the time (0h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

"SLEEP (click for details): 7h57, up 4x (23'), all very deep ✅. 80%/2/5% drymouth30% sore throat10% (window open) tongue10-20% nostril/s0-10% nausea0-10% sinuses0-20% ✅, everything else OK ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 70-80%/2 ✅. 1x FCS ✅

3rd meal time :white_check_mark:/:x:, screen time :white_check_mark:/:x:, tired :white_check_mark:/:x:. GABA A2?+A3?
A3 A4:0 teeth0 p0 FA/CS#0 HWB#0 Sleep 21:55- 3rd # is LBU air//->
23:50 8’ 80%/2/5% p0 st3 sip fw2’ fl0’ deep/ A4/
drymouth30% sore throat10% (window open) tongue10-20% teeth0
1:29 7’ like 23:50 except st2 A5/
4:37 4’ like 1:29 except A6/
5:57 4’ like 1:29 except A7/ nostrils10%, sinuses 20% nausea 0-10%
-6:15 like 1:29 except B/
Sum: 2h05+6h15-(8+7+4+4)23’ = 8h20-23’ =

1b) ACTIVITIESACHE = PEM (Post exertional malaise): So much rest that even some short talking is no problem ➔ 80%/2 :white_check_mark:. White lips: dunno.
1c) REST/STIFFNESS ➔ ACHE At night st2 → 80%/2 :white_check_mark:. Getting up - quite good for 2h: st2 → 80%/2 :white_check_mark:, increasing vertigo and heaviness.
Where stiffness, where Ache? Rest.

2) Histamine/MCAS symptoms

Nauseous sinus burning headache: Nope :white_check_mark:.
Tongue burning: Slight :white_check_mark:.
No insect bites.
Excitement :white_check_mark:: only the sheer amount of interviews with all the docs/therapists is a bit of a lot, and when co-patient had loud-speaking visitors for 2.5h.

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. ENERGY DOWN to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, energy increased June 20th to 30th (>20%), and usually still quite higher after (16-20%), further symptoms down too. Increasing a little from July 25th.. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken theirs seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before. Stopped antihistamine I think in April, cos of zombification, dry mouth and I think more, and sleep still good from everything else. Once for dentist June 23rd wouldn’t have been necessary.

3) Docs:

Last DOC update Aug 10th: Lots of bloods, scans, "interviews". Aug 9th: Suspicion of stroke cos of severe vertigo, wonky gait, high blood pressure. Aug 7th: Bloods taken for uro/onco. Aug 1st: Phoned about the forgotten bloods. July 31st: Uro exam extremely painful, so forgot bloods - would have been tough anyway. Urine sample was no problem. The talk was disappointing in that he is nice, but definitely no oncologist, so it will still only be a pointer for cancer. July 26th: Phoned urologists/oncologists, the man at the reception was very friendly and asked helpful interested questions, I'm not used to that at all, and I got an appt. for next Monday, 31st, already, praps cos of the summer holidays. The urologist I'm assigned to has 3 reviews that sound promising, and "looks OK", young, interested and caring, like the reviews say. July 20th (added 25th): Got my onco labs at last: only eosinophilia visible to me (put the research on the 25th), GP has no idea, which warrants getting a "2nd" opinion, in absence of a 1st. July 13th: Unsuccessfully asked for my onco lab results. June 24th/25th: Teeth problems resolved for the time being. Waiting for onco report, “2nd” opinion or not? (“B symptoms” = night sweats, appetite, weight starting Feb/March resolved in June.) Click for details…
Click for details: Aug 10th: Lots of bloods, scans, "interviews". Aug 9th: Suspicion of stroke cos of severe vertigo, wonky gait, high blood pressure. Aug 7th: Bloods taken for uro/onco. Update July 26th: Got a cancer appt. on 31st. June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

4) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

Annoyances
:one: Tea tree oil on onychia :white_check_mark: and fungus on my right foot. :white_check_mark: Improved, almost gone, just a new small speck, gotta keep on my toes :rofl:
:two: Beau’s lines on thumbnails: Reduce washing :white_check_mark:, olive oil soap :white_check_mark:, moisturize :white_check_mark:/:x:. 7/8mm healthier thumbnail now.
:three: Slight gum inflammation from stuck food (:white_check_mark:): free :white_check_mark:.
Calendula essence for gum as well as CoV, praps umckaloabo too. :x: Friday morning 1st day without the slightest stinging when cleaning. :white_check_mark:
:four: I never lose pee at night, why?
:five: Neck and base of neck: stretches :white_check_mark: / massager :white_check_mark:

1) Symptoms well under control: GI (via elimination), pee (via GABA: ENOUGH. ✅), LOCAL PAINS (exercises, back: via using wall/door for support) ✅. Details...

