JayCS’s Fibro Blog

2023-06-06, Tuesday - paradigm shift slowly coming into place day #3. Ate at 19.15 :white_check_mark:, bed at 21:45 :white_check_mark: but went wrong (stress? too long yesterday?), 2%! of my antihistamine. Seizure at 13:45 (thinking of things people want me to do and trying to think what to say) and 14:35. Next: Regular hyperventilating exercises again? (Ari Whitten’s are similar to Wim Hof, but less deep & while walking.)

Exhaustibility “92%". Click for details ("11h rest", I've said, like yesterday):

R rest: 100% exhaustion 70% of the time (11h),
VS very slow: 60% exhaustion 25% of the time (4h),
S slow: 40% exhaustion 5% of the time (1h),
M medium: 20% exhaustion 0% of the time,
Q quick: 0-10% exhaustion 0% of the time
(pre-fibro: 0% exhaustion 100% of the time.)

10 day antihistamine trial (intermittent/low dose) and 6 weeks of weighing without increase
Testing antihistamine: 0.8mg (8%) further for gnat bite itch, praps sleep, temperature and pee. 5th 19:00 0.2mg/ sinus-headache only 10%, with sinuses at 21:30 (or from ripe banana bit) 20% itch 10% (no new bites). 6th 19:00 0.2mg
Weighing irregularly if I’m sustainably up from 74.2kg.

Food: 1st: 70% 2nd: 80% 3rd: 80%

Sleep 70% / Feeling 80%-ish / nausea 0-10%, fog 30%

New habits (and see "simplified"). 'Early outside bird' with lots of early sun, light & air all day now NEEDS to pull his schedule forwards. ✅

:ambulance: Bed 21:30-5:30. (:white_check_mark:)
:ambulance: Note thoughts and emotions (ACT) (:white_check_mark:)

Today's FM symptoms unchanged from WPI 11 & SSS 9-1=8, except....: +1: headache? (Often I forget.) (Click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (30-60%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (92%), insomnia 2 (10%), fog 2 (30%), headache (1) (0-20%), GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20% decreasing to 8-12% by end of May from new symptoms, partly from CoV itself. June 3rd: More careful in countryside (mask when cutting grass for guinea pigs) and with histaminey foods is helping (taking 2x1/d DAO, stopped soy & white beans & yeast spread, baked beans OK yesterday, halving bananas again). Click for developments:

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

SLEEP (click for details): 7h30, up 6x (2h08), most deep, but some cortisoley, probably from sleeping too much/late yesterday? ✅ ➔ Feeling ?80% well, Ache 2 of 7 ❌, getting up: ?80%/2 ✅. Nostrils ?10% stuffy 100% of the night ✅. No sweating. ✅. Yesterday I hypothesized that I didn't have a sinus headache while lying down, tonight I realized I do, not helping getting to sleep.

A3:0 A4:0 teeth0 cold shower0 p0 HWB#0 2% Rupafin Sleep 21:45- 3rd # is LBU
22:22 9’ 70%/2/15% p0 st3 sip fw6’ deep doze/ air/ A3/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/5% sinuses15% headache25% sore throat20%, nausea10% stomach0% tongue10% stools0 loose%) FA/CS#0 kg drymouth 30% dryhands 20%
23:15 1h15 70%/2/10% p0 st3 sip fw5’+garden35’ deep doze/ air/ A4/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/5% sinuses15% headache15% sore throat15%, nausea5% stomach5% tongue5% stools0 loose%) FA/CS#0 kg drymouth 25% dryhands 20% bite itch 0->10%
0:56 30’ 6 80%/2/10% p0 st3 sip fw1’ deep doze/ air/ A5/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/0% sinuses10% headache15% sore throat10%, nausea0% stomach5% tongue5% stools0 loose%) FA/CS#0 kg drymouth 25% dryhands 20% bite itch 0%
2:38 4’ 80%/2/10% p0 st3 sip fw1’ doze with heart pumping → deep/ air0 A6/ plugs0 cream/ gel/ HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/0% sinuses0% headache0% sore throat10%, nausea0% stomach10% tongue5% stools0 loose%) FA/CS#0 kg drymouth 25% dryhands 20% bite itch 20%
4:13 4’ 80%/2/10% p0 st3 sip fw1’deep/ air0 A7/ plugs0 cream gel/ HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/0% sinuses0% headache0% sore throat20%, nausea10% stomach20% tongue5% stools0 loose%) FA/CS#0 kg drymouth 30% dryhands 20% bite itch 20%
6:02 6’ 80%/2/10% p0 st3 sip fw1’deep/ air0 A8:0 plugs0 cream gel/0 HWB#(0) Bedclothes: wet0% TEETH/ alternate shower0
(nostril/s0/0% sinuses0% headache0% sore throat10%, nausea0% stomach21% tongue5% stools0 loose%) FA/CS#0 kg drymouth 20% dryhands 20% bite itch 10% zombie10%
-7:23 80%/2/10% p0 st3 sip fw1’deep/ air0 A8:0 plugs0 cream0 gel/0 HWB#(0) Bedclothes: wet0% TEETH/ alternate shower0
(nostril/s0/0% sinuses0% headache0-20% sore throat10%, nausea0% stomach21% tongue5% stools0 loose%) FA/CS#0 kg drymouth 20% dryhands 20% bite itch 10% zombie10%
Sum: 7h23+2h15-(9+75+30+4+4+6=)128 = 9h38-2h08 = 7h30, up 6x (2h08), most deep, but some cortisoley, probably from sleeping too much/late yesterday?
+bite10% zombie10%

ACTIVITIESACHE: 80%/2 :white_check_mark:, TT 2:0 (moving 5%, talking incl. counting 10%,) ➔ 80%/5 :x:, gardening/moving/talking 15’ each ➔ 80%/2 :white_check_mark:, so didn’t do much of that.

ACTIONS ➔ PAINS ✅/(✅): GI, appetite, esophagus, pee, back (against wall/door for support), lips. Lips often white ❌, lips & mouth vey dry at night ❌. Details...

except GI: stools loose0% :white_check_mark:, appetite a little better (:white_check_mark:), esophagus: if I’m extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:, finger tips: better. (:white_check_mark:). Lip soreness better since fungal cream (:white_check_mark:), but lips still often white, esp. when pressed, meaning overexertion according to my wife (:x:). Still often thirsty / dry lips & mouth (:x:)

Click for details on Weather: kept out of sun ✅, last seizures Jun 6th 2x, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last esophagus block: May 31st, before that Apr 4th (probably more often). Jaw pain from tooth problems: May 10th till broken filling was taken out May 22nd.

Touch: :white_check_mark: Covid: :x: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:/:x:. Outdoors almost all day now, so no need for daylight lamp, if the sun becomes too bright and warm I do something in the cellar or the shade, making myself at home there.
Last focal seizures: June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd.

Treatments

Last doc update May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. Self-treatments & supps stable - May 15th: stretches helping wrists, not enough back exercises, and colostrum not tolerated, creatine next. Click for details.
Click for details: Update May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m. Keeping to schedule TODAY: OK. May 25th: Back on silymarin. no creatine yet, colostrum 2x on one day was bad. Praps ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today: Ari Whitten’s hyperventilating exercises are similar to Wim Hof, but less deep & while walking. Powerful Breathing Exercise to Improve Lung Health and O2 levels (& decrease respiratory symptoms) - YouTube. Powerful Breathing Exercise to Improve Lung Health and O2 levels (& decrease respiratory symptoms)
5-15x hyperventilate 10-20x very short, while walking. Try back to calm breathing as quick as possible. Resetting autonomous nervous system. vagus. Intermittent hypoxic training IHT. So lungs make more glutahione & superoxidase permutase.
Lessons in self-care #685 Took some time to decide how to decline a gig, but I just said it’s highly unlikely and at the end put a short line that I can use up max. 20’ of moderate energy every few hours - not sure if they realize that playing music is not moderate energy to me, but don’t care.
Reasons to be cheerful #735 Loads. Not fun to find parasites on the plants - today firethorn (bacteria), blackflies on 5 geraniums, still mealy bug on my bonsai beech, and probably cherry laurel (not sure, leaves on one branch getting a brown tip). But fun to know that I can help by taking these parts off them. It’s tough while I need to patiently take the time
Simplified #134 Just short cuts on some things today.
Foggies: Forgot dentist until too late and several other things. Nothing dramatic. Just I’m pretty slow with thinking in comparison.

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

2023-06-07 Wednesday - paradigm (= time) shift coming into place day #4. Ate at 3) 19:15 :white_check_mark: 1) 7:50 :white_check_mark: and 2) 13:00 :white_check_mark:, 3) 18:30, slept 22:00 :white_check_mark:, and >8h :white_check_mark: 2%! of my antihistamine, full Wim Hof breathing exercise at 9:10 :white_check_mark: TT worse rather than better. 2nd breath-holding after TT at 9:55 :white_check_mark: Not helping tho… :roll_eyes:

Exhaustibility “92%". Click for details ("11h rest", I've said, like yesterday):

R rest: 100% exhaustion 70% of the time (11h),
VS very slow: 60% exhaustion 25% of the time (4h),
S slow: 40% exhaustion 5% of the time (1h),
M medium: 20% exhaustion 0% of the time,
Q quick: 0-10% exhaustion 0% of the time
(pre-fibro: 0% exhaustion 100% of the time.)

10 day antihistamine trial (intermittent/low dose) and 6 weeks of weighing without increase
Summary:
Testing antihistamine: 0.8mg (8%) further for gnat bite itch, praps sleep, temperature and pee. 5th 19:00 0.2mg/ sinus-headache only 10%, with sinuses at 21:30 (or from ripe banana bit) 20% itch 10% (no new bites). 6th 19:00 0.2mg better than night before, maybe getting used to it again, so continue like this? But try if dry mouth and nostrils can be influenced with tape over my mouth, like McKeown recommends (altho I don’t think I sleep with mouth open, but who knows…).
Weighing irregularly if I’m sustainably up from 74.2kg.

Food: 1st: 90% 2nd: 85% 3rd: 80%

Sleep 90% / Feeling 70-80%-ish / nausea 0-10%, fog 30%

New habits (and see "simplified"). 'Early outside bird' with lots of early sun, light & air all day now NEEDS to pull his schedule forwards. ✅

:ambulance: Bed 21:30-5:30. (:white_check_mark:)
:ambulance: Note thoughts and emotions (ACT) (:white_check_mark:)

Today's FM symptoms unchanged from WPI 11 & SSS 9-1=8, except....: +1: headache (Often I forget.) (Click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (30-60%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (92%), insomnia 2 (10%), fog 2 (30%), headache (1) (0-20%, only short), GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20% decreasing to 8-12% by end of May from new symptoms, partly from CoV itself. June 3rd: More careful in countryside (mask when cutting grass for guinea pigs) and with histaminey foods is helping (taking 2x1/d DAO, stopped soy & white beans & yeast spread, baked beans OK yesterday, halving bananas again). Click for developments:

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

SLEEP (click for details): 8h47, up 6x (27), all deep. Not as nauseous at 6:24 as at 7:14, but very quick with supps 7:20 and meal at 7:50. ✅ ➔ Feeling 75-80% well, Ache 2 of 7 ✅/❌, getting up: 70-80%/2 ✅/❌. Nostrils ?10% stuffy 100% of the night ✅. Sweathy1x10%

A3 A4:0 teeth0 cold shower0 p0 HWB#0 Sleep 22:00- 3rd # is LBU
23:08 4’ 80%/2/15% p0 st3 sip fw2’ deep/ air/ A4/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/5% sinuses5% headache0% sore throat20%, nausea0% stomach0% tongue10% stools0 loose%) FA/CS#0 kg drymouth 30% dryhands 20%
0:15 6’ 80%/2/15% p0 st3 sip fw2’ deep/ air/ A5/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet10% teeth0 alternate shower0
(nostril/s0/5% sinuses5% headache0% sore throat20%, nausea0% stomach0% tongue10% stools0 loose%) FA/CS#0 kg drymouth 40% dryhands 20%
0:54 6’ 80%/2/15% p0 st3 sip fw2’ deep/ air/ A6/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet5% teeth0 alternate shower0
(nostril/s0/5% sinuses5% headache0% sore throat20%, nausea0% stomach10% tongue15% stools0 loose%) FA/CS#0 kg drymouth 40% dryhands 20%
2:30 6’ 80%/2/15% p0 st3 sip fw2’ deep/ air/ A7/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet5% teeth0 alternate shower0
(nostril/s0/9% sinuses0% headache0% sore throat10%, nausea0% stomach10% tongue15% stools0 loose%) FA/CS#0 kg drymouth 30% dryhands 20%
4:33 11’ 80%/2/15% p0 st3 sip fw2’ deep/ air/ A8/ plugs0 cream0 gel/ HWB#(0) Bedclothes: wet5% teeth0 alternate shower0
(nostril/s0/0% sinuses10% headache0% sore throat10%, nausea10% stomach10% tongue15% stools0 loose%) FA/CS#0 kg drymouth 30% dryhands 20%
6:24 4’ 80%/2/15% p0 st3 sip fw2’ deep/ air/ A9:0 plugs0 cream0 gel/ HWB#(0) Bedclothes: wet5% teeth0 alternate shower0
(nostril/s0/5% sinuses10% headache0% sore throat15%, nausea10% stomach10% tongue15% stools0 loose%) FA/CS#0 kg drymouth 30% dryhands 20%
-7.14 70-80%/2/15% p0 st3 sip fw2’ deep/ air/ A9:0 plugs0 cream0 gel/ HWB#(0) Bedclothes: wet5% teeth0 alternate shower0
(nostril/s0/5% sinuses10% headache20% sore throat15%, nausea20% stomach20% tongue15% stools0 loose%) FA/CS#0 kg drymouth 30% dryhands 20%

Sum: 7h14+2h-(4+6+6+6+1+4=)27 = 9h14-27 = 8h47, up 6x (27), all deep. Not as nauseous at 6:24 as at 7:14, but very quick with supps 7:20 and meal at 7:50.

ACTIVITIESACHE: 80%/2 :white_check_mark:, TT 2:0 (moving 5%, talking/counting 5%) ➔ 80%/6 :x:, gardening/moving ➔ 80%/3, so not doing much (:white_check_mark:), talking ➔ 80%/? :x:.

ACTIONS ➔ PAINS ✅/(✅): GI, appetite, esophagus, pee, back (against wall/door for support), lips. Lips often white ❌, lips & mouth vey dry at night ❌. Details...

except GI: stools loose0% :white_check_mark:, appetite a little better (:white_check_mark:), esophagus: if I’m extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:, finger tips: better. (:white_check_mark:). Lip soreness better since fungal cream (:white_check_mark:), but lips still often white, esp. when pressed, meaning overexertion according to my wife (:x:). Still often thirsty / dry lips & mouth (:x:)

Click for details on Weather: sun nauseating10-20% ✅/❌, unwell10-20% ✅/❌, last seizures Jun 6th 2x, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last esophagus block: May 31st, before that Apr 4th (probably more often). Jaw pain from tooth problems: May 10th till broken filling was taken out May 22nd.

Touch: :white_check_mark: Covid: :x: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:/:x:. Outdoors almost all day now, so no need for daylight lamp, if the sun becomes too bright and warm I do something in the cellar or the shade, making myself at home there.
Last focal seizures: June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more.

Treatments

Last doc update May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. Self-treatments & supps stable - May 15th: stretches helping wrists, not enough back exercises, and colostrum not tolerated, creatine next. Click for details.
Click for details: Update May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): OK: Breath exercises today. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 6th: This has hardly changed. Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m. Keeping to schedule TODAY: OK? May 25th: Back on silymarin. no creatine yet, colostrum 2x on one day was bad. Praps ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today:
Pointed to Ari Whitten’s breathing after trying Wim Hof’s breath-holding
I watched some of Whitten’s videos and Patrick McKeown too, who seems to have .

How To Breathe The Right Way For More Energy And Performance with Patrick McKeown and Ari Whitten

Closing mouth at night opens nostrils and keeps moist: Try with „paper tape“.

How to unblock the nose instantly Buteyko Method:
Nod head with nose pinch-close as long as possible after breathing IN and then OUT.

Lessons in self-care #686 Lots: Started well with 2 breathing exercises, but no help. Kept to schedule and lots of rest, not doing much.
Reasons to be cheerful #736 Loads:
a) Learnt that the sex life of dunnocks is much more ‘complicated’ than that of humans… Saw a scene like this and am not satisfied with the wikipedia explanation - why would the hen be ready and willing to let the cocks poke at their backsides with their beak?!?
b) Sitting talking near the enormous dead wood heap I suddenly saw li’l brown mouse look out to say hello - out of the middle of the heap, first moved, then stopped when we talked, but only when my wife tried to turn her head to catch a glimpse did it hurry back. What a laugh!
Simplified #135 A bit, not much.
Foggies: OK.

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

2023-06-08 Thursday - paradigm shift still in place day #5: but not improving anything up to now. Ate at 18:30, 9:00 13:50 19:50 (:white_check_mark:), slept 22:10 (:white_check_mark:), 2%! of my antihistamine, taping my mouth (with a nose strip) seemed no problem, but no help “:white_check_mark:”. Sleeping above 8h isn’t improving anything, except stealing my morning.

Exhaustibility “92%". Click for details ("11h rest", I've said, like yesterday):

R rest: 100% exhaustion 70% of the time (11h),
VS very slow: 60% exhaustion 25% of the time (4h),
S slow: 40% exhaustion 5% of the time (1h),
M medium: 20% exhaustion 0% of the time,
Q quick: 0-10% exhaustion 0% of the time
(pre-fibro: 0% exhaustion 100% of the time.)

10 day antihistamine trial (intermittent/low dose) and 6 weeks of weighing without increase
Summary:
Testing antihistamine: 0.8mg (8%) further for gnat bite itch, praps sleep, temperature and pee. 5th 19:00 0.2mg/ sinus-headache only 10%, with sinuses at 21:30 (or from ripe banana bit) 20% itch 10% (no new bites). 6th 19:00 0.2mg, 7th 19:00 0.2mg. 8th 19:30 0.1-2mg
Weighing irregularly if I’m sustainably up from 74.2kg.

Food: 1st: 110% 2nd: 80% 3rd: 110% (Using green and baked beans and jogurt.

Sleep 90% / Feeling 60%-ish / nausea 0-10%, fog 35%

New habits (and see "simplified"). 'Early outside bird' with lots of early sun, light & air all day now NEEDS to pull his schedule forwards. ✅

:ambulance: Bed 21:30-5:30. (:white_check_mark:)
:ambulance: Note thoughts and emotions (ACT) (:white_check_mark:)

Today's FM symptoms unchanged from WPI 11 & SSS 9-1=8, except....: +0. (Click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (30-60%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (92%), insomnia 2 (10%), fog 2 (30%), headache (0), GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20% decreasing to 8-12% by end of May from new symptoms, partly from CoV itself. June 3rd: More careful in countryside (mask when cutting grass for guinea pigs) and with histaminey foods is helping (taking 2x1/d DAO, stopped soy & white beans & yeast spread, baked beans OK yesterday, halving bananas again). Click for developments:

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

SLEEP (click for details): 8h14, up 6x (1h26), all deep. Zombie20% feels good, not bad, so this amount seems to be standing the test, however not curbing breaks or pee frequency or bite itch. The power of 2% is making me wonder if I could try T4 again with even lower dose. But looking back to March I see it caused something like insomnia and histaminey problems, maybe more, like the night sweats, but its energy wasn't actually usable... Forgot to prepare/take A2+A3 GABA again, so kept going up to A8, -2=6, praps part of the reason for the seizures the other day? A bit difficult with nose strip over mouth, but OK. However didn't use calendula essence for the sore throat. ✅ ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅. Nostrils 0-5% stuffy 100% of the night ✅, but sore throat and dry mouth despite nose strip over mouth. No sweating.

