I not trying to complain but seems like the pain is getting to me more lately. I tried so many different supplements. Diets changes. I seen a nutristionist . I done massage therapy. List goes on. Been so exspesensive. Not how to stop looking for an answer. That will make me the person I was before. I get so upset my weight keeps going up. Such struggle not gain anymore. Just got done fighting a migraine that last 72 hours. I thought it was never going to end. Try to keep a positive attitude but seems to be getting harder. All the waiting and more testing. I am 44 going to be 45 next month I feel like I am 90. I have seen some 90yr olds in better health than me. I found an aqua zumba class I been enjoying that. trying to find the energy to go to aerobic water class. Read so many things about Fibromyalgia and how and what things can help I haven't seen the difference. Feel the same no matter what. Sorry be so negative. Just needed to get this out
Don’t apologize for how you feel Tina, this is what this site is for. I’m glad you feel safe enough to share here. I completely understand where you are, I too am gaining weight and changing meds frequently just to try to be ok for a second. As soon as you feel ok in one area then it seems like everything else falls apart. My heads hasn’t stopped pounding since November of last year and I have been in and out of hospitals, doctors, & specialists offices every since to no avail. I hear Aqua fitness is good, please let me know how that goes for you because I am still trying to find a place where I can use a pool since I have no income and haven’t been approved for SSI yet. I know how it feels to feel as if nothing is helping and working, and unfortunately those things may not work for you so take some time to find what triggers you specifically because we all respond differently. It’s ok to be negative, just don’t forget to try to be positive tomorrow! It’s a new day. I really hope this helps and I wish you the absolute best! I will keep you in my prayers.
Hugs & Love,
Queenie
Thank you Queenie for the reply. I just joined an aqua fitness class and I am enjoying it. But we don't have warm water pool. To me and everyone else in the class water cold. It often increases my pain. I live in a small town in our area there is not a warm water pool. I just go get out of the house and water feels good on my feet. I have a lot of feet pain and RLS. So at least it is helping that.
I really wish I had access to a pool just to try it out for my pain, my tub is good but bc I’m short, I often end up in more pain trying to hold myself up in it, lol. My feet hurt/burn a lot too so that could be beneficial. I’m so glad you’re getting some relief though. I think it’s important to identify the small victories and work our way up from there. Keep your head up Tina!
My Neurologist in Iowa City told me that from then on I had to list ibuprofen & acetaminophen on my "alergic to" list. They give a person w/migraines, rebound headaches that can last for daaaaays. Talk with your PCP about this. M
I can't hardly take anything for my pain. I have a lot of icy hot and pain gels. I get migraines and over meds use headaches. This last migraine lasted for 3 days. Caused a flare up at the same time . I do love the pool because my feet hurt and burn a lot. IT takes that feeling away. I have been taking Aleve but it really doesn't do much. I do have pain meds but I can only take them no more than once a week if that.
Tina,
Ask your PCP for a sample of Frova. I was given samples by an ER Dr. It works pretty good. I’ve had migraines since I was a child so in over 30+ yrs this is the only medication that works well on a regular basis and the side effects are minimal. Most times it really cuts down on the length and severity of the migraine. The only times it hasn’t worked i was having "break through " migraines and was ER bound regardless. However, there’s no generic for it so hopefully if you like it your insurance company will cover it. My insurance was allowing for Rx of 12 pills, once or twice a year. Unfortunately it changed this year. At 1st they flat out denied it. Then it was the game of “try this and this or this” drug before we’ll cover it. Thankfully, I guess, I’d already tried all the others and my PCP was about to get them to cover it. I’m using “cover” lightly lol last November I paid $1 for the Rx of 12. Now it’s Rx of 4 for $100! Every time I have tried to pick it up from the pharmacy 0 is covered and so round and round I go with them. Ugh, it’s been 7 months now and still haven’t been able to get it! Without it I had 2 migraines last week: 1st 1 lasted 36hrs, 2nd 1 lasted 42.5hrs. Don’t you just love fighting your head and body and loosing both fights!
Check it out with your PCP. It has worked well for me but it is a strong medication.
Best of wishes for happier days:)
Nickole
Tina,
I feel for you. I think I have tried everything under the sun for my fibro symptoms and get to a place where I can only be thankful when my symptoms decide to level off instead of keep climbing. Good for you for taking aqua classes, I have heard it is great for fibro! I know it can be hard to find the real you or feel how you used to, but you are not this disease. Keep looking up, and literally keep swimming. You inspire me!
Blessings and prayers