except GI: stools loose0% :white_check_mark:, appetite :white_check_mark:, pee pain: 0p1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN / WIND ✅ (on the ward most of the time, but out for 3x5' waiting for the MRI), THIRST (✅), dry mouth (day and) at night ❌. Last SEIZURES: Aug 9th: 2x. Aug 1st: 4-5x seizure-ish, so again GABA up, added 2x sublingual. July 25th seizure-ish 3-4x, so GABA up. July 17th: 2x. July 7th seizure-ish 4x. Jun 23rd 4x, Jun 16th, Jun 6th 2x ❌, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: Aug 8th, July 23rd & 16th, May 31st (all 3 cos distracted), before that Apr 4th ✅. JAW solved for the time being since June 23rd. ✅

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Dry mouth (day and) at night has always been a problem, a stronger added real thirst making me drink a fourth litre of almond milk a day came up in April. Stopping the antihistamine completely has praps helped stop it become painfully sticky at night, so I don’t use the gel much any more.
Last focal seizures: Aug 9th: 13:42 & 15:40 (after vertigo). Aug 1st: 4-5x seizure-ish. July 25th: seizure-ish 3-4x. July 17th: 18:30 19:55 after thunderstorm. July 7th seizur-ish 4x. Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Generally, mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. Aug 8th: carrot, then chocolate. July 23rd cos distracted by the Kami stress. July 16th I was concentrating on testing if hazelnuts increase my nicotinic acid flush with my 3rd meal, and disregarded a slight throat pressure, which went totally wrong, was the last straw for an esophagus block, so had to get it out, lots came out, incl. supps, and needed to wait quite a bit afterwards. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more… - June 23rd: OK, the fillings were enough, solved for the time being.

Methylene blue trial, day #14: 0.

I really can’t imagine this vertigo being a reaction to stopping the methylene blue after two good days.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - Aug 6th: 40 supps (was 42), costs 435€/m (was 470) +20€/m cps. Aug ~1st: pine bark again, + methylene blue + polysterols, Aug 5th Feverfew & PQQ again. July 25th (updated almost everything too): Increased eleuthero, decrease theanine to 2x0.1g and quercetin, added EGCG, all 4 in the B-supps. Next: Methylene blue! LDN! Creatine?
SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

:white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Aug 6th: 40 supps (was 42), costs 435€/m (was 470) +20€/m cps. Schedule TODAY: OK. Aug ~1st: pine bark again, + methylene blue + phytosterols, Aug 5th Feverfew & PQQ again. July 25th: EGCg again, eleuthero up to 3 and above, quercetin down cos of more rutin than suggested, next: theanine divided up into 2x0.1g? Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, rupatadine/Rupafin, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of July 26th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before EGCg 3x1x(50%, incl. L-theanine?)113mg, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 3x4.5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0-0.1g, myo-inositol 1x2x0.5g/1!-2d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 2!x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x1x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 3!x1x.5g (down in B-supps cos more rutin than suggested), resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (1-2+1-2+1)x0.6=3.0g (as much as B3). NO rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated July 26th.
“16:00” preparing pills
“17:30” A1 PF#1:0, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xC#1, 2Cr#1, PF#(2->)1, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ Back exercises. 2x glutathione, 1x phytosterols
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#(3->)2, 0.3gGABA & .6glu & Qc#2 Hon#2 + 1%:0 Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc., A5-A8, according to pee pain and seizure-ishness
B=11/ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3:0 Rs#1 2xSAM-e EGCg (from July 26th again) 3xEleu (forward from C to B-batch, maybe slowly increasing, even to 4g/d!) + Fev/MSM#1 + Sily +0.2->0.1The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
C=20 with meal: 1xB2#2 1-2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1, pine#1, 1-2xTMG#2 2threo. PEA Rutin = 20. (vit.D3 1/wk)
2x glutathione, 1x phytosterols
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 1-2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 1-2xTMG#3
2x glutathione, 1x phytosterols
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#(4=)3, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), July 26th

Pf: A1:0+A2+A3, vB2: 1C,1D, 1A. vB3: 1-2C,1-2D.1A, vB5: C+D+A. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3-a6(-a8), Gi: C,D0,D Glutathione: 2-3x after meals. Hon:A2.A3. MgThreo: 2C,2D,2A. Oliv: C,D. pine: C,D. Qc: (B.)E.A1.A3. Ro:B,E Rs:B,E SINGLE: A1: 0xMgMal, luteolin. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (ubiquinone <150mg/d!, not ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): R-ALA, EGCg, 3xeleu, Ru, 2 Sa, Sily, Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. vit. D3/K2-MK7 saturdays. (A2:0Se)
TALLIES July 26th:
A1=7+1 Pf#0 Qc#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1-2xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2->1, Ga#1:0.3g, Hon#1, Q10, 0Se, 1-2TMG#1 (0 Rup). = 12-14.
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3->2, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2 etc.
B=11 ALA, EGCg, Eleu more, Fev/MSM#1, Qc#3:0, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#(4+) Gi#2 Ol#1 0Pin#1 2TMG#2 (Eleu in B) 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=11-13 vB2#3 1-2xB3#3 vB5#3 3xCr#3 Ga#(5+) Gi#3 Ol#2 0Pin#2 1-2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=5 Ell, Qc#(4->)3, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

No ‘Research’ today

Quality of life

Lessons in self-care: Still vertigo as well as nausea Friday morning, not very fit, where’s Tuesday’s energy?: Maybe I should stay in hospital till Monday if they recommend it.
Reasons to be cheerful: One-bed room! No beeps, no cables, no loud talking! Peace! Brilliant sleep!
Simplified: 2 things, can’t remember.
Foggies: Good start Friday morning, but then vertigo again dulled.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-08-11 Friday - scans etc. & balancing exercises for the vertigo (Methylene blue day #15: 0)

What … worked / went wrong … today?:

:white_check_mark: Sleep no more than 8h, early sun, air 1h, no screen curfew to get the template done up better.