A3 A4:0 teeth/ cold shower0 p0 HWB#0 (midday) Sleep 22:10- 3rd # is LBU
23:15 5’ 80%/2/15% p0 st3 sip fw2’ deep/ air:20’/ A4/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s3/0% sinuses10% headache0% sore throat15%, nausea0% stomach5% tongue10% stools0 loose%) FA/CS#0 kg drymouth 30% dryhands 20% zombie20% nosestrip100%->
0:07 7’ 80%/2/15% p0 st3 sip fw4’ deep/ air0 A5/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s3/0% sinuses10% headache0% sore throat25%, nausea0% stomach10% tongue10% stools0 loose%) FA/CS#0 kg drymouth 30% dryhands 20% zombie20% nosestrip100%<->
1:20 13’ 80%/2/15% p0 st3 sip fw3’ deep/ air/-> A6/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/5% sinuses10% headache0% sore throat25%, nausea0% stomach10% tongue10% stools0 loose%) FA/CS#0 kg drymouth 30% dryhands 20% zombie20% nosestrip100%<-> Feels nice, but I don’t think it’s helping for anything.
Forgot to prepare/take A2+A3 GABA again, so keep going with “A6/A7”! Car woke me up once cos of leaving window open, aside from that OK, but woke up I think from gulping somehow, mouth and throat feels even dryer than normal, but also as if enough mucus is there, so I don’t get it yet and am keeping at it. Taking the GABA A4-7… is funny with the nose strip on my mouth, but possible.
2:40 17’ 80%/2/15% p0 st3 sip fw13’ deep/ air->/-> A7/ plugs0 cream/ gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/5% sinuses10% headache0% sore throat25%, nausea0% stomach10% tongue10% stools0 loose%) FA/CS#0 kg drymouth 30% dryhands 30% zombie20%:OK nosestrip100%<-> Feels nice, but I don’t think it’s helping, but I’m not sure. Saliva is there, but it feels dry at the same time.
Forgot to prepare/take A2+A3 GABA again, so keep going with “A6/A7”!
3:50 12’ 80%/2/15% p0 st3 sip fw8’ deep/ air->/ A8/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/5% sinuses5% headache0% sore throat15%, nausea5% stomach20% tongue10% stools0 loose%) FA/CS#0 kg drymouth 40% dryhands 10% (after creaming at 3. zombie20%:OK nosestrip100%<-> Feels nice, but I don’t think it’s helping, but I’m not sure. Saliva is still there, but now sticking together more.
Keeping going with GABA. The power of 2% is making me wonder if I could try T4 again with even lower dose. But looking back to March I see it caused something like insomnia and histaminey problems, maybe more, like the night sweats, but its energy wasn’t actually usable…
4:32 32’ Woke up after mother-in-law suddenly slipped down an embankment - symbolical? No pee urge, but cold, so heavy duvet. 6 80%/2/15% p0 st3 sip fw8’ deep/ air0 A9:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/5% sinuses5% headache0% sore throat15%, nausea0% stomach10% tongue10% stools0 loose%) FA/CS#0 kg drymouth 30% dryhands 10%. zombie10% (down). nosestrip100%<-> Sticking together, hardly saliva. (Also been hurting a bit, but not burning.)
-7:50 80%/2/15% p0 st3 sip fw8’ deep/ air0 A9:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% (heavy duvet) teeth0 alternate shower0
(nostril/s0/5% sinuses5% headache0% sore throat40%, nausea0% stomach10% tongue10% stools0 loose%) FA/CS#0 kg drymouth 40% dryhands 10%. zombie10% (down). nosestrip100%/ Sticking together, hardly saliva.

Sum: 7h50+1h50-(5+7+13+17+12+32=)86 = 9h40-1h26 = 8h14, up 6x (1h26), all deep. Zombie20% feels good, not bad, so this amount seems to be standing the test, however not curbing breaks or pee frequency or bite itch. The power of 2% is making me wonder if I could try T4 again with even lower dose. But looking back to March I see it caused something like insomnia and histaminey problems, maybe more, like the night sweats, but its energy wasn’t actually usable… Forgot to prepare/take A2+A3 GABA again, so kept going up to A8, -2=6, praps part of the reason for the seizures the other day? A bit difficult with nose strip over mouth, but OK. However didn’t use calendula essence for the sore throat.
PUT zombie% in template and “No sweating?”.

ACTIVITIESACHE: 70%/4 :x:, TT 0:1 (moving 5%, talking incl. counting 5%,) ➔ 80%/5-6 :x:, gardening/moving ➔ 80%/3 :x:, talking ➔ 80%/4 :x:.

ACTIONS ➔ PAINS ✅/(✅): GI, appetite, esophagus, pee, back (against wall/door for support), lips. Lips often white ❌, lips & mouth vey dry at night ❌. Details...

except GI: stools loose0% :white_check_mark:, appetite a little better (:white_check_mark:), esophagus: if I’m extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:, finger tips: better. (:white_check_mark:). Lip soreness better since fungal cream (:white_check_mark:), but lips still often white, esp. when pressed, meaning overexertion according to my wife (:x:). Still often thirsty / dry lips & mouth (:x:)

Click for details on Weather: sun OK, indoors in early afternoon, in shade before and after ✅, last seizures Jun 6th 2x, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last esophagus block: May 31st, before that Apr 4th (probably more often). Jaw pain from tooth problems: May 10th till broken filling was taken out May 22nd.

Touch: :white_check_mark: Covid: :x: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:/:x:. Outdoors almost all day now, so no need for daylight lamp, if the sun becomes too bright and warm I do something in the cellar or the shade, making myself at home there.
Last focal seizures: June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more.

Treatments

Last doc update May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. Self-treatments & supps stable - May 15th: stretches helping wrists, not enough back exercises, and colostrum not tolerated, creatine next. Click for details.
Click for details: Update May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅. Cold showering every day ✅, but yesterday at midday.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 6th: This has hardly changed. Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m. Keeping to schedule TODAY: OK. May 25th: Back on silymarin. no creatine yet, colostrum 2x on one day was bad. Praps ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today: No.
Lessons in self-care #687 Need to go even slower, just 1x TT was too much.
Reasons to be cheerful #737 Loads. Squirrel came round, and the blackcap has been passing here (to and fro) too the past 2-3 days. Many new blossoms: roses, poppies, bellflowers.
Simplified #136 Loads. Tidying up after meals.
Foggies: Several, just kept it slow, less demand.

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

2023-06-09 Friday - paradigm shift day #6. Able to get up early and clear-headed cos of less antihistamine, with much more energy, but also a bit of feverish feeling early morning and from early Friday evening on, so I’m stimulating cortisol by less sleep and need to take great care what to do with that, esp. this time round sleeping enough, so the effect doesn’t wear off. Ate at 19:50 7:00?: 14:00 19:00 :white_check_mark:, slept 22:20 (:white_check_mark:), 1-2%! of my antihistamine, but back to 3 passiflora. 0% antiflora Fr/Sat, but still 3 passiflora.

Exhaustibility “87%!". Click for details (higher energy profile by sleeping less:

R rest: 100% exhaustion 40% of the time (4h30),
VS very slow: 60% exhaustion 20% of the time (2h),
S slow: 40% exhaustion 35% of the time (4h),
M medium: 20% exhaustion 5% of the time (30’),
Q quick: 0-10% exhaustion 0% of the time
(pre-fibro: 0% exhaustion 100% of the time.)

10 day antihistamine trial (intermittent/low dose) and 6 weeks of weighing without increase
Summary:
Testing antihistamine: 0.8mg (8%) further for gnat bite itch, praps sleep, temperature and pee. 5th 19:00 0.2mg/ sinus-headache only 10%, with sinuses at 21:30 (or from ripe banana bit) 20% itch 10% (no new bites). 6th 19:00 0.2mg 7th: 0.2, 8th: 0.1, 9th: 0.
Weighing irregularly if I’m sustainably up from 74.2kg.

Food: 1st: 110% 2nd: 90% 3rd: 90%

Sleep 90% / Feeling 80%-ish / nausea 0%, fog 30%
Successes: :trophy: Bladder problems under control for weeks now.
:zap: Cortisol/histamine!

New habits (and see "simplified"). 'Early outside bird' with lots of early sun, light & air all day now NEEDS to pull his schedule forwards. ✅

:ambulance: Bed 21:30-5:30. (:white_check_mark:)
:ambulance: Note thoughts and emotions (ACT) (:white_check_mark:)

Today's FM symptoms unchanged from WPI 11 & SSS 9-1=8, except....: +0 (Click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (30-60%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (87%), insomnia 2 (10%), fog 2 (30%), headache (0), GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20% decreasing to 8-12% by end of May from new symptoms, partly from CoV itself. June 3rd: More careful in countryside (mask when cutting grass for guinea pigs) and with histaminey foods is helping (taking 2x1/d DAO, stopped soy & white beans & yeast spread, baked beans OK yesterday, halving bananas again). Click for developments:

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

SLEEP (click for details): 7h33, up 4x (53'), all deep. ✅ ➔ Feeling 80% well, Ache 2 of 7, getting up: 80%/2 ✅. Nostrils 0-5% stuffy 100% of the night ✅. No sweating ✅. A bit of feverish feeling early morning and from early evening on, so I'm stimulating cortisol by less sleep and need to take great care.

rup0.1-2 A3 A4:0 teeth0 p0 HWB#0 Sleep 22:18 3rd # is LBU
23:23 26’ 80%/2/15% p0 st3 sip fw2’ fl15’ deep/ air/ A4/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s0/0% sinuses0% headache0% sore throat20% nausea0% stomach0->20% tongue5% stools0 loose% kg drymouth 30% dryhands 20% zombie0%
1:42 20’ 80%/2/15% p0 st3 sip fw8’ fl8’ deep/ air/ A5/ plugs0 cream0 gel/ HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s0/0% sinuses0% headache0% sore throat20% nausea0% stomach20% tongue10% stools0 loose% kg drymouth 30% dryhands 20% zombie5%
3:30 4’ 80%/2/15% p0 st3 sip fw2’ fl0’ deep/ air/ A6/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s0/0% sinuses0% headache0% sore throat15% nausea10% stomach30% tongue10% stools0 loose% kg drymouth 30% dryhands 20% zombie15%
5:15 3’ 80%/2/15% p0 st3 sip fw1’ fl0’ deep/ air/ A7/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s0/0% sinuses0% headache0% sore throat10% nausea10% stomach10% tongue10% stools0 loose% kg drymouth 30% dryhands 20% zombie15%
-6:46 80%/2/15% p0 st3 sip fw1’ fl0’ deep/ air/ A8;0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s5/0% sinuses0% headache0% sore throat10% nausea10% stomach10% tongue10% stools0 loose% kg drymouth 20% dryhands 20% zombie15%

Sum: 6h46+1h40-(26+20+4+3=)53 = 8h26h-53 = 7h33, up 4x (53’), all deep.

ACTIVITIESACHE: 80%/2 :white_check_mark:, TT 0, but gardening/moving and even carrying heavy things a short time again ➔ 80%/2! :white_check_mark:, talking ➔ 80%/2 :x:.

ACTIONS ➔ PAINS ✅/(✅): GI, appetite, esophagus, pee, back (against wall/door for support), lips. Lips often white ❌, lips & mouth vey dry at night ❌. Details...

except GI: stools loose0% :white_check_mark:, appetite a little better (:white_check_mark:), esophagus: if I’m extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:, finger tips: better. (:white_check_mark:). Lip soreness better since fungal cream (:white_check_mark:), but lips still often white, esp. when pressed, meaning overexertion according to my wife (:x:). Still often thirsty / dry lips & mouth (:x:)

Click for details on Weather: sun hot, but was very careful (✅), last seizures Jun 6th 2x, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last esophagus block: May 31st, before that Apr 4th (probably more often). Jaw pain from tooth problems: May 10th till broken filling was taken out May 22nd.

Touch: :white_check_mark: Covid: :x: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:/:x:. Outdoors almost all day now, so no need for daylight lamp, if the sun becomes too bright and warm I do something in the cellar or the shade, making myself at home there.
Last focal seizures: June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more.

Treatments

Last doc update May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. Self-treatments & supps stable - May 15th: stretches helping wrists, not enough back exercises, and colostrum not tolerated, creatine next. Click for details.
Click for details: Update May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 6th: This has hardly changed. Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m. Keeping to schedule TODAY: OK, June 8th/9th: 3 passiflora along with 0.1-2 Rupafin, and 9th/10th without. May 25th: Back on silymarin. no creatine yet, colostrum 2x on one day was bad. Praps ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today: No.
Lessons in self-care #688 Gotta be careful with the extra cortisol energy now.
Reasons to be cheerful #738 Loads. a) Heron just flew directly over the garden, maybe lower than the cherry tree is high, no wonder everyone was jumpy. b) Magpie chased away by blackbirds - they’re very sensitive at the moment, wanna make sure they keep their babies.
Simplified #137 Pulling evening meal forwards by leaving things for after that - seems to be workin.
Foggies: Nope.

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

2023-06-10 Saturday - paradigm shift coming into place day #7. Ate at 19:30 7:00 : :white_check_mark:, slept 22:05 :white_check_mark: , 0% of my antihistamine. Energy strange:

Exhaustibility “90%". Getting complicated and new: Feeling "full" of energy, can move around quite easily, but TT movements brought on just as severe an Ache as the days before. Upsides is I'm not tempted to use more fast energy at all, and can use the slow energy. Downside is I'm close to giving up TT, and playing even a bit of music at this rate is no longer possible. But what does it all mean? Never were the Ache from doing it (high) and my energy (high) further apart. That makes it even harder now to summarize the energy profile in a single 'number'. Yesterday with the increased energy - but without checking how well I can play table tennis - I was able to talk quite a bit, even online for job 30' in the evening, and carry heavy stuff a bit, so I'd say that was more of "40% exhaustion", but not 80%. Click for details:

R rest: 100% exhaustion 50% of the time (8h),
VS very slow: 60% exhaustion 25% of the time (4h),
S slow: 40% exhaustion 25% of the time (4h),
M medium: 20% exhaustion 0% of the time,
Q quick: 0-10% exhaustion 0% of the time
(pre-fibro: 0% exhaustion 100% of the time.)

10 day antihistamine trial (intermittent/low dose) and 6 weeks of weighing without increase
Summary:
Testing antihistamine: 0.8mg (8%) further for gnat bite itch, praps sleep, temperature and pee. 5th 19:00 0.2mg/ sinus-headache only 10%, with sinuses at 21:30 (or from ripe banana bit) 20% itch 10% (no new bites). 6th 19:00 0.2mg 7th: 0.2, 8th: 0.1, 9th: 0, 10th: 0
Weighing irregularly if I’m sustainably up from 74.2kg.

Food: 1st: 100% 2nd: 85% 3rd: 85%

Sleep 90% / Feeling 70%-ish / nausea 0-20%, fog 30%
Successes: :trophy: :zap: Learnt: :student:

New habits (and see "simplified"). 'Early outside bird' with lots of early sun, light & air all day now NEEDS to pull his schedule forwards. ✅

:ambulance: Bed 21:30-5:30. (:white_check_mark:)
:ambulance: Note thoughts and emotions (ACT) (:white_check_mark:)

Today's FM symptoms unchanged from WPI 11 & SSS 9-1=8, except....: +0 (Click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (30-60%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (90%), insomnia 2 (10%), fog 2 (30%), headache 0, GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20% decreasing to 8-12% by end of May from new symptoms, partly from CoV itself. June 3rd: More careful in countryside (mask when cutting grass for guinea pigs) and with histaminey foods is helping (taking 2x1/d DAO, stopped soy & white beans & yeast spread, baked beans OK yesterday, halving bananas again). Click for developments:

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

SLEEP (click for details): 7h26, up 2x (52), all deep! ✅ ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅. Nostrils 20% stuffy 20% of the night ✅. No sweating ✅.

rup? A3 A4:0 teeth0 p0 HWB#0 Sleep 22:05- 3rd # is LBU
23:20 30’ 6 75%/2/15% p0 st3 sip fw2’ deep/ air/ A4/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s20/0% sinuses0% headache0% sore throat20% nausea0% stomach20% tongue10% stools0 loose% kg drymouth 20% dryhands 20% zombie10%
2:25 22’ 75%/2/15% p0 st3 sip fw2’ deep/ air/ A5/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s0/0% sinuses0% headache0% sore throat20% nausea0% stomach10% tongue10% stools0 loose% kg drymouth 20% dryhands 20% zombie10%
-6:23
Sum: 6h23+1h55-(30+22=)52 = 8h18-52 = 7h26, up 2x (52), all deep!

ACTIVITIESACHE: 80%/2 :white_check_mark:, TT 2:0 (moving 10%, talking incl. counting 10%,) ➔ 80%/5-6, strange considering I started being able to move easily :x:, gardening/moving ➔ 80%/2 :white_check_mark:, talking fairly often, but only in stints of 30’ ➔ 80%/3 :x:.

ACTIONS ➔ PAINS ✅/(✅): GI, appetite, esophagus, pee, back (against wall/door for support), lips. Lips often white ❌, lips & mouth vey dry at night ❌. Details...

except GI: stools loose0% :white_check_mark:, appetite a little better (:white_check_mark:), esophagus: if I’m extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:, finger tips: better. (:white_check_mark:). Lip soreness better since fungal cream (:white_check_mark:), but lips still often white, esp. when pressed, meaning overexertion according to my wife (:x:). Still often thirsty / dry lips & mouth (:x:)

Click for details on Weather: sun nauseating10% ❌, unwell20% ✅/❌, last seizures Jun 6th 2x, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last esophagus block: May 31st, before that Apr 4th (probably more often). Jaw pain from tooth problems: May 10th till broken filling was taken out May 22nd.

Touch: :white_check_mark: Covid: :x: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:/:x:. Outdoors almost all day now, so no need for daylight lamp, if the sun becomes too bright and warm I do something in the cellar or the shade, making myself at home there.
Last focal seizures: June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more.

Treatments

Last doc update May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. Self-treatments & supps stable - May 15th: stretches helping wrists, not enough back exercises, and colostrum not tolerated, creatine next. Click for details.
Click for details: Update May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 6th: This has hardly changed. Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m. Keeping to schedule TODAY: OK. May 25th: Back on silymarin. no creatine yet, colostrum 2x on one day was bad. Praps ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today: No.
Lessons in self-care #689 Got to look after my energy even more now!
Reasons to be cheerful #739 Loads. Blackcap and new baby blackbird.
Simplified #138 Loads. The additional energy is helping to cope with the fog better.
Foggies: Dialed the number of my mate, but put the phone aside and forgot until it made funny noises.

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

2023-06-11 Sunday - paradigm shift coming into place day #8. Ate at 19:50 9:00 : :white_check_mark:, slept 22:05 :white_check_mark:, 0% of my antihistamine Sat evening. But 1% at 13:20, cos of the strong histaminey sinus headache. Wondering all day if it was something like mould, but in the evening I saw the (buffalo) CAMEMBERT I’d eaten quite “a lot” of in the evening (100g), looked it up, and sure enough, itself it’s high in histamine, like all mould cheese, plus it had expired a week before, so the histamine will now be much higher than if it were fresh. I have to stop buying expired stuff, even tho it’s pro-sustainability and my excuse for eating dairy = separating kids from their mothers and getting them killed long before their time. Well, last night and today have pretty much proven that my bladder is greatly influenced by histamine. And that my DAO (expired end of 2022) is either not working anymore, not sufficient, or not working at all much. Unless it is just stopping gut reactions, but not systemic ones.

So I need to still watch out for these foods. And use up the DAO for milder stuff and then get it new and again try it out on the difficult stuff.

Exhaustibility “90%". Click for details ("11h rest", I've said, like yesterday):

R rest: 100% exhaustion 50% of the time (8h),
VS very slow: 60% exhaustion 25% of the time (4h),
S slow: 40% exhaustion 25% of the time (4h),
M medium: 20% exhaustion 0% of the time,
Q quick: 0-10% exhaustion 0% of the time
(pre-fibro: 0% exhaustion 100% of the time.)

10 day antihistamine trial (intermittent/low dose) and 6 weeks of weighing without increase
Summary:
Testing antihistamine: 0.8mg (8%) further for gnat bite itch, praps sleep, temperature and pee. 5th 19:00 0.2mg/ sinus-headache only 10%, with sinuses at 21:30 (or from ripe banana bit) 20% itch 10% (no new bites). 6th 19:00 0.2mg 7th: 0.2, 8th: 0.1, 9th: 0, 10th: 0, 11th 13:20 0.1mg.
Weighing irregularly if I’m sustainably up from 74.2kg.

Food: 1st: 100% 2nd: 80% 3rd: 90%

Sleep 90% / Feeling 70%-ish / nausea 0-50%, fog 30%
Successes: :trophy: :zap: Camembert! Histamine! Bladder!

