JayCS’s Fibro Blog

2023-06-23 Friday - 2 seizures before, 2 after (GABA?), but dentist went OK. Energy :zap: still underlying, but trying 10mg antihistamine for the dentist’s and watching the side effects was very telling: first somnolence 4-5h, then increasing tongue burning and headache early Saturday till early afternoon.

:bulb: drtalks is rewarding but takes a lot of time and concentration, so distracting from my schedule if I don’t take enough time early enough and it goes on into the evenings.
:bulb: Surely yesterday not enough GABA!
:bulb: Generally I need to do more online in the mornings and less in the evenings, so go to shops and in the garden after 7/8pm.
:bulb: histamine rebound from antihistamine metabolites!
:bulb: My Ache generally isn’t 2 any more, it’s more like 0-1.
:bulb: I could still question whether it’s PEM if it is there without E = exertion. But I think that’s got less. So I’ll watch that now.
:bulb: 15% for back pain at night I can see if it’s reduced to 0% now usually.
:bulb: I spose it’s the new increased energy that’s leading to questioning related symptoms.
:bulb: Stiffness would be another thing to question, altho I there have the feeling that it is at most down from 3 to 2. But down is down.
:bulb: I can take dry hands down to 0-10% praps atm.
:bulb: And see if the itch is now sometimes 0% at night.
:bulb: Readjust “feeling well” up from 80%?

What worked today?:

Antihistamine micro-dosing: not micro-dose, whole dose of 10mg - very clear side effects of dulled head for 4-5h, fatigued despite the underlying energy I could still feel, than after 8h increasing zombification/somnolence, high tongue burning, mouth dryness, high zombification with peak after 14h??? then waking me up at 2, histamine time! Headache with a little sinus involvement from 5, tried to reduce it with cold washing my face. Screen time before sleep :white_check_mark:. Windows not shut at night (:white_check_mark:): (sinus) headache I think only from the histamine (:x:), not from airing (:white_check_mark:), passiflora 2 not 3 (:white_check_mark:) A3-supps :white_check_mark: - need to watch them, cos it’s 1x GABA, and I think Friday’s seizures came from forgetting a little GABA.

How was I today?:

Feeling 70-80%-ish (:white_check_mark:) - OK considering night, drtalks and dentist, energy today (:white_check_mark:) - again OK considering, sleep Thursday night (:x:), sleep Friday night :white_check_mark:, sting itch :white_check_mark:. Nausea 0(-20)% (:white_check_mark:), fog 20% (:white_check_mark:).

Now working on… :

1) Earlier circadian rhythm for a) energy/sleep & b) PEM.

Meal times early (:white_check_mark:)(:white_check_mark:)(:white_check_mark:). Bed early / up early :white_check_mark::white_check_mark:. Screen time :white_check_mark: → Effective sleep :white_check_mark:. PEM (:x:).

1a) EXHAUSTIBILITY today: “82%" (discounting the dentist and antihistamine, not discounting the wonky night, so would normally have been more if I'd been able to keep up the new circadian schedule). Click for today's ENERGY profile. (Slow with "2h rest"). Aim now: Detailing & tracking my core symptom and Improving energy with 6am sunlight, air, 7pm reduced screen time, more effective sleep:

R rest: 100% exhaustion 10% of the time (2h),
VS very slow: 60% exhaustion 10% of the time (2h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 30% of the time (5h),
Q quick: 0-10% exhaustion 10% of the time (2h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 8h12, up 5x (53'), all deep. Back pain 0% I think, even tho I didn't do my exercises. But I will now! ➔ Feeling 80% well, Ache 2-0? of 7 ✅, getting up: 80%/0 ✅. Nostrils 10% stuffy 100% of the night ✅. No sweating ✅. air/, but sinus headache I think not from that ✅, but from the 10mg antihistamine ✅, 1x FA/CS#1 ?✅, sting itch ?20-30% ✅

Meal time :white_check_mark:/:x:, screen time :white_check_mark:/:x:, tired :white_check_mark:/:x:
rup0 (but 10mg at 12:15) A3 A4:0 teeth0 p0 HWB#0 Sleep 21:50- 3rd # is LBU
23:13 7’ 80%/2/15% p0 st3 sip fw2’ fl0’ deep/ air0 A5/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s0/0% sinuses0% headache0% sore throat10% nausea0% stomach0% tongue50% stools0 loose% drymouth30% dryhands10% zombie20% itch10%
0:35 5’? 80%/2/15% p0 st3 sip fw2’ fl0’ deep/ air/ A6/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s0/0% sinuses0% headache0% sore throat20% nausea10% stomach0% tongue70% stools0 loose% drymouth30% dryhands10% zombie60% itch10%
1:52 9’ 80%/2/15% p0 st3 sip fw5’ fl0’ deep/ air/ A7/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s0/0% sinuses10-20% headache10-20% sore throat20% nausea10% stomach0% tongue70% stools0 loose% drymouth30% dryhands10% zombie60% itch10%
2:10 18’ histamine rebound! Awake despite zombification “somnolence” necessitates FCS.
80%/2/15% p0 st3 sip fw10’ fl0’ deep/ air/ A8:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FCS#1
(nostril/s0/0% sinuses10% headache10% sore throat20% nausea10% stomach0% tongue70% stools0 loose% drymouth30% dryhands10% zombie60% itch10%
4:44 5’ pee urge. Sinus headache coming up (16h after rup.)
80%/2/15% p0 st3 sip fw3’ fl0’ deep/ air/ A8/ plugs0 cream0
gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#2:0
(nostril/s0/0% sinuses20% headache20% sore throat60% nausea20% stomach10-40% tongue80% stools0 loose% drymouth30% dryhands10% zombie60% itch10%
-6:55 no pee urge but felt it’s time and wanted to prevent more headache.
60%/0/5% p0 st3 sip fw3’ fl0’ deep/ air/ A9:0 plugs0 cream0
gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#2:0
(nostril/s0/0% sinuses20% headache80% sore throat10% nausea20% stomach10% tongue60% stools0 loose% drymouth30% dryhands0% zombie60% itch0%
1x FA/CS#1 :white_check_mark:
Sum: 210h+6h55-(7+5+19+18+4)53 = 9h05-53’ = 8h12, up 5x (53’), all deep. Back pain 0% I think, even tho I didn’t do my exercises. But I will now!

1b) ACTIVITIESACHE = PEM (Post exertional malaise): 70%/2 :white_check_mark:, TT 1:1 (time limited) (moving 10%, talking incl. counting 10%) ➔ 80%/2 :white_check_mark:, gardening/moving ➔ 80%/2 :white_check_mark:, talking ➔ 80%/2 :white_check_mark:. White lips. (:x:) (:question:)

2) Effects of “intermittent antihistamine micro dosage” & leaving window closed at night on my histaminey MCAS symptoms.

Testing micro-dosed antihistamine on gnat bite itch, praps sleep, temperature and pee. All of these OK. 0/0.1/0.2mg as needed.
18th: 0.5mg cos of tick. Itch down an hour later, but 0mg the days before and after. 20th: 0. Slight dull headache, turning into a slight sinus one, after not airing at all, except before sleep: :question: 21st: 0. Again slight headache, but wonky evening, so many triggers possible, or all. 22nd: 0. 23rd: 10mg: dull head for 4-5h, no headache - now I’ve got a feeling again how quickly and long the antihistamine works, cos I don’t usually take it in the daytime. Tongue starting to burn in the evening, up to 50% at bedtime, then increased to 70%, whilst I was histaminey awake at 2, so needed to cold shower, and then the headache coming up at 4/5, strong when getting up at 7 (70%), reduced at 8 (30%), but still remaining slightly till 13 on Saturday…

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20% decreasing to 8-12% by end of May from new symptoms, partly from CoV itself. Triggers: Foods (esp. soy, white beanst, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

3) New 2023: Weight & Appetite Loss / Thirst / Night sweats

a) Weighing irregularly if I’m sustainably up from 74.2kg. I’m not. (:x:). But stable :white_check_mark:.
b) Meal appetite (mood?): 1st: 100% :white_check_mark: 2nd: 85% (:white_check_mark:) 3rd: 90% :white_check_mark:
c) Thirst bit better today (:white_check_mark:), dry mouth at night :x:, also almost choked coughing once, but not sure why.
d) Night sweats OK. :white_check_mark:, but still…:

4) Docs: Asking oncologists about cancer/autoimmune (as GP & wife recommend, altho I think #3 was T4 and CoV, but also something unknown autoimmune).

Last DOC update June 23rd: dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 22nd: Tick check now unnecessary. June 13th: Gum inflammation down (to 20% from December), keeping tooth, but renewing filling on the 23rd. Waiting for onco report, start asking for "2nd" opinion around 26th. Click for details...
Click for details: Update June 13th: Gum inflammation down (to 20% from December), keeping tooth, but renewing filling on the 23rd.May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

5) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

1) Symptoms well under control: GI (via elimination), pee (via GABA), LOCAL PAINS (exercises, back: via using wall/door for support), Details...

except GI: stools loose0% :white_check_mark:, appetite better (:white_check_mark:), pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN - nauseating10% ✅/❌, unwell10%? ✅/❌, last SEIZURES Jun 23rd 4x, Jun 16th, Jun 6th 2x, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: May 31st, before that Apr 4th (probably more often). JAW pain from tooth problems: May 10th till broken filling was taken out May 22nd.

Weather: Indoors :white_check_mark: Outdoors :white_check_mark:/:x:. Outdoors almost all day now, so no need for daylight lamp, if the sun becomes too bright and warm I do something in the cellar or the shade, making myself at home there.
Last focal seizures: Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Creatine?
SELF-PHYSIO (click for details): OK? Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK? Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no EGCg or pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jun 16th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 0x1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0.1g, myo-inositol 1x2x0.5g/1!d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 3x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x1x.5g, resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (2+2+1)x0.6=3.0g (as much as B3). Plus rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated Jun 16th.
“16:00” preparing pills
“17:30” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xvC#1, 2Cr#1, PF#2, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1% Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc.
B=11/ ’ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +1-2The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=20 with meal: 1xB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 2xTMG#2 2xEleu 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jun 16th

Pf: A1+A2+A3, vB2: 1C,1D, 1A. vB3: 2C,2D.1A, vB5: C,DA. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3,a4, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. (pine: C,D.) Qc: B.E.A1.A3. Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 6MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, Ru, 2 Sa, Sily, 2Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jun 16th: correct?
A1=7+1 Pf#1 Qc1#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2, Ga#1:0.3g, Hon#1, Q10, 0Se, 1TMG#1 (?Rup). = 12?
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, 0EGCg, Fev/MSM#1, Qc#3, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#4 Gi#2 Ol#1 0Pin#1 2TMG#2 2xEleu 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=13 vB2#3 "2"vB3#3 vB5#3 3xCr#3 Ga#5 Gi#3 Ol#2 0Pin#2 2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today:

Mitochondria summit day 3:
Frontiero: 10 Toxins, Gensemer: Infrared Saunas, Apigian: The Biology Of Trauma
Kennally: Liver Overload, N. Jill: Shortcut Your Approach (making decisions, getting a coach), Schaffner: Human Biofields, Naviaux: Cell Danger Response, Kan: Blood Myers: Detox Toxic Metals
Whilst I was keen to hear Naviaux and Kan, they didn’t quench my curiosity. So the one most helpful to me was The Biology of Trauma (Aimie Apigian), esp. because of the way it described how we can get on the nerves of our loved ones by being highly strung - that rings a bell :bell: :zap:…: interesting idea that trauma can be actually described as something biological, so even if we have resolved our psychological traumas, stress etc. can lead to or keep physiological trauma going…
My quick notes:
It’s not the violence / abuse, but accumulated stress is a trauma state. Has less to do with the event, more with the nervous system.
*Deficiencies can be external as well as internal, so magnesium can be the deficiency that is making it hard to be resilient to *
Trauma response and shutting down metabolically both ways.
Cellular level, mitochondrial. Communicated via vagus nerve which runs down digestive system as well as heart and breat, and has greatest effect in gut.
To survive the vagus tell the mitochondria to shut down.
Results in build up of oxidative stress, deficiencies, also detoxification system down.
How do we know if trauma physiology?: Sort of (stupor), can’t think, can’t move, exhausted.
Adrenaline junkie to stimulate adrenaline, can only last for so long, so back and forth between stress from adrenaline, creating new problems
Stress causes havoc on body, mitochondria, immune system, true cause for all these conditions. Also stress on loved ones. So stop. Whilst they fear already, but they almost re-create that experience via this stress.
What needs to happen?
3 ways to recognize unresolved trauma:
Thoughts, body sensations (energized or heavy), physical health (flare ups of conditions, chronic pain).
*Just work on it in the present moment. Focus on the nervous systems. Not back into the past until we can regulate the nervous system. *
Then back inside the window of tolerance, not losing emotional control.
see her Website (linked on Frontiero’s too).

Quality of life

Lessons in self-care:
Reasons to be cheerful: Loads. Good not to use my new energy fully in the afternoon cos of the antihistamine.
a) Very happy a good friend came round for a quick visit.
b) Surprised & happy that the filling didn’t need anaesthesia.
c) So many :bulb: = ideas.
Simplified: Loads.
Foggies: Cottage cheese strangely fell out of my hand.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-06-24 Saturday - energy still increased, but losing at TT (0:3), so my body co-ordination seems to still not be used to that energy, has to adapt. Increasing cold showers at night, maybe cos of the antihistamine or just hot weather. Strange needing to sleep an hour in the afternoon, but afterwards a head cleared of the antihistamine, praps that was the necessity.

:new: added MIN-MAX tally, but probably more strain than help.
:new: I can stop noting the antihistamine regularly. :bulb: It seems I do better without. Just keeping that section for irregular use.
:bulb: I cannot confirm a connection between airing and sinus headache, so :new: I can also stop noting that.
:new: As the whole 10mg antihistamine caused first 5h somnolence and later >12h of headache with only sometimes perhaps a little sinus burning it doesn’t seem as if the sinus headaches come from the antihistamine either. So back to histamine in food as a trigger?
:new: I’m starting to enjoy and look forward to stopping screen time earlier, aiming for 20:00 now. :white_check_mark:
:bulb: Ache from stiffness (and is baseline 0 or more?) would be something to track now. Doesn’t really belong to the section Ache from Activities, so where do I put it :question:
:bulb: To check how quickly my lips go white when pressed I can use a small mirror even in the garden.

What worked today?:

Antihistamine micro-dosing? 0. Screen time before sleep :white_check_mark:. Aired every sleep break at night: no sinus headache (:white_check_mark:) - OK, that decides it, it wasn’t the airing, passiflora 2 not 3 :white_check_mark:, A3-supps :white_check_mark:.
This means I can stop noting all this here, except screen time.

How was I today?:

Feeling 90%-ish :white_check_mark:, energy today (:white_check_mark:), sleep Friday night :white_check_mark:, sleep Saturday night (:white_check_mark:)/(:x:), sting itch :white_check_mark:. Nausea 0(-10)% (:white_check_mark:)/(:x:), fog 15% (:white_check_mark:). The Sunday morning Ache took 2h after sleep to improve, and seems.

Now working on… :

1) Earlier circadian rhythm for a) energy/sleep & b) PEM.

Meal times early :white_check_mark:(:white_check_mark:)(:x:). Bed early / up early (:white_check_mark:) :white_check_mark:. screen time :white_check_mark: → Effective sleep :white_check_mark:. “PEM” incl. sometimes after pooping, but not always (:white_check_mark:) vs. “Ache without exertion” e.g. early morning? (:white_check_mark:).

1a) EXHAUSTIBILITY today: “82%+" - again never once reached my energy limit, but rested to watch the Mitochondria Summit a lot, every use of energy was high. If this continues I can start counting it as above 20%! Click for today's ENERGY profile. (Slow with "2h rest"). Aim now: Detailing & tracking my core symptom and Improving energy with 6am sunlight, air, 7pm reduced screen time, more effective sleep:

R rest: 100% exhaustion 10% of the time (2h),
VS very slow: 60% exhaustion 10% of the time (2h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 30% of the time (5h),
Q quick: 0-10% exhaustion 10% of the time (2h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 7h19, up 3x (20'), all deep. +55' nap at 4 = 8h14 ✅. Tongue burning from antihistamine now down to 10-20% (40% at 4). Ache 3 with stiffness 3. Mouth dry 30%. Sore throat 10-20%. Sting itch only occasionally 20%. Rest 0-10%. ➔ Feeling 80% well, Ache 2-3 of 7 ✅(❌), getting up: 80%/3 (❌). Nostrils 0-10% stuffy 100% of the night ✅. No sweating ✅. 3x air/, slight sinus headache 0-10% ✅, 1x FA/CS#1 before sleep, cos of evening sweating after slight exertion and tired 'feverishness' ✅, sting itch 0-10% ✅

Meal time :white_check_mark:(:white_check_mark:)(:x:), screen time :white_check_mark:, tired (:white_check_mark:)

Nap at 15:45-16:40! 55’, maybe cos of the antihistamine, which is still causing the tongue burn 80%/0/0% p0 st2 sip fw2’ fl?’ deep/ air0 A4/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
nostril/s50/0-0/50% sinuses10% headache10% sore throat20% nausea0/10% stomach10% tongue40% stools0 loose% drymouth30% dryhands10% zombie10% itch 0%

rup0 A3 A4:0 teeth/ p0 HWB#0 Sleep 22:35- 3rd # is LBU
1:31 10’ 80%/2/5% p0 st3 sip fw6’ fl0’ deep/ (but a little difficulty at first) air/ A4/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s0/0% sinuses0% headache0% sore throat20% nausea0% stomach0% tongue20% stools0 loose% drymouth30% dryhands10% zombie10% itch20%

2:02 4’ 80%/2/5% p0 st3 sip fw2’ fl0’ doze deep/ air/ A5/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#2:0
nostril/s0/0% sinuses0% headache0% sore throat20% nausea0% stomach0% tongue20% stools0 loose% drymouth30% dryhands10% zombie10% itch10%

5:14 6’ 80%/2/5% p1 st1 sip fw2’ fl0’ deep/ air/ A6/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#2:0
nostril/s0/0% sinuses0% headache0% sore throat10% nausea0% stomach30% tongue10% stools0 loose% drymouth30% dryhands0% zombie0% itch0%
1x FA/CS#1 :white_check_mark:, before sleep.
-6:14 Ache of 3 comes with stiffness too!
6’ 80%/3/25% p1 st3 sip fw5’ fl0’ deep/ air/ A6/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#2:0
nostril/s10/0% sinuses10% headache10% sore throat10% nausea0% stomach10% tongue15% stools0 loose% drymouth30% dryhands0% zombie0% itch0%

MINIMUM to MAXIMUM:
80%/2-3/5(-25)% nostril/s0-10% sinuses0-10% headache0-10% sore throat10-20% nausea0% stomach0-30% tongue10-20% stools0 loose% drymouth30% dryhands0-10% zombie0-10% itch 0-20%
Sum: 6h14+1h25-(10+4+6)20 = 7h39-20’ = 7h19, up 3x (20’), all deep. Tongue burning now down to 10-20%. Ache 3 with stiffness 3. Mouth dry 30%. Sore throat 10-20%. Sting itch only occasionally 20%. Rest 0-10%.

1b) ACTIVITIESACHE = PEM (Post exertional malaise) + Stiff Ache: 80%/2 :white_check_mark:, TT 0:3 (moving 10%, talking incl. counting 10%) ➔ 80%/3 :white_check_mark:, gardening/moving ➔ 80%/2 :white_check_mark:, talking ➔ 80%/3 :white_check_mark:. White lips ?(:x:) (:question:)

2) Effects of “intermittent antihistamine micro dosage” & leaving window closed at night on my histaminey MCAS symptoms.

Testing micro-dosed antihistamine on gnat bite itch, praps sleep, temperature and pee. All of these OK. 0/0.1/0.2mg as needed.
18th: 0.5mg cos of tick. Itch down an hour later, but 0mg the days before and after. 20th: 0. Slight dull headache, turning into a slight sinus one, after not airing at all, except before sleep: :question: 21st: 0. Again slight headache, but wonky evening, so many triggers possible, or all. 22nd: 0. 23rd: 10mg: dull head for 4-5h, no headache - now I’ve got a feeling again how quickly and long the antihistamine works, cos I don’t usually take it in the daytime. Tongue starting to burn in the evening, up to 50% at bedtime, then increased to 70%, whilst I was histaminey awake at 2, so needed to cold shower, and then the headache coming up at 4/5, strong when getting up at 7 (70%), reduced at 8 (30%), but still remaining slightly till 13 on Saturday…

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20% decreasing to 8-12% by end of May from new symptoms, partly from CoV itself. Triggers: Foods (esp. soy, white beanst, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

3) New 2023: Weight & Appetite Loss / Thirst / Night sweats

a) Weighing irregularly if I’m sustainably up from 74.2kg. I’m not. (:x:). But stable :white_check_mark:.
b) Meal appetite (mood?): 1st: 110% :white_check_mark: 2nd: 110% :white_check_mark: 3rd: 100% :white_check_mark:
c) Thirst better :white_check_mark:, dry mouth at night :x:.
d) Night sweats OK. :white_check_mark:, but still…:

4) Docs: Asking oncologists about cancer/autoimmune (as GP & wife recommend, altho I think #3 was T4 and CoV, but also something unknown autoimmune).

Last DOC update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), keeping tooth, but renewing filling on the 23rd. Waiting for onco report, start asking for "2nd" opinion around 26th. Click for details...
Click for details: Update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

5) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

1) Symptoms well under control: GI (via elimination), pee (via GABA) - slight pee pain of p1 fairly often the last week, 2-3x today, which with the seizures means serotonin is down and i need to keep GABA up: (✅), LOCAL PAINS (exercises, back: via using wall/door for support), Details...

except GI: stools loose0% :white_check_mark:, appetite better (:white_check_mark:), pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN - nauseating10% ✅/❌, unwell10%? ✅/❌, last SEIZURES Jun 23rd 4x, Jun 16th, Jun 6th 2x, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: May 31st, before that Apr 4th (probably more often). JAW pain from tooth problems: May 10th till broken filling was taken out May 22nd.