How was I today?:

Feeling 70-60%-ish (:x:), energy today (:x:), sleep Thursday night :white_check_mark:, sleep Friday night (:x:), nausea 0-20% (:x:), vertigo 0-20% (:x:), fog 10% (:white_check_mark:), no bites :white_check_mark:.

Today working mainly on … getting further diagnostic scans done, balancing exercises, keeping sleep as good as possible

1) Early circadian rhythm for a) energy/sleep & b) Ache

7’ workout? Haha, good joke! - Physio balancing exercises were tough enough, cos my body had to fight to get the (unsensed) mental imbalance under control. The first exercise of 2’ brought me to a limit, so I needed 5’ break and then tried again with emphasis on relaxation, she helped by reminding me to breathe deeply.

1st meal a bit later, 2nd & 3rd early (slight intermittent fasting): :white_check_mark: (:white_check_mark:) (:x:),
whilst keeping food amount up (:white_check_mark:)(:x:)(:x:). IF = 11/13 (from 8:00 to ~21:00), cos not enough good food, have to get my wife to bring me more tomorrow.
Bed early / up early (:x:) :white_check_mark:, screen time down :x: → Effective sleep (:x:). Need to improve that tonight.
“PEM” :x: vs. “Ache without exertion” = post postural Ache :x:.

:ping_pong: Since June 20th often winning (but hardly talking, not counting/picking up balls). First, 2-3 weeks 6-8 games a day, then 2 weeks holiday break, July 22nd-26th only 4 games a day, mostly won. July 27th 0:1 → 5:1, easy. July 28th-30th 4 games. July 31st to Aug 4th impossible cos of uro, Aug 5th 2:0, 6th 1:1, 7th “5:1”, 8th 5:1, from 9th on impossible cos of stroke exclusion.

1a) EXHAUSTIBILITY today: “92%". Changed Aug 11th: Symptoms and energy 10-20%: ALTOGETHER UP from June 21st from circadian rhythm, except 1) DOWN July 19th to 24th from bird deaths, 2) DOWN July 31st to Aug 6th from uro exam and methylene blue, 3) DOWN since Aug 9th due to "severe vertigo" etc. Click for today's ENERGY profile/envelope (= very slow, with "15h rest").

R rest: 100% exhaustion 90% of the time (15h),
VS very slow: 60% exhaustion 10% of the time (1h),
S slow: 40% exhaustion 0% of the time (0h),
M medium: 20% exhaustion 5% of the time (0h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)
Development of ENERGY from June 21st 2023 on:
UP: June 21st to 30th BETTER, to 20-24-18…-22-24% (short hope!, max. 24% on 25th and 29th,
DOWN 1st July LESS (16-20%, dunno why), but further symptoms down too.
DOWN July 19th-24th LESS (14-16% from 3 bird deaths),
BACK UP to 18%+ July 25th to 30th, DOWN to 10-12% from uro exam and methylene blue July 31st to Aug 6th, UP to 18% from.

SLEEP (click for details): 7h29, up 4x (39'), partly deep, challenged first by thoughts, then rain (so plugs) and hip pain vs. the 24h EKG and vein access. Hip pain from hard mat till massager and placed soft mattress to go under the hips. (❌) 80%/2/5% p0 st2 air// A8 drymouth30% sore throat10% (despite open window) tongue20% nostril/s0/10% (✅), everything else OK ➔ Feeling 70% well, Ache 2 of 7 ✅, getting up: 70%/2 ✅. 1x FCS ✅ at 10:00, later partly cos of EKG.

3rd meal time (:x:), screen time :x:, tired :x:. GABA A2/+A3/
A3 A4:0 teeth0 p0 FA/CS#0 HWB#0 Sleep 22:05- 3rd # is LBU
22:30 3’ shallow/ cos of doc thoughts and late screen. A5
0:45 3’ A6
2:23 ’ rain drops smacking on window sills → ear plugs, nostril/s20/0% hip muscle pain from lying on the floor mat → massager, position. A7
4:40 18’ nostril/s20/0% fw16’ A8
-6:13 shallow, nostrils same.
Sum: 1h55+6h13-(3+3+15+18=)39’ = 8h08-39’ =

1b) ACTIVITIESACHE = PEM (Post exertional malaise): no TT would be possible :x:, no gardening/moving either :x:, talking ➔ 80%/3-4 :x:, exhaustion high, not necessarily Ache. White lips: dunno.
1c) REST/STIFFNESS ➔ ACHE At night st2 → 80%/2 :white_check_mark:/:x: Getting up - st2 → 70%/2 (:x:),
Where stiffness, where Ache? Not much of either, more a heaviness, sluggishness, sludginess.

