Does anyone have burning hands and feet. Thats how all my crazy stuff started. Swelling in both hands and feet. They have done manyblood test comes up with auto immune disease called mixed connective tissue disease. They also say I have fibro. Does anyone have these symptoms
http://en.wikipedia.org/wiki/Mixed_connective_tissue_disease
Dear vett lady, the first diagnoses I got was 'overlap syndrome', even before Sjogren's showed up as positive, I also have Raynaud's and Psoriatic arthritis. The last being my primary. My Internist still believes I have other connective tissue diseases, though the Rheum says not. The Rheum said my MRI's are not that bad, the Internist is ready to send me for Neurosurgery! Tomorrow I see my DC to get his opinion on this.
Mixed connective tissue disease is a big one, and ills go, fibro is no picnic either. I hope you are in the care of a good Rheumatologist, their opinion counts.
I am glad that you are here with us. I'm not sure we have any answers, I don't, but I certainly understand how you are feeling and what you are up against!
Sending hugs,
SK
Yes, I have the burning, but mine is at the top of my back a place where a hump has formed, where all the muscles meet. Feels like someone has taken a hot iron and burnt through to the bone.
Hi vett lady. I don't have it, but it was one of the questions on the form I filled out at my neurologists office today. Makes me wonder if it's neurological somehow??? But, I don't know.
Hi Vett Lady,
I do have burning in my hands and feet. It is not all the time but seems to be more when I have overdone it and am extremely tired. Like tonight, hands and feet have that burning sensation. I don't have any solutions to offer just that yes I too experience burning in my hands and feet!
Jackie
Hi vet, my feet burn 24/7 and are also very dry. I work on them daily but they burn and night time is worse. I have no answers and I too am looking for help. I have lost a lot of sleep because of this. I always sleep with my feet out of the covers which helps a bit. Sure hope somebody can find some answers for us. Yes I wish we could all have a rheumatologist, but here in Canada it is very hard to get to see one.
Vicky
I do a little... but not all the time. My feet get terrible for hours at a time but my hands are not as bad. It tends to be worse later in the day than in the morning xx
YeOwch!!!! That's awful, SK! I'm shaking my head, incredulous at how freaking painful these illnesses can get. Is the burning feeling related to the collapsed disks? OMG. Just can't imagine suffering through what you do.
MUCH sympathy,
Petunia
Hi Vett Lady,
If I were you, I'd look up discussion groups for mixed connective tissue diseases, so you can also talk to them about these symptoms. Sometimes I find answers to my own questions in these groups, things that have never been discussed here. So it's definitely worth a look.
I rarely get the burning sensation and it's more like pin prickles for me. I do think it's related to fibro and nerve pain.
Maybe someone else on here will have more info than I do for you.
Hugs and hope,
Petunia
Actually, my Fibro pain STARTED in my feet… (15 years ago) SEVERE PAIN… Some days I could HARDLY walk… I was getting cortisone injections in my heels every 6 weeks for over 3 years… I even had surgery for Plantar Facitis… The pain didn’t stop, but it ‘moved around’ to my legs, arms, ribs, hands… It literally MOVES AROUND!! Flu-like symptoms that made me have NO ENERGY… I HAD to be in bed for DAYS!
What helps? Hot baths, heating pad, eating healthy, vitamins, sunshine… Good friends, taking it SLOWER… AND DON’T BEAT YOURSELF UP!! I don’t know WHAT makes some of this have this, and some never even have an ache or pain… But, God MUST have a plan… Trust this.
Love and soft hugs,
Diana
Hi Vett Lady,
I get the hot, burning, painful hands and sometimes feet. But the hands are the worst. It got to the point where I just couldn't use my hands ......it was awful. You can't do anything! I went to see my doctor and she put me on Celebrex which is used to treat Arthritis and pain. It worked! Slowly at first, but it worked. Recently I was diagnosed with liver problems so I immediately stopped taking it. Well the hands are starting to burn again! I am going to go back on the Celebrex .....not much point having a healthy liver if you can't use your hands and do anything. So I do feel your pain! Try Celebrex.
HI Ark, good to hear from you! Glad something works for your pain, we're lost without our hands. Do you take this for OA, RA? I know my grandmother took it for years, it really helped her!
Hi SK,
Glad to be back. Life has been extremely stressful and I haven't had much time to get on the computer.
I haven't been diagnosed with either OA or RA, although I sometimes wonder. I do find the Celebrex helps and my doctor agrees that I should continue even with early liver issues.
i am having burning in my thighs and down my leg. as well as fingers. and palms.. still trying to figure out what that is.
i get the burning in my hands from typing .. ouch..
i get burning burning pain in my thigh on the side of my leg and down my leg to where my leg goes numb to the point to when i touch the area while its in full burning.. i cannot feel myself touching my leg. does this happen?
I too get those burning sensations. Also sharp pains that run down my thighs. After my second child. I lost feeling in my foot and for years they diagnosed it as rsd. Some dctrs say it is some say it isn’t. I just had surgery for Morton’s neuroma. Now I have no feeling. Going to dctr today for kidney pain. Feel better. Try new meds and see what works
I asked my Chriopractor to again tell me why I have this burning in my neck and upper back, he said mine was from nerve and nerve root irritation brought on by my injuries from car accidents, and from joint damage from the Psoriatic Arthritis. The PsA is my primary autoimmune disease.
I’ve wondered too if my problems are because of negative blood type. I’m O- and I have had the rhogam shot 3 times. I did a google search a few weeks ago and it seems like a lot of women who have had this shot have lupus or some other auto immune diseases. Not sure if its just coincidence but I didn’t come across any studies on it.
Swelling hands and feet with severe pain is my main symptom. I can feel the pain up my arms and legs but when it gets really bad my elbows, shoulders, knees, hips, and back hurt like my hands and feet do…if that makes sense. They’ll turn bright red and burn too, especially my feet. My blood work all came out normal. The ANA and arthritis was normal. My cholesterol was 97 and I have lowish blood pressure, so fibro was what he ended up diagnosing me with.
Hi everyone,
MamaD i have your exact symptoms including swelling, stiffness, red rash( feet, hands, knees), hot burning. loss of feeling in limbs, pain all over, chronic chronic fatigue -- also body tremors . Im being passed from specialist to specialist...pain clinic, rhuemo, neurologist whats new! I dont fit with any symptoms and all my tests scans are negative or within range. My GP is fantastic.She knows me and can see how ill and desperate i am. Im now using sticks to walk!
Just incase it helps anyone ,together we have deduced that i probably have fibromyalgia FM with a little know disorder that frequently accompanies it. Erythromyalgia EM (sister site on here). The red hot burning flare ups and itching pain are significant of that. Intolerance to heat, exertion, stress... all fit with FM and EM. Precipitating factor probably many years of awful emotional stress and horrible traumatic events- shock ,12. 6 and 1 year ago.Immune system also very low due to 8 years of health problems on /off . She also thinks my fatigue goes beyond fibro so possibly chronic fatigue syndrome on top. Because such extreme swelling thighs/knees have caused phlebitis both legs im seeing a vascular incase. My BP legs is dangerously high.
So i fell ill with this 5 months ago( which is nothing compared to most of you on site)... it has got worse during this time. Only the tremors have eased slightly(or ive become less frightened by them so not heightened in my mind that im having a stroke). My GP and I are now going to hit the big guys in london to see if we can get this diagnosed properly. I was ready to give up when i came on this site. Through the kindness of site friends and all of your blogs, discussions and support i have weathered this awful 'infliction' and kept struggling through the days. Many ive been so desperate ive had to knock myself out with sleeping tablets to cope.... i still do!. But please read this and take some strength from it. Sooner or later we will find the person that 'believes' us.i.e. it is not in our mind , depression,or just the peri/menopause or whatever! Hold onto your faith and log onto this site. Talk about it, ask questions.......keep strong.dont let specialists bully you or patronise. Today is first day i am begining to feel hopeful that a diagnosis will come. Moreover someone in the medical field believes me!..
You are all in my thoughts and prayers. Thank you from bottom of my heart.
God bless
UK members have a good bank holiday
mads x
I haven't been seen any specialists or anything. Since my blood work and everything is perfect, my doc doesn't see it possibly being anything else. Unfortunately, I think he's right...even without any extra tests. I'm a walking trauma magnet and have been since I was born. Last September I was hit with 3 traumatic events in under 3 weeks, then another 2 months ago. It caused a lot of dissociative seizures and that cold shock feeling. I've had this for at least 7 years, but this year has been the worst and I blame it on all the trauma.
I haven't heard of EM, but I'll have to look it up! I don't have tremors, or itching, but I do have what feels like hot flashes lol. I'm 27 so I'm pretty sure I'm not going through menopause. I'm also extremely sensitive to hot and cold and have been my whole life. Cold is extremely painful to the bone, but if it gets too hot I swell up and my hands and feet burn.
Yes my feet burn, I thought at first it was my shoes but not only do they burn they also hurt! Also my ankles hurt somedays. My hands bother me also, although they don’t really look swollen but they feel as if they are, this Fibro crap is for the birds!! I’m glad I found this support group, hoping to learn more about this nasty old condition!! Hope you feel better:)