Weather: Indoors :white_check_mark: Outdoors :white_check_mark:/:x:. Outdoors almost all day now, so no need for daylight lamp, if the sun becomes too bright and warm I do something in the cellar or the shade, making myself at home there.
Last focal seizures: Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Creatine?
SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK. Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no EGCg or pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jun 16th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 0x1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0.1g, myo-inositol 1x2x0.5g/1!d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 3x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x1x.5g, resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (2+2+1)x0.6=3.0g (as much as B3). Plus rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated Jun 16th.
“16:00” preparing pills
“17:30” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xvC#1, 2Cr#1, PF#2, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1% Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc.
B=11/ ’ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +1-2The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=20 with meal: 1xB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 2xTMG#2 2xEleu 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jun 16th

Pf: A1+A2+A3, vB2: 1C,1D, 1A. vB3: 2C,2D.1A, vB5: C,DA. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3,a4, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. (pine: C,D.) Qc: B.E.A1.A3. Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 6MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, Ru, 2 Sa, Sily, 2Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jun 16th: correct?
A1=7+1 Pf#1 Qc1#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2, Ga#1:0.3g, Hon#1, Q10, 0Se, 1TMG#1 (?Rup). = 12?
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, 0EGCg, Fev/MSM#1, Qc#3, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#4 Gi#2 Ol#1 0Pin#1 2TMG#2 2xEleu 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=13 vB2#3 "2"vB3#3 vB5#3 3xCr#3 Ga#5 Gi#3 Ol#2 0Pin#2 2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today:

Mitochondria summit day #4 - listened to or skimmed thru most.
Frontiero: Symptoms Of Leaky Gut That Cause Low Energy = joints, acne, headache, anxiety, moodiness, fatigue, autoimmune, fog. food sensitivities Toxins should be excreted from the gut, not the skin. Bacterial overgrowth, SIBO.
Chestnut: The Key = It’s mainly a wrong lifestyle not a „defect“ that causes it(? - I didn’t ‘get’ this talk).
Brand: Proven Methods To Recover Your Energy Permanently = He was talking about grounding, early sun, and reducing blue night - in 2012. Air: microtoxins/pollutants destroy ATP. → Like an old laptop you have to keep plugging in. Looks for bugs like H. pylori.
McCann: Environmental Toxicants And Mitochondria Damage = Better than the bucket image for toxins → is that of a sink, with small drain (detox), if it’s too small it’ll overflow. Butter isn’t health food. Organic is better, but not “good”. Teflon: PPCs, esp. scratches.
Prall: Melatonin (high dose, 300mg!) as Antioxidant = No upper limit to melatonin found. Zombifies less in high dose than low. Fasting intermittent or a few days improves gut flora, mitochondria, melatonin.
Jacobi: Explore Gut-Related Causes Of Fatigue: Biphasic: low-FODMAP.
Hawrelak: The Gut-Mitochondria Connection = “Nurture you cells like loved ones or a pet.” “Eat mostly plants, unprocessed, whole foods that contain a lot of diversity in fibre types and colours: for polyphenols.”
Vaszily: Daily Source Of Toxins = Trauma & pesticides etc.: “Deal with your trauma.” And use organic.
Seneff: The Harmful Combination Of Deuterium And Glyphosate = natural deuterium alone is OK to handle, but glyphosate makes it difficult.

Plus a 1h30 video about holistic dentistry on thegrownetwork by Jörgensen:

  • Vitamin D + Vitamin K needed for all the minerals.
  • IOAMT website: smart removal protocol for mercury.
  • Root canal means tooth is dead or dying. It works OK, but it’s impossible to do it perfectly. Dead nerve tissue, bugs. Hard work. Quite some failed root canals. Squishing infection into the blood stream. Unable to seal or fill it completely. Bacteria will grow, create new pocket of infection that you don’t feel. CT scan necessary, you’re not able to see everything with an X-ray.
    She removes root canal teeth every day. They are like leaving your car light on in the night - slowly drain energy. Dental specific CT scans. Cone beam CT scan. Like taking off a toe if gangrene.
    German translation: digitale Volumentomographie
  • First try to keep the tooth alive at all costs, e.g. ozone to sterilize the teeth.
  • Lose bottom tooth, the top tooth continues to move down, to find something to hit against. The teeth behind it will lean into the hole. Tooth meridian, energetic connection. Missing a tooth, you’re losing a charge.
  • A bridge connects, but asks a lot of the other teeth holding it. In 10 years you’ll lose one or both teeth holding it, cos of strain and then.
  • Partial denture is the same, holds the teeth where they should, but doesn’t replace it.
  • Dental implant - controversial - titanium traditional, zirconia newer. But Titanium Dioxide „titanic“ - is in many things, but exposed to a lot. Hips, knees, shoulders, higher rate of failure cos of the exposure. The wavelengths we’re exposed to pass thru them and heat them up, and that’s melting away the bone around them.
  • Recommends replacing, but with ceramic or zirconia implant.
  • Jaw bone dissolves if there’s nothing in there. Changes the way the face looks, breath, air.
  • Get absess tooth pulled? Yes, if ozone etc. doesn’t help.
  • Antibiotics: herbs instead. Long term. Pre-load yourself, 10-18 days, rather than hours. Noticem homeopathic antibiotic from Germany. Nano-silver, hydrogen peroxide before as a rinse, but not after, only before, cos it stops blood clots. PRF Patient rich fibrin - thick part of the blood, with growth factors and stem cells.
  • Dentures only give 20% of chewing efficiency back. Covers taste buds - less taste. Causes gagging. Bone dissolves. So new dentures needed. Denture glue with high levels of zinc ruining gut. Don’t!
  • Implants & difficult teeth change things in the whole body: Chewing on the other side changes jaw, head, neck, spine, need to reposture, only then rebuild: Finding the „muscle happy place“, position the muscles properly, then put in the tooth accordingly. Some can get out of their wheelchairs again.
  • Receding gums. Find the cause, e.g. infection. Otherwise you might need a gum graft every 5 years.

Quality of life

Lessons in self-care: Listening to all these vids all day and making notes is pretty strenuous, I’ll be glad when it’s thru, but might be worth it for fundamental new ideas/reminders.
Reasons to be cheerful: Loads. Energy still up. Good that the new filling is doing its job.
Simplified: Loads.
Foggies: Nope, fairly clear head.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-06-25 Sunday - energy up from 10% a week ago to “24%+” (at least), still seemingly mainly from :one: outdoor air, :two: early sunlight, :three: screen curfew, and praps (still got to make sure): :four::question: stopping the antihistamine and :five::question: using DAO before meals for histamine in food. Several local pains surprising me at night were resolved best with a cold shower, and nothing remaining in the morning, but praps cos i did some exercises/massage.

What worked today?:

Screen time before sleep :white_check_mark:.
I’m sure regular air/oxygen (praps toxins indoors) and sun/light early, and the screen time curfew is making the big difference. Masking for 3x15’ in the service this Sunday morning at 10:30, including singing, made me feel deprived more and more, and for about 5 hours after, and that may be oxygen, but it could also be chemicals in the mask. I should reduce masking more, at least when I can distance or reduce contact times, like in shops.

How was I today?:

Feeling 90%-ish :white_check_mark:, energy today :white_check_mark::white_check_mark:, sleep Saturday night :white_check_mark:, sleep Sunday night :white_check_mark:, bite itch :white_check_mark:. Nausea 0% (:white_check_mark:), fog 10% (:white_check_mark:).

Now working on… :

1) Early circadian rhythm for a) energy/sleep & b) Ache

Meal times early (:white_check_mark:) (:white_check_mark:) (:x:). Bed early / up early (:x:)+:white_check_mark:. screen time :white_check_mark: → Effective sleep :white_check_mark:. “PEM” :white_check_mark: vs. “Ache without exertion” :white_check_mark:.
:next_track_button: Decreasing carbs/muesli in the morning, increasing fruit (apples and dried) and nuts. (:white_check_mark:)
(But no intermittent fasting, cos I might lose appetite & weight, at most)
:next_track_button: Evening meal earlier (:x:)

Table tennis :ping_pong: 0:3 Saturday, so unadjusted , but

:ping_pong: 6:0 Sunday = adjusted to the new energy!

Noticed ache and exhaustibility increasing, but then noticed it was only in my arms & torso, so started using my legs more and could compensate!

1st game: 90-100% energy, easy, Ache 2.
2nd game: getting tougher, losing arm control, 70% energy, Ache 3-4.
3rd game: Noticing legs have energy, arm haven’t. 70%, Ache 4.
4th game: Started moving using leg energy. Ache 3. Easier.
5th game: Balancing out arms and legs, but also relaxing arms and jaw more. Ache 2. Easy. I can explain almost every point.
6th game: Fully balanced, very easy. Ache 2.
The basic energy increase was necessary though. And clear head.
Then in a service at 10:30 after a short break I was fine, but masking 3x15’ made me feel more & more deficient & needy of air, which took 4h to resolve.

1a) EXHAUSTIBILITY today: “76%-". Click for today's ENERGY profile. (Slow with "2h rest"). Aim now: Detailing & tracking my core symptom and Improving energy with 6am sunlight, air, 7pm reduced screen time, more effective sleep:

R rest: 100% exhaustion 10% of the time (1.5h),
VS very slow: 60% exhaustion 10% of the time (2h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 30% of the time (5h),
Q quick: 0-10% exhaustion 20% of the time (3h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 6h42, up 3x (1h11), all deep. Sleep breaks were pressing, not by pee though, so 2nd cold shower. Tired face, as <7h?, watch for that, but feeling well, no morning stiffness/Ache like yesterday, everything 0%, except 10% sore throat & tongue burn, dry mouth 20%. Bed too late and forgetting to take apigenin at first praps contributed to the sleep break length. ➔ Feeling 90% well, Ache 1 of 7 ✅, getting up: 90%/1 ✅. Nostrils 0(-5)% stuffy 100% of the night ✅. No sweating ✅. 3x air/, no sinus headache ✅, 2x FCS ✅, sting itch 0% ✅

Meal time (:x:), screen time :white_check_mark:, tired :white_check_mark:
rup0 A3 A4:0 teeth0 p0 FCS#1 Sleep 22:35 3rd # is LBU

0:10 no pee urge, but plantar fasciitis pain foot and knee right, so stretching.
->15’ 90%/1/5% (p0) st2 sip fw2’ fl0’ deep/ air/ A4/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FCS#2:0
nostril/s5/0% sinuses0% headache0% sore throat10% nausea0% stomach0% tongue15% stools0 loose% drymouth20% dryhands0% zombie0% itch0%
0:45 no pee urge, but somehow awake, praps from screen time, plantar/knee pain, so massager 2-3’ till no more power. Plus tendonitis pains right forearm near elbow, plus right palm, best FCS#2, plus right toenail, best tea tree oil - praps calendula and clean next.
->14’ 90%/1/5% (p0) st2 sip fw2’ fl0’ deep/ air/ A5/+apigenin, left out earlier, plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FCS#2/
nostril/s0/0% sinuses0% headache0% sore throat10% nausea0% stomach0% tongue10% stools0 loose% drymouth20% dryhands0% zombie0% itch0%
3:28 unrest/6,
→ 42’ 90%/1/5% (p0) st2 sip fw2’ fl0’ deep/ air/ A6/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FCS#3:0
nostril/s0/0% sinuses0% headache0% sore throat10% nausea0% stomach0% tongue10% stools0 loose% drymouth20% dryhands0% zombie0% itch0%
-6:28 90%/1/5% (p0) st2 sip fw2’ fl0’ deep/ air/ A7:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FCS#3:0
nostril/s0/0% sinuses0% headache0% sore throat10% nausea0% stomach0% tongue10% stools0 loose% drymouth20% dryhands0% zombie0% itch0%

1x FA/CS#1 :white_check_mark:
MINIMUM to MAXIMUM:
90%/1/5% (nostril/s0-5% sinuses0% headache0% sore throat10% nausea0% stomach0% tongue10% stools0 loose% drymouth20% dryhands0% zombie0% itch 0% (= normal for bites)
Sum: 6h28+1h25-(15+14+42)71’ = 7h53-1h11 = 6h42, up 3x (1h11), all deep. Sleep breaks were pressing, not by pee though, so 2nd cold shower. Tired face, as <7h?, watch for that, but feeling well, no morning stiffness/Ache like yesterday, everything 0%, except 10% sore throat & tongue burn, dry mouth 20%.

1b) ACTIVITIESACHE = PEM (Post exertional malaise): TT 6:0 (moving 20% (but needed to balance/compensate arms with legs, talking incl. counting 10%) ➔ 80%/2 :white_check_mark:, gardening/moving ➔ 80%/2 :white_check_mark:, talking ➔ 80%/2-3 :white_check_mark: . White lips (:x:) (:question:)
1c) REST/STIFFNESS ➔ ACHE about 2h in the morning 80%/4 :x:, Later less :white_check_mark:.

2) Food etc. as trigger of my nauseous sinus burning headache etc., praps DAO to stop food, cold shower to alleviate itch, and antihistamine (milli-dosed) if necessary.

June 25th: Run out of NATURDAO after taking it fairly consistently a few weeks, so let’s see whether the headaches come back. Not today :white_check_mark:.

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20% decreasing to 8-12% by end of May from new symptoms, partly from CoV itself. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

3) New 2023: Weight & Appetite Loss / Thirst

a) Sustainably up from 74.2kg? No. (:x:). But stable :white_check_mark:.
b) Meal appetite (mood?): 1st: 110% :white_check_mark: 2nd: 100% :white_check_mark: 3rd: 100% :white_check_mark:.
c) Thirst :white_check_mark:, dry mouth at night less (20% instead of 30%) (:white_check_mark:).

4) Docs: Asking oncologists about cancer/autoimmune (as GP & wife recommend, altho I think #3 was T4 and CoV, but also something unknown autoimmune).

Last DOC update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), keeping tooth, but renewing filling on the 23rd. Waiting for onco report, start asking for "2nd" opinion around 26th. Click for details...
Click for details: Update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

5) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

1) Symptoms well under control: GI (via elimination), pee (via GABA), LOCAL PAINS played up a bit for a short time at nigh t(❌), exercises & a 2nd cold shower helped ✅ (exercises, back: via using wall/door for support), Details...

except GI: stools loose0% :white_check_mark:, appetite better (:white_check_mark:), pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN - nauseating0% ✅, unwell0% ✅, last SEIZURES Jun 23rd 4x, Jun 16th, Jun 6th 2x, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: May 31st, before that Apr 4th (probably more often). JAW pain from tooth problems: May 10th till broken filling was taken out May 22nd.

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Last focal seizures: Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Creatine?
SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK. Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no EGCg or pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jun 16th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 0x1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0.1g, myo-inositol 1x2x0.5g/1!d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 3x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x1x.5g, resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (2+2+1)x0.6=3.0g (as much as B3). Plus rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated Jun 16th.
“16:00” preparing pills
“17:30” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xvC#1, 2Cr#1, PF#2, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1% Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc.
B=11/ ’ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +1-2The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=20 with meal: 1xB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 2xTMG#2 2xEleu 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jun 16th

Pf: A1+A2+A3, vB2: 1C,1D, 1A. vB3: 2C,2D.1A, vB5: C,DA. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3,a4, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. (pine: C,D.) Qc: B.E.A1.A3. Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 6MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, Ru, 2 Sa, Sily, 2Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jun 16th: correct?
A1=7+1 Pf#1 Qc1#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2, Ga#1:0.3g, Hon#1, Q10, 0Se, 1TMG#1 (?Rup). = 12?
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, 0EGCg, Fev/MSM#1, Qc#3, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#4 Gi#2 Ol#1 0Pin#1 2TMG#2 2xEleu 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=13 vB2#3 "2"vB3#3 vB5#3 3xCr#3 Ga#5 Gi#3 Ol#2 0Pin#2 2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today:

Mitochondria summit day #5
Frontiero: Solve Parasite Exposure
Wahls: Mitochondrial Dysfunction
Whitten: Mitohormesis
Myhill: Diagnose Chronic Fatigue
Gordon: Chronic Illness/Disease
Kahn: Mitochondria Powerhouses Of The Heart
Osansky: Thyroid Triggers
Song: Children
Kennedy: Fascia And Lymph.
Davis: Functional Lab Testing

Myhill - nothing new to me, except praps more vitamin C earlier in the day, instead of every meal, and reduce carbs. But still an exciting talk, altho I can well imagine why she’s controversial to mainstream.
How To Diagnose Your Chronic Fatigue
Dr. Sarah Myhill
„Mitochondria not Hypochondria“
Distinguishes ME from CFS. CFS poor energy delivery mechanisms. ME: poor energy delivery mechanisms AND chronic inflammation, immune system - chronic infection, allergy, autoimmunity - overlaps.
„You’ve got to have the right fuel in the tank.“ 1) Fuel in the presence of oxygen. All animals and plants (bar simple cells) also have mitochondria. The mitochondrial 2) engine. Control mechanisms 3) Thyroid accelerator pedal. 4) In response to demand / stress an adrenal gearbox.
Treatments have to be in a particular order.
Paleo-ketogenic diet to get fuel right.
Carbohydrates for breakfast is wrong fuel, it’s quick, but not sustainable, so eat your dinner for breakfast. Breakfast doesn’t have to look like society tells us.
Paleo-ketogenic vegan diet - possible to get better, but problem is they haven’t got any energy. Costs a lot of energy to go vegan. Eggs and praps fish we get a long way.
Upper fermenting gut. 20 feet sterile digesting carnivorous gut for meat and fat, the lower, the last 3 foot is fermenting, fibre, vegetarian. If high carbs overwhelms upper gut. Can’t be sterilized → bacteria, yeast - starts fermenting, like pylori. Doesn’t matter what, the treatment is the same.
Expensive supps feeds fermenters, not yourself. Produces toxins like alcohol, delactate etc., and these poison the mitochondria.
Starve out upper gut fermenters, then vit. C 5g in the morning. iodine 15% 3 drops at night contact kill all microbes.
Then you can get everything out of the food.
Levels necessary to know, key elements:
Mg 300mg/d
vit. D 10.000 IU
CoQ10 100mg
niacinamide 1500mg
ALC 1g
D-ribose praps
Not enough in a vegan diet, present in meat.
What blocks mitochondria? Overdoing it.
So pacing is essential, amount so OK next day, never have to pay for it the next day.
Needs to be aerobic (enough oxygen durng marathon) rather than anaerobic (quick sprint - overdoing it, like running up a hill) Aching, painful, lactic acid burn.
Thyroid: Low energy, plus owls (cos adrenals control circadian rhythm), face puffy, tongue swollen with teeth marks, nerve compression like carpal tunnel, praps sciatica. Pulse should be 70-75. 60s & below underactive thyroid. Poor temperature early in the morning 37.0 98°, less is too cold. Thinning & losing hair, dry skin.
Start with a very small dose, go slow cos 1) long acting - bio-accumulation 2) responsible for size and amount, increasing engine.
Adrenal stress: stress intolerant, stress, anxiety. Adrenal stress profile. Salivary hormone levels. Cortisol & DHEA over 24 hours. Menopause. Pregnenolon. Ashwagandha 1-4g/d Ginseng 1-2g/d.
Toxins: Single biggest load is sugar and carbs and the upper fermenting gut. Sugars: When you burn them you produce free radicals, ketones with minimal free radicals.
Avoid in cosmetics. „If you can smell it, it’s in your brain.“ „Put nothing on your skin you’re not prepared to eat.“
Heating regimes: 50 halves toxins. Epsom salt baths. The heat mobilizes toxins, moves them out. Magnesium absorbed, sulphate too. Any heating regime will do - sweating and showering. Sauna, exercise.
Tricky the toxic metals, get stuck in the body, not visible in bloods. Urine with DMSA as collating agent to pull them out. (15mg/kg body weight.) Vitamin C and iodine also gets rid of toxins.
Stephanie Senners Toxic Legacy. Amount of Glyphosate: we get 1g/d she calculated… so go organic.
Washing with vinegar water seems to help, bloods.
„Take control of your own health, do not rely on the doctors, … ask the question why, go on and do the regimes.“

Quality of life

Lessons in self-care: A bit careful, but stretching my energy was no problem today. Hopefully wary of what’s to come.
Reasons to be cheerful: Loads. a) Still Wow! b) Nice African-German service! c) The “wild wine” I’d cut back too much has at last grown over a metre! d) Pigeon and blackbird still nesting!
Simplified: I can take the early supps in the early sun on ‘my’ side of the house if I open the window.
Foggies: No.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-06-26 Monday - energy still up or on the increase!

What worked today?:

Sun/light early, outdoors air/O2 all day, no late screens :white_check_mark:.
Another thing I’ve changed is eating eggs & dairy (cow, sheep, goats), to increase my appetite. Can’t exclude that helping…

How was I today?:

  • Physical energy high, again wasn’t really possible to overdo it, I’d need to start doing more, and…
  • All day I was able to take 2 steps on the staircase… but…
  • Talking live to a person with these conditions however, 20’ was the limit! Together with complications in changing our telecommunication provider that was strenuous. Didn’t decrease my physical energy, but was simply a strain.
  • My stiffness was not completely gone, but down from 3 to 1-2, developed less quickly.
  • In the 2nd half of the night I got a severe sore throat and when I got up found that I was also cold-type feverish and slightly ‘ill’. Calendula essence reduced the sore throat, my 2 warm pairs of socks over my 3 normal ones will hopefully help me recover. I’m not sure what from, but I seem to remember only having 2 pairs of socks on for a time in the evening.

:bulb: If I stop screens with my last meal, I tend to move a lot in the garden, which together with the sleepy-feverish-feeling makes me slightly sweat in this hot weather, which ends in me having to cold shower to sleep. Probably not “circadian” enough.
:student: circadian means “roughly (circa) according to the 24 hour day (dian)”, our inner clock and was coined after several flukes by Frank Halberg 1959.
:bulb: I tried not cold showering, didn’t last 2 minutes in bed before the feverish-heat came up again, so couldn’t save time, shouldn’t bother trying, even if it seems “too late”.
:bulb: I’ve been forgetting to greatly increase how much I’ve been moving during table tennis the last few days from 10% to 40% - sometimes kicking the ball back, only once picking up, not counting, not talking much.

Feeling 90%-ish :white_check_mark:, energy today :white_check_mark:, sleep Sunday night :white_check_mark:, sleep Monday night :white_check_mark:, sting itch :white_check_mark:. Nausea 0% :white_check_mark:, fog 10% :white_check_mark:.

Now working on… :

0) Thinking about Intermittent fasting in the form of Time Restricted Eating TRE, at least decreasing to 12/12 (= 8 to 20:00).

