JayCS’s Fibro Blog

2023-05-20, Saturday - 2 family members visiting for 6h, but I made sure to take loads of breaks from them, and my wife helped by going on a long walk with them.

Exhaustibility “88%". Click for details (but same profile as the days before):

R rest: 100% exhaustion 25% of the time (4h),
VS very slow: 60% exh. 45% of the time (7h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 0% of the time,
Q quick: 0-10% exhaustion 0% of the time
(pre-fibro: 0% exhaustion 100% of the time.)

Weight TODAY 20th 74.2kg = if at all lost weight? Why then weigh? Hasn't changed in 4 weeks. But at least I'm seeing I'm not wasting away. Click for details.

empty without meal e and if possible emptied = e, half-emptied = (e), empty of B-supps/milk = ‘e’, if not emptied = ‘x’, bedclothes 0.9kg, outdoor clothes 1.8kg, B-supps 0.4kg? excr. varies,
20th: 5.1kg eex+bc 74.2kg exx
19th: 19th: 75.0/0/74.7k/g eex-
18th: 76.1kg exe+bc 75.0/74.7/9kg eex
17th: 75.8/8/6kg exe 75.6/6/9/9kg exe (after shower)
16th: 75.2/5/2kg eee+bc0 scales/2nd emptying.
15th: 75.5/7/3/6kg eex
14th: 76.5/1kg exe with bc. That’d be 75.2 exx without?
13th: 74.9kg eex.
12th: 74.3 eex (75.2kg/75.5kg xxe 74.2/74.3kg/74.3 eex)
11th: 74.4kg (eex)
(75.5kg/75.3kg xxe 75.6kg xxx 74.6kg/74.7kg/74.4kg/74.4kg/74.4kg (eex)
10th: 74.9kg xxe 74.2kg exe
9th: 75.3kg xxe 74.4kg eee
8th: 75.7kg xxe, 76.0kg xxx 75.1kg exx, 75.0kg exx after shower.
7th: 75.8/76.0kg. (down from 76.2kg half an hour ago?!) in bedclothes. Down to 75.7kg after 100ml pee. Still 75.1/75.2kg exe after clothes off before showering.
6th: 76.1kg/75.9kg xxe with bedstuff on. 75.9kg / 75.6kg with bedclothes, 74.8kg exe without.
5th: (14:45 - normally around 7:00 75.3kg (e)xe)
4th 74.7kg exx (74.9 xxe, 75.4 xxx, 75,8 xxx, 75.5 xxx 75.6 xxx 74.7 exx, after shower 74.8 exx… O.o.
3rd 76.4-5kg xxx 75.6 eex
2nd 75.4kg exe
1st 75.9/76.0kg with clothes, 75.2kg xex - 0.9 = 74,3kg.
30th 74.7kg with clothes. 74.2kg after supps without clothes before loo. 74.4kg! after excr?!? 74.5kg after shower. 76.4kg with indoor clothes on.
29th 74.6kg exe, 75.5kg with bedclothes on = 0.9kg! B-supps: 75.0kg = 400g. + bedclothes = 75.9kg = 900g confirmed. excre: 74.5kg e(e)e - only 0.1kg… 2nd time 74.6kg e(e)e = 0.0! Shower = 74.6kg e(x)e, but 5’ later after sorting clothes = 74.2kg e(x)e. 1’ later 74.4kg + 74.4kg + 74.4kg. Holding normal clothes amount 76.2kg/76.2kg = 1.8kg
28th 75.0kg exe, 75.2kg exx (i.e. B-supps = 200g) 75.0kg eex (i.e. small excr. = 200g today), showering puts on 100mg I think it was, night clothes back on 75.8kg, so they are 600g?
27th 74.9kg exe
26th 73.5kg eee (fully e)
25th 74.2kg eee
24th 74.3kg e((e))e
23rd 73.9kg exx 73.8 eex
22nd 73.6kg e, NOT e! not e
21st 74.0kg ee
20th 73.8kg ee
19th 74.0kg
18th 73.5kg
16th 73.9kg
14th 72.8kg
13th 73.6kg

Food: 1st: 110% 2nd: 80% 3rd: 80%

Successes: :trophy:
:zap: Slight correction to yesterday: The dropping and cutting isn’t necessarily a brain foggy tho, it’s a “body foggy”(?)

Sleep 90% / Feeling 80%-ish / nausea 0%, fog 30%

New Habits: Changing lots all the time. Click for what I'm working on. Sharp pulling forward of sleep to 10 to 6 from Apr 20th on has now turned my life around ✅, pulling everything forward further ✅.

:ambulance: Bed 21:30-5:30. (:white_check_mark:)
:ambulance: Note thoughts and emotions (ACT) (:white_check_mark:)

Today's FM symptoms unchanged from WPI 11 & SSS 9-1=8, except....: +0: (Often I forget.) (Click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (30-60%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (88%), insomnia 2 (10%), fog 2 (30%), headache (0?) (?10…%), GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20%. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn't get more. May 16th: Soy yoghurt & yeast veg. spread: 20h sinus headache.May 6th/7th: Baked beans. May 1st: white beans. Click for developments:

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more.

SLEEP (click for details): 8h15, up 3x (21), all deep. ✅ ➔ Feeling 70% well, Ache 3 of 7 ❌, getting up: 70%/3 ❌. Nostrils 0-5% stuffy 100% of the night ✅. Wet at 2, changing duvets helped tho. Gum inflammation hurts every time I get up.

A3 A4:0 teeth0 cold shower0 p0 HWB#0 Sleep 22:50- 3rd # is LBU
1:53 5’ 70%/2/15% p0 st3 sip fw2’ deep/ air/ A4/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet10%: lighter duvets. teeth0 alternate shower0
(nostril/s0/5% sinuses5% headache0% sore throat10%, nausea0% stomach0% tongue5% stools0 loose%) FA/CS#0 tooth40%
3:10 10’ 70%/2/15% p0 st3 sip fw6’ deep/ air/ A5/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/5% sinuses10% headache0% sore throat10%, nausea0% stomach0% tongue15% stools0 loose%) FA/CS#0 tooth20%
5:20 6’ 70%/3/15% p0 st3 sip fw2’ deep/ air/ A6/ plugs0 cream/ gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s5/0% sinuses10% headache0% sore throat10%, nausea10% stomach10% tongue15% stools0 loose%) FA/CS#0 75.1kg exe tooth20% (hurts upon getting up)
-7:26 70%/3/15% p0 st3 sip fw2’ deep/ air/ A6/ plugs0 cream/ gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s5/0% sinuses10% headache0% sore throat10%, nausea10% stomach10% tongue15% stools0 loose%) FA/CS#0 75.1kg eex+bc 74.2kg exx tooth20% (hurts upon getting up)

Sum: 7h26+1h10-(5+10+6=)21 = 8h36-21 = 8h15, up 3x (21), all deep.

ACTIVITIESACHE: 70%/3 :white_check_mark:, TT 0, cos of 2 family members visiting = peopling/talking, where I kept up self-care ➔ 60-80%/3-5? :x:, gardening/moving ➔ 70-80%/3 :white_check_mark:/ :x:.

ACTIONS ➔ PAINS ✅/(✅): GI, appetite, esophagus, pee, back, lips. Details...

except GI: stools loose0% :white_check_mark:, appetite a little better (:white_check_mark:), esophagus: if I’m extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:, finger tips: better. (:white_check_mark:). Lip soreness better since fungal cream (:white_check_mark:), but lips still often white, esp. when pressed, meaning overexertion according to my wife (:x:). Still often thirsty / dry lips & mouth (:x:)

Click for details on Weather: sun nauseating0% ✅, last seizures May 14th/13th, Apr 16th/15th, last esophagus block: Apr 4th, jaw pain from tooth problems: May 10th...

Touch: :white_check_mark: Covid: :x: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:/:x:. Outdoors almost all day now, so no need for daylight lamp, if the sun becomes too bright and warm I do something in the cellar or the shade, making myself at home there.
Last focal seizures: May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck.

Treatments

Last doc update May 3rd. Self-treatments & supps stable - May 15th: stretches helping wrists, not enough back exercises, and colostrum not tolerated, creatine next. Click for details.
Click for details: Update May 3rd: onco prof/doc is sick. Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): OK Wrists: more (✅), got a problem on my right fore-arm now, so need to continue with that, jaw-joint: to do (❌). Air + light + movement all day. ✅

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m. MAY 4th: Encapsulating outside, which is helping me to get more prepared in time. Keeping to schedule TODAY: OK (except I keep taking the 21:00 supps at bedtime, i.e. 22:00-23:00. MAY 12th: Got Silymarin now, and Creatine, do them after colostrum. ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today: No.
Lessons in self-care #669 Made sure I don’t feel obliged to anything. I know my family know.
Reasons to be cheerful #719 Loads. a) Family visited, stints and breaks. b) Blackbird still nearer. c) Decided to listen to Blacky’s evensong from a high fir tree nearby. Now a tiger warning siren, towards it, then back on the fir, calmed and back to singing. 3 years ago I recorded that Blacky who would sing from the tree behind and the tree in front of our house, really near. Last 2 years nobody nearby. So this is progress. Now he’s back to his evensong again. Never realized they switched so quickly from warning to joy. Got to make the most of it as he started late this year, in April/May, and they often end in June. Lucky Reddy Robin sings all year and sings similarly good. Ended 21:34, but someone else is singing quietly - I spose Reddy? 22:00 Reddy is giving a concert for a few seconds or minutes from every tree in the yard, he’s always first in the mornings and last in the evenings.
Simplified #118 Loads. a) Managed quicker evening routine. b)
Foggies: The other day I wrote “for effective to me” instead of more. *My “foggies” are changing. The words I wrote wrong used to be more similar to each other. And it takes me longer to recognize a mistake, I used to see it immediately after writing.

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

2023-05-21, Sunday - doing nothing much today except finding out what all my plants are called using the RHS’s tool :smile:

Exhaustibility “88%". Click for details (but same profile as the days before):

R rest: 100% exhaustion 25% of the time (4h),
VS very slow: 60% exh. 45% of the time (7h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 0% of the time,
Q quick: 0-10% exhaustion 0% of the time
(pre-fibro: 0% exhaustion 100% of the time.)

Weight 20th 74.2kg 21st May = 10th = Apr 30th, so less regularly. Click for details.

empty without meal e and if possible emptied = e, half-emptied = (e), empty of B-supps/milk = ‘e’, if not emptied = ‘x’, bedclothes 0.9kg, outdoor clothes 1.8kg, B-supps 0.4kg? excr. varies,
21st:
20th: 20th: 74.2kg exx (75.1kg eex+bc)
19th: 19th: 75.0/0/74.7k/g eex-
18th: 76.1kg exe+bc 75.0/74.7/9kg eex
17th: 75.8/8/6kg exe 75.6/6/9/9kg exe (after shower)
16th: 75.2/5/2kg eee+bc0 scales/2nd emptying.
15th: 75.5/7/3/6kg eex
14th: 76.5/1kg exe with bc. That’d be 75.2 exx without?
13th: 74.9kg eex.
12th: 74.3 eex (75.2kg/75.5kg xxe 74.2/74.3kg/74.3 eex)
11th: 74.4kg (eex)
(75.5kg/75.3kg xxe 75.6kg xxx 74.6kg/74.7kg/74.4kg/74.4kg/74.4kg (eex)
10th: 74.9kg xxe 74.2kg exe
9th: 75.3kg xxe 74.4kg eee
8th: 75.7kg xxe, 76.0kg xxx 75.1kg exx, 75.0kg exx after shower.
7th: 75.8/76.0kg. (down from 76.2kg half an hour ago?!) in bedclothes. Down to 75.7kg after 100ml pee. Still 75.1/75.2kg exe after clothes off before showering.
6th: 76.1kg/75.9kg xxe with bedstuff on. 75.9kg / 75.6kg with bedclothes, 74.8kg exe without.
5th: (14:45 - normally around 7:00 75.3kg (e)xe)
4th 74.7kg exx (74.9 xxe, 75.4 xxx, 75,8 xxx, 75.5 xxx 75.6 xxx 74.7 exx, after shower 74.8 exx… O.o.
3rd 76.4-5kg xxx 75.6 eex
2nd 75.4kg exe
1st 75.9/76.0kg with clothes, 75.2kg xex - 0.9 = 74,3kg.
30th 74.7kg with clothes. 74.2kg after supps without clothes before loo. 74.4kg! after excr?!? 74.5kg after shower. 76.4kg with indoor clothes on.
29th 74.6kg exe, 75.5kg with bedclothes on = 0.9kg! B-supps: 75.0kg = 400g. + bedclothes = 75.9kg = 900g confirmed. excre: 74.5kg e(e)e - only 0.1kg… 2nd time 74.6kg e(e)e = 0.0! Shower = 74.6kg e(x)e, but 5’ later after sorting clothes = 74.2kg e(x)e. 1’ later 74.4kg + 74.4kg + 74.4kg. Holding normal clothes amount 76.2kg/76.2kg = 1.8kg
28th 75.0kg exe, 75.2kg exx (i.e. B-supps = 200g) 75.0kg eex (i.e. small excr. = 200g today), showering puts on 100mg I think it was, night clothes back on 75.8kg, so they are 600g?
27th 74.9kg exe
26th 73.5kg eee (fully e)
25th 74.2kg eee
24th 74.3kg e((e))e
23rd 73.9kg exx 73.8 eex
22nd 73.6kg e, NOT e! not e
21st 74.0kg ee
20th 73.8kg ee
19th 74.0kg
18th 73.5kg
16th 73.9kg
14th 72.8kg
13th 73.6kg

Food: 1st: 80% (fruit, veg & nuts instead of muesli) 2nd: 80% 3rd: 80%

Sleep 90% / Feeling 80%-ish / nausea 0%, fog 30%
Successes: :trophy: :zap: Learnt: :student:

New habits - for what I'm changing see "simplfied". Early outside bird now, lots of early sun, light & air. ✅

:ambulance: Bed 21:30-5:30. (:white_check_mark:)
:ambulance: Note thoughts and emotions (ACT) (:white_check_mark:)

Today's FM symptoms unchanged from WPI 11 & SSS 9-1=8, except: +1 jaw worse again (Click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (30-60%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 1 (20-50%, up again)
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (89%), insomnia 2 (10%), fog 2 (30%), headache (0), GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20%. May 21st: A bit of yeast spread alone without soy & without DAO before was OK. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn't get more. May 16th: Soy yoghurt & yeast veg. spread: 20h sinus headache.May 6th/7th: Baked beans. May 1st: white beans. Click for developments:

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 21st: A bit of yeast spread alone without soy & without DAO before was OK.

SLEEP (click for details): 5h55 up 3x (1h09), all deep, + 14' doze. ✅ ➔ Feeling 60-80% well, Ache 2-3 of 7 ❌, getting up: 70%/3 ❌. Nostrils 0% stuffy 100% of the night ✅✅! No sweat, despite weather warming up and warmest duvets.

A3 A4:0 teeth0 cold shower0 p0 HWB#0 Sleep 22:35- 3rd # is LBU
23:37 40’ 6 80%/2/15% p0 st3 sip fw2’ deep/ air/ A4/ plugs0 cream/ gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/0% sinuses0% headache0% sore throat10%, nausea0% stomach0% tongue5% stools0 loose%) FA/CS#0 .kg xxx tooth → tea tree
1:45 6’ 80%/2/15% p0 st3 sip fw2’ deep/ air/ A5/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/0% sinuses0% headache0% sore throat10%, nausea0% stomach0% tongue5% stools0 loose%) FA/CS#0 .kg xxx tooth → tea tree/
3:39 23’ (bought supps) 70-80%/3-2/15% p0 st3 sip fw2’ deep/ air/ A6/ plugs0 cream0 gel0 HWB#(0) Bedclothes (warmest duvets): wet0% teeth0 alternate shower0
(nostril/s0/0% sinuses0% headache0% sore throat10%, nausea0% stomach0% tongue5% stools0 loose%) FA/CS#0 .kg xxx tooth 20% → tea tree/ → stomach60% → sip.
5:39-6:22 43’ cos of tooth 70-60%/3-2/15% p0 st3 sip fw20’ deep/ air/ A7:0 plugs0 cream0 gel0 HWB#(0) Bedclothes (warmest duvets): wet0% teeth0 alternate shower0
(nostril/s0/0% sinuses0% headache0% sore throat10%, nausea0% stomach0% tongue5% stools0 loose%) FA/CS#0 .kg xxx tooth after turning to the left while lying down: 70% → tea tree/ → stomach20% as sip before. Don’t know why it’s suddenly got worse after treating it all night, maybe too much tea tree oil?
-6:36, but that wasn’t sleep, the ‘project’ stuff came up again, and I was thinking the talk on Friday didn’t make anything better, probably because I summarized it afterwards in a mail and trying to make the best of it, but there has been no reaction, which is leaving me too much room for speculation.
Sum: 5h39+1h25-(40+6+23=)1h09 = 7h04-1h09 = 5h55 up 3x (1h09), all deep, + 14’ doze.

ACTIVITIESACHE: 80%/2 :white_check_mark:, TT 4:0 (picking up 0 balls, talking 10%,) ➔ 80%/3 :x:, not gardening/moving much (:white_check_mark:), resting almost all day ➔ 80%/2 :white_check_mark:, not talking much either (:white_check_mark:).

ACTIONS ➔ PAINS ✅/(✅): GI, appetite, esophagus, pee, back, lips. 5+ gnat bites in the evening, I'll be using pieco-electric clicker, that works best for me. Details...

except GI: stools loose0% :white_check_mark:, appetite a little better (:white_check_mark:), esophagus: if I’m extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:, finger tips: better. (:white_check_mark:). Lip soreness better since fungal cream (:white_check_mark:), but lips still often white, esp. when pressed, meaning overexertion according to my wife (:x:). Still often thirsty / dry lips & mouth (:x:)

Click for details on Weather: sun nauseating0% ✅, last seizures May 14th/13th, Apr 16th/15th, last esophagus block: Apr 4th, jaw pain from tooth problems: May 10th...

Touch: :white_check_mark: Covid: :x: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:/:x:. Outdoors almost all day now, so no need for daylight lamp, if the sun becomes too bright and warm I do something in the cellar or the shade, making myself at home there.
Last focal seizures: May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck.

Treatments

Last doc update May 3rd. Self-treatments & supps stable - May 15th: stretches helping wrists, not enough back exercises, and colostrum not tolerated, creatine next. Click for details.
Click for details: Update May 3rd: onco prof/doc is sick. Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): OK. Wrists: more (✅), right forearm bad, now better (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m. MAY 4th: Encapsulating outside, which is helping me to get more prepared in time. Keeping to schedule TODAY: OK. MAY 12th: Got Silymarin now, and Creatine, do them after colostrum. ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today: No.
Lessons in self-care #670 a) Managed to put tea tree oil on my inflamed gum many times the last two days, and yesterday it started getting better, even directly after eating it didn’t hurt too much. Interested how it fares tonight, 20th to 21st: Better at first, but worse towards the morning, when I lie down on that side. b) Didn’t do much at all today, not even church.
Reasons to be cheerful #720 Loads. a) One of the biggies today was finding the site of the RHS and using their plant identification. I now know almost every single flower, incl. wild flowers and can better judge what I might want to plant somewhere else and also I can look up what might be poisonous for our guinea pigs. b) My wife was out in the garden with the guinea pigs twice for quite a time today, probably almost 3h, which is very nice. c) Looking forward to planting seeds in new pots.
Simplified #119 Loads. Improving the way I do my supps (smaller boxes) and again moving stuff around.
Foggies: Weird that I say when things keep falling around me, I have body foggies, yet I’m often playing very precise table tennis the past weeks, however much energy I have. It also often seems as if I play more precise if I use less energy. It does vary quite a bit tho. Today I played ‘perfectly’ - surprised myself. Which as a mate said on Friday is a great asset and compensation.

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

2023-05-22, Monday - dentist found (after looking 3x) my gum inflammation came from a crack in my tooth, so had to crack that bit of tooth off, after that, the pain gradually got much better towards the evening, even eating (an anaesthetic jab in the inflammation made me kick out in the chair). And much too much peopling at the moment. Not more than an hour I spose, but too much all the same.

Exhaustibility “88%". Click for details (but same profile as the days before):

R rest: 100% exhaustion 25% of the time (4h),
VS very slow: 60% exh. 45% of the time (7h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 0% of the time,
Q quick: 0-10% exhaustion 0% of the time
(pre-fibro: 0% exhaustion 100% of the time.)

Weight 20th May 74.2kg = 10th = Apr 30th, so less regularly. Click for details.

empty without meal e and if possible emptied = e, half-emptied = (e), empty of B-supps/milk = ‘e’, if not emptied = ‘x’, bedclothes 0.9kg, outdoor clothes 1.8kg, B-supps 0.4kg? excr. varies,
22nd: 74.7kg exx
20th: 20th: 74.2kg exx (75.1kg eex+bc)
19th: 19th: 75.0/0/74.7k/g eex-
18th: 76.1kg exe+bc 75.0/74.7/9kg eex
17th: 75.8/8/6kg exe 75.6/6/9/9kg exe (after shower)
16th: 75.2/5/2kg eee+bc0 scales/2nd emptying.
15th: 75.5/7/3/6kg eex
14th: 76.5/1kg exe with bc. That’d be 75.2 exx without?
13th: 74.9kg eex.
12th: 74.3 eex (75.2kg/75.5kg xxe 74.2/74.3kg/74.3 eex)
11th: 74.4kg (eex)
(75.5kg/75.3kg xxe 75.6kg xxx 74.6kg/74.7kg/74.4kg/74.4kg/74.4kg (eex)
10th: 74.9kg xxe 74.2kg exe
9th: 75.3kg xxe 74.4kg eee
8th: 75.7kg xxe, 76.0kg xxx 75.1kg exx, 75.0kg exx after shower.
7th: 75.8/76.0kg. (down from 76.2kg half an hour ago?!) in bedclothes. Down to 75.7kg after 100ml pee. Still 75.1/75.2kg exe after clothes off before showering.
6th: 76.1kg/75.9kg xxe with bedstuff on. 75.9kg / 75.6kg with bedclothes, 74.8kg exe without.
5th: (14:45 - normally around 7:00 75.3kg (e)xe)
4th 74.7kg exx (74.9 xxe, 75.4 xxx, 75,8 xxx, 75.5 xxx 75.6 xxx 74.7 exx, after shower 74.8 exx… O.o.
3rd 76.4-5kg xxx 75.6 eex
2nd 75.4kg exe
1st 75.9/76.0kg with clothes, 75.2kg xex - 0.9 = 74,3kg.
30th 74.7kg with clothes. 74.2kg after supps without clothes before loo. 74.4kg! after excr?!? 74.5kg after shower. 76.4kg with indoor clothes on.
29th 74.6kg exe, 75.5kg with bedclothes on = 0.9kg! B-supps: 75.0kg = 400g. + bedclothes = 75.9kg = 900g confirmed. excre: 74.5kg e(e)e - only 0.1kg… 2nd time 74.6kg e(e)e = 0.0! Shower = 74.6kg e(x)e, but 5’ later after sorting clothes = 74.2kg e(x)e. 1’ later 74.4kg + 74.4kg + 74.4kg. Holding normal clothes amount 76.2kg/76.2kg = 1.8kg
28th 75.0kg exe, 75.2kg exx (i.e. B-supps = 200g) 75.0kg eex (i.e. small excr. = 200g today), showering puts on 100mg I think it was, night clothes back on 75.8kg, so they are 600g?
27th 74.9kg exe
26th 73.5kg eee (fully e)
25th 74.2kg eee
24th 74.3kg e((e))e
23rd 73.9kg exx 73.8 eex
22nd 73.6kg e, NOT e! not e
21st 74.0kg ee
20th 73.8kg ee
19th 74.0kg
18th 73.5kg
16th 73.9kg
14th 72.8kg
13th 73.6kg

Food: 1st: 100% 2nd: 85% 3rd: 85%

Sleep 90% / Feeling 70-80%-ish / nausea 0%, fog 30%

New habits - for what I'm changing see "simplfied". I'm an 'early outside bird' now, lots of early sun, light & air all day! ✅

:ambulance: Bed 21:30-5:30. (:white_check_mark:)
:ambulance: Note thoughts and emotions (ACT) (:white_check_mark:)

Today's FM symptoms unchanged from WPI 11 & SSS 9-1=8, except....: +1: jaw (Often I forget.) (Click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (30-60%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 1 (10-60%, till dentist 100%, then gradually down to 10-30%)
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (88%), insomnia 2 (10%), fog 2 (30%), headache (0?) (?10…%), GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20%. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn't get more. May 16th: Soy yoghurt & yeast veg. spread: 20h sinus headache.May 6th/7th: Baked beans. May 1st: white beans. Click for developments:

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more.

