I Just Need To Vent

I am normally a very positive person. Really, I am. But for some reason these past few days have been a real knock down drag out with fibro. I have had a sore throat for almost two weeks. I am so damn tired, I end up falling asleep at 9 am every day. On top of it, I just started having these nagging "Why me?" questions.

I keep thinking I did something. I just feel so....Blah! I can't keep up with my housework. I can't keep up with anything lately and it is really dragging me down. I am so angry about having fibro and not being able to DO anything about it. I think I may have mentioned this before, but when something isn't working, I generally try to figure out why. But in the case of fibro, there are no answers. I can't find what works and what doesn't. Something will work for a while, and then it will quit working.

On top of having fibro, I learned yesterday that I have to have $2100 worth of work done on my car. And it's necessary. The tires are ready to blow out-yuck. And our fridge isn't actually keeping anything cold either.

I don't work outside the home. I really can't, and I don't qualify for disability because I don't have enough credits. I am feeling worthless and alone because I don't want to complain, I don't want to burden anyone. I just needed to vent. I don't know how much better this actually made me feel, but at least I can feel as though I was able to speak my mind.

A week like that is enough to make anyone frustrated and mad and sad. You're well within your rights to feel all of these things! Car repairs are especially annoying because they always cost big bucks that you don't have. And fridges love to break down in the summer months, just when you need them to be at their coldest. I do believe that some stores, like Sears and Home Depot, carry some scratch and dent models at lower prices if you don't mind one that isn't perfect.

You know, just because you don't qualify for SSDI doesn't mean that you can't get SSI, which is similar but is based on income. And you can own one house that's your primary residence and one car that you need for transportation. You can find more out about it here, in a comparison between SSDI and SSI disability: http://ssa-custhelp.ssa.gov/app/answers/detail/a_id/245/~/difference-between-social-security-disability-and-ssi-disability

Gotta go, not feeling so hot anymore. Hope some of this is helpful to you.

Petunia

I’m glad you are able to vent… Vent away, we all understand the miserable frustration with this ! It’s so unfair & we are all entitled to feel crappy about it … I have those days, we all do & when everything just starts pilling up its so hard to just keep going…
Car trouble is the worse…
Maybe your frig just needs a new thermostat or something simple, call around before you have someone look at it… Sometimes they can tell you what they think it is, then call a supply store & get a price on the part… Better yet if you can find a appliance supply store they can tell you why it’s not staying cold & how much the part would cost… Take it from there, I did that with my dryer & I found a friend of a friend that knew how to install it…
It’s frustrating when things like this happen … I finally got my kitchen ceiling done & my upstairs bathtub leaked & messed it up all over agàin… Ugh
Hang in there, we are here to talk, listen & understand
Hugs
dee

Don't feel like your a burden! It's ok to vent. That's why LWF is here. We support each other in these times.

Petunia is right about SSI. Check out the website she gave you. You can qualify for SSI even if you haven't worked.

Yip, you need to fix the frig. If you check around and find that it's just a part you can replace yourself that will be great. If not sometimes you can get good deals in used appliance stores or craigslist. Tires too.

Let us know how it goes. It's just a rough spot. We all have them. You will get through this!

LKitty

Hi Everyone,

I'm a moderator on LifewithLupus, and I also have Fibro. I have been blaming all my issues on Lupus, but maybe its more the Fibro? Or they are tag-teaming me. In either case, my fatigue has really increased. I feel like a wind up toy, that is winding down... Sometimes, I feel like I'm lazy, I just can't seem to do anything. The weather has been a big impact on me this past week, dramatic changes.

Trisha

I feel lazy all the time. My house looks like a cluttered mess. I don't want to do anything either. I think it is partly because I have been feeling so down about things. Plus, I won't ask for help. Trisha, I feel your pain. I often think things will get better when....And then....I don't know. I want to believe that there is something better coming around the corner, for all of us!

Hi jmhaag,
I totally get it… I am also a positive person and it’s really hard to admit when I don’t feel like being positive for however long. But guess what? It is what it is. We’re allowed to have our negative times and that’s that.

It’s hard to know that we can’t do something to fix it . Hard to accept. It’s also hard to see things getting worse with yourself and it’s scarey. I really get fed up with it all sometimes.

Just ask the people on here, I have had my times and posted things that weren’t so positive. I’ve been in some really dark places with this fibro.

I don’t want to let others down by getting negative but sometimes were gonna go there.

It’s ok. Let’s have the moments that we need to have. Some days will be more annoying , frustrating and painful. Important thing is that we let it out when it’s there and know that eventually we won’t feel so raw about things until next time. : )

Put in a friend request if you want. I’ll be happy to talk whenever you want.
Lisa

I can empathize. Sometimes I ask myself whether I’m giving myself excuses. Just had a major quarrel with my sis about household chores. Granted I’m naturally already someone a little tardy but this week is just plain shitty.

I don’t have the energy to do anything, even bathing at times. Or forgetting whether I have brushed my teeth.

How do you deal with