1) Early circadian rhythm for a) energy/sleep & b) Ache

Meal times early (:white_check_mark:) (:x:) :x:. Bed early / up early (:white_check_mark:) :white_check_mark: screen time :white_check_mark: → Effective sleep :white_check_mark:. “PEM” (:white_check_mark:) vs. “Ache without exertion” (:white_check_mark:).
Decreasing carbs/muesli in the morning, increasing fruit (apples and dried) and nuts. (:white_check_mark:)
Evening meal earlier :x: - but I’m realizing that my eating the 1st meal later is also decreasing the meal window from about 8-8.

Table tennis: 0:3 Saturday, 6:0 Sunday!
7:0 Monday!..:
Ache going up to 3 from game #3, but relaxing managed to keep it down to that till game #7, where it went up to 5, however down again fairly fast.
More Ache from the stress of changing web provider.

1a) EXHAUSTIBILITY today: “78%-". Click for today's ENERGY profile. (Slow with "2h rest"). Aim now: Detailing & tracking my core symptom and Improving energy with 6am sunlight, air, 7pm reduced screen time, more effective sleep:

R rest: 100% exhaustion 10% of the time (1.5h),
VS very slow: 60% exhaustion 10% of the time (2h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 30% of the time (5h),
Q quick: 0-10% exhaustion 20% of the time (3h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 7h10, up 3x (47'), all deep. All 'annoyances' 0%, even tongue less at 10% and dry mouth down from 30 to 20%, BUT sore throat went up from 10-100% ❌ ➔ Feeling 80% well (cos of sore throat and feeling a little as if a cold were coming up, Ache 2 of 7 ✅, getting up: 80%/2 ✅ (same). Nostrils 0-15% stuffy 100% of the night ✅. Sweating when I pulled the warmer duvet up more cos of my sore throat, which did remind me of the night sweats - gotta watch that (✅). 3x air/, no sinus headache ✅, 1x FA/CS#1 ✅, bite itch 0% ✅

Meal time :x:, screen time :white_check_mark:, tired :white_check_mark:
rup0 A3:0 A4:0 teeth/ p0 FCS#1 Sleep 22:38- 3rd # is LBU

0:22 6’ 90%/1/5% p0 st3 sip fw3’ fl0’ deep/ air0 A3/ plugs0 cream0 gel/ HWB#(0) Bedclothes: wet0% (teeth/ FCS#1)
(nostril/s5/0% sinuses?0% headache0% sore throat10% nausea0% stomach0% tongue10% stools0 loose% drymouth30% dryhands0% zombie0% itch0%
1:29 35’ 6 80%/2/5% p0 st2 sip fw3’ fl0’ deep/ air/ A4/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% (teeth/ FCS#1)
(nostril/s0/15% sinuses0% headache0% sore throat15% nausea0% stomach0% tongue10% stools0 loose% drymouth20% dryhands0% zombie0% itch0%
4:28 6’ 90%/2/5% p0 st2 sip fw3’ fl0’ deep/ air/ A5/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% (teeth/ FCS#1)
(nostril/s0/15% sinuses0% headache0% sore throat100% → calendula essence, pulled thicker foot duvet up more, nausea0% stomach0% tongue10% stools0 loose% drymouth20% dryhands0% zombie0% itch0%. Forgot A2+A3 GABA again, watch out for seizures. Need to put a sticker on that tub!
-6:35
80%/2/5% p0 st3/2 sip deep/ air/ A6/! (teeth/ FCS#1)
nostril/s0/15% sinuses0% headache0% sore throat100% → calendula essence, pulled thicker foot duvet up more, nausea0% stomach0% tongue10% stools0 loose% drymouth20% dryhands0% zombie0% itch0%.

1x FA/CS#1 :white_check_mark:
MINIMUM to MAXIMUM:
80-90%/1-3/5% nostril/s0-15% sinuses0% headache0% sore throat10-100% :x: nausea0% stomach0% (despite brushing with menthol toothpaste) tongue10% stools0 loose% drymouth30-20% dryhands0% zombie0% itch 0%
Sum: 1h22+6h35-(6+35+6)47’ = 7h57-47’ = 7h10, up 3x (47’), all deep. All ‘annoyances’ 0%, even tongue less at 10% and dry mouth down from 30 to 20%, BUT sore throat went up from 10-100% :x:

1b) ACTIVITIESACHE = PEM (Post exertional malaise): TT 7:0 (moving 10%, talking incl. counting 10%) ➔ 80%/4 :x:/:white_check_mark:, gardening/moving ➔ 80%/2 :white_check_mark:, talking ➔ 80%/4 :x:. White lips (:x:) (:question:)
1c) REST/STIFFNESS ➔ ACHE 90%/0 :white_check_mark:, but later I realized that it wasn’t gone, but 1-2 (:white_check_mark:)

2) Food etc. as trigger of my nauseous sinus burning headache etc., praps DAO to stop food, cold shower to alleviate itch, and antihistamine (milli-dosed) if necessary.

Since June 25th: Run out of NATURDAO after taking it fairly consistently a few weeks, so let’s see whether the headaches come back. Not today :white_check_mark:.

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20% decreasing to 8-12% by end of May from new symptoms, partly from CoV itself. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

3) New 2023: Weight & Appetite Loss / Thirst

a) Sustainably up from 74.2kg? No. (:x:). But stable :white_check_mark:.
b) Meal appetite (mood?): 1st: 90%, but not early, and not that much (:white_check_mark:) 2nd: 90% (:white_check_mark:)3rd: 90% (:white_check_mark:)
c) Thirst :white_check_mark:, dry mouth at night :x:.

4) Docs: Asking oncologists about cancer/autoimmune (as GP & wife recommend, altho I think #3 was T4 and CoV, but also something unknown autoimmune).

Last DOC update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), keeping tooth, but renewing filling on the 23rd. Waiting for onco report, start asking for "2nd" opinion around 26th. Click for details...
Click for details: Update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

5) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

1) Symptoms well under control: GI (via elimination), pee (via GABA), LOCAL PAINS (exercises, back: via using wall/door for support), Details...

except GI: stools loose0% :white_check_mark:, appetite better (:white_check_mark:), pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN - nauseating10% ✅, unwell10% ✅, last SEIZURES Jun 23rd 4x, Jun 16th, Jun 6th 2x, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: May 31st, before that Apr 4th (probably more often). JAW pain from tooth problems: May 10th till broken filling was taken out May 22nd.

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Last focal seizures: Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Creatine?
SELF-PHYSIO (click for details): OK. Wrists: more (✅) At night worked on right foot & knee plus forearm elbow tendons. Air + light + movement all day. ✅ Cold showering every day ✅✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK. Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no EGCg or pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jun 16th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 0x1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0.1g, myo-inositol 1x2x0.5g/1!d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 3x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x1x.5g, resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (2+2+1)x0.6=3.0g (as much as B3). Plus rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated Jun 16th.
“16:00” preparing pills
“17:30” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xvC#1, 2Cr#1, PF#2, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1% Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc.
B=11/ ’ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +1-2The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=20 with meal: 1xB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 2xTMG#2 2xEleu 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jun 16th

Pf: A1+A2+A3, vB2: 1C,1D, 1A. vB3: 2C,2D.1A, vB5: C,DA. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3,a4, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. (pine: C,D.) Qc: B.E.A1.A3. Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 6MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, Ru, 2 Sa, Sily, 2Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jun 16th: correct?
A1=7+1 Pf#1 Qc1#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2, Ga#1:0.3g, Hon#1, Q10, 0Se, 1TMG#1 (?Rup). = 12?
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, 0EGCg, Fev/MSM#1, Qc#3, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#4 Gi#2 Ol#1 0Pin#1 2TMG#2 2xEleu 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=13 vB2#3 "2"vB3#3 vB5#3 3xCr#3 Ga#5 Gi#3 Ol#2 0Pin#2 2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today:

Mitochondria summit day #6
Whoops, cos of changing provider I wasn’t able to get far thru today’s talks in time, I was wanting at least to listen to the Masterjohn talk… My wife said I should praps buy the talks anyway. I only glean “<1%” from them, but it’s these 1% bits that are now making a lot of difference. So it’d also be thanking for what it’s worth to me. Altho $97 is quite a lot, previous summits were quite a bit cheaper.

Quality of life

Lessons in self-care:
Reasons to be cheerful: Not just keeping up the energy, but also seeing I can do even more without backlash.
Simplified: So easy getting up, opening window & taking first supps immediately.
Foggies: No.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-06-27 Tuesday - TT still up (from 2 to 3 to 7) to :eight: 8 games today…! Despite severe sore throat and cold symptoms at night and in the early morning. Also slightly increasing socializing, to 3x30’ but that’s even tougher.

:partying_face:

What worked today?:

Air/O2 & sun/light early (:white_check_mark:)
Less screen time before sleep (:white_check_mark:). When I minimized this was when my energy really took off.
Pushing thru table tennis despite sore throat and feverish/hot-cold feeling was risky…
My wife reported 2 hacks she heard Sunday for bite itch, a herb and a hot spoon - I like the latter, so tried that and it helped: First = worst spot (wrist) took 10’ (3-4x for a minute). Next two (near right arm pit and left of navel
Adding to saying my now eating more dairy yesterday - listening to Balcavage on the Mitochondria Summit it just occurred to me that it might be helping my body take up protein better.
Tues: Before bed bite itch right wrist hot cup, right knee & left shoulder tendons massager, left big toe nail: something’s got thick - bunion?

How was I today?:

Feeling 85%-ish (:white_check_mark:), energy today (:white_check_mark:), sleep Monday night :white_check_mark:, sleep Tuesday night (:x:) cos of disappointment, sting itch (:white_check_mark:) (hot spots). Nausea 0% :white_check_mark:, fog 10% :white_check_mark:.

Now working on… :

0) Time Restricted Eating TRE 12:12 (= 8:00 to 20:00)?

Restricting more than that might reduce my appetite and weight, but this regime might make eating earlier more attractive. I’ll keep it in mind, but take this 0) off again.

1) Early circadian rhythm for a) energy/sleep & b) Ache

Meal times early (:white_check_mark:)(:white_check_mark:)(:x:). Bed early / up early (:white_check_mark:)(:white_check_mark:). screen time (:white_check_mark:) → Effective sleep (:x:). “PEM” :white_check_mark: vs. “Ache without exertion” (:white_check_mark:)/(:x:).
Decreasing carbs/muesli in the morning, increasing fruit (apples and dried) and nuts. (:white_check_mark:)
Evening meal earlier (:x:)

:ping_pong: Table tennis 0:3 Saturday, 6:0 Sunday. 7:0 Monday, 5:3 Tuesday (not easy, but not really PEM either)
Due to “scientific curiosity” that was overdoing it today, but not energy-wise more cos having had the severe sore throat and cold feverish feeling actually would have needed me to go easy. However I did notice the necessity and implement deep relaxation between points, however not during them. And at 17:00 I’m still “exhausted”, but like after a marathon, no pain, no PEM, no backlash, no immune / cold problems. So I hope I did it right.

1a) EXHAUSTIBILITY today: “78-%". Energy greatly increased starting June 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile. (Slow with "2h rest"). Aim now: Detailing & tracking my core symptom and Improving energy with 6am sunlight, air, 7pm reduced screen time, more effective sleep:

R rest: 100% exhaustion 10% of the time (1.5h),
VS very slow: 60% exhaustion 10% of the time (2h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 30% of the time (5h),
Q quick: 0-10% exhaustion 20% of the time (3h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 6h21, up 5x (2h10), deep, but some heart thumping and 20' NSDR. (can't 14' of that in which I couldn't concentrate). Disappointing mail shortly before bed, where I'd been disinvited. Annoyances aside from that were only sore throat & dry mouth 20% and tongue 10%! ➔ Feeling 85% well, Ache 1 of 7 ✅, getting up: 85%/1 ✅. Nostrils 0% stuffy 100% of the night ✅. No sweating ✅. 5x air/, no sinus headache ✅, 2x FCS ✅, bite itch 0% ✅

Meal time :white_check_mark:/:x:, screen time :white_check_mark:/:x:, tired :white_check_mark:/:x:
rup0 22:30:A2+A3! A4:0 teeth0 p0 HWB#0 FCS#1 Sleep 22:30- 3rd # is LBU

23:36 10’+3’ = 20’: challenge having been glad to be asked to take part in playing music, then a few hours later asked not to… 85%/1/5% p0+p0, so → +thicker socks, st2 sip fw2’ fl0’ deep/ air/ A4/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FCS#2:0
nostril/s5/0% sinuses0% headache0% sore throat10% nausea0% stomach0% tongue10% stools0loose% drymouth20% dryhands0% zombie0% itch10%
0:25- 16’ can’t sleep cos of my disappointment at being disinvited, for reasons I cannot share/see/understand… Same as before.
-14’- > FCS#2 + 0:41-00:55 NSDR - can’t concentrate on it, cos can’t hear it well, thoughts too loud, making me “lose appetite”. What now: 6/screen, or NSDR louder?
6 44’ -1:39 NSDR
3:04 5’ pee
dst2 sip fw2’ fl0’ deep/ air/ A5/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FCS#2:0
nostril/s10/0% sinuses0% headache0% sore throat20% nausea0% stomach0% tongue10% stools0loose% drymouth20% dryhands0% zombie0% itch10%
4:33 5’ lying sheets open, bit cold, dreaming of a killing in a crime story, thumping heartbeat → trousers on, calendula essence. sore throat 30%. tongue 10% drymouth 20%
-5:57- 12’ sore throat 20%. tongue 10% drymouth 20%. A6/
-7:01 sore throat 20%. tongue 10% drymouth 20%.
1x FA/CS#1 :white_check_mark:
MINIMUM to MAXIMUM:
85%/1/5% (nostril/s0-10% sinuses0% headache0% sore throat20% nausea0% stomach0% tongue10% stools0 loose% drymouth20% dryhands0% zombie0% itch 0%
Sum: 7h01+1h30-(20+1h14+5+5+12)‘-14’ NSDR = 8h31-2h10 = 6h21, up 5x (2h10), deep, but some heart thumping and 20’ NSDR. (can’t 14’ of that in which I couldn’t concentrate). Disappointing mail shortly before bed, where I’d been disinvited. Annoyances aside from that were only sore throat & dry mouth 20% and tongue 10%!

1b) ACTIVITIESACHE = PEM (Post exertional malaise): TT 5:3 (moving 30%, talking incl. counting 20%) ➔ 80%/3-4 :white_check_mark:, gardening/moving ➔ 80%/2 :white_check_mark:, talking ➔ 80%/3 :x:. White lips (:x:) (:question:)
1c) REST/STIFFNESS ➔ ACHE 90%/0 :white_check_mark:.

2) Food etc. as trigger of my nauseous sinus burning headache etc., praps DAO to stop food, cold shower to alleviate itch, and antihistamine (milli-dosed) if necessary.

Since June 25th: Run out of NATURDAO after taking it fairly consistently a few weeks, so let’s see whether the headaches come back. Not today :white_check_mark:.

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20% decreasing to 8-12% by end of May from new symptoms, partly from CoV itself. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

3) New 2023: Weight & Appetite Loss / Thirst

a) Sustainably up from 74.2kg? No. (:x:). But stable :white_check_mark:.
b) Meal appetite (mood?): 1st: ?110% :white_check_mark: 2nd: ?90% (:white_check_mark:)/:x: 3rd: ?100% :white_check_mark:/:x:
c) Thirst :white_check_mark:, dry mouth at night :x:.

4) Docs: Asking oncologists about cancer/autoimmune (as GP & wife recommend, altho I think #3 was T4 and CoV, but also something unknown autoimmune).

Last DOC update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), keeping tooth, but renewing filling on the 23rd. Waiting for onco report, start asking for "2nd" opinion around 26th. Click for details...
Click for details: Update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

5) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

1) Symptoms well under control: GI (via elimination), pee (via GABA), LOCAL PAINS (exercises, back: via using wall/door for support), Details...

except GI: stools loose0% :white_check_mark:, appetite better (:white_check_mark:), pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN - nauseating10% ✅, unwell10% ✅, last SEIZURES Jun 23rd 4x, Jun 16th, Jun 6th 2x, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: May 31st, before that Apr 4th (probably more often). JAW pain from tooth problems: May 10th till broken filling was taken out May 22nd.

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Last focal seizures: Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Creatine? Methylene blue?
SELF-PHYSIO (click for details): OK? Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK? Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no EGCg or pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jun 16th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 0x1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0.1g, myo-inositol 1x2x0.5g/1!d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 3x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x1x.5g, resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (2+2+1)x0.6=3.0g (as much as B3). Plus rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated Jun 16th.
“16:00” preparing pills
“17:30” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xvC#1, 2Cr#1, PF#2, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1% Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc.
B=11/ ’ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +1-2The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=20 with meal: 1xB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 2xTMG#2 2xEleu 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jun 16th

Pf: A1+A2+A3, vB2: 1C,1D, 1A. vB3: 2C,2D.1A, vB5: C,DA. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3,a4, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. (pine: C,D.) Qc: B.E.A1.A3. Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 6MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, Ru, 2 Sa, Sily, 2Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jun 16th: correct?
A1=7+1 Pf#1 Qc1#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2, Ga#1:0.3g, Hon#1, Q10, 0Se, 1TMG#1 (?Rup). = 12?
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, 0EGCg, Fev/MSM#1, Qc#3, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#4 Gi#2 Ol#1 0Pin#1 2TMG#2 2xEleu 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=13 vB2#3 "2"vB3#3 vB5#3 3xCr#3 Ga#5 Gi#3 Ol#2 0Pin#2 2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today:

Mitochondria summit day #6 hmmm…: They may do a replay weekend, and then I’ll try to get there. There was a repetition of selected interviews today, but I’d managed to catch all of them.

Mitochondria summit day #7: see separate entry below, cos it was busting the size of this entry.

Quality of life

Lessons in self-care: Can’t fully believe it yet. But for the first time in everything that has ever made a difference, it feels fairly stable, longer, with no side effects at all, so trustworthy. However I desparately need to get last night’s sleeplessness back, maybe a nap.
Reasons to be cheerful: I’m so surprised how well this is working!
Simplified: Sleep symptoms by not repeating 0% ones any more.
Foggies: No.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

Tuesday’s ‘Research’:

Mitochondria summit day #7

  1. Frontiero: 7 ‘Positive’ Stressors
  2. Balcavage: Thyroid Cold therapy and amino acids may be tools, but amino acids are in protein, so we only have to optimize that stuff. You still may not absorb them if you have low stomach acid and gut issues, but “we make it look good”. “Cellular” hypothyroidism - adaptive response to environment and lifestyle. 3 biggest needle movers - 1) Wholefood, the one that fits best. 2) Taking people off supplements. Supplement addiction. Too many are over-supplemented. Don’t realize that they are creating problems for them. 3) Sleep: Behaviour - rather than melatonin & GABA. WiFi off at night - makes you eat more carbs (not me!) 4) Diet. “The Thyroid Debacle” rejuvagencentre
  3. Watts: Parasites - in lungs - moon changes body - after our serotonin? Use our serotonin to communicate. Protocol in the right order. It’s never one thing that’s the problem, it’s a multitude, combinations of mould, Lyme, parasites, toxicons, trauma - emotional & physical… Reduces allergies, food sensitivities, joint pain, skin,
  4. Ewers: Toxic Relationships With Stress - “Post Traumatic Growth”. Yoga - Autoimmunity is undigested anger. Attacking myself. When did I ever want to die? She when she was being sexually abused as a kid. Define Trauma (connected to definitions of Narcissism & Forgivenness too, all 3 difficult). You go thru an event in life which you don’t have the skill set to manage it, to navigate it - Trauma (e.g. disasters, war) vs. trauma. Some can, some can’t. Bad relationship with stress and adversity, things to fear. Ari in answer: Of course… and it’s also true that adversity shapes us into stronger and wiser people. We shouldn’t wish for a life without adversity. No one grows into their fullest potentials and capacities by sitting on a beach by sitting on a beach… Ewers: And the attachment and wish for that is actually a big cause of suffering. Post traumatic growth (HURT model - Healing UnResolved Trauma): Nervous system upregulation, as child you normally freeze (because no prefrontal cortex). That gets frozen in your system, creates a belief and an adaptive behaviour you create in that moment. Later on as an adult willingness vs. unwillingness to confront. Confrontation helps get new skill sets and expertise. With the knowledge that life will give you another one. Stream of Truth - everything will die. Willingness to confront and to integrate. Whitten cites a cycle: “Hard times create strong men. Strong men create good times. Good times create weak men. Weak men create hard times. And so on.” Ewers: As a parent she learnt from talks by successful people who all came from some hardship / adversity decided to say to her kids: “There’s a new sheriff in town. My job is no longer to make you happy. My job is to give you the tools to be able to manage life when it is inevitably unhappy and challenging for you. And that is the new mandate for this parent.” Whitten: Hormetic stress for mitochondria, you have to challenge them. Living dynamic systems, always changing, not stagnant. Ewers: Fear about loss is going to carve microglia away in the brain. Heal your perceptions. Ancient Eastern philosophy: 17 steps for 1 perception. Create a gap using contemplative work. Aversion - microglia start up, mast cells, immune system. Talk of trauma and feeling triggered nowadays is making kids think that someone else saying words has control over my nervous system. If someone else has the wrong word, they need to be censored, prevented from expressing that thought, because that thought controls my nervous system, because I am a victim, and need to be protected from this. Ewers; I’m highly sensitive, I’m intuitive, those toxic people, those narcissists out there, I have to be kept away from them. Whitten: Opposite of resilience, teaching & re-inforcing that what is desirable is as fragile as possible, and to be victimized by everything and that you don’t have control over your actions and perceptions - is someone else words or actions controlling your physiology - what could be more disempowering. Jonathan Haidt calls that the opposite of CBT. Ewers: Called maladaptive covert narcissim - over-occupied with story, health, setting boundaries - absolutely if you’re in a toxic relationship get out, but it’s a problem if you make it the ground you stand on. Being resource, vulnerable and perservering instead of drama triangle.
    [Reminds me of the German word and attitude “Abhärtung” - for things like sauna, cold swimming.] Ewers: “confronting with compassionate curiosity”, being willing to engage in that. Whitten: Some are not at all willing to consider that your ways are causing the problems. Others seem endlessly stuck in a loop of trying to fix themself, healing their trauma etc. Deep form of self-centredness, self-obsession (Ewers: malabsorption?) Do this, but not for yourself, like a mouse, but for everyone as part of the big whole, like an eagle. In stress: Calm your mind. The biggest needle mover is willingness. Don’t feel responsible to wake anyone up. But if someone wants to, there are different traits, but first step across the board - track your thoughts for 24 hours, then a week, content, repeat, how you feel, wake awareness, bag of dark and light pebbles, for every ruminating life-destructive thought a dark pebble. When you see the amount of pebbles you start to take control over your thoughts and master them. See your pattern. Then individual work starting with that pattern. drkeesha.
  5. Galbraith: Genetics: Top 3 genes: SOD Superoxide dismutase, catalase (CAT), glutathione peroxidase (GPX). SOD 6’34’': Break down free radicals, well rounded. For ATP they release a superoxidase free radical, kills off infections, but not kept in check, accumulates. It neutralizes that radical into hydrogen peroxidase. Can combine with NO, which can combine to O NO. Tissue breakdown: Joint pain, brain fog, stiff mornings. Not clearing free radicals, so detox necessary. Possible to take as supps, but if very sick it can “throw you under a bus”. GPX. Jet lag might be much more than time zone change, but exposure to many toxins.
  6. Lieurance: High Dose Methylene Blue & Melatonin
    Methylene Blue is very old, used initially as stain to understand malaria. Antimicrobial and enhancer of mitochondria function, upregulates them by 30%. Absorbs well orally, not so good sublingually. Higher dose, but people were scared by serotonin surgery with high dose with SSRIs at the same time brought on serotonin storm, but. 40-180-280mg/d. Standard is 0.5-4mg/kg body weight. Urine blue, but helps urinary infection, without antibiotics. Don’t wear sunglasses normally. Combine with light therapy. Sun without sun screen or sun glasses, cos it triggers melatonin to be produced, we have to slowly get used to it. Eyes get sensitive if you don’t. Sun glasses only between 11 and 2. Sungazing - cells dense with mitochondria in the eyes, high rate of photon absorption. Besides the signalling that’s happening inside the body that’s positive - this whole circadian rhythm also plays into having a strong mitochondria. The cells can regenerate themselves, recover at night. Melatonin has been shown to detox heavy metals out of the brain. Recommend binders with higher dosages, cos you’ll release toxins. Sometimes side effects when they start. Feel too groggy or headache. But they level off after a few days. For sleep or for mitochondrial support (for adaptation). Glutathione wraps around toxics like fly paper and chaperones them out of the body, detox. Unlike methylene blue and melatonin - better rectal - suppositories. Bypasses gut, absorbed direct. Glutathione helps improve sleep, viral immunity & detoxify, anti-inflammatory - allergies, autoimmune conditions. “Sandman” for sleep. High melatonin 200mg + glutathione. See Jason Prall. Liposomal anal suppository. Also recommends breath-holds like Wim Hof, which makes him winsome to me, however I can’t see myself .
  7. Shah: Ayurveda
  8. Mattson: Intermittent Fasting as Hormesis = “good” stress.