SLEEP (click for details): 8h10, up 3x (38), all deep. ✅ ➔ Feeling 70% well, Ache 2 of 7 ❌, getting up: 60%/2-3 ❌, feeling weak, ill, slightly feverish, slightly nauseous, but better after waking up and even managing cold showering. Nostrils 0-5% stuffy 100% of the night ✅. Forgot A2+A3 GABA again, wrote reminder on its tub. Dentist best tomorrow. Leaving gnat bites alone seems best, like with stinging nettles - I know once I start clicking I can't stop. Warmest duvets all night was best tonight, no sweating.

A3 A4:0 teeth0 cold shower0 p0 HWB#0 Sleep 23:25- 3rd # is LBU
1:15 5’ 70%/2/15% p0 st3 sip fw2’ deep/ air/ A4:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/5% sinuses5% headache0% sore throat5%, nausea0% stomach10% tongue5% (despite yeast) stools0 loose%) FA/CS#0 tooth 50% gnat bites 40% (not using anything seems better.).
2:55 18’ 70%/2/15% p0 st3 sip fw2’ deep/ air/ A4/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/5% sinuses5% headache0% sore throat5%, nausea0% stomach10% tongue5% (despite yeast) stools0 loose%) FA/CS#0 tooth 50% gnat bites 40% (not using anything seems better.).
5:12 15’? 70%/2/15% p0 st3 sip fw2’ deep/ air/ A5/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/0% sinuses5% headache0% sore throat10%, nausea0% stomach10% tongue5% (despite yeast) stools0 loose%) FA/CS#0 tooth 30% gnat bites 40%(
-8:13 70%/2/15% p0 st3 sip fw2’ deep/ air/ A6:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/0% sinuses5% headache0% sore throat10%, nausea0% stomach10% tongue5% (despite yeast) stools0 loose%) FA/CS#0 tooth 50-20% gnat bites 30% 74.7kg exx
Sum: 8h13+0h35-(5+18+15=)38 = 8h48-38 = 8h10, up 3x (38), all deep. Forgot A2+A3 GABA again, wrote reminder on its tub. Dentist best tomorrow. Leaving gnat bites alone seems best, like with stinging nettles - I know once I start clicking I can’t stop. Warmest duvets all night was best tonight.

ACTIVITIESACHE: 80%/2 :white_check_mark:, gardening/moving/walking extremely slowly ➔ 80%/2 :white_check_mark:, talking ➔ 80%/3 :x:.

ACTIONS ➔ PAINS ✅/(✅): GI, appetite, esophagus, pee, back, lips. Details...

except GI: stools loose0% :white_check_mark:, appetite a little better (:white_check_mark:), esophagus: if I’m extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:, finger tips: better. (:white_check_mark:). Lip soreness better since fungal cream (:white_check_mark:), but lips still often white, esp. when pressed, meaning overexertion according to my wife (:x:). Still often thirsty / dry lips & mouth (:x:)

Click for details on Weather: sun nauseating10%, 10% of the time in sun ✅, last seizures May 14th/13th, Apr 16th/15th, last esophagus block: Apr 4th, jaw pain from tooth problems: May 10th...

Touch: :white_check_mark: Covid: :x: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:/:x:. Outdoors almost all day now, so no need for daylight lamp, if the sun becomes too bright and warm I do something in the cellar or the shade, making myself at home there.
Last focal seizures: May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck.

Treatments

Last doc update May 3rd. Self-treatments & supps stable - May 15th: stretches helping wrists, not enough back exercises, and colostrum not tolerated, creatine next. Click for details.
Click for details: Update May 3rd: onco prof/doc is sick. Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): OK Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m. MAY 4th: Encapsulating outside, which is helping me to get more prepared in time. Keeping to schedule TODAY: OK. MAY 12th: Got Silymarin now, and Creatine, do them after colostrum. ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today: No.

Lessons in self-care #670

a) I want to learn the nicest names of the flowers to call them that, as well as the most common ones.

The common wallflower is amazing, so I definitely prefer to call it the German name, Goldlack - golden lacquer. Whilst I’m not going to choose between German donkey’s ear (donkeys are wonderful), rabbit’s ear, or English bunnie’s ear, lamb’s ear or bear’s ear. But I prefer fairy bellflower to peach leaved bellflower.

b) By dosing down the energy I managed a long very slow walk.
c) Too much peopling going on around me, so I’m counter-acting that.

Reasons to be cheerful #720 Loads. a) The wall lettuce has started blossoming: almost like a dandelion, good to see these connections. b) Amazing to realize that the word box probably comes from the buxus = box tree, cos of it’s slow growth and thus hard even wood without rings. c) Long walk d) Identified lots more plants. e) Started learning the names. f) Started mapping out the garden plants and that way saw that there are quite a few still to be identified.
Simplified #119 Loads. 3 more improvements to my supp tubs.
Foggies: About 10 completely wrong words with my wife. Not dropping too much.

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

2023-05-23, Tuesday -

Exhaustibility “88%". Click for details (but same profile as the days before):

R rest: 100% exhaustion 25% of the time (4h),
VS very slow: 60% exh. 45% of the time (7h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 0% of the time,
Q quick: 0-10% exhaustion 0% of the time
(pre-fibro: 0% exhaustion 100% of the time.)

Weight 21st May 74.2kg = 10th = Apr 30th, so less regularly. Click for details.

empty without meal e and if possible emptied = e, half-emptied = (e), empty of B-supps/milk = ‘e’, if not emptied = ‘x’, bedclothes 0.9kg, outdoor clothes 1.8kg, B-supps 0.4kg? excr. varies,
22nd: 74.7kg exx
20th: 20th: 74.2kg exx (75.1kg eex+bc)
19th: 19th: 75.0/0/74.7k/g eex-
18th: 76.1kg exe+bc 75.0/74.7/9kg eex
17th: 75.8/8/6kg exe 75.6/6/9/9kg exe (after shower)
16th: 75.2/5/2kg eee+bc0 scales/2nd emptying.
15th: 75.5/7/3/6kg eex
14th: 76.5/1kg exe with bc. That’d be 75.2 exx without?
13th: 74.9kg eex.
12th: 74.3 eex (75.2kg/75.5kg xxe 74.2/74.3kg/74.3 eex)
11th: 74.4kg (eex)
(75.5kg/75.3kg xxe 75.6kg xxx 74.6kg/74.7kg/74.4kg/74.4kg/74.4kg (eex)
10th: 74.9kg xxe 74.2kg exe
9th: 75.3kg xxe 74.4kg eee
8th: 75.7kg xxe, 76.0kg xxx 75.1kg exx, 75.0kg exx after shower.
7th: 75.8/76.0kg. (down from 76.2kg half an hour ago?!) in bedclothes. Down to 75.7kg after 100ml pee. Still 75.1/75.2kg exe after clothes off before showering.
6th: 76.1kg/75.9kg xxe with bedstuff on. 75.9kg / 75.6kg with bedclothes, 74.8kg exe without.
5th: (14:45 - normally around 7:00 75.3kg (e)xe)
4th 74.7kg exx (74.9 xxe, 75.4 xxx, 75,8 xxx, 75.5 xxx 75.6 xxx 74.7 exx, after shower 74.8 exx… O.o.
3rd 76.4-5kg xxx 75.6 eex
2nd 75.4kg exe
1st 75.9/76.0kg with clothes, 75.2kg xex - 0.9 = 74,3kg.
30th 74.7kg with clothes. 74.2kg after supps without clothes before loo. 74.4kg! after excr?!? 74.5kg after shower. 76.4kg with indoor clothes on.
29th 74.6kg exe, 75.5kg with bedclothes on = 0.9kg! B-supps: 75.0kg = 400g. + bedclothes = 75.9kg = 900g confirmed. excre: 74.5kg e(e)e - only 0.1kg… 2nd time 74.6kg e(e)e = 0.0! Shower = 74.6kg e(x)e, but 5’ later after sorting clothes = 74.2kg e(x)e. 1’ later 74.4kg + 74.4kg + 74.4kg. Holding normal clothes amount 76.2kg/76.2kg = 1.8kg
28th 75.0kg exe, 75.2kg exx (i.e. B-supps = 200g) 75.0kg eex (i.e. small excr. = 200g today), showering puts on 100mg I think it was, night clothes back on 75.8kg, so they are 600g?
27th 74.9kg exe
26th 73.5kg eee (fully e)
25th 74.2kg eee
24th 74.3kg e((e))e
23rd 73.9kg exx 73.8 eex
22nd 73.6kg e, NOT e! not e
21st 74.0kg ee
20th 73.8kg ee
19th 74.0kg
18th 73.5kg
16th 73.9kg
14th 72.8kg
13th 73.6kg

Food: 1st: 100% 2nd: 80% 3rd: 80%

Sleep 90% / Feeling 80%-ish / nausea 0%, fog 30%
Successes: :trophy: :zap: Gnat bites can get to be a histamine problem.

New habits - for what I'm changing see "simplfied". I'm an 'early outside bird' now, lots of early sun, light & air all day! ✅

:ambulance: Bed 21:30-5:30. (:white_check_mark:)
:ambulance: Note thoughts and emotions (ACT) (:white_check_mark:)

Today's FM symptoms unchanged from WPI 11 & SSS 9-1=8, except....: +0: jaw better today, not worth counting. (Click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (30-60%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0 (0-20)
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (88%), insomnia 2 (10%), fog 2 (30%), headache (0?) (?10…%), GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20%. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn't get more. May 16th: Soy yoghurt & yeast veg. spread: 20h sinus headache.May 6th/7th: Baked beans. May 1st: white beans. Click for developments:

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more.

SLEEP (click for details): 4h54, up 3x (3h18), all deep. Gnat bites woke me up, not touching didn't work tonight, but putting stuff and piezo zaps on neither. So up long. Histamine problem I guess, let's see if I manage the next night without antihistamine, praps trying a cold shower after all? ✅ ➔ Feeling 70% well, Ache 2 of 7 ❌, getting up: 80%/2 ✅. Nostrils 0-10% stuffy 100% of the night ✅. No sweating, just the darn bites.

A3 A4:0 teeth0 cold shower0 p0 HWB#0 Sleep 23:18- Blog & plant app again. 3rd # is LBU0:50
0:50 62’ 80%/2/15% p0 st3 sip fw2’ deep/ air/ A4+5/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/0% sinuses5% headache0% sore throat10%, nausea0% stomach0% tongue5% stools0 loose%) FA/CS#0. Gnat bites very itchy 50% - waking me up, not sure if I should try piezo electric or not? Prefer not to. Tooth 0%!
3:05 1h15 80%/2/15% p0 st3 sip fw2’ deep/ air/ A4+5/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/0% sinuses5% headache0% sore throat10%, nausea0% stomach0% tongue5% stools0 loose%) FA/CS#0. Gnat bites very itchy 70% - waking me up, or rather keeping me awake, and no: piezo electric and desperately digging my nail into the bite made it worse. Don’t really feel like getting up, but not like sleeping either. Tooth 0%! 4:20 put different anti-itch creams on it, feels worse rather than better. One that wasn’t a problem on my leg was starting (there’s a visible bite. So I guess this is also a histamine issue. Take a pill? Or cold shower?
4:35 up again -5.36 1h01
-7:30
Sum: 7h30+0h42-(1h02+1h15+1h01=)198 = 8h12-3h18 = 4h54, up 3x (3h18), all deep. Gnat bites woke me up, not touching didn’t work tonight, but putting stuff and piezo zaps on neither. So up long. Histamine problem I guess, let’s see if I manage the next night without antihistamine, praps trying a cold shower after all?

ACTIVITIESACHE: 80%/2 :white_check_mark:, TT 0 (didn’t feel like anything today) resting/gardening/moving ➔ 80%/? :white_check_mark:, not wanting to talk, very short talks were OK ➔ 80%/2 :white_check_mark:.

ACTIONS ➔ PAINS ✅/(✅): GI, appetite, esophagus, pee, back, lips. Details...

except GI: stools loose0% :white_check_mark:, appetite a little better (:white_check_mark:), esophagus: if I’m extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:, finger tips: better. (:white_check_mark:). Lip soreness better since fungal cream (:white_check_mark:), but lips still often white, esp. when pressed, meaning overexertion according to my wife (:x:). Still often thirsty / dry lips & mouth (:x:)

Click for details on Weather: sun nauseating0% ✅, last seizures May 14th/13th, Apr 16th/15th, last esophagus block: Apr 4th, jaw pain from tooth problems: May 10th...

Touch: :white_check_mark: Covid: :x: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:/:x:. Outdoors almost all day now, so no need for daylight lamp, if the sun becomes too bright and warm I do something in the cellar or the shade, making myself at home there.
Last focal seizures: May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck.

Treatments

Last doc update May 3rd. Self-treatments & supps stable - May 15th: stretches helping wrists, not enough back exercises, and colostrum not tolerated, creatine next. Click for details.
Click for details: Update May 3rd: onco prof/doc is sick. Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): OK Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m. MAY 4th: Encapsulating outside, which is helping me to get more prepared in time. Keeping to schedule TODAY: OK MAY 12th: Got Silymarin now, and Creatine, do them after colostrum. ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today: No.
Lessons in self-care #671 Thought I’d be more tired. Made sure not to do much. No stress.
Reasons to be cheerful #721 Loads. Well, no, I wasn’t cheerful, bit depressed, but I’d’ve had lots of reasons all the same, working on it. a) A light blue coloured bug is walking on my screen, that’s heartening. b) 3+ new kinds of flowers blooming today.
Simplified #120 Loads. Just did small bits of everything.
Foggies: Not really…

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

2023-05-24, Wednesday - bit better mood. antihistamine helped sleep, but don’t like the side effects, so trying without now the gnat bites have calmed down.

Exhaustibility “88%". Click for details (but same profile as the days before):

R rest: 100% exhaustion 25% of the time (4h),
VS very slow: 60% exh. 45% of the time (7h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 0% of the time,
Q quick: 0-10% exhaustion 0% of the time
(pre-fibro: 0% exhaustion 100% of the time.)

Weight 24th: 74.4kg eee, 21st May 74.2kg = 10th = Apr 30th, so less regularly. Click for details.

empty without meal e and if possible emptied = e, half-emptied = (e), empty of B-supps/milk = ‘e’, if not emptied = ‘x’, bedclothes 0.9kg, outdoor clothes 1.8kg, B-supps 0.4kg? excr. varies,
24th: 74.4/4kg eee. Analog scales 76kg./76.5kg.
22nd: 74.7kg exx
20th: 20th: 74.2kg exx (75.1kg eex+bc)
19th: 19th: 75.0/0/74.7k/g eex-
18th: 76.1kg exe+bc 75.0/74.7/9kg eex
17th: 75.8/8/6kg exe 75.6/6/9/9kg exe (after shower)
16th: 75.2/5/2kg eee+bc0 scales/2nd emptying.
15th: 75.5/7/3/6kg eex
14th: 76.5/1kg exe with bc. That’d be 75.2 exx without?
13th: 74.9kg eex.
12th: 74.3 eex (75.2kg/75.5kg xxe 74.2/74.3kg/74.3 eex)
11th: 74.4kg (eex)
(75.5kg/75.3kg xxe 75.6kg xxx 74.6kg/74.7kg/74.4kg/74.4kg/74.4kg (eex)
10th: 74.9kg xxe 74.2kg exe
9th: 75.3kg xxe 74.4kg eee
8th: 75.7kg xxe, 76.0kg xxx 75.1kg exx, 75.0kg exx after shower.
7th: 75.8/76.0kg. (down from 76.2kg half an hour ago?!) in bedclothes. Down to 75.7kg after 100ml pee. Still 75.1/75.2kg exe after clothes off before showering.
6th: 76.1kg/75.9kg xxe with bedstuff on. 75.9kg / 75.6kg with bedclothes, 74.8kg exe without.
5th: (14:45 - normally around 7:00 75.3kg (e)xe)
4th 74.7kg exx (74.9 xxe, 75.4 xxx, 75,8 xxx, 75.5 xxx 75.6 xxx 74.7 exx, after shower 74.8 exx… O.o.
3rd 76.4-5kg xxx 75.6 eex
2nd 75.4kg exe
1st 75.9/76.0kg with clothes, 75.2kg xex - 0.9 = 74,3kg.
30th 74.7kg with clothes. 74.2kg after supps without clothes before loo. 74.4kg! after excr?!? 74.5kg after shower. 76.4kg with indoor clothes on.
29th 74.6kg exe, 75.5kg with bedclothes on = 0.9kg! B-supps: 75.0kg = 400g. + bedclothes = 75.9kg = 900g confirmed. excre: 74.5kg e(e)e - only 0.1kg… 2nd time 74.6kg e(e)e = 0.0! Shower = 74.6kg e(x)e, but 5’ later after sorting clothes = 74.2kg e(x)e. 1’ later 74.4kg + 74.4kg + 74.4kg. Holding normal clothes amount 76.2kg/76.2kg = 1.8kg
28th 75.0kg exe, 75.2kg exx (i.e. B-supps = 200g) 75.0kg eex (i.e. small excr. = 200g today), showering puts on 100mg I think it was, night clothes back on 75.8kg, so they are 600g?
27th 74.9kg exe
26th 73.5kg eee (fully e)
25th 74.2kg eee
24th 74.3kg e((e))e
23rd 73.9kg exx 73.8 eex
22nd 73.6kg e, NOT e! not e
21st 74.0kg ee
20th 73.8kg ee
19th 74.0kg
18th 73.5kg
16th 73.9kg
14th 72.8kg
13th 73.6kg

Food: 1st: 110% 2nd: 80% 3rd: 100%

Sleep 90% / Feeling 70-80%-ish / nausea 0-30%, fog 0-30% (from antihistamine)
Successes: :trophy:
:zap: Antihistamine does actually reduce my pee frequency (which is a side effect).
Learnt: :student: See Research below for antihistamine effects.

New habits - for what I'm changing see "simplfied". I'm an 'early outside bird' now, lots of early sun, light & air all day! ✅

:ambulance: Bed 21:30-5:30. (:white_check_mark:)
:ambulance: Note thoughts and emotions (ACT) (:white_check_mark:)

Today's FM symptoms unchanged from WPI 11 & SSS 9-1=8, except....: +1 bit depressed the past few days (Often I forget.) (Click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (30-60%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (88%), insomnia 2 (10%), fog 2 (20%), headache (0?) (?10…%), GI 1 (10%), depression 1 (0-30%, past days sometimes more.)

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20%. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn't get more. May 16th: Soy yoghurt & yeast veg. spread: 20h sinus headache.May 6th/7th: Baked beans. May 1st: white beans. Click for developments:

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning
tongue, my sinus burning from talking too much didn’t get more.
23:54

SLEEP (click for details): 8h52, up 3x (48'), all deep. Antihistamine stopped all itching, but together with added passiflora (shouldn't have) made me sleep tightly, long, zombified. Also seemed to have prevented pee frequency, which is very interesting, hadn't noticed that before. Mouth may have been dryer. ✅ ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 70%/2 ❌. Nostrils 0-5% stuffy 100% of the night ✅. No sweating.

A3 A4:0 teeth0 cold shower0 p0 HWB#0 Sleep 22:15- 3rd # is LBU
23:45 5’ 80%/2/15% p0 st3 sip fw2’ deep/ air/ A4/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/5% sinuses5% headache0% sore throat20%, nausea0% stomach0% tongue5% stools0 loose%) FA/CS#0
2:57 40’ 6 80%/2/15% p0 st3 sip fw2’ deep/ air/ A4/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/5% sinuses5% headache0% sore throat20%, nausea0% stomach0% tongue5% stools0 loose%) FA/CS#0 Zombified, but OK, not much itching!
6:20 3’ (not getting up, just dry mouth gel) 80%/2/15% Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/5% sinuses5% headache0% sore throat20%, nausea0% stomach0% tongue5% stools0 loose%) FA/CS#0 Zombified, but OK, not much itching!
-7:55 60%/2/15% p0 st3 sip fw5’ deep/ air/ A5:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/5% sinuses5% headache0% sore throat20%, nausea0->40% stomach0% tongue5% stools0 loose%) FA/CS#0 Zombified, but OK, not much itching!
Sum: 7h55+1h45-(5+40+3=)48 = 9h40-48 = 8h52, up 3x (48’), all deep. Antihistamine stopped all itching, but together with added passiflora (shouldn’t have) made me sleep tightly, long, zombified. Also seemed to have prevented pee frequency, which is very interesting, hadn’t noticed that before. Mouth may have been dryer.

ACTIVITIESACHE: 80%/2 :white_check_mark:, TT 0 cos of too much peopling gardening/moving/shop ➔ 80%/2-3 :white_check_mark:, not talking much.

ACTIONS ➔ PAINS ✅/(✅): GI, appetite, esophagus, pee, back, lips. Pee frequency down at night from the antihistamine! Details...

except GI: stools loose0% :white_check_mark:, appetite a little better (:white_check_mark:), esophagus: if I’m extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:, finger tips: better. (:white_check_mark:). Lip soreness better since fungal cream (:white_check_mark:), but lips still often white, esp. when pressed, meaning overexertion according to my wife (:x:). Still often thirsty / dry lips & mouth (:x:)

Click for details on Weather: hardly sun ✅, last seizures May 14th/13th, Apr 16th/15th, last esophagus block: Apr 4th, jaw pain from tooth problems: May 10th...

Touch: :white_check_mark: Covid: :x: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:/:x:. Outdoors almost all day now, so no need for daylight lamp, if the sun becomes too bright and warm I do something in the cellar or the shade, making myself at home there.
Last focal seizures: May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck.

Treatments

May 24th the cancer doc office called to say I could get my reports back, but not with any information about any results - this must be a weird understanding. Self-treatments & supps stable - May 15th: stretches helping wrists, not enough back exercises, and colostrum not tolerated, creatine next. Click for details.
Click for details: Update May 3rd: onco prof/doc is sick. Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m. MAY 4th: Encapsulating outside, which is helping me to get more prepared in time. Keeping to schedule TODAY: OK. MAY 12th: Got Silymarin now, and Creatine, do them after colostrum. ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today: Antihistamine and bladder
Harvard: Overflow incontinence by relaxing bladder, enabling high content.
Beautyfll: Lists exactly my frequency problems, linking it to OAB, saying what can be done, which I already do (Kegel, magnesium, bladder retraining). " Do antihistamines increase urination? Trouble is, certain antihistamines can relax the bladder, blunting its ability to push out urine. In the end, there is still some urine left in your bladder, which means it will fill up again faster and send that “gotta pee” signal to your brain sooner."
Patient.info: “Some antihistamines may also have what is known as an antimuscarinic effect. This means that the medicine can also block another type of receptor found on the surface of certain cells. If these receptors are affected, you may experience some of the side-effects of antihistamines - for example, dry mouth, blurred vision and retention of urine. These effects are mainly caused by the older first-generation antihistamines which are described below.” and " * Difficulty passing urine (urinary retention)." as a side effect.
NHS: Difficulty peeing.
Cleveland clinic: Divides up and says “Difficulty urinating and constipation” is only in 1st gen.
“Antihistamines can cause you to gain weight, yes. One antihistamine, cyproheptadine, is used for that reason. Histamine is known to reduce your appetite, so antihistamines cancel that out.” " Some of the common side effects of second-generation antihistamines include: Headache. Cough. Tiredness. Sore throat. Abdominal pain or discomfort. Nausea or vomiting. Some of the common side effects of first-generation antihistamines include: Drowsiness. Dry mouth, dry eyes. Blurred or double vision. Dizziness and headache. Low blood pressure. Mucous thickening in the airways. Rapid heart rate. Difficulty urinating and constipation.

Good to concentrate just on the most common, because I have a lot of those already. Lowering blood pressure, if my 2nd gen. does that also, would be the only good thing.
Lessons in self-care #672 I’m now eating even more of things that are bad for my lipids, just to get my appetite back, like today a whole banana and (like the last few days) some wholemeal cake.
Reasons to be cheerful #722 Loads. a) Squirrel, blackcap and brown mouse were the rarer visitors today, mouse longest. b) On a cycle-walk the Canadian goose family with 7 goslings and duck family with 3 ducklings kept following me, which made for brilliant scenes and filming, however we realized it was cos someone that came with a bike was feeding them, and I wonder if they are getting the right amount of the right stuff. c) Woodpecker feeding its screeching young 'uns was also good to see.
Simplified #121 Loads. Similar things to the last days.
Foggies: Not much today.