New habits (and see "simplified"). 'Early outside bird' with lots of early sun, light & air all day now NEEDS to pull his schedule forwards. ✅

:ambulance: Bed 21:30-5:30. (:white_check_mark:)
:ambulance: Note thoughts and emotions (ACT) (:white_check_mark:)

Today's FM symptoms unchanged from WPI 11 & SSS 9-1=8, except....: +1: headache (Click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (30-60%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (92%), insomnia 2 (10%), fog 2 (30%), headache 1 (0-40%), GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20% decreasing to 8-12% by end of May from new symptoms, partly from CoV itself. June 3rd: More careful in countryside (mask when cutting grass for guinea pigs) and with histaminey foods is helping (taking 2x1/d DAO, stopped soy & white beans & yeast spread, baked beans OK yesterday, halving bananas again). Click for developments:

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

SLEEP (click for details): 8h15, up 6x (62'), all deep. Why was the last hour the biggest problem? Should I have got up after less than 7h? Is it being in that room too long? How to prevent? or alleviate? ✅ ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 60%/2 ❌. Nostrils 0-50% stuffy 10% of the night ✅. No sweating ✅.

rup0 A3 A4:0 teeth0 p0 HWB#0 Sleep 22:05- 3rd # is LBU
23.08 11’ 80%/2/15% p0 st3 sip fw2’ deep/ air/ A4/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s0/5% sinuses5% headache0% sore throat10% nausea0% stomach10% tongue10% stools0 loose% kg drymouth 25% dryhands 20% zombie10%
0:01 6’ 80%/2/15% p0 st3 sip fw2’ deep/ air/ A5/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s0/5% sinuses5% headache0% sore throat10% nausea0% stomach10% tongue10% stools0 loose% kg drymouth 25% dryhands 20% zombie10%
1:09 11’ 80%/2/15% p0 st3 sip fw2’ deep/ air/ A6/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s0/5% sinuses5% headache0% sore throat10% nausea0% stomach10% tongue10% stools0 loose% kg drymouth 25% dryhands 20% zombie10%
2:14 25’ 6 80%/2/15% p0 st3 sip fw2’ deep/ air/ A7/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s0/5% sinuses10% headache10% sore throat10% nausea0->30% stomach10% tongue10% stools0 loose% kg drymouth 25% dryhands 20% zombie20%
4:15 5’ 70%/2/15% p0 st3 sip fw2’ deep/ air/ A8/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s0/0% sinuses10% headache10% sore throat20% nausea10% stomach0% tongue10% stools0 loose% kg drymouth 25% dryhands 20% zombie20%
6:05 4’ 70%/2/15% p0 st3 sip fw2’ deep/ (wife swimming thru enornomous flesh-coloured jelly-fishes) air0 A9:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s50/0% sinuses30% headache20% sore throat30% nausea20% stomach0% tongue10% stools0 loose% kg drymouth 25% dryhands 20% zombie20%
-7:22 4’ 70%/2/15% p0 st3 sip fw2’ deep/ (wife swimming thru enornomous flesh-coloured jelly-fishes) air0 A9:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s30/0% sinuses30% headache30% sore throat30% nausea60% stomach0% tongue10% stools0 loose% kg drymouth 25% dryhands 20% zombie20%
Sum: 7h22+1h55-(11+6+11+25+5+4=)62 = 9h17-62 = 8h15, up 6x (62’), all deep. Why was the last hour the biggest problem? Should I have got up after less than 7h? Is it being in that room too long? How to prevent? or alleviate?

ACTIVITIESACHE: 60%/2 :white_check_mark: (80% if it weren’t for histamine, TT 3:0 (moving 5%, talking incl. counting 10%,) ➔ 80%/5? :x:, gardening/moving ➔ 80%/2 :white_check_mark:, talking ➔ 80%/3 :x:, but any movement making me get the nauseous sinus burning headache…

ACTIONS ➔ PAINS ✅/(✅): GI, appetite, esophagus, pee, back (against wall/door for support), lips. Lips often white ❌, lips & mouth very dry at night ❌. Details...

except GI: stools loose0% :white_check_mark:, appetite a little better (:white_check_mark:), esophagus: if I’m extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:, finger tips: better. (:white_check_mark:). Lip soreness better since fungal cream (:white_check_mark:), but lips still often white, esp. when pressed, meaning overexertion according to my wife (:x:). Still often thirsty / dry lips & mouth (:x:)

Click for details on Weather: sun hot, so not sure if the nausea was partly from the sun, not just the histamine ✅/❌, last seizures Jun 6th 2x, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last esophagus block: May 31st, before that Apr 4th (probably more often). Jaw pain from tooth problems: May 10th till broken filling was taken out May 22nd.

Touch: :white_check_mark: Covid: :x: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:/:x:. Outdoors almost all day now, so no need for daylight lamp, if the sun becomes too bright and warm I do something in the cellar or the shade, making myself at home there.
Last focal seizures: June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more.

Treatments

Last doc update May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. Self-treatments & supps stable - May 15th: stretches helping wrists, not enough back exercises, and colostrum not tolerated, creatine next. Click for details.
Click for details: Update May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 6th: This has hardly changed. Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m. Keeping to schedule TODAY: OK. May 25th: Back on silymarin. no creatine yet, colostrum 2x on one day was bad. Praps ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today: No.
Lessons in self-care #690
Reasons to be cheerful #740 Loads.
Simplified #139 Loads.
Foggies:

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

2023-06-12 Monday - paradigm shift coming into place day #9. Ate at 19:50 14:00 : :white_check_mark:, slept 22:05 :white_check_mark: 3x0.1%! of my antihistamine.

Exhaustibility 90%". Click for details ("11h rest", I've said, like yesterday):

R rest: 100% exhaustion 50% of the time (8h),
VS very slow: 60% exhaustion 25% of the time (4h30),
S slow: 40% exhaustion 20% of the time (3h),
M medium: 20% exhaustion 5% of the time (30’),
Q quick: 0-10% exhaustion 0% of the time
(pre-fibro: 0% exhaustion 100% of the time.)

10 day antihistamine trial (intermittent/low dose) and 6 weeks of weighing without increase
Summary:
Testing antihistamine: 0.8mg (8%) further for gnat bite itch, praps sleep, temperature and pee. 5th 19:00 0.2mg/ sinus-headache only 10%, with sinuses at 21:30 (or from ripe banana bit) 20% itch 10% (no new bites). 6th 19:00 0.2mg 7th: 0.2, 8th: 0.1, 9th: 0, 10th: 0, 11th 13:20 0.1mg. 18:45 0.1mg. 13:00 0.1mg.
Weighing irregularly if I’m sustainably up from 74.2kg.

Food: 1st: 100% 2nd: 85% 3rd: 85%

Sleep 90% / Feeling 80%-ish / nausea 0%, fog 30%
Successes: :trophy: :zap: See development.

New habits (and see "simplified"). 'Early outside bird' with lots of early sun, light & air all day now NEEDS to pull his schedule forwards. ✅

:ambulance: Bed 21:30-5:30. (:white_check_mark:)
:ambulance: Note thoughts and emotions (ACT) (:white_check_mark:)

Today's FM symptoms unchanged from WPI 11 & SSS 9-1=8, except....: 0. (Click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (30-60%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (92%), insomnia 2 (10%), fog 2 (30%), headache (0), GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20% decreasing to 8-12% by end of May from new symptoms, partly from CoV itself. June 3rd: More careful in countryside (mask when cutting grass for guinea pigs) and with histaminey foods is helping (taking 2x1/d DAO, stopped soy & white beans & yeast spread, baked beans OK yesterday, halving bananas again). Click for developments:

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

SLEEP (click for details): 6h52, up 4x (1h18), all deep, stings a problem, so again histamine. ✅ ➔ Feeling 80% well, but from bite itch 60%, Ache 2 of 7 ❌, getting up: 80%(70%)/2 ✅. Nostrils 0% stuffy 100% of the night ✅. No sweating ✅.

rup0.1 (& 13:20 0.1) A3 A4:0 teeth0 p0 HWB#0 gel/ Sleep 22:15- 3rd # is LBU
0:16 20’ 80%/2/15% p0 st3 sip fw2’ deep/ air//-> A4/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s0/0% sinuses0% headache0% sore throat20% nausea10% stomach10% tongue10% stools0 loose% kg drymouth 30% dryhands 20% zombie0%, stings40%
1:26 5’ 80%/2/15% p0 st3 sip fw2’ deep/ air.>// A5/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s0/0% sinuses0% headache0% sore throat20% nausea10% stomach10% tongue10% stools0 loose% kg drymouth 30% dryhands 20% zombie0%, stings40%
1:52-2:40 48’ 80%/2/15% p0 st3 sip fw2’ deep/ air/ A6/ plugs0 cream0 gel0 HWB#1 Bedclothes: wet0% teeth0 FA/CS#1
(nostril/s0/0% sinuses0% headache0% sore throat20% nausea10% stomach10% tongue10% stools0 loose% kg drymouth 30% dryhands 20% zombie0%, sting80%
0.1mg Rupafin, Posterisan, Soventol & cold pack, next: 2:18 cold shower.-:40
4:45 5’ 80%/2/15% p0 st2 sip fw2’ deep/ air/ A7/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s0/0% sinuses0% headache0% sore throat20% nausea10% stomach10% tongue10% stools0 loose% kg drymouth 30% dryhands 20% zombie0%, sting80%
-6:25 80%/2/15% p0 st2 sip fw2’ deep/ air/ A8:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth/ FA/CS#0
(nostril/s0/0% sinuses0% headache0% sore throat10% nausea00% stomach10% tongue10% stools0 loose% kg drymouth 20% dryhands 10% zombie0%, sting80%

Sum: 6h25+1h45-(20+5+48+5=)78’ = 8h10-1h18 = 6h52, up 4x (1h18), all deep.

ACTIVITIESACHE: 80%/2 :white_check_mark:, TT 1:1 (moving 5%, talking incl. counting 10%,) ➔ 80%/3 :white_check_mark:, gardening/moving ➔ 80%/2 :white_check_mark:, talking ➔ 80%/3 :x:.

ACTIONS ➔ PAINS ✅/(✅): GI, appetite, esophagus, pee, back (against wall/door for support), lips. Lips often white ❌, lips & mouth very dry at night ❌. Details...

except GI: stools loose0% :white_check_mark:, appetite a little better (:white_check_mark:), esophagus: if I’m extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:, finger tips: better. (:white_check_mark:). Lip soreness better since fungal cream (:white_check_mark:), but lips still often white, esp. when pressed, meaning overexertion according to my wife (:x:). Still often thirsty / dry lips & mouth (:x:)

Click for details on Weather: sun nauseating10% ✅, unwell10% ✅, last seizures Jun 6th 2x, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last esophagus block: May 31st, before that Apr 4th (probably more often). Jaw pain from tooth problems: May 10th till broken filling was taken out May 22nd.

Touch: :white_check_mark: Covid: :x: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:/:x:. Outdoors almost all day now, so no need for daylight lamp, if the sun becomes too bright and warm I do something in the cellar or the shade, making myself at home there.
Last focal seizures: June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more.

Treatments

Last doc update May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. Self-treatments & supps stable - May 15th: stretches helping wrists, not enough back exercises, and colostrum not tolerated, creatine next. Click for details.
Click for details: Update May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 6th: This has hardly changed. Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m. Keeping to schedule TODAY: OK. May 25th: Back on silymarin. no creatine yet, colostrum 2x on one day was bad. Praps ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

Just a recap of yesterday:
I had a strong “nauseous burning sinus headache”, a bit more energy / less pain, and needed to pee every hour at night and half an hour a lot of the day. (A nauseous burning sinus headache is roughly like a noseful of water while swimming, 80% of that. Or drinking water thru the nose (neti) but forgetting the 0,9% salt.)
That symptom combination is now getting clearer to me as all being from a histamine overload.
I was puzzled what from, as I’d been going easy on histamine food - I thought: It was Camembert, which I thought was “young”, but mould cheese is “matured” despite being only a few weeks old. (Or is that kind of mould a problem itself, too?)
Weird getting slightly more energy and less pain, but today I have that too. So it might be from being able to get up early again by reducing the antihistamine.
Don’t quite get it yet, but at least I now know roughly what to look for.
And very interesting the notion that my bladder problems are maybe also mast cells overreacting. But if so, how come I had that symptom pre-jab, from fibro alone…?
Last night I had overractions to insect bites/stings again, but after a longer sleep break trying various things without any success, I remembered last time I thought I might be able to reduce the histamine build-up with a cold shower, and that didn’t decrease the itch directly, but I was still able to get back to deep sleep, almost 7h then, whilst last time without a cold shower I was down to 5h. So I’m glad to be able to cold shower again.
Interesting and supporting the case is that I can just about sleep at first, but when histamine builds up at night, the itch wakes me up more.
‘Research’ today: No.
Lessons in self-care #691 Watching the histamine connection. Using the slow energy carefully.
Reasons to be cheerful #741 Loads.
a) Little brown mouse just scurried past me.
b) blackcap here (and there) again.
c) Saw 2 blue tits chattering away in the buxus.
d) My wife says the regular cheep some days is a woodpecker, but I haven’t been able to catch him. Depending on the sort he’d be a threat, but like the squirrel no one in the garden is alarmed, so it’s only the tigers and the sparrow-hawk we have to watch out for.
e) As flowers go half are managing quite well with the hot dry spell, The pink rose is grown to a mighty big blossom, and quite a few small ones that I sowed or sowed themselves are appearing at last.
f) The new ideas / associations around histamine are giving me a little hope.
Simplified #140 Loads. Moving things into the garden and back gets easier every day.
Foggies: OK-ish… only a mild fog.

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

2023-06-13 Tuesday - paradigm shift come into place day #10. Ate at 19:00? 14:00 19:30 :white_check_mark:, slept 22:15 :white_check_mark: , 4x1%! of my antihistamine.

Exhaustibility “90/92%" (after dentist). Click for details :

R rest: 100% exhaustion 50% of the time (8h),
VS very slow: 60% exhaustion 25% of the time (4h),
S slow: 40% exhaustion 25% of the time (4h),
M medium: 20% exhaustion 0% of the time,
Q quick: 0-10% exhaustion 0% of the time
(pre-fibro: 0% exhaustion 100% of the time.)

10 day antihistamine trial (intermittent/low dose) and 6 weeks of weighing without increase
Summary:
Testing antihistamine: 0.8mg (8%) further for gnat bite itch, praps sleep, temperature and pee. 5th 19:00 0.2mg/ sinus-headache only 10%, with sinuses at 21:30 (or from ripe banana bit) 20% itch 10% (no new bites). 6th 19:00 0.2mg 7th: 0.2, 8th: 0.1, 9th: 0, 10th: 0, 11th 13:20 0.1mg. 18:45 0.1mg. 12th 13:00 0.1mg. then till 13th 5x0.1mg.
Weighing irregularly if I’m sustainably up from 74.2kg.

Food: 1st: 100% 2nd: 80% 3rd: 80%

Sleep 90% / Feeling 70-80%-ish / nausea 0-20%, fog 30%
Successes: :trophy: :zap: Learnt: :student:

New habits (and see "simplified"). 'Early outside bird' with lots of early sun, light & air all day now NEEDS to pull his schedule forwards. ✅

:ambulance: Bed 21:30-5:30. (:white_check_mark:)
:ambulance: Note thoughts and emotions (ACT) (:white_check_mark:)

Today's FM symptoms unchanged from WPI 11 & SSS 9-1=8, except....: +0(Click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (30-60%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (92%), insomnia 2 (10%), fog 2 (30%), headache 0, GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20% decreasing to 8-12% by end of May from new symptoms, partly from CoV itself. June 3rd: More careful in countryside (mask when cutting grass for guinea pigs) and with histaminey foods is helping (taking 2x1/d DAO, stopped soy & white beans & yeast spread, baked beans OK yesterday, halving bananas again). Click for developments:

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

SLEEP (click for details): 8h04, up 3x (58'), all deep. Cold showering and many (5? )specks (0.1-0.3mg) of antihistamine "as needed". ✅ ➔ Feeling 60-70% well, Ache 2 of 7 ❌, getting up: 60%/2 ❌. Nostrils 0-5% stuffy 100% of the night ✅. No sweating ✅. Nauseous sinus burning headache not that severe, and resolved in 30', maybe a 2nd cold shower helped, overheated anyway.

rup0.1 A3 A4:0 teeth0 p0 HWB#0 Sleep 22:15- 3rd # is LBU
23:36 48’ 60%/2/15% p0 st3 sip fw35’ deep/ air/ A4/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#1
(nostril/s0/5% sinuses5% headache0% sore throat20% nausea0% stomach0% tongue5% stools0 loose% kg drymouth 30% dryhands 20% zombie20%
3:40 5’ 70%/2/15% p0 st3 sip fw1’ deep/ air/ A5/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 (FA/CS#1)
(nostril/s0/5% sinuses20% headache0% sore throat20% nausea10% stomach10% tongue10% stools0 loose0% kg drymouth 30% dryhands 20% zombie20%
5:25 5’ 60%/2/15% p0 st3 sip fw1’ deep/ air/ A6/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 (FA/CS#1)-> arms and face cold water.
(nostril/s0/5% sinuses40% headache20% sore throat20% nausea20% stomach20% tongue10% stools0 loose40% kg drymouth 30% dryhands 20% zombie40% RUP 0.2
-7:17 60%/2/15% p0 st3 sip fw1’ deep/ air/ A7:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 (FA/CS#2
(nostril/s0/5% sinuses40% headache20% sore throat20% nausea20% stomach20% tongue10% stools0 loose40% kg drymouth 30% dryhands 20% zombie40% RUP 0.3

Sum: 7h17+1h45-(48+5+5=)58 = 9h02-58 = 8h04, up 3x (58’), all deep. Cold showering and many (5? )specks (0.1-0.3mg) of antihistamine “as needed”.

ACTIVITIESACHE: 60-80%/2 :white_check_mark:, TT 1:1 (moving 5%, talking incl. counting 10%,) ➔ 80%/3 :white_check_mark:, gardening/moving ➔ 80%/2 :white_check_mark:, talking ➔ 80%/3 :x: (just didn’t).

ACTIONS ➔ PAINS ✅/(✅): GI, appetite, esophagus, pee, back (against wall/door for support), lips. Lips often white ❌, lips & mouth very dry at night ❌. Details...

except GI: stools loose0% :white_check_mark:, appetite a little better (:white_check_mark:), esophagus: if I’m extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:, finger tips: better. (:white_check_mark:). Lip soreness better since fungal cream (:white_check_mark:), but lips still often white, esp. when pressed, meaning overexertion according to my wife (:x:). Still often thirsty / dry lips & mouth (:x:)

Click for details on Weather: sun nauseating30% ❌, unwell10% ✅/❌, last seizures Jun 6th 2x, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last esophagus block: May 31st, before that Apr 4th (probably more often). Jaw pain from tooth problems: May 10th till broken filling was taken out May 22nd.

Touch: :white_check_mark: Covid: :x: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:/:x:. Outdoors almost all day now, so no need for daylight lamp, if the sun becomes too bright and warm I do something in the cellar or the shade, making myself at home there.
Last focal seizures: June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more.

Treatments

Last doc update June 13th: MY TOOTH/JAW INFLAMMATION HAS GOT CONSIDERABLY LESS SINCE DECEMBER, SO I CAN KEEP THE TOOTH, and regular inflammation between the teeth is independent of the jaw and can be improved by renewing and decreasing the edges of the filling concerned, appt on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. Self-treatments & supps stable - May 15th: stretches helping wrists, not enough back exercises, and colostrum not tolerated, creatine next. Click for details.
Click for details: Update May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 6th: This has hardly changed. Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m. Keeping to schedule TODAY: OK. May 25th: Back on silymarin. no creatine yet, colostrum 2x on one day was bad. Praps ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today: No.
Lessons in self-care #692 Lots of self-care. Risk meeting kids met with that.
Reasons to be cheerful #742 Loads. a) Baby blackbird often near me. b) Tooth filling wasn’t too bad. c) MY TOOTH INFLAMMATION HAS GOT CONSIDERABLY LESS SINCE DECEMBER, SO I CAN KEEP THE TOOTH! (Can’t say that often enough.) d) Kids came near us, so I could meet for 30’, and then leave my wife to it, but had to use face and gestures.
Simplified #141 Loads. Ravelling and unravelling the electric cable.
Foggies: Very slow, slow talking, not always full control, but sometimes 100%.

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Summary AND Tuesday night:

2023-06-13/14 Tuesday night (CHANGING ENTRIES FROM NIGHT/DAY TO DAY/NIGHT, so that I can finish the entry in morning daylight instead of sleeping time. I do “unblue” my laptop at night, but who knows. Also I get distracted and out of sync. My reason for putting the night before the day was because how I sleep influences the daytime more than the other way. Also because writing a diary is something people usually do “at the end of the day”. But it’s more practical & healthy keeping it the other way round.)

