It's been a while since I have been on here. To get everyone up to date, my doctor finally put me on the fentanyl patch (50mg). What a relief to be out of so much pain and misery. My whole body DOES still hurt whenever the weather changes or rain.
Here is my dilemma, now! Since I have the pain under control now, what do I do about this constant fatigue?? I have been on the couch for 3 days, unable to do anything. And I hurt so bad between shoulders. I go see my doc today. Does anyone have any ideas of what to do for this fatigue?
Would like everyone's input please!
Rachel, Honey, You are a blessing to me, as all of you are! My problem is that with this divorce going on and all the depression and mood swings that go with it, it is so hard to get on any routine. When I was happy, 1 or 2 years ago, I was excersising regular. I have lost 10 lbs that I didn't need to lose. My regular doc today told me he didn't think I was bi-polar. I rarely have highs. I think I am manic depressive, if anything!
Maybe when this divorce mess is over, I can get on a routine. By the way, my children have come back around and been more supportive of me. But, I want you to know, that I do like living by myself. No one to take care of but myself. Even though that is not going so well right now. If someone just knew of something to get an appetite, I would feel so much better! Thank you, and God Bless You! Big Hug!
I have a big problem with fatigue. I find if I stay on a routine of stretching of a morning and moving around more the fatigue is better. I try and do something every day and the aqua therapy is really helping.
That does help Purple. I guess I have just been too depressed to do much. Thank you, Dear!
Bless your heart, Rattel'd.. Your story is so sad, but predictable. I try everyday to do my stretching exercises, also. But sometimes, like when the weather changes, I cannot even get off the couch.
Like you, I suffer from anxiety attacks from just the thought of getting out of the house. Thank God, we don't look as bad on the outside as we feel on the inside. Wouldn't we all be scary monsters! I personally think that happiness is a big key to these problems we have. I am sure you have suffered in your life, as have I. I still hang on to hope of finding someone to treat me the way I deserve to be treated. There has to be someone out there for us. Just hang on, and try to stay positive!
Hi. I’ve been gone from here for a while. But here’s my 2 cents… Fentanyl is very fatiguing in itself. On top of CFS/Fibro it’s a losing battle. Try to eat as healthy as possible. Cut out carbs and sugar as much as possible so you don’t crash. Keep hydrated with lots of water. And, I know we hate this, but getting outside for a short walk can wake up you and give you more energy IF you don’t push it. Like 5 - 10 minutes if possible. I’ve had this for 19 yrs. these are my only ideas 
Thank you so much, Penelope. As far as the pain patch, it is so good to not be in pain day in and day out.
I just do not have an appetite. I have lost about 15 lbs since I left my husband. Just do not have an appetite.
At the end of my rope. Don' know what to do. Any ideas on something to increase my appetite?
Thank you so much, candy
Hi, tired of been tired. I’ve been on a pill that it had done miracles on my fatigue, the it’s called Amantadine.
Been taken it for two month now, Ana I can’t complain.
It sounds like your body is telling you to rest. Think about all of the stress your body has racked up due to pain! I honestly think your body is trying to play catch up now. Sleep is what helps our body repair our DNA. Maybe you need to let your body do what it wants for a week or two, and then, if you're still sleeping too much, contact your doctor. I'm sorry that I can't help any more than this. I know that I've been sleeping too much since i quit my job but it feels like such a luxury to do so! I'm not yet ready to give it up!
Maybe the pain patch is affecting your appetite? You can find the side effects on line.
If you can't eat, I'd suggest that you get some Carnation Instant Breakfast or Ensure and drink one a day or however many you need to get the proper calories and nutrition. I used to work in a nursing home and there was a little old lady there and she lived on Ensure. I NEVER saw her take a bite of food. So yeah, Ensure can be very helpful for those without an appetite.
FMRattld, you words brought tears to my eyes. Losing everything is so, so hard. I used to deal with old people and they'd say the same thing when they got shipped off to a nursing home. Well, living it does give us more compassion, doesn't it? And boy, do I feel compassion for you. And yet, you seem to be a strong person, despite everything that's been handed to you. And I admire that trait in you. It's hard to be strong when your world is topsy-turvy! But you are, and good for you!!!
I've also learned that there are still things I can do, just not what I could do before. Like you say, little baby steps. I'm using those baby steps in order to make jewelry to try and sell online. Mostly I'm just picking out a charm, unhooking a ring, putting the charm onto it and maybe a few more, then closing the rings and putting the lobster claw clamp on at the end of the piece. And I may glue a few things on or add a few rhinestones. i don't know if any of it will sell but it MAKES ME THINK and makes me feel better about life in general.
It's so good to hear everyone talk about their fibro issues, and see how they hash out a solution for themselves. Most people do hash one out and that's certainly refreshing to hear.
meanwhile, I hope and pray that your divorce comes through soon. There is nothing harder to face than a divorce, i feel. And one that lasts 4 years? Good heavens, you are a strong and TENACIOUS person. Kudos to you!
Thank you so much for your info. I will check into this. God Bless You!
Thanks, Petunia Girl. I think this divorce and fibro doesn't go too well together. Not only am I fatigued, I have NO appetite. I have lost about 15 lbs. Just cannot eat!