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

2023-05-25, Thursday - without antihistamine: clearer in head, but high pee frequency, so next I’ll try with it, but take down other sleep supps, starting with passiflora. Started feeling half zombified again Thursday evening, 24h after taking it. And hard getting up, then a sort of sinus headache with nausea & stomach ache.

Exhaustibility “88%". Click for details (but same profile as the days before):

R rest: 100% exhaustion 25% of the time (4h),
VS very slow: 60% exh. 45% of the time (7h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 0% of the time,
Q quick: 0-10% exhaustion 0% of the time
(pre-fibro: 0% exhaustion 100% of the time.)

Weight 21st May 74.2kg = 10th = Apr 30th, so less regularly. Click for details.

empty without meal e and if possible emptied = e, half-emptied = (e), empty of B-supps/milk = ‘e’, if not emptied = ‘x’, bedclothes 0.9kg, outdoor clothes 1.8kg, B-supps 0.4kg? excr. varies,
22nd: 74.7kg exx
20th: 20th: 74.2kg exx (75.1kg eex+bc)
19th: 19th: 75.0/0/74.7k/g eex-
18th: 76.1kg exe+bc 75.0/74.7/9kg eex
17th: 75.8/8/6kg exe 75.6/6/9/9kg exe (after shower)
16th: 75.2/5/2kg eee+bc0 scales/2nd emptying.
15th: 75.5/7/3/6kg eex
14th: 76.5/1kg exe with bc. That’d be 75.2 exx without?
13th: 74.9kg eex.
12th: 74.3 eex (75.2kg/75.5kg xxe 74.2/74.3kg/74.3 eex)
11th: 74.4kg (eex)
(75.5kg/75.3kg xxe 75.6kg xxx 74.6kg/74.7kg/74.4kg/74.4kg/74.4kg (eex)
10th: 74.9kg xxe 74.2kg exe
9th: 75.3kg xxe 74.4kg eee
8th: 75.7kg xxe, 76.0kg xxx 75.1kg exx, 75.0kg exx after shower.
7th: 75.8/76.0kg. (down from 76.2kg half an hour ago?!) in bedclothes. Down to 75.7kg after 100ml pee. Still 75.1/75.2kg exe after clothes off before showering.
6th: 76.1kg/75.9kg xxe with bedstuff on. 75.9kg / 75.6kg with bedclothes, 74.8kg exe without.
5th: (14:45 - normally around 7:00 75.3kg (e)xe)
4th 74.7kg exx (74.9 xxe, 75.4 xxx, 75,8 xxx, 75.5 xxx 75.6 xxx 74.7 exx, after shower 74.8 exx… O.o.
3rd 76.4-5kg xxx 75.6 eex
2nd 75.4kg exe
1st 75.9/76.0kg with clothes, 75.2kg xex - 0.9 = 74,3kg.
30th 74.7kg with clothes. 74.2kg after supps without clothes before loo. 74.4kg! after excr?!? 74.5kg after shower. 76.4kg with indoor clothes on.
29th 74.6kg exe, 75.5kg with bedclothes on = 0.9kg! B-supps: 75.0kg = 400g. + bedclothes = 75.9kg = 900g confirmed. excre: 74.5kg e(e)e - only 0.1kg… 2nd time 74.6kg e(e)e = 0.0! Shower = 74.6kg e(x)e, but 5’ later after sorting clothes = 74.2kg e(x)e. 1’ later 74.4kg + 74.4kg + 74.4kg. Holding normal clothes amount 76.2kg/76.2kg = 1.8kg
28th 75.0kg exe, 75.2kg exx (i.e. B-supps = 200g) 75.0kg eex (i.e. small excr. = 200g today), showering puts on 100mg I think it was, night clothes back on 75.8kg, so they are 600g?
27th 74.9kg exe
26th 73.5kg eee (fully e)
25th 74.2kg eee
24th 74.3kg e((e))e
23rd 73.9kg exx 73.8 eex
22nd 73.6kg e, NOT e! not e
21st 74.0kg ee
20th 73.8kg ee
19th 74.0kg
18th 73.5kg
16th 73.9kg
14th 72.8kg
13th 73.6kg

Food: 1st: 100% 2nd: 85% 3rd: 100% - but not wanting dark chocolate any more, and having realized that I’ve been eating more by eating histaminey stuff, and also forgetting DAO before, from lack of self-discipline…

Sleep 90% / Feeling 60-80%-ish / nausea 0-20% (morning), fog 30%
Successes: :trophy: :zap:Learnt: :student:

New habits - for what I'm changing see "simplfied". I'm an 'early outside bird' now, lots of early sun, light & air all day! ✅

:ambulance: Bed 21:30-5:30. (:white_check_mark:)
:ambulance: Note thoughts and emotions (ACT) (:white_check_mark:)

Today's FM symptoms unchanged from WPI 11 & SSS 9-1=8, except....: +1: depressed (Click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (30-60%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 1 (10-50%?)
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (88%), insomnia 2 (10%), fog 2 (30%), headache (0?) (?10…%), GI 1 (10%), depression 1 (30%)

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20%. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn't get more. May 16th: Soy yoghurt & yeast veg. spread: 20h sinus headache.May 6th/7th: Baked beans. May 1st: white beans. Click for developments:

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

SLEEP (click for details): 8h38, up 5x (25'), all deep, except the last hour, but felt too zombified to get up. Slightly sweaty - anything to do with not taking the antihistamine? Try half or less? ✅ ➔ Feeling 70% well, Ache 2 of 7 ❌, getting up: 60%/2 ❌ - nauseous, headache, stomach ache. Nostrils 0-5% stuffy 100% of the night ✅. No sweating, thinner duvets.

A3 A4:0 7
teeth0 cold shower0 p0 HWB#0 Sleep 22:35- 3rd # is LBU
23:33 5’ 70%/2/15% p0 st3 sip fw2’ deep/ air/ A4/ plugs0 cream0 gel0 HWB#(0) Bedcloths: wet0% teeth0 alternate shower0
(nostril/s0/5% sinuses5% headache0% sore throat20%, nausea0% stomach0% tongue5% stools0 loose%) FA/CS#0
0:27 5’ 70%/2/15% p0 st3 sip fw2’ deep/ air/ A5/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/5% sinuses5% headache0% sore throat10%, nausea0% stomach0% tongue15% stools0 loose%) FA/CS#0
1:45 5’ 70%/2/15% p0 st3 sip fw2’ deep/ air0 A6/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet10%, changed duvets (anything to do with not taking the antihistamine?). teeth0 alternate shower0
(nostril/s0/5% sinuses5% headache0% sore throat10%, nausea0% stomach0% tongue15% stools0 loose%) FA/CS#0
3:14 5’ 70%/2/15% p0 st3 sip fw2’ deep/ air/ A7:0 plugs0 cream/ gel0 HWB#(0) Bedclothes: wet10, despite lightest duvets. teeth0 alternate shower0
(nostril/s0/5% sinuses5% headache0% sore throat10%, nausea0% stomach0% tongue15% stools0 loose%) FA/CS#0
4:47 5’ 70%/2/15% p0 st3 sip fw2’ deep/ air (left open since 3:14) A7:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0%, teeth0 alternate shower0
(nostril/s0/5% sinuses5% headache0% sore throat10%, nausea0% stomach0% tongue15% stools0 loose%) FA/CS#0
-7:38
Sum: 7h38+1h25-(5+5+5+5+5=)25 = 9h03-25 = 8h38, up 5x (25’), all deep. Slightly sweaty anything to do with not taking the antihistamine? Try half or less?

ACTIVITIESACHE: 60%/2-3 :x:, gardening/moving ➔ 70%/2 :x:, talking ➔ 70%/2 :x:.

ACTIONS ➔ PAINS ✅/(✅): GI, appetite, esophagus, pee, back, lips. Details...

except GI: stools loose0% :white_check_mark:, appetite a little better (:white_check_mark:), esophagus: if I’m extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:, finger tips: better. (:white_check_mark:). Lip soreness better since fungal cream (:white_check_mark:), but lips still often white, esp. when pressed, meaning overexertion according to my wife (:x:). Still often thirsty / dry lips & mouth (:x:)

Click for details on Weather: not much sun ✅, last seizures May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last esophagus block: Apr 4th, jaw pain from tooth problems: May 10th...

Touch: :white_check_mark: Covid: :x: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:/:x:. Outdoors almost all day now, so no need for daylight lamp, if the sun becomes too bright and warm I do something in the cellar or the shade, making myself at home there.
Last focal seizures: May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck.

Treatments

Last doc update May 3rd. May 25th after they called I can collect my doc reports I cycled to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. Self-treatments & supps stable - May 15th: stretches helping wrists, not enough back exercises, and colostrum not tolerated, creatine next. Click for details.
Click for details: Update May 3rd: onco prof/doc is sick. Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m. MAY 4th: Encapsulating outside, which is helping me to get more prepared in time. Keeping to schedule TODAY: OK. May 25th: Back on silymarin. no creatine yet, colostrum 2x on one day was bad. Praps ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

I can’t really be bothered to look in hindsight for a connection between antihistamine and how I’m feeling at night, cos I don’t think I’ll be able to see anything that way. It feels necessary to trial it instead. From tonight without, I’d suggest it did seem to reduce pee frequency and increase mouth dryness the night before and also the long period taking it. The sinus headache Thursday morning I’d say isn’t nec. withdrawal, cos I ate a whole banana instead of a half in the evening to see if that is good for my appetite, which it wasn’t. Bananas are high in histamine I just looked up again, so it wasn’t just the sugar I was avoiding it for. Low dosing the antihistamine?

‘Research’ today: People on a German forum without quoting said something about histamine going down at night, so I checked my sources on it going up:
https://mastcell360.com/fixing-sleep-challenges-in-mast-cell-activation-syndrome-and-histamine-intolerance/ 3am

Histamine levels are another potent downstream target. Allergic symptoms exacerbate during nighttime and plasma histamine levels exhibit nocturnal peaks. In mastocytosis patients, peak levels of plasma histamine were observed in the early morning with the lowest in the afternoon (19)

Lessons in self-care #673 Made sure I thinned out contacts as much as possible today. Still down.
Reasons to be cheerful #723 Loads. a) There are at least 2 field mice, one again coming pretty close, they keep “running” to and fro, which is difficult cos the grass is longer now, so it’s a bit of a hurdle race. b) I think it was blackcap that just “thrushed” over me - that’s what I’m calling the sound the feathers make (like flutter tongue), but it might’ve been a dunnock. However now a blackcap is singing in the cherry, so I guess it was one. c) 2 squirrels playing at the bottom of the cherry tree. The darker is now discovering our food. d) The darker is now on a discovery trip all around our garden, it’s going on absolutely everything, even the rose, the Scotch broom, my sculpture, and just hobbled directly past me, one foot away from my laptop/knee, me only moving a little.
Simplified #122 Loads. But not doing much in between: the 2 doc appointments, meeting with the kids,
Foggies: Nope.

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

2023-05-26, Friday - still high exhaustibility - maybe cos I’m concentrating on eating more rather than the right things, but I’ll have a go at increasing protein, esp. cos today my appetite increased. And will now test smaller doses of antihistamine to try to balance out the various symptoms that are probably associated with histamine.

Exhaustibility “88%". Click for details (but same profile as the days before):

R rest: 100% exhaustion 25% of the time (4h),
VS very slow: 60% exh. 45% of the time (7h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 0% of the time,
Q quick: 0-10% exhaustion 0% of the time
(pre-fibro: 0% exhaustion 100% of the time.)

anithistamine: 25th 26th 27th
pill: - - - - - - - - -0% - -0% 20%
appetite: - - - - -80% 100%
clear head: - - -50% 60%
dry mouth: - - - - 5% 10%
gut: - - - - - - - - 80% 80%
mucous clear: - 80% 80%
peeing seldom: -10% -0%
sinus burning: - - 5% 10%
sore throat:- - - -10% 10%
temp h/c:- - - - - -??? chhh
tongue burn:- - -10% 10%
weight gain:- - – - 0% -0%
Avg/Max.- - - - - -avg
Most symptoms are at night.
Ah, is this gonna be worth it?

Weight 21st May 74.2kg = 10th = Apr 30th, so less regularly. Click for details.

empty without meal e and if possible emptied = e, half-emptied = (e), empty of B-supps/milk = ‘e’, if not emptied = ‘x’, bedclothes 0.9kg, outdoor clothes 1.8kg, B-supps 0.4kg? excr. varies,
22nd: 74.7kg exx
20th: 20th: 74.2kg exx (75.1kg eex+bc)
19th: 19th: 75.0/0/74.7k/g eex-
18th: 76.1kg exe+bc 75.0/74.7/9kg eex
17th: 75.8/8/6kg exe 75.6/6/9/9kg exe (after shower)
16th: 75.2/5/2kg eee+bc0 scales/2nd emptying.
15th: 75.5/7/3/6kg eex
14th: 76.5/1kg exe with bc. That’d be 75.2 exx without?
13th: 74.9kg eex.
12th: 74.3 eex (75.2kg/75.5kg xxe 74.2/74.3kg/74.3 eex)
11th: 74.4kg (eex)
(75.5kg/75.3kg xxe 75.6kg xxx 74.6kg/74.7kg/74.4kg/74.4kg/74.4kg (eex)
10th: 74.9kg xxe 74.2kg exe
9th: 75.3kg xxe 74.4kg eee
8th: 75.7kg xxe, 76.0kg xxx 75.1kg exx, 75.0kg exx after shower.
7th: 75.8/76.0kg. (down from 76.2kg half an hour ago?!) in bedclothes. Down to 75.7kg after 100ml pee. Still 75.1/75.2kg exe after clothes off before showering.
6th: 76.1kg/75.9kg xxe with bedstuff on. 75.9kg / 75.6kg with bedclothes, 74.8kg exe without.
5th: (14:45 - normally around 7:00 75.3kg (e)xe)
4th 74.7kg exx (74.9 xxe, 75.4 xxx, 75,8 xxx, 75.5 xxx 75.6 xxx 74.7 exx, after shower 74.8 exx… O.o.
3rd 76.4-5kg xxx 75.6 eex
2nd 75.4kg exe
1st 75.9/76.0kg with clothes, 75.2kg xex - 0.9 = 74,3kg.
30th 74.7kg with clothes. 74.2kg after supps without clothes before loo. 74.4kg! after excr?!? 74.5kg after shower. 76.4kg with indoor clothes on.
29th 74.6kg exe, 75.5kg with bedclothes on = 0.9kg! B-supps: 75.0kg = 400g. + bedclothes = 75.9kg = 900g confirmed. excre: 74.5kg e(e)e - only 0.1kg… 2nd time 74.6kg e(e)e = 0.0! Shower = 74.6kg e(x)e, but 5’ later after sorting clothes = 74.2kg e(x)e. 1’ later 74.4kg + 74.4kg + 74.4kg. Holding normal clothes amount 76.2kg/76.2kg = 1.8kg
28th 75.0kg exe, 75.2kg exx (i.e. B-supps = 200g) 75.0kg eex (i.e. small excr. = 200g today), showering puts on 100mg I think it was, night clothes back on 75.8kg, so they are 600g?
27th 74.9kg exe
26th 73.5kg eee (fully e)
25th 74.2kg eee
24th 74.3kg e((e))e
23rd 73.9kg exx 73.8 eex
22nd 73.6kg e, NOT e! not e
21st 74.0kg ee
20th 73.8kg ee
19th 74.0kg
18th 73.5kg
16th 73.9kg
14th 72.8kg
13th 73.6kg

Food: 1st: 100% 2nd: 90% 3rd: 90%

Sleep 90% / Feeling 80%-ish / nausea 0%, fog 30%

New habits - for what I'm changing see "simplfied". I'm an 'early outside bird' now, lots of early sun, light & air all day! ✅

:ambulance: Bed 21:30-5:30. (:white_check_mark:)
:ambulance: Note thoughts and emotions (ACT) (:white_check_mark:)

Today's FM symptoms unchanged from WPI 11 & SSS 9-1=8, except....: +0-1: only partly depressed (Click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (30-60%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 1 (10-50%?)
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (88%), insomnia 2 (10%), fog 2 (30%), headache (0) (10%), GI 1 (10%), depression 0 (20%)

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20%. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before. May 19th: yeast spread & tofu despite DAO. May 16th: Soy yoghurt & yeast spread: May 6th/7th: Baked beans. May 1st: white beans. Click for developments:

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

SLEEP (click for details): 8h23, up 8x (42), all deep. ✅ ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅, but tired, had to force myself, didn't work first time, but 2nd time. Nostrils 0-5% stuffy 100% of the night ✅. Wet at 2, then lighter duvet was OK.

A3 A4 teeth0 cold shower0 p0 HWB#0 cream/ Sleep 22:30- 3rd # is LBU
23:35 5’ 80%/2/15%2x p0 st3 sip fw2’ deep/ air/ A5/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/5% sinuses5% headache0% sore throat10%, nausea0% stomach0% tongue5% stools0 loose%) FA/CS#0
0:15 5’ 80%/2/15% p0 st3 sip fw2’ deep/ air/ A6/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/5% sinuses5% headache0% sore throat10%, nausea0% stomach0% tongue5% stools0 loose%) FA/CS#0
0:50 5’ 80%/2/15% p0 st3 sip fw2’ deep/ air/ A7/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/5% sinuses5% headache0% sore throat10%, nausea0% stomach0% tongue5% stools0 loose%) FA/CS#0
+I feel tired in eyes and head, but not that zombified, and not bad, so 80/2 is fine.+
1:40 5’ 80%/2/15% p0 st3 sip fw2’ deep/ air/ A8/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet10%, so lightest duvets (1 hour ago I was freezing and needed the heaviest ones), teeth0 alternate shower0
(nostril/s0/5% sinuses5% headache0% sore throat10%, nausea0% stomach0% tongue5% stools0 loose%) FA/CS#0
2:40 5’ 80%/2/15% p0 st3 sip fw2’ deep/ air/ A9:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0%, keep lightest duvet, teeth0 FA/CS#0
(nostril/s0/5% sinuses5% headache0% sore throat10%, nausea0% stomach0% tongue5% stools0 loose%)
4:00 5’ 80%/2/15% p0 st3 sip fw2’ deep/ air/ A9:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0%, keep lightest duvet, teeth0 FA/CS#0
(nostril/s0/5% sinuses5% headache0% sore throat10%, nausea0% stomach30% tongue5% stools0 loose%)
5:40 6’ 80%/2/15% p0 st3 sip fw2’ deep/ air/ A9:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0%, keep lightest duvet, teeth0 FA/CS#0
(nostril/s0/5% sinuses0% headache0% sore throat10%, nausea0% stomach30% tongue5% stools0 loose%)
6:51 6’ 80%/2/15% p0 st3 sip fw2’ deep/ air/ A9:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0%, keep lightest duvet, teeth0 FA/CS#0
(nostril/s0/10% sinuses10% headache20% sore throat5%, nausea0% stomach10% tongue5% stools0 loose%) Still too tired.
-7:25 80%/2/15% p0 st3 sip fw2’ deep/ air/ A9:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0%, keep lightest duvet, teeth0 FA/CS#0
(nostril/s0/10% sinuses10% headache20% sore throat5%, nausea0% stomach20% tongue10% stools0 loose%) Still so tired, but getting up this time.
Sum: 7h25+1h30-(5+5+5+5+5+5+6+6=)42 = 9h05-42 = 8h23, up 8x (42), all deep.

ACTIVITIESACHE: 80%/2 :white_check_mark:, TT 0 still don’t feel like it. gardening/moving/playing ➔ 80%/5? :x:, talking ➔ 80%/4 :x:.

ACTIONS ➔ PAINS ✅/(✅): GI, appetite, esophagus, pee, back, lips. Details...

except GI: stools loose0% :white_check_mark:, appetite a little better (:white_check_mark:), esophagus: if I’m extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:, finger tips: better. (:white_check_mark:). Lip soreness better since fungal cream (:white_check_mark:), but lips still often white, esp. when pressed, meaning overexertion according to my wife (:x:). Still often thirsty / dry lips & mouth (:x:)

Click for details on Weather: sun only partly too much, not nauseating ✅, last seizures May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last esophagus block: Apr 4th, jaw pain from tooth problems: May 10th...

Touch: :white_check_mark: Covid: :x: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:/:x:. Outdoors almost all day now, so no need for daylight lamp, if the sun becomes too bright and warm I do something in the cellar or the shade, making myself at home there.
Last focal seizures: May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck.

Treatments

Last doc update May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. Self-treatments & supps stable - May 15th: stretches helping wrists, not enough back exercises, and colostrum not tolerated, creatine next. Click for details.
Click for details: Update May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): OK Wrists: more, still tough opening jars (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m. Keeping to schedule TODAY: OK May 25th: Back on silymarin. no creatine yet, colostrum 2x on one day was bad. Praps ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today: No.
Lessons in self-care #674 Hardly went over my limits, backlashes only 30-60’.
Reasons to be cheerful #724 Loads. Nice seeing kids / family yesterday and today, in a few 30’ stints, fully accepted.
Simplified #123 Several moving & supp things once again.
Foggies: Nope, except problems with a highly laden tray, but that was just too much.

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

2023-05-27, Saturday -

Exhaustibility “88%". Click for details (but same profile as the days before):

R rest: 100% exhaustion 25% of the time (4h),
VS very slow: 60% exh. 45% of the time (7h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 0% of the time,
Q quick: 0-10% exhaustion 0% of the time
(pre-fibro: 0% exhaustion 100% of the time.)

anithistamine: 25th 26th 27th - - - 28tg
**pill-amount:*- - 0% -0% 20% - - - - 0%
bad appetite: - -20% -0% 10% - - - - 0%
dull head: - - - -50% 40% 30/50% - - 0%
dry mouth: - - - - 5% 10% 50/70% - - 0%
IBS: - - - - - - - - 20% 20% 20% - - - - 0%
mucous: - - - - - 20% 20% 10% - - - - 0%
pee freq: - - - - -90% -100% 90/20% -0%
sinus burning: - - 5% 10% -5%->20%-0%
sore throat:- - - -10% 10% 20% - - - - - 0%
temp h/c:- - - - - -??? chhh hhhh - - - - -0%
tongue burn:- - -10% 10% 20% - - - - - 0%
weight gain:- - - - -0% -0% +10% - - - -0%
zombified:- - - - - - - - - - - 10/20% - - -0%

Avg/Max.- - - - - -avg max max
Most symptoms are at night.
Friday evening (26th): 1 of 3 passiflora, 0 apigenin.
Pee frequency reduced by 2mg antihistamine from 4 on, causes headache, dry mouth, some (10 → 20%) sinus burning, sore throat, tongue burning and zombification.