SLEEP (click for details): 6h57, up 4x (1h30), most deep. Had forgotten A2+A3-GABA again, put a reminder in my A4-A8-box now. ✅ ➔ Feeling 80/70/60% well, Ache 2 of 7 ❌, getting up: 60%/2 for about an hour, then better, after moving, supps, cold showering ❌, what the heck is this sinus headache, it seems different to what everyone else has, like migraines. Nostrils 5% stuffy 100% of the night ✅. No sweating ✅.

rup0.2mg A3 A4:0 teeth0 p0 HWB#0 Sleep 22:45- 3rd # is LBU
0:00 41’ 80%/2/15% p0 st3 sip fw2’ fl35’ deep/ air/ A4/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s5/0% sinuses0% headache0% sore throat20% nausea0% stomach0% tongue5% stools0 loose0% kg drymouth 30% dryhands 20% zombie10% stings50%
1:10 35’ 6 80%/2/15% p0 st3 sip fw2’ fl5’ deep/ air/ A5:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s5/0% sinuses0% headache0% sore throat20% nausea0% stomach0% tongue5% stools0 loose% kg drymouth 30% dryhands 20% zombie10% stings50%
4:06 8’ 60%/2/15% p0 st2 sip fw4’ fl0’ deep/ air/ A5 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s5/0% sinuses0% headache0% sore throat30% nausea40% stomach30% tongue15% stools0 loose% kg drymouth 30% dryhands 20% zombie10% stings50%
5:45 6’ 70%/2/15% p0 st2 sip fw2’ fl0 deep/ air/ A6 (as forgotten A2+A3-GABA again!) plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s0/5% sinuses0% headache0% sore throat15’ nausea0->40% stomach0->30% tongue15% stools0 loose% kg drymouth 30% dryhands 20% zombie10% stings30%
-7:12 60%/2/15% p0 st2 sip fw2’ fl0 deep/ air/ A7:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s0/5% sinuses0->30% headache0->30% sore throat15’ nausea0->0% stomach0->30% tongue15% stools0 loose% kg drymouth 30% dryhands 20% zombie10% stings30%

Sum: 7h12+1h15-(41+35+8+6=)90 = 8h27-1h30 = 6h57, up 4x (1h30), most deep. Had forgotten A2+A3-GABA again, put a reminder in my A4-A8-box now.

OK, while I’m at it, I’ll write…

A summary of the last 4 years:

Fibro Dec 2019, a fairly sudden full blown continual flare, but 100s of mostly continual or recurring self-treatments keep most symptoms under control except exhaustibility/Ache, getting “activity energy” of up to 35% - originally… then:

MCAS triggered by CoV-jab #1: Dec 2021, #2, Feb 2022, #3 Nov 2022. Each of these brought my energy down to 5%, slowly up thru time and treatments, but every jab took a further 5% of energy, so down to 35%-5%-5%-5%=20%.

Jan 2023 I tried a TCM naturopath, thru which I lost my appetite, sort of recovered after stopping several attempts.

Feb 2023 a forum friend, supported by my GP thought taking T4 levo-thyroxine might help. Knowing my body I only took 5%, and that sort of gave me some energy, I think a bit more stable at about 20%, but also greatly decreased appetite, plus other side effects, so I stopped after a month.

Mar 2023 my wife got CoV and realized a bit too late, so we didn’t distance right from the start. I never tested positive, but I got fairly severe indirect symptoms for weeks. Then I started getting severe night sweats for the first time in my life, for quite a few weeks.

Apr 2023 My wife was worried about night sweats and appetite/weight, sent me to my GP. I believed these were either T4 (supported by my wife) or “CoV” or both, but my GP believed in neither. He suspected these and the loss of appetite and weight to be B-symptoms of cancer. A swelling in my mamilla and then a slightly higher PSA blood level seemed to confirm that. So he sent me to 3 places to get that sorted. The swelling was deemed harmless and disappeared again, the PSA wasn’t high enough to worry much. I’d been able to get the night sweats under control by changing my bedclothes completely, appetite a bit, weight no gain, but at least no more loss. For the cancer suspicion, I had an appointment with an oncologist, who kept my original reports for ages, altho he’d said 5 days (which had seemed unrealistic to me),

May 2023: After 5 weeks, I asked for my reports back, and was told he’d write his report “soon”, after I’d asked if I had cancer or not.

Jun 2023: :fast_forward: In another 2 weeks I’ll go for a “2nd” opinion, in case there’s any new ideas - which I doubt. In the meantime I’ve been :fast_forward: pulling my circadian rhythm forward drastically and am outdoors nearly all the day. These are from suggestions by people like Jason Prall and Ari Whitten, taking the circadian rhythm recommendations of Huberman and Shelsick further, by getting me to try getting up at 6 (Prall) and pulling eating & blogging etc. earlier (Whitten). However despite this and feeling better for it, my energy has now decreased via 14-16% to 8-12%. I suspect getting up earlier in the long run will not work if I don’t succeed in getting close to 8h of sleep. Various factors had brought sleep down to 5-7h. So that’s the reason for my changing these blog entries, so I can get to bed before 22:00. Also :fast_forward: I’m trialling intermittently micro-dosing (1-3%) my antihistamine “as needed”. And trying to find if my :fast_forward: nauseous sinus headaches have to do with histamine or something else. I get them from the last hour of sleep on, but not lying down, only AFTER getting up… The associated symptoms (like nostril involvement) don’t fit to usual descriptions of sinus headaches, altho the pain is the same.

Some background regarding my fibro and my MCAS.

I manage to get and keep many of my fibro symptoms that I’ve had during this my continual fibro full flare Dec 2019 down to zero. Just my exhaustibility and the associated severe muscular Ache have always been hard to find something for. For these, things that helped a bit, sometimes, short to mid-term, were getting my sleep pretty well restorative, all the sleep hygiene, measures like Wim Hof cold showers and breathing, cryotherapy, acupressure and Chinese acupuncture. A fibro clinic hardly helped, because I was already doing these kinds of things, but harmed cos of bad sleep and difficult different food. That’s when I realized I need connections on the web, last I knew (90s) mailing lists would have been the way. So then it became a combination of the general web & several forums (which I’m still all on), that helped me find lots of little things, see connections, and also cope. Before fibro from 2010-2019, I’d been fitter than ever before in my life, 1-2h of sports per day. At the same time I seemed to be weakened by swine flu 2011, cos every cold or flu I had then brought me down more than earlier, plus I’d started getting waves of unexplained Ache. This will have been fibro precursors.

I also have my additional conditions pretty well under control that were found in the meantime, my spinal tumour, my Schatzi ring, my high lipids & blood pressure, my jaw inflammation. The latter mainly using a lot of supps.

So up to Nov 2021 I’d been able to go to work a bit, and if it had continued that way and I’d got further treatments working, I think I would have stabilized and even been able to increase that.

CoV occurring parallel to fibro in 2020 was a blessing for quite a time, cos everything was out of sync, my “abnormality” wasn’t conspicuous. Returning to work after 10 months of trying to get things under control, very pro-actively, I started work hours low and went slow. Being able to work online seemed good, but I was too ambitious, perfectionist, and foggy, and crashed with that early 2021, so had to reduce the increase in work. A few hours 4 days a week was the maximum. In hindsight my need of oxygen was probably counter-acted by the high amount of mask wearing. (Due to my fragile state, I do still wear a mask whenever people get too close longer than a minute, but can’t socialize long anyway, with or without. And I normally meet with people outside. Wearing a mask does cause quite a few problems for quite a few hours, something I didn’t realize back then, but couldn’t do anything about anyway.) I delayed the CoV-jabs as long as I could, but finally felt it necessary as one of the last here, in Dec 2021. Now knowing my way around the web, info (polls) on healthrising had supported my hunch that a person with my amount of intolerances would have difficulty with CoV as well as with the jabs - so it the choice between a rock and a hard place, finding the least bad variety. And that’s where I ended up, with sort of “post-vac”. The first jab was much worse than even healthrising’s polls had suggested, which was a 2 week flare. My reaction started an hour after the jab and the 25 symptoms in the first week gradually dwindled to only about 10. Of these I hadn’t recovered after day 72, but jab #2 was getting pressing, so I got that then. That took many months and I’ve never recovered from jab #1, nor from jab #2. Each took me around 5%+ energy, as I try to put it into numbers. Starting from 35% from fibro, so down to 25%. Shortly before jab #2 I re-read the healthrising experts and saw that they were referring to a condition called MCAS. Reading that, I felt that fitted pretty well to my life-long intolerances of GI and skin. So I thought I’d try to go to my allergist, who luckily also had the same feeling, gave me a questionnaire, which unofficially supported / confirmed my self-diagnosis. She also supported me saying that I wouldn’t tolerate all the meds that are typically recommended for MCAS.

However the antihistamine she recommended to try sort of took the brunt off of the 2nd jab, changed things, but not my further decline. I did manage again to cope with some of the slightly different symptoms, cos I’d now realized what is important, and had started with a lot of Hoffman’s MCAS supps.

The 3 CoV-jabs triggered 3 long-term flares of the MCAS I’ve always had, which has added to the exhaustibility that fibro started off in 2019/20.

2023-06-14 Wednesday (DAY → NIGHT) - paradigm shift coming into place day #11, further drastic changes: I need to change these entries so that I don’t finalize them in the evenings, to reduce my screen time then. But when, in the mornings or in the afternoons? Mornings after the night is “logical”, so FROM NOW ON THE NIGHT WILL FOLLOW THE DAY INSTEAD OF PRECEDE IT. So I’ve put in Tuesday night separately, and then carry on with Wednesday and Wednesday night.

Ate at 20:00 :x: :14:00 19:30 (:white_check_mark:), slept 22:45 :x: 21:40 :white_check_mark:, 0%+1%+1% of my antihistamine. My nauseous burning sinus headache only comes up when I get up, not while lying sleeping or dozing, same goes for the night nauseous stomach ache. Why, does that explain anything, can I find something about that? Sinus headaches - if not from the sinuses (mucus) etc. - are most often migraines. Best from what healthline suggests is oversleeping. But then they’d get worse lying down or bending forward or moving, mine don’t. Thursday morning at 5 I felt a sinus headache coming up and thought it’d get worse if I continue sleeping, then seeing I’d only slept 6h I did lie down again, but was fully awake, so did get up BEFORE 6 FOR THE FIRST TIME. Maybe that’s good. Only 4x GABA at night, cos I forgot A2+A3 again. :roll_eyes:

Exhaustibility “90%". Slow and fairly nauseous in the morning, I think from the dentist. Click for details:

R rest: 100% exhaustion 50% of the time (8h),
VS very slow: 60% exhaustion 25% of the time (4h),
S slow: 40% exhaustion 25% of the time (4h),
M medium: 20% exhaustion 0% of the time,
Q quick: 0-10% exhaustion 0% of the time
(pre-fibro: 0% exhaustion 100% of the time.)

10 day antihistamine trial (intermittent/low dose) and 6 weeks of weighing without increase
Summary:
Testing antihistamine: 0.8mg (8%) further for gnat bite itch, praps sleep, temperature and pee. 5th 19:00 0.2mg/ sinus-headache only 10%, with sinuses at 21:30 (or from ripe banana bit) 20% itch 10% (no new bites). 6th 19:00 0.2mg 7th: 0.2, 8th: 0.1, 9th: 0, 10th: 0, 11th 13:20 0.1mg. 18:45 0.1mg. 12th 13:00 0.1mg. then till 13th 5x0.1mg. 14th 2x0.1mg at night.
Weighing irregularly if I’m sustainably up from 74.2kg. Morning of the 15th: No, I’m at 74.4.kg

Food: 1st: 100% 2nd: 85% 3rd: 85%

Sleep 90% / Feeling 70-80%-ish / nausea 0-20%, fog 30%

New habits (and see "simplified"). 'Early outside bird' with lots of early sun, light & air all day now NEEDS to pull his schedule forwards. ✅

:ambulance: Bed 21:30-5:30. (:white_check_mark:)
:ambulance: Note thoughts and emotions (ACT) (:white_check_mark:)

Today's FM symptoms unchanged from WPI 11 & SSS 9-1=8, except....: +1: headache (Click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (30-60%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (92%), insomnia 2 (10%), fog 2 (30%), headache 1?) (0-20%), GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20% decreasing to 8-12% by end of May from new symptoms, partly from CoV itself. June 3rd: More careful in countryside (mask when cutting grass for guinea pigs) and with histaminey foods is helping (taking 2x1/d DAO, stopped soy & white beans & yeast spread, baked beans OK yesterday, halving bananas again). Click for developments:

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

SLEEP (click for details): 6h31, up 5x (1h13), almost all deep, except waking up at 5:20 and only dozing 9', also trying another 10' of dozing after a 2nd cold shower. Maybe the sleep breaks were from trying to pull forward? But why am I awake so early? 74.4 digital, 78-79 analog?!) ✅ ➔ Feeling ?80% well, Ache 2 of 7 ❌, getting up: ?80%/2 ✅. Nostrils ?10% stuffy 100% of the night ✅. No sweating ✅.

rup0.2mg A3 & meal & screen time too late :x: :x: :x:, tired :white_check_mark:. A4:0 teeth0 p0 HWB#0 gel/ Sleep 21:45- 3rd # is LBU
rup0 A3 A4:0 teeth0 p0 HWB#0 Sleep 21:45- 3rd # is LBU
23:03 4’ 80%/2/15% p0 st3 sip fw1’ deep/ air/ A4/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s0/5% sinuses0% headache0% sore throat15% nausea0% stomach0% tongue10% stools0 loose% kg drymouth 25% dryhands 20% zombie20% bites10%
23:20 4’+6+8 (back ex & FCS) 80%/2/15% p0 st3 sip fw1’ deep/ air/ A4/ plugs0 cream0 gel/ HWB#(0) Bedclothes: wet0% teeth0 FA/CS#1
(nostril/s0/5% sinuses0% headache0% sore throat15% nausea0% stomach0% tongue10% stools0 loose% kg drymouth 25% dryhands 20% zombie20% bites10%
0:10 43’ 6 (still only deep dozing, so 0.1mg antihistamine) 80%/2/15% p0 st3 sip fw1’ deep/ air/ A5/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 (FA/CS#1)
(nostril/s0/5% sinuses0% headache0% sore throat10% nausea0% stomach0% tongue10% stools0 loose% kg drymouth 25% dryhands 20% zombie20% bites10%
3:10 4’ 70%/2/15% p0 st3 sip fw1’ deep/ air/ A6/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 (FA/CS#1)
(nostril/s0/5% sinuses0% headache0% sore throat30% (socks + trousers were off, now on again) nausea0% stomach0% tongue10% stools0 loose% kg drymouth 30% dryhands 20% zombie40% bites10%
4:12 4’ 70%/2/15% p0 st3 sip fw1’ deep/ air/ A7/ plugs0 cream0 gel/ HWB#(0) Bedclothes: wet0% teeth0 (FA/CS#1)
(nostril/s0/5% sinuses0% headache10% sore throat30% (socks + trousers were off, now on again) nausea0% stomach0% tongue10% stools0 loose% kg drymouth 35% dryhands 20% zombie40% bites10%
-5:29 15’ 70%/2/15% p0 st3 sip fw1’ deep/ air/ A8/ also rup0.1 in case that helps the headache not come up, plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#)
(nostril/s0/5% sinuses10% headache20% (even while lying down, so decided to get up this early) sore throat30% (despite socks + trousers on) nausea0% stomach0% tongue10% stools0 loose% kg: 74.4 digital, 78-79 analog?!) drymouth 35% dryhands 20% zombie20% bites10%

Sum: 5h29+2h15-(4+18+43+4+4=)73 = 7h44-1h13 = 6h31, up 5x (1h13), almost all deep, except waking up at 5:20 and only dozing 9’, also trying another 10’ of dozing after a 2nd cold shower. Maybe the sleep breaks were from trying to pull forward? But why am I awake so early? 74.4 digital, 78-79 analog?!)

ACTIVITIESACHE: 80%/2 :white_check_mark:, TT 1:1 (moving 5%, talking incl. counting 10%,) ➔ 80%/3 :white_check_mark:, gardening/moving ➔ 80%/2-3 :white_check_mark:, talking ➔ 80%/2-3 :white_check_mark:.

ACTIONS ➔ PAINS ✅/(✅): GI, appetite, esophagus, pee, back (against wall/door for support), lips. Lips often white ❌, lips & mouth very dry at night ❌. Details...

except GI: stools loose0% :white_check_mark:, appetite a little better (:white_check_mark:), esophagus: if I’m extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:, finger tips: better. (:white_check_mark:). Lip soreness better since fungal cream (:white_check_mark:), but lips still often white, esp. when pressed, meaning overexertion according to my wife (:x:). Still often thirsty / dry lips & mouth (:x:)

Click for details on Weather: sun nauseating10% ✅, unwell10% ✅, last seizures Jun 6th 2x, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last esophagus block: May 31st, before that Apr 4th (probably more often). Jaw pain from tooth problems: May 10th till broken filling was taken out May 22nd.

Touch: :white_check_mark: Covid: :x: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:/:x:. Outdoors almost all day now, so no need for daylight lamp, if the sun becomes too bright and warm I do something in the cellar or the shade, making myself at home there.
Last focal seizures: June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more.

Treatments

Last doc update June 13th: MY TOOTH/JAW INFLAMMATION HAS GOT CONSIDERABLY LESS SINCE DECEMBER, SO I CAN KEEP THE TOOTH, and regular inflammation between the teeth is independent of the jaw and can be improved by renewing and decreasing the edges of the filling concerned, appt. on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. Self-treatments & supps stable - May 15th: stretches helping wrists, not enough back exercises, and colostrum not tolerated, creatine next. Click for details.
Click for details: June 13th: MY TOOTH/JAW INFLAMMATION HAS GOT CONSIDERABLY LESS SINCE DECEMBER, SO I CAN KEEP IT :partying_face:, and regular inflammation between the teeth is independent of the jaw and can be improved by renewing and decreasing the edges of the filling concerned, appt on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 6th: This has hardly changed. Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m. Keeping to schedule TODAY: OK? May 25th: Back on silymarin. no creatine yet, colostrum 2x on one day was bad. Praps ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today: No.
Lessons in self-care #693 It’s important now to get meals forward, the blog, prepare new supps earlier, back exercises earlier, everything by midday at the latest, if not first thing, which is probably cleverer.
Reasons to be cheerful #743 Loads. a) 4:12 Blackbird singing full throttle opposite my bedroom window, intricate patterns. b) Two pigeon feeding near each other for a while, cos I put out new food in both places. c) A family of 4 great tits in the feeding “boxes” and d) A family of blackbirds, 4 setting closely next to each other almost like swallows do! e) Yesterday new: clover, easy, but we didn’t have any! And a new sort of bellflower.
Simplified #142 Loads. Like these entries - which is generally changing my life a lot at the moment. That doesn’t always feel like I’m simplifying, but my changes to me almost always come with simplification, because breaking up old patters means thinking up the best way to do new things or old things in new, improved ways.
Foggies: A little.

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

2023-06-15 Thursday - paradigm shift coming into place day #12. Ate at 7:00 13:30 19:00 :white_check_mark:, slept 22:00 :white_check_mark:, 0.1% of my antihistamine (can’t remember when, some time yesterday; praps taking it at night might have helped the headache?).

Exhaustibility “90%". Click for details (8h? rest):

R rest: 100% exhaustion 50% of the time (8h),
VS very slow: 60% exhaustion 25% of the time (4h),
S slow: 40% exhaustion 25% of the time (4h),
M medium: 20% exhaustion 0% of the time,
Q quick: 0-10% exhaustion 0% of the time
(pre-fibro: 0% exhaustion 100% of the time.)

10 day antihistamine trial (intermittent/low dose) and 6 weeks of weighing without increase
Summary:
Testing antihistamine: 0.8mg (8%) further for gnat bite itch, praps sleep, temperature and pee. 5th 19:00 0.2mg/ sinus-headache only 10%, with sinuses at 21:30 (or from ripe banana bit) 20% itch 10% (no new bites). 6th 19:00 0.2mg 7th: 0.2, 8th: 0.1, 9th: 0, 10th: 0, 11th 13:20 0.1mg. 18:45 0.1mg.12th 13:00 0.1mg. then till 13th 5x0.1mg. 14th 2x0.1mg at night. 15th in the daytime, maybe should’ve at night.
Weighing irregularly if I’m sustainably up from 74.2kg.