2) Histamine/MCAS symptoms

Nauseous sinus burning headache: Nope :white_check_mark:.
Tongue burning: Slight (:white_check_mark:).
Excitement :white_check_mark:/:x:: Alle these talks with docs & therapists are actually fairly OK, compared to “small talk”, but the principal consultant was most taxing, and when I remembered at 20:00 that it’s the MCAS/exhaustibility that makes it important to watch meds, that annoyed me, I hope sleep’s still OK.

JAB#3 (on Nov 7th 2022, updated Aug 11th 2023) HISTORY: Caused MCAS / histamine problems like the first 2. Esp. ENERGY DOWN further to (10-)15-20%. 20% is the new energy-"ceiling" since jab#3. Each jab -5%. Plus new symptoms Jan. (TCM) / Feb. (T4) / Mar. (CoV) DOWN to 8-12% by end of May (17 triggers, starting 20th). Better to ~18% from all this starting June 21st, but triggers regularly bringing it back down to ~10%, see Energy Exhaustibility (moved that there Aug 11th). Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized (important reminder): Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken theirs seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before. Stopped antihistamine I think in April, cos of zombification, dry mouth and I think more, and sleep still good from everything else. Once for dentist June 23rd wouldn’t have been necessary.

3) Docs:

Aug 11th: EEG, 24h EKG, MRI with contrast, physio again, further neurologists incl. chief physician. He was very nice, but in hindsight I’m annoyed that I couldn’t explain that things like blood lipid and pressure meds might increase exhaustion, fog, histamine etc, stop me from things like playing table tennis and talking. I’m playing their game for a few days, but I’ll have to find compromises after.
Aug 10th: interviews: various neurologists, nurses, physio, whilst occupational therapist & logotherapy saw that they were unnecessary, various bloods/scans.

Last DOC update Aug 11th: Still more scans & "interviews" in a normal ward (contrast MRI). Aug 10th: Lots of bloods, scans (contrast CAT & MRI), "interviews" in the stroke unit. Aug 9th: Suspicion of stroke cos of severe vertigo, wonky gait, high blood pressure. Aug 7th: Bloods taken for uro/onco. Aug 1st: Phoned about the forgotten bloods. July 31st: Uro exam extremely painful, so forgot bloods - would have been tough anyway. Urine sample was no problem. The talk was disappointing in that he is nice, but definitely no oncologist, so it will still only be a pointer for cancer. July 26th: Phoned urologists/oncologists, the man at the reception was very friendly and asked helpful interested questions, I'm not used to that at all, and I got an appt. for next Monday, 31st, already, praps cos of the summer holidays. The urologist I'm assigned to has 3 reviews that sound promising, and "looks OK", young, interested and caring, like the reviews say. July 20th (added 25th): Got my onco labs at last: only eosinophilia visible to me (put the research on the 25th), GP has no idea, which warrants getting a "2nd" opinion, in absence of a 1st. July 13th: Unsuccessfully asked for my onco lab results. June 24th/25th: Teeth problems resolved for the time being. Waiting for onco report, “2nd” opinion or not? (“B symptoms” = night sweats, appetite, weight starting Feb/March resolved in June.) Click for details…
Click for details: Aug 11th: Still more scans & "interviews" in a normal ward. Aug 10th: Lots of bloods, scans (CT & MRI), "interviews" in the stroke unit. Aug 9th: Suspicion of stroke cos of severe vertigo, wonky gait, high blood pressure. Aug 7th: Uro/onco-Bloods. Jul 31st. Uro/onco appt. June 23rd: New filling good (anithistamine druggy). June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 24th-26th: Only my reports back, no appt. or further report. Apr 24th: Weird, 20' onco appointment, no feedback. Apr 20th: Bloods OK, except PSA: prostate too high = cancer check. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): mamilla OK now. Apr 3rd: surgeon says wait with mamilla swelling, Mar 30th: lung X-ray OK (cough), Mar 29th GP says possibly B-symptoms. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone. Repeat of antifungal cream stopped it.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

4) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

Annoyances
:one: Tea tree oil on onychia :white_check_mark: and fungus on my right foot. :white_check_mark: Only one toe.
:two: Beau’s lines on thumbnails: Reduce washing :white_check_mark:, olive oil soap :white_check_mark:, moisturize :white_check_mark:/:x:. 7/8mm healthier thumbnail now, but not increasing, the next line on the left seems to be coming up.
:three: Gum inflammation: free :white_check_mark:, calendula :white_check_mark:.
(:four: I never lose pee at night, why?)

1) Symptoms well under control: GI (via elimination), pee (via GABA: ENOUGH ✅), LOCAL PAINS (exercises, back: via using wall/door for support) ✅. Details...

except GI: stools loose0% :white_check_mark:, appetite :white_check_mark:, pee pain: 0p1-2 :white_check_mark:, lower back unrest :white_check_mark:.