Weight 21st May 74.2kg = 10th = Apr 30th, so less regularly. Click for details.

empty without meal e and if possible emptied = e, half-emptied = (e), empty of B-supps/milk = ‘e’, if not emptied = ‘x’, bedclothes 0.9kg, outdoor clothes 1.8kg, B-supps 0.4kg? excr. varies,
27th: Analog scales +1kg
22nd: 74.7kg exx
20th: 20th: 74.2kg exx (75.1kg eex+bc)
19th: 19th: 75.0/0/74.7k/g eex-
18th: 76.1kg exe+bc 75.0/74.7/9kg eex
17th: 75.8/8/6kg exe 75.6/6/9/9kg exe (after shower)
16th: 75.2/5/2kg eee+bc0 scales/2nd emptying.
15th: 75.5/7/3/6kg eex
14th: 76.5/1kg exe with bc. That’d be 75.2 exx without?
13th: 74.9kg eex.
12th: 74.3 eex (75.2kg/75.5kg xxe 74.2/74.3kg/74.3 eex)
11th: 74.4kg (eex)
(75.5kg/75.3kg xxe 75.6kg xxx 74.6kg/74.7kg/74.4kg/74.4kg/74.4kg (eex)
10th: 74.9kg xxe 74.2kg exe
9th: 75.3kg xxe 74.4kg eee
8th: 75.7kg xxe, 76.0kg xxx 75.1kg exx, 75.0kg exx after shower.
7th: 75.8/76.0kg. (down from 76.2kg half an hour ago?!) in bedclothes. Down to 75.7kg after 100ml pee. Still 75.1/75.2kg exe after clothes off before showering.
6th: 76.1kg/75.9kg xxe with bedstuff on. 75.9kg / 75.6kg with bedclothes, 74.8kg exe without.
5th: (14:45 - normally around 7:00 75.3kg (e)xe)
4th 74.7kg exx (74.9 xxe, 75.4 xxx, 75,8 xxx, 75.5 xxx 75.6 xxx 74.7 exx, after shower 74.8 exx… O.o.
3rd 76.4-5kg xxx 75.6 eex
2nd 75.4kg exe
1st 75.9/76.0kg with clothes, 75.2kg xex - 0.9 = 74,3kg.
30th 74.7kg with clothes. 74.2kg after supps without clothes before loo. 74.4kg! after excr?!? 74.5kg after shower. 76.4kg with indoor clothes on.
29th 74.6kg exe, 75.5kg with bedclothes on = 0.9kg! B-supps: 75.0kg = 400g. + bedclothes = 75.9kg = 900g confirmed. excre: 74.5kg e(e)e - only 0.1kg… 2nd time 74.6kg e(e)e = 0.0! Shower = 74.6kg e(x)e, but 5’ later after sorting clothes = 74.2kg e(x)e. 1’ later 74.4kg + 74.4kg + 74.4kg. Holding normal clothes amount 76.2kg/76.2kg = 1.8kg
28th 75.0kg exe, 75.2kg exx (i.e. B-supps = 200g) 75.0kg eex (i.e. small excr. = 200g today), showering puts on 100mg I think it was, night clothes back on 75.8kg, so they are 600g?
27th 74.9kg exe
26th 73.5kg eee (fully e)
25th 74.2kg eee
24th 74.3kg e((e))e
23rd 73.9kg exx 73.8 eex
22nd 73.6kg e, NOT e! not e
21st 74.0kg ee
20th 73.8kg ee
19th 74.0kg
18th 73.5kg
16th 73.9kg
14th 72.8kg
13th 73.6kg

Food: 1st: 100% 2nd: 80% 3rd: 90%

Sleep 90% / Feeling 80%-ish / nausea 0%, fog 20% (down cos not dropping as much)

New habits - for what I'm changing see "simplfied". I'm an 'early outside bird' now, lots of early sun, light & air all day! ✅

:ambulance: Bed 21:30-5:30. (:white_check_mark:)
:ambulance: Note thoughts and emotions (ACT) (:white_check_mark:)

Today's FM symptoms unchanged from WPI 11 & SSS 9-1=8, except....: +1: headache in the morning, after 2mg antihistamine eve before (Click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (30-60%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (88%), insomnia 2 (10%), fog 2 (30%), headache (1) (30%, frontal, in the morning), GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20%. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before. May 19th: yeast spread & tofu despite DAO. May 16th: Soy yoghurt & yeast spread: May 6th/7th: Baked beans. May 1st: white beans. Click for developments:

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

SLEEP (click for details): 7h58, up 3x (18), all deep. ✅ ➔ Feeling 80-70% well, Ache 2 of 7 ❌, getting up: 70%/2 ❌. Nostrils 0-5% stuffy 100% of the night ✅. Wet10%. Tired at night, but first no/hardly negatives after 2mg anthistamine, 1 of 3 passiflora, no apigenin, but after 2 sore throat, stomach, tongue & sinuses.

A3 A4:0 teeth/ cold shower0 p0 HWB#0 Sleep 22:45- 3rd # is LBU
0:35 6’ 80%/2/15% p0 st3 sip fwt’ deep/ air/ A4/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet5% teeth0 alternate shower0
(nostril/s0/5% sinuses5% headache0% sore throat15%, nausea0% stomach0% tongue20% stools0 loose%) FA/CS#0. Tired, but no/hardly negatives after 2mg anthistamine, 1 of 3 passiflora, no apigenin.
2:30 6’ 80%/2/15% p0 st3 sip fw3’ deep/ air// A5/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet10% teeth0 alternate shower0
(nostril/s0/5% sinuses5% headache0% sore throat20%, nausea0% stomach20% tongue20% stools0 loose%) FA/CS#0. Same. Slightly wetter than before.
3:52 6’ 70%/2/15% p0 st3 sip fw3’ deep/ air//->0 A5/ plugs0 cream/ gel/ HWB#(0) Bedclothes: wet10% (despite open window) teeth0 alternate shower0
(nostril/s0/5% sinuses5% headache0% sore throat20%, nausea0% stomach20% tongue20% stools0 loose%) FA/CS#0. Same, slightly wet.
-7:01 6’ 70%/2/15% p0 st3 sip fw3’ deep/ air/ A6:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/5% sinuses5% headache30% sore throat20%, nausea0% stomach10% tongue20% stools0 loose%) FA/CS#0. Dry.

Sum: 7h01+1h15-(6+6+6=)18 = 8h16-18 = 7h58, up 3x (18), all deep.

ACTIVITIESACHE: 80%/2 :white_check_mark:, TT 0 (not in the mood for people), gardening/moving ➔ 80%/3 :x:, talking ➔ 80%/3 :x:. Had to be very careful how much I move.

ACTIONS ➔ PAINS ✅/(✅): GI, appetite, esophagus, pee, back, lips. Details...

except GI: stools loose0% :white_check_mark:, appetite a little better (:white_check_mark:), esophagus: if I’m extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:, finger tips: better. (:white_check_mark:). Lip soreness better since fungal cream (:white_check_mark:), but lips still often white, esp. when pressed, meaning overexertion according to my wife (:x:). Still often thirsty / dry lips & mouth (:x:)

Click for details on Weather: sun nauseating0% ✅, last seizures May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last esophagus block: Apr 4th, jaw pain from tooth problems: May 10th...

Touch: :white_check_mark: Covid: :x: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:/:x:. Outdoors almost all day now, so no need for daylight lamp, if the sun becomes too bright and warm I do something in the cellar or the shade, making myself at home there.
Last focal seizures: May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck.

Treatments

Last doc update May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. Self-treatments & supps stable - May 15th: stretches helping wrists, not enough back exercises, and colostrum not tolerated, creatine next. Click for details.
Click for details: Update May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): OK Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m. Keeping to schedule TODAY: OK (Not late, but I keep forgetting a batch cos I believe I've taken them already). May 25th: Back on silymarin. no creatine yet, colostrum 2x on one day was bad. Praps ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today: No.
Lessons in self-care #675 Slow. Short. Slow. Slow. Careful. slow.
Reasons to be cheerful #725 Loads. Mood improving, motivated more, at least for the garden.
Simplified #124 Loads. Thinking first.
Foggies: Well, not dropping anything today, but yesterday I made a mess and today I again forgot to take my pre-meal supps, worse yesterday: two batches.

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

2023-05-28, Sunday - slow, bit foggier, slightly more cheerful, pollen issue for a few hours in the evening (happens one day every few years…so?)

Exhaustibility “88%". Click for details (but same profile as the days before):

R rest: 100% exhaustion 25% of the time (4h),
VS very slow: 60% exh. 45% of the time (7h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 0% of the time,
Q quick: 0-10% exhaustion 0% of the time
(pre-fibro: 0% exhaustion 100% of the time.)

Antihistamine trial: low & intermittent dose with all(?) histaminey symptoms

antihistamine: 25th 26th 27th - - - - 28th
**pill-amount:*- - 0% -0% 20% - - - - - 0%
bad appetite: - -20% -0% 10% - - - - -10%
dull head: - - - -50% 40% 30/50% - 30/50%
dry mouth: - - - - 5% 10% 50/70% - - 10%
IBS: - - - - - - - - 20% 20% 20% - - - - 20%
mucus: - - - - - 20% 20% 10% - - - - - 10%
pee freq: - - - - -90% -100% 90/20% -70%
pee loss - - - - - - - - - - - - - - - - - - - - -20%
sinus burning: - - 5% 10% -5%/20% -/30%
sleep breaks: - - -5% - 5% -5% - - - - -20%
sore throat:- - - -10% 10% 20% - - - - 10%
temp h/c:- - - - - -??? chhh hhhh - - - hhhc
tongue burn:- - -10% 10% 20% - - - - - 5%
weight gain:- - - - -0% -0% +10% - - - - 0%
zombified:- - - - - - - - - - - 10/20% - - -/30%
Avg/Max.- - - - - -avg max max - - - - - max
Most symptoms are at night.
Friday evening (26th): 1 of 3 passiflora, 0 apigenin. Pee frequency reduced by 2mg antihistamine from 4 on, causes headache, dry mouth, some (10 → 20%) sinus burning, sore throat, tongue burning and zombification.
Sat evening (27th/28th): 1 of 3 passiflora, 0 apigenin. Dry hands will be something else. Generally, the long sleep breaks have “of course” stopped, I think from the zombification. And that’s something additional to the pee frequency. If I could, I’d increase GABA at night, to decrease histamine, but that’s causing stomach problems. Tongue burn starting at 22:00!? (Allergic reaction to grass pollen?)

Weight 21st May 74.2kg = 10th = Apr 30th, so less regularly. Click for details.

empty without meal e and if possible emptied = e, half-emptied = (e), empty of B-supps/milk = ‘e’, if not emptied = ‘x’, bedclothes 0.9kg, outdoor clothes 1.8kg, B-supps 0.4kg? excr. varies,
28th: same exx
22nd: 74.7kg exx
20th: 20th: 74.2kg exx (75.1kg eex+bc)
19th: 19th: 75.0/0/74.7k/g eex-
18th: 76.1kg exe+bc 75.0/74.7/9kg eex
17th: 75.8/8/6kg exe 75.6/6/9/9kg exe (after shower)
16th: 75.2/5/2kg eee+bc0 scales/2nd emptying.
15th: 75.5/7/3/6kg eex
14th: 76.5/1kg exe with bc. That’d be 75.2 exx without?
13th: 74.9kg eex.
12th: 74.3 eex (75.2kg/75.5kg xxe 74.2/74.3kg/74.3 eex)
11th: 74.4kg (eex)
(75.5kg/75.3kg xxe 75.6kg xxx 74.6kg/74.7kg/74.4kg/74.4kg/74.4kg (eex)
10th: 74.9kg xxe 74.2kg exe
9th: 75.3kg xxe 74.4kg eee
8th: 75.7kg xxe, 76.0kg xxx 75.1kg exx, 75.0kg exx after shower.
7th: 75.8/76.0kg. (down from 76.2kg half an hour ago?!) in bedclothes. Down to 75.7kg after 100ml pee. Still 75.1/75.2kg exe after clothes off before showering.
6th: 76.1kg/75.9kg xxe with bedstuff on. 75.9kg / 75.6kg with bedclothes, 74.8kg exe without.
5th: (14:45 - normally around 7:00 75.3kg (e)xe)
4th 74.7kg exx (74.9 xxe, 75.4 xxx, 75,8 xxx, 75.5 xxx 75.6 xxx 74.7 exx, after shower 74.8 exx… O.o.
3rd 76.4-5kg xxx 75.6 eex
2nd 75.4kg exe
1st 75.9/76.0kg with clothes, 75.2kg xex - 0.9 = 74,3kg.
30th 74.7kg with clothes. 74.2kg after supps without clothes before loo. 74.4kg! after excr?!? 74.5kg after shower. 76.4kg with indoor clothes on.
29th 74.6kg exe, 75.5kg with bedclothes on = 0.9kg! B-supps: 75.0kg = 400g. + bedclothes = 75.9kg = 900g confirmed. excre: 74.5kg e(e)e - only 0.1kg… 2nd time 74.6kg e(e)e = 0.0! Shower = 74.6kg e(x)e, but 5’ later after sorting clothes = 74.2kg e(x)e. 1’ later 74.4kg + 74.4kg + 74.4kg. Holding normal clothes amount 76.2kg/76.2kg = 1.8kg
28th 75.0kg exe, 75.2kg exx (i.e. B-supps = 200g) 75.0kg eex (i.e. small excr. = 200g today), showering puts on 100mg I think it was, night clothes back on 75.8kg, so they are 600g?
27th 74.9kg exe
26th 73.5kg eee (fully e)
25th 74.2kg eee
24th 74.3kg e((e))e
23rd 73.9kg exx 73.8 eex
22nd 73.6kg e, NOT e! not e
21st 74.0kg ee
20th 73.8kg ee
19th 74.0kg
18th 73.5kg
16th 73.9kg
14th 72.8kg
13th 73.6kg

Food: 1st: 100% 2nd: 90% 3rd: 90%

Sleep 90% / Feeling 80%-ish / nausea 0%, fog 25%
Successes: :trophy: :zap: Learnt: :student:

New habits - for what I'm changing see "simplified". I'm an 'early outside bird' now, lots of early sun, light & air all day! ✅

:ambulance: Bed 21:30-5:30. (:white_check_mark:)
:ambulance: Note thoughts and emotions (ACT) (:white_check_mark:)

Today's FM symptoms unchanged from WPI 11 & SSS 9-1=8, except....: +1: headache (Click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (30-60%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (88%), insomnia 2 (10%), fog 2 (25%), headache (1) (0-20% from 4:30 to 8:30), GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20%. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before. May 19th: yeast spread & tofu despite DAO. May 16th: Soy yoghurt & yeast spread: May 6th/7th: Baked beans. May 1st: white beans. Click for developments:

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

SLEEP (click for details): 7h38, up 5x (42'), all deep. ✅ ➔ Feeling 70% well, Ache 2 of 7 ❌, getting up: 60%/2 ❌. Nostrils 0-5(-30)% stuffy 100% of the night ✅. No sweating. Sinus headache from at least 4:30 to about 8:30, is that from histaminey food or something histaminey at night?? - but then why sometimes yes, sometimes no?

A3 A4:0 teeth0 cold shower0 p0 HWB#0 Sleep 23:05- Blog! 3rd # is LBU
0:18 5’ 70%/2/15% p0 st3 sip fw2’ deep/ air/ A4:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/5% sinuses0% headache0% sore throat10%, nausea0% stomach0% tongue20% stools0 loose%) FA/CS#0
2:04 9’ (teeth!) 70%/2/15% p0 st3 sip fw2’ deep/ air/ A4/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth/ alternate shower0
(nostril/s0/5% sinuses0% headache0% sore throat10%, nausea0% stomach0% tongue5% stools0 loose%) FA/CS#0
2:40 8’ (antihistamine thoughts) 70%/2/15% p0 st3 sip fw5’ deep/ air/ A5/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/5% sinuses0% headache0% sore throat10%, nausea0% stomach20% (pangs, is that GABA?) tongue5% stools0 loose%) FA/CS#0
4:34 10’ 70%/2/15% p0 st3 sip fw5’ deep/ air/ A6/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/30% sinuses30% headache30% sore throat10%, nausea10% stomach10% (no pangs) tongue5% stools0 loose%) FA/CS#0
5:35 10’ 60%/2/15% p0 st3 sip fw5’ deep/ air/ 7:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/10% sinuses30% headache30% sore throat10%, nausea10-20% stomach30% (pangs) tongue5%-dry10% stools0 loose%) FA/CS#1 (regularly the past few days, just forget to say, sometimes luke cold first)
-7:25
Sum: 7h25+0h55-(5+9+8+10+10=)42 = 8h20-42’ = 7h38, up 5x (42’), all deep.

ACTIVITIESACHE: 80%/2 :white_check_mark:, TT: still none. Gardening/moving VERY SLOWLY ➔ 80%/2 :white_check_mark:, hardly talking, just once for work ➔ 80%/2-3 :white_check_mark:.

ACTIONS ➔ PAINS ✅/(✅): GI, appetite, esophagus, pee, back, lips. Details...

except GI: stools loose0% :white_check_mark:, appetite a little better (:white_check_mark:), esophagus: if I’m extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:, finger tips: better. (:white_check_mark:). Lip soreness better since fungal cream (:white_check_mark:), but lips still often white, esp. when pressed, meaning overexertion according to my wife (:x:). Still often thirsty / dry lips & mouth (:x:)

Click for details on Weather: sun nauseating0% ✅, last seizures May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last esophagus block: Apr 4th, jaw pain from tooth problems: May 10th...

Touch: :white_check_mark: Covid: :x: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:/:x:. Outdoors almost all day now, so no need for daylight lamp, if the sun becomes too bright and warm I do something in the cellar or the shade, making myself at home there.
Last focal seizures: May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck.

Treatments

Last doc update May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. Self-treatments & supps stable - May 15th: stretches helping wrists, not enough back exercises, and colostrum not tolerated, creatine next. Click for details.
Click for details: Update May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): OK Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft 2x1’, teeth 1x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m. Keeping to schedule TODAY: OK. But forgot A3-supps (21:00) Sat eve (27th), confused myself once again. AND I'll now put my DAO pills in with my meal pills, which I usually take a little bit before the meals, that'll be better than directly when I'm eating and may protect me (cheese & 1/3 banana atm). May 25th: Back on silymarin. no creatine yet, colostrum 2x on one day was bad. Praps ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today: DrTalks Fibromyalgia Summit Day 5: Deanna Hansen about fasciae and The Black Hole: Central Sensitization Explained Dr. Yoni Whitten - Pain Fix Protocol - youtube - nothing new to me, but explains how/why my light movement technique is masking the pain better, cos it’s a movement stimulus. Does that now make me agree that it’s all “just” central sensitization? No, but it’s a point.
Lessons in self-care #676 Doing what I want. But working a little. And watching a few videos in DrTalks Fibromyalgia Summit Day 5.
Reasons to be cheerful #726 Loads. a) Feeling free. b) Finding and ridding fungus on the clematis leaves will save its life. c) 2 chocolate lambs and 2 mums.
Simplified #125 Loads. Quick moving of stuff.
Foggies: Dropped quite a few things, so let’s call that 25%.

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

2023-05-29, Monday - decreased from 12% to 8% energy - 16 reasons I can make out (see development) - not much I can do except wait & rest, plus change diet.

Exhaustibility “92%". Click for details - going (s)lower:

R rest: 100% exhaustion 60% of the time (9.5h),
VS very slow: 60% exh. 30% of the time (5h),
S slow: 40% exhaustion 10% of the time (1.5h),
M medium: 20% exhaustion 0% of the time,
Q quick: 0-10% exhaustion 0% of the time
(pre-fibro: 0% exhaustion 100% of the time.)

Antihistamine trial: low & intermittent dose with my histaminey symptoms. Click for the table and details...

antihistamine: 25th 26th 27th - - - - 28th - -29th
**pill-amount:*- - 0% -0% 20% - - - - - 0% - ?20%
bad appetite: - -20% -0% 10% - - - - -10%- -10%
dull head: - - - -50% 40% 30/50% - 30/50%-20%
dry mouth: - - - - 5% 10% 50/70% - - 10%- -30%
IBS: - - - - - - - - 20% 20% 20% - - - - 20%- -20%
mucus: - - - - - 20% 20% 10% - - - - - 10%- -60%
nausea: - - – - - - - - - - – - - - - - - - - - - - - - -30%
pee freq: - - - - -90% -100% 90/20% -70%- -30%
pee loss - - - - - - - - - - - - - - - - - - - - -20%- -30%
sinus burning: - - 5% 10% -5%/20% -/30%- -10%
sleep breaks: - - -5% - 5% -5% - - - - -20%- -10%
sore throat:- - - -10% 10% 20% - - - - 10%- (10%
temp h/c:- - - - - -??? chhh hhhh - - - hhhc- -hhhh
tongue burn:- - -10% 10% 20% - - - - - 5%- -30%
weight gain:- - - - -0% -0% +10% - - - - 0%- --0%
zombified:- - - - - - - - - - - 10/20% - - -/30%- -20%
Avg/Max.- - - - - -avg max max - - - - - max- max
Most symptoms are at night.
Fri/Sat (26th/27th): 1 of 3 passiflora, 0 apigenin. Pee frequency reduced by 2mg antihistamine from 4 on, causes headache, dry mouth, some (10 → 20%) sinus burning, sore throat, tongue burning and zombification.
Sat/Sun 27th/28th: 0 antihistamine, 1 of 3 passiflora, 0 apigenin. Dry hands will be something else. Generally, the long sleep breaks have “of course” stopped, I think from the zombification. And that’s something additional to the pee frequency. If I could, I’d increase GABA at night, to decrease histamine, but that’s causing stomach problems. Tongue burn starting at 22:00!? (Allergic reaction to grass pollen?)
Sun/Mon 28th/29th 20% antihistamine (I think, I did put in in the box), 1 of 3 passiflora, 0 apigenin. 2:26 not from pee urge, but feeling “sick”, so from heaviest to lightest duvet, leaving window open only caused sore throat quickly, 2:45 not from pee urge, but from dry mouth/+mucus-suffocating-cough. Felt 60%/3, then at 5:05 slightly better with everything 70%/3. Energy down

Weight 21st May 74.2kg = 10th = Apr 30th, so less regularly. Click for details.

empty without meal e and if possible emptied = e, half-emptied = (e), empty of B-supps/milk = ‘e’, if not emptied = ‘x’, bedclothes 0.9kg, outdoor clothes 1.8kg, B-supps 0.4kg? excr. varies,
28th: same, exx
22nd: 74.7kg exx
20th: 20th: 74.2kg exx (75.1kg eex+bc)
19th: 19th: 75.0/0/74.7k/g eex-
18th: 76.1kg exe+bc 75.0/74.7/9kg eex
17th: 75.8/8/6kg exe 75.6/6/9/9kg exe (after shower)
16th: 75.2/5/2kg eee+bc0 scales/2nd emptying.
15th: 75.5/7/3/6kg eex
14th: 76.5/1kg exe with bc. That’d be 75.2 exx without?
13th: 74.9kg eex.
12th: 74.3 eex (75.2kg/75.5kg xxe 74.2/74.3kg/74.3 eex)
11th: 74.4kg (eex)
(75.5kg/75.3kg xxe 75.6kg xxx 74.6kg/74.7kg/74.4kg/74.4kg/74.4kg (eex)
10th: 74.9kg xxe 74.2kg exe
9th: 75.3kg xxe 74.4kg eee
8th: 75.7kg xxe, 76.0kg xxx 75.1kg exx, 75.0kg exx after shower.
7th: 75.8/76.0kg. (down from 76.2kg half an hour ago?!) in bedclothes. Down to 75.7kg after 100ml pee. Still 75.1/75.2kg exe after clothes off before showering.
6th: 76.1kg/75.9kg xxe with bedstuff on. 75.9kg / 75.6kg with bedclothes, 74.8kg exe without.
5th: (14:45 - normally around 7:00 75.3kg (e)xe)
4th 74.7kg exx (74.9 xxe, 75.4 xxx, 75,8 xxx, 75.5 xxx 75.6 xxx 74.7 exx, after shower 74.8 exx… O.o.
3rd 76.4-5kg xxx 75.6 eex
2nd 75.4kg exe
1st 75.9/76.0kg with clothes, 75.2kg xex - 0.9 = 74,3kg.
30th 74.7kg with clothes. 74.2kg after supps without clothes before loo. 74.4kg! after excr?!? 74.5kg after shower. 76.4kg with indoor clothes on.
29th 74.6kg exe, 75.5kg with bedclothes on = 0.9kg! B-supps: 75.0kg = 400g. + bedclothes = 75.9kg = 900g confirmed. excre: 74.5kg e(e)e - only 0.1kg… 2nd time 74.6kg e(e)e = 0.0! Shower = 74.6kg e(x)e, but 5’ later after sorting clothes = 74.2kg e(x)e. 1’ later 74.4kg + 74.4kg + 74.4kg. Holding normal clothes amount 76.2kg/76.2kg = 1.8kg
28th 75.0kg exe, 75.2kg exx (i.e. B-supps = 200g) 75.0kg eex (i.e. small excr. = 200g today), showering puts on 100mg I think it was, night clothes back on 75.8kg, so they are 600g?
27th 74.9kg exe
26th 73.5kg eee (fully e)
25th 74.2kg eee
24th 74.3kg e((e))e
23rd 73.9kg exx 73.8 eex
22nd 73.6kg e, NOT e! not e
21st 74.0kg ee
20th 73.8kg ee
19th 74.0kg
18th 73.5kg
16th 73.9kg
14th 72.8kg
13th 73.6kg

Food: 1st: 120%? 2nd: 80%? 3rd: 80%?

Sleep 90% / Feeling 70-60%-ish / nausea 0-30%, fog 30-40%
Successes: :trophy: :zap: What if eating what I like at the moment: dairy, wholemeal grains, histaminey stuff is making me feel better while eating, but worse aside from that? Peter Osborne’s talk made me think that, but I have so many reasons for less energy, see “Development”.
Learnt: :student: See “Research”.

New habits - for what I'm changing see "simplified". I'm an 'early outside bird' now, lots of early sun, light & air all day! ✅

:ambulance: Bed 21:30-5:30. (:white_check_mark:)
:ambulance: Note thoughts and emotions (ACT) (:white_check_mark:)

Today's FM symptoms unchanged from WPI 11 & SSS 9-1=8, except....: +1: headache. (Click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (30-60%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (92%), insomnia 2 (10%), fog 2 (30%), headache (1) (0-10%), GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20%. May 29th: Only itchy nose, less in the countryside. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before. May 19th: yeast spread & tofu despite DAO. May 16th: Soy yogurt & yeast spread: May 6th/7th: Baked beans. May 1st: white beans. Click for developments:

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside.