Food: 1st: 100% 2nd: 80% 3rd: 80%

(Sleep before: 80%) Feeling 80%-ish / nausea 0(-20)%, fog 30%, sleep after: 90%
Successes: :trophy: :zap: Learnt: :student:

New habits (and see "simplified"). 'Early outside bird' with lots of early sun, light & air all day now NEEDS to pull his schedule forwards. ✅

:ambulance: Bed 21:30-5:30. (:white_check_mark:)
:ambulance: Note thoughts and emotions (ACT) (:white_check_mark:)

Today's FM symptoms unchanged from WPI 11 & SSS 9-1=8, except....: +1: headache (sinus h. at night) (Click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (30-60%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (92%), insomnia 2 (10%), fog 2 (30%), headache (1) (0-60%), GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20% decreasing to 8-12% by end of May from new symptoms, partly from CoV itself. June 3rd: More careful in countryside (mask when cutting grass for guinea pigs) and with histaminey foods is helping (taking 2x1/d DAO, stopped soy & white beans & yeast spread, baked beans OK yesterday, halving bananas again). Click for developments:

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

SLEEP (click for details): 7h15, up 4x (20'), almost all deep, +6' = 7h21. ✅ (Bit short again). Open window at 1:00 didn't improve headache, made it worse, together with sore throat. If leaving window open really does make it worse, I should try tomorrow night not opening it. Doubt it's the high dose passiflora, but I could trial that. Nostrils were pretty good tonight, so it's not them either. ➔ Feeling 80% well, Ache 2 of 7 ❌, getting up: 80%/2 ✅. Nostrils 5% stuffy 100% of the night ✅. No sweating ✅.

rup0 A3 A4:0 teeth0 p0 HWB#0 Sleep 22:00- 3rd # is LBU
23:40 5’ 80%/2/15% p0 st3 sip fw2’ deep/ air/ A4/ plugs0 cream0 gel/ HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s5/0% sinuses5% headache0% sore throat20% nausea0% stomach0% tongue5% stools0 loose% kg drymouth30% dryhands20% zombie10%
0:55 5’ 70%/2/15% p0 st3 sip fw2’ deep/ air//-> A5/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s5/0% sinuses15% headache15% sore throat15% nausea0% stomach0% tongue5% stools0 loose% kg drymouth30% dryhands20% zombie10%
2:37 5’ 70%/2/15% p0 st3 sip fw2’ deep/ air->/-> A6/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s5/0% sinuses15% headache20% sore throat15% nausea0% stomach10% tongue5% stools0 loose% kg drymouth40% dryhands20% zombie10%
4:05 5’ 60%/2/15% p0 st3 sip fw2’ deep/ air->// A7/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s5/0% sinuses15% headache30% sore throat20% nausea30% stomach10% tongue10% stools0 loose% kg drymouth30% dryhands20% zombie10%. Open window didn’t improve headache, made it worse, together with sore throat.
-5:35 5’ 50%/2/15% p0 st3 sip fw2’ deep/ air->// A7/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s5/0% sinuses25% headache60% sore throat20% nausea50% stomach60% tongue10% stools0 loose% kg drymouth30% dryhands20% zombie10%. If leaving window open really does make it worse, I should try tomorrow night not opening it.
(-5:48) = +6’
Sum: 5h35+2h-(5+5+5+5=)20 = 7h35-20 = 7h15, up 4x (20’), almost all deep, +6’ = 7h21. Open window at 1:00 didn’t improve headache, made it worse, together with sore throat. If leaving window open really does make it worse, I should try tomorrow night not opening it. Doubt it’s the high dose passiflora, but I could trial that.

ACTIVITIESACHE: 80%/2 :white_check_mark:, TT 1:1 (moving 10%, talking incl. counting 10% :x:) ➔ 80%/3 :white_check_mark:, gardening/moving ➔ 80%/2 :white_check_mark:, talking ➔ 80%/3 :x:.

ACTIONS ➔ PAINS ✅/(✅): GI, appetite, esophagus, pee, back (against wall/door for support), lips. Lips often white ❌, lips & mouth very dry at night ❌. Details...

except GI: stools loose0% :white_check_mark:, appetite a little better (:white_check_mark:), esophagus: if I’m extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:, finger tips: better. (:white_check_mark:). Lip soreness better since fungal cream (:white_check_mark:), but lips still often white, esp. when pressed, meaning overexertion according to my wife (:x:). Still often thirsty / dry lips & mouth (:x:)

Click for details on Weather: sun nauseating10% ✅, unwell10% ✅, last seizures Jun 6th 2x, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last esophagus block: May 31st, before that Apr 4th (probably more often). Jaw pain from tooth problems: May 10th till broken filling was taken out May 22nd.

Touch: :white_check_mark: Covid: :x: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:/:x:. Outdoors almost all day now, so no need for daylight lamp, if the sun becomes too bright and warm I do something in the cellar or the shade, making myself at home there.
Last focal seizures: June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more.

Treatments

Last doc update June 13th: MY TOOTH/JAW INFLAMMATION HAS GOT CONSIDERABLY LESS SINCE DECEMBER, SO I CAN KEEP IT, and regular inflammation between the teeth is independent of the jaw and can be improved by renewing and decreasing the edges of the filling concerned, appt on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. Self-treatments & supps stable - May 15th: stretches helping wrists, not enough back exercises, and colostrum not tolerated, creatine next. Click for details.
Click for details: Update June 13th: MY TOOTH/JAW INFLAMMATION HAS GOT CONSIDERABLY LESS SINCE DECEMBER, SO I CAN KEEP THE TOOTH , and regular inflammation between the teeth is independent of the jaw and can be improved by renewing and decreasing the edges of the filling concerned, appt on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 6th: This has hardly changed. Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m. Keeping to schedule TODAY: OK. May 25th: Back on silymarin. no creatine yet, colostrum 2x on one day was bad. Praps ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today:
Passiflora inhibits pro-inflammatory cytokines and histamine (at least the edulis versions, so I doubt the night/morning headache is caused by too much of it. It is used most commonly for insomnia, anxiety as well as epilepsy.
Lessons in self-care #694 Kept up the schedule pretty well, got to get used to the new times, and going radical is the best way to do that. So not think 13:00 is OK for midday, if I ate at 7 and I can eat again at 12:00 (which will then get to be 13:00) and at 17:00 will get to be 18:00.
Reasons to be cheerful #744 Loads. Birds & plants in the morning I’d written yesterday. b) Female blackbird saw me seeing her in ivy pecking around, then flew towards me to my tree root sculpture right next to me, listened, and then went on. c) Male blackbird singing on the shed above that ivy. d) Same female blackbird just flew over me with a big twig in her beak: They’re building a nest here! e) A baby blackbird - really baby, needs a few attempts to jump 20cm, how sweet!
Simplified #143 Loads. Morning routine to not get in the way of my wife.
Foggies: OK-ish.

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

2023-06-16 Friday - paradigm shift coming into place day #13. Ate at 7:00 :white_check_mark:13:30 :x: 19:00 :white_check_mark:, slept 21:55 :white_check_mark:, 0% of my antihistamine :white_check_mark:, no screen time :white_check_mark:, windows shut: brilliant sleep :white_check_mark:, no sinus headache :white_check_mark::white_check_mark: :white_check_mark: (but still no energy increase on Saturday), passiflora 2 not 3 :white_check_mark:

Exhaustibility “90%". Click for details (8h rest)

R rest: 100% exhaustion 50% of the time (8h),
VS very slow: 60% exhaustion 25% of the time (4h),
S slow: 40% exhaustion 25% of the time (4h),
M medium: 20% exhaustion 0% of the time,
Q quick: 0-10% exhaustion 0% of the time
(pre-fibro: 0% exhaustion 100% of the time.)

10 day antihistamine trial (intermittent/low dose) and 6 weeks of weighing without increase
Summary:
Testing antihistamine: 0.8mg (8%) further for gnat bite itch, praps sleep, temperature and pee. 5th 19:00 0.2mg/ sinus-headache only 10%, with sinuses at 21:30 (or from ripe banana bit) 20% itch 10% (no new bites). 6th 19:00 0.2mg 7th: 0.2, 8th: 0.1, 9th: 0, 10th: 0, 11th 13:20 0.1mg. 18:45 0.1mg. 12th 13:00 0.1mg. then till 13th 5x0.1mg. 14th 2x0.1mg at night. 15th 0.1mg in the daytime, maybe should’ve at night. 16th: 0. But no sinus-headache
Weighing irregularly if I’m sustainably up from 74.2kg. I’m not.

Food: 1st: 110% :white_check_mark: 2nd: 85% (:white_check_mark:) 3rd: 85% (:white_check_mark:) - didn’t eat much in the evening by mistake, but not hungrier at night or in the morning.

(Sleep before: 90%) Feeling 70%-ish / nausea 0-30%, fog 30%, sleep after: 95%
Successes: :trophy: :zap: What if it’s the short opening of the window at night, as the sinus headache got worse when I left it open longer?
Learnt:
:student: Others’ sinus headaches and pollen allergy with open window don’t fit from the symptoms, but then why would they? :roll_eyes:
:student: Antihistamine might improve IBS, they’re testing - see development.

New habits (and see "simplified"). 'Early outside bird' with lots of early sun, light & air all day now NEEDS to pull his schedule forwards. ✅

:ambulance: Bed 21:30-5:30. (:white_check_mark:)
:ambulance: Note thoughts and emotions (ACT) (:white_check_mark:)

Today's FM symptoms unchanged from WPI 11 & SSS 9-1=8, except....: +1: headache (Click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (30-60%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (90%), insomnia 2 (10%), fog 2 (30%), headache (1) (0-30%), GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20% decreasing to 8-12% by end of May from new symptoms, partly from CoV itself. June 3rd: More careful in countryside (mask when cutting grass for guinea pigs) and with histaminey foods is helping (taking 2x1/d DAO, stopped soy & white beans & yeast spread, baked beans OK yesterday, halving bananas again). Click for developments:

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

SLEEP (click for details): 7h43, up x (19'), all deep. Hardly screen time the hours before. Windows SHUT: NO SINUS HEADACHE. The upper nostril closed 40% at 4, but opened quickly once I got up. Doubt it's what I ate. ✅ ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅. Nostrils 0-50% stuffy 100% of the night ✅. No sweating ✅. Almost always manage a fast cold shower FCS shortly after getting up now. Sting itch 20% ✅

Meal time (:white_check_mark:), screen time :white_check_mark:, tired (:white_check_mark:)
rup0 A3 A4:0 teeth0 p0 HWB#0 Sleep 21:55- 3rd # is LBU
23:08 4’ 80%/2/15% p0 st3 sip fw2’ deep/ air0 A4/ Rup0.1:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s5/0% sinuses5% headache0% sore throat20% nausea0% stomach0% tongue5% stools0 loose% kg drymouth 30% dryhands 20% zombie10% sting itch20%

0:22 5’ 60%/2/15% p0 st3 sip fw2’ deep/ air0 A5/ Rup0.1:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s5/0% sinuses5% headache0% sore throat20% nausea0% stomach30% (since evening meal) tongue5% stools0 loose% kg drymouth 30% dryhands 20% zombie10% sting itch20%

2:10 5’ 70%/2/15% p0 st3 sip fw2’ deep/ air0 A6/ Rup0.1:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s5/0% sinuses5% headache0% sore throat20% nausea5% stomach40% (since evening meal) tongue20% stools0 loose% kg drymouth30% dryhands 20% zombie10% sting itch20%

4:25 NOSTRILS BUT NO SINUSES AFTER LEAVING WINDOWS SHUT: HISTAMINE? 5’ 70%/2/15% p0 st3 sip fw2’ deep/ air0 A7/ Rup0.1:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth/ FA/CS#0
(nostril/s0/40% LYING ON LEFT DOESN’T HELP KEEPING RIGHT NOSTRIL OPEN: WHAT ABOUT ON RIGHT? THROAT, TONGUE; DRY OK. ALTHO NO TROUSERS. TOO FEW SOCKS? OR TOO WARM? sinuses5% headache0% sore throat10% nausea5% stomach20% (since evening meal) tongue15% stools0 loose% kg drymouth20% dryhands 20% zombie10% sting itch20%

-5:57 HARDLY SINUS HEADACHE AFTER KEEEPING WINDOWS CLOSED, NOSTRILS FREE ONCE I GET UP → FCS#1
Sum: 5h57+2h05-(4+5+5+5=)19 = 8h02-19 = 7h43, up x (19’), all deep. Windows SHUT: NO SINUS HEADACHE. The upper nostril closed 40% at 4, but freee once I get up. Doubt it’s what I ate.

ACTIVITIESACHE: 80%/2 :white_check_mark:, TT 2:0 (moving 5%, talking incl. counting 10%,) ➔ 80%/3 :white_check_mark:, gardening/moving ➔ 80%/2-3 :white_check_mark:, talking for 5’ at a birthday afternoon party visit of 30’ ➔ 80%/6 :x:.

ACTIONS ➔ PAINS ✅/(✅): GI, appetite, esophagus, pee, back (against wall/door for support), lips. Lips often white ❌, lips & mouth very dry at night ❌. Details...

except GI: stools loose0% :white_check_mark:, appetite a little better (:white_check_mark:), esophagus: if I’m extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:, finger tips: better. (:white_check_mark:). Lip soreness better since fungal cream (:white_check_mark:), but lips still often white, esp. when pressed, meaning overexertion according to my wife (:x:). Still often thirsty / dry lips & mouth (:x:)

Click for details on Weather: sun nauseating30-40% ❌, unwell30-40% ❌, last seizures Jun 16th, Jun 6th 2x, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last esophagus block: May 31st, before that Apr 4th (probably more often). Jaw pain from tooth problems: May 10th till broken filling was taken out May 22nd.

Touch: :white_check_mark: Covid: :x: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:/:x:. Outdoors almost all day now, so no need for daylight lamp, if the sun becomes too bright and warm I do something in the cellar or the shade, making myself at home there.
Last focal seizures: Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more.

Treatments

Last DOC update June 13th: Gum inflammation down (to 20% from December), keeping tooth, but renewing filling on the 23rd. Waiting for onco report, start asking for "2nd" opinion around 26th. SELF-TREATMENT & SUPPS stable - June 15th/16th: 42 supps, 470€/m +20€/m cps. Creatine? Click for details...
Click for details: Update June 13th: Gum inflammation down (to 20% from December), keeping tooth, but renewing filling on the 23rd. May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th: 42 supps, costs 470€/m +20€ cps. Schedule TODAY: OK. Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs (June 16th):

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no EGCg or pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jun 16th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 0x1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0.1g, myo-inositol 1x2x0.5g/1!d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 3x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x1x.5g, resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (2+2+1)x0.6=3.0g (as much as B3). Plus rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated Jun 16th.
“16:00” preparing pills
“17:30” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xvC#1, 2Cr#1, PF#2, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1% Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc.
B=11/ ’ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +1-2The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=20 with meal: 1xB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 2xTMG#2 2xEleu 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jun 16th

Pf: A1+A2+A3, vB2: 1C,1D, 1A. vB3: 2C,2D.1A, vB5: C,DA. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3,a4, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. (pine: C,D.) Qc: B.E.A1.A3. Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 6MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, Ru, 2 Sa, Sily, 2Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jun 16th: correct?
A1=7+1 Pf#1 Qc1#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2, Ga#1:0.3g, Hon#1, Q10, 0Se, 1TMG#1 (?Rup). = 12?
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, 0EGCg, Fev/MSM#1, Qc#3, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#4 Gi#2 Ol#1 0Pin#1 2TMG#2 2xEleu 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=13 vB2#3 "2"vB3#3 vB5#3 3xCr#3 Ga#5 Gi#3 Ol#2 0Pin#2 2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

Development

Whilst I’ve learnt earlier sleep with no screens before has its charm, it only seems to be doing something for my sleep, not for energy or anything else.
‘Research’ today:
IBS may be helped by an antihistamine and in future by mast cell blocking:

45 authors, incl. Boeckxstaens: 20% IBS sparked by infection. Tested: Infections can make susceptible for certain food triggers by breaking the immune defence. Reversible.
Esp. via mast cells / histamine. No increase in mast cells. Instead more IGE+ mast cells close to their nerve fibers. Closer → more pain. Local in the gut, systemic food allergy would be at the opposite end of the spectrum.
The immune reaction is quite localized, however – it only sparks a reaction in the gut itself (making blood tests iffy) and then, and perhaps most importantly, only affects the nerves. That makes it hidden.
Treatment: Mainly now testing antihistamines. Better would be to block the mast cells for everything they release.
e.g. Chheda, Jill Carnahan: supps like I take & H1-/H2-blockers.

Lessons in self-care #695 To discourage a talkative mate from wanting to talk too much I use sign language, and only talk in selected moments. Laughing is no problem, it’s good for me (“vagus nerve”).
Reasons to be cheerful #745 Loads. a) I think I can see the blackbird’s nest!? b) Nice new sown flowers, the first yellow-orange in the garden. c) I sniggered whilst imagining I could just walk away from the mess I met in the kitchen… d) At 21:55 one of our pigeons visited us for grains on our balcony and then just sat there looking in, despite door open.
Simplified #144 Loads: Supps. Blog Entries.
Foggies: My wife had balanced a board on something. I thought I could tidy up everything around and slowly work myself towards unbalancing it. Instead I lost control and I don’t know how my pot with steamed carrots and sweet potatoes with all olive oil and mild spices crashed on the vinyl. It hurt in my head. But I kept calm. Cleaning up wasn’t that much of a problem. Doubt I’ll eat it, but maybe I can clean it. Had to laugh: reason to be cheerful.

Click for links to "summary" on June 14th 2023, jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-06-17 Saturday - paradigm shift coming into place day #14. Ate at 8:00 (:white_check_mark:) 14:00 (:white_check_mark:) 19:15 (:white_check_mark:), slept 22:05 :white_check_mark:, 0% of my antihistamine (:white_check_mark:), screen time before sleep (:x:): even harmless and little made me tense for half the night, shutting windows :white_check_mark: → stops sinus headache :white_check_mark:, 2/ Passiflora instead of 3.

Exhaustibility “90%". Click for details ("8h rest"):

R rest: 100% exhaustion 50% of the time (8h),
VS very slow: 60% exhaustion 25% of the time (4h),
S slow: 40% exhaustion 25% of the time (4h),
M medium: 20% exhaustion 0% of the time,
Q quick: 0-10% exhaustion 0% of the time
(pre-fibro: 0% exhaustion 100% of the time.)

10 day antihistamine trial (intermittent/low dose) and 6 weeks of weighing without increase
Summary:
Testing antihistamine: 0.8mg (8%) further for gnat bite itch, praps sleep, temperature and pee. 5th 19:00 0.2mg/ sinus-headache only 10%, with sinuses at 21:30 (or from ripe banana bit) 20% itch 10% (no new bites). 6th 19:00 0.2mg 7th: 0.2, 8th: 0.1, 9th: 0, 10th: 0, 11th 13:20 0.1mg. 18:45 0.1mg. 12th 13:00 0.1mg. then till 13th 5x0.1mg. 14th 2x0.1mg at night. 15th in the daytime, maybe should’ve at night. 16th: 0. 17th: 0.
Weighing irregularly if I’m sustainably up from 74.2kg. I’m not. (:x:)

Food: 1st: 100% :white_check_mark: 2nd: 85% (:white_check_mark:) 3rd: 85% (:white_check_mark:)

(Sleep before 95% :white_check_mark:) Feeling 80%-ish (:white_check_mark:) nausea 0-20% (:white_check_mark:), fog 20% (:white_check_mark:), sleep after 80% :white_check_mark:/:x:
Successes: :trophy:
:zap: Realized that mayoclinic and clevelandclinic will of course not mention MCAS on the list of things causing sinus headaches, and not describe exactly my symptoms!
:zap: If this now works I could try opening windows again and see if the headaches come again. Well - 2nd night, maybe I should wait a bit…
Learnt: :student: Whitten’s energy blueprint videos hardly digged deeper, but was worth it all the same.

New habits (and see "simplified"). 'Early outside bird' with lots of early sun, light & air all day now NEEDS to pull his schedule forwards. ✅

:ambulance: Bed 21:30-5:30. (:white_check_mark:)
:ambulance: Note thoughts and emotions (ACT) (:white_check_mark:)

Today's FM symptoms unchanged from WPI 11 & SSS 9-1=8, except....: +0 ✅. (Click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (30-60%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (90%), insomnia 2 (5%?), fog 2 (30%), headache (0) (0%), GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20% decreasing to 8-12% by end of May from new symptoms, partly from CoV itself. June 3rd: More careful in countryside (mask when cutting grass for guinea pigs) and with histaminey foods is helping (taking 2x1/d DAO, stopped soy & white beans & yeast spread, baked beans OK yesterday, halving bananas again). Click for developments:

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

SLEEP (click for details): 7,05 up 6x (50'), tense sleep till 1 and later cos of 'ideas' (only garden, would you believe!), then deep after a cold shower, but a bit tense again at 4. No sinus headache or stuffy nostrils, cos of/despite not airing. I could reduce my sore throat with a 4th pair of socks (despite heat); reduce dry mouth a bit with gel; the itch of a sting with a cold wash. Always p0 now! ✅ ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅. Nostrils 0-5% stuffy 100% of the night ✅. No sweating ✅.