2) Symptoms fairly under control - click for details on Weather: SUN / WIND ✅ (layering off and on all the time), THIRST (✅), dry mouth (day and) at night ❌. Last SEIZURES: Aug 9th: 2x. Aug 1st: 4-5x seizure-ish, so again GABA up, added 2x sublingual. July 25th seizure-ish 3-4x, so GABA up. July 17th: 2x. July 7th seizure-ish 4x. Jun 23rd 4x, Jun 16th, Jun 6th 2x ❌, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: Aug 8th, July 23rd & 16th, May 31st (all 3 cos distracted), before that Apr 4th ✅. JAW solved for the time being since June 23rd. ✅

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Dry mouth (day and) at night has always been a problem, a stronger added real thirst making me drink a fourth litre of almond milk a day came up in April. Stopping the antihistamine completely has praps helped stop it become painfully sticky at night, so I don’t use the gel much any more.
Last focal seizures: Aug 9th: 13:42 & 15:40 (after vertigo). Aug 1st: 4-5x seizure-ish. July 25th: seizure-ish 3-4x. July 17th: 18:30 19:55 after thunderstorm. July 7th seizur-ish 4x. Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Generally, mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. Aug 8th: carrot, then chocolate. July 23rd cos distracted by the Kami stress. July 16th I was concentrating on testing if hazelnuts increase my nicotinic acid flush with my 3rd meal, and disregarded a slight throat pressure, which went totally wrong, was the last straw for an esophagus block, so had to get it out, lots came out, incl. supps, and needed to wait quite a bit afterwards. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more… - June 23rd: OK, the fillings were enough, solved for the time being.

Methylene blue trial, day #15: 0

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - Aug 6th: 40 supps (was 42), costs 435€/m (was 470) +20€/m cps. Aug ~1st: pine bark again, + methylene blue + polysterols, Aug 5th Feverfew & PQQ again. July 25th (updated almost everything too): Increased eleuthero, decrease theanine to 2x0.1g and quercetin, added EGCG, all 4 in the B-supps. Next: Methylene blue! LDN! Creatine?
SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

:white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Aug 6th: 40 supps (was 42), costs 435€/m (was 470) +20€/m cps. Schedule TODAY: OK. Aug ~1st: pine bark again, + methylene blue + phytosterols, Aug 5th Feverfew & PQQ again. July 25th: EGCg again, eleuthero up to 3 and above, quercetin down cos of more rutin than suggested, next: theanine divided up into 2x0.1g? Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, rupatadine/Rupafin, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of July 26th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before EGCg 3x1x(50%, incl. L-theanine?)113mg, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 3x4.5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0-0.1g, myo-inositol 1x2x0.5g/1!-2d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 2!x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x1x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 3!x1x.5g (down in B-supps cos more rutin than suggested), resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (1-2+1-2+1)x0.6=3.0g (as much as B3). NO rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated July 26th.
“16:00” preparing pills
“17:30” A1 PF#1:0, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xC#1, 2Cr#1, PF#(2->)1, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ Back exercises. 2x glutathione, 1x phytosterols
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#(3->)2, 0.3gGABA & .6glu & Qc#2 Hon#2 + 1%:0 Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc., A5-A8, according to pee pain and seizure-ishness
B=11/ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3:0 Rs#1 2xSAM-e EGCg (from July 26th again) 3xEleu (forward from C to B-batch, maybe slowly increasing, even to 4g/d!) + Fev/MSM#1 + Sily +0.2->0.1The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
C=20 with meal: 1xB2#2 1-2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1, pine#1, 1-2xTMG#2 2threo. PEA Rutin = 20. (vit.D3 1/wk)
2x glutathione, 1x phytosterols
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 1-2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 1-2xTMG#3
2x glutathione, 1x phytosterols
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#(4=)3, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), July 26th

Pf: A1:0+A2+A3, vB2: 1C,1D, 1A. vB3: 1-2C,1-2D.1A, vB5: C+D+A. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3-a6(-a8), Gi: C,D0,D Glutathione: 2-3x after meals. Hon:A2.A3. MgThreo: 2C,2D,2A. Oliv: C,D. pine: C,D. Qc: (B.)E.A1.A3. Ro:B,E Rs:B,E SINGLE: A1: 0xMgMal, luteolin. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (ubiquinone <150mg/d!, not ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): R-ALA, EGCg, 3xeleu, Ru, 2 Sa, Sily, Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. vit. D3/K2-MK7 saturdays. (A2:0Se)
TALLIES July 26th:
A1=7+1 Pf#0 Qc#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1-2xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2->1, Ga#1:0.3g, Hon#1, Q10, 0Se, 1-2TMG#1 (0 Rup). = 12-14.
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3->2, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2 etc.
B=11 ALA, EGCg, Eleu more, Fev/MSM#1, Qc#3:0, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#(4+) Gi#2 Ol#1 0Pin#1 2TMG#2 (Eleu in B) 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=11-13 vB2#3 1-2xB3#3 vB5#3 3xCr#3 Ga#(5+) Gi#3 Ol#2 0Pin#2 1-2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=5 Ell, Qc#(4->)3, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today: Just looking up what heparin might do to me. Whilst I’m here in hospital I’m doing everything they recommend.

