Good morning everyone. Went to my pcp yesterday to discuss the issues that the rheum just couldn’t understand (tingling in face, hands, feet, strange muscle spasms, trouble rendering how to swallow and several more I have asked about). He is sending me to a neuro. Found out I have a kidney infection and not just horrific pain that nearly made me faint. he wants to test me for CFS. He took blood to test for celiac disease and a lot of other things. I love my PCP! We discussed getting me off the narcotics when I am feeling better. He put me on Cymbals and we hope between that and the Lyrica I may be able to manage my pain. What do you think of that? I have such high hopes for a more effective treatment.
Thank you for letting me bend your ears once again. I look forward to your thoughts.
Hi Keirsten,
I am very glad that you like your PCP, it surely makes life better when you have a GP that you like, because you will rely on him over and over, and see him more than any other Dr. I feel that way about mine too. Glad he caught the kidney infection and that he thinks it's possible to get you off pain meds!
Wishing you well,
SK
Hello Keirsten
It's good to have faith in your PCP. Doctors do not know if the two meds will be the right combination for your body so you have to try what they say and then give it some time to work together with the other med for good in your body. I hope these are the correct two meds for youe body.
Gentle hugs
Rachel
I have also cut gluten out of my diet. I am on a vegetarian kick again. My energy has been awesome the past few days which I haven’t experienced in over a year. I feel happy today. Ahh…happiness, what a novel idea. I don’t feel like crying which has been a daily struggle.
Keirsten, I'm quite glad to hear you've seen your doc about the various issues you've been dealing with, esp. the forgetting to swallow. It sounds like your doc is doing a bang up job of checking for many different illnesses, as well as pain management. I sure wish I'd hear less stories of docs who tell their patients things like "fibro doesn't exist," and more stories of docs like yours. Just hearing of all of the tests your doc is running is quite reassuring.
Oh, and glad to know he found the kidney infection and you're being treated for it. Man, that must have hurt! I hope you're feeling better now.
Hugs,
Petunia
Wish I felt better now. Had to leave work early because the pain and nausea were so bad. Bundled up and in bed now. High hopes.for tomorrow!
Dear Keirsten
I would say that rest is definitely what you need, so if you can get wamed up and then sleep it would be good. I just hope that your pain lets you sleep. I have a problem with that. Pain will just not let me sleep.
The home remedies that our mothers and grandmothers told us are still good today.
Perhaps you overdid things the past few days because you felt so good and so happy. It's such a hard thing to pace ourselves. I think that is a lifetime challenge, learning to pace ourselves.
Gentle hugs
Rachel
Hi Keirsten, I love your positive attitude ! I’m just worried about why you are trying to work with a kidney infection ? Please be careful, but it does sound like you have a wonderful team of dr’s that’s just awesome !!
There are just so many things to rule out, it can be exhausting ! And this trouble with remembering how to swallow I know Petunia has that, I’m starting to believe that having a neurologist prob is a good idea. Just finding one that will not just blame everything on fibro and really work you up for different things is key. I was also reading up on folic acid ( or folate ) & alpha Lipoic acid & was surprised that deficiency causes a lot of weird symptoms like tingling in hands and feet. Something to look into…
Hope your feeling better, take it easy, but I feel your hope and I’m so glad for you…
Hugs & blessings
dee
Thank you Dee I will look into folic acid.
Hi Keirsten,
Sounds like you have a great PCP, and it was a very productive visit, I'm so happy you finally got some answers! I totally agree with him, the symptoms sound neurological. I'm surprised the rheumatologist didn't act on anything, especially since the tingling and spasms are very common in FMS. I'm glad your PCP responded so well.
I think you're on your way to feeling better, good for you!
Hugs,
Renie❤
I have had the same PCP for 5 years and he is a remarkable man. He listens to everything I am concerned about and has never let me down. He always “listens” which I have found to be a huge annoyance in many other Dr that don’t do this. I saw the rheumatologist a few weeks ago shared these symptoms with her and she shrugged her shoulders and said.she didn’t know what it could be. She copies my diary pages and sent me on my way. That’s when I decided to see my pcp.