Hello to all my fibro friends,
With regard to fibro fogs, does anyone find a pattern with them, occurring at specific times of day?
I've been finding, for months now that I become fogged and extremely fatigued by about 1pm, I have a light lunch and then I feel so muddled and tired, it's as if an energy switch is turned off, even if I've had a quiet, easy morning!
I find it very frustrating, especially if I want to do something in the afternoon, when I then struggle.
Lucy xx
Hey Lucy, I fight with Fibro Fob about 5:30 every evening. I work M-F 8-5. By the time I get home, it hits somewhat terrible! Just like you, the fatigue starts setting in. My legs feel like I’m walking in a 2 foot of mud! All this with with the Fibro Fob about same time each day. Hmmm~~• Go figure !!
Hi Lucy - I definitely find I have so much more trouble in the mornings. It takes quite a while for me to be able to talk normally and think sort of straight after waking up. The more tired I am the worse it is as well. When I was working, it would get worse as the day went on. I definitely have a switch and it flips on it's own - never know for sure when that will happen. Just remember to try to be kind to yourself and know that this is, for the most part, beyond your control.
Big Hugs!!!L
Linnie
Hi dream2bpainfree,
It's dreadful isn't it? I begin to dread lunchtime coming as I know my body will soon switch off! I think some of it by now could be psychological but the pain lead legs are real enough!
I feel for you, every evening, I'm not surprised but I salute you, still working those hours with fibro. Mind you the main reason I no longer work was due to a severe breakdown 3 years, having done 27 years in full time nursing, fibro has crept in along the way!
Thanks for your reply.
Lucy xx
Hi Linnie,
I know what you mean about not being able to talk properly! If my husband asks where something is, I can see it in my mind but the info does not reach my mouth to say it! I usually have to take him to where the item is! Then we laugh about it, which helps! I just say " I can't say where it is so I'll show you"!!
MAD!!
I must admit I do laugh at myself a lot otherwise I'd get too frustrated!
Take care,
Lucy xx
Oh Lucy - I can't believe you do that too. I have very few talents these days, but when the guys are looking for something, if I have seen it, then I can picture right were it is in my head. I just can't get out the words. Ugh!! I had a neuro psyc work up and they just thought I was crazy - I just knew that this word stuff had to mean I had something else beside Fibro but I have finally given in to the fact that it is all part of the group of issues. I have to laugh too or I would hurt somebody. :-)
Hi Tammy
Thanks for the reply, good to know I'm not alone! This is a strange condition!
Am fine, have got used to the fibro now, I may not like having it but I've adapted my life to help me pace and cope and thus feel ok in myself!
Love Lucy xx
Hi Lucy Since I have been of work I have found taking a short nap after lunch helps me make it thru the rest of the day.
I also have fibro fog!! I am an excitable person and used to mess up some on words now its much worse!!! Can’t think of easy common words!!! My kids think I’m stupid acting or something!! How do you guys explain these things to your teens who think its just a stupid excuse or laziness???
Hello, yes I agree, I usually have a nap too, it's the only way I've found to recharge and get rid of the fog! Glad I'm not the only one who takes an afternoon nap! At 47 I felt lazy at first but soon realised that in order to feel ok the rest of the day it was essential.
Love Lucy xx
Hi Amy,
My son is 25 now and thankfully understands that at times my brain malfunctions!!! we just have a good laugh about it, there's nothing else to do!! It happens, he's even let out a "fog horn" sound like on the coast to warn ships!! "fog alert" !!! I've found that if we just make a joke of it I don't take it seriously and don't worry about them anymore.
Lucy xx
Hi Angelique,
I know! what is going on with our brains!! When I was a nursing sister here in the UK I used to be able to think and act so quickly, maybe I did that too much for too long (27 years) but now I really have to think about doing things and the best way to go about things!!
My pain/fibro consultant suggested that my brain had eventually had enough and started to malfunction, just like an overloaded computer!!
Lucy xx
It's often quicker just to show him where it is! and a lot less frustrating standing there trying to get my brain to transmit the word to my mouth!!
Lucy xx
I find that if I’m given a hard task or get a phone call after I just get up that upsets me, I’m a mess. I always have a hard time around 3-4 pm. By that time of day my neck muscles are so tight and I start having problems swallowing and my shoulder is screaming at me. It’s then that I have to either take a muscle relaxer or a hydrocodone if I have any. It feels like some one has their fists stuck in the back of my head, which starts the headache. It’s then that noise, smells and lights are irritating.
Stress is my worse trigger and will bring on the fog any time of day! Good discussion, Lucy!
hi Lucy, unfortunately I can lose it any time, although I’m always useless for 1/2 hour to an hour in the morning, and then again around dinner time. I can lose words at different times when I try to describe something, I ask my husband you know that thing that you use to do. …or explain how to do something or how to find something (easier to do myself and then he gets mad at me), it’s pretty frustrating for both of us. There are mornings I get up and then have to go back to bed because I just can’t function, I’m so exhausted. Those are the days we say…my get up and go just didn’t get up, and our plans change from day to day.
I cannot say I have noticed a pattern to them but I will say that I get really bad after a busy day and often spend days in a semi fog and horrid pain before being ready to face the world again :( xx