Quality of life

Lessons in self-care:
a) Managed to tell the physio exactly how much was possible for me to do.
b) My wife wants me to follow the docs’ blood pressure/lipid recommendations, to make sure I stay alive a while. But the problem is not that I am generally anti-meds, but that specifically I react to most “things” not just with complicated symptoms that need treating, but also with
c) Unfortunately I realized that in the evening, bad for getting to sleep, needed a little NSDR.
Reasons to be cheerful: Now very unlikely that it was a stroke.
Simplified: Put all bags on my hospital bed in sensible order, to keep things easy to find, my wife then tidied up a bit more… :wink:
Foggies: Just dulled in the morning, together with nausea, sometimes difficulty finding easy words, drawing a blank for “dizziness”, altho that’s what it’s all about at the moment.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-08-12 Saturday - recovering

What … worked / went wrong … today?:

:white_check_mark: Sleep no more than 8h, early sun, air all day, screen curfew at 8 (sort of, anyway).

How was I today?:

Feeling 75%-ish (:white_check_mark:), energy today (:x:), sleep Friday night /(:x:), sleep Saturday night (:white_check_mark:)/(:x:), nausea 0(-10)% (:white_check_mark:), fog 10% (:white_check_mark:), no bites :white_check_mark:.

Today working mainly on … recovering

1) Early circadian rhythm for a) energy/sleep & b) Ache

7’ workout? No way.

1st meal a bit later, 2nd & 3rd early (slight intermittent fasting): :white_check_mark: :white_check_mark: (:white_check_mark:),
whilst keeping food amount up :white_check_mark: :white_check_mark: (:white_check_mark:). IF = 13/11 (from ~8:30 to ~20:00), not sure but might have been about that.
Bed early / up early :white_check_mark::white_check_mark:, screen time down (:white_check_mark:)/(:x:) → Effective sleep (:white_check_mark:)/(:x:).
“PEM” :x: vs. “Ache without exertion” = post postural Ache :x:.

:ping_pong: Since June 20th often winning (but hardly talking, not counting/picking up balls). First, 2-3 weeks 6-8 games a day, then 2 weeks holiday break, July 22nd-26th only 4 games a day, mostly won. July 27th 0:1 → 5:1, easy. July 28th-30th 4 games. July 31st to Aug 4th impossible cos of uro, Aug 5th 2:0, 6th 1:1, 7th “5:1”, 8th 5:1, from 9th on impossible cos of stroke exclusion.
Better Saturday evening

1a) EXHAUSTIBILITY today: “92%->90%". Changed Aug 11th: Symptoms and energy 10-20%: ALTOGETHER UP from June 21st from circadian rhythm, except 1) DOWN July 19th to 24th from bird deaths, 2) DOWN July 31st to Aug 6th from uro exam and methylene blue, 3) DOWN since Aug 9th due to "severe vertigo" etc. Click for today's ENERGY profile/envelope (= moderate?/slow?, with "?3h rest").

R rest: 100% exhaustion 90% of the time (15h),
VS very slow: 60% exhaustion 10% of the time (1h),
S slow: 40% exhaustion 0% of the time (0h),
M medium: 20% exhaustion 30% of the time (0h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)
Development of ENERGY from June 21st 2023 on:
UP: June 21st to 30th BETTER, to 20-24-18…-22-24% (short hope!, max. 24% on 25th and 29th,
DOWN 1st July LESS (16-20%, dunno why), but further symptoms down too.
DOWN July 19th-24th LESS (14-16% from 3 bird deaths),
BACK UP to 18%+ July 25th to 30th, DOWN to 10-12% from uro exam and methylene blue July 31st to Aug 6th, UP to 18% Aug 7th/8th, DOWN to 10-8% from vertigo exams.

SLEEP (click for details): 7h13, up 3x (27') ✅, not that deep. Back problem, radiating into leg, like when sitting on the thin mat ❌ - apparently too soft, so back just on the thin mat was better ✅. The venous access reduces the few best night positions even more. ❌ 80%/2/15% drymouth30% sore throat20% tongue20% nostril/s0-10%, everything else OK ➔ Feeling ?90% well, Ache 2 of 7 ✅, getting up: ?90%/2 ✅. 1x FCS ✅ only Sunday evening at 21:40.

