Vitamin D deficient and increased pain

General
41

I’ve found taking flexeril at bed time keeps me from the weird leg sensations. What really strange is I went to an acupuncturist this summer and after the put the needle in the back of my right calf just below the knee, I felt like I had an alien in my calf for a month. It was unnerving.
I think we are all unique in treatment responses and other issues but have the Fibro tender points that lump us into this diease.

42

I found that I was very low in b12. Then found out it ran in the family. Also my grandmother has fibro myalgia of the muscles. I found that that occasional injection of b12 when it get lower and lower helps with overall energy and tiredness. Doesnt seem to help with the pain. But helps alot with the CFS.

43

Brady,
I used to give myself high dose injections of B12 for CFS
I can’t remember why I quit. Buy my labs never show a deficiency. I think I’ll ask my dr to try it again. Thanks for the reminder !!

44

Do you do regular injections or just now and then? I have them once a month since I found out I was deficient.

45

Sorry I must have read it wrong. I looked and reread [ boring] IT but can't find it. Have read so much about vitamin D i must be reading things into What I had read. Will check other places too as I'm sure I read it that way. As i thought to myself, wow, that is realy something. Sorry for the bother.

HUGS

Shirley

46

just now and then. I get a blood test occasionally to monitor. No specific time frame for me. Would prob be better to do it on a standard basis.

47

Yep, that would probably be helpful. I had mono one time and I was given a b12 shot that really gave me energy so I could work. My doc then said some people got them every day and that it couldn’t hurt. The dose I get now was prescribed by my current doc and doesn’t give me that pepped up feeling but it keeps my level up above normal.

48

Hi Aries

I wanted to clarify what I said about RLS and iron deficiency. I did not mean to suggest that EVERY case of RLS was due to iron problems or that your doctors missed something since you have had this illness for many years. When I posted earlier-which i now see I mistakenly deleted- I was offering some thing for Irish to consider since I did practice medicine for 10 years and over that time, the causes of RLS went from many theories to sound evidence based causes and ONE of the most commonly overlooked cause was iron deficiency. When we worked up a patient in my practice we started with the easiest things to check for and all the literature and specialist would suggest the same tests:

  • Blood urea nitrogen (BUN)-kidney test
  • Creatinine-kidney test
  • Fasting blood glucose
  • Magnesium
  • Thyroid-stimulating hormone (TSH)
  • Vitamin B-12
  • Folate
    but always start with checking for iron deficiency. Iron testing is confusing as you can have normal iron levels in the blood but still be deficient in your total body iron levels--the blood iron test does not test the total amt of iron in the body. The ferritin level reflects the iron that is in storage and is often the test used to diagnose iron deficiency. If ferritin is less than 50, you are considered to be iron deficient and the suggested protocol is to treat with iron replacement.
    You can read about all of this if you want at: http://emedicine.medscape.com/article/1188327-overview.
    I am not sure if I wrote something that offended you, but your response to my post for Irish stating "there are 1000 of theories going around about what causes RLS" could be construed as an attempt to imply what I wrote was mere conjecture on RLS and it is certainly not. Please tell me if I am taking this the wrong way.

49

Hi Irish,

I mistakenly deleted what I tried to post earlier about restless leg syndrome and its relation to iron deficiency. I am not sure if you had a chance to read it before it was deleted. I wrote this only to inform you of what I saw during my 10 years of practicing medicine as I would not want something as simple as iron deficiency, which is easy to treat, to go overlooked if the RLS symptoms come back even with the Vit d replacement. Hope this helps.

Maria

50

Thank you Aries...all i want is for people to be able to get something out of my knowledge since I cannot use it in a clinical practice since becoming disabled. I sure hope there is an easy fix for your problem as nobody should have to deal with fibro and sleep issues. If you have trouble with the link let me know or if you have any questions please ask...make me feel useful=:)

51

Hey Aries,

I have seen Requip work on some folks and Miripax. I had one patient whose neurologist had her take these dopamine drugs early evening as the woman has symptoms that began when she sat down for the night to watch television. I am so glad you found the article helpful. It is a really good site for information. I am glad that something is working but i wonder if you need to see a neurologist who has experience with RLS. Good luck Maria

52

Aries, That is a shame when u see a doc and they just put you on meds without any explanation.