2023-06-28 Wednesday - :ping_pong: 7:1! (Bit tired the rest of the day, but no PEM)

What worked today?:

Early sun, air all day, screen curfew at 8 (& dairy & eggs?)
Decreasing the eating window with first meal later today definitely wasn’t good for anything, cos I was hungry & thirsty playing table tennis, which took a long time, so it’s made everything later.
Wonder if it’s also things wearing off, like jab #3 Nov. 7th, T4 in February, CoV in March, stress at the end of May. And what’ll happen when the sun decreases.

How was I today?:

Feeling 85%-ish (:white_check_mark:), energy today :white_check_mark:, sleep Tuesday night :x:, sleep Wednesday night :white_check_mark:, sting itch (:white_check_mark:). Nausea 0% :white_check_mark:, fog 10% :white_check_mark:.
After 8 games of table tennis I was sort of exhausted all day like you would after taxing sports, but no backlash at all and no problems from the cold type symptoms I had yesterday.
**Again started sweating from doing things in the garden after evening meal. I’m trying to move less, but it hasn’t worked so far. So cold showering always necessary for sleep. Maybe immediately take my hoodie off? **

Now working on… :

0) :thinking: :new: Methylene Blue seems too risky at the moment.

1) Early circadian rhythm for a) energy/sleep & b) Ache

Meal times early (:x:)(:x:)(:x:). Bed early / up early (:white_check_mark:)/(:white_check_mark:). screen time (:x:) → Effective sleep :white_check_mark:. “PEM” :white_check_mark: vs. “Ache without exertion” (:white_check_mark:).
Decreasing carbs/muesli in the morning, increasing fruit (apples and dried) and nuts. (:white_check_mark:)
Evening meal earlier (:x:)

:ping_pong: Table tennis 0:3 Saturday, 6:0 Sunday. 7:0 Monday, 5:30 Tuesday (not easy, but not really PEM either), 7:1 Wednesday!

1a) EXHAUSTIBILITY today: “78%-". Energy greatly increased starting June 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile. (Slow with "1.5h rest"). Aim now: Detailing & tracking my core symptom and Improving energy with 6am sunlight, air, 7pm reduced screen time, more effective sleep:

R rest: 100% exhaustion 10% of the time (1.5h),
VS very slow: 60% exhaustion 10% of the time (2h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 30% of the time (5h),
Q quick: 0-10% exhaustion 20% of the time (3h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 7h16, up 5x (43'), all deep. At 5:30 I was wondering whether the Ache after sleeping is from the pressure and hurts mainly where I'm lying on. And it seemed partly as if my tongue hurts more if my mouth is dryer, but that then did vary. Interesting that my nostrils are under control, dunno why, and my dry hands, from the liquid olive soap. Dry mouth 30%, sore throat 20%, tongue 10-20%, itch 10-60%. ➔ Feeling 90% well, Ache 1-2 of 7 ✅, getting up: 90%/2 ✅. Nostrils 0-10% stuffy 100% of the night ✅. No sweating ✅. 5x air/, no sinus headache ✅ - I'll take this out now, 1x FCS ✅, bite itch 10-60% ✅

Meal time (:x:), screen time (:x:), tired :white_check_mark:
rup0 A3 A4:0 teeth0 p0 FA/CS#1 HWB#0 Sleep 22:15- 3rd # is LBU
23:01 5’ 90%/1/5% p0 st2 sip fw2’ fl0’ deep/ air/ A4/
drymouth25% dryhands0% sore throat10% tongue10% itch10% nostril/s0/0% sinuses0% headache0% nausea0% stomach0% stools0 loose% zombie0% plugs0 cream0 gel0 HWB#(0) Bedclothes:wet0% eeth0

0:35 10’ 90%/1/5% p0 st2 sip fw2’ fl0’ deep/ air/ A5/
drymouth25% dryhands0% sore throat20% tongue10% itch10% nostril/s0/0% sinuses0% headache0% nausea0% stomach0% stools0 loose% zombie0% plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth
1:22 10’ 90%/1/5% p0 st2 sip fw2’ fl0’ deep/ air/ A6/
drymouth25% dryhands0% sore throat20% tongue10% itch70% nostril/s0/0% sinuses0% headache0% nausea0% stomach0% stools0 loose% zombie0% plugs0 cream0 gel0 Bedclothes: wet0% HWB#0 teeth
3:25 10’ back exercises 90%/1/15% p0 st2 sip fw2’ fl0’ deep/ air/ A7/ drymouth30% dryhands0% sore throat20% tongue20% itch10% nostril/s0/10% sinuses0% headache0% nausea10% stomach10% stools0 loose% zombie0% plugs0 cream0 gel0 Bedclothes: wet0% HWB#0 teeth
5:27 8’ 90%/2/5% p0 st1 sip fw5’ fl0’ deep/ air/ A8/ drymouth30% dryhands0% sore throat20% tongue20% itch10% nostril/s0/10% sinuses0% headache0% nausea10% stomach10% stools0 loose% zombie0% plugs0 cream0 gel0 Bedclothes: wet0% HWB#0 teeth
-6.14 90%/1-2/15% p0 st1 sip fw5’ fl0’ deep/ air/ A8/ drymouth30% dryhands0% sore throat20% tongue20% itch10% nostril/s0/10% sinuses0% headache0% nausea10% stomach10% stools0 loose% zombie0% plugs0 cream0 gel0 Bedclothes: wet0% HWB#0 teeth
1x FCS :white_check_mark:
MINIMUM to MAXIMUM:
90%/1-2/5(-15)% drymouth30% dryhands0% sore throat20% tongue10-20% itch 10-60% (-> heat) nostril/s0-10% sinuses0% headache0% nausea0% stomach0-10% stools0 loose% zombie0%
Sum: 6h14+1h45-(5+10+10+10+8)43’ = 7h59-43’ = 7h16, up 5x (43’), all deep. At 5:30 I was wondering whether the Ache after sleeping is from the pressure and hurts mainly where I’m lying on. And it seemed partly as if my tongue hurts more if my mouth is dryer, but that then did vary. Interesting that my nostrils are under control, dunno why, and my dry hands, from the liquid olive soap. Dry mouth 30%, sore throat 20%, tongue 10-20%, itch 10-60%.

1b) ACTIVITIESACHE = PEM (Post exertional malaise): TT (0:1 → ) 7:1 (moving 40%, occasionally kicking the ball back, not picking it up tho, talking 20%, not counting) ➔ 80%/3 :white_check_mark:, gardening/moving ➔ 80%/2 :white_check_mark:, didn’t talk much, but did keep it down during TT ➔ 80%/3 :x:. White lips? (:x:) (:question:)
1c) REST/STIFFNESS ➔ ACHE 90%/1-2 :white_check_mark:.

2) Food vs. nauseous sinus burning headache etc.? Good without DAO (since 25th) and antihistamine (milli-dosed) :white_check_mark:. Heat for bite itch :white_check_mark:.

:new: Wondering if I can increase histaminey foods now :question:

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, energy greatly increased from June 20th. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before. People stress end of May for a few weeks. Energy up from June 20th.

3) New 2023: Weight & Appetite Loss / Thirst

a) Sustainably up from 74.2kg? No. (:x:). But stable :white_check_mark:.
b) Meal appetite (mood?): 1st: 100% :white_check_mark: 2nd: 100% :white_check_mark: 3rd: 100% :white_check_mark:
c) Thirst (:white_check_mark:), dry mouth at night :x:.

4) Docs: Asking oncologists about cancer/autoimmune (as GP & wife recommend, altho I think #3 was T4 and CoV, but also something unknown autoimmune).

Last DOC update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), keeping tooth, but renewing filling on the 23rd. Waiting for onco report, start asking for "2nd" opinion around 26th. Click for details...
Click for details: Update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

5) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

1) Symptoms well under control: GI (via elimination), pee (via GABA), LOCAL PAINS (exercises, back: via using wall/door for support), Details...

except GI: stools loose0% :white_check_mark:, appetite better (:white_check_mark:), pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN - nauseating0% ✅, unwell0% ✅, last SEIZURES Jun 23rd 4x, Jun 16th, Jun 6th 2x, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: May 31st, before that Apr 4th (probably more often). JAW pain from tooth problems: May 10th till broken filling was taken out May 22nd.

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Last focal seizures: Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Creatine? Methylene blue?
SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no EGCg or pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jun 16th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 0x1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0.1g, myo-inositol 1x2x0.5g/1!d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 3x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x1x.5g, resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (2+2+1)x0.6=3.0g (as much as B3). Plus rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated Jun 16th.
“16:00” preparing pills
“17:30” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xvC#1, 2Cr#1, PF#2, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1% Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc.
B=11/ ’ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +1-2The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=20 with meal: 1xB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 2xTMG#2 2xEleu 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jun 16th

Pf: A1+A2+A3, vB2: 1C,1D, 1A. vB3: 2C,2D.1A, vB5: C,DA. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3,a4, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. (pine: C,D.) Qc: B.E.A1.A3. Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 6MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, Ru, 2 Sa, Sily, 2Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jun 16th: correct?
A1=7+1 Pf#1 Qc1#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2, Ga#1:0.3g, Hon#1, Q10, 0Se, 1TMG#1 (?Rup). = 12?
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, 0EGCg, Fev/MSM#1, Qc#3, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#4 Gi#2 Ol#1 0Pin#1 2TMG#2 2xEleu 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=13 vB2#3 "2"vB3#3 vB5#3 3xCr#3 Ga#5 Gi#3 Ol#2 0Pin#2 2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today:

Time restricted eating (TRE): The shorter the better, whatever time you start: Meal window, not time, matters for health - Alex Leaf, MS, CISSN (he calls it feeding, TRF). I had a look for studies, and only the one he cites, St. Onge et al 2023 Meal Timing and Frequency: Implications for Cardiovascular Disease Prevention - PMC was helpful, but this one was much more cautious than he is: "Ultimately, the clinician’s goal may be to help the patient spread energy intake over a defined portion of the day in a more balanced way rather than limited to 1 segment of the day or continuously over long periods of time (ie, grazing). " “Epidemiological findings suggest a potential detrimental effect of late meals on cardiometabolic health, but clinical intervention studies, which would address causality, have been limited in scope and too diverse to draw definitive conclusions and make recommendations.” These reported weight loss if done, which I wouldn’t need, whilst Association of Eating and Sleeping Intervals With Weight Change Over Time: The Daily24 Cohort - PubMed Zhao et al 2023 report “Our findings did not support the use of time-restricted eating as a strategy for long-term weight loss in a general medical population.”

Quality of life

Lessons in self-care: Keeping TT stretched to 8 games …
Reasons to be cheerful: … worked out fine.
Simplified: Yes.
Foggies: No.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-06-29 Thursday - :ping_pong: 8:0! But hours later feeling fit just 10’ to town and back and looking at ducks (1h20 altogether) caused PEM. I was so keen to, thought it’d be no problem at all, and was amazed at that mismatch.

What worked today?:

Early sun :white_check_mark:, air all day (:white_check_mark:), screen curfew at 8 - well, OK, 9 (:white_check_mark:)(& dairy & eggs?)

How was I today?:

Feeling 90%-ish :white_check_mark:, energy today (:white_check_mark:), sleep Wednesday night :white_check_mark:, sleep Thursday night :white_check_mark:, sting itch (:x:) - cos forgot the oils before cos it wasn’t sunny, but heat helped. Nausea 0% :white_check_mark:, fog 10% :white_check_mark:.

Wait, let me try to get this straight:

  • Not sure how much rest I’d need, probably more like 6h than 1.5h? 11:20… ah, I was meaning to write down my rest periods, didn’t remember tho.
  • generally fast and agile, 2 staircase steps at a time if I want to,
  • it needs to be in doses, so it’s still only an inkling of what it used to be.
  • the table tennis energy is very specific - I need to relax all the time, still can’t count, can now kick the ball back, picked it up once today, but sometimes trying to catch it nimbly makes me make a sort of gasping, groaning noise and give up.
  • still not talking that much, and listening is quite a strain too.
  • short duck watching turned out a big PEM problem.

Now working on… :

1) Early circadian rhythm for a) energy/sleep & b) Ache

Meal times early :white_check_mark: :white_check_mark: (:x:). Bed early / up early :white_check_mark: :white_check_mark: (longer was good to catch up the bad night. screen time (:white_check_mark:) → Effective sleep :white_check_mark:. “PEM” :white_check_mark::x: vs. “Ache without exertion” (:white_check_mark:).
Decreasing carbs/muesli in the morning, increasing fruit (apples and dried) and nuts. :white_check_mark:
Evening meal earlier (:x:) - but wasn’t my fault, so (:white_check_mark:)

:ping_pong: Table tennis 0:3 Saturday, 6:0 Sunday. 7:0 Monday, 5:3 Tuesday (not easy, but not really PEM either), 7:1 Wednesday, 8:0 Thursday (easy, but “tiring”)

:next_track_button: Next challenge: How much of a 7’ workout can I now do?
:next_track_button: Reduce siesta if the sun isn’t hot, for more air.

1a) EXHAUSTIBILITY today: “76%-". ENERGY greatly increased starting June 20th (I'd been omitting the word "energy" here the past week, whoops) by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile. (Medium, with "3h rest" - a lot more rest than 1.5h I've been asssuming, so I've increased to 3h at least). Aim now: Detailing & tracking my core symptom and Improving energy with 6am sunlight, air, 7pm reduced screen time, more effective sleep:

R rest: 100% exhaustion 20% of the time (3h),
VS very slow: 60% exhaustion 0% of the time (0h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 30% of the time (5h),
Q quick: 0-10% exhaustion 20% of the time (3h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 8h29, up 4x (39'), all deep. Back 5(-15)% drymouth15-30% sore throat10-15% tongue5-10% itch 0-80% ➔ Feeling 90% well, Ache 2 of 7 ✅, getting up: 90%/2 ✅. 1x FCS ✅

Meal time :white_check_mark:, screen time (:white_check_mark:), tired :white_check_mark:
A3 A4:0 teeth0 p0 FA/CS#0 HWB#0 Sleep 22:02- 3rd # is LBU
23:25 5’ 90%/2/5% p(1) A4/+A5/ (=A2+A3) st2 sip fw2’ fl?’ deep/ air0 drymouth15% sore throat15% tongue10% itch10% dryhands0% nostril/s0/0% sinuses0% headache0% nausea0% stomach0% stools0 loose% zombie0% plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% HWB#0 teeth0
0:20 10’ 80%/2/5% p0 A6/ (=A4) st1 sip fw3’ fl2’ deep/ air/ drymouth20% sore throat15% tongue10% itch80% → heat. → 40%
3:28 4’ 90%/2/5% p0 A7/ (=A5) st1 sip fw2’ f0’ deep/ air/ drymouth30% → gel/ sore throat20% tongue10% itch20% nostril/s0/20 → 0%
5:13 20’ 6 90%/2/5% p0 A8/ (=A6) st1 sip fw2’ f0’ deep/ air/ drymouth30% sore throat10% tongue10% itch10% nostril/s0/10 → 0%
-7:13 90%/2/5% p0 A9/7:0 st1 sip deep/ drymouth20% sore throat10% tongue5% itch0% nostril/s0

1x FCS :white_check_mark:
MINIMUM to MAXIMUM:
90%/2/5(-15)% drymouth15-30% sore throat10-15% tongue5-10% itch 0-80% dryhands0% nostril/s0-10% sinuses0% headache0% nausea0% stomach0% stools0 loose% zombie0%
Sum: 7h13+1h55-(5+10+4+20)39’ = 9h08-39’ = 8h29, up 4x (39’), all deep. 90%/2/5(-15)% drymouth15-30% sore throat10-15% tongue5-10% itch 0-80%

1b) ACTIVITIESACHE = PEM (Post exertional malaise): TT 8:0 (moving 40%, talking 20%, counting points 10%) ➔ 80%/3 :white_check_mark:, gardening/moving ➔ 80%/2 :white_check_mark:, talking ➔ 80%/3 :x:. White lips (:x:)
1c) REST/STIFFNESS ➔ ACHE 90%/2 :white_check_mark:, mainly on the areas lying on my mattress, later less :white_check_mark:.

2) Food vs. nauseous sinus burning headache etc.? Good without DAO (since 25th) or antihistamine :white_check_mark:. Heat for bite itch (:white_check_mark:).

:next_track_button: More histaminey foods? Olives are safe. What next? Tofu, praps? But that’s also a problem for my esophagus blocks. Bananas for my lipids.

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, ADDED JUNE 29th: energy greatly increased from June 20th. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

3) New 2023: Weight Loss / Thirst (:new: Appetite solved)

:trophy: I’m eating well the past few days by following my fancy and remembering all 8 categories of foods: 1) raw apples/berries/veg, 2) steamed carrots or cabbage, glass of green or baked beans, 3) egg (1/d), 4) olives, 5) dry berries & nuts, 6) dairy, 7) a little muesli or 1 potato or 1 wholemeal bun, 8) dark chocolate.

a) Sustainably up from 74.2kg? No. (:x:). But stable :white_check_mark:.
b) Thirst (:x:), dry mouth at night :x:.

4) Docs: :new: Improvements are stopping me from pursuing cancer.

Last DOC update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), keeping tooth, but renewing filling on the 23rd. Waiting for onco report, start asking for "2nd" opinion around 26th. Click for details...
Click for details: Update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

5) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

1) Symptoms well under control: GI (via elimination), pee (via GABA), LOCAL PAINS (exercises, back: via using wall/door for support), Details...

except GI: stools loose0% :white_check_mark:, appetite better (:white_check_mark:), pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN - nauseating0% ✅, unwell0%, last SEIZURES Jun 23rd 4x, Jun 16th, Jun 6th 2x, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: May 31st, before that Apr 4th (probably more often). JAW pain from tooth problems: May 10th till broken filling was taken out May 22nd.

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Last focal seizures: Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Creatine? Methylene blue?
SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK. Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no EGCg or pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jun 16th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 0x1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0.1g, myo-inositol 1x2x0.5g/1!d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 3x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x1x.5g, resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (2+2+1)x0.6=3.0g (as much as B3). Plus rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated Jun 16th.
“16:00” preparing pills
“17:30” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xvC#1, 2Cr#1, PF#2, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1% Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc.
B=11/ ’ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +1-2The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=20 with meal: 1xB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 2xTMG#2 2xEleu 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jun 16th

Pf: A1+A2+A3, vB2: 1C,1D, 1A. vB3: 2C,2D.1A, vB5: C,DA. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3,a4, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. (pine: C,D.) Qc: B.E.A1.A3. Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 6MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, Ru, 2 Sa, Sily, 2Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jun 16th: correct?
A1=7+1 Pf#1 Qc1#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2, Ga#1:0.3g, Hon#1, Q10, 0Se, 1TMG#1 (?Rup). = 12?
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, 0EGCg, Fev/MSM#1, Qc#3, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#4 Gi#2 Ol#1 0Pin#1 2TMG#2 2xEleu 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=13 vB2#3 "2"vB3#3 vB5#3 3xCr#3 Ga#5 Gi#3 Ol#2 0Pin#2 2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today: Not much.