3rd meal time :white_check_mark:, screen time :x:, tired (:x:). GABA A2/+A3/
A3/ A4:0 teeth/ p0 FA/CS#0 HWB#0 Sleep 22:05- 3rd # is LBU
23:28 10’ 80%/21/15% p1 st3 sip fw2’ fl0’ deep/ air/// A4/
drymouth30% sore throat10% tongue20% nostril/s0/10%
1:11 10’ like 23:28 except A5:0
2:57 9’ like 23:28 except A5/ & back problem, apparently too soft, so back just on the thin mat.
5:05 8’ like 2:57 exc A6/, back better
-5:45
Sum:1h55+5h45-(10+9+8=)27’ = 7h40-27’ =

1b) ACTIVITIESACHE = PEM (Post exertional malaise): no TT would be possible :x:, no gardening/moving either :x:, talking ➔ 80%/3-4 :x:, exhaustion high, not necessarily Ache. White lips50-80 (:x:), says my wife.
1c) REST/STIFFNESS ➔ ACHE At night st2 → 80%/2-3 :white_check_mark: Getting up - st2 → 80%/3-4 all day :x:.
Where stiffness, where Ache? Everywhere.

2) Histamine/MCAS symptoms

Nauseous sinus burning headache: Nope :white_check_mark:.
Tongue burning: Slight (:white_check_mark:).
Excitement :white_check_mark:: Short stress with wife over her limit was OK.
Forehead burning sometimes :x:.

JAB#3 (on Nov 7th 2022, updated Aug 11th 2023) HISTORY: Caused MCAS / histamine problems like the first 2. Esp. ENERGY DOWN further to (10-)15-20%. 20% is the new energy-"ceiling" since jab#3. Each jab -5%. Plus new symptoms Jan. (TCM) / Feb. (T4) / Mar. (CoV) DOWN to 8-12% by end of May (17 triggers, starting 20th). Better to ~18% from all this starting June 21st, but triggers regularly bringing it back down to ~10%, see Energy Exhaustibility (moved that there Aug 11th). Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized (important reminder): Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken theirs seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before. Stopped antihistamine I think in April, cos of zombification, dry mouth and I think more, and sleep still good from everything else. Once for dentist June 23rd wouldn’t have been necessary.

3) Docs:

Last DOC update Aug 11th: Still more scans & "interviews" in a normal ward. Aug 10th: Lots of bloods, scans (CT & MRI), "interviews" in the stroke unit. Aug 9th: Suspicion of stroke cos of severe vertigo, wonky gait, high blood pressure. Aug 7th: Bloods taken for uro/onco. Aug 1st: Phoned about the forgotten bloods. July 31st: Uro exam extremely painful, so forgot bloods - would have been tough anyway. Urine sample was no problem. The talk was disappointing in that he is nice, but definitely no oncologist, so it will still only be a pointer for cancer. July 26th: Phoned urologists/oncologists, the man at the reception was very friendly and asked helpful interested questions, I'm not used to that at all, and I got an appt. for next Monday, 31st, already, praps cos of the summer holidays. The urologist I'm assigned to has 3 reviews that sound promising, and "looks OK", young, interested and caring, like the reviews say. July 20th (added 25th): Got my onco labs at last: only eosinophilia visible to me (put the research on the 25th), GP has no idea, which warrants getting a "2nd" opinion, in absence of a 1st. July 13th: Unsuccessfully asked for my onco lab results. June 24th/25th: Teeth problems resolved for the time being. Waiting for onco report, “2nd” opinion or not? (“B symptoms” = night sweats, appetite, weight starting Feb/March resolved in June.) Click for details…
Click for details: Aug 11th: Still more scans & "interviews" in a normal ward. Aug 10th: Lots of bloods, scans (CT & MRI), "interviews" in the stroke unit. Aug 9th: Suspicion of stroke cos of severe vertigo, wonky gait, high blood pressure. Aug 7th: Uro/onco-Bloods. Jul 31st. Uro/onco appt. June 23rd: New filling good (anithistamine druggy). June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 24th-26th: Only my reports back, no appt. or further report. Apr 24th: Weird, 20' onco appointment, no feedback. Apr 20th: Bloods OK, except PSA: prostate too high = cancer check. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): mamilla OK now. Apr 3rd: surgeon says wait with mamilla swelling, Mar 30th: lung X-ray OK (cough), Mar 29th GP says possibly B-symptoms. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone. Repeat of antifungal cream stopped it.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

4) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

Annoyances
:one: Tea tree oil on onychia :white_check_mark: and fungus on my right foot. :white_check_mark: Improved.
:two: Beau’s lines on thumbnails: Reduce washing :white_check_mark:, olive oil soap :white_check_mark:, moisturize :white_check_mark:/:x:. 7/8mm healthier thumbnail now, but not sure if it’s increasing or not.
:three: Gum inflammation: free :white_check_mark:, calendula :white_check_mark:
(:four: I never lose pee at night :white_check_mark:, but why?)

