Atta girl! There are days when we feel battered from this illness but we're not out! We still have our overall health, our bodies and our minds. We can live well on the good days and deal with the bad ones.
Glad you're hear and glad you're feeling less alone. You know now that you don't have to be isolated with this illness and that you aren't crazy. It helps a lot, doesn't it?
Yes, it feels so good to hear others know what this feels like. I like to help others not feel so alone as well so it's a great way to give and get. Thank you for your kindness! :)
Jo that is a fantastic description of it! Each thing you said to describe it equals a check to all of them!
I like your logo...the Nike one. That's awesome! I think tomorrow when I wake up and I am going to think that to myself. :)
Hugs!!!
SK I am the same on the car. Oh and long car rides or trips are a complete doozy. Ugh. I know anyone on a long trip gets cramped..we get super duper to the infinity power cramped!
Yes, def degrees of pain, but always pain!
Hugs!!!
Yes! Like a herd of horses decided I was there track and ran around and round all night digging their hooves into me!
Hugs!!!
Hi there,
Well I am glad to hear I am not losing my mind. I know I am not, but it does feel good to here from others too who are going through this.
I do the same...try not to schedule too many things in one day. I just can't do it or I will pay heavily for it. Grocery shopping days takes alot out of me.
Thank you for the welcome! :)
Hugs!!!
Thank you Pet! I have the sweet little guy tonight, he begged to come, so he is here! It got late when she brought him, and it cooled off to the point that I could not take him out, so hopefully tomorrow will be very warm so I can take him out! He loves the wide open space and the ability to ride his scooter and bike here, besides all the attention! We played for over an hour just sending cars back on forth down the hallway! Pap is going to be the one to take him out in the snow this winter, not me!
I had to turn the heat on last night, I was in agony with the cold and dampness in the house! A/Cs still in windows with the heat on! Crazy!
We are the tin women! ;)
I wish there was answer for that one...why the dif pain signals. I have many why's!
That Petunia girl is a gem!
My house is like Mother Hubbard's now, just about bare, just no energy to go to the store!
Wish I was near you, I could have shopped for you today.
Do you have anyone around you to help you out when you're in this much pain? I know you said that your hubby doesn't do the housework and stuff. And it's so awful when you feel so ill to go shopping for food. And you must be in tough shape to not shop because you usually have so much energy, even with your illnesses. Darn, it really upsets me to hear this.
Oh gosh, I do remember those days with my son. They were wonderful and your descriptions brought a smile to my face. Well, I suppose that in many ways, he's your most effective therapy of all.
Yes, it's gotten colder earlier this year. It hurts, doesn't it? I'm just so sorry that it's gotten so bad for you. WHY must these illnesses progress? Well, esp. PsA, in your case. Horrible illness, that PsA. Horrible too that the injections don't seem to be influencing the pain.
Our A/C is also still in the window, because I'm not convinced that the hot and humid days are completely gone, although it's starting to seem so.
You're welcome. That's the whole point of a place like this, to help others feel alive again and not ashamed of their illness. So many people get so beaten down because they aren't believed. Once they know that fibro is for real and others have it and believe them, they begin to shine once again. What a difference some common sharing and believing can make in a person.
Glad that you feel better now that you've begun to talk with us!
Yeah? You too, right back atcha!
Hi
Totally get that Tin Man reference, I’m so stiff in the mornings, I can hardly grab the alarm clock. My back and hips are very painful, I want to lay back down but the pain gets better if I walk around!
I’ve worked out that if I sleep for 6 hours I’m not in so much pain but exhausted, and if I sleep for 8 hours I’m in agony most of the day but not so tired, so I aim for 6-7 hours and have a nap at lunch lol what great choices we have
Wishing everyone a stress free day xoxo
Oh yeah, much safer that way! And my second floor stairs are especially steep and very small, so that a normal-sized foot doesn't fit on them too well. The curse of the 150 year old house! So I sleep in the living room, instead of schlepping up and down those stairs (no bathroom on the second floor either, and I'm not risking falling down them at night on a bathroom run!)
A cane's a good idea, Rachel. I use one too, when I'm very dizzy, sore or tired. I found a very pretty one that looks like a work of art. I'm sure that I don't look like a work of art, though, when I'm clinging to it for dear life, standing half up and half slumped over from a dizzy spell! LOL.
Yeah, isn't falling UP stairs so embarrassing? I'm constantly doing it, as I can't judge stairs too well anymore. I did it today, while holding someone's meal to deliver and ended up dropping the meal as I fell to the ground. But the meal was all covered, so nothing fell out or spilled, thankfully. And nothing was hurt, save my pride. Still, I hate to see my clients witness me fall. I feel like an idiot going down like that.
Oh gosh, you have my sympathy for having to shop at Walmart. It must be an agonizing trip - the store is endlessly long. I just visited Ikea for the first time and it's even bigger than Walmart. Maybe the size of 2 Walmarts? Awful, awful place. Thought I'd die and end up mummified before I ever found my way out of there!
Shopping on a bad back and fibro day is awful too. You always forget stuff and are miserable while shopping.
I can see why you're not looking forward to your next knee surgery. I hope it helps to fix the problem though. I also hope that the fibro doesn't interfere too much. Stupid illness, always pops up when you least want it to.
Minute you take them out it will be 110 degrees, you are so right Petunia!
Same with changing out clothes, minute I put away the capris it will be hot, but learned to keep some out, need to get more long pants and hoodies down. Need to get more stretch pants, yoga pants, what ever they call them I wear my cuddle duds under them! Love 'em!
Rachel, you have suffered for such a long time, and you are on here every day and every night reaching out to others! You are another one of my super heroes! Thanks for all you do for all of us!
Renie is right in on the super hero compliment! She is another one who gives so much to each and every one of us!
You gals and guys may not always know they are there, working hard for you, but they are!