SLEEP (click for details): h ✅ ➔ Feeling 70% well, Ache 3 of 7 ❌, getting up: 70%/2 ❌. Nostrils 5-15% stuffy 100% of the night ✅. Colder duvets cos of feeling warm.

A3 A4:0 teeth0 cold shower0 p0 HWB#0 Sleep 22:50- 3rd # is LBU
0:35 15’ 70%/2/15% p0 st3 sip fw2’ deep/ air//- A4/ plugs0 cream/ gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/5% sinuses5% headache0% sore throat10%, nausea0% stomach0% tongue15% stools0 loose%) FA/CS#0 kg:0
2:26 7’ (not from pee urge, but feeling “sick”, so from heaviest to lightest duvet) 60%/3/15% p0 st3 sip fw2’ deep/ air-// A5/ plugs0 cream0 gel/ HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/5% sinuses5% headache0% sore throat30% (from open window, nausea30% stomach10% tongue30% stools0 loose%) FA/CS#0 kg:0 dry30%
2:45 3’ (not from pee urge, but from dry mouth/+mucus-suffocating-cough) 60%/3/15% p0 st3 sip fw2’ deep/ air-// A6:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/5% sinuses5% headache0% sore throat30% (from open window, nausea30% stomach10% tongue30% stools0 loose%) FA/CS#0 kg:0 dry30%
5:05 3’ 70%/3/15% p0 st3 sip fw2’ deep/ air/ A6/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s15/0% sinuses10% headache0-10% sore throat20% nausea20% stomach15% tongue20% stools0 loose%) FA/CS#0 kg:0 dry20%
-7:11 70%?/3/15% st3, not sure, but for 30-60’ something like: nostril/s0/0% sinuses10% headache20% sore throat10% nausea20% stomach15% tongue20% stools0 loose%) FA/CS#0 kg:0 dry20%
Sum: 7h11+1h10-(15+7+3+3=)28 = 8h21-28 = 7h53, up 4x (28’), all deep.

ACTIVITIESACHE: 70%/3 :x:, TT 0, gardening/moving ➔ 70%/3-4 :x:, talking ➔ 70%/3 :x:.

ACTIONS ➔ PAINS ✅/(✅): GI, appetite, esophagus, pee, back, lips. 29th: Right wrist getting more of a problem, had forgotten to stretch enough. Details...

except GI: stools loose0% :white_check_mark:, appetite a little better (:white_check_mark:), esophagus: if I’m extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:, finger tips: better. (:white_check_mark:). Lip soreness better since fungal cream (:white_check_mark:), but lips still often white, esp. when pressed, meaning overexertion according to my wife (:x:). Still often thirsty / dry lips & mouth (:x:)

Click for details on Weather: sun nauseating0% ✅, last seizures May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last esophagus block: Apr 4th, jaw pain from tooth problems: May 10th...

Touch: :white_check_mark: Covid: :x: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:/:x:. Outdoors almost all day now, so no need for daylight lamp, if the sun becomes too bright and warm I do something in the cellar or the shade, making myself at home there.
Last focal seizures: May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck.

Treatments

Last doc update May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. Self-treatments & supps stable - May 15th: stretches helping wrists, not enough back exercises, and colostrum not tolerated, creatine next. Click for details.
Click for details: Update May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): OK Wrists: more!!! ❌❌❌, jaw-joint: to do (❌). Air + light + movement all day. ✅

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m. Keeping to schedule TODAY: OK. May 25th: Trialling rupatadine in low dose & intermittently now. May 25th: Back on silymarin. no creatine yet, colostrum 2x on one day was bad. Praps ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

So why am I even more depleted today? I think it 1) started with the ‘job’ talk during a cycle-ride for an hour last Friday, went on to one hour (more actually, but took breaks) family visits on 2) Saturday, 3) Thursday and 4) Friday, other forms of peopling on 5) Monday and 6) Wednesday, 7) dentist on Monday (extremely painful jab) 8) short onco doc office visit, 9) short GP visit, all of these connected to 10) emotional stress, 11) getting down, plus on a physical level 12) the 5 gnat bites on Monday? causing 13) histamine overload on Tuesday, which 14) robbed a lot of sleep, which 15) has made my sleep schedule wonky, 16) praps pollen getting to me more than I’d think, 17) maybe eating lots of grains and dairy to improve my appetite (so now trying to adjust more to veg & nuts = paleo again). Enough reasons. No one I’m hardly doing anything in the garden and not playing table tennis. Hard to explain, so I’m just saying: “this week it’s all been getting too much”…

‘Research’ today: Listening to drtalks: Murphree on IBS & fibromyalgia (focusing on hypoacidity and magnesium) and McCann on MCAS & fibromyalgia where she mentions rupatadine.
Lessons in self-care #677 Not doing much, but thinking a bit, doing nice things, did go for a cycle-walk & most of the evening service with my wife.
Reasons to be cheerful #727 Loads. New blossom: poppy surprised me today!
Simplified #126 Using the https://www.rhs.org.uk advice to remember what to do in the garden is quite a bit, and very helpful.
Foggies: Dropping things a bit more again, not realizing where they are, language and thoughts slow.

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

2023-05-30, Tuesday - back to 12%(?)

Exhaustibility “88%". Click for details (back to energy after able to get up earlier after 0% antihistamine):

R rest: 100% exhaustion 25% of the time (4h),
VS very slow: 60% exh. 45% of the time (7h),
S slow: 40% exhaustion 30% of the time (5h),
M medium: 20% exhaustion 0% of the time,
Q quick: 0-10% exhaustion 0% of the time
(pre-fibro: 0% exhaustion 100% of the time.)

Antihistamine trial: low & intermittent dose with my histaminey symptoms. 30th: altogether better after no antihistamine and reducing "bad" food in the evening, esp. fog/headache. Click for the table and details...

antihistamine: 25th 26th 27th - - - - 28th - -29th 30th
**pill-amount:*- - 0% -0% 20% - - - - - 0% - ?20% -0%
bad appetite: - -20% -0% 10% - - - - -10%- -10% 10%
dull head: - - - -50% 40% 30/50% - 30/50%-20% - 0%
dry mouth: - - - - 5% 10% 50/70% - - 10%- -30% 20%
IBS: - - - - - - - - 20% 20% 20% - - - - 20%- -20% 20%
mucus: - - - - - 20% 20% 10% - - - - - 10%- -60% 10%
nausea: - - – - - - - - - - – - - - - - - - - - - - - - -30% -0%
pee freq: - - - - -90% -100% 90/20% -70%- -30% 20%
pee loss - - - - - - - - - - - - - - - - - - - - -20%- -30% -0%
sinus burning: - - 5% 10% -5%/20% -/30%- -10% -0%
sleep breaks: - - -5% - 5% -5% - - - - -20%- -10% 20%
sore throat:- - - -10% 10% 20% - - - - 10%- (10% 20%
temp h/c:- - - - - -??? chhh hhhh - - - hhhc- -hhhh hhhh
tongue burn:- - -10% 10% 20% - - - - - 5%- -30% 10%
weight gain:- - - - -0% -0% +10% - - - - 0%- --0% - 0%
zombified:- - - - - - - - - - - 10/20% - - -/30%- -20% -0%
Avg/Max.- - - - - -avg max max - - - - - max- max max
Most symptoms are at night.
Fri/Sat (26th/27th): 1 of 3 passiflora, 0 apigenin. Pee frequency reduced by 2mg antihistamine from 4 on, causes headache, dry mouth, some (10 → 20%) sinus burning, sore throat, tongue burning and zombification.
Sat/Sun 27th/28th: 0 antihistamine, 1 of 3 passiflora, 0 apigenin. Dry hands will be something else. Generally, the long sleep breaks have “of course” stopped, I think from the zombification. And that’s something additional to the pee frequency. If I could, I’d increase GABA at night, to decrease histamine, but that’s causing stomach problems. Tongue burn starting at 22:00!? (Allergic reaction to grass pollen?)
Sun/Mon 28th/29th 20% antihistamine (I think, I did put in in the box), 1 of 3 passiflora, 0 apigenin. 2:26 not from pee urge, but feeling “sick”, so from heaviest to lightest duvet, leaving window open only caused sore throat quickly, 2:45 not from pee urge, but from dry mouth/+mucus-suffocating-cough. Felt 60%/3, then at 5:05 slightly better with everything 70%/3. Energy down.
Sun/Mon 29th/30th: Not zombified tonight, so breaks were more comfortable and getting up easier, with no sinus headache or nausea either and pee frequency OK.
Mon/Tues 29th/30th: After managing an early start I got back to the new normal today, but still needed to be extremely slow.

Weight 21st May 74.2kg = 10th = Apr 30th, so less regularly. Click for details.

empty without meal e and if possible emptied = e, half-emptied = (e), empty of B-supps/milk = ‘e’, if not emptied = ‘x’, bedclothes 0.9kg, outdoor clothes 1.8kg, B-supps 0.4kg? excr. varies,
30th: same exx
28th: same, exx
22nd: 74.7kg exx
20th: 20th: 74.2kg exx (75.1kg eex+bc)
19th: 19th: 75.0/0/74.7k/g eex-
18th: 76.1kg exe+bc 75.0/74.7/9kg eex
17th: 75.8/8/6kg exe 75.6/6/9/9kg exe (after shower)
16th: 75.2/5/2kg eee+bc0 scales/2nd emptying.
15th: 75.5/7/3/6kg eex
14th: 76.5/1kg exe with bc. That’d be 75.2 exx without?
13th: 74.9kg eex.
12th: 74.3 eex (75.2kg/75.5kg xxe 74.2/74.3kg/74.3 eex)
11th: 74.4kg (eex)
(75.5kg/75.3kg xxe 75.6kg xxx 74.6kg/74.7kg/74.4kg/74.4kg/74.4kg (eex)
10th: 74.9kg xxe 74.2kg exe
9th: 75.3kg xxe 74.4kg eee
8th: 75.7kg xxe, 76.0kg xxx 75.1kg exx, 75.0kg exx after shower.
7th: 75.8/76.0kg. (down from 76.2kg half an hour ago?!) in bedclothes. Down to 75.7kg after 100ml pee. Still 75.1/75.2kg exe after clothes off before showering.
6th: 76.1kg/75.9kg xxe with bedstuff on. 75.9kg / 75.6kg with bedclothes, 74.8kg exe without.
5th: (14:45 - normally around 7:00 75.3kg (e)xe)
4th 74.7kg exx (74.9 xxe, 75.4 xxx, 75,8 xxx, 75.5 xxx 75.6 xxx 74.7 exx, after shower 74.8 exx… O.o.
3rd 76.4-5kg xxx 75.6 eex
2nd 75.4kg exe
1st 75.9/76.0kg with clothes, 75.2kg xex - 0.9 = 74,3kg.
30th 74.7kg with clothes. 74.2kg after supps without clothes before loo. 74.4kg! after excr?!? 74.5kg after shower. 76.4kg with indoor clothes on.
29th 74.6kg exe, 75.5kg with bedclothes on = 0.9kg! B-supps: 75.0kg = 400g. + bedclothes = 75.9kg = 900g confirmed. excre: 74.5kg e(e)e - only 0.1kg… 2nd time 74.6kg e(e)e = 0.0! Shower = 74.6kg e(x)e, but 5’ later after sorting clothes = 74.2kg e(x)e. 1’ later 74.4kg + 74.4kg + 74.4kg. Holding normal clothes amount 76.2kg/76.2kg = 1.8kg
28th 75.0kg exe, 75.2kg exx (i.e. B-supps = 200g) 75.0kg eex (i.e. small excr. = 200g today), showering puts on 100mg I think it was, night clothes back on 75.8kg, so they are 600g?
27th 74.9kg exe
26th 73.5kg eee (fully e)
25th 74.2kg eee
24th 74.3kg e((e))e
23rd 73.9kg exx 73.8 eex
22nd 73.6kg e, NOT e! not e
21st 74.0kg ee
20th 73.8kg ee
19th 74.0kg
18th 73.5kg
16th 73.9kg
14th 72.8kg
13th 73.6kg

Food: 1st: 110% (add a 3rd apple!) 2nd: 80% 3rd: 80%. Wondering what to eat.

Sleep 90% / Feeling 85%-ish / nausea 0%, fog 20%

New habits - for what I'm changing see "simplified". I'm an 'early outside bird' now, lots of early sun, light & air all day! ✅

:ambulance: Bed 21:30-5:30. (:white_check_mark:)
:ambulance: Note thoughts and emotions (ACT) (:white_check_mark:)

Today's FM symptoms unchanged from WPI 11 & SSS 9-1=8, except....: +0. (Click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (30-60%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (88%), insomnia 2 (10%), fog 2 (30%), headache (0), GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20%. May 29th: Only itchy nose, less in the countryside. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before. May 19th: yeast spread & tofu despite DAO. May 16th: Soy yogurt & yeast spread: May 6th/7th: Baked beans. May 1st: white beans. Click for developments:

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

SLEEP (click for details): 6h51, up 4x (1h28), all deep, clear-headed. ✅ ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅. Nostrils 0-10% stuffy 100% of the night ✅. Wet?

A3 A4:0 teeth/ cold shower0 p0 HWB#0 Sleep 22:45- 3rd # is LBU
23:59 1h08 6 80-85%/2/15% p0 st3 sip fw2’ deep/ air/ A4/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/5% sinuses5% headache0% sore throat10%, nausea0-10% stomach0-10% tongue5% stools0 loose%) FA/CS#0 xkg drymouth20% dryhands30%
2:22 5’ (why: no pee urge, = histamine?) 80%/2/15% p0 st3 sip fw2’ deep/ air/ A5/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/5% sinuses0% headache0% sore throat10%, nausea0-10% stomach0-10% tongue5% stools0 loose%) FA/CS#0 xkg drymouth30% dryhands30%
3:18 12’ (pee urge?) 80%/2/15% p0 st3 sip fw2’ deep/ air/ A6/ plugs0 cream/ gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/5% sinuses0% headache0% sore throat20%, nausea0-10% stomach10% tongue5% stools0 loose%) FA/CS#0 xkg drymouth30% dryhands30%
4:35 3’ (pee urge?) 80%/2/15% p0 st3 sip fw1’ deep/ air/ A7/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/5% sinuses0% headache0% sore throat20%, nausea0-10% stomach10% tongue5% stools0 loose%) FA/CS#0 xkg drymouth30% dryhands10%
-6:04 (9’) (pee urge) 80%/2/15% 2p0 st3 sip fw1’ deep/ air/ A8:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/5% sinuses0% headache0% sore throat20%, nausea0% stomach10% tongue5% stools0 loose%) FA/CS#0 xkg drymouth30% dryhands10% (after olive oil soap) Sum: 6h04+1h15-(1h08+5+12+3=)1h28 = 7h19-1h28 = 6h51, up 4x (1h28), all deep.
2morrow: drymouth% dryhands% why?

ACTIVITIESACHE: 80%/2 :white_check_mark:, TT 0, gardening/moving (extremely slow) ➔ 80%/2 :white_check_mark:, talking ➔ 80%/3-4 :x:.

ACTIONS ➔ PAINS ✅/(✅): GI, appetite, esophagus, pee, back, lips. Details...

except GI: stools loose0% :white_check_mark:, appetite a little better (:white_check_mark:), esophagus: if I’m extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:, finger tips: better. (:white_check_mark:). Lip soreness better since fungal cream (:white_check_mark:), but lips still often white, esp. when pressed, meaning overexertion according to my wife (:x:). Still often thirsty / dry lips & mouth (:x:)

Click for details on Weather: sun nauseating0% ✅, unwell0%: shadow, layers off and on ✅, last seizures May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last esophagus block: Apr 4th, jaw pain from tooth problems: May 10th...

Touch: :white_check_mark: Covid: :x: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:/:x:. Outdoors almost all day now, so no need for daylight lamp, if the sun becomes too bright and warm I do something in the cellar or the shade, making myself at home there.
Last focal seizures: May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck.

Treatments

Last doc update May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. Self-treatments & supps stable - May 15th: stretches helping wrists, not enough back exercises, and colostrum not tolerated, creatine next. Click for details.
Click for details: Update May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m. Keeping to schedule TODAY: OK. May 25th: Back on silymarin. no creatine yet, colostrum 2x on one day was bad. Praps ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today: Quite a lot of drtalks Fibromyalgia summit talks, final day, but I must say there was even more of: dYou just have to live healthy all round (Murphree), you just have to remove the triggers incl. to unstress, do meditations and it is reversible (Eliaz). Often with the reasoning: they did it, so we just have to follow their protocols. Don’t we just love that! (ey, @ModSupport / Merl! ;-)) Murphree is touting “mould” as cause recently, which is a connection to MCAS - but again I think because mould is everywhere and hard to prove, despite what they say, they’ve found one that can’t be disproven, so they “win”, they believe. Often repeated: paleo, no grain, brain-gut connection.

Lessons in self-care #678 I was thinking about starting with table tennis, but even 5’ in a shop started me hurting, so I’ll wait a bit.

Reasons to be cheerful #728 Loads:

  1. One of my new T-shirts says “log off” with a tree stump on the front “because nature rocks” on the back. Not really true tho, cos I’m not logging off the trees, I’m letting lots grow, and I’m also not logging off the internet, cos I’m using it to be able to understand my plants and birds quicker.
  2. A nuthatch was around today. Wasn’t sure, but it looked a bit like a kingfisher and the shape with long beak and short tail fitted, looking it up I guessed right. Had a listen to his call, seems easy to distinguish - high repetitive squeas and a peow.
  3. Two poppies, 5 lilies and the firethorn is suddenly blooming all over too.
  4. Good early start for once, less zombified.
  5. At last less sun.
  6. Brownie (dunnock) here too, of course baby blackbird and the great + blue tits and the new black squirrel, or is it the red one? No, the red one’s going for birdfeed now, haven’t got any nuts in there at the moment, they may have been finished. But it’s taking sunflower seeds, so that’s OK too, got to look for new stuff.
  7. Fun last night checking the singing times of our blackbird, cos the dunnock and a pigeon took over his singing place when he left it - for pigeon he then had to wait, dunnock had to move quick.
  8. Not really fun when the blackbirds chase each other or the pigeons battle, more fun when you see them sitting near each other without squabbling.
  9. I’ve always wanted to distinguish great and blue tit song, now I can distinguish their look quicker by the black breast band of the coal tit. Great tit has just 3 notes, calmly alternating from the middle to the lower (4th down) then higher (3rd up), whilst the blue tit makes more “noise”. Playing the video, one of them in the garden may be answering. Clearly very different. My wife had laughed at me not able to distinguish the looks quickly from afar, now I can can - praps? - distinguish the sounds.
  10. Pair of dunnocks.
  11. Sleuthing my plant names two new surprises
    a) what I once thought was (also) a clematis is a lonicera, makes quite a difference.
    b) I have two campanulas - bellflowers looking completely different - one really big - as yet not flowering in 3 places, one really small, flowering in 2 places, one on the balcony above the other, so seeds have dropped.

Simplified #127 Loads:

  1. Wondering if/how to order the plant photos per area in garden instead of making a plan of all areas? Praps the plan is quicker than I think tho?
  2. After it going wrong last night (her not asking), I’ve decided to be sooner in the bathroom than my wife, i.e. showering first thing if she’s up and saying goodnight and going there directly at 22:00 even if I blog afterwards. But that all makes 15’ taking my B-supps later, need to balance that out.
  3. Grouping cutlery for pre-cleaning I’ve been doing for weeks.
  4. Grouping clothes on the sofa to put in the used box instead of throwing them on the floor.
  5. Using tetrapaks as waste containers while cleaning.
  6. Bringing bucket to the vases to save clipping flower water (daily) for the toilet, instead of the vases singly to the bucket.
  7. Using the lid of the egg boiling pot for collecting the eggshells as fertilizer.
  8. Exchanging the (almond milk) tetrapaks for waste every day now, however full they are so, the biowaste etc. isn’t there as long.

Foggies:

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

Hey JayCS,

And for many of us with rare conditions this can be where investigations can lead. For example some conditions have a list of indicators. If a patient is missing some indicators does that automatically exclude that diagnosis or can it all be put down to a CNS (Central Nervous System) issue. There are a number of autoimmune conditions that have some vastly varying indicators

Personally, I think labelling it all as a CNS issue is a bit of a cop out. I told a dr this and he says “Ohh, not all of it…just bits of it ‘could’ be CNS related…” “Okay, so which bits?..” “Well… …it’s more like a percentage of symptoms could be CNS related…” “So, what you are telling me is it could be (or it might not be) CNS related by percentage???” It was like trying to nail jello to the wall, lots of theory but very little practical, just more drugs to stupefy (and I don’t need any more of them. YUCK). The entire body is run and operated by the CNS, so no matter the issue the CNS is involved somewhere.

I have learnt I have to work within my limits. I know what the theory is, I know what the textbook says. I ain’t in the damn textbook and I have to manage for me. Not the Drs. Don’t get me wrong here, I go to the medical appointments (She who must be obeyed (wife) makes sure of it) I go “Yes Sir, no Sir, What ever you say Sir…” but at the end of the day I’m the one trying to deal with it all.

“…it’s a point.” Yes and no. I think it may give some individuals another avenue to investigate. You never know that ‘avenue’ may lead to their ‘key’. But, I’m concerned that it becomes the new default for ongoing issues of pain, where the medicos can’t find a cause, it becomes something similar to a diagnosis of ‘idiopathic in nature’ ie there is no cause. I was fed that line for years, then they found the cause :astonished: :roll_eyes:

Just some ramblings
Merl from the Modsupport Team

1 Like

Merl, thanks for sharing: absolutely brilliant “ramblings” - this is word for every single word and every single sentence exactly how I feel about it.
The CSS (central sensitization syndrome) explanation plus the new “nociplastic” pain type they’ve invented: just a cop out.
When I move slowly and that masks the pain, it is a movement stimulus. But probably like you I don’t really see that as any form of real proof that fibro is a CSS. Just I’m not sure why it works fairly well for me at the moment, that’s what made me say “it’s a point”, cos I can’t explain it any other way - yet… :smiley:

1 Like

2023-05-31, Wednesday - energy 10%, but feeling OK, except peopling and in the evening appetite.

Exhaustibility “90%". Click for details (simlar profile to the days before):

R rest: 100% exhaustion 30% of the time (7h),
VS very slow: 60% exh. 30% of the time (7h),
S slow: 40% exhaustion 10% of the time (2h),
M medium: 20% exhaustion 0% of the time,
Q quick: 0-10% exhaustion 0% of the time
(pre-fibro: 0% exhaustion 100% of the time.)

Antihistamine trial: low & intermittent dose with my histaminey symptoms. Click for the table and details...

antihistamine: 25th 26th 27th - - - - 28th - -29th 30th 31st
**pill-amount:*- - 0% -0% 20% - - - - - 0% - ?20% -0% -0%
bad appetite: - -20% -0% 10% - - - - -10%- -10% 10% 30%
dull head: - - - -50% 40% 30/50% - 30/50%-20% - 0% -0%
dry mouth: - - - - 5% 10% 50/70% - - 10%- -30% 20% 20%
IBS: - - - - - - - - 20% 20% 20% - - - - 20%- -20% 20% 20%
mucus: - - - - - 20% 20% 10% - - - - - 10%- -60% 10% 20%
nausea: - - – - - - - - - - – - - - - - - - - - - - - - -30% -0% 10%
pee freq: - - - - -90% -100% 90/20% -70%- -30% 20% 20%
pee loss - - - - - - - - - - - - - - - - - - - - -20%- -30% -0% -0%
sinus burning: - - 5% 10% -5%/20% -/30%- -10% -0% -10%
sleep breaks: - - -5% - 5% -5% - - - - -20%- -10% 20% -20%
sore throat:- - - -10% 10% 20% - - - - 10%- (10% 20% 20%
temp h/c:- - - - - -??? chhh hhhh - - - hhhc- -hhhh hhhh hhhh
tongue burn:- - -10% 10% 20% - - - - - 5%- -30% 10% 20%
weight gain:- - - - -0% -0% +10% - - - - 0%- --0% - 0% -0%
zombified:- - - - - - - - - - - 10/20% - - -/30%- -20% -0% -0%
Avg/Max.- - - - - -avg max max - - - - - max- max max max
Most symptoms are at night.
Fri/Sat (26th/27th): 1 of 3 passiflora, 0 apigenin. Pee frequency reduced by 2mg antihistamine from 4 on, causes headache, dry mouth, some (10 → 20%) sinus burning, sore throat, tongue burning and zombification.
Sat/Sun 27th/28th: 0 antihistamine, 1 of 3 passiflora, 0 apigenin. Dry hands will be something else. Generally, the long sleep breaks have “of course” stopped, I think from the zombification. And that’s something additional to the pee frequency. If I could, I’d increase GABA at night, to decrease histamine, but that’s causing stomach problems. Tongue burn starting at 22:00!? (Allergic reaction to grass pollen?)
Sun/Mon 28th/29th 20% antihistamine (I think, I did put in in the box), 1 of 3 passiflora, 0 apigenin. 2:26 not from pee urge, but feeling “sick”, so from heaviest to lightest duvet, leaving window open only caused sore throat quickly, 2:45 not from pee urge, but from dry mouth/+mucus-suffocating-cough. Felt 60%/3, then at 5:05 slightly better with everything 70%/3. Energy down.
Mon/Tue 29th/30th: After managing an early start I got back to the new normal today, but still needed to be extremely slow.
Tue/Wed 30th/31st: Only a little bit of table tennis. A neighbourly get together exhausted me and made me lose appetite, altho I hardly took part.