1) Symptoms well under control: GI (via elimination), pee (via GABA: ENOUGH ✅), LOCAL PAINS (exercises, back: via using wall/door for support) ✅. Details...

except GI: stools loose0% :white_check_mark:, appetite :white_check_mark:, pee pain: 0p1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN / WIND ✅ (layering off and on all the time), window open all the time, seem to have got to used to draught, THIRST (✅), dry mouth (day and) at night ❌. Last SEIZURES: Aug 9th: 2x. Aug 1st: 4-5x seizure-ish, so again GABA up, added 2x sublingual. July 25th seizure-ish 3-4x, so GABA up. July 17th: 2x. July 7th seizure-ish 4x. Jun 23rd 4x, Jun 16th, Jun 6th 2x ❌, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: Aug 8th, July 23rd & 16th, May 31st (all 3 cos distracted), before that Apr 4th ✅. JAW solved for the time being since June 23rd. ✅

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Dry mouth (day and) at night has always been a problem, a stronger added real thirst making me drink a fourth litre of almond milk a day came up in April. Stopping the antihistamine completely has praps helped stop it become painfully sticky at night, so I don’t use the gel much any more.
Last focal seizures: Aug 9th: 13:42 & 15:40 (after vertigo). Aug 1st: 4-5x seizure-ish. July 25th: seizure-ish 3-4x. July 17th: 18:30 19:55 after thunderstorm. July 7th seizur-ish 4x. Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Generally, mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. Aug 8th: carrot, then chocolate. July 23rd cos distracted by the Kami stress. July 16th I was concentrating on testing if hazelnuts increase my nicotinic acid flush with my 3rd meal, and disregarded a slight throat pressure, which went totally wrong, was the last straw for an esophagus block, so had to get it out, lots came out, incl. supps, and needed to wait quite a bit afterwards. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more… - June 23rd: OK, the fillings were enough, solved for the time being.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - Aug 6th: 40 supps (was 42), costs 435€/m (was 470) +20€/m cps. Aug ~1st: pine bark again, + methylene blue + phytosterols, Aug 5th Feverfew & PQQ again. July 25th (updated almost everything too): Increased eleuthero, decrease theanine to 2x0.1g and quercetin, added EGCG, all 4 in the B-supps. Short methylene blue 1/3 to 4 drops not helpful, maybe harmed. LDN! Creatine?
SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

:white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Aug 6th: 40 supps (was 42), costs 435€/m (was 470) +20€/m cps. Schedule TODAY: OK. Aug ~1st: pine bark again, + methylene blue + phytosterols, Aug 5th Feverfew & PQQ again. July 25th: EGCg again, eleuthero up to 3 and above, quercetin down cos of more rutin than suggested, next: theanine divided up into 2x0.1g? Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, rupatadine/Rupafin, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of July 26th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before EGCg 3x1x(50%, incl. L-theanine?)113mg, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 3x4.5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0-0.1g, myo-inositol 1x2x0.5g/1!-2d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 2!x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x1x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 3!x1x.5g (down in B-supps cos more rutin than suggested), resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (1-2+1-2+1)x0.6=3.0g (as much as B3). NO rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated July 26th.
“16:00” preparing pills
“17:30” A1 PF#1:0, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xC#1, 2Cr#1, PF#(2->)1, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ Back exercises. 2x glutathione, 1x phytosterols
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#(3->)2, 0.3gGABA & .6glu & Qc#2 Hon#2 + 1%:0 Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc., A5-A8, according to pee pain and seizure-ishness
B=11/ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3:0 Rs#1 2xSAM-e EGCg (from July 26th again) 3xEleu (forward from C to B-batch, maybe slowly increasing, even to 4g/d!) + Fev/MSM#1 + Sily +0.2->0.1The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
C=20 with meal: 1xB2#2 1-2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1, pine#1, 1-2xTMG#2 2threo. PEA Rutin = 20. (vit.D3 1/wk)
2x glutathione, 1x phytosterols
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 1-2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 1-2xTMG#3
2x glutathione, 1x phytosterols
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#(4=)3, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), July 26th

Pf: A1:0+A2+A3, vB2: 1C,1D, 1A. vB3: 1-2C,1-2D.1A, vB5: C+D+A. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3-a6(-a8), Gi: C,D0,D Glutathione: 2-3x after meals. Hon:A2.A3. MgThreo: 2C,2D,2A. Oliv: C,D. pine: C,D. Qc: (B.)E.A1.A3. Ro:B,E Rs:B,E SINGLE: A1: 0xMgMal, luteolin. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (ubiquinone <150mg/d!, not ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): R-ALA, EGCg, 3xeleu, Ru, 2 Sa, Sily, Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. vit. D3/K2-MK7 saturdays. (A2:0Se)
TALLIES July 26th:
A1=7+1 Pf#0 Qc#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1-2xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2->1, Ga#1:0.3g, Hon#1, Q10, 0Se, 1-2TMG#1 (0 Rup). = 12-14.
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3->2, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2 etc.
B=11 ALA, EGCg, Eleu more, Fev/MSM#1, Qc#3:0, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#(4+) Gi#2 Ol#1 0Pin#1 2TMG#2 (Eleu in B) 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=11-13 vB2#3 1-2xB3#3 vB5#3 3xCr#3 Ga#(5+) Gi#3 Ol#2 0Pin#2 1-2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=5 Ell, Qc#(4->)3, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

No ‘research’ today:

Quality of life

Lessons in self-care: Keeping movements as slow as possible.
Reasons to be cheerful: Nice walks around the hospital, looking at all the wild flowers, trees, birds, butterflies, comparing with mine.
Simplified: Dunno.
Foggies: Dropping a lot of stuff, like while eating.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023