Quality of life

Lessons in self-care:
Reasons to be cheerful:
a) Saw a ferruginous duck baby (moor duck in German), brown all over, diving as if she never needed air. Weren’t sure until black-eyed mum came. White-eyed dad, also brown all over, not to be seen. New to us.
b) Our male baby blackbird is now a young man, looks almost real, but a bit more ruffled and behaves less (cock) sure.
Simplified:
a) I can put my C-D-supps on my outdoors tray as soon as I’ve prepared them to not forget them.
b) Simplified quite a bit on these entries today.
Foggies: No.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-06-30 Friday - hmm, interesting… many different circumstances messed up TT - playing later (10:45), after plucking 20 cherries (back achey), dirt on table, lots of kids around. Or was it that getting up at 7:15 was and is too late and/or long? :thinking:

What worked today?:

Well, nothing much worked…
Putting something hot on insect bites stopped the itch.
I did my best, and that went quite well with everything else, but I somehow couldn’t compare anything I did with the days before, and what I could wasn’t successful.
So what went wrong is more like the question… :

How was I today?:

Start was fine, but after getting up “late” (7:15) and early cherry picking, something(s) about table tennis was/were very taxing (too much people around praps the main reason), then had to work quite a lot, misunderstandings, few stressful thoughts about other misunderstandings, things I felt I need to get sorted, then after a time writing to someone about that decided: wrong moment, wrong day, praps not sensible anyway.
After 2nd meal, not quite timely, everything was fine first, got supps done, then things went wrong again: all grass areas for the guinea pigs nearby had been mowed, someone in my shop wore a mask, so I felt I had to too, so feel not enough air, then had left my empties under a whole pile of heavy stuff, so had to drag them out, and at the checkout I realized in the process I’d poked a hole in a yogurt, bits of which had spread itself over everything. When I got home I just put it down and distracted myself, to recover.
In the afternoon and evening the stiff wrists and neck I’d started to get yesterday continued, and in the evening I developed a burning on a large area of my right calf without any sign of inflammation, feels a bit like a sunburn (not possible since I’ve had long trousers on the past few days), which is something totally new, and might sound a bit like a nerve issue. Also my right toe nail is hurting more from what my wife thinks is onychia - I’m putting calendula essence on that and the calf burning…
Wait, is my “burnt” calf from “branding” an insect bite too much? Doesn’t seem so (no bite there), but it’d be a fitting explanation. Better in the morning.

Feeling 85%-ish (:white_check_mark:), energy today (:white_check_mark:), sleep Thursday night :white_check_mark:, sleep Friday night (:white_check_mark:), sting itch (:white_check_mark:). Nausea 0% :white_check_mark:), fog 10% :white_check_mark:.

Today working mainly on #1, since 2-5 have improved, but #1 went wonky:

1) Early circadian rhythm for a) energy/sleep & b) Ache

:next_track_button: Next challenge: How much of a 7’ workout can I now do?
:next_track_button: Reduce siesta if the sun isn’t hot, for more air.

Meal times early :white_check_mark: :white_check_mark: :white_check_mark:. Bed early / up early :white_check_mark: ((:white_check_mark:)). screen time (:white_check_mark:) → Effective sleep (:white_check_mark:). “PEM” (:x:) vs. “Ache without exertion” (:white_check_mark:).
Decreasing carbs/muesli in the morning, increasing fruit (apples and dried) and nuts. :white_check_mark:
Evening meal earlier :white_check_mark: - altho my wife was trying to delay, but it then early did turn out best.

:ping_pong: Table tennis 0:3 Saturday, 6:0 Sunday. 7:0 Monday, 5:3 Tuesday (not easy, but not really PEM either), 7:1 Wednesday, 8:0 Thursday, ? (“0:2”) Friday

1a) EXHAUSTIBILITY today: “84%". Energy greatly increased starting June 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile. (Medium, with "6h rest"). Aim now: Detailing & tracking my core symptom and Improving energy with 6am sunlight, air, 7pm reduced screen time, more effective sleep:

R rest: 100% exhaustion 38% of the time (6h),
VS very slow: 60% exhaustion 12% of the time (2h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 15% of the time (2.5h),
Q quick: 0-10% exhaustion 5% of the time (0.5h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 7h55, up 3x (1h13), all deep. I should have cold showered at 4:30 instead of the long break - and watched the clock. 90%/1/5% drymouth25-30% sore throat10% tongue10% itch 10-20% nostril/s0(-10?)% ✅, everything else OK ➔ Feeling 90% well, Ache 1 of 7 ✅, getting up: 90%/1 ✅. 1x FCS ✅

Meal time :white_check_mark:/:x:, screen time :white_check_mark:/:x:, tired :white_check_mark:/:x:
A3 A4:0 teeth0 p0 FA/CS#0 HWB#0 Sleep 22:15- 3rd # is LBU
0:57 5’ 90%/2/5% p0 st2 sip fw2’ fl0’ deep/ air/ A4/
drymouth30% sore throat10% tongue10% itch10% nostril/s0/0% nausea0% stomach0% dryhands0% sinuses0% headache0% stools0 loose% zombie0% plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% HWB#0 teeth0
1:20 18’ 90%/2/5% p0 st2 sip fw2’ deep/ air/ A5/
drymouth25% sore throat10% tongue10% itch20% (strange - only 20’ after the previous break??)
4:30 50’?? 6 90%/2/5% p0 st2 sip fw2’ deep/ air/ A6/
drymouth25% sore throat10% tongue10% itch10% teeth/
-7:23 - too late? 80%/1/5% p0 st1 sip deep/
drymouth20% sore throat10% tongue10% itch10% 1x FCS :white_check_mark:
Sum: 7h23+1h45-(5+18+50)1h13 = 9h08-1h13 = 7h55, up 3x (1h13), all deep. I should have cold showered at 4:30 instead of the long break - and watched the clock. 90%/1/5% drymouth25-30% sore throat10% tongue10% itch 10-20% nostril/s0(-10?)%

1b) ACTIVITIESACHE = PEM (Post exertional malaise): TT ?+0:2 (moving 20%, talking 20%, counting 0%, picked some cherries before, kids all around, table uncleaned of tree seeds etc…) ➔ 80%/5 (:x:), gardening/moving ➔ 80%/?2 :white_check_mark:, talking ➔ 80%/?3 :x:. White lips 80% (:x:)
1c) REST/STIFFNESS ➔ ACHE 90%/1 :white_check_mark:.

2) Food vs. nauseous sinus burning headache etc.? Good without DAO (since 25th) or antihistamine :white_check_mark:. Heat for bite itch (:white_check_mark:).

:next_track_button: More histaminey foods? Walnuts? Peanut butter seems no problem. Keep up mustard.
Add, cos no histamine problem: artichokes, Brussels sprouts.
Lots of the histamine liberator iodine: in algae! (Yeast not too bad at all)

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, ADDED JUNE 29th: energy greatly increased from June 20th. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

3) New 2023: Weight Loss / Thirst (:new: Appetite solved)

a) Sustainably up from 74.2kg? No. (:x:). But stable :white_check_mark:.
b) Thirst (:x:), dry mouth at night :x:.

4) Docs: :new: Improvements are stopping me from pursuing cancer.

Last DOC update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), keeping tooth, but renewing filling on the 23rd. Waiting for onco report, start asking for "2nd" opinion around 26th. Click for details...
Click for details: Update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

5) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

1) Symptoms well under control: GI (via elimination), pee (via GABA), LOCAL PAINS (exercises, back: via using wall/door for support), Details...

except GI: stools loose0% :white_check_mark:, appetite better (:white_check_mark:), pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN ✅, WIND ❌, last SEIZURES Jun 23rd 4x, Jun 16th, Jun 6th 2x, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: May 31st, before that Apr 4th (probably more often). JAW pain from tooth problems: May 10th till broken filling was taken out May 22nd.

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Last focal seizures: Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Creatine? Methylene blue?
SELF-PHYSIO (click for details): OK? Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK? Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no EGCg or pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jun 16th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 0x1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0.1g, myo-inositol 1x2x0.5g/1!d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 3x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x1x.5g, resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (2+2+1)x0.6=3.0g (as much as B3). Plus rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated Jun 16th.
“16:00” preparing pills
“17:30” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xvC#1, 2Cr#1, PF#2, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1% Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc.
B=11/ ’ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +1-2The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=20 with meal: 1xB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 2xTMG#2 2xEleu 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jun 16th

Pf: A1+A2+A3, vB2: 1C,1D, 1A. vB3: 2C,2D.1A, vB5: C,DA. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3,a4, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. (pine: C,D.) Qc: B.E.A1.A3. Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 6MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, Ru, 2 Sa, Sily, 2Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jun 16th: correct?
A1=7+1 Pf#1 Qc1#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2, Ga#1:0.3g, Hon#1, Q10, 0Se, 1TMG#1 (?Rup). = 12?
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, 0EGCg, Fev/MSM#1, Qc#3, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#4 Gi#2 Ol#1 0Pin#1 2TMG#2 2xEleu 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=13 vB2#3 "2"vB3#3 vB5#3 3xCr#3 Ga#5 Gi#3 Ol#2 0Pin#2 2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today: Not much.

Quality of life

Lessons in self-care: I quickly adjusted to the day going wrong, my wife also.
Reasons to be cheerful: Loads of baby birds around in the garden and outside again (blackbirds, robin; ducklings).
Simplified: Not only can I put my C+D+E supp-tubs on my tray to take them down in the garden the next morning, but I can also take both my A2- and my sleep-supp tubs down after preparing them. So actually all except my A3- (21:00) and B-supps (“6:00”).
Foggies: No.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-07-01 Saturday - again not comparable, but apparently still down quite a bit, e.g. stiffer, somehow brakes on, altho I can switch them off for a certain time, with backlash.

What … went wrong … today?:

:zap: It’s fresher, cloudy and rainy outside, feels good, but praps that (my wife suggests) and not getting up at 6 has caused the setback? So stricter schedule.

How was I today?:

5’ of a 7’ workout was overdoing it a bit, but lots of rest, doing not much else, and still 30’ shop, 2x5’ cycle was too much.

Feeling 80%-ish (:white_check_mark:), energy (:x:), sleep Friday night (:white_check_mark:), sleep Saturday night :white_check_mark:, no sting itch, cos no new ones, cos of rain (:white_check_mark:). Nausea 0% (:white_check_mark:), fog 20% (:white_check_mark:).

Today working mainly on energy… :

1) Early circadian rhythm for a) energy/sleep & b) Ache

:mantelpiece_clock: Just about managed 5’ of a 7’ scientific workout, up to exercise #8 - plank, next would have been high knees and lunges. #1 jumping jacks, #2 wall sit were easy, #3 push ups (28x) were OK too, #4 AB crunches got a problem, cos I hadn’t prepared anywhere and my makeshifts were probably worse, #6 squats, #7 chair triceps and #8 plank were OK, but I was out of my comfort zone after the 1st 2 minutes. Don’t think they’ll be too much of a backlash, but I thought that yesterday morning too…

:next_track_button: Reduce siesta if the sun isn’t hot, for more air.
:next_track_button: Or if I do prepare my supps indoors, open window!

Meal times early (:white_check_mark:) (:white_check_mark:) :white_check_mark:. Bed early / up early :white_check_mark::white_check_mark: screen time :white_check_mark: → Effective sleep :white_check_mark:. “PEM” (:x:) vs. “Ache without exertion” (:x:).
Decreasing carbs/muesli in the morning, increasing fruit (apples and dried) and nuts. :white_check_mark:
Evening meal earlier :white_check_mark:

:ping_pong: Table tennis 0:3 Saturday, 6:0 Sunday. 7:0 Monday, 5:3 Tuesday (not easy, but not really PEM either), 7:1 Wednesday, ?7:1 Thursday, ? (“0:2”) Friday, Saturday: 5’ workout.

1a) EXHAUSTIBILITY today: “84%-". Energy down from June 30th, after great increase starting 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile. (Medium, with "3h rest"). Aim now: Detailing & tracking my core symptom and Improving energy with 6am sunlight, air, 7pm reduced screen time, more effective sleep:

R rest: 100% exhaustion 20% of the time (3h),
VS very slow: 60% exhaustion 20% of the time (3h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 30% of the time (5h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 7h30, up 5x (27'), all deep. 90-80%/2-1/5% dry mouth 30% sore throat 20-5% tongue 10% itch 0% nostril/s 0-10% nausea 0-10% stomach 0-10% headache 0-20%, zombie0-10%. Why slight headache? Why did cold showering my face trigger left eyebrow pain (trigeminus)? ✅, everything else OK ➔ Feeling 90-80% well, Ache 2-1 of 7 ✅, getting up: 80%/2 ✅. 1x FCS ✅

Meal time :white_check_mark:, screen time :white_check_mark:, tired :white_check_mark:
A3:0 A4:0 teeth0 p0 FA/CS#0 HWB#0 Sleep 21:50- 3rd # is LBU
23:09 5’ 90%/2/5% p0 st2 sip fw1’ fl0’ deep/ air/ A3/
drymouth30% sore throat20% tongue10%
23:58 5’ 90/%1/5% p0 st2 sip fw1’ fl0’ deep/ air0 A4/
drymouth30% sore throat10% tongue10% itch0%
0:45 5’ 90/%1/5% p0 st2 sip fw1’ fl0’ deep/ air/ A5/
drymouth30% sore throat10% tongue10% nostril/s10/0%
nausea10% stomach10%
2:05 8’ 90/%1/5% p0 st2 sip fw1’ fl0’ deep/ air/ A6/
drymouth30% sore throat10% tongue10% nostril/s0/10%
4:59 4’ 80/%1/5% p0 st2 sip fw1’ fl0’ deep/ air/ A7/
drymouth30% sore throat10% tongue10% nostril/s0/10%
zombie10% headache10% (music on nearby didn’t wake me up)
-5:47’ 80/%1/5% p0 st2 sip fw1’ fl0’ deep/ air/ A8:0
drymouth30% sore throat5% tongue10% nostril/s10/0%
zombie10% headache20%
1x FCS :white_check_mark:
Sum: 5h47+2h10-(5+5+5+8+4)27’ = 7h57-27’ = 7h30, up 5x (27’), all deep. 90-80%/2-1/5% drymouth30% sore throat20-5% tongue10% itch 0% nostril/s0-10% nausea0-10% stomach0-10% headache0-20% zombie0-10%. Not sure why the headache came up towards the end. Cold showering my face triggered left eyebrow pain (trigeminus). dryhands0% sinuses0% stools0 loose%

1b) ACTIVITIESACHE = PEM (Post exertional malaise): TT dunno, but 5’ workout ➔ 80%/3 :white_check_mark:, gardening/moving ➔ 80%/2-3 :white_check_mark:, didn’t talk much, probably ➔ 80%/3-4 :x:. White lips80 (:x:)
1c) REST/STIFFNESS ➔ ACHE 80%/2-3 - stiffer now :x:

2) Food vs. nauseous sinus burning headache etc.? Good without DAO (since 25th) or antihistamine :white_check_mark:.

Slight headache without sinuses in the early morning, can’t remember any suspicious food.

:next_track_button: More histaminey foods? Walnuts? (peanut butter is no problem at the moment), mustard.
No histamine problem: artichokes, Brussels sprouts.
Lots of the histamine liberator iodine: in algae! (Yeast not too bad at all)

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, ADDED July 1st: energy greatly increased June 20th to 30th. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

3) New 2023: Weight Loss / Thirst (:new: Appetite solved)

a) Sustainably up from 74.2kg? Weigh tomorrow, cos I feel satiated after every meal now.
b) Thirst (:x:), dry mouth at night :x:.

4) Docs: :new: Improvements are stopping me from pursuing cancer.

Last DOC update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), keeping tooth, but renewing filling on the 23rd. Waiting for onco report, start asking for "2nd" opinion around 26th. Click for details...
Click for details: Update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

5) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

Pee pain is sometimes 1 rather than 0, and looking at my GABA use at night it’s less if I get up less, so I might need to either increase the dose or take one small one when I get up and one when i go back to bed, esp. in longer breaks?

1) Symptoms well under control: GI (via elimination), pee (via GABA), LOCAL PAINS (exercises, back: via using wall/door for support), Details...

except GI: stools loose0% :white_check_mark:, appetite better (:white_check_mark:), pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN ✅/❌?, last SEIZURES Jun 23rd 4x, Jun 16th, Jun 6th 2x, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: May 31st, before that Apr 4th (probably more often). JAW pain from tooth problems: May 10th till broken filling was taken out May 22nd.

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Last focal seizures: Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Creatine? Methylene blue?
SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK. Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no EGCg or pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jun 16th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 0x1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0.1g, myo-inositol 1x2x0.5g/1!d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 3x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x1x.5g, resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (2+2+1)x0.6=3.0g (as much as B3). Plus rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated Jun 16th.
“16:00” preparing pills
“17:30” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xvC#1, 2Cr#1, PF#2, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1% Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc.
B=11/ ’ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +1-2The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=20 with meal: 1xB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 2xTMG#2 2xEleu 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jun 16th

Pf: A1+A2+A3, vB2: 1C,1D, 1A. vB3: 2C,2D.1A, vB5: C,DA. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3,a4, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. (pine: C,D.) Qc: B.E.A1.A3. Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 6MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, Ru, 2 Sa, Sily, 2Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jun 16th: correct?
A1=7+1 Pf#1 Qc1#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2, Ga#1:0.3g, Hon#1, Q10, 0Se, 1TMG#1 (?Rup). = 12?
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, 0EGCg, Fev/MSM#1, Qc#3, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#4 Gi#2 Ol#1 0Pin#1 2TMG#2 2xEleu 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=13 vB2#3 "2"vB3#3 vB5#3 3xCr#3 Ga#5 Gi#3 Ol#2 0Pin#2 2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today:

Had another quick look at methylene blue and still think it too early to play guinea pig with that one.

Mitochondria Summit day #6 (“Encore Weekend”)
Frontiero: Boost Brainpower
Morley Robbins: Minerals
Villanueva: Healing Strategy: Symptoms Are Complex
Masterjohn: Dietary Individualization

Hirsch: Resolve Long COVID
Moore: Mold
Murray: Nutrition
Body makes your body weight of ATP every day. That energy is directly burned again, the fire that burns the wood.
Flavonoids - very important for mitochondria. It’s usually what makes up „superfoods“.
Whitten: „This basic model of oxidants are bad, antioxidants are good… the longer we live…. the more we prevent disease….“ is one-sided.
Murray: Often reduced to test tube studies. We need stressors for the antioxidant system.
Whitten: Not as much glutathione and antioxidants as we can, flavonoids are not indescriminate, they are working with endogenous antioxidant system.
Murray:
Best superfoods, supplements.
Ferritin, D3 2000-5000 IU/d, fish oil 1000mg EPA DHA daily, flavonoid rich extract like grape seed, pine bark, resveratrol, curcumin. Green leafy veg, berries, nuts, seeds, if no allergies.
ACL 200mg CoQ10 with 20mg-PQQ
i.V. (ivermectin??), NAD, glutathione - “I’ve never done any of those”, you’re filling up a lifeboat that’s leaky. Important in certain situations.

Holtorf: Peptides
CFS/FM: Mast cell patients: low cortisol, but high ACTH = corticotropic releasing hormone, hypothalamus potent stimulator of mast cells. A little cortisol works. Adrenal dysfunction not picked up by standard blood tests. Mitochondrial peptides.
[Didn’t hear anything that rang a bell, made me perk my ears etc.]

Jacob Teitelbaum: Effective Treatment Of Long COVID, Fibromyalgia, And Fatigue

Quality of life

Lessons in self-care: Going easy.
Reasons to be cheerful: Yep. Blackcap is back. :wink: Squirrel too. Enjoying all the summer blossoms, see the photos I’m uploading on SueT’s thread - like oxeyes and evening primroses newest.
Simplified: Supp tubs. Tidied up stuff and browser tabs.
Foggies: A glass of green beans smashed. I stopped a big “oh no” inside of 10 seconds, looked away, closed eyes, re-focused, but still noted that the stress caused strong pee urge, which I could relax and stop again.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-07-02 Sunday - first good again: 6’ workout, :ping_pong: TT 5:1, but then increasing problems, partly from wind on a 1h slow cycle-walk, so had to forsake a 20’ “gig” at 19:00 - which seems too late for me now anyway…

What … worked today?:

Very early sun :white_check_mark:, before 6 :white_check_mark:! Good sleep :white_check_mark: - <8h :white_check_mark:! Air all day :white_check_mark:! 3rd meal really early to curb the evening :white_check_mark:, screen curfew at 8 went wrong tho, cos wanting to check what some garden plants were and cos of work :x: - that has to improve!

How was I today?:

5:1 playing TT was easy, except first game getting used to dirty table, wind, cold. But energy was there. And 2h before that even a 6’ workout, this time in moderate intensity. And up to then I was so cold that I hat do put on all my winter stuff. So the 2 day setback was not the weather or playing conditions, but praps getting up too late and hearing too many people.
But a very slow nice cycle walk from 16:20 to 17:20 to have a look at the ducks with their ducklings caused quite some problems - off and on pain, stiffness, sinus headache, nausea… so I had to forsake the 20’ piano playing I’d been asked to do in the evening. This would actually have been ‘too late’, at 19:00, and too much of
an additional strain, whilst I have a tooth cleaning appointment tomorrow, for which I need to be well prepared with good early sleep and nothing ‘late’ to work me up before.
Maybe too much screen in the evening, sleep was troubled first with slight job ‘worry’, later with a mum dream.
So back to NO screen after 8 or even 7.

My stomach is having problems at night and in the daytime, and my wife was commenting on bad breath, and I’m pretty sure that’s from experienting with apples that were supposed to be sweet, but aren’t working, I can tell that from my teeth hurting from the acidity too. So back to Gala. Maybe too much certain types of dried berries?

Getting up was good… will I be able to recreate the higher energy?

Feeling 85%-ish (:white_check_mark:), energy today (:white_check_mark:), sleep Saturday night :white_check_mark:, sleep Sunday night (:white_check_mark:). Nausea 0% :white_check_mark:, fog 10% :white_check_mark:.
White lips I think 80%, I’ll have to ask my wife how she judges them, cos how that can be if I’m feeling well.

Today working mainly on … energy…

1) Early circadian rhythm for a) energy/sleep & b) Ache

7’ workout: 6’, by reducing the intensity to 60% - no problem! :white_check_mark:
Less siesta and/or open window: :white_check_mark::white_check_mark:

Meal times early :white_check_mark: :white_check_mark: :white_check_mark:. Bed early / up early :white_check_mark: :white_check_mark:. screen time :x: → Effective sleep: not sure, many daytime problems continued (:white_check_mark:)/(:x:). “PEM” (:white_check_mark:) vs. “Ache without exertion” (:white_check_mark:).
Decreasing carbs/muesli in the morning, increasing fruit (apples and dried) and nuts. :white_check_mark:
Evening meal earlier :white_check_mark:

:ping_pong: Table tennis 0:3 Saturday, 6:0 Sunday. 7:0 Monday, 5:3 Tuesday (not easy, but not really PEM either), 7:1 Wednesday, ?7:1 Thursday, ? (“0:2”) Friday, Saturday: 5’ workout tough, Sunday: 6’ workout at 60% intensity: easy. TT 5:1.