Meal time (:white_check_mark:), screen time 30’ (:x:), tired :x: (forgot apigenin & A3 and the pigs and shop…)
rup0 A3 22:20 A4:0 teeth0 p0 HWB#0 Sleep 22:05- 3rd # is LBU
23:25 9’ 80%/2/15% p0 st3 sip fw6’ deep doze/ air0 A4/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s0/5% sinuses5% headache0% sore throat30% nausea0% stomach0% tongue5% stools0 loose% kg drymouth30% dryhands20% zombie10%
0:15 slightly stressed all the time, from late screen/quick, 6 15’ 80%/2/15% p0 st3 sip fw6’ deep doze/ air0 A5:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s0/5% sinuses5% headache0% sore throat30% nausea0% stomach0% tongue5% stools0 loose% kg drymouth30% dryhands20% zombie10%
0:55 slightly stressed all the time, from late screen/quick 10’ 80%/2/15% p0 st3 sip fw2’ deep doze/ air0 A5/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FCS/
(nostril/s0/0% sinuses0% headache0% sore throat30% nausea0% stomach0% tongue10% stools0 loose% kg drymouth30% dryhands20% zombie10%
2:06 FCS was what helped.7’ 80%/2/15% p0 st3 sip fw3’ deep/ air0 A6/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FCS2:0.
(nostril/s0/0% sinuses0% headache0% sore throat30% nausea0% stomach0% tongue10% stools loose0% kg drymouth30% dryhands20% zombie10%
3:25 4’ (me as James Bond, detective to the queen, 4 errands) 80%/2/15% p0 st3 sip fw3’ deep/ air0 A6:0 plugs0 cream0 gel/ HWB#(0) Bedclothes: wet0% teeth0 FCS2:0.
(nostril/s0/0% sinuses0% headache0% sore throat30% → +socks nausea0% stomach0% tongue10% stools loose0% kg drymouth30% dryhands20% zombie10% sting40% (before 20%)
4:10 5’ 80%/2/15% p0 st3 sip fw1’ deep/ (but slightly stressed again) air0 A6/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FCS2:0.
(nostril/s0/0% sinuses0% headache0% sore throat20% (+socks) nausea0% stomach0% tongue10% stools loose0% kg drymouth20% (after gel) dryhands20% zombie10% thorn in left socks → out sting40% → cold wash.
-6:00 80%/2/15% p0 st3 sip fw1’ deep/ (no stress) air0 A6/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FCS2:0.
(nostril/s0/0% sinuses0% headache0% sore throat20% (+socks) nausea0% stomach0% tongue10% stools loose0% kg drymouth20% (after gel) dryhands20% zombie10

Sum: 6h+1h55-(9+15+10+7+4+5=)50 = 7h55-50 = 7,05 up 6x (50’), tense sleep till 1 and later cos of ‘ideas’ (only garden, would you believe!), then deep after a cold shower, but a bit tense again at 4. No sinus headache or stuffy nostrils, cos of/despite not airing. I could reduce my sore throat with a 4th pair of socks (despite heat); reduce dry mouth a bit with gel; the itch of a sting with a cold wash. Always p0 now!

ACTIVITIESACHE: 80%/2 :white_check_mark:, TT 2:0 (moving 10%, talking incl. counting 10%,) ➔ 80%/5 :x:, gardening/moving ➔ 80%/5 :white_check_mark::x:, talking ➔ 80%/4 :x:.

ACTIONS ➔ PAINS ✅/(✅): GI, appetite, esophagus, pee, back (against wall/door for support), lips. Lips often white ❌, lips & mouth very dry at night ❌. Details...

except GI: stools loose0% :white_check_mark:, appetite a little better (:white_check_mark:), esophagus: if I’m extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:, finger tips: better. (:white_check_mark:). Lip soreness better since fungal cream (:white_check_mark:), but lips still often white, esp. when pressed, meaning overexertion according to my wife (:x:). Still often thirsty / dry lips & mouth (:x:)

Click for details on Weather: sun nauseating10% ✅, unwell10% ✅, last seizures last seizures Jun 16th, Jun 6th 2x, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last esophagus block: May 31st, before that Apr 4th (probably more often). Jaw pain from tooth problems: May 10th till broken filling was taken out May 22nd.

Touch: :white_check_mark: Covid: :x: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:/:x:. Outdoors almost all day now, so no need for daylight lamp, if the sun becomes too bright and warm I do something in the cellar or the shade, making myself at home there.
Last focal seizures: Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more.

Treatments

Last DOC update June 13th: Gum inflammation down (to 20% from December), keeping tooth, but renewing filling on the 23rd. Waiting for onco report, start asking for "2nd" opinion around 26th. SELF-TREATMENT & SUPPS stable - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Creatine? Click for details...
Click for details: Update June 13th: Gum inflammation down (to 20% from December), keeping tooth, but renewing filling on the 23rd.May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK? Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no EGCg or pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jun 16th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 0x1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0.1g, myo-inositol 1x2x0.5g/1!d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 3x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x1x.5g, resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (2+2+1)x0.6=3.0g (as much as B3). Plus rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated Jun 16th.
“16:00” preparing pills
“17:30” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xvC#1, 2Cr#1, PF#2, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1% Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc.
B=11/ ’ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +1-2The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=20 with meal: 1xB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 2xTMG#2 2xEleu 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jun 16th

Pf: A1+A2+A3, vB2: 1C,1D, 1A. vB3: 2C,2D.1A, vB5: C,DA. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3,a4, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. (pine: C,D.) Qc: B.E.A1.A3. Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 6MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, Ru, 2 Sa, Sily, 2Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jun 16th: correct?
A1=7+1 Pf#1 Qc1#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2, Ga#1:0.3g, Hon#1, Q10, 0Se, 1TMG#1 (?Rup). = 12?
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, 0EGCg, Fev/MSM#1, Qc#3, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#4 Gi#2 Ol#1 0Pin#1 2TMG#2 2xEleu 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=13 vB2#3 "2"vB3#3 vB5#3 3xCr#3 Ga#5 Gi#3 Ol#2 0Pin#2 2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today: No. (Except about pigeons…)
Lessons in self-care #696 Keeping everything down.
Reasons to be cheerful #746 Loads. a) Nice new blooms, the ones I sowed and the first deep pink rose. b) I’m looking forward to the winter so I can look forward to the spring again… (It’s actually only a month where not much happens.)
Simplified #145 Loads. Make a plan of the garden instead of identifying plants on rhs.co.uk again and again.
Foggies: OK.

Click for links to "summary" on June 14th 2023, jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-06-18 Sunday - paradigm shift coming into place day #15. Ate at 7:00 :white_check_mark: 13:20 (:white_check_mark:) 20:15 :x:, slept 21:50 :white_check_mark:, 0.5% of my antihistamine for tick bite :white_check_mark:, screen time before sleep (:x:), shutting windows in 2nd half of the night :white_check_mark:: no sinus headache :white_check_mark:, passiflora 2 not 3 :white_check_mark:. Tick itch & soreness… but antihistamine at day and cold water at night was enough.

Exhaustibility “90%". Click for details ("8h rest"):

R rest: 100% exhaustion 50% of the time (8h),
VS very slow: 60% exhaustion 25% of the time (4h),
S slow: 40% exhaustion 25% of the time (4h),
M medium: 20% exhaustion 0% of the time,
Q quick: 0-10% exhaustion 0% of the time
(pre-fibro: 0% exhaustion 100% of the time.)

10 day antihistamine trial (intermittent/low dose) and 6 weeks of weighing without increase
Summary:
Testing antihistamine: 0.8mg (8%) further for gnat bite itch, praps sleep, temperature and pee. 5th 19:00 0.2mg/ sinus-headache only 10%, with sinuses at 21:30 (or from ripe banana bit) 20% itch 10% (no new bites). 6th 19:00 0.2mg 7th: 0.2, 8th: 0.1, 9th: 0, 10th: 0, 11th 13:20 0.1mg. 18:45 0.1mg. 12th 13:00 0.1mg. then till 13th 5x0.1mg. 14th 2x0.1mg at night. 15th in the daytime, maybe should’ve at night. 16th: 0. 17th: 0. 18th: 0.5mg cos of tick. Itch down an hour later.
Weighing irregularly if I’m sustainably up from 74.2kg. I’m not. (:x:)

Food: 1st: 100% :white_check_mark: 2nd: 85% (:white_check_mark:) 3rd: 100% :white_check_mark:

(Sleep before 80% (:white_check_mark:), Feeling 80%-ish :white_check_mark:/:x: / nausea 0-10% (:white_check_mark:), fog 20% (:white_check_mark:), sleep after 90% (:white_check_mark:)

New habits (and see "simplified"). 'Early outside bird' with lots of early sun, light & air all day now NEEDS to pull his schedule forwards. ✅

:ambulance: Bed 21:30-5:30. (:white_check_mark:)
:ambulance: Note thoughts and emotions (ACT) (:white_check_mark:)

Today's FM symptoms unchanged from WPI 11 & SSS 9-1=8, except....: +0: headache ✅. (Click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (30-60%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (90%), insomnia 2 (10%), fog 2 (30%), headache (0), GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20% decreasing to 8-12% by end of May from new symptoms, partly from CoV itself. June 3rd: More careful in countryside (mask when cutting grass for guinea pigs) and with histaminey foods is helping (taking 2x1/d DAO, stopped soy & white beans & yeast spread, baked beans OK yesterday, halving bananas again). Click for developments:

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

SLEEP (click for details): 7h39, up 5x (1h24), all deep, but screen time "unnecessary". ✅ ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅. Nostrils 10% stuffy 100% of the night ✅. No sweating ✅. 2x air/ (LONG), then 3x air0, no sinus headache ✅, 1x FA/CS#1 ✅, sting itch 20-30% (cold water) ✅

Meal time :x:, screen time :x:, tired :x:, but still OK considering.
rup0 (daytime) A3 A4:0 teeth0 p0 HWB#0 Sleep 21:50- 3rd # is LBU
23.20 37’ 80%/2/15% p0 st3 sip fw2’ fl15’ deep/ air/ A4/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s0/0% sinuses0% headache0% sore throat10% nausea0% stomach0% tongue10% stools0 loose% kg drymouth30% dryhands20% zombie10% itch 20%
0:28 23’ 6 80%/2/15% p0 st3 sip fw2’ fl15’ deep/ air/ A5/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s0/0% sinuses0% headache0% sore throat10% nausea0% stomach0% tongue10% stools0 loose% kg drymouth30% dryhands20% zombie10% itch 20%
:zap: praps airing only in the first half of the night is OK?
1:58 9’ 80%/2/15% p0 st3 sip fw2’ fl10 deep/ air0 A6/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s0/0% sinuses0% headache0% sore throat10% nausea0% stomach0% tongue10% stools0 loose% kg drymouth30% dryhands20% zombie10% itch 30% → 0.2 Rupafin.
3:54 6’ 80%/2/15% p0 st3 sip fw2’ fl0’ deep/ air0 A7/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s10/0% sinuses0% headache0% sore throat10% nausea0% stomach0% tongue10% stools0 loose% kg drymouth40% dryhands20% zombie10% itch 20%
5:12 9’ 80%/2/15% p0 st3 sip fw2’ fl0’ deep/ air0 A8/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s10/0% sinuses0% headache0% sore throat10% nausea0% stomach0% tongue10% stools0 loose% kg drymouth40% dryhands20% zombie10% itch 40% (tick, the other 3 OK) → warm/cold wash.
-6:53 80%/2/15% p0 st3 sipdeep/ air0 A9:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s10/0% sinuses0% headache0% sore throat10% nausea0% stomach0->40% tongue10% stools0 loose% kg drymouth40% dryhands20% zombie10% itch 30%: cold wash helped a bit/enough
1x FA/CS#1 :white_check_mark:
Sum: 2h10+6h53-(37+23+9+6+9=)84 = 9h03-1h24 = 7h39, up 5x (1h24), all deep, but screen time “unnecessary”.

ACTIVITIESACHE: 80%/2 :white_check_mark:, TT 2:0 (moving 5%, talking incl. counting 10%,) ➔ 80%/6 :x:, gardening/moving ➔ 80%/2 :white_check_mark:, talking ➔ 80%/3 :x:.

ACTIONS ➔ PAINS ✅/(✅): GI, appetite, esophagus, pee, back (against wall/door for support), lips. Lips often white ❌, lips & mouth very dry at night ❌. Calf stretches have made my calves crampy again ❌. Details...

except GI: stools loose0% :white_check_mark:, appetite a little better (:white_check_mark:), esophagus: if I’m extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:, finger tips: better. (:white_check_mark:). Lip soreness better since fungal cream (:white_check_mark:), but lips still often white, esp. when pressed, meaning overexertion according to my wife (:x:). Still often thirsty / dry lips & mouth (:x:)

Click for details on Weather: sun nauseating0-30% ❌, unwell0-30% ❌, last seizures Jun 16th, Jun 6th 2x, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last esophagus block: May 31st, before that Apr 4th (probably more often). Jaw pain from tooth problems: May 10th till broken filling was taken out May 22nd.

Touch: :white_check_mark: Covid: :x: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:/:x:. Outdoors almost all day now, so no need for daylight lamp, if the sun becomes too bright and warm I do something in the cellar or the shade, making myself at home there.
Last focal seizures: June 16th, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more.

Treatments

Last DOC update June 13th: Gum inflammation down (to 20% from December), keeping tooth, but renewing filling on the 23rd. Waiting for onco report, start asking for "2nd" opinion around 26th. SELF-TREATMENT & SUPPS stable - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Creatine? Click for details...
Click for details: Update June 13th: Gum inflammation down (to 20% from December), keeping tooth, but renewing filling on the 23rd.May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK. Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no EGCg or pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jun 16th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 0x1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0.1g, myo-inositol 1x2x0.5g/1!d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 3x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x1x.5g, resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (2+2+1)x0.6=3.0g (as much as B3). Plus rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated Jun 16th.
“16:00” preparing pills
“17:30” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xvC#1, 2Cr#1, PF#2, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1% Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc.
B=11/ ’ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +1-2The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=20 with meal: 1xB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 2xTMG#2 2xEleu 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jun 16th

Pf: A1+A2+A3, vB2: 1C,1D, 1A. vB3: 2C,2D.1A, vB5: C,DA. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3,a4, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. (pine: C,D.) Qc: B.E.A1.A3. Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 6MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, Ru, 2 Sa, Sily, 2Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jun 16th: correct?
A1=7+1 Pf#1 Qc1#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2, Ga#1:0.3g, Hon#1, Q10, 0Se, 1TMG#1 (?Rup). = 12?
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, 0EGCg, Fev/MSM#1, Qc#3, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#4 Gi#2 Ol#1 0Pin#1 2TMG#2 2xEleu 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=13 vB2#3 "2"vB3#3 vB5#3 3xCr#3 Ga#5 Gi#3 Ol#2 0Pin#2 2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today:
Cort Johnson blogged “Exercise Triggers Major Immune System Letdown in ME/CFS” yesterday on healthrising, focusing on a recent study on immune cells deficient during and after exercise.
Post exertional malaise (PEM) is what they call it in CFS, and that fits for me, if not for all of us, altho I am not officially diagnosed with CFS. But “fatigue” with Ache is my core symptom, and one of the 6 symptoms on the SSS of the ACR diagnostic criteria.
Blood flow, oxygen utilization and energy production, similarly metabolism and protein have all been found to be deficient in the recent past. Now published in January 2023 a study found that CFS immune cells (esp. NK) hardly react during exercise, like healthy ones do. So they don’t keep the challenges produced by the exercise in check. Instead, they try to start clearing up afterwards, when healthy ones stop. But the inflammation etc. has then already become so high, and they are too weak & antioxidants so low, that they partly have to give up and die.
Starting low and going slow I spose will enable all these parts of the body to cope. Antioxidants etc. can boost a little (I take >15).
Articles/studies like these should be rubbed in the face of doubters till they cry … with empathy…

Lessons in self-care #697 Always a problem for me when my wife procrastinates with a walk till after 6, cos that’s always a problem for my meals/sleep.
Reasons to be cheerful #747 Loads. Birds & bees & flowers & wife.
Simplified #146 Loads. Supps, morning todo list.
Foggies: One, can’t remember.

Click for links to "summary" on June 14th 2023, jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Summary of fibro 2020-2021, jabs 2022 and first half of 2023

Summary of Biggest Successes

:trophy: :trophy: :trophy:

  • all local musculo-skeletal /tendinitis pains are under control again,
    • most recently wrists (without concentrating on stretches too much, just when I remember / feel like it, but remains necessary)
    • at night backward arch stretches always spare my hunchpack pillow.
    • my self-physio has hardly been necessary, I think because I immediately do something about the slightest problem that comes up.
  • Stiffness: learnt how to move to partly compensate the temporary stiffness by “throwing” limbs and torso, as well as moving slowly to not overdo anything, to a point that it’s become normal to me.
  • Bladder pain, urge, frequency and loss almost fully under control by watching histamine and finely adjusting GABA.
  • sting prevention with my eucalyptus stuff, alleviation with cold & antihistamine.
  • spine pain: hunchback, neck, tailbone, lower back, clavicle always fairly good. Youtube allows me to now be completely independent of physiotherapists.
  • jaw / teeth: Greatly reduced jaw inflammation using lots of anti-inflammatory supps.
  • sleep: Supps, circadian rhythm, screen time down, NSDR hardly necessary. I have many things around my bed which I hardly ever have to use any more: essential oils, creams, eye mask, ear plugs (hardly ever), my “hunchback cushion” etc.
  • fog: Like the energy slowing it down and not overdoing it helps stay in control.
  • No depression: Sustainably happier and more content using motivation, mindfulness. acceptance & commitment therapy aspects, psychotherapy, forum support.

MCAS & fibro

  • IBS low: Hardly ever diarrhea or any other symptoms if I keep to my main 50 foods.
  • supps stable: I do adjust these from time to time, but basically there’s nothing I can reduce, many have several purposes across the board. The last important supps I added made sleep more effective despite the many sleep breaks.
  • Greatly improved dry hands by changing soap back to an olive oil one, different brand.

MCAS:

  • Sinus headaches: I seem to be cornering them and maybe their trigger.
  • I can now quickly trace food triggers, altho DAO doesn’t seem to help everything, but something. Better reducing or if necessary eliminating.

Further:

  • seizures: Recently may have been from stress, then adjust night GABA accordingly.
  • esophagus blocks: I now know better how to influence them, and they only happen when I’m not mindful enough of that.
  • appetite: I’ve managed to regain most of it by allowing things that are bad for my lipids or ethics, but good for health and tasty… Now I’m slowly able to partly return.
  • docs: I’ve been pretty independent of docs for quite a long time now, but still need my blood levels and also vessels monitored, and need to check if oncology can help me in any way.
  • I believe I’ll be able to manage most new symptoms that may come up in future.
  • the orange spots - probably iron deposits - on my feet and ankles are decreasing more and more, only about 20% left.
lipids: lipoprotein (a) down, triglycerides and LDL down, HDL up. Click for details

Statins increase lipoprotein (a), so my aim/success has been to lower that as well as the other lipids and surprisingly I recently saw I’ve managed to get my HDL up into the normal range.
Of the supps I use at the moment, these are the ones for lipids: high dose (2-3g) B3 as nicotinic acid (= with flush, start with niacin, then start low & go slow) plus same amount of TMG, B5, B9, carnitine, ginkgo, PEA, CoQ10, quercetin, resveratrol, silymarin, rutin, glutathione, myo-inositol, olive leaf extract & when I was deficient copper, perhaps ellagic acid, pycnogenol & eleuthero. D-ribose being a sugar increases lipids. There are quite a few more - psyllium, pectin, flaxseed, quinoa, lecithin don’t work for me, red yeast rice extract and phytosterols are controversial. (This stuff is from many studies, esp. about lipoprotein a).

  • These blog entries have become more and more focused and detailed, able to leave many things behind and focus on the big one(s) left. (And these entries are helping me focus.)
  • My quality of life and happiness is usually high, with a bit of a low at the moment after T4/CoV Feb/Mar and a bit of stress, feeling pressured to overdo it.

2023-06-19 Monday - re-focused!

What worked today?:

Antihistamine micro-dosing? 0. Screen time before sleep (:white_check_mark:). Windows shut at night (:white_check_mark:): no sinus headache (:white_check_mark:) - open twice = slight sinus headache?, passiflora 2 not 3 :white_check_mark:,

How was I today?:

Feeling 80%-ish (:white_check_mark:), energy today :x:, sleep Sunday night (:white_check_mark:), sleep Monday night :white_check_mark:, tick itch (:white_check_mark:). nausea 0(-10)% :white_check_mark:, fog 20% :white_check_mark:.

Now working on… :

1) Earlier circadian rhythm for a) energy/sleep & b) PEM,

Meal times at 8:00 :white_check_mark: 13:30 - took ages (:x:) 19:30 (:x:).