Weight 21st May 74.2kg = 10th = Apr 30th, so less regularly. Click for details.

empty without meal e and if possible emptied = e, half-emptied = (e), empty of B-supps/milk = ‘e’, if not emptied = ‘x’, bedclothes 0.9kg, outdoor clothes 1.8kg, B-supps 0.4kg? excr. varies,
31st: same exx (analog scales at +1kg, but digital had 74.7kg)
28th: same, exx
22nd: 74.7kg exx
20th: 20th: 74.2kg exx (75.1kg eex+bc)
19th: 19th: 75.0/0/74.7k/g eex-
18th: 76.1kg exe+bc 75.0/74.7/9kg eex
17th: 75.8/8/6kg exe 75.6/6/9/9kg exe (after shower)
16th: 75.2/5/2kg eee+bc0 scales/2nd emptying.
15th: 75.5/7/3/6kg eex
14th: 76.5/1kg exe with bc. That’d be 75.2 exx without?
13th: 74.9kg eex.
12th: 74.3 eex (75.2kg/75.5kg xxe 74.2/74.3kg/74.3 eex)
11th: 74.4kg (eex)
(75.5kg/75.3kg xxe 75.6kg xxx 74.6kg/74.7kg/74.4kg/74.4kg/74.4kg (eex)
10th: 74.9kg xxe 74.2kg exe
9th: 75.3kg xxe 74.4kg eee
8th: 75.7kg xxe, 76.0kg xxx 75.1kg exx, 75.0kg exx after shower.
7th: 75.8/76.0kg. (down from 76.2kg half an hour ago?!) in bedclothes. Down to 75.7kg after 100ml pee. Still 75.1/75.2kg exe after clothes off before showering.
6th: 76.1kg/75.9kg xxe with bedstuff on. 75.9kg / 75.6kg with bedclothes, 74.8kg exe without.
5th: (14:45 - normally around 7:00 75.3kg (e)xe)
4th 74.7kg exx (74.9 xxe, 75.4 xxx, 75,8 xxx, 75.5 xxx 75.6 xxx 74.7 exx, after shower 74.8 exx… O.o.
3rd 76.4-5kg xxx 75.6 eex
2nd 75.4kg exe
1st 75.9/76.0kg with clothes, 75.2kg xex - 0.9 = 74,3kg.
30th 74.7kg with clothes. 74.2kg after supps without clothes before loo. 74.4kg! after excr?!? 74.5kg after shower. 76.4kg with indoor clothes on.
29th 74.6kg exe, 75.5kg with bedclothes on = 0.9kg! B-supps: 75.0kg = 400g. + bedclothes = 75.9kg = 900g confirmed. excre: 74.5kg e(e)e - only 0.1kg… 2nd time 74.6kg e(e)e = 0.0! Shower = 74.6kg e(x)e, but 5’ later after sorting clothes = 74.2kg e(x)e. 1’ later 74.4kg + 74.4kg + 74.4kg. Holding normal clothes amount 76.2kg/76.2kg = 1.8kg
28th 75.0kg exe, 75.2kg exx (i.e. B-supps = 200g) 75.0kg eex (i.e. small excr. = 200g today), showering puts on 100mg I think it was, night clothes back on 75.8kg, so they are 600g?
27th 74.9kg exe
26th 73.5kg eee (fully e)
25th 74.2kg eee
24th 74.3kg e((e))e
23rd 73.9kg exx 73.8 eex
22nd 73.6kg e, NOT e! not e
21st 74.0kg ee
20th 73.8kg ee
19th 74.0kg
18th 73.5kg
16th 73.9kg
14th 72.8kg
13th 73.6kg

Food: 1st: 100% 2nd: 80% 3rd: 0% - drat. Esophagus block at 16:00 delayed and took appetite down.

Sleep 90% / Feeling 80%-ish / nausea 0%, fog 30%

New habits - for what I'm changing see "simplified". I'm an 'early outside bird' now, lots of early sun, light & air all day! ✅

:ambulance: Bed 21:30-5:30. (:white_check_mark:)
:ambulance: Note thoughts and emotions (ACT) (:white_check_mark:)

Today's FM symptoms unchanged from WPI 11 & SSS 9-1=8, except....: +1: sinus headache for an hour in the morning. (Click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (30-60%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (88%), insomnia 2 (10%), fog 2 (30%), headache (1) (0-20%), GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20%. May 29th: Only itchy nose, less in the countryside. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before. May 19th: yeast spread & tofu despite DAO. May 16th: Soy yogurt & yeast spread: May 6th/7th: Baked beans. May 1st: white beans. Click for developments:

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

SLEEP (click for details): 7h08, up 5x (59'), all deep. 0 rup, 1 apigenin + 2 pf, good except energy and sinus headache upon waking up. ✅ ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 70%/2 ❌. Nostrils ?10% stuffy 100% of the night ✅. Wet?

A3 A4:0 teeth0 cold shower0 p0 HWB#0 Sleep 22:40- 3rd # is LBU
0:15 37’ 6 70%/3/15% → 80%/2 p0 st3 sip fw2’ deep/ air/ A4/ plugs0 cream/ gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/% sinuses5% headache0% sore throat20%, nausea0% stomach0% tongue20% stools0 loose%) FA/CS#0 0kg
2:10 7’ 80%/2/15% p0 st3 sip fw2’ deep/ air/ A5/ plugs0 cream/ gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s20/0% sinuses5% headache0% sore throat40%, nausea0% stomach0% tongue20% stools0 loose%) FA/CS#0 0kg, Calendula essence for sore throat.
3:40 6’ 80%/2/15% p0 st3 sip fw2’ deep/ air/ A6/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s5/0% sinuses5% headache0% sore throat20%, nausea0% stomach0% tongue20% stools0 loose%) FA/CS#0 0kg, Calendula essence for sore throat.
4:58 5’ 80%/2/15% p0 st3 sip fw2’ deep/ air/ A7/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s/5% sinuses20% headache0/10/20% sore throat20%, nausea0% stomach0% tongue20% stools0 loose%) FA/CS#0 0kg, Calendula essence for sore throat.
5:42 4’ 70%/2/15% p0 st3 sip fw2’ deep/ air/ A8:0 plugs0 cream/ gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s/15% sinuses10% headache0/10% sore throat15%, nausea0% stomach0% tongue10% stools0 loose%) FA/CS#0 0kg, Calendula essence for sore throat. drymouth 20% dryhands 30%
-6:47 70%/2/15% p0 st3 sip fw2’ deep/ air/ A8:0 plugs0 cream/ gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s/15% sinuses10% headache10% sore throat5%, nausea0% stomach0% tongue5% stools0 loose%) FA/CS#0 0kg, Calendula essence for sore throat. drymouth 20% dryhands 20%. Sinus headache stopped inside of about an hour.

Sum: 6h47+1h20-(37+7+6+5+4=)59 = 8h07-59 = 7h08, up 5x (59’), all deep. 0 rup, 1 apigenin + 2 pf, good except energy.

ACTIVITIESACHE: 80%/2 :white_check_mark:, TT 1:1 (picking up 0 balls, talking 10%, hardly moving, 2nd game even less than first) ➔ 80%/5 :x:, gardening/moving ➔ 80%/2 :white_check_mark:, talking ➔ 80%/4-6 :x:.

ACTIONS ➔ PAINS ✅/(✅): GI, appetite, esophagus problem at 16:00 cos of an argument (not concentrating enough on eating), pee, back, lips. Details...

except GI: stools loose0% :white_check_mark:, appetite a little better (:white_check_mark:), esophagus: if I’m extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:, finger tips: better. (:white_check_mark:). Lip soreness better since fungal cream (:white_check_mark:), but lips still often white, esp. when pressed, meaning overexertion according to my wife (:x:). Still often thirsty / dry lips & mouth (:x:)

Click for details on Weather: sun nauseating0% ✅, unwell0%: went in shade a lot more now ✅, last seizures May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last esophagus block: May 31st, jaw pain from tooth problems: May 10th...

Touch: :white_check_mark: Covid: :x: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:/:x:. Outdoors almost all day now, so no need for daylight lamp, if the sun becomes too bright and warm I do something in the cellar or the shade, making myself at home there.
Last focal seizures: May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck.

Treatments

Last doc update May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. Self-treatments & supps stable - May 15th: stretches helping wrists, not enough back exercises, and colostrum not tolerated, creatine next. Click for details.
Click for details: Update May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m. Keeping to schedule TODAY: OK. May 25th: Back on silymarin. no creatine yet, colostrum 2x on one day was bad. Praps ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today: A little for a forum question.
Lessons in self-care #679 Made sure I didn’t spend much time with people, but it was still too much. Since my wife has realized she needs time alone herself, I was able to say: Yeah, so do I. So we broke even on that and on a birthday on Saturday, which I’m now not going to.
Reasons to be cheerful #729 Loads. Got quite a bit done in the garden today.
Simplified #128 Loads: Supps.
Foggies: OK today.

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

[/details]

2023-06-01, Thursday -

+drymouth 30% dryhands 20%
At little allergic sneezing and wiping nose in the evening, despite not being in the countryside at all. Oh - yes I was, I got the guinea pigs some grass, took 5’, but it was blooming. So next time put mask on! Took 8%? of an antihistamine pill, cos 3 gnat bites started up I hadn’t reealized exist. Heartburn after the esophagus block and hardly eating in the evening (lack of appetite, probably cos of the block).

Exhaustibility “90%". Click for details (energy seemed to increase from rest, but also deplete extremely quickly from talking, so spent at least half the day resting):

R rest: 100% exhaustion 50% of the time (8h),
VS very slow: 60% exh. 40% of the time (6h),
S slow: 40% exhaustion 10% of the time (2h),
M medium: 20% exhaustion 0% of the time,
Q quick: 0-10% exhaustion 0% of the time
(pre-fibro: 0% exhaustion 100% of the time.)

Antihistamine trial: low & intermittent dose with my histaminey symptoms. Click for the table and details...

antihistamine: 25th 26th 27th - - - - 28th - -29th 30th 31st 1st 2nd
**pill-amount:*- - 0% -0% 20% - - - - - 0% - ?20% -0% -0% - 8% - 0%
bad appetite: - -20% -0% 10% - - - - -10%- -10% 10% /70% 30%
dull head: - - - -50% 40% 30/50% - 30/50%-20% - 0% -0% -0%
dry mouth: - - - - 5% 10% 50/70% - - 10%- -30% 20% 20% 20%
gnat bites…10% 10%
IBS: - - - - - - - - 20% 20% 20% - - - - 20%- -20% 20% 20% 20%
mucus: - - - - - 20% 20% 10% - - - - - 10%- -60% 10% 20% 10%
nausea: - - – - - - - - - - – - - - - - - - - - - - - - -30% -0% 10% - -0%
pee freq: - - - - -90% -100% 90/20% -70%- -30% 20% 20% 40%
pee loss - - - - - - - - - - - - - - - - - - - - -20%- -30% -0% -0% - 0%
sinus burning: - - 5% 10% -5%/20% -/30%- -10% -0% -10% -0%
sleep breaks: - - -5% - 5% -5% - - - - -20%- -10% 20% -20%-20%
sore throat:- - - -10% 10% 20% - - - - 10%- (10% 20% 20% 20%
temp h/c:- - - - - -??? chhh hhhh - - - hhhc- -hhhh h h h
tongue burn:- - -10% 10% 20% - - - - - 5%- -30% 10% 20% - 5%
weight gain:- - - - -0% -0% +10% - - - - 0%- --0% - 0% -0% -0%
zombified:- - - - - - - - - - - 10/20% - - -/30%- -20% -0% -0% -0%
Avg/Max.- - - - - -avg max max - - - - - max- max max max max
Most symptoms are at night.
Fri/Sat (26th/27th): 1 of 3 passiflora, 0 apigenin. Pee frequency reduced by 2mg antihistamine from 4 on, causes headache, dry mouth, some (10 → 20%) sinus burning, sore throat, tongue burning and zombification.
Sat/Sun 27th/28th: 0 antihistamine, 1 of 3 passiflora, 0 apigenin. Dry hands will be something else. Generally, the long sleep breaks have “of course” stopped, I think from the zombification. And that’s something additional to the pee frequency. If I could, I’d increase GABA at night, to decrease histamine, but that’s causing stomach problems. Tongue burn starting at 22:00!? (Allergic reaction to grass pollen?)
Sun/Mon 28th/29th 20% antihistamine (I think, I did put in in the box), 1 of 3 passiflora, 0 apigenin. 2:26 not from pee urge, but feeling “sick”, so from heaviest to lightest duvet, leaving window open only caused sore throat quickly, 2:45 not from pee urge, but from dry mouth/+mucus-suffocating-cough. Felt 60%/3, then at 5:05 slightly better with everything 70%/3. Energy down.
Mon/Tue 29th/30th: After managing an early start I got back to the new normal today, but still needed to be extremely slow.
Tue/Wed 30th/31st: Only a little bit of table tennis. A neighbourly get together exhausted me and made me lose appetite, altho I hardly took part.
Wed/Thurs 31tst/1st: Same. This amount seemed to have negligible sfx.

Weight 21st May 74.2kg = 10th = Apr 30th, so less regularly. Click for details.

empty without meal e and if possible emptied = e, half-emptied = (e), empty of B-supps/milk = ‘e’, if not emptied = ‘x’, bedclothes 0.9kg, outdoor clothes 1.8kg, B-supps 0.4kg? excr. varies,
1st: praps slightly less.
31st: same exx (analog scales at +1kg, but digital had 74.7kg)
28th: same, exx
22nd: 74.7kg exx
20th: 20th: 74.2kg exx (75.1kg eex+bc)
19th: 19th: 75.0/0/74.7k/g eex-
18th: 76.1kg exe+bc 75.0/74.7/9kg eex
17th: 75.8/8/6kg exe 75.6/6/9/9kg exe (after shower)
16th: 75.2/5/2kg eee+bc0 scales/2nd emptying.
15th: 75.5/7/3/6kg eex
14th: 76.5/1kg exe with bc. That’d be 75.2 exx without?
13th: 74.9kg eex.
12th: 74.3 eex (75.2kg/75.5kg xxe 74.2/74.3kg/74.3 eex)
11th: 74.4kg (eex)
(75.5kg/75.3kg xxe 75.6kg xxx 74.6kg/74.7kg/74.4kg/74.4kg/74.4kg (eex)
10th: 74.9kg xxe 74.2kg exe
9th: 75.3kg xxe 74.4kg eee
8th: 75.7kg xxe, 76.0kg xxx 75.1kg exx, 75.0kg exx after shower.
7th: 75.8/76.0kg. (down from 76.2kg half an hour ago?!) in bedclothes. Down to 75.7kg after 100ml pee. Still 75.1/75.2kg exe after clothes off before showering.
6th: 76.1kg/75.9kg xxe with bedstuff on. 75.9kg / 75.6kg with bedclothes, 74.8kg exe without.
5th: (14:45 - normally around 7:00 75.3kg (e)xe)
4th 74.7kg exx (74.9 xxe, 75.4 xxx, 75,8 xxx, 75.5 xxx 75.6 xxx 74.7 exx, after shower 74.8 exx… O.o.
3rd 76.4-5kg xxx 75.6 eex
2nd 75.4kg exe
1st 75.9/76.0kg with clothes, 75.2kg xex - 0.9 = 74,3kg.
30th 74.7kg with clothes. 74.2kg after supps without clothes before loo. 74.4kg! after excr?!? 74.5kg after shower. 76.4kg with indoor clothes on.
29th 74.6kg exe, 75.5kg with bedclothes on = 0.9kg! B-supps: 75.0kg = 400g. + bedclothes = 75.9kg = 900g confirmed. excre: 74.5kg e(e)e - only 0.1kg… 2nd time 74.6kg e(e)e = 0.0! Shower = 74.6kg e(x)e, but 5’ later after sorting clothes = 74.2kg e(x)e. 1’ later 74.4kg + 74.4kg + 74.4kg. Holding normal clothes amount 76.2kg/76.2kg = 1.8kg
28th 75.0kg exe, 75.2kg exx (i.e. B-supps = 200g) 75.0kg eex (i.e. small excr. = 200g today), showering puts on 100mg I think it was, night clothes back on 75.8kg, so they are 600g?
27th 74.9kg exe
26th 73.5kg eee (fully e)
25th 74.2kg eee
24th 74.3kg e((e))e
23rd 73.9kg exx 73.8 eex
22nd 73.6kg e, NOT e! not e
21st 74.0kg ee
20th 73.8kg ee
19th 74.0kg
18th 73.5kg
16th 73.9kg
14th 72.8kg
13th 73.6kg

Food: 1st: 100%? 2nd: 60% 3rd: 80% - again a problem caused distraction caused a block.

Sleep 90% / Feeling 80%-ish / nausea 0%, fog 30%

New habits - for what I'm changing see "simplified". I'm an 'early outside bird' now, lots of early sun, light & air all day! ✅

:ambulance: Bed 21:30-5:30. (:white_check_mark:)
:ambulance: Note thoughts and emotions (ACT) (:white_check_mark:)

Today's FM symptoms unchanged from WPI 11 & SSS 9-1=8, except....: +0: (Click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (30-60%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (90%), insomnia 2 (10%), fog 2 (30%), headache (0), GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20%. May 29th: Only itchy nose, less in the countryside. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before. May 19th: yeast spread & tofu despite DAO. May 16th: Soy yogurt & yeast spread: May 6th/7th: Baked beans. May 1st: white beans. Click for developments:

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

SLEEP (click for details): 7h57, up 5x (66), all deep. ✅ ➔ Feeling 80% well, Ache 2 of 7 ❌, getting up: 80%/2 ✅. Nostrils 10% stuffy 100% of the night ✅. No sweat.

A3 A4:0 teeth/ cold shower0 p0 HWB#0 Sleep 22:15- 3rd # is LBU
23:08 6’ 80%/2/15% p0 st3 sip fw2’ deep/ air/ A4:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/5% sinuses5% headache0% sore throat20%, nausea0% stomach0% tongue5% stools0 loose%) FA/CS#0 g xxx drymouth 30% dryhands 20%
0:00 6’ 80%/2/15% p0 st3 sip fw2’ deep/ air/ A4/ plugs0 cream/ gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/5% sinuses5% headache0% sore throat20%, nausea0% stomach0% tongue20% stools0 loose%) FA/CS#0 g xxx drymouth 30% dryhands 30%
1:10 6’ 80%/2/15% p0 st3 sip fw2’ deep/ air//- A5/ plugs0 cream gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/5% sinuses5% headache0% sore throat30%, nausea0% stomach10% tongue30% stools0 loose%) FA/CS#0 g xxx drymouth 60% (dryhands 0%)
2:23 6’ 80%/2/15% p0 st3 sip fw2’ deep/ air-// A6/ plugs0 cream gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/5% sinuses5% headache0% sore throat30% (not more, altho window open), nausea0% stomach10% tongue30% stools0 loose%) FA/CS#0 g xxx drymouth 70% (dryhands 0%) zombified20%, but OK, gnat bites OK.
4:03 6’ 80%/2/15% p0 st3 sip fw2’ deep/ air/ A7/ plugs0 cream gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/5% sinuses5% headache0% sore throat30% nausea0% stomach10% tongue10% stools0 loose%) FA/CS#0 g xxx drymouth 30% after gel, (dryhands 20%) zombified10%, but OK, gnat bites OK. 0%.
5:15 42’ 6 80%/2/15% p0 st3 sip fw2’ deep/ air/ A8:0 plugs0 cream gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s02/0% sinuses5% headache0% sore throat15% nausea10% stomach20% tongue10% stools0 loose%) FA/CS#0 g xxx drymouth 30% after gel, (dryhands 20%) zombified10%, but OK, gnat bites OK:0%.

Sum: 7h18+1h45-(6+6+6+6+42=)66 = 9h03-66 = 7h57, up 5x (66), all deep.

ACTIVITIESACHE: 80%/2 :white_check_mark:, TT 2:0 (picking up 0 balls, talking 10%, hardly moving) ➔ 80%/5 :x:, gardening/moving ➔ 80%/2 :white_check_mark:, talking even a short time ➔ 80%/4-5 :x:.

ACTIONS ➔ PAINS ✅/(✅): GI, appetite, esophagus, pee, back, lips. Details...

except GI: stools loose0% :white_check_mark:, appetite a little better (:white_check_mark:), esophagus: if I’m extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:, finger tips: better. (:white_check_mark:). Lip soreness better since fungal cream (:white_check_mark:), but lips still often white, esp. when pressed, meaning overexertion according to my wife (:x:). Still often thirsty / dry lips & mouth (:x:)

Click for details on Weather: sun nauseating0% ✅?, unwell0%? ✅/❌, last seizures May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last esophagus block: June 1st % May 31st, before that Apr 4th (well...), jaw pain from tooth problems: May 10th...

Touch: :white_check_mark: Covid: :x: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:/:x:. Outdoors almost all day now, so no need for daylight lamp, if the sun becomes too bright and warm I do something in the cellar or the shade, making myself at home there.
Last focal seizures: May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: June 1st same again, this time sweet potato, May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck.

Treatments

Last doc update May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. Self-treatments & supps stable - May 15th: stretches helping wrists, not enough back exercises, and colostrum not tolerated, creatine next. Click for details.
Click for details: Update May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m. Keeping to schedule TODAY: OK. May 25th: Back on silymarin. no creatine yet, colostrum 2x on one day was bad. Praps ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today: No.
Lessons in self-care #680 Yep. :wink:
Reasons to be cheerful #730 Loads. Yep :wink:
Simplified #129 Loads. Yep :wink:
Foggies: Forgot too much.

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

They had to find another name for it because patients know the other pseudo diagnosis’. From hypochondria to neuropathic to idiopathic to CSS to nociplastic. It annoys the daylights out of me (and I am being extremely nice in just saying ‘annoys’) that these damn medicos won’t just simply admit ‘they don’t know’ why. But putting it back on me? No way, I ain’t playing that game anymore. I played that ‘The Dr is always right’ game for many, many years and had many of those pseudo diagnosis put on me. Then they found a cause.

Now, I attend the medical appointments. I listen to the Dr’s and I take their information… …then I investigate for myself. Come next appointment I then have my own information and I quiz the medicos on their ‘theories’. Many don’t like such questioning. I don’t care, this is about ME!!! Not them. And I want, no, I NEED the information and I’ll be damned if they’re just going to write it all off with a pseudo diagnosis. I want answers, not just an educated guess. GGGrrrrrrrr
(P.S. I get really annoyed when they try to write me off. I’ve just recently been put back on the merry-go-round of appointments. So, it’s started again. Fun, Fun, Fun. NOT.)

End of my ramblings
Merl from the Modsupport Team

1 Like

2023-06-02, Friday - even rest all day couldn’t collect any more energy…

Exhaustibility “90%". Click for details (like yesterday, but needing more rest):

R rest: 100% exhaustion 50% of the time (8h),
VS very slow: 60% exh. 25% of the time (4h),
S slow: 40% exhaustion 25% of the time (4h),
M medium: 20% exhaustion 0% of the time,
Q quick: 0-10% exhaustion 0% of the time
(pre-fibro: 0% exhaustion 100% of the time.)