1a) EXHAUSTIBILITY today: “84%-". Energy down from June 30th, after great increase starting 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile. (Medium, with "3h rest"). Aim now: Detailing & tracking my core symptom and Improving energy with 6am sunlight, air, 7pm reduced screen time, more effective sleep:

R rest: 100% exhaustion 20% of the time (3h),
VS very slow: 60% exhaustion 20% of the time (3h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 30% of the time (5h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): h ✅/❌, everything else OK ➔ Feeling ?90% well, Ache 2 of 7 ✅, getting up: ?90%/2 ✅. ?1x FCS ✅

Meal time :white_check_mark:/:x:, screen time :white_check_mark:/:x:, tired :white_check_mark:/:x:
A3 A4:0 teeth0 p0 FA/CS#0 Sleep 21:40- 3rd # is LBU
23:06 4’ 90%/1/5% p0 st2 sip fw2’ fl0’ deep/ air/ A3/
drymouth30% sore throat10% tongue10% nostril/s0/0% 78.3kg incl. “pyjamas” (0.9kg = 77.4kg at night).
23:18 16’ 80%/1/25% p0 st2 sip fw4’ fl0’ deep/ air/ A4:0
drymouth30% sore throat10% tongue10% nostril/s0/0% FCS#1
0:40 5’ 90%/1/5% p0 st2 sip fw2’ fl0’ deep/ air/ A4/
drymouth30% sore throat10% tongue10% nostril/s0/0% FCS#2:0
3:03 5’ 90%/1/5% p0 st2 sip fw2’ fl0’ deep/ air/ A5+6/
drymouth30% sore throat10% tongue10% nostril/s0/0% FCS#2:0
4:29 11’ 90%/1/5% p0 st2 sip fw8’ fl0’ deep/ air/ A7/
drymouth20% sore throat5% tongue5% nostril/s0/0% FCS#2:0
Woke up from dream of mum having realized her dream of a (walking with a zombified blatantly smiling dad, but her checking in a mirror whether she looked like herself. - due to evening half-contact.)
-6:22 80%/1/5% p0 st1 sip deep/ air/ A8:0

1x FCS :white_check_mark:
MIN-MAX PROGRESSION
90-80%/2-1/5% drymouth30-20% sore throat10-5% tongue10%
Sum: 6h22+2h20-(4+16+5+5+11)41’ = 8h42-41’ = 8h01, up 5x (41’), all deep. drymouth20% sore throat10% tongue5% nostril/s5/0%.

1b) ACTIVITIESACHE = PEM (Post exertional malaise): TT 0:1 → 5:1 (moving 20%, talking 20%, counting 10%) ➔ 80%/3 :white_check_mark:, gardening/moving ➔ 80%/2 :white_check_mark:, talking ➔ 80%/?3 :x:. White lips90% :x:
1c) REST/STIFFNESS ➔ ACHE 90%/3-4! (getting up) :x:, Later less (:white_check_mark:).

2) Food vs. nauseous sinus burning headache etc.? Good without DAO (since 25th) or antihistamine :white_check_mark:.

Experimenting with different apple sorts and mustard is causing stomach hyperacidity, so need to back down on that.
:next_track_button: Bit more walnuts? (Artichokes, Brussels sprouts?)

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, ADDED July 1st: Energy greatly increased June 20th to 30th, , further symptoms down, then down again a bit, further symptoms up a bit (stiffer). Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

3) New 2023: Weight Loss / Thirst

a) Sustainably up from 74.2kg? Seems more, check the next few days. Yup, might be a bit: 77.4kg at night at least.
b) Thirst (:x:), dry mouth (day and) at night :x:.

4) Docs: :new: Improvements are stopping me from pursuing cancer.

Last DOC update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), keeping tooth, but renewing filling on the 23rd. Waiting for onco report, start asking for "2nd" opinion around 26th. Click for details...
Click for details: Update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

5) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

Make sure I take enough GABA even if only 3 sleep breaks. :white_check_mark:

1) Symptoms well under control: GI (via elimination), pee (via GABA) (still slight pee pain Sat/Sun), LOCAL PAINS (exercises, back: via using wall/door for support), Details...

except GI: stools loose0% :white_check_mark:, appetite :white_check_mark:, pee pain: 4xp1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: no SUN, now WIND: pain, but not as bad as years ago, probably cos I know and keep out of it more, last SEIZURES Jun 23rd 4x, Jun 16th, Jun 6th 2x, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: May 31st, before that Apr 4th (probably more often). JAW pain from tooth problems: May 10th till broken filling was taken out May 22nd.

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Last focal seizures: Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Creatine? Methylene blue?
SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK. Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no EGCg or pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jun 16th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 0x1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0.1g, myo-inositol 1x2x0.5g/1!d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 3x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x1x.5g, resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (2+2+1)x0.6=3.0g (as much as B3). Plus rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated Jun 16th.
“16:00” preparing pills
“17:30” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xvC#1, 2Cr#1, PF#2, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1% Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc.
B=11/ ’ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +1-2The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=20 with meal: 1xB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 2xTMG#2 2xEleu 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jun 16th

Pf: A1+A2+A3, vB2: 1C,1D, 1A. vB3: 2C,2D.1A, vB5: C,DA. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3,a4, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. (pine: C,D.) Qc: B.E.A1.A3. Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 6MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, Ru, 2 Sa, Sily, 2Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jun 16th: correct?
A1=7+1 Pf#1 Qc1#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2, Ga#1:0.3g, Hon#1, Q10, 0Se, 1TMG#1 (?Rup). = 12?
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, 0EGCg, Fev/MSM#1, Qc#3, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#4 Gi#2 Ol#1 0Pin#1 2TMG#2 2xEleu 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=13 vB2#3 "2"vB3#3 vB5#3 3xCr#3 Ga#5 Gi#3 Ol#2 0Pin#2 2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today: Not much.

Quality of life

Lessons in self-care: It was tough to say no to playing piano, but necessary and consistent.
Reasons to be cheerful: TT back up, but rest not.
Simplified: Maybe.
Foggies: No.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-07-03 Monday - not really good, but doing a lot, and

What … worked / went wrong … today?:

Early sun, air all day, screen curfew at I think it was 8… except 20’ of Tom & Jerry… But…

How was I today?:

TT 2:3 bad 5, working 1-2h 3, teeth cleaning OK, a few hours arranging sheet musc was stress, but stopping good.

Feeling 85%-ish (:white_check_mark:), energy today (:white_check_mark:), sleep Sunday night :white_check_mark:, sleep Monday night :white_check_mark:, no stings. Nausea 0% :white_check_mark:, fog 10% :white_check_mark:.

Today working mainly on … energy…

1) Early circadian rhythm for a) energy/sleep & b) Ache

7’ workout: Nope, TT & garden enough.
Less siesta or open window: Both :white_check_mark::white_check_mark:.

Meal times early :white_check_mark: (:white_check_mark:) (:white_check_mark:). Bed early / up early :white_check_mark::white_check_mark:, screen time (:white_check_mark:) → Effective sleep :white_check_mark:. “PEM” (:x:) vs. “Ache without exertion” (:x:).
Decreasing carbs/muesli in the morning, increasing fruit (apples and dried) and nuts. :white_check_mark:
Evening meal earlier (:white_check_mark:)

**:ping_pong: Table tennis 0:3 Saturday, 6:0 Sunday. 7:0 Monday, 5:3 Tuesday (not easy, but not really PEM either), 7:1 Wednesday, ?7:1 Thursday, ? (“0:2”) Friday, Saturday: 5’ workout tough, Sunday: 6’ workout at 60% intensity: easy. Monday 2:3 :x:

1a) EXHAUSTIBILITY today: “84%-". Energy down from June 30th, after great increase starting 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile. (Medium, with "3h rest"). Aim now: Detailing & tracking my core symptom and Improving energy with 6am sunlight, air, 7pm reduced screen time, more effective sleep:

R rest: 100% exhaustion 20% of the time (3h),
VS very slow: 60% exhaustion 20% of the time (3h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 30% of the time (5h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 6h49, up 5x (41'), all deep. Kept my mind off of work using NSDR and mainly keeping it on nice or at least different things, so didn't even dream about it. Interesting that I could still manage to develop 2 ideas for the morning, like to use the wheelbarrow for 3 heavy things (which was perfect). Drymouth20% sore throat10% tongue10% - so everything less than usual ✅, plus everything else OK ➔ Feeling 90% well, Ache 2 of 7 ✅, getting up: 90%/2.. ✅. 1x FCS ✅

Meal time :white_check_mark:, screen time (:white_check_mark:) tired (:white_check_mark:)
A3 A4:0 teeth0 p0 FCS#1 cos of work thoughts 79.3kg-0.9 Sleep 22:10- (cos FCS nec.) 3rd # is LBU
22:57 6’ 90%/1/5% p0 st2 sip fw2’ fl0’ deep/ air/ A4/
drymouth20% sore throat10% tongue10% itch0% nostril/s0/0%
0:28 4’ 90%/1/5% p0 st2 sip fw2’ fl0’ deep/ air/ A5/
drymouth20% sore throat10% tongue10% nostril/s0/0%
1:50 4’ 90%/1/5% p0 st2 sip fw2’ fl0’ deep/ air/ A6/
drymouth20% sore throat10% tongue10% nostril/s5/0%
2:50 23’ 6 90%/1/5% p0 st2 sip fw2’ fl0’ deep/ air/ A7/
drymouth20% sore throat10% tongue10% nostril/s5/0%
4:46 dorm dream.4’ 90%/1/5% p0 st2 sip fw2’ fl0’ deep/ air/ A8/
drymouth20% sore throat10% tongue10% nostril/s0/5%
78.9/8 = 78kg.
-5:40 90%/1/5% p0 st2 sip deep/ air/ drymouth20% sore throat5% tongue5% nostril/s0/5%
78.6 = 77.7kg.
1x FCS :white_check_mark:
MIN-MAX PROGRESSION
90%/1/5% drymouth20% sore throat10% tongue10%
Sum: 1h50+5h40-(6+4+4+23+4)41’ = 7h30-41’ = 6h49, up 5x (41’), all deep. Kept my mind off of work using NSDR and mainly keeping it on nice or at least different things, so didn’t even dream about it. Interesting that I could still manage to develop 2 ideas for the morning, like to use the wheelbarrow for 3 heavy things (which was perfect).

1b) ACTIVITIESACHE = PEM (Post exertional malaise): TT 2:3 (moving 30%, talking 20%, counting 0%) ➔ 70%/5 :white_check_mark:, gardening/moving ➔ 80%/2 :white_check_mark:, talking ➔ 80%/3 :x:. White lips 80? (:x:)
1c) REST/STIFFNESS ➔ ACHE 90%/1 :white_check_mark:.

2) Food vs. nauseous sinus burning headache etc.? Good without DAO (since 25th) or antihistamine :white_check_mark:.

:next_track_button: Bit more walnuts? (Artichokes, Brussels sprouts?) Baked beans again / never a problem.

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, ADDED July 1st: Energy greatly increased June 20th to 30th, , further symptoms down, then down again a bit, further symptoms up a bit (stiffer). Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

3) New 2023: Weight Loss / Thirst

a) Sustainably up from 74.2kg? Seems so: 78kg, apparently. :white_check_mark:
b) Thirst (:white_check_mark:)-(:x:), dry mouth (day and) at night (:white_check_mark:)-(:x:) - bit more in the daytime, bit less at night… :thinking:

4) Docs: :new: Improvements are stopping me from pursuing cancer.

Last DOC update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), keeping tooth, but renewing filling on the 23rd. Waiting for onco report, start asking for "2nd" opinion around 26th. Click for details...
Click for details: Update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

5) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

Make sure I take enough GABA even if only 3 sleep breaks.

1) Symptoms well under control: GI (via elimination), pee (via GABA), LOCAL PAINS (exercises, back: via using wall/door for support), Details...

except GI: stools loose0% :white_check_mark:, appetite :white_check_mark:, pee pain: 4xp1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: not much SUN, wind still a problem, but managing to keep out of it ✅, last SEIZURES Jun 23rd 4x, Jun 16th, Jun 6th 2x, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: May 31st, before that Apr 4th (probably more often). JAW pain from tooth problems: May 10th till broken filling was taken out May 22nd.

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Last focal seizures: Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Creatine? Methylene blue?
SELF-PHYSIO (click for details): OK? Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK. Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no EGCg or pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jun 16th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 0x1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0.1g, myo-inositol 1x2x0.5g/1!d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 3x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x1x.5g, resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (2+2+1)x0.6=3.0g (as much as B3). Plus rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated Jun 16th.
“16:00” preparing pills
“17:30” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xvC#1, 2Cr#1, PF#2, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1% Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc.
B=11/ ’ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +1-2The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=20 with meal: 1xB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 2xTMG#2 2xEleu 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jun 16th

Pf: A1+A2+A3, vB2: 1C,1D, 1A. vB3: 2C,2D.1A, vB5: C,DA. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3,a4, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. (pine: C,D.) Qc: B.E.A1.A3. Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 6MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, Ru, 2 Sa, Sily, 2Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jun 16th: correct?
A1=7+1 Pf#1 Qc1#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2, Ga#1:0.3g, Hon#1, Q10, 0Se, 1TMG#1 (?Rup). = 12?
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, 0EGCg, Fev/MSM#1, Qc#3, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#4 Gi#2 Ol#1 0Pin#1 2TMG#2 2xEleu 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=13 vB2#3 "2"vB3#3 vB5#3 3xCr#3 Ga#5 Gi#3 Ol#2 0Pin#2 2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today: Decided to take part in an ME/CFS/LongCoV summit by Lorrie Rivers next week, I don’t think I’ll have to concentrate too much on it.

Quality of life

Lessons in self-care:
Reasons to be cheerful:
Simplified: To blow up the wheelbarrow wheel, I leaned it with wheel up against a wall.
Foggies: 1-2.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-07-04 Tuesday -

What … worked / went wrong … today?:

Early sun, air all day, screen curfew at 8. :white_check_mark:.
:bulb: My fairly free nostrils at night recently don’t seem to be improving energy, but…
:trophy: Interesting that at night the symptoms nostrils, tongue and sore throat are all improved, dry mouth only sometimes. So tongue burning is not as I sometimes thought due to the dry mouth.
:trophy: Rainy cloudy sky at 6, but took my B-supps looking straight into the lightest parts, so my eyes really got quite a lot of light. It’s always surprising how light the sky actually is, if we look directly into it.

How was I today?:

Ache high, 4:2, lots of online work and arranging music too. So the Ache might’ve been from not quite sleeping enough and not necessarily from overdoing it, which feels a bit different, pushing thru then not as possible.

Feeling 85%-ish (:white_check_mark:), energy today (:white_check_mark:), sleep Monday night :white_check_mark:, sleep Tuesday night :white_check_mark:. Nausea 0 :white_check_mark:, fog 10% (:white_check_mark:).

Today working mainly on … energy…

1) Early circadian rhythm for a) energy/sleep & b) Ache

7’ workout: Didn’t try, cos I had enough Ache and work to do as it was.
Less siesta or open window: Both. :white_check_mark:

Meal times early (:white_check_mark:) (:white_check_mark:) (:white_check_mark:). Bed early / up early :white_check_mark::white_check_mark:. screen time :white_check_mark: → Effective sleep :white_check_mark:. “PEM” (:x:) vs. “Ache without exertion” (:x:) - all day, but I could push thru, and no backlash next day.
Decreasing carbs/muesli in the morning, increasing fruit (apples and dried) and nuts. :white_check_mark:
Evening meal earlier :white_check_mark:

:ping_pong: Table tennis 0:3 Saturday, 6:0 Sunday. 7:0 Monday, 5:3 Tuesday (not easy, but not really PEM either), 7:1 Wednesday, ?7:1 Thursday, ? (“0:2”) Friday, Saturday: 5’ workout tough, Sunday: 6’ workout at 60% intensity: easy. Monday 2:3 :x: Tuesday 4:2 (:white_check_mark:)

1a) EXHAUSTIBILITY today: “84%-". Energy down from June 30th, after great increase starting 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile. (Medium, with "3h rest"). Aim now: Detailing & tracking my core symptom and Improving energy with 6am sunlight, air, 7pm reduced screen time, more effective sleep:

R rest: 100% exhaustion 20% of the time (3h),
VS very slow: 60% exhaustion 20% of the time (3h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 30% of the time (5h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 7h17, up 4x (28'), all deep. I could even delay pee urge a few times. 90%/1/5% drymouth30% ✅✅, everything else OK ➔ Feeling 90% well, Ache 1 of 7 ✅, getting up: 90%/2 ✅. 1x FCS ✅

Meal time :white_check_mark:, screen time :white_check_mark:, tired (:white_check_mark:)
A3 A4:0 teeth0 p0 FA/CS#0 HWB#0 Sleep 22:25- 3rd # is LBU
23:20 5’ 90%/1/5% p0 st3 sip fw2’ deep/ air0 A4/ drymouth30% sore throat0% tongue10% nostril/s0/0% nausea0% stomach0%
0:07 9’ 90%/1/5% p0 st3 sip fw4’ deep/ air/ A5/ drymouth30% sore throat0% tongue5% nostril/s0/0% nausea0% stomach0%
1:34 9’ 90%/1/5% p0 st3 sip fw4’ deep/ air/ A6/ drymouth30% sore throat5% tongue5% nostril/s0/0% nausea0% stomach50%
4:18 5’ 90%/1/5% p0 st3 sip fw2’ deep/ air/ A7/ drymouth30% sore throat5% tongue5% nostril/s0/0% nausea0% stomach10% 77.6kg
-6:10
1x FCS :white_check_mark:
Sum: 1h35+6h10-(5+9+9+5)28’ = 7h45-28’ = 7h17, up 4x (28’), all deep. I could even delay pee urge a few times. 80%/?2-3/?5(-25)% drymouth30%

1b) ACTIVITIESACHE = PEM (Post exertional malaise): TT 3:3? (moving 40%, talking 10%, counting 0%) ➔ 80%/3 :white_check_mark:, gardening/moving ➔ 80%/3 :white_check_mark:, talking ➔ 80%/3 :x:. White lips 80% (:x:)
1c) REST/STIFFNESS ➔ ACHE 90%/1 :white_check_mark:, later more Ache :x:.

2) Nauseous sinus burning headache: Nope. :white_check_mark:.

:next_track_button: Bit more walnuts? (Artichokes, Brussels sprouts?)

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, ADDED July 1st: Energy greatly increased June 20th to 30th, , further symptoms down, then down again a bit, further symptoms up a bit (stiffer). Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

3) New 2023: Weight Loss / Thirst

a) Sustainably up from 74.2kg? Yes: 77.6kg (4:20) :white_check_mark:. Enough?
b) Thirst (:x:), dry mouth (day and) at night (:x:).

4) Docs: Improvements are stopping me from pursuing cancer, my wife is still worried though.

Last DOC update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), keeping tooth, but renewing filling on the 23rd. Waiting for onco report, start asking for "2nd" opinion around 26th. Click for details...
Click for details: Update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

5) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

Make sure I take enough GABA even if only 3 sleep breaks :white_check_mark:.

1) Symptoms well under control: GI (via elimination), pee (via GABA), LOCAL PAINS (exercises, back: via using wall/door for support), Details...

except GI: stools loose0% :white_check_mark:, appetite :white_check_mark:, pee pain: 4xp1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: no SUN, but WIND tough on my body and sinuses (❌), last SEIZURES Jun 23rd 4x, Jun 16th, Jun 6th 2x, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: May 31st, before that Apr 4th (probably more often). JAW pain from tooth problems: May 10th till broken filling was taken out May 22nd.

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Last focal seizures: Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Creatine? Methylene blue?
SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: OK. Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK. Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no EGCg or pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jun 16th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 0x1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0.1g, myo-inositol 1x2x0.5g/1!d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 3x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x1x.5g, resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (2+2+1)x0.6=3.0g (as much as B3). Plus rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated Jun 16th.
“16:00” preparing pills
“17:30” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xvC#1, 2Cr#1, PF#2, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1% Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc.
B=11/ ’ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +1-2The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=20 with meal: 1xB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 2xTMG#2 2xEleu 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jun 16th

Pf: A1+A2+A3, vB2: 1C,1D, 1A. vB3: 2C,2D.1A, vB5: C,DA. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3,a4, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. (pine: C,D.) Qc: B.E.A1.A3. Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 6MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, Ru, 2 Sa, Sily, 2Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jun 16th: correct?
A1=7+1 Pf#1 Qc1#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2, Ga#1:0.3g, Hon#1, Q10, 0Se, 1TMG#1 (?Rup). = 12?
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, 0EGCg, Fev/MSM#1, Qc#3, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#4 Gi#2 Ol#1 0Pin#1 2TMG#2 2xEleu 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=13 vB2#3 "2"vB3#3 vB5#3 3xCr#3 Ga#5 Gi#3 Ol#2 0Pin#2 2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today:

I’ll take part in Lorrie Rivers’ ME/CFS+Long-CoV summit from the 10th on, I hope not much is relevant to me… :wink:

Quality of life

Lessons in self-care: Kids wanted to talk with me whilst I was playing table tennis, but I didn’t, so just said “I don’t want to talk now”, when they tried again I just didn’t answer. Mate later joked about me managing to be surprisingly anti-social, so I was pretty proud of myself.
Reasons to be cheerful: Mouse, lots of small birds with their baby birds too.
Simplified: Might rain tonight, and now I know better which containers need to be emptiest to be most effective.
Foggies: Dropping something.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-07-05 Wednesday - seemed OK, but slow…

What … worked / went wrong … today?:

Early sun, air all day, screen curfew at 8-ish (actually 7, but then did write a bit after 8, and check my mails, which I want to stop).

How was I today?:

Felt OK, but after TT 4:2 could only use slow energy, carefully.
Wife said I looked waxen & bad, but my lips were slightly less white than usual I thought.
Feeling 85%-ish (:white_check_mark:), energy today (:white_check_mark:), sleep Tuesday night :white_check_mark:, sleep Wednesday night :white_check_mark:, Nausea 0% :white_check_mark:, fog 10% :white_check_mark:.

Today working mainly on energy (appetite & jaw are resolved, weight now too).

1) Early circadian rhythm for a) energy/sleep & b) Ache

7’ workout: Nope.

