I'm new here. I was diagnosed with Fibromyalgia almost 17 years ago. I have experienced a wide variety of symptoms. Pain of course, exhaustion, sleep disorders, Fibro fog, getting stuck in the middle of a sentence and forgetting the next word, and the list goes on.
There is one symptom that I have experienced for years, I don't know when it started but I "hear" music but the radio is not on. A friend of mine, who also has Fibro, has told me that stereos or TVs have turned on as she walks by them. So when I started hearing music that was not playing, I assumed that I was perhaps picking up nearby radio stations. I say that it is a radio station because a lot of the time what I hear is opera, and I have never been to an opera and I do not play it on my radio.
This never bothered/upset me until a few months ago, when I picked up a medical magazine while waiting in a doctor's office. It talked about "ear wigs" I think they called it when you get a song stuck in your head and it just won't go away. Then they talked about auditory hallucinations and I began to wonder just what it is I am really experiencing. I have never told any doctor about the symptom, because it was just there, but has never been intrusive, and figured it was just part of the package that is Fibromyalgia.
So, I would like to hear from others who have experienced this or something similar. I don't want to keep it from my doctors, but I would like to know if this is an hallucination before I call it that and be labelled as having psychotic symptoms.
Hi. This is not something that ever happened to me and I am glad you said up until recently it has never been intrusive. I, personally would not put any label on it and I would discuss it with my neurologist to make sure there was not anything going on that needed treatment. I have had other things happen to me after getting ill with severe case of cfids( CFS/ME).Gran mal seizures with auras( vision distortion on one side of head with colored flashing ,zig zag lights. Vertigo, migraines and aphasia which is not to be mistaken with fibro fog and word finding trouble. Aphasia involves the language and speech center of the brain. The few episodes I had were scarey because my brain only had images without letters or words written or spoken .the other part of my brain knew I could speak ,read snd write but just did not computer for a few brief minutes. I am much better with all of that stuff and I have a very good neurologist. All the best! HUGGGGGGGGGGGGS
Suzie
PS. Correction ,the auras were with the migraines not the Gran mal seizures. I could not edit it cause it was difficult so just added the post script. My apologizes. Xoxo
Following this out of interest. Agree with everything Suzie says, she is such a wise lady and has been thro a lot. Have not experienced this, personally, but I think you should get it checked out. It's a tricky one... whenever a new symptom crops up for me I think yes the Fibro, then I begin to wonder, that gives rise to anxiety.. and so on, a vicious circle. I find mindfulness helps with this. So, lets hope other members can throw some light on this. Wishing you well.
I think Suzie is correct in getting medically checked out but, IMO, Anne is also correct in suspecting fibro for virtually everything. It has been so for me for 30 years except recently when I got bicep tendinitis, very hard to distinguish. I got 24/7 severe tinnitus three years ago and am very aware that we have a neural based disorder of uncertain etiology, by current thinking. Good luck.
I had this a couple of months ago. Very annoying as i kept thinking the neighbours were playing music too loud. I was amazed by the lovely classical compositions my mind was making up though. I had this for about a month all the time and then it just stopped and none since. It was a very stressful time for me so i put it down to stress. I never asked my doctor as it stopped before i got around to it. I hope your music is good to listen too but goes away like mine.
Hi. I am a newbie and just starting on this site. I am in the middle of a flare so not a very happy camper. I was very excited to see someone else hears music. This has been happening to me for 9+ years. I have told the docs and they choose to not address it. So thank you for sharing this. I no longer feel alone
Thats interesting i have the same thing on and off, i hear it when there couldnt be music around and its pretty loud so theres no way im not hearing it. It is also like symphany music as well, interesting. I told one of my friends who doesnthave fibro and she said that also happens to her. I thought it was an unrelaated or even spiritual thing (its happened while meditating) i also hear yelling ans has happened the clearest while meditating.
wow and I thought I was the only one . I heard opera before like a few house away or a few blocks, but no one else hear it. I kept asking but no one knew what I was talking about. Then I heard clarinet playing , that was even closer I cound’t be sure and now I stop asking. Plus I have been drugs free for at least more than 2 years now.
My hallucination often change during times change. Once a while I even starting to see the color of sound too,it might not be as big as people who’s suffering from synesthesia but at least the tiny little colorful thread or blur like wrong color of little rainbow shooting around in the air are very interesting.
I suffer non-24 sleep wake disorder thanks to fibro. Which I think between that was the cause in most of my day time hallucination . And my sleep paralysis also comes with shadowily type hallucination that was very scary I hate it .
Sometime tactile hallucination can occur during my Paresthesia attacks like bugs crawling sensation I thought I saw them in just second ago , but there was non. Yet what’s crazier there’s a real crazy itch and inflaming red spot or patches without the real bugs bites. It drive me nuts sometime.
This happens to me quite frequently, most often when I’m lying down in bed but still wide awake, and it does indeed sound like beautiful symphonic music that is both familiar sounding and ethereal at the same time. I just figured my bedroom was haunted or something, lol, and never thought to attribute it to my fibromyalgia.