1a) EXHAUSTIBILITY today: “90%". Click for today's ENERGY profile. (Slow with "8h rest"). Aim: Detailing & tracking my core symptom and improving energy with 6am sunlight, air, 7pm reduced screen time, more effective sleep:

R rest: 100% exhaustion 50% of the time (8h),
VS very slow: 60% exhaustion 25% of the time (4h),
S slow: 40% exhaustion 25% of the time (4h),
M medium: 20% exhaustion 0% of the time,
Q quick: 0-10% exhaustion 0% of the time
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 7h49, up x (24'), all deep. Sore throat from leaving window open for 1-2h, better from 4th pair of socks. Praps slight headache from open window later, but I'm getting unsure about this idea. ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅. Nostrils 10% stuffy 100% of the night ✅. No sweating ✅. airing for the 4' I get up and once longer in the first part of the night -> hardly sinus headache ✅, 1x FA/CS#1 ✅, sting itch 10-20% ✅

Meal time :white_check_mark:/:x:, screen time :white_check_mark:, tired enough (:white_check_mark:)
rup? A3 A4:0 teeth0 p0 HWB#0 Sleep 22:10- 3rd # is LBU
23:20 8’ 80%/2/15% p0 st3 sip fw2’ fl2’ deep/ air/-> A4/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s20/0% sinuses0% headache0% sore throat20% nausea0% stomach0% tongue20% stools0 loose% drymouth 40% dryhands20% zombie10% itch 20%
0:29 4’ 80%/2/15% p0 st3 sip fw2’ fl0’ deep/ air-> // A5/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s20/0% sinuses0% headache0% sore throat30% (from open window) nausea0% stomach0% tongue20% stools0 loose% drymouth 40% dryhands20% zombie10% itch 20%
1:55 4’ 80%/2/15% p0 st3 sip fw2’ fl0’ deep/ air0 A6/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s10/0% sinuses0% headache0% sore throat30% nausea10% stomach10% tongue20% stools0 loose% drymouth 40% dryhands20% zombie10% itch 20%
3:21 4’ 80%/2/15% p0 st3 sip fw2’ fl0’ deep/ air/ A7/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s10/0% sinuses0% headache0% sore throat30% → warm socks, nausea10% stomach10% tongue20% stools0 loose% drymouth 40% dryhands20% zombie10% itch 20%
5:26 4’ 80%/2/15% p0 st3 sip fw2’ fl0’ deep/ air/ A8:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s10/0% sinuses0% headache0% sore throat20% less from 4th pair of socks, nausea10% stomach10% tongue10% stools0 loose% drymouth 40% dryhands20% zombie10-% itch 20%
-6:23 80%/2/15% p0 st3 sip deep/
(nostril/s0/0% sinuses0% headache10% sore throat20%, nausea10% stomach10% tongue10% stools0 loose% drymouth 30% dryhands20% zombie10-% itch 10%
1x FA/CS#1 :white_check_mark:
Sum: 6h23+1h50-(8+4+4+4+4=)24 = 8h13-24’ = 7h49, up x (24’), all deep. Sore throat from leaving window open for 1-2h, better from 4th pair of socks. Praps slight headache from open window later, but I’m getting unsure about this idea.

1b) ACTIVITIESACHE = PEM: 80%/2 :white_check_mark:, TT 2:0 (moving 10%, talking incl. counting 10%) ➔ 80%/5 :x:, gardening/moving ➔ 80%/2-3 :white_check_mark:, talking ➔ 80%/3 :white_check_mark:. Lips often white, esp. when pressed, from overdoing it according to my wife (:x:)

2) Effects of my idea “intermittent antihistamine micro dosage” & leaving window closed most of the night on my histaminey MCAS symptoms.

10 day antihistamine trial (intermittent/low dose) and 6 weeks of weighing without increase
Summary:
Testing antihistamine: 0.8mg (8%) further for gnat bite itch, praps sleep, temperature and pee. 5th 19:00 0.2mg/ sinus-headache only 10%, with sinuses at 21:30 (or from ripe banana bit) 20% itch 10% (no new bites). 6th 19:00 0.2mg 7th: 0.2, 8th: 0.1, 9th: 0, 10th: 0, 11th 13:20 0.1mg. 18:45 0.1mg. 12th 13:00 0.1mg. then till 13th 5x0.1mg. 14th 2x0.1mg at night. 15th in the daytime, maybe should’ve at night. 16th: 0. 17th: 0. 18th: 0.5mg cos of tick. Itch down an hour later. 19th: 0.

I’m getting unsure if it really is leaving the window open at night that causes my sinus headache. But praps it depends on how much pollen is in the air.

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20% decreasing to 8-12% by end of May from new symptoms, partly from CoV itself. Triggers: Foods (esp. soy, white beanst, yeast spread, >1/2 banana), grasses slightly, Click for developments:

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

3) 2023: Weight & Appetite loss / Thirst / Night sweats

a) Weighing irregularly if I’m sustainably up from 74.2kg. I’m not. (:x:). But stable :white_check_mark:.
b) Meal appetite (mood?): 1st: 110% :white_check_mark: 2nd: 85% (:white_check_mark:)/:x: 3rd: 80% :white_check_mark:
c) Thirst :white_check_mark:, dry mouth at night :x:.
d) Night sweats OK. :white_check_mark:, but I’m still…:

4) Docs: Asking oncologists about cancer/autoimmune (as GP & wife recommend, altho I think #3 was T4 and CoV, but also something unknown autoimmune).

Last DOC update June 13th: Gum inflammation down (to 20% from December), keeping tooth, but renewing filling on the 23rd. Waiting for onco report, start asking for "2nd" opinion around 26th. Click for details...
Click for details: Update June 13th: Gum inflammation down (to 20% from December), keeping tooth, but renewing filling on the 23rd.May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

5) Fairly under control :white_check_mark:/(:white_check_mark:):

GI (elimination), esophagus (mindfulness), pee (GABA), LOCAL PAINS (e.g. back: against wall/door for support, exercises), Details...

except GI: stools loose0% :white_check_mark:, appetite a little better (:white_check_mark:), esophagus: if I’m extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:, finger tips: better. (:white_check_mark:). Lip soreness better since fungal cream (:white_check_mark:).

Click for details on Weather: sun nauseating10% ✅, unwell10% ✅, last seizures Jun 16th, Jun 6th 2x, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last esophagus block: May 31st, before that Apr 4th (probably more often). Jaw pain from tooth problems: May 10th till broken filling was taken out May 22nd.

Touch: :white_check_mark: Covid: :x: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:/:x:. Outdoors almost all day now, so no need for daylight lamp, if the sun becomes too bright and warm I do something in the cellar or the shade, making myself at home there.
Last focal seizures: Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more.

SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Creatine?
SELF-PHYSIO (click for details): OK? Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK? Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no EGCg or pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jun 16th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 0x1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0.1g, myo-inositol 1x2x0.5g/1!d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 3x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x1x.5g, resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (2+2+1)x0.6=3.0g (as much as B3). Plus rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated Jun 16th.
“16:00” preparing pills
“17:30” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xvC#1, 2Cr#1, PF#2, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1% Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc.
B=11/ ’ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +1-2The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=20 with meal: 1xB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 2xTMG#2 2xEleu 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jun 16th

Pf: A1+A2+A3, vB2: 1C,1D, 1A. vB3: 2C,2D.1A, vB5: C,DA. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3,a4, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. (pine: C,D.) Qc: B.E.A1.A3. Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 6MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, Ru, 2 Sa, Sily, 2Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jun 16th: correct?
A1=7+1 Pf#1 Qc1#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2, Ga#1:0.3g, Hon#1, Q10, 0Se, 1TMG#1 (?Rup). = 12?
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, 0EGCg, Fev/MSM#1, Qc#3, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#4 Gi#2 Ol#1 0Pin#1 2TMG#2 2xEleu 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=13 vB2#3 "2"vB3#3 vB5#3 3xCr#3 Ga#5 Gi#3 Ol#2 0Pin#2 2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today: No.

Quality of life

Lessons in self-care #697 Plucking cherries very slowly and carefully, stopping when too wobbly.
Reasons to be cheerful #747 Loads.
a) Good to get these re-focused at last.
b) Rain, what a relief for all us garden creatures! Collecting Around 200L is a good start, but I hope it’ll be more.
Simplified #146 Loads. a) These entries. b) Sifting cherrry blossoms out of the collected rain water with a grid office tray worked a treat. c) Collecting rain with bucket lids and sweet containers additionally to our roof rain barrel (and buckets, 3 troughs, wheelbarrow and a tarpauline) was praps easier than previous ideas, but still something to work on.
Foggies: OK.

Development

Click for links to "summary" on June 14th 2023, jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Summary of fibro 2020-2021, jabs 2022 and first half of 2023

I’ve now semi-finished my “biggest successes” post above, made to complement the summary of my “demise”. :smirk_cat: May be adding things in the next few days though. Like managing to improve my circadian with one big yank, because it’s easier for me to go radical than to go bit by bit.

I’m re-focusing these entries because I’m starting earlier in the day, so able to take my time. Also views have gone up to 80/d, good reason to make this easier to follow.

I’m taking “new habits” and hardly changing FM symptom intensity out of the daily blog entry and putting them in the recent “Summary” and the “Successes”.
They were both important for quite a few months now, because 1) I was having difficulty changing habits, now I’m able to change things immediately without additional motivation, 2) It may be fundamental to others to check how their fibro symptoms change every day, but mine are just as high every day, but I’ve learned to have a good life despite that, by changing it completely again and again.

New habits (and see "simplified"). 'Early outside bird' with lots of early sun, light & air all day now NEEDS to pull his schedule forwards. ✅

:ambulance: Bed 21:30-5:30. (:white_check_mark:)
:ambulance: Note thoughts and emotions (ACT) (:white_check_mark:)

Today's FM symptoms unchanged from WPI 11 & SSS 9-1=8, except....: +0 ✅. (Click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (30-60%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (90%), insomnia 2 (10%), fog 2 (30%), headache (0), GI 1 (10%), depression 0

I’m also simplifying my Lessons in self-care Reasons to be cheerful and Simplified by taking the numbering out, since I now have several a day, without tagging each with a number, and I’ve tallied so many, that I’ve finally “proven” to myself :smirk_cat: that I have already learnt 1000 lessons, have had 1000 reasons to be cheerful and am constantly simplifying things. It’s so much that I may also now think about that less. But I spose it’s a mental motivating push for us if I continue.

2023-06-20 Tuesday: Saturday’s tick bite hasn’t “grown”, itch is down, but it’s gone purple: tea tree oil and doc.

What worked today?:

Antihistamine micro-dosing? 0. Screen time before sleep (:white_check_mark:). Windows shut at night :white_check_mark:: no sinus headache (:white_check_mark:), slight headache, passiflora 2 not 3 :white_check_mark:, forgot A3-supps at 21:00 but sleep still OK, so maybe reduce anything that’s only for sleep.

How was I today?:

Feeling 75%-ish (:white_check_mark:), energy today :x:, sleep Monday night :white_check_mark:, sleep Tuesday night :white_check_mark:, tick itch (:white_check_mark:). Nausea 0(-10)% (:white_check_mark:), fog 20% (:white_check_mark:).
However the tick bite has gone purple and increased in size, so I’ll take it to the docs tomorrow.

Now working on… :

1) Earlier circadian rhythm for a) energy/sleep & b) PEM.

Meal times :white_check_mark: (:white_check_mark:) (:x:). Bed early / up early (:white_check_mark:):white_check_mark:. screen time :white_check_mark: → Effective sleep :white_check_mark:. PEM :x:.

1a) EXHAUSTIBILITY today: “90%". Click for today's ENERGY profile. (Slow with "8h rest", praps more). Aim now: Detailing & tracking my core symptom and Improving energy with 6am sunlight, air, 7pm reduced screen time, more effective sleep:

R rest: 100% exhaustion 50% of the time (8h),
VS very slow: 60% exhaustion 25% of the time (4h),
S slow: 40% exhaustion 25% of the time (4h),
M medium: 20% exhaustion 0% of the time,
Q quick: 0-10% exhaustion 0% of the time
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 7h12, up 4x (32'), all deep. Forgot A3 "21:00" supps - pros and cons? More itch from an invisible bite than from the tick one gone purple, on which I've been putting tea tree oil alternately with calendula essence. Fast cold shower before sleep cos of sweating, not necessary again. Sight headache upon getting up, but not frontal/sinus, that will be from not airing enough, so try compromises. But then sinus involvement 15' later. Hmmm. ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅. Nostrils 10% stuffy 100% of the night ✅. No sweating ✅. 0x air/, 4xair0, but slight sinus headache ..Hmm... (✅), 1x FA/CS#1 before sleep, cos of sweating ✅, sting itch, hardly tick itch 20-30% ✅

Meal time :white_check_mark::white_check_mark::x:, screen time :white_check_mark:, tired enough :white_check_mark:.
rup0 A3 A4:0 teeth0 p0 HWB#0 FCS#1 Sleep 22:18- 3rd # is LBU
23:39 11’ 80%/2/15% p0 st3 sip fw5’ fl0’ deep/ air0 A4/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#2:0. 2 → 3rd pair of socks on.
(nostril/s20/0% sinuses0% headache0% sore throat20% nausea0% stomach0% tongue10% stools0 loose% drymouth30% dryhands10% zombie10% itch 20%
1:20 7’ 80%/2/15% p0 st4 sip fw5’ fl0’ deep/ air0 A5/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#2:0
(nostril/s5/0% sinuses0% headache0% sore throat20% nausea0% stomach0% tongue10% stools0 loose% drymouth30% dryhands10% zombie10% itch 20%
2:49 6’ 80%/2/15% p0 st3 sip fw2’ fl0’ deep/ air0 A6/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#2:0
(nostril/s5/10% sinuses0% headache0% sore throat20% nausea0% stomach0% tongue10% stools0 loose% drymouth30% dryhands10% zombie10% itch 20%. calendula essence for gum inflammation and sore throat.
4:36 8’ 80%/2/15% p0 st2 sip fw2’ fl0’ deep/ air0 A7/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#2:0
(nostril/s5/0% sinuses0% headache0% sore throat20% nausea0% stomach0% tongue10% stools0 loose% drymouth30% dryhands10% zombie10% itch 20%. calendula essence for gum inflammation and sore throat.
-6:02 80%/2/15% p0 st2 sip fw2’ fl0’ deep/ air0 A8:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#2:0
(nostril/s5/0% sinuses0% headache10% sore throat10% nausea0% stomach40% tongue10% stools0 loose% drymouth30% dryhands10% zombie10% itch 20%.
1x FA/CS#1 :white_check_mark:
Sum: 6h02+1h42-(11+7+6+8=)32 = 7h44-32 = 7h12, up 4x (32’), all deep. Forgot A3 “21:00” supps - pros and cons? More itch from an invisible bite than from the tick one gone purple, on which I’ve been putting tea tree oil alternately with calendula essence. Fast cold shower before sleep cos of sweating, not necessary again. Sight headache, but not frontal/sinus, that will be from not airing enough, so try compromises.

1b) ACTIVITIESACHE = PEM (Post exertional malaise): 80%/2 :white_check_mark:, TT 0:2 - why? From talking with and listening to others playing next to us? I can’t imagine the humid weather being that much of a problem to me. (moving 10%, talking incl. counting 10%) ➔ 80%/5 :x:, gardening/moving ➔ 80%/2 :white_check_mark:, talking ➔ 80%/2-3 :white_check_mark:. White lips. (:x:)

2) Effects of “intermittent antihistamine micro dosing” & leaving window closed at night on my histaminey MCAS symptoms (etc.)

Testing micro-dosed antihistamine on gnat bite itch, praps sleep, temperature and pee. All of these OK. 0/0.1/0.2mg as needed.
18th: 0.5mg cos of tick. Itch down an hour later, but 0mg the days before and after. 20th: 0. Slight dull headache, turning into a slight sinus one, after not airing at all, except before sleep: :question:

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20% decreasing to 8-12% by end of May from new symptoms, partly from CoV itself. Triggers: Foods (esp. soy, white beanst, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

3) New 2023: Weight & Appetite Loss / Thirst / Night sweats

a) Weighing irregularly if I’m sustainably up from 74.2kg. I’m not. (:x:). But stable :white_check_mark:.
b) Meal appetite (mood?): 1st: 110% :white_check_mark: 2nd: 85% (:white_check_mark:)/:x: 3rd: ?100% :white_check_mark:
c) Thirst :x:, dry mouth at night :x:. What’s up with my thirst again? It’s been hot all the time, that’s no reason.
d) Night sweats OK. :white_check_mark:, but still…:

4) Docs: Asking oncologists about cancer/autoimmune (as GP & wife recommend, altho I think #3 was T4 and CoV, but also something unknown autoimmune).

Last DOC update June 20th: Get tick checked tomorrow. June 13th: Gum inflammation down (to 20% from December), keeping tooth, but renewing filling on the 23rd. Waiting for onco report, start asking for "2nd" opinion around 26th. Click for details...
Click for details: Update June 13th: Gum inflammation down (to 20% from December), keeping tooth, but renewing filling on the 23rd.May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

5) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

1) Symptoms well under control: GI (via elimination), pee (via GABA), LOCAL PAINS (exercises, back: via using wall/door for support - back a slight problem tonight despite enough exercises, arching was enough), Details...

except GI: stools loose0% :white_check_mark:, appetite better (:white_check_mark:), pee pain: 1xp1-2 :white_check_mark:, lower back unrest (:white_check_mark:)

2) Symptoms fairly under control - click for details on Weather: SUN - kept out of it, got too hot/humid (✅), last SEIZURES Jun 16th, Jun 6th 2x, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: May 31st, before that Apr 4th (probably more often). JAW pain from tooth problems: May 10th till broken filling was taken out May 22nd.

Weather: Indoors :white_check_mark: Outdoors :white_check_mark:/:x:. Outdoors almost all day now, so no need for daylight lamp, if the sun becomes too bright and warm I do something in the cellar or the shade, making myself at home there.
Last focal seizures: Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, cost 470€/m +20€/m cps. Creatine?
SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no EGCg or pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jun 16th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 0x1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0.1g, myo-inositol 1x2x0.5g/1!d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 3x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x1x.5g, resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (2+2+1)x0.6=3.0g (as much as B3). Plus rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated Jun 16th.
“16:00” preparing pills
“17:30” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xvC#1, 2Cr#1, PF#2, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1% Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc.
B=11/ ’ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +1-2The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=20 with meal: 1xB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 2xTMG#2 2xEleu 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jun 16th

Pf: A1+A2+A3, vB2: 1C,1D, 1A. vB3: 2C,2D.1A, vB5: C,DA. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3,a4, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. (pine: C,D.) Qc: B.E.A1.A3. Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 6MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, Ru, 2 Sa, Sily, 2Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jun 16th: correct?
A1=7+1 Pf#1 Qc1#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2, Ga#1:0.3g, Hon#1, Q10, 0Se, 1TMG#1 (?Rup). = 12?
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, 0EGCg, Fev/MSM#1, Qc#3, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#4 Gi#2 Ol#1 0Pin#1 2TMG#2 2xEleu 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=13 vB2#3 "2"vB3#3 vB5#3 3xCr#3 Ga#5 Gi#3 Ol#2 0Pin#2 2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today: Bits’n’bobs. But mitochondria summit by Frontiero/Whitten on drtalks starting “today”

Quality of life

Lessons in self-care: Too unstable at first to pluck cherries from a ladder, so stopped till I’d got more stable.
Reasons to be cheerful: Loads. Saw the head of the blackbird breeding in our garden move. The evening primroses have started blooming.
Simplified: Loads: Blog entries.
Foggies: OK.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-06-21 Wednesday -

What worked today?:

Antihistamine micro-dosing? 0. Screen time before sleep (:white_check_mark:). Windows not shut at night: slight sinus headache, but OK (:white_check_mark:), passiflora 2 not 3 :white_check_mark:, A3-supps? - I was thinking of again not taking them, cos today seemed like progress, but then remembered there are very important ones in the mix…(:white_check_mark:), but the 2nd passiflora is in there, so now I’m thinking about reducing passiflora to 1. On the other hand it increases GABA, decreases blood pressure, is antioxidant, all still necessary.

How was I today?:

Feeling 80%-ish :white_check_mark:, energy today (:x:) - improved! (:white_check_mark:), sleep Tuesday night :white_check_mark:, sleep Wednesday night (:white_check_mark:)/(:x:), tick itch :white_check_mark:, decreasing the purple colour with tea tree oil and calendula essence :white_check_mark:, forgot to go to the doc, which might be dangerous :x:. Other sting itches :white_check_mark:+(:x:). Nausea 0% :white_check_mark:, fog 20% :white_check_mark:, except praps in the first table tennis game, or it was an problem adapting to different energy.

Now working on… :

1) Earlier circadian rhythm for a) energy/sleep & b) PEM.

Meal times :white_check_mark: (:white_check_mark:) (:x:). Bed early / up early :white_check_mark::white_check_mark:. screen time (:x:) → Effective sleep :white_check_mark:. PEM (:white_check_mark:).

1a) EXHAUSTIBILITY today: “88%". Click for today's ENERGY profile. ("8h rest", but in the evening greatly increased energy, so I could use the 20% energy strain). Aim now: Detailing & tracking my core symptom and Improving energy with 6am sunlight, air, 7pm reduced screen time, more effective sleep:

R rest: 100% exhaustion 50% of the time (8h),
VS very slow: 60% exhaustion 20% of the time (3h),
S slow: 40% exhaustion 25% of the time (4h),
M medium: 20% exhaustion 5% of the time (1h),
Q quick: 0-10% exhaustion 0% of the time
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 7h54, up 5x (44'), deep except last hour, nausea and slight sinus burning, not really headache, but possibly from opening the window in every sleep break. Got sting itch down enough by cold showering my whole left leg. Dry mouth (and slightly hurting tongue) most conspicuous, nostrils and generally feeling pretty good at night lately. ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅. Nostrils 10% stuffy 100% of the night ✅. No sweating ✅. 5x air/, slight sinuses (✅), 1x FA/CS#1 ✅, sting itch 20-50% ❌, but reduced with cold wash ✅

Meal time :white_check_mark:/:x:, screen time :white_check_mark:/:x:, tired :white_check_mark:/:x:
rup0 A3/ A4:0 teeth0 p0 HWB#0 Sleep 21:50- 3rd # is LBU
22:40 5’ 80%/2/15% p0 st3 sip fw1’ fl0’ deep/ air->/ A4/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s0/5% sinuses0% headache0% sore throat15% nausea0% stomach
0% tongue10% stools0 loose% drymouth30% dryhands20% zombie10% itch 20%
23:28 7’ 80%/2/15% p0 st3 sip fw1’ fl0’ deep/ air/ A5/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s5/0% sinuses0% headache0% sore throat20% nausea0% stomach
0% tongue10% stools0 loose% drymouth30% dryhands20% zombie10% itch 50% → cold water.
23:56 12’ 80%/2/15% p0 st3 sip fw1’ fl8’ deep/ air/ A6/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s0/0% sinuses0% headache0% sore throat20% nausea0% stomach
0% tongue10% stools0 loose% drymouth30% dryhands20% zombie10% itch 50% → cold wash whole left leg.
2:40 13’ 80%/2/15% p0 st3 sip fw1’ fl8’ deep/ air0 A7/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s0/10% sinuses0% headache0% sore throat20% nausea0% stomach
0% tongue10% stools0 loose% drymouth30% dryhands20% zombie10% itch 30%
5:23 7’ 80%/2/15% p0 st3 sip fw1’ fl3’ deep/ air/ A8:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s5/0% sinuses0% headache0% sore throat20% nausea0% stomach
0% tongue10% stools0 loose% drymouth30% dryhands20% zombie10% itch 30%
6:28 80%/2/15% p0 st3 sip deep doze/ air/ A8:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FA/CS#0
(nostril/s5/0% sinuses10% headache10% sore throat20% nausea20% stomach
10% tongue10% stools0 loose% drymouth30% dryhands20% zombie10% itch 30%
1x FA/CS#1 :white_check_mark: and cold showering left leg
Sum: 6h28+2h10-(5+7+12+13+7)44 = 8h38-44 = 7h54, up 5x (44’), deep except last hour, nausea and slight sinus burning, not really headache, but possibly from opening the window in every sleep break. Got sting itch down enough by cold showering my whole left leg. Dry mouth (and slightly hurting tongue) most conspicuous.

1b) ACTIVITIESACHE = PEM (Post exertional malaise): 80%/2 :white_check_mark:, TT 2:2! (moving 20%, talking incl. counting 20%) ➔ 80%/4 (:x:) only starting in the 4th game! :white_check_mark:, gardening/moving ➔ 80%/2 :white_check_mark:, talking ➔ 80%/2-3 :white_check_mark:. White lips? (:x:) (:question:)

2) Effects of “intermittent antihistamine micro dosage” & leaving window closed at night on my histaminey MCAS symptoms.

Testing micro-dosed antihistamine on gnat bite itch, praps sleep, temperature and pee. All of these OK. 0/0.1/0.2mg as needed.
18th: 0.5mg cos of tick. Itch down an hour later, but 0mg the days before and after. 20th: 0. Slight dull headache, turning into a slight sinus one, after not airing at all, except before sleep: :question:

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20% decreasing to 8-12% by end of May from new symptoms, partly from CoV itself. Triggers: Foods (esp. soy, white beanst, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

3) New 2023: Weight & Appetite Loss / Thirst / Night sweats

a) Weighing irregularly if I’m sustainably up from 74.2kg. I’m not. (:x:). But stable :white_check_mark:.
b) Meal appetite (mood?): 1st: 100% :white_check_mark: 2nd: 85% (:white_check_mark:) 3rd: 85% (:white_check_mark:)
c) Thirst :white_check_mark:, dry mouth at night :x:.
d) Night sweats OK. :white_check_mark:, but still…:

4) Docs: Asking oncologists about cancer/autoimmune (as GP & wife recommend, altho I think #3 was T4 and CoV, but also something unknown autoimmune).

Last DOC update June 21st: Tick check. June 13th: Gum inflammation down (to 20% from December), keeping tooth, but renewing filling on the 23rd. Waiting for onco report, start asking for "2nd" opinion around 26th. Click for details...
Click for details: Update June 13th: Gum inflammation down (to 20% from December), keeping tooth, but renewing filling on the 23rd.May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

5) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

1) Symptoms well under control: GI (via elimination), pee (via GABA), LOCAL PAINS (exercises, back: via using wall/door for support), Details...

except GI: stools loose0% :white_check_mark:, appetite a little better (:white_check_mark:), pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN - nauseating10%✅, unwell10%✅, last SEIZURES Jun 16th, Jun 6th 2x, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: May 31st, before that Apr 4th (probably more often). JAW pain from tooth problems: May 10th till broken filling was taken out May 22nd.

Weather: Indoors :white_check_mark: Outdoors :white_check_mark:. Outdoors almost all day now, so no need for daylight lamp, if the sun becomes too bright and warm I do something in the cellar or the shade, making myself at home there.
Last focal seizures: Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Creatine?
SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK. Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no EGCg or pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jun 16th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 0x1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0.1g, myo-inositol 1x2x0.5g/1!d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 3x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x1x.5g, resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (2+2+1)x0.6=3.0g (as much as B3). Plus rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated Jun 16th.
“16:00” preparing pills
“17:30” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xvC#1, 2Cr#1, PF#2, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1% Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc.
B=11/ ’ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +1-2The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=20 with meal: 1xB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 2xTMG#2 2xEleu 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jun 16th

Pf: A1+A2+A3, vB2: 1C,1D, 1A. vB3: 2C,2D.1A, vB5: C,DA. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3,a4, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. (pine: C,D.) Qc: B.E.A1.A3. Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 6MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, Ru, 2 Sa, Sily, 2Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jun 16th: correct?
A1=7+1 Pf#1 Qc1#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2, Ga#1:0.3g, Hon#1, Q10, 0Se, 1TMG#1 (?Rup). = 12?
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, 0EGCg, Fev/MSM#1, Qc#3, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#4 Gi#2 Ol#1 0Pin#1 2TMG#2 2xEleu 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=13 vB2#3 "2"vB3#3 vB5#3 3xCr#3 Ga#5 Gi#3 Ol#2 0Pin#2 2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today:

Mitochondria summit:
Overview of Day1: Red Light & PEMFs as treatment, Healthy Heart, Dental Products, Hormones in Females, EMFs, Datis Kharrazian: Lifestyle.
PEMFs seem too far out to me. Healthy heart and Dental Products I already do (skimmed thru just in case), Females don’t apply.
Red Light

Quality of life

Lessons in self-care:
Reasons to be cheerful: Loads. Well what do I make of our cute li’l field mouse in the bird’s food bowl just now! Didn’t even have a problem that I appeared for a short time. But when I returned with “camera” she dropped herself down, may be visible on recording. But now I know why sometimes things are gone over night. So an apple I dropped under will be found… 8:50 a 2nd time. As long as she doesn’t start going into our cellar, which would be easy…
Simplified: Loads.
Foggies:
Adding to Successes:’
:trophy: 1) Pretty much perfected to an art - avoiding esophagus blocks by gulping supps, waiting a while between difficult foods, stopping in my tracks with the slightest pressure, or cooking certain raw veggies like carrots, or avoiding them like tofu, also alleviating the blocks by getting a block out earlier, after max. 5 minutes, instead of trying to coax it down using my massager.
:trophy: 2) Perfecting to an art is probably a good way of how I do all my treatments, prevention and alleviation alike.
:trophy: 3) Cold showering a whole limb reduces sting itch better than just locally, but still best to not rub too much with a towel, but leave it moist for extra cooling and no störung.
4) That is a List of Recent Biggest Successes.

I’m wondering whether it’s worth compiling a blog entry each just with a) all my reasons to be cheerful and b) all my lessons in self-care c) all my research. But if I or anyone wanted to peruse them they could just scroll thru the blog looking for that.

I seem to have deleted my “zaps”/ideas, “successes” and “learnt” categories?

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023

2023-06-22 Thursday:

WOW! Increased energy all day. Where the heck from? Is this sun & air? And stopping the antihistamine?

But it can’t be the weather cos today is hot, humid and then got very wet.
Spoilt by a rough evening and night which might dampen the energy tomorrow…?

What worked today?:

Antihistamine micro-dosing: 0. Screen time before sleep :x:. Windows not shut at night: a little sinus headache (:white_check_mark:), passiflora 2 not 3 (:white_check_mark:), A3-supps (:white_check_mark:)

How was I today?:

What’s this?! I didn’t even reach the limit of my energy today. There was just one or two moments in a shop where I felt like I need more oxygen, and I was tired around the eyes and face from about 6pm on. But that’s fine. I haven’t managed to adjust my table tennis playing to the new energy amounts, so I’m playing longer, but worse, yesterday till pain come up, today no pain came up, but I still lost quite a bit.

Feeling 90%-ish :white_check_mark:, energy today :white_check_mark:, sleep Wednesday night (:white_check_mark:)/(:x:), sleep Thursday night (:x:), nor more tick itch, 2 nurses I know said it’s OK again :white_check_mark::white_check_mark:, but sting itch (:x:). Nausea 0(-10)% (:white_check_mark:), fog 20% (:white_check_mark:).

Now working on… :

1) Earlier circadian rhythm for a) energy/sleep & b) PEM.

Meal times early (:white_check_mark:)(:white_check_mark:)(:white_check_mark:), but ate too little cos of going out for half an hour. Bed early / up early (:x:)(:x:) - but reasons (first 30’ of a pain talk in town mixed me up and screen time), and OK-ish. Screen time :x: → Effective sleep :x:. PEM :white_check_mark:.

1a) EXHAUSTIBILITY today: “80%". Click for today's ENERGY profile. (Slow with "2h rest"!). Aim now: Detailing & tracking my core symptom and Improving energy with 6am sunlight, air, 7pm reduced screen time, more effective sleep:

R rest: 100% exhaustion 10% of the time (2h),
VS very slow: 60% exhaustion 10% of the time (2h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 30% of the time (5h),
Q quick: 0-10% exhaustion 10% of the time (2h)
(pre-fibro: 0% exhaustion 100% of the time.)

SLEEP (click for details): 7h07, up 8x (1h3), lots of dozing & NSDR. Problems first from airing as well as getting up to collect rain water and then unfortunately come down with forum posting, exactly something I now definitely want to avoid at night. ➔ Feeling 70% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅. Nostrils 0-10% stuffy 100% of the night ✅. No sweating ✅. 4 air/, then 4x air0, headache at night, not much sinus ✅, 2x FCS ✅✅, sting itch 20% ✅

Meal time :white_check_mark:/:x:, screen time :white_check_mark:/:x:, tired :white_check_mark:/:x:
rup0 A3 A4:0 teeth0 p0 HWB#0 Sleep 22:20- with sinuses on the go after lots of screen time directly before bed. 3rd # is LBU
22:50:to cold shower 10’(?) 80%/2/15% p0 st3 sip fw2’ fl0’ doze/ air->// A4/ plugs/ cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FCS#1
(nostril/s0/0% sinuses10% headache0% sore throat10% nausea0% stomach30% hungry, at too little, tongue10% stools0 loose% drymouth20% dryhands10% zombie10% itch20%
0:02 11’ 80%/2/15% p0 st3 sip fw1’ fl0’ doze/ air/ A4/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FCS#2:0
(nostril/s0/20% sinuses10% headache0% sore throat10% nausea0% stomach10% tongue10% stools0 loose% drymouth30% dryhands10% zombie10% itch20%
0:48 12’ 80%/2/15% p0 st3 sip fw1’ fl0’ deep/ air/ A4/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FCS#2:0
(nostril/s10/0% sinuses10% headache0% sore throat10% nausea0% stomach10% tongue10% stools0 loose% drymouth30% dryhands10% zombie10% itch20%
1:10 1’ took my 19:00 sleep supps, finally remembered, rest same as before
2:05 4’ 80%/2/15% p0 st3 sip fw2’ fl0’ deep/ air0 A5/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 FCS#2:0
(nostril/s10/0% sinuses10% headache0% sore throat10% nausea0% stomach10% tongue10% stools0 loose% drymouth30% dryhands10% zombie10% itch20%
3:30 45’ headache, praps cos left windows closed? Distributed barrel.
80%/2/15% p0 st3 sip fw20’ fl0’ deep/ air0 A6/ plugs/ cream0 gel0 HWB#(0) Bedclothes: wet10% teeth0 FCS#2:0
(nostril/s10/0% sinuses10% headache30% sore throat20% nausea10% stomach10% tongue10% stools0 loose% drymouth30% dryhands10% zombie10% itch20%
4:34 8’ Dratted screen time, but the rain and the heat too. FCS#2.
80%/2/15% p0 st3 sip fw1’ fl0’ NSDR/ air0 A7/ plugs/ cream0 gel0 HWB#(0) Bedclothes: wet10% teeth0 FCS#2:0
(nostril/s0/0% sinuses20% headache30% sore throat20% nausea10% stomach10% tongue10% stools0 loose% drymouth30% dryhands10% zombie10% itch20%
6:50 5’ pee (nostril) no headache
80%/2/15% p0 st3 sip fw2’ fl0’ deep & deep doze/ air0 A8:0 plugs cream0 gel0 HWB#(0) Bedclothes: wet10% teeth0 FCS#2:0
(nostril/s0/30% sinuses0% headache0% sore throat20% nausea10% stomach10% tongue10% stools0 loose% drymouth30% dryhands10% zombie10% itch20%
-7:00
80%/2/15% p0 st3 sip fw2’ fl0’ deep/ air/ A8:0 plugs cream0 gel0 HWB#(0) Bedclothes: wet10% teeth0 FCS#2:0
(nostril/s0/10% sinuses10% headache0% sore throat20% nausea10% stomach10% tongue10% stools0 loose% drymouth30% dryhands10% zombie10% itch20%

2x FA/CS#1 :white_check_mark::white_check_mark:
Sum: 7h00+1h40-(96) = 8h40-1h33 = 7h07, up 8x (1h3), lots of dozing & NSDR.

1b) ACTIVITIESACHE = PEM (Post exertional malaise): 80%/2 :white_check_mark:, TT 2:2! (moving 20%, talking incl. counting 20%) ➔ 80%/2 :white_check_mark:, gardening/moving ➔ 80%/2 :white_check_mark:, talking ➔ 80%/2 :white_check_mark:. White lips? (:white_check_mark:)

2) Effects of “intermittent antihistamine micro dosage” & leaving window closed at night on my histaminey MCAS symptoms.

Testing micro-dosed antihistamine on gnat bite itch, praps sleep, temperature and pee. All of these OK. 0/0.1/0.2mg as needed.
18th: 0.5mg cos of tick. Itch down an hour later, but 0mg the days before and after. 20th: 0. Slight dull headache, turning into a slight sinus one, after not airing at all, except before sleep: :question: 21st: 0. Again slight headache, but wonky evening, so many triggers possible, or all.

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20% decreasing to 8-12% by end of May from new symptoms, partly from CoV itself. Triggers: Foods (esp. soy, white beanst, yeast spread, >1/2 banana), grasses slightly, Click for developments....

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

3) New 2023: Weight & Appetite Loss / Thirst / Night sweats

a) Weighing irregularly if I’m sustainably up from 74.2kg. I’m not. (:x:). But stable :white_check_mark:.
b) Meal appetite (mood?): 1st: 110% :white_check_mark: 2nd: 85% (:white_check_mark:)/:x: 3rd: 80% (time limit wasn’t good for me) :white_check_mark:
c) Thirst :x:, dry mouth at night :x:.
d) Night sweats OK. (:white_check_mark:), but still…:

4) Docs: Asking oncologists about cancer/autoimmune (as GP & wife recommend, altho I think #3 was T4 and CoV, but also something unknown autoimmune).

Last DOC update June 21st: Tick check. June 13th: Gum inflammation down (to 20% from December), keeping tooth, but renewing filling on the 23rd. Waiting for onco report, start asking for "2nd" opinion around 26th. Click for details...
Click for details: Update June 13th: Gum inflammation down (to 20% from December), keeping tooth, but renewing filling on the 23rd.May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

5) Under control, attention necessary :white_check_mark:/(:white_check_mark:):

1) Symptoms well under control: GI (via elimination), pee (via GABA), LOCAL PAINS (exercises, back: via using wall/door for support), Details...

except GI: stools loose0% :white_check_mark:, appetite a little better (:white_check_mark:), pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:

2) Symptoms fairly under control - click for details on Weather: SUN - nauseating10% ✅, unwell10% ✅, last SEIZURES Jun 16th, Jun 6th 2x, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: May 31st, before that Apr 4th (probably more often). JAW pain from tooth problems: May 10th till broken filling was taken out May 22nd.

Weather: Indoors :white_check_mark: Outdoors :white_check_mark:. Outdoors almost all day now, so no need for daylight lamp, if the sun becomes too bright and warm I do something in the cellar or the shade, making myself at home there.
Last focal seizures: Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd. June 6th: I think I need to get both teeth done, cos they’re causing a lot of problems that I can’t prevent any more.

Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Creatine?
SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 30’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps June 15th/16th: 42 supps, costs 470€/m +20€/m cps. Schedule TODAY: OK. Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:

69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.

ZERO now (no EGCg or pine/OPC atm): Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jun 16th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 0x1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0.1g, myo-inositol 1x2x0.5g/1!d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 3x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 0x2x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x1x.5g, resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (2+2+1)x0.6=3.0g (as much as B3). Plus rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))

What-when-details: Updated Jun 16th.
“16:00” preparing pills
“17:30” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xvC#1, 2Cr#1, PF#2, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ +0xylitol. Back exercises. 0Soak seeds. 0aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1% Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc.
B=11/ ’ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +1-2The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=20 with meal: 1xB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1 (pine bark#1) 2xTMG#2 2xEleu 2threo. PEA Rutin = 20. (vit.D3 1/wk)
0 xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 2xTMG#3
0 xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jun 16th

Pf: A1+A2+A3, vB2: 1C,1D, 1A. vB3: 2C,2D.1A, vB5: C,DA. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3,a4, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. (pine: C,D.) Qc: B.E.A1.A3. Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 6MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, Ru, 2 Sa, Sily, 2Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jun 16th: correct?
A1=7+1 Pf#1 Qc1#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2, Ga#1:0.3g, Hon#1, Q10, 0Se, 1TMG#1 (?Rup). = 12?
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, 0EGCg, Fev/MSM#1, Qc#3, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#4 Gi#2 Ol#1 0Pin#1 2TMG#2 2xEleu 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=13 vB2#3 "2"vB3#3 vB5#3 3xCr#3 Ga#5 Gi#3 Ol#2 0Pin#2 2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.

‘Research’ today:

Mitochondria summit:
Day 2: Gut, Urolithin A, Osteoporosis, C60, Eat/Exercise, Stress, Algae, Methylene Blue…Didn’t learn much that I felt was useful. I still have some algae powder, but I hated eating them, one of the things that brought my appetite down.

Quality of life

Lessons in self-care: Didn’t feel I needed to keep to previous sweet spots. However forgot that sleep still has to work, so early eating and reduced screen time, which went wrong from the combination of my wife wanting me to come with her to the pain talk, at least short, and then the water
Reasons to be cheerful: Loads. Is this my way back up?
Simplified: Loads.
Foggies: A few things where I should have known better, but that’s praps just my limited brain.

Development

Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023