Meal times early (:white_check_mark:) (:white_check_mark:)(:white_check_mark:. Bed early / up early :white_check_mark::white_check_mark:. screen time :white_check_mark: → Effective sleep :white_check_mark:. “PEM” (:white_check_mark:) vs. “Ache without exertion” :white_check_mark: - better than yesterday.
More fruits & nuts, minimal carbs :white_check_mark:.
Evening meal earlier :white_check_mark:.

:ping_pong: 6-8 games most days since June 20th, often winning (but hardly talking, not counting/picking up balls).
Week before last: 0:3 (that’s where I came from), 6:0.
Last week: 7:0, 5:3, 7:1, ?7:1, ? +“0:2”, 5’ workout, 6’ 60%-workout.
This week: 2:3, 4:2, 4:2,

1a) EXHAUSTIBILITY today: “82%-". Energy down a bit from June 30th, after great increase starting 20th via circadian rhythm. Click for today's ENERGY profile. (moderate, with "3h rest"):

R rest: 100% exhaustion 20% of the time (3h),
VS very slow: 60% exhaustion 20% of the time (3h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 30% of the time (5h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 8h33-20' = 8h13, up 4x (20'), all deep. 90%/1/?5% drymouth30% sore throat10-5% tongue5% dryhands10% ✅, everything else OK, 77.1kg at 5am ➔ Feeling 90% well, Ache 1 of 7 ✅, getting up: 90%/1 ✅. 1x FCS ✅

Meal time :white_check_mark:, screen time :white_check_mark:, tired :white_check_mark:. GABA A2/+A3/ but only after thinking about it, and took most sleep supps in the first sleep break, forgot before.
A3 A4:0 teeth0 p0 FA/CS#0 HWB#0 Sleep 22:05- 3rd # is LBU
23:08 8’ 90%/1/5% p0 (downstairs) st2 sip fw2’ deep/ air//-> A4/+sleep-supps drymouth30% sore throat0% tongue5% dryhands10%
1:04 4’ 90%/1/5% p0 st2 sip fw2’ deep/ air->// A5/ drymouth30% sore throat0% tongue5% dryhands10%
2:40 4’ 90%/1/5% p0 st2 sip fw2’ deep/ air/ A6/ drymouth30% sore throat5% tongue5% dryhands10%
4:44 4’ 90%/1/5% p0 st2 sip fw2’ deep/ air/ A7/ drymouth30% sore throat5% tongue5% dryhands10% 77.1kg
-6:38
1x FCS :white_check_mark:
Sum: 6h38+1h55-(8+4+4+4)20’ = 8h33-20’ = 8h13, up 4x (20’), all deep. 90%/1/?5% drymouth30% sore throat10-5% tongue5% dryhands10%

1b) ACTIVITIESACHE = PEM (Post exertional malaise): TT 4:2 (despite strong wind, but 3 wins were easy, the others narrowly, moving 40%, talking 10%, counting 0%) ➔ 80%/3 :white_check_mark:, gardening/moving ➔ 80%/2 :white_check_mark:, talking ➔ 80%/3 :x:. White lips60 (:white_check_mark:) wax-coloured, my wife said. (:x:)
1c) REST/STIFFNESS ➔ ACHE 90%/1 :white_check_mark:.

2) Nauseous sinus burning headache: Nope. :white_check_mark:.

:next_track_button: Walnuts? (Artichokes, Brussels sprouts?)

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, ADDED July 5th: Energy greatly increased June 20th to 30th (>20%), and usually still quite higher after (16-20%), further symptoms down. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

3) New 2023: Weight Loss / Thirst

a) Sustainably up from 74.2kg since end of June :white_check_mark:. 77.1kg at 5.
b) Thirst (:x:), dry mouth (day and) at night :x:.

4) Docs:

The improvements of the B symptoms are stopping me from pursuing cancer, my wife is still worried though.

Last DOC update (July 5th...) June 24th/25th: Teeth problems resolved for the time being. Waiting for onco report, start asking for "2nd" opinion around 26th. Click for details...
Click for details: Update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

5) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

:arrow_forward: Wind was the main challenge yesterday and today, even if I try to stay in nooks as long as possible. A challenge I’m attempting to master and I hope won’t go wrong.
Small annoyances by the way are still
:one: onychia of my right big toe, which I’m treating 1-2x daily with calendula / tea tree oil, and
:two: today my left thumb sore again from using it too much (for gathering up cherries) after cutting the nail too short, which I’m treating with creaming and less washing.
:three: After getting up a poo urge turned into a strong cramp, but OK once I got there, no diarrhea. This will still have to do with increased stomach pain before meals due to having changed apple type (cos no gala to buy) and praps more dried fruits in the mornings, so I a) have to buy gala again, b) eat the apples together with the rest, c) use the more sour ones to steam together with my veggies, d) and find out the triggering fruits (goji?).
:four: Strain in lumbar region, after for a change doing some of the back exercises first thing, but probably from picking up all the 100s of cherries in the garden and put them in the dustbin to stop the maggots from wintering in the ground and then climbing up the tree again. So need to do shorter stints (something my wife’s been saying anyway) and watch my back whilst doing so.

1) Symptoms well under control: GI (via elimination), pee (via GABA: ENOUGH? ✅), LOCAL PAINS (exercises, back: via using wall/door for support), Details...

except GI: stools loose0% :white_check_mark:, appetite :white_check_mark:, pee pain: 4xp1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: no SUN, lots of WIND - tough on body and sinuses, and today made my 'thermostat' wonky, sweating and then freezing, but I'm hoping exposing myself to that will let my body learn to cope and normalize. ❌, last SEIZURES Jun 23rd 4x, Jun 16th, Jun 6th 2x, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: May 31st, before that Apr 4th (probably more often). JAW solved for the time being since June 23rd.

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Last focal seizures: Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Creatine? Methylene blue?
SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK. Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no EGCg or pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jun 16th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 0x1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0.1g, myo-inositol 1x2x0.5g/1!d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 3x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x1x.5g, resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (2+2+1)x0.6=3.0g (as much as B3). Plus rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated Jun 16th.
“16:00” preparing pills
“17:30” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xvC#1, 2Cr#1, PF#2, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1% Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc.
B=11/ ’ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +1-2The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=20 with meal: 1xB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 2xTMG#2 2xEleu 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jun 16th

Pf: A1+A2+A3, vB2: 1C,1D, 1A. vB3: 2C,2D.1A, vB5: C,DA. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3,a4, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. (pine: C,D.) Qc: B.E.A1.A3. Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 6MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, Ru, 2 Sa, Sily, 2Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jun 16th: correct?
A1=7+1 Pf#1 Qc1#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2, Ga#1:0.3g, Hon#1, Q10, 0Se, 1TMG#1 (?Rup). = 12?
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, 0EGCg, Fev/MSM#1, Qc#3, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#4 Gi#2 Ol#1 0Pin#1 2TMG#2 2xEleu 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=13 vB2#3 "2"vB3#3 vB5#3 3xCr#3 Ga#5 Gi#3 Ol#2 0Pin#2 2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today: Not much.

Quality of life

Lessons in self-care: Don’t worry. I was careful with vacuuming, need to be more careful with picking up the cherries.
Reasons to be cheerful:
a) One pigeon baby is now learning to fly, making very unobtrusive quiet begging squeals to get food from mum & dad.
b) Blackbird’s only occasionally singing a few notes for us, and my wife found out why: He’s sharing the hatching with his wife.
c) The bird food is being gobbled up so quickly, altho I can’t always see when and who by (mainly the tits, the darker squirrel & the pigeons, whilst the blackbirds are concentrating on the cherries).
d) After a bit of worrying about work load coming up, what I need to do has fallen in to place and won’t be hard.
e) After the worsening of exhaustibility after the 30th, I feel I’ve kept quite a handle on it, and don’t need to worry about single days.
Simplified: Vacuuming without any pressure, switching arms.
Foggies: Hardly, altho my wife would differ on that, or rather she likes blaming me for silliness.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-07-06 Thursday - OK-ish - limited

What … worked … today?:

Early sun, air all day, screen curfew at 8.

How was I today?:

Feeling 85%-ish :white_check_mark:, energy today (:x:), sleep Wednesday night :white_check_mark:, sleep Thursday night :white_check_mark:, sting itch - slight for an hour or 2 (:white_check_mark:). Nausea 0-30% - in the sun, with some headache (:white_check_mark:), fog 20% (:white_check_mark:).

Today working mainly on … energy…

1) Early circadian rhythm for a) energy/sleep & b) Ache

7’ workout?

Meal times early :white_check_mark: :white_check_mark::white_check_mark:. Bed early / up early :white_check_mark::white_check_mark:. screen time (:white_check_mark:) → Effective sleep :white_check_mark:. “PEM” (:white_check_mark:) vs. “Ache without exertion” (:white_check_mark:).
More fruit/nuts, minimal carbs. :white_check_mark:
Evening meal earlier :white_check_mark:

:ping_pong: 6-8 games most days since June 20th, often winning (but hardly talking, not counting/picking up balls).
Week before last: 0:3 (that’s where I came from), 6:0.
Last week: 7:0, 5:3, 7:1, ?7:1, ? +“0:2”, 5’ workout, 6’ 60%-workout.
This week: 2:3, 4:2, 4:2, 2:0 (altho much too late)

1a) EXHAUSTIBILITY today: “84%-". Energy down from June 30th, after great increase starting 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile (= moderate, with "3h rest").

R rest: 100% exhaustion 20% of the time (3h),
VS very slow: 60% exhaustion 20% of the time (3h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 30% of the time (5h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 7h22, up 3x (38'), all deep. 80-70%/2/5% drymouth30% sore throat10-20% tongue10-30% itch 0-10% ✅, everything else OK ✅ ➔ Feeling 80-70% well, Ache 2 of 7 (❌), getting up: 70%/2 (❌). 1x FCS ✅

Meal time :white_check_mark:/:x:, screen time :white_check_mark:/:x:, tired :white_check_mark:/:x:. GABA A2?+A3?
A3 A4:0 teeth0 p0 FA/CS#0 HWB#0 Sleep 22:20- 3rd # is LBU
23:35 25’ 6 80%/2/5% p0 st3 sip fw2’ fl0’ deep/ air/ A4/
drymouth30% sore throat10% tongue30% itch20% nostril/s?0/0% stomach10%
1:15 8’ 70%/2/5% p0 st3 sip fw2’ fl0’ deep/ air/ A4/
drymouth30% sore throat10% burnt tongue30% itch10% stomach10%
3:02 5’ 70%/2/5% p0 st3 sip fw3’ fl0’ deep/ air/ A5/
drymouth30% sore throat20% burnt tongue10%
-6:20 70%/2/5% p0 st3 sip deep/ air/ A6:0 - SHOULD HAVE…
drymouth30% sore throat20% burnt tongue10%
1x FCS :white_check_mark:
Sum: 6h20+1h40-(25+8+5)38’ = 8h-38’ = 7h22, up 3x (38’), all deep. 80-70%/2/5% drymouth30% sore throat10-20% tongue10-30% itch 0-10%

1b) ACTIVITIESACHE = PEM (Post exertional malaise): TT 2:0 (moving 20%, talking 10%, counting 0%, actually far too late in the evening, 20:00, but my mate didn’t have time before and is now on holidays for 2 weeks, so I played/won “half” asleep) ➔ 80%/2 :white_check_mark:, gardening/moving ➔ 80%/2 :white_check_mark:, talking (1h garden, a bit of that talking) ➔ 80%/3-4 :x:. White lips / wax-coloured :question:
1c) REST/STIFFNESS ➔ ACHE 90%/2 :white_check_mark:, Later more :x:.

2) Histaminey MCAS symptoms

Nauseous sinus burning headache: Nope. :white_check_mark:.
But long tongue burning (>24h) after weeks without, what could that be?
I hadn’t tried walnuts yet, AFAIK, that of course would’ve been enough and reminds me that it’s not just an overall histamine problem, it’s specifically that my tongue starts burning - so NO, I won’t be trying walnuts again.
I think it might well be the cranberries I’m eating a lot at the moment with every meal. Or the mustard I’m lopping on. So time to reduce again… O.o

:next_track_button: Walnuts? NO! (Artichokes, Brussels sprouts?)

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. ENERGY DOWN to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, energy increased June 20th to 30th (>20%), and usually still quite higher after (16-20%), further symptoms down too. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

3) New 2023: Weight Loss / Thirst (deleting this tomorrow)

a) Sustainably up from 74.2kg since end of June :white_check_mark:.
b) Thirst (:x:), dry mouth (day and) at night :x:.

4) Docs:

The improvements of the B symptoms (night sweats, appetite, weight) are stopping me from pursuing cancer, my wife is still worried though.

Last DOC update (July 5th...) June 24th/25th: Teeth problems resolved for the time being. Waiting for onco report, start asking for "2nd" opinion around 26th. Click for details...
Click for details: Update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

5) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

1) Symptoms well under control: GI (via elimination), pee (via GABA: ENOUGH? ✅), LOCAL PAINS (exercises, back: via using wall/door for support), Details...

except GI: stools loose0% :white_check_mark:, appetite :white_check_mark:, pee pain: 4xp1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN: nausea & headache ❌ / no WIND, last SEIZURES Jun 23rd 4x, Jun 16th, Jun 6th 2x ❌, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: May 31st, before that Apr 4th ✅. JAW solved for the time being since June 23rd. ✅

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Last focal seizures: Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more… - June 23rd: OK, the fillings were enough, solved for the time being.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Creatine? Methylene blue?
SELF-PHYSIO (click for details): OK? Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK? Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no EGCg or pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jun 16th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 0x1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0.1g, myo-inositol 1x2x0.5g/1!d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 3x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x1x.5g, resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (2+2+1)x0.6=3.0g (as much as B3). Plus rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated Jun 16th.
“16:00” preparing pills
“17:30” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xvC#1, 2Cr#1, PF#2, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1% Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc.
B=11/ ’ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +1-2The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=20 with meal: 1xB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 2xTMG#2 2xEleu 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jun 16th

Pf: A1+A2+A3, vB2: 1C,1D, 1A. vB3: 2C,2D.1A, vB5: C,DA. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3,a4, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. (pine: C,D.) Qc: B.E.A1.A3. Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 6MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, Ru, 2 Sa, Sily, 2Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jun 16th: correct?
A1=7+1 Pf#1 Qc1#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2, Ga#1:0.3g, Hon#1, Q10, 0Se, 1TMG#1 (?Rup). = 12?
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, 0EGCg, Fev/MSM#1, Qc#3, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#4 Gi#2 Ol#1 0Pin#1 2TMG#2 2xEleu 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=13 vB2#3 "2"vB3#3 vB5#3 3xCr#3 Ga#5 Gi#3 Ol#2 0Pin#2 2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today: Not much, just a few forum questions.

Quality of life

Lessons in self-care: “High” Ache (3-5) from nothing again, despite sleeping enough Wednesday night, not playing TT, not doing much, but an 1h garden visit getting too much sun didn’t help. But it was important for us, so there.
Reasons to be cheerful:
a) Visited nice garden with bee for an hour, but was tough, despite keeping talking short.
b) Baby pigeon tried to get into one of our windows, then dropped, my wife was scared, then worried, but fine, begging for food from mum. And mum’s a big bolder now and just came within a yard of where I’m sitting.
Simplified: 2 things for speeding up supps.
Foggies: Movements, speech, thoughts - everything slow - or is that “well paced”?

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

I’ve got one of them that does the same thing :astonished:
Although I got her back the other day. We went for hearing tests. We can both hear OK (My issue is more ‘selective’ hearing :rofl: I select not to hear her.)

We walked in the door and the woman behind the counter says ‘Hello, how are you?’ I turned to the wife, raised my voice a little and said 'SHE. ASKED. “HOW. ARE. YOU.???”
I got a slap for that one :astonished: :rofl:

Merl from the Modsupport Team

1 Like

2023-07-07 Friday - OK-ish, but slow, partly wobbly

Reorganized the entries a bit: Since I’ve resolved the sustained new symptoms, I’ve reduced that to thirst besides the dry mouth, and moved that to the symptoms fairly under control, so that’s now become #4, “Docs” has become #3.

What … worked / went wrong … today?:

Early sun :white_check_mark:, air all day :white_check_mark:, screen curfew at 8(:white_check_mark:).

How was I today?:

After cycling 5’ to a colleague to get some stuff, I was pretty wobbly. Altogether I need to move slowly and cautiously most of the time to save energy and not ‘fall’ or similar.
Feeling 85%-ish (:white_check_mark:), energy today (:white_check_mark:), sleep Thursday night :white_check_mark:, sleep Friday night :white_check_mark::white_check_mark:, sting itch (:x:). Nausea 0(-10)% (:white_check_mark:), fog 10% (:white_check_mark:).

Today working mainly on … energy…

1) Early circadian rhythm for a) energy/sleep & b) Ache

7’ workout?

Meal times early :white_check_mark: :white_check_mark: (:x:) - but not my fault. Bed early / up early (:x:) - but not my fault :white_check_mark:. screen time (:white_check_mark:) only bits→ Effective sleep :white_check_mark::white_check_mark:. “PEM” (:x:) vs. “Ache without exertion” (:x:).
More fruit/nuts, minimal carbs. :white_check_mark:
Evening meal earlier (:x:)

:ping_pong: 6-8 games most days since June 20th, often winning (but hardly talking, not counting/picking up balls).
Week before last: 0:3 (that’s where I came from), 6:0.
Last week: 7:0, 5:3, 7:1, ?7:1, ? +“0:2”, 5’ workout, 6’ 60%-workout.
This week: 2:3, 4:2, 4:2, 2:0, -,

1a) EXHAUSTIBILITY today: “84%-". Energy down from June 30th, after great increase starting 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile (= moderate, with "?3h rest").

R rest: 100% exhaustion 20% of the time (3h),
VS very slow: 60% exhaustion 20% of the time (3h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 30% of the time (5h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 7h30, up 2x (42') ✅✅, all deep. 80%/1-2/5% drymouth30% sore throat10% tongue20-10% itch 10-20% ✅, everything else OK ✅ ➔ Feeling 80% well, Ache 1-2 of 7 ✅, getting up: 80%/2 ✅. 1x FCS ✅

Meal time (:x:) - but not my fault, screen time (:white_check_mark:) - just quick looks in between, for instance to see what do do in the garden next, tired (:white_check_mark:) - not really, but cold shower’ll help. GABA A2/+A3/
A3 A4/ teeth0 p0 FA/CS#0 HWB#0 Sleep 22:40- 3rd # is LBU
1:10 12’ 80%/1/5% p0 st3 sip fw2’ fl7’ deep/ air/ A5/
drymouth30% sore throat10% tongue20% itch10% nausea5% stomach5%
3:28 30’ 6 80%/1/5% (p0) st3 sip fw2’ fl0’ deep/ air/ A6/ + A7/
drymouth30% sore throat10% tongue20% itch20% → heat/ nausea5% stomach5% nostril/s?0/10%
-6:52 80%/2/5% (p0) st3 sip fw2’ fl0’ deep// air/ A8:0
drymouth30% sore throat10% tongue10% itch20% → heat/, crampy poo urge, but perfect.
1x FCS :white_check_mark:
Sum: 6h52+1h20-(12+30)’ = 8h12-42’ = 7h30, up 2x (42’), all deep.80%/1-2/5% drymouth30% sore throat10% tongue20-10% itch 10-20%

1b) ACTIVITIESACHE = PEM (Post exertional malaise): no one to play TT with, gardening/moving ➔ 80%/2-3 :white_check_mark:, talking ➔ 80%/?3 :x:. White lips60-100? (:x:) wax-coloured? (:x:) (:question:)
1c) REST/STIFFNESS ➔ ACHE 70%/2 (:white_check_mark:), later less :white_check_mark:.

2) Histamine/MCAS symptoms

Nauseous sinus burning headache: Nope :white_check_mark:.
Tongue burning: Yep :x:, all day, so now almost 2 days. Cranberries? (Or mustard?)

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. ENERGY DOWN to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, energy increased June 20th to 30th (>20%), and usually still quite higher after (16-20%), further symptoms down too. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

3) Docs:

Resolving the B symptoms (night sweats, appetite, weight) is stopping me from pursuing cancer, my wife is still worried though.
July 7th: Cardio (by mistake pulled forward from 11th). Warned me my insurance might start getting picky.

Last DOC update (July 5th...) June 24th/25th: Teeth problems resolved for the time being. Waiting for onco report, "2nd" opinion or not? Click for details...
Click for details: Update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

4) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

1) Symptoms well under control: GI (via elimination), pee (via GABA: ENOUGH? ✅), LOCAL PAINS (exercises, back: via using wall/door for support). WEIGHT: 77.1kg ✅. Details...

except GI: stools loose0% :white_check_mark:, appetite :white_check_mark:, pee pain: 4xp1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN OK in the shade, no WIND ✅, NEW HERE: THIRST (❌), dry mouth (day and) at night ❌. Last SEIZURES July 7th seizurish 4x... Jun 23rd 4x, Jun 16th, Jun 6th 2x ❌, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: May 31st, before that Apr 4th ✅. JAW solved for the time being since June 23rd. ✅

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Dry mouth (day and) at night has always been a problem, a stronger added real thirst making me drink a fourth litre of almond milk a day came up in April. Stopping the antihistamine completely has praps helped stop it become painfully sticky at night, so I don’t use the gel much any more.
Last focal seizures: Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more… - June 23rd: OK, the fillings were enough, solved for the time being.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Creatine? Methylene blue?
SELF-PHYSIO (click for details): OK: Forgot back exercises. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK. Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no EGCg or pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jun 16th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 0x1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0.1g, myo-inositol 1x2x0.5g/1!d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 3x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x1x.5g, resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (2+2+1)x0.6=3.0g (as much as B3). Plus rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated Jun 16th.
“16:00” preparing pills
“17:30” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xvC#1, 2Cr#1, PF#2, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1% Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc.
B=11/ ’ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +1-2The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=20 with meal: 1xB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 2xTMG#2 2xEleu 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jun 16th

Pf: A1+A2+A3, vB2: 1C,1D, 1A. vB3: 2C,2D.1A, vB5: C,DA. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3,a4, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. (pine: C,D.) Qc: B.E.A1.A3. Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 6MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, Ru, 2 Sa, Sily, 2Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jun 16th: correct?
A1=7+1 Pf#1 Qc1#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2, Ga#1:0.3g, Hon#1, Q10, 0Se, 1TMG#1 (?Rup). = 12?
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, 0EGCg, Fev/MSM#1, Qc#3, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#4 Gi#2 Ol#1 0Pin#1 2TMG#2 2xEleu 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=13 vB2#3 "2"vB3#3 vB5#3 3xCr#3 Ga#5 Gi#3 Ol#2 0Pin#2 2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today: Not much for fibro, more for work.

