The past two days I have done something I don’t usually do-go out without make-up. Today, I even went to pick up my prescriptions in my p.j.s. Well, the bottoms with a t-shirt and hoodie. I ended up stopping by to see a FB friend and going to Family Dollar. Why say all this? I won’t get out if I have to get all dressed up so I’ve decided to just go and do what I have to and get home and not waste my time on frivolous things.
My skin disease is out of control, and I have to have UVB light treatments twice a week now for it. I refuse to get dressed. Plus, my brother just lives about 3 miles from there and he is depressed from chronic pain also. He was in an auto accident that wasn’t his fault that ended his career. I can visit with him and we can and did complain together. I am rambling kinda not thinking right.
I wonder if the light treatment will help the fibro? Anyway CarolAnn best wishes. We are here for you.
My Moma told me never to leave the house without lipstick. I still live with that rule. I was raised in the south by a wonderful Southern mother. I forgot about yoga pants. I have to get something big besides p.j. bottoms to wear. I had my sunglasses on also. My head is too small and hair too short fot a cap.
I get you on the new dr, but if I am sick enough to go to ER, I am sick. I can’t put on make-up. I am usually throwing up or out of my mind.
I dress if I am going shopping which I rarely do except around my birthdate. Otherwise, I shop online or close to home when I can get out.
I understand very well. Well people don't want to hear it or have time to hear it. They think they don't feel good either and they can 'handle' things, why can't we. They don't get how serious this is. We do!
Complain away, sometimes you just have to!
I hope that you are feeling better! Sending you my best!
I am in tears. I can not explain enough how identical your story is with how I feel and how fed up I am of people not "getting it" even when you try to explain it. I also try to "deal" and push through as much as I can. I have a 13 yr old daughter who requires the very best I have as well. I do not want to be a disappointment to her. I am trying to get the ssi process going as well. I have been told that is hard to get in KY. I had apart-time job in 2010 but had to quit bc I started having so many medical issues,including being diagnosed with Fibromyalgia at the Rheumetology ? clinic I go to now. Last year I was seeing 5 different specialist.It has leveled out a little since then. So, I feel like i struggle daily with so many things.(medical,finances,family, etc.) I have no family that give any support in ANY way really.That is a story all its own though. I try to keep my game face on as much as I can. Sorry, Just that when I read your bit I suppose it actually helped me to open up. Believe it all is going to break me sooner than later. This is a place for us to come to be understood. Tender hugs to all.
I wish none of us had to go thru this. It's like the simple things in life are too hard to enjoy. I also deal with family and financial problems. The financial part is really scaring me. I have so much debt from so many medical bills. My job doesn't pay enough to help me get caught up with the bills. I had wanted to get a part-time job in addition to my full time job to help with the bills but that's impossible. I can barely do my full time job. I'm so afraid of my future. Thanks for letting me vent!
Aww, it's OK-- I am in pain all the time, too, and I do have some "good" days here and there; on top of the pain I have the chronic fatigue, and although the meds I take seem to alleviate it, it doesn't fully take it away. I pray to the Lord every day and I will also pray for you. You seem so sincere. May God comfort you in these times of stress. I totally understand what you are going through. There are some people who actually think that I am making up this illness, but may God bless them anyhow because truthfully they have another form of illness--it's called hatred. Reach out to us on here anytime--we're all in this together.
I will be praying for you and all of us here who suffer in more ways than one. I am thankful that we all have this support system to lean on one another. I hope that one day this condition will truly be brought to light and sincerely understood by those around us.
Not to be silly Sandi, but that would be a short walk for me. Ha! Maybe I did mean to get silly. Maybe we could have a lounge-in or a sit-in. Those would suit me better. We could bring chaise lounges or chairs and sit under trees in a park on a wonderful spring or fall day.
Wouldn’t that be nice? We could already have our donations the same way as a walk-a-thon, but this would be a sit-a-thon.
Walks for Fibromyalgia - can we go with our wheelchairs/scooters/walkers? You are kidding, right? Maybe if they all gave us what Terri got when she was in ER we could do it. I'm with Tricky, a lounge-in or sit-in. This is like the person who said he/she goes rock-climbing!! Yes, lets all try that. Yes, I am being sarcastic, but, really, everyone here is hurting badly, everyday, how could we possibly do a walk? It just doesn't make sense to me. Sorry, Sandi, it just doesn't fit with my health issues. I'm glad you are excited about finding out about such a thing and it is more probable that other people would walk for us, and I guess, maybe there are some out there that can walk, but for me, no way!! I have a scooter and can hardly walk a block without stopping.
I like the idea of us being in the center of the walking people sitting/lounging. A lot of us would not make it even 1/5 around the track. A lot of our family/friends would probably volunteer.
Good, improved idea. Who wanted to could get up and walk like you said or the last lap-best idea to me. Cool beans.
CarolAnn, how are you doing? I hope that all of these great people made you feel better! Hopefully you even had a chuckle! We are all pulling for you to feel better!
CarolAnn, your venting has caused me to go see my brother who is the one person who truly understands me. He suffers from chronic pain also. We love to talk. Thank you for the push. Hope you feel better.
Apparently, May 12th is National Fibromyalgia Awareness Day.
The Walk to CURE FM national walks are spreading. Join or start a walk in your community! Click HERE. Questions about the Walk to CURE FM? Experience with creating a walk? Please share your thoughts on the community tech support forum. Thanks!
So, here you go Sandi - All the information is on this website. You go girl!! Aloha.