Antihistamine trial: low & intermittent dose with my histaminey symptoms. Click for the table and details...

antihistamine: 25th 26th 27th - - - - 28th - -29th 30th 31st 1st 2nd
pill-amount:- - 0% -0% 20% - - - - - 0% - ?20% -0% -0% - 8% - 0%
bad appetite: - -20% -0% 10% - - - - -10%- -10% 10% /70% 30% -30%
dull head: - - - -50% 40% 30/50% - 30/50%-20% - 0% -0% -0% -0%
dry mouth: - - - - 5% 10% 50/70% - - 10%- -30% 20% 20% 20% 30%
gnat bite itch - - - - - - - - - - - - - - - - - - - - - - - - - - - - - 10% 10% 10%
IBS: - - - - - - - - 20% 20% 20% - - - - 20%- -20% 20% 20% 20% 20%
mucus: - - - - - 20% 20% 10% - - - - - 10%- -60% 10% 20% 10% 10%
nausea: - - – - - - - - - - – - - - - - - - - - - - - - -30% -0% 10% - -0% -0%
pee freq: - - - - -90% -100% 90/20% -70%- -30% 20% 20% 40% 20%
pee loss - - - - - - - - - - - - - - - - - - - - -20%- -30% -0% -0% - 0% - 0%
sinus burning: - - 5% 10% -5%/20% -/30%- -10% -0% -10% -0% -0%
sleep breaks: - - -5% - 5% -5% - - - - -20%- -10% 20% -20%-20% 20%
sore throat:- - - -10% 10% 20% - - - - 10%- (10% 20% 20% 20% 20%
temp h/c:- - - - - -??? chhh hhhh - - - hhhc- -hhhh h - - - h - - - h - - h
tongue burn:- - -10% 10% 20% - - - - - 5%- -30% 10% 20% - 5% 10%
weight gain:- - - - -0% -0% +10% - - - - 0%- --0% - 0% -0% -0% - -?
zombified:- - - - - - - - - - - 10/20% - - -/30%- -20% -0% -0% -0% -0%
Avg/Max.- - - - - -avg max max - - - - - max- max max max max max
Most symptoms are at night.
Fri/Sat (26th/27th): 1 of 3 passiflora, 0 apigenin. Pee frequency reduced by 2mg antihistamine from 4 on, causes headache, dry mouth, some (10 → 20%) sinus burning, sore throat, tongue burning and zombification.
Sat/Sun 27th/28th: 0 antihistamine, 1 of 3 passiflora, 0 apigenin. Dry hands will be something else. Generally, the long sleep breaks have “of course” stopped, I think from the zombification. And that’s something additional to the pee frequency. If I could, I’d increase GABA at night, to decrease histamine, but that’s causing stomach problems. Tongue burn starting at 22:00!? (Allergic reaction to grass pollen?)
Sun/Mon 28th/29th 20% antihistamine (I think, I did put in in the box), 1 of 3 passiflora, 0 apigenin. 2:26 not from pee urge, but feeling “sick”, so from heaviest to lightest duvet, leaving window open only caused sore throat quickly, 2:45 not from pee urge, but from dry mouth/+mucus-suffocating-cough. Felt 60%/3, then at 5:05 slightly better with everything 70%/3. Energy down.
Mon/Tue 29th/30th: After managing an early start I got back to the new normal today, but still needed to be extremely slow.
Tue/Wed 30th/31st: Only a little bit of table tennis. A neighbourly get together exhausted me and made me lose appetite, altho I hardly took part.

Weight 21st May 74.2kg = 10th = Apr 30th, so less regularly. Click for details.

empty without meal e and if possible emptied = e, half-emptied = (e), empty of B-supps/milk = ‘e’, if not emptied = ‘x’, bedclothes 0.9kg, outdoor clothes 1.8kg, B-supps 0.4kg? excr. varies,
31st: same exx (analog scales at +1kg, but digital had 74.7kg)
28th: same, exx
22nd: 74.7kg exx
20th: 20th: 74.2kg exx (75.1kg eex+bc)
19th: 19th: 75.0/0/74.7k/g eex-
18th: 76.1kg exe+bc 75.0/74.7/9kg eex
17th: 75.8/8/6kg exe 75.6/6/9/9kg exe (after shower)
16th: 75.2/5/2kg eee+bc0 scales/2nd emptying.
15th: 75.5/7/3/6kg eex
14th: 76.5/1kg exe with bc. That’d be 75.2 exx without?
13th: 74.9kg eex.
12th: 74.3 eex (75.2kg/75.5kg xxe 74.2/74.3kg/74.3 eex)
11th: 74.4kg (eex)
(75.5kg/75.3kg xxe 75.6kg xxx 74.6kg/74.7kg/74.4kg/74.4kg/74.4kg (eex)
10th: 74.9kg xxe 74.2kg exe
9th: 75.3kg xxe 74.4kg eee
8th: 75.7kg xxe, 76.0kg xxx 75.1kg exx, 75.0kg exx after shower.
7th: 75.8/76.0kg. (down from 76.2kg half an hour ago?!) in bedclothes. Down to 75.7kg after 100ml pee. Still 75.1/75.2kg exe after clothes off before showering.
6th: 76.1kg/75.9kg xxe with bedstuff on. 75.9kg / 75.6kg with bedclothes, 74.8kg exe without.
5th: (14:45 - normally around 7:00 75.3kg (e)xe)
4th 74.7kg exx (74.9 xxe, 75.4 xxx, 75,8 xxx, 75.5 xxx 75.6 xxx 74.7 exx, after shower 74.8 exx… O.o.
3rd 76.4-5kg xxx 75.6 eex
2nd 75.4kg exe
1st 75.9/76.0kg with clothes, 75.2kg xex - 0.9 = 74,3kg.
30th 74.7kg with clothes. 74.2kg after supps without clothes before loo. 74.4kg! after excr?!? 74.5kg after shower. 76.4kg with indoor clothes on.
29th 74.6kg exe, 75.5kg with bedclothes on = 0.9kg! B-supps: 75.0kg = 400g. + bedclothes = 75.9kg = 900g confirmed. excre: 74.5kg e(e)e - only 0.1kg… 2nd time 74.6kg e(e)e = 0.0! Shower = 74.6kg e(x)e, but 5’ later after sorting clothes = 74.2kg e(x)e. 1’ later 74.4kg + 74.4kg + 74.4kg. Holding normal clothes amount 76.2kg/76.2kg = 1.8kg
28th 75.0kg exe, 75.2kg exx (i.e. B-supps = 200g) 75.0kg eex (i.e. small excr. = 200g today), showering puts on 100mg I think it was, night clothes back on 75.8kg, so they are 600g?
27th 74.9kg exe
26th 73.5kg eee (fully e)
25th 74.2kg eee
24th 74.3kg e((e))e
23rd 73.9kg exx 73.8 eex
22nd 73.6kg e, NOT e! not e
21st 74.0kg ee
20th 73.8kg ee
19th 74.0kg
18th 73.5kg
16th 73.9kg
14th 72.8kg
13th 73.6kg

Food: 1st: 110% ate, but not with much appetite. 2nd: 80%? 3rd: 80%?

Sleep 90% / Feeling 80%-ish / nausea 0%, fog 30%
Successes: :trophy: :zap: Learnt: :student:

New habits - for what I'm changing see "simplified". I'm an 'early outside bird' now, lots of early sun, light & air all day! ✅

:ambulance: Bed 21:30-5:30. (:white_check_mark:)
:ambulance: Note thoughts and emotions (ACT) (:white_check_mark:)

Today's FM symptoms unchanged from WPI 11 & SSS 9-1=8, except....: +1: headache? (Often I forget.) (Click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (30-60%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (88%), insomnia 2 (10%), fog 2 (30%), headache (1?) (?0-20…%), GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20%. May 29th: Only itchy nose, less in the countryside. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before. May 19th: yeast spread & tofu despite DAO. May 16th: Soy yogurt & yeast spread: May 6th/7th: Baked beans. May 1st: white beans. Click for developments:

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

SLEEP (click for details): h ✅ ➔ Feeling ?80% well, Ache 2 of 7 ❌, getting up: ?80%/2 ✅. Nostrils ?10% stuffy 100% of the night ✅. Wet?

A3 A4:0 teeth0 cold shower0 p0 HWB#0 Sleep 22:33- 3rd # is LBU
0:29 5’ 80%/2/15% p0 st3 sip fw2’ deep/ air/ A4/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/0% sinuses0% headache0% sore throat10%, nausea0% stomach0% tongue10% stools0 loose%) FA/CS#0 kg xxx drymouth 30% dryhands 10%
2:51 32’ 80%/2/15% p0 st3 sip fw25’ deep/ air/ A5/ plugs0 cream/ gel/ HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/0% sinuses0% headache0% sore throat20%, nausea0% stomach0% tongue10% stools0 loose%) FA/CS#0 kg xxx drymouth 30% dryhands 10%
6:08 3’ 80%/2/15% p0 st3 sip fw1’ deep/ air/ A6:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/0% sinuses0% headache0% sore throat20%, nausea0% stomach0% tongue10% stools0 loose%) FA/CS#0 kg xxx drymouth 30% dryhands 10%
-7:20
Sum: h+h-(=) = h- = , up x (), all deep. Gnat bite itch tonight 30%, 100% of the time.

ACTIVITIESACHE: 80%/2 :white_check_mark:, TT 0 (let mate play with mate), shop 5’ and grass for guinea pigs ➔ 80%/5 :x:, gardening/moving ➔ 80%/2? :white_check_mark:, talking ➔ 80%/2? :x:.

ACTIONS ➔ PAINS ✅/(✅): GI, appetite, esophagus, pee, back, lips. Details...

except GI: stools loose0% :white_check_mark:, appetite a little better (:white_check_mark:), esophagus: if I’m extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:, finger tips: better. (:white_check_mark:). Lip soreness better since fungal cream (:white_check_mark:), but lips still often white, esp. when pressed, meaning overexertion according to my wife (:x:). Still often thirsty / dry lips & mouth (:x:)

Click for details on Weather: sun nauseating0% ✅?, unwell0%? ✅/❌, last seizures May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last esophagus block: May 31st, before that Apr 4th (well...), jaw pain from tooth problems: May 10th...

Touch: :white_check_mark: Covid: :x: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:/:x:. Outdoors almost all day now, so no need for daylight lamp, if the sun becomes too bright and warm I do something in the cellar or the shade, making myself at home there.
Last focal seizures: May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck.

Treatments

Last doc update May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. Self-treatments & supps stable - May 15th: stretches helping wrists, not enough back exercises, and colostrum not tolerated, creatine next. Click for details.
Click for details: Update May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): OK? Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m. Keeping to schedule TODAY: OK? May 25th: Back on silymarin. no creatine yet, colostrum 2x on one day was bad. Praps ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today:
Is my stomach hyperacidic or hypoacidic?
What Murphree said is similar on the clevelandclinic-org page about hypochlorhydria. Cleveland Clinic has a functional dept. since 2014, directed by Mark Hyman (had CFS, recommends pegan diet), so the webpage may be a combination of functional and mainstream.
Murphree railed how “potentially dangerous” antacids are for intestinal infections, SIBO, pneumonia, bone fracture and stomach cancer. About reflux he said/wrote: “Are antacids the answer? NO! The esophageal sphincter is stimulated to close by the release of stomach acids. When there’s not enough stomach acid present-the esophageal sphincter may not close properly. This allows acid to travel back up the esophagus and cause heartburn.” Consequences are “indigested protein (leaky gut), amino acid deficiencies, vitamin B12 deficiency, can’t absorb minerals, SIBO, Leaky Gut and reflux”. No stomach acid is achlorhydria.
One of the possible solutions from both sources is taking HCl, so replacing the missing acid - and thus helping the sphincter close. What Murphree adds is: digestive enzymes if erosion, replacing good bacteria, and testing for and treating leaky gut. Cleveland Clinic has pepsin as enzyme.
To see if our stomachs are hypo- rather than hyperacidic the DIY test Cleveland Clinic suggests is taking a bicarb with water on an empty stomach. “Then time how long it takes you to burp. If it takes longer than three to five minutes, the theory goes, you don’t have enough stomach acid.” In which case you should get exactly that checked with proper tests.
All this made me unsure for a minute if I am really hyperacidic, that’s why I’m re-thinking. But I’ve hardly ever taken antacids, even OTC bicarb didn’t work well for me, caused indigestion. And clearly everything acidic I eat severely increases my problems, if I were hypoacidic it would improve them.
But it shows that when I’m talking about stomach problems I need to stress the importance of the distinction even more.

Lessons in self-care #681 Not doing much at all. Still not little enough…
Reasons to be cheerful #731 Loads. Bird & plant watching.
Simplified #130 Loads. Several supp things.
Foggies: Listening and talking, getting right words out, was hard.

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

2023-06-03, Saturday - now changing quite a lot in these entries as part of trying to prioritize my body care, see tomorrow, Sunday, which means putting this blog first - first in importance and in time of the day.

Exhaustibility “92%". I'm trying to re-think how I judge this. I've had to adjust the profile downwards a lot. I've still left out "80%" on the profile, cos I believe if I'm that slow, I rest instead. Yes, the total amount of energy is higher than the 8% I've been saying. But actually 92%/8% was meant to say how much 100-90% energy I have per day. I used to have 100% energy 100% of the day. But now I have no 100% energy, so I'd be at 100% exhaustion = 0% energy if I'd still use that scale. So the 92/8 is a kind of compromise I spose. It takes into account the fact that I'm managing to use slow energy as a workaround for lack of high/fast energy. Click for details, convey better how my energy profile has been this last week:

R rest: 100% exhaustion 70% of the time (11h),
VS very slow: 60% exhaustion 25% of the time (4h),
S slow: 40% exhaustion 5% of the time (1h),
M medium: 20% exhaustion 0% of the time,
Q quick: 0-10% exhaustion 0% of the time
(pre-fibro: 0% exhaustion 100% of the time.)

Summary of my 10 day antihistamine trial (intermittent/low dose):
2mg of antihistamine has many negatives: mouth dry, nausea, zombified, dulled head, tongue burning(?), sinus burning (withdrawal?), so I don’t want that, and the sleep doesn’t do me good.
IBS, mucus & sore throat were unchanged, praps also appetite & weight.
0.8mg had none of these negatives, but I need to test if it helps night temperature control (when it’s colder), sleep quality, gnat bite itch (10mg helped), pee frequency and if necessary loss,
So next keep 0.8mg up if I see any reason, like at the moment the gnat bite itch.

Deleting this next: Antihistamine trial: low & intermittent dose with my histaminey symptoms. Click for the table and details...

antihistamine: 25th 26th 27th - - - - 28th - -29th 30th 31st 1st 2nd 3rd
pill-amount:- - 0% -0% 20% - - - - - 0% - ?20% -0% -0% - 8% - 0%-0%
bad appetite: - -20% -0% 10% - - - - -10%- -10% 10% /70% 30% -30%
dull head: - - - -50% 40% 30/50% - 30/50%-20% - 0% -0% -0% -0%-0%
dry mouth: - - - - 5% 10% 50/70% - - 10%- -30% 20% 20% 20% 30% 30%
gnat bite itch - - - - - - - - - - - - - - - - - - - - - - - - - - - - - 10% 10% 10% 50%
IBS: - - - - - - - - 20% 20% 20% - - - - 20%- -20% 20% 20% 20% 20% 20%
mucus: - - - - - 20% 20% 10% - - - - - 10%- -60% 10% 20% 10% 10% 40%
nausea: - - – - - - - - - - – - - - - - - - - - - - - - -30% -0% 10% - -0% -0% -0%
pee freq: - - - - -90% -100% 90/20% -70%- -30% 20% 20% 40% 20% 30%
pee loss - - - - - - - - - - - - - - - - - - - - -20%- -30% -0% -0% - 0% - 0%- 0%
sinus burning: - - 5% 10% -5%/20% -/30%- -10% -0% -10% -0% -0% -0%
sleep breaks: - - -5% - 5% -5% - - - - -20%- -10% 20% -20%-20% 20%20%
sore throat:- - - -10% 10% 20% - - - - 10%- (10% 20% 20% 20% 20% 10%
temp h/c:- - - - - -??? chhh hhhh - - - hhhc- -hhhh h - - - h - - - h - - h - - h
tongue burn:- - -10% 10% 20% - - - - - 5%- -30% 10% 20% - 5% 10% 5%
weight gain:- - - - -0% -0% +10% - - - - 0%- --0% - 0% -0% -0% - -? +
zombified:- - - - - - - - - - - 10/20% - - -/30%- -20% -0% -0% -0% -0% -0%
Avg/Max.- - - - - -avg max max - - - - - max- max max max max max
Most symptoms are at night.
Fri/Sat (26th/27th): 1 of 3 passiflora, 0 apigenin. Pee frequency reduced by 2mg antihistamine from 4 on, causes headache, dry mouth, some (10 → 20%) sinus burning, sore throat, tongue burning and zombification.
Sat/Sun 27th/28th: 0 antihistamine, 1 of 3 passiflora, 0 apigenin. Dry hands will be something else. Generally, the long sleep breaks have “of course” stopped, I think from the zombification. And that’s something additional to the pee frequency. If I could, I’d increase GABA at night, to decrease histamine, but that’s causing stomach problems. Tongue burn starting at 22:00!? (Allergic reaction to grass pollen?)
Sun/Mon 28th/29th 20% antihistamine (I think, I did put in in the box), 1 of 3 passiflora, 0 apigenin. 2:26 not from pee urge, but feeling “sick”, so from heaviest to lightest duvet, leaving window open only caused sore throat quickly, 2:45 not from pee urge, but from dry mouth/+mucus-suffocating-cough. Felt 60%/3, then at 5:05 slightly better with everything 70%/3. Energy down.
Mon/Tue 29th/30th: After managing an early start I got back to the new normal today, but still needed to be extremely slow.
Tue/Wed 30th/31st: Only a little bit of table tennis. A neighbourly get together exhausted me and made me lose appetite, altho I hardly took part.

Deleting this: Weight 21st May 74.2kg = 10th = Apr 30th, so less regularly. Click for details.

empty without meal e and if possible emptied = e, half-emptied = (e), empty of B-supps/milk = ‘e’, if not emptied = ‘x’, bedclothes 0.9kg, outdoor clothes 1.8kg, B-supps 0.4kg? excr. varies,
4th: same eex analog
3rd: eex 76.1kg (analog ~77.7kg)
31st: same exx (analog scales at +1kg, but digital had 74.7kg)
28th: same, exx
22nd: 74.7kg exx
20th: 20th: 74.2kg exx (75.1kg eex+bc)
19th: 19th: 75.0/0/74.7k/g eex-
18th: 76.1kg exe+bc 75.0/74.7/9kg eex
17th: 75.8/8/6kg exe 75.6/6/9/9kg exe (after shower)
16th: 75.2/5/2kg eee+bc0 scales/2nd emptying.
15th: 75.5/7/3/6kg eex
14th: 76.5/1kg exe with bc. That’d be 75.2 exx without?
13th: 74.9kg eex.
12th: 74.3 eex (75.2kg/75.5kg xxe 74.2/74.3kg/74.3 eex)
11th: 74.4kg (eex)
(75.5kg/75.3kg xxe 75.6kg xxx 74.6kg/74.7kg/74.4kg/74.4kg/74.4kg (eex)
10th: 74.9kg xxe 74.2kg exe
9th: 75.3kg xxe 74.4kg eee
8th: 75.7kg xxe, 76.0kg xxx 75.1kg exx, 75.0kg exx after shower.
7th: 75.8/76.0kg. (down from 76.2kg half an hour ago?!) in bedclothes. Down to 75.7kg after 100ml pee. Still 75.1/75.2kg exe after clothes off before showering.
6th: 76.1kg/75.9kg xxe with bedstuff on. 75.9kg / 75.6kg with bedclothes, 74.8kg exe without.
5th: (14:45 - normally around 7:00 75.3kg (e)xe)
4th 74.7kg exx (74.9 xxe, 75.4 xxx, 75,8 xxx, 75.5 xxx 75.6 xxx 74.7 exx, after shower 74.8 exx… O.o.
3rd 76.4-5kg xxx 75.6 eex
2nd 75.4kg exe
1st 75.9/76.0kg with clothes, 75.2kg xex - 0.9 = 74,3kg.
30th 74.7kg with clothes. 74.2kg after supps without clothes before loo. 74.4kg! after excr?!? 74.5kg after shower. 76.4kg with indoor clothes on.
29th 74.6kg exe, 75.5kg with bedclothes on = 0.9kg! B-supps: 75.0kg = 400g. + bedclothes = 75.9kg = 900g confirmed. excre: 74.5kg e(e)e - only 0.1kg… 2nd time 74.6kg e(e)e = 0.0! Shower = 74.6kg e(x)e, but 5’ later after sorting clothes = 74.2kg e(x)e. 1’ later 74.4kg + 74.4kg + 74.4kg. Holding normal clothes amount 76.2kg/76.2kg = 1.8kg
28th 75.0kg exe, 75.2kg exx (i.e. B-supps = 200g) 75.0kg eex (i.e. small excr. = 200g today), showering puts on 100mg I think it was, night clothes back on 75.8kg, so they are 600g?
27th 74.9kg exe
26th 73.5kg eee (fully e)
25th 74.2kg eee
24th 74.3kg e((e))e
23rd 73.9kg exx 73.8 eex
22nd 73.6kg e, NOT e! not e
21st 74.0kg ee
20th 73.8kg ee
19th 74.0kg
18th 73.5kg
16th 73.9kg
14th 72.8kg
13th 73.6kg

Food: 1st: 110% 2nd: 80% 3rd: 80%

Sleep 90% / Feeling 80%-ish / nausea 0%, fog 30%

New habits (and see "simplified"). 'Early outside bird' with lots of early sun, light & air all day now NEEDS to pull his day forwards. ✅

:ambulance: Bed 21:30-5:30. (:white_check_mark:)
:ambulance: Note thoughts and emotions (ACT) (:white_check_mark:)

Today's FM symptoms unchanged from WPI 11 & SSS 9-1=8, except....: +0. (Click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (30-60%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (92%), insomnia 2 (10%), fog 2 (30%), headache 0, GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20%. June 3rd: More careful in countryside (mask when cutting grass for guinea pigs) and with histaminey foods is helping (taking 2x1/d DAO, stopped soy & white beans & yeast spread, baked beans OK yesterday, halving bananas again). Click for developments:

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

SLEEP (click for details): 7h52, up 6-7x (92'), most deep. ✅ ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅. Nostrils 60-30% stuffy 50% of the nigh ❌: Why? No sweating. ✅

A3 A4:0 teeth0 cold shower0 p0 HWB#0 Sleep 22:45- 3rd # is LBU
23:40 14’ 80%/2/15% p0 st3 sip fw2’ deep/ air/ A4/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/5% sinuses5% headache0% sore throat20%, nausea0% stomach0% tongue5% stools0 loose%) FA/CS#0 75.2kg xxx drymouth 30% dryhands 20%
1:00 10’ 80%/2/15% p0 st3 sip fw2’ deep/ air/ A5:0 plugs0 cream/ gel/ HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s5/0% sinuses5% headache0% sore throat10%, nausea0% stomach0% tongue5% stools0 loose%) FA/CS#0 kg drymouth 30% dryhands 20%
1:55 4’ 80%/2/15% p0 st3 sip fw2’ deep/ air/ A5/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/10% sinuses5% headache0% sore throat10%, nausea0% stomach0% tongue5% stools0 loose%) FA/CS#0 kg drymouth 30% dryhands 20% 1itch50%
3:05 46’+13’ 80%/2/15% p0 st3 sip fw40’ deep/ air/ A5/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/60->0% sinuses5% headache0% sore throat10%, nausea0% stomach0->30% tongue5% stools0 loose%) FA/CS#0 kg drymouth 30% dryhands 20% 1itch50%. Being up a bit got the nostril free, but made my stomach turn up. Then got carried away with trivia about soda/seltzer, see “research”.
5:45 2’ nostril/s0/30%
6:25 3’ 80%/2/15% p0 st3 sip fw1’ deep/ air0 A6:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s30/0% sinuses0% headache0% sore throat10%, nausea0% stomach0% tongue5% stools0 loose%) FA/CS#0 kg drymouth 30% dryhands 20% 1itch50%. Sting in left tarsal? foot bones.
-8:09 80%/2/15% p0 st3 sip fw1’ deep/ air0 A6:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s10/0% sinuses10% headache10% sore throat10%, nausea0% stomach0% tongue10% stools0 loose%) FA/CS#0 kg drymouth 30% dryhands 20% 1itch50%.
Sum: 8h09+1h15-(14+10+4+46+13+2+3=)92 = 9h24-92 = 7h52, up 6-7x (92’), most deep.