Quality of life

Lessons in self-care: I think I was pretty care-ful today. But I notice I don’t want to socialize, even with the kids. But I’m pretty motivated to work at the moment, which is good news, generally.
Reasons to be cheerful:
a) Ants flying out today (not as much as usual), good for the swifts, which have doubled today, so all got babies.
b) Our pigeon has twins, quite a challenge for dad, who actually wanted to make love, cooing for his wife, but then the 2nd kid came and both were very hungry. Managed to record that cos it happened on our balcony balustrade and I was deadheading bellflowers.
c) Blackbird mum & dad are still taking turns.
d) My wife is being quite kind to me at the moment, something that doesn’t come easy to her, cos she’s got too much on her plate.
e) She’s also catching on to what I’m making of the garden more and more, wanting to spend more time in it.
f) Aaaand this evening she even really highly praised the way my pot area has come up full of the bee friendly blossoms - phacelia / fiddleneck, cornflower, Californian poppy, marigold.
g) The RHS tools (identifying plants and then the calendar reminding/telling me what to do) are so helpful, that I’ll gladly become a member to express my thanks.
h) Today the calendar told me I need to deadhead all the hanging and spreading bellflowers close to the ground so they flower again, and I hadn’t even been fully aware that they had gone…
Simplified:
a) Used an umbrella for shadow from the sun.
b) Put my alarms on the phone I only use for photos to reduce EMF by carrying only that with me.
Foggies: Cardio wuold’ve been on the 11th, not today…

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-07-08 Saturday - again a stable basic slow energy, if I choose my movements well, which can take a moment or three, to make sure it’s simplified and energy saving, preparing my limbs at the same time. No nausea or headache, despite heat and sun - trained resilience, I hope. But in the 2nd part of the night, no idea what from.

What … worked / went wrong … today?:

Sleep no more than 8h, Early sun, air all day, screen curfew at ?8.

How was I today?:

Feeling 90%-ish (:white_check_mark:), energy today (:white_check_mark:), sleep Friday night :white_check_mark::white_check_mark: (only up twice!!), sleep Saturday night (:white_check_mark:), bite itch (:x:). Nausea 0(-60)%, but short (:x:), fog 10% (:white_check_mark:).

Today working mainly on … energy…

1) Early circadian rhythm for a) energy/sleep & b) Ache

Seems just reducing screen time makes a lot of difference to my sleep, mainly changing the priority to non-screen instead of screen, even if non-screen makes me move and sweat.

7’ workout? Too hot.

Meal times early :white_check_mark::white_check_mark: :white_check_mark:. Bed early / up early :white_check_mark: / (:white_check_mark:). screen time (:white_check_mark:)/(:x:) → Effective sleep :white_check_mark:. “PEM” (:white_check_mark:) vs. “Ache without exertion” :white_check_mark:.
More fruit/nuts, minimal carbs. :white_check_mark: - I can delete this, as it was again just a decision I immediately implemented. Just have to sort out if something in the fruit is making my tongue burn or my stomach (independently).

:ping_pong: 6-8 games most days since June 20th, often winning (but hardly talking, not counting/picking up balls).
Week before last: 0:3 (that’s where I came from), 6:0.
Last week: 7:0, 5:3, 7:1, ?7:1, ? +“0:2”, 5’ workout, 6’ 60%-workout.
This week: 2:3, 4:2, 4:2, 2:0, then mate on holiday, too hot for workouts.

1a) EXHAUSTIBILITY today: “84%-". Energy down from June 30th, after great increase starting 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile (= moderate, with "3h rest").

R rest: 100% exhaustion 20% of the time (3h),
VS very slow: 60% exhaustion 20% of the time (3h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 30% of the time (5h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 8h29, up 3x (23'), all deep except 15'. 90-60%/1/5% drymouth30-20% sore throat10% tongue10% itch 10% (heat on the bites before sleep) nostril/s50-0-10% nausea0-60-30% stomach0-10% sinuses0-30% headache0-40% 4:40-8:00, 2nd FCS helped. ✅/❌, everything else OK ➔ Feeling 90-60% well, Ache 1 of 7 ❌, getting up: 60%/1 ❌. 2x FCS ✅✅

Meal time :white_check_mark:, screen time :white_check_mark: tired :white_check_mark:. GABA A2/+A3/
A3:0 A4:0 teeth0 p0 FA/CS#0 HWB#0 Sleep 22:20- 3rd # is LBU
1:28 7’ 90%/1/5% (p0) st2 sip fw4’ fl0’ deep/ air0 A3/
drymouth30% sore throat20% → 4th pair of socks on, warm duvet further up, tongue10% itch10%
4:45 8’ 60%/1/5% (p0) st4 sip fw2’ fl0’ deep/ air/ A4/+A5/
drymouth30% sore throat20% nostril/s0/50% nausea0-60-10% stomach0-30-10%
5:09 8’ Fast Cold Shower. 60-70%/1/5% (lower back stiff 40%) (p0) st2 sip fw2’ fl0’ deep doze/ air/ A6/ drymouth30-20% sore throat20-10% nostril/s0% nausea10% stomach10% +sinuses30% 77.1kg
-7:12 60%/1/5% (p0) st2 deep/ air/ A7/ drymouth20% sore throat10% nostril/s10/0% nausea30% stomach10% +sinuses30% + headache 40% incl. left eyebrow pain, eyebrow not itchy. Until 8:00.
2x FCS :white_check_mark:
Sum: 7h12+1h40-(7+8+8=)23’ = 8h52-23’ = 8h29, up 3x (23’), all deep except 15’. 90-60%/1/5% drymouth30-20% sore throat10% tongue10% itch 10% (heat on the bites before sleep) nostril/s50-0-10% nausea0-60-30% stomach0-10% sinuses0-30% headache0-40% 4:40-8:00, 2nd FCS helped.

1b) ACTIVITIESACHE = PEM (Post exertional malaise): TT: no one to play with, gardening/moving ➔ 80%/2 :white_check_mark:, kept talking down. White lips50 (:white_check_mark:)
1c) REST/STIFFNESS ➔ ACHE 90%/1 :white_check_mark:. I keep alternating between typing and gardening all day.

2) Histamine/MCAS symptoms

Nauseous sinus burning headache: Nope :white_check_mark:.
Tongue burning: Yep :x:. Cranberries? (Or mustard?)
Insect bite itch see up top.

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. ENERGY DOWN to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, energy increased June 20th to 30th (>20%), and usually still quite higher after (16-20%), further symptoms down too. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

3) Docs:

Resolving the B symptoms (night sweats, appetite, weight) is stopping me from pursuing cancer, my wife is still worried though.

Nothing worrying at the cardio on Friday, blood pressure was 160/100, but as we agreed it was just having cycled, plus staircase & white coat, what I also know is it’s the vit. B3 which I’d taken an hour or two before. So this evening 21:15 I took my blood pressure once after waiting a bit, and it was 130:81, pulse 70.

Last DOC update (July 5th...) June 24th/25th: Teeth problems resolved for the time being. Waiting for onco report, "2nd" opinion or not? Click for details...
Click for details: Update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

4) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

1) Symptoms well under control: GI (via elimination), pee (via GABA: ENOUGH? ✅), LOCAL PAINS (exercises, back: via using wall/door for support). Details...

except GI: stools loose0% :white_check_mark:, appetite :white_check_mark:, pee pain: 4xp1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN / WIND ✅/❌?, NEW HERE: THIRST (❌), dry mouth (day and) at night ❌. Last SEIZURES July 7th seizur-ish 4x... Jun 23rd 4x, Jun 16th, Jun 6th 2x ❌, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: May 31st, before that Apr 4th ✅. JAW solved for the time being since June 23rd. ✅

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Dry mouth (day and) at night has always been a problem, a stronger added real thirst making me drink a fourth litre of almond milk a day came up in April. Stopping the antihistamine completely has praps helped stop it become painfully sticky at night, so I don’t use the gel much any more.
Last focal seizures: Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more… - June 23rd: OK, the fillings were enough, solved for the time being.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Creatine? Methylene blue?
SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK. Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no EGCg or pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jun 16th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 0x1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0.1g, myo-inositol 1x2x0.5g/1!d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 3x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x1x.5g, resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (2+2+1)x0.6=3.0g (as much as B3). Plus rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated Jun 16th.
“16:00” preparing pills
“17:30” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xvC#1, 2Cr#1, PF#2, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1% Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc.
B=11/ ’ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +1-2The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=20 with meal: 1xB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 2xTMG#2 2xEleu 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jun 16th

Pf: A1+A2+A3, vB2: 1C,1D, 1A. vB3: 2C,2D.1A, vB5: C,DA. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3,a4, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. (pine: C,D.) Qc: B.E.A1.A3. Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 6MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, Ru, 2 Sa, Sily, 2Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jun 16th: correct?
A1=7+1 Pf#1 Qc1#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2, Ga#1:0.3g, Hon#1, Q10, 0Se, 1TMG#1 (?Rup). = 12?
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, 0EGCg, Fev/MSM#1, Qc#3, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#4 Gi#2 Ol#1 0Pin#1 2TMG#2 2xEleu 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=13 vB2#3 "2"vB3#3 vB5#3 3xCr#3 Ga#5 Gi#3 Ol#2 0Pin#2 2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today: Mainly for work and fun.

Quality of life

Lessons in self-care: Went to the shops early cos it’s hot today, 31°, tomorrow 34°. Made sure to water everything. I still have enough rain water and Sunday and Tuesday night it might rain.
Reasons to be cheerful:
a) Watering this morning I looked up into the faces of the 2 baby pigeons sitting close to each other on the pavillion watching me unruffled…
b) Some of the baby birds need an L-plate. We always cheer them on and breathe a sigh of relief when they land shakily.
c) On of our 2 field mice was happily scuttling around my flower pots early this (Sunday) morning, whilst I was (rain) watering them.
d) Then green bottle flies [continue reading at your own risk…] drew my attention to dog poo in one of my cellar window flower “decorations”. Whether the dog himself did that or a human, that human obviously let them. I could only remove part of it, cos soft and soggy. So there were still 20 green bottle flies there afterwards. They may portend something yucky, and cause blowfly strike in esp. sheep, but aren’t they beautiful! :fly: Males detect females by the frequency of 178 Hz sunlight flashes from the body thru the wings. The larvae are very useful for determining when somebody died, but also for quickly cleaning out badly healing wounds in antiquity and folk medicine till today “much better than a surgeon can”, the FDA granted permission for it in 2004, their secretions disinfect antimicrobial. So good news: The Green Bottle Company will be cleaning out the rest of the dog poo in no time. And any rests will be dung for the plants there.
Simplified: Couple of things.
Foggies: Don’t think so.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

:rofl: Hehe, what a great one, I sniggered for hours after…
I guess it was your wife slapping you on the ar…m and not the woman behind the counter slapping you in your face…? :grin: or both alternately…? :smile_cat:

We’re having a laugh at the moment cos the neighbour under us who always has the volume of his telly up all day and till past my bedtime went to a hearing aid dealer and got told he was deaf on both ears, not just on one. Other older neighbour agreed with us we could have told him that 10 years ago.
He’d gone cos he couldn’t understand people in social gatherings, but thought he was fine when talking with us alone. Must have thought my wife strange for REALLY. TALKING. QUITE. LOUD. WITH. HIM (louder than I do). And will have started to think it normal to have to ask back or misunderstand when we/I didn’t do so. Or turn his telly louder and louder as the years go by, probably thinking it’s getting old… He’s not the kind of person to just ask… And we’re not the kind to keep telling him…

1 Like

2023-07-09 Sunday - storm excitement was the last straw for increased histamine (cranberries, bite itch), so needed a 2nd cold shower at night for sleep.

What … worked / went wrong … today?:

Sleep no more than 8h, early sun, air all day, screen curfew at 8.
I’ve been forgotting to add that too much sleep is worse for me, short term, too little may be bad mid- to long-term, so 7-8h is a good compromise as opposed to 8-9h like originally, then down to 6-7 when I tried pulling sleeping time forward too abruptly. This is just as effective as early sun, air & screen curfew, meaning all four are vital for my quality of life.

How was I today?:

Feeling 85%-ish (:white_check_mark:), energy today (:white_check_mark:), sleep Saturday night (:white_check_mark:), sleep Sunday night (:white_check_mark:)+(:x:) cos of histamine with bite itch (:x:). Nausea 0(-30)% (:white_check_mark:), fog 10% (:white_check_mark:).

Today working mainly on … energy…

1) Early circadian rhythm for a) energy/sleep & b) Ache

7’ workout? Too hot.

Meal times early :white_check_mark: :white_check_mark: (:x:). Bed early / up early (:x:) / (:white_check_mark:). screen time :white_check_mark: → Effective sleep (:x:) - histamine up due to not eating before evening service, a storm exciting me and maybe a “serious” talk shortly before bedtime (see ‘development’). “PEM” (:white_check_mark:) vs. “Ache without exertion” (:white_check_mark:).

:ping_pong: 6-8 games most days since June 20th, often winning (but hardly talking, not counting/picking up balls).
Week before last: 0:3 (that’s where I came from), 6:0.
Last week: 7:0, 5:3, 7:1, ?7:1, ? +“0:2”, 5’ workout, 6’ 60%-workout.
This week: 2:3, 4:2, 4:2, 2:0, then no one to play.

1a) EXHAUSTIBILITY today: “84%-". Energy down from June 30th, after great increase starting 20th by making my rhythm circadian, more natural, earlier (with the consequence of re-focusing & pulling forward these blog entries). Click for today's ENERGY profile (= moderate, with "3h rest").

R rest: 100% exhaustion 20% of the time (3h),
VS very slow: 60% exhaustion 20% of the time (3h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 30% of the time (5h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 7h57, up 5x (27'), mostly deep. 80%/2/5% drymouth30-50% -> dry cough -> 2x gel, sore throat10% tongue20-10% itch 70-0% nostril/s0-?10% - Histaminey hyped up in the evening from the storm reared up at 3 from the itch and feeling awake, maybe the tongue burning from the cranberries is contributing too, and 'serious' talk with wife, neighbour opposite at loud music (not metal, but Beethoven piano this time!) on till 4 again,but only slight problem (✅), everything else OK ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅. 2x FCS ✅✅

Meal time (:white_check_mark:), screen time :white_check_mark:, tired :x: (stormy rainy weather was too exciting, but cold shower should help). GABA A2/+A3/
A3 A4:0 teeth0 p0 FA/CS#0 HWB#0 Sleep 22:40- 3rd # is LBU, dry cough soon after, so drymouth 50% → gel/ and a 2nd time.
0:11 4’ 80%/2/15% p0 st3-4 sip fw2’ fl0’ mostly deep/ air/ A4/
drymouth30% sore throat10% tongue20% (since cranberries, I’d say) itch10% nostril/s10/0%
3:07 4’ 80%/2/15% p0 st3 sip fw2’ fl0’ deep/ air/ A5/
drymouth30% sore throat10% tongue20% itch10-70%
3:18 4’ 80%/2/15% p0 st3 sip fw2’ fl0’ deep/ air0 A6:0
drymouth30% sore throat10% tongue20% itch70-10%: heat.
3:38 9’ 80%/2/15% p0 st3 sip fw2’ fl0’ deep/ air/ A6/
drymouth30% sore throat10% tongue20% itch30% & awake: FCS#2
6:18 6’ 80%/2/15% p0 st3 sip fw2’ fl0’ deep/ air/ A7:0
drymouth30% sore throat10% tongue20% itch50% → heat.
-7:04 80%/2/15% p0 st3 sip deep/ air/ B
drymouth30-20% sore throat5% tongue10% itch10%. teeth//
2x FCS :white_check_mark:,
Sum: 7h04+1h20-(4+4+4+9+6)27’ = 8h24-27’ = 7h57, up 5x (27’), mostly deep. 80%/2/5% drymouth30-50% → dry cough → 2x gel, sore throat10% tongue20-10% itch 70-0% nostril/s0-?10%
Histaminey hyped up in the evening from the storm reared up at 3 from the itch and feeling awake, maybe the tongue burning from the cranberries is contributing too, and ‘serious’ talk with wife.

1b) ACTIVITIESACHE = PEM (Post exertional malaise): no one to play TT, gardening/moving ➔ 80%/2 :white_check_mark:, no talking.
1c) REST/STIFFNESS ➔ ACHE 90-80%/2 :white_check_mark:.

2) Histamine/MCAS symptoms; cranberries.

Nauseous sinus burning headache: Nope :white_check_mark:.
Tongue burning: Yep :x:. Cranberries? (Or mustard?)
I ate 8 cranberries at 14:30 and my tongue starte hurting more, so watching out further by eating them separately.
Insect bite itch see up top.

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. ENERGY DOWN to (10-)15-20% decreasing to 8-12% by end of May from the new symptoms, partly from CoV itself, energy increased June 20th to 30th (>20%), and usually still quite higher after (16-20%), further symptoms down too. Triggers: Foods (esp. soy, white beans, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside. and at the end: People stress end of May for a few weeks. Energy up from June 20th.

Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

3) Docs:

Resolving the B symptoms (night sweats, appetite, weight) is stopping me from pursuing cancer, my wife is still worried though.

Last DOC update (July 5th...) June 24th/25th: Teeth problems resolved for the time being. Waiting for onco report, "2nd" opinion or not? Click for details...
Click for details: Update June 24th/25th: The new filling is better: nothing getting stuck any more, easy to get between the teeth. June 23rd: New filling at dentist went well, no anaesthetic necessary, just druggy for 4-5 hours from the antihistamine, which may have protected. June 13th: Gum inflammation down (to 20% from December), so keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

4) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

1) Symptoms well under control: GI (via elimination), pee (via GABA: ENOUGH? ✅), LOCAL PAINS (exercises, back: via using wall/door for support). TODAY: Bit of abdominal pain, dunno what from, praps the apples (Jonathan I think). Details...

except GI: stools loose0% :white_check_mark:, appetite :white_check_mark:, pee pain: 4xp1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN ✅, no WIND, THIRST (❌), dry mouth (day and) at night, Dry cough 2x at night - praps the burning tongue from histamine mixed in? ❌. Last SEIZURES July 7th seizur-ish 4x... Jun 23rd 4x, Jun 16th, Jun 6th 2x ❌, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: May 31st, before that Apr 4th ✅. JAW solved for the time being since June 23rd. ✅

Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Dry mouth (day and) at night has always been a problem, a stronger added real thirst making me drink a fourth litre of almond milk a day came up in April. Stopping the antihistamine completely has praps helped stop it become painfully sticky at night, so I don’t use the gel much any more.
Last focal seizures: Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more… - June 23rd: OK, the fillings were enough, solved for the time being.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Creatine? Methylene blue?
SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK. Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no EGCg or pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jun 16th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 0x1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0.1g, myo-inositol 1x2x0.5g/1!d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 3x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x1x.5g, resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (2+2+1)x0.6=3.0g (as much as B3). Plus rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated Jun 16th.
“16:00” preparing pills
“17:30” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xvC#1, 2Cr#1, PF#2, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1% Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc.
B=11/ ’ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +1-2The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=20 with meal: 1xB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 2xTMG#2 2xEleu 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jun 16th

Pf: A1+A2+A3, vB2: 1C,1D, 1A. vB3: 2C,2D.1A, vB5: C,DA. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3,a4, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. (pine: C,D.) Qc: B.E.A1.A3. Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 6MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, Ru, 2 Sa, Sily, 2Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jun 16th: correct?
A1=7+1 Pf#1 Qc1#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2, Ga#1:0.3g, Hon#1, Q10, 0Se, 1TMG#1 (?Rup). = 12?
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, 0EGCg, Fev/MSM#1, Qc#3, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#4 Gi#2 Ol#1 0Pin#1 2TMG#2 2xEleu 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=13 vB2#3 "2"vB3#3 vB5#3 3xCr#3 Ga#5 Gi#3 Ol#2 0Pin#2 2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today: When I wrote “for work and for fun” yesteday, it’s mainly for the garden that I do research for, identifying and researching the plants, sometimes animals, when I see I need to do something for them.

Quality of life

Lessons in self-care: Enjoyed a greater part of the evening service, but made sure not to people too much, and someone wanted to call me, but I’ll write a mail instead explaining I need to keep phone calls down.
Reasons to be cheerful:
a) Blackcap here longer today, making up for Blackbird having too much to do with hatching.
b) Blackbird sings short & softly before switching hatching time with his Wife.
c) Realized I can look fairly directly into Blackbird’s nest from our garden shed window.
d) Realized Blackbirds aren’t hatching, they’re feeding. So once I deteced a small beak under a bigger bird. And the nest is often empty, cos both parents are looking for food.
e) Rain’s a-coming, thankfully, so I’ve watered quite a bit and will empty the barrel that is filled quick cos a 30-40 square yard roof goes into it.
f) What helps me do my supps at midday is listening to my mix cassettes…
g) exhilerating stuff to me, still, even tho I can’t dance much to it any more, but move, and it makes my heart leap with joy.
h) Also fun finding similar things and
i) researching what the tracks are called with shazam and my notes, including what songs the samples are from, to identify and enjoy the art of sampling even more, following the samples.
j) I’m happy to please my wife by finding and downloading lots of her favourite old comedy series for my wife (legally) that up her spirits.
k) Blackbird on the nest protecting their brood in the evening.

Simplified: Supp spoon in my A2 supps as reminder to check GABA.
Foggies: No. Playing cards with my wife most days, after each meal together, so on weekends twice, I now play just as well as her, am usually highly concentrated without effort. This is decidedly different to 1, 2 or 3 years ago, where I couldn’t concentrate at all, and kept dropping cards when shuffling. And it’ll be due to having all symptoms and my energy expenditure well under control, plus all the brain fog supps.

Development

In the evening my wife expressed her “wish for me” that I could somehow find a way of making music again. She hadn’t realized that I’d taken down my mic and keyboard months ago. But it just costs me too much 80-100% energy which would decimate my slow energy without it being worth it. And I’ve always had times in my life where I played less music. At the moment, listening to old faves is very fulfilling, and praps someday inspiring me to find a simplified way to make some tracks without much effort.

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023