Crying and feeling hopeless

Oh Karen B.....I love it! I couldn't agree more :)

SK,

If I could get the bp down I think I would be pretty good. Remember the other other night when I dropped my computer well it did break. Had to replace it yesterday along with my smart phone that I also dropped! GRRRRRR

This dropping crap just never ends! No wonder my bp wont come down. Lol

Hugs, Tina

Oh now that just plain old SUKKS! Sorry for the language but it's true! I'd be beside myself if I broke my computer and smart phone!!! Can you put padding on them? Seriously. There must be something you can do to keep from ruining them again. How about this: wrap a slender bungie cord around your laptop and then clip it shut so that its looped around the top area of the keyboard. Then attach a loop around your wrist and clip it to the bungie cord. Something along this line might work and you could take the cord off when you put little Lappie to bed each night.

Yes Petunia they are Maltese. My male just turned 14 yrs old in Aug and my female will be 8 in Dec. They are God's best example of unconditonal love in my opinion! They love you no matter what. I would have love to get another but Alex the male is so old, I dont know if it would be fair to him at this point in his life. I think Emma, my female would do better with a new sibling. Lol

I thank God for them everyday! If i'm having a bad day they just climb right in bed with me and snuggle :) Its the best feeling in the world to have their company.

Hugs, Tina

I may try that. Lol I'm not sure if I drop things because my hands hurts or if its something else entirely. I keep thinking back 5-6 yrs ago when they did a CT scan of my brain and there was a lesion present. The neuro doc didn't think it was anything to worry about but it makes me wonder. I've researched a little about MS and wonder sometimes if my dx is correct. To me it sounds like alot of the sypmtoms of fibro are simular to MS. Have you ever thought that?

I didn't know until recently that MS also causes chronic pain. Dont know if I should even mention it as they already think i'm nuts.

You know, I get so angry when I hear these stories that we are nuts, unstable, want attention, are too emotional, want drugs... the list is endless, BUT, it seems like it is more a case of their inability to either make a diagnosis or admit that serious issues such as herniated discs and brain lesions DO MATTER!!!

I have been for 3 brain scans looking for the tiniest of lesions to indicate either MS or SLE, and yours doesn't seem to think it should be a concern? I just don't get it!

I know SK....I will be going to the hospital tuesday morning to get a copy of the report of the brain scan to take with me to my appt with my GP on tuesday afternoon. I'm really not totally convinced of my dx yet. There are just to many things going on. I suffer from severe muscle cramps down the backs of my thighs, calves, feet, hands and occationaly my neck.

I am also having severe headaches that affect my vision. I think it's a shame that we have to be our own docs! WTH are they being paid for! I'm like everyone else...FED UP.

Hope I can at least get my GP to listen.

My feeling at this point is they MAKE us crazy!

My GP was my rock through all of this, I just kept going back, we got frustrated, but always let it roll off, we kept associating everything to a car accident. If I would have had psoriasis, would never have had to go through years of this.

So much time is wasted waiting to see a specialists, waiting for the tests they order, going on to the next one, the next thing... years and years are wasted, years of damage are done, yet we are to pay for this kind of nonsense, not question, or raise our voice? Hard to take isn't it?

It would have saved me considerable time if the idiot that read my hydascan would have seen the spinal stenosis that my DC and GP picked up in a moment! Another problem with the Drs not seeing the actual x-ray. So I urge you all to take the x-rays to the Dr with you and not take ANYONE"S word for it!

I feel the same way, sometimes I wish there was like a pause button on life just so I can rest for a little bit. Or at times I feel like I can’t handle it and want it all (the pain) to end and ppl take it as me wanting to die, isn’t fun. I feel like some of my family don’t believe me & now I feel like my doctor doesn’t believe my pain either. So I just want to say hang in there, we probably all feel that way from time to time, some more than others, but we will get through.

Hugs!

Hope you can get some relief Luisa, I know this is not fun for you, Just cannot give up, have to keep telling them, sooner or later someone will figure it out, keep a running list of problems, questions, give them the list! Something may just click! We are all here for you, hope you feel better very soon!

Hugs,

SK

Tina, are you feeling better ? Have you tried anything else for pain ? When I was working , 1/2 Lortab got me through the last half of the day. Btw I have a Maltese & a westy terrier , old man & old lady I’ll have to post some pics, but ya the three of us hang out, what a team. Lol
Hugs

hi tina , i know just how you feel , i have had to stop work couldnt continue just pushed myself and felt physically sick . iam feeling it financially husband is gd tho , well until he told me to get a grip the other day , he realises now tho, he cant take to seeing me like this from being fit and being a nursery nurse with 27 pre schoolers, to sleeping crying and constant pain , we have to deal with so much , and when people ask how you feeling today , we know it never goes away and feel like saying , please dont ask im no different . i think i can run away , but were , i coulnt do it to my family but like you ive had enough of this pain , frustration and isolation , i wish it was more common knowledge to people so its easier to understand what we are going through , i hope ive made sense , my brain is scrambled today xxxxxx tc xxxxxxxxxxxx

Have you tried seeing a different doctor, Tina? I know around here people have seen psychiatrists and received anti-anxiety meds and pain medication; same with rheumatologists and internists. You may also find a different - aka better - pain management doctor if you're able to travel a little further. Surely this quack isn't the only guy in town?

I do hope you are doing better now. How awful for you. I work from home and some days it's almost impossible to function. If I had to go into an office or store, I can't imagine how I'd cope. God bless and good luck to you, hon.