ACTIVITIESACHE: 80%/2 :white_check_mark:, TT 0:2 (picking up 0 balls, talking 10%, not even doing the counting anymore, not moving “at all”, not even kicking balls over) ➔ 80%/5 :x:, gardening/moving ➔ 80%/2-4 :white_check_mark:/:x:, talking ➔ 80%/3 :x:.

ACTIONS ➔ PAINS ✅/(✅): GI, appetite, esophagus, pee, back, lips.... Lips white ❌, lips & mouth dry ❌. Details...

except GI: stools loose0% :white_check_mark:, appetite a little better (:white_check_mark:), esophagus: if I’m extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:, Delete now: finger tips: better. :white_check_mark:. Delete now: Lip soreness better since fungal cream (:white_check_mark:), but lips still often white, esp. when pressed, meaning overexertion according to my wife (:x:). Still often thirsty / dry lips & mouth (:x:)

Click for details on Weather: sun nauseating0% ✅, unwell20%, so kept out of it(❌), last seizures May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last esophagus block: May 31st, before that Apr 4th (probably more). Jaw pain from tooth problems: May 10th till broken filling was taken out May 22nd.

Touch: :white_check_mark: Covid: :x: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:/:x:. Outdoors almost all day now, so no need for daylight lamp, if the sun becomes too bright and warm I do something in the cellar or the shade, making myself at home there.
Last focal seizures: May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd.

Treatments

Last doc update May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. Self-treatments & supps stable - May 15th: stretches helping wrists, not enough back exercises, and colostrum not tolerated, creatine next. Click for details.
Click for details: Update May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m. Keeping to schedule TODAY: OK. May 25th: Back on silymarin. no creatine yet, colostrum 2x on one day was bad. Praps ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today:
“bicarb” is short for bicarbonate, “sodium bicarbonate” is the most common form of it, the form used as baking soda (= bread soda, cooking soda, bicarbonate of soda, but not the same as sodium carbonate, washing soda).
Trivia - or rather: “Why is “soda water” acidic, but baking soda alkaline?”:
The Tums I mentioned contains calcium bicarbonate. Another alternative that some prefer is potassium bicarbonate. Magnesium carbonate can also be used. As can magnesium oxide, however as the carbon is missing: no CO2, no fizz, no burp.
(The article cited above wrongly writes the 0 as the number, but it’s the letter O = oxygen.)
Fizzy drinks called “soda” actually contain some of these to offset the acidity of “carbonated” water (water with CO2 pressed in). Usually and first came
sodium, by idea of a Mr. Schweppe (a German-Swiss watchmaker). The tastiness of a mineral water from the German town Selters let it also be generally known as “seltzer water”.
Lessons in self-care #682 Left this entry to go to bed earlier, so earlier tomorrow.
Reasons to be cheerful #732 Loads. Flowers: 4 poppies now, lots of wild & real roses, irises, campanula, chives and bell flowers in white and blue/purple. Hope taking down many parasites on my new bonsai beech repeatedly and on many low branches of the giant sweet cherry will save both trees.
Simplified #131 Loads…
Foggies: Not even able to count in table tennis.

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

2023-06-04, Sunday - paradigm shift! - once again, but this time… for real(?)

Self-care means putting my body first: Esp. prevent what’s keeping me from sleeping. That involves doing all important things earlier: this blog, supps, eating, teeth. But earlier hasn’t been working. So I need to do these FIRST. Like I used to do my back exercises first thing, cos I knew if I didn’t I wouldn’t do them.
And not putting others first, like my plants, my birds and bees, my wife, my forum mates, my whims, my learning.
And not using excuses, essentially being revenge bedtime procrastination. If I am more satisfied I’m getting the right things done, I’ll get that less.
By getting the circadian rhythm even better back on track.
This has come about because I’m sleeping less, cos I’m still getting up between 6 and 7, which is good for me, but still need 30-60’ of breaks, and I’m not going to bed in time for that.
I’m finding it hard to seriously just go to bed before dusk, to remember that 6pm is LATE, so my bedtime routine is TOO LATE: encapsulating supps, preparing them, tidying up the garden, eating at 6 or 7, finishing my blog entry in time.
If there is anything late, concerning my wife (going for an evening walk) or anyone else (Sunday service at 6), I need to have these things ready made long before.
I’ve been fairly good at getting up at 6 and then still sleeping praps till 7. But hoping I’ll then be tired enough to go to bed earlier is simply not the case, WRONG - I do not go to bed earlier, however tired I am, because I’m leaving the important stuff till last. Also doing others things, because I have “enough time” is not the case, WRONG AGAIN - I do not have enough time, I’m always very short on time and cannot do everything I want to, maybe because I do a lot of things slowly, but more likely just because my mind and my motivation is so active.

Exhaustibility “92%". Click for details ("11h rest", I've said, like yesterday):

R rest: 100% exhaustion 70% of the time (11h),
VS very slow: 60% exhaustion 25% of the time (4h),
S slow: 40% exhaustion 5% of the time (1h),
M medium: 20% exhaustion 0% of the time,
Q quick: 0-10% exhaustion 0% of the time
(pre-fibro: 0% exhaustion 100% of the time.)

Summary of my 10 day antihistamine trial (intermittent/low dose) and 6 weeks of weighing without increase
(Even) 2mg does me more harm than good (a fifth of a pill), but I need to test 0.8mg further for gnat bite itch, praps sleep, temperature and pee. 4th 18:52 0.8mg/
Weighing irregularly if I’m sustainably up from 74.2kg.
Appetite: 1st meal: 100% 2nd: 80% 3rd: 80%

Sleep 85% / Feeling 70-80%-ish / nausea 20-30% (sun heat, not night), fog 30%
Successes:
:zap: Maybe sleeping less has decreased the positive effect of early sun, so more sleep so earlier evening routine: blog, garden and supps.
:zap: The coolness of metal tubes (Traumeel) help my insect bites at night enough to sleep again.
:zap: Trying an antihistamine gel too - but didn’t help much.
Learnt: :student: drtalks videos didn’t teach me anything

New habits (and see "simplified"). 'Early outside bird' with lots of early sun, light & air all day now NEEDS to pull his schedule forwards. ✅

:ambulance: Bed 21:30-5:30. (:white_check_mark:)
:ambulance: Note thoughts and emotions (ACT) (:white_check_mark:)

Today's FM symptoms unchanged from WPI 11 & SSS 9-1=8, except....: +0: (Click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (30-60%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (92%), insomnia 2 (10%), fog 2 (30%), headache 0 , depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20%, decreasing to 8-12% by end of May from new symptoms, partly from CoV itself. June 3rd: More careful in countryside (mask when cutting grass for guinea pigs) and with histaminey foods is helping (taking 2x1/d DAO, stopped soy & white beans & yeast spread, baked beans OK yesterday, halving bananas again). Click for developments:

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

SLEEP (click for details): 6h29, up 4x (1h13), disturbed at the beginning from noises and from eustress at the end. ✅ ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/2 ✅. Nostrils 5-10% stuffy 100% of the night ✅. No sweating, light duvets. Seems better without antihistamine, but I need to get more sleep TIME.

A3 A4:0 teeth0 cold shower0 p0 HWB#0 Sleep 23:00- 3rd # is LBU
23:29 5’ 80%/2/15% p0 st3 sip fw2’ deep/ air/ A4:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/5% sinuses5% headache0% sore throat5%, nausea0% stomach0% tongue5% stools0 loose%) FA/CS#0 kg drymouth 20% dryhands 10%
1:03 57’ 80%/2/15% p0 st3 sip fw2’ deep/ air/ A4/ plugs0 cream/ gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/5% sinuses5% headache0% sore throat15%, nausea0% stomach0% tongue10% stools0 loose%) FA/CS#0 kg drymouth 20% dryhands 10%
3:45 5’ 80%/2/15% p0 st3 sip fw2’ deep/ air/ A5/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s20/0% sinuses5% headache0% sore throat15%, nausea0% stomach0% tongue10% stools0 loose%) FA/CS#0 kg drymouth 20% dryhands10%
6:04 6’ 80%/2/15% p0 st3 sip fw1’ deep/ air0 A6/ plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/0% sinuses0% headache0% sore throat15%, nausea0% stomach0% tongue5% stools0 loose%) FA/CS#0 kg drymouth 20% dryhands20%
-6:42 80%/2/15% p0 st3 sip fw1’ deep/ air/ A7:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/10% sinuses0% headache0% sore throat15%, nausea0% stomach0% tongue5% stools0 loose%) FA/CS#0 kg drymouth 20% dryhands20%
Up from gardening ideas = eustress, raised pulse
Sum: 6h42+1h-(5+57+5+6=)73 = 7h42-73 = 6h29, up 4x (1h13), disturbed at the beginning from noises and from eustress at the end.

ACTIVITIESACHE: 80%/2 :white_check_mark:, TT 0 (not there), gardening/moving ➔ 80%/5? :x:, talking & listening ➔ 80%/4 :x:.

ACTIONS ➔ PAINS ✅/(✅): GI, appetite, esophagus, pee, back (best with back support against wall or door), lips. Lips often white ❌, lips & mouth vey dry at night ❌. Details....

except GI: stools loose0% :white_check_mark:, appetite a little better (:white_check_mark:), esophagus: if I’m extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:, finger tips: better. (:white_check_mark:). Lip soreness better since fungal cream (:white_check_mark:), but lips still often white, esp. when pressed, meaning overexertion according to my wife (:x:). Still often thirsty / dry lips & mouth (:x:)

Click for details on Weather: sun nauseating30% ❌, unwell30% ❌ (so kept in the shade most of the time, but it's even the heat alone), last seizures May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last esophagus block: May 31st, before that Apr 4th (well...). Jaw pain from tooth problems: May 10th till broken filling was taken out May 22nd.

Touch: :white_check_mark: Covid: :x: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:/:x:. Outdoors almost all day now, so no need for daylight lamp, if the sun becomes too bright and warm I do something in the cellar or the shade, making myself at home there.
Last focal seizures: May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd.

Treatments

Last doc update May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. Self-treatments & supps stable - May 15th: stretches helping wrists, not enough back exercises, and colostrum not tolerated, creatine next. Click for details.
Click for details: Update May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m. Keeping to schedule TODAY: OK. May 25th: Back on silymarin. no creatine yet, colostrum 2x on one day was bad. Praps ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today: Cold is good for insect bites - metal tubes help me at night. But also antihistamine gel. Ours is age old, maybe that’s why it’s not working well.
Listening to loads more talks on Murphree’s drtalks fibromyalgia summit, but didn’t learn anything. Not sure who to recommend it too - so much time for so little gain. Maybe good for people who have difficulty with self-efficacy to go to them via tele-medicine. I can’t see anyone that’d be good for me.
Lessons in self-care #683 Didn’t do much, cos I couldn’t, not even Sunday service, but zoom.
Reasons to be cheerful #733 Loads. All the new blossoms at least. But also sad, cos I found a dead little bird in an unlidded water tub (most of the rest have something on them, and that did too, a lot of the time, and bricks and twist, but apparently not enough :frowning: -(), so now I know I have to be much more careful with them.
Simplified #132 Loads. Reduced the blog entry. Still to do up the supps.
Foggies: Not easy listening and talking.

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting

2023-06-05, Monday - paradigm shift coming into place for sleep, now got to bring meals forward too. But 0.8mg of my antihistamine brought “too much sleep” along with a nauseous sinus headache for 14 hours, slightly better energy. Aside from earlier bedtime (aim 21:00!?!) and meals ( (aim 12:00! and 18:00?!?), I’ve started cooking again (today and Saturday), even if it’s just to be able to eat more carrots without my esophagus blocking. That way I might be able to eat quicker too. Trying to make it tastier, remember good salt and the herbs I tolerate.

Exhaustibility “92%". Click for details ("11h rest", I've said, like yesterday):

R rest: 100% exhaustion 70% of the time (11h),
VS very slow: 60% exhaustion 25% of the time (4h),
S slow: 40% exhaustion 5% of the time (1h),
M medium: 20% exhaustion 0% of the time,
Q quick: 0-10% exhaustion 0% of the time
(pre-fibro: 0% exhaustion 100% of the time.)

10 day antihistamine trial (intermittent/low dose) and 6 weeks of weighing without increase
Summary:
Antihistamine: (Even) 2mg does me more harm than good (a fifth of a pill = 20%), but I need to test 0.8mg (8%) further for gnat bite itch, praps sleep, temperature and pee. 4th 18:52 0.8mg/ Immediate sinus-headache and nose mucus - why? Itch still there, despite stuff on it and the antihistamine! Started every time I got up (not necessarily while lying down?) and off and on for 1-2h in the morning too. Sinus slightly after midday meal despite taking DAO - Not sure I ate anything histaminey? 5h later: Yes, half a very ripe banana.
Weighing irregularly if I’m sustainably up from 74.2kg.

Food: 1st: 100% 2nd: 85% 3rd: 90%

Sleep 90% / Feeling 75%-ish / nausea 0-20%, fog 30%
Successes: :trophy:
:zap: I need to re-process pre-supposed eating times, decrease procrastination.
Learnt: :student: drtalks Fibro summit see ‘Research’ below.

New habits (and see "simplified"). 'Early outside bird' with lots of early sun, light & air all day now NEEDS to pull his schedule forwards. ✅

:ambulance: Bed 21:30-5:30. (:white_check_mark:)
:ambulance: Note thoughts and emotions (ACT) (:white_check_mark:)

Today's FM symptoms unchanged from WPI 11 & SSS 9-1=8, except....: +1: headache (Click for details)

Today’s symptoms sorted by the ACR 2016 criteria

Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (30-60%, stiff 30%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (88%), insomnia 2 (10%), fog 2 (30%), headache (1) (0-30%, 15h), GI 1 (10%), depression 0

Triggers & resulting Symptoms

JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy down to (10-)15-20% decreasing to 8-12% by end of May from new symptoms, partly from CoV itself. June 3rd: More careful in countryside (mask when cutting grass for guinea pigs) and with histaminey foods is helping (taking 2x1/d DAO, stopped soy & white beans & yeast spread, baked beans OK yesterday, halving bananas again). Click for developments:

JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: Foods slightly histamine-y. 31st: Still no appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together. From Feb 19th on: back down to 10% energy, everything else fairly OK, incl. at night, incl. cold tolerance, incl. fingertips, but lips’d be white if they weren’t chapped and inflamed. Feb 24th: Energy up to 14% due to specks of T4. Feb 26th: sinuses upon waking up 9:20… Energy up to 20% from T4. Mar 10th evening: Virus Ache of 5-7, underlying energy seems unchanged 20%. Mar 12th: all Ache und pains decreasing, urge better until I move, but no appetite, nauseous when I do something slightly strenuous, and dry coughing like mad a lot of the time. Mar 13th: Histaminey burnt tongue and feverishness after 1h intense ‘work’ phone call. Mar 16th: Still some histamine rests, but energy vs. histamine like before CoV, praps less stiffness, but less appetite. Mar 23rd still seemingly in the midst of a re-visit of the "CoV symptoms. Mar 24th still severest exhaustion with feverish ache despite energy, appetite increasing, bladder a bit better, cough not sure. Apr 4th: Found out that we’d got CoV from a person who hadn’t taken their’s seriously and hadn’t told us immediately that they had it: grrrrrrrr! Increasing GABA has stopped all bladder problems, but not yet all sinus burning. Apr 11th: CoV-cough and bladder seems to be recovering, T4-temperature/night sweats too, now appetite needs to recover weight… Awake at night 1h and tongue burning for >24h from banana and tuna. Apr 15th Histaminey sinus “cold” 21:00-24:00 after too much concentrated soy products. May 1st: strong histamine symptoms after 100g of washed white beans without DAO. But shows that the recent higher histamine symptoms after CoV have got better. May 16th: Soy yoghurt & yeast veg. spread without DAO. Try again with DAO! Effect: Wide awake at 4, needed extra vagal relaxation to continue sleep, woke up with sinuses and frontal headache for 20h, then also awake at 4/5 the morning of the 17th. Evening of 16th: 2 DAO, continuing that. May 28th: sneezing in the evening while being outside, looking up: grasses (usually only short / one day). May 29th: Only itchy nose, less in the countryside.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems. May 19th: Tried more yeast spread and some tofu with DAO before, but still got a strongly burning tongue, my sinus burning from talking too much didn’t get more. May 25th: Sinus headache in the morning, most probably cos of a whole banana in the evening without DAO before.

SLEEP (click for details): 9h43, up 5x (1h), all deep, but zombified and nauseous sinus headache upon waking, just from the 0.8mg after a few days break. 9:30 better, but 9:53 still sinuses ❌ ➔ Feeling 70% well, Ache 3 of 7 ❌, getting up: 50%/2 ❌. 1 Nostril (alternate) 20% stuffy 70% of the night ❌. No sweating, light duvet.

A3 A4:0 teeth0 cold shower0 p0 HWB#0 headache20% Sleep 21:55- 3rd # is LBU
22:50 5’ 80%/2/15% p0 st3 sip fw2’ deep/ air/ A4/ plugs0 cream/ gel/ HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s5/0% sinuses5% headache20% sore throat10%, nausea20% stomach0% tongue10% stools0 loose%) FA/CS#0 kg drymouth 30% dryhands 20% gnats30%
23:45 5’ 70%/2/15% p0 st3 sip fw2’ deep/ air/ A5/ plugs0 cream/ gel/ HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s5/0% sinuses5% headache20% sore throat10%, nausea20% stomach0% tongue20% stools0 loose%) FA/CS#0 kg drymouth 30% dryhands 20% gnats30% Zombie80%
1:10 37’ 70%/2/15% p0 st3 sip fw2’ deep/ air/ A6/ plugs0 cream/ gel/ HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/20% sinuses5% headache20% sore throat10%, nausea20% stomach0% tongue20% stools0 loose%) FA/CS#0 kg drymouth 30% dryhands 20% gnats30% Zombie80%
3:21 10’ 70%/2/15% p0 st3 sip fw2’ deep/ air/ A7/ plugs0 cream/ gel/ HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/20% sinuses5% headache20% sore throat20%, nausea20% stomach0% tongue20% stools0 loose%) FA/CS#0 kg drymouth 30% dryhands 20% gnats20% Zombie70%
5:59 3’ 70%/2/15% p0 st3 sip fw2’ deep/ air/ A8:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0/20% sinuses10% headache0->20% sore throat20%, nausea20% stomach0->50% tongue20% stools0 loose%) FA/CS#0 kg drymouth 30% dryhands 20% gnats10% Zombie50%
Left blackout blinds up, but had to lie down again…
-8.38 0%/2/15% p0 st3 sip fw2’ deep/ air/ A8:0 plugs0 cream0 gel0 HWB#(0) Bedclothes: wet0% teeth0 alternate shower0
(nostril/s0% sinuses40% headache40% sore throat20%, nausea30% stomach0->50% tongue20% stools0 loose%) FA/CS#0 kg drymouth 30% dryhands 20% gnats10% Zombie70%

Sum: 8h38+2h05-(5+5+37+10+3=)60 = 10h43-1h = 9h43, up 5x (1h), all deep, but zombified and nauseous sinus headache upon waking, just from the 0.8mg after a few days break.

ACTIVITIESACHE: 60%/2 :x:, TT 2:0 (moving 5%, talking, not counting, 20%,) ➔ 80%/5-6 :x:, gardening/moving ➔ 80%/3 :x:, talking ➔ 80%/4 :x:.

ACTIONS ➔ PAINS ✅/(✅): GI, appetite, esophagus, pee, back (against wall/door for support), lips. Lips often white ❌, lips & mouth vey dry at night ❌. Details...

except GI: stools loose0% :white_check_mark:, appetite a little better (:white_check_mark:), esophagus: if I’m extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure :white_check_mark:, pee pain: 0xp1-2 :white_check_mark:, lower back unrest :white_check_mark:, finger tips: better. (:white_check_mark:). Lip soreness better since fungal cream (:white_check_mark:), but lips still often white, esp. when pressed, meaning overexertion according to my wife (:x:). Still often thirsty / dry lips & mouth (:x:)

Click for details on Weather: sun - kept out so not too nauseating10% ❌, unwell10% ✅/❌, last seizures May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last esophagus block: May 31st, before that Apr 4th (probably more often). Jaw pain from tooth problems: May 10th till broken filling was taken out May 22nd.

Touch: :white_check_mark: Covid: :x: Weather: Indoors :white_check_mark: Outdoors :white_check_mark:/:x:. Outdoors almost all day now, so no need for daylight lamp, if the sun becomes too bright and warm I do something in the cellar or the shade, making myself at home there.
Last focal seizures: May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on. May 18th (and about a week now, so let’s say from May 10th: 3 tooth problems, like often it seems from food stuck between teeth which I can’t get out. Trying sucking it out with liquid, either almond milk or calendula essence, but it’s stubborn as heck. Immediately improved when a broken filling was taken out May 22nd.

Treatments

Last doc update May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. Self-treatments & supps stable - May 15th: stretches helping wrists, not enough back exercises, and colostrum not tolerated, creatine next. Click for details.
Click for details: Update May 26th: Asked my GP what to do, we agree on waiting a bit, but going to a different onco doc. May 25th I went to get them, and asked whether this means I don't have cancer, I was told a report will be coming 'soon'. May 24th: onco doc is giving me my reports back without an appt - Apr 24th: Weird, interesting onco appointment, further appt. by next Tuesday at the very latest. Apr 20th: Bloods OK, except PSA: prostate too high, all the more reason to get the cancer check starting Monday 24th. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): nothing on the sono, don't get it taken out, praps a mammography, keep the oncology-appt. on 24th. Apr 5th: wife's gyn says get a mamilla sono. Apr 3rd: surgeon cos of left mamilla swelling says wait 5 weeks, Mar 30th: lung X-ray shows nothing to explain my cough, Mar 29th GP says possibly B-symptoms. Mar 9th: Tea tree oil salve since takes the brunt off the lip hurt. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.

GP’s antifungal cream for my lips Feb 28th, then Mar 1st tea tree oil cream, helpful, but never quite gone.
3% of T4 Feb 23rd-Mar22nd: Day #4 bit more than the days before: Slower energy, histamine-y sinuses and frontal headache. Decreasing improved all that again.
Bloods Feb 7th: Most (like WBC, B2, phosphate and protein) are better, but still keeping those going, biotin and manganese too high.

SELF-PHYSIO (click for details): OK. Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅

white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
:x: hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.

Supps Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m. Keeping to schedule TODAY: OK. May 25th: Back on silymarin. no creatine yet, colostrum 2x on one day was bad. Praps ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.

ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).

REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.

What-when-details: Updated Jan 8th.
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:

The day's supp-compartments (8', plus 10' making capsules), Jan 8th

Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.

Development

‘Research’ today: More drtalks… Reduce Your Pain With Micro Currents
Dr. Rob Vanbergen touting micro currents as more natural than TENS…
The Fibromyalgia Hypothyroid Connection - Dr. Shelena C. Lalji.
Maybe best after all: Fix Your Sleep, Fix Your Pain & Fatigue - Annika Carroll
Early morning light 10’. Time-released Melatonin. Most have decent melatonin, measured, it’s the cortisol that depresses it. Hangovers. Switch on and off, 3mg Sunday night. For jet lag OK.
Murphree To get off sleep med like Ambien. Bad for you. serotonin: 5-HTP, B-vit, C, Mg, raises pain threshold, mood, GI motility.
Eating sugar at night. cortisol peak from blood glucose level. Energy stuff - inflammatory.
Murphree: progesterone, esp. if more estrogen (esp. after endomitriosis, ovary cyst), then also los testosterone.
Exercise can help. But if burnt out: just Walk, just movement, no workout. If cortisol high enough: more. No workout in the evenings, cos it revs up cortisol.
Mag with co-factors, B-vit but these not at night, they can wake you up. Mag split some morning, some night. Even mag spray, but dries skin out.
L-theanine. Sometimes GABA.
sleeplikeaboss.com.

Lessons in self-care #684
Reasons to be cheerful #734 Loads.
a) Archiving more flower photos.
b) Blackbird landed on balcony after I’d just come out of the door next to him, but he looked warily and then jumped all around me whilst I didn’t dare move.
c) We were delighted to see a beautiful jay in our lilac. Then a blackbird shot for him like a Red Arrow shouting full blast, chased him, and for once a second blackbird seconded, was non longer neighbourhood enemy, came directly after the two. We realized the jay was probably nest/egg hunting.
Simplified #133 Loads.
Foggies: Got confused with the numbers in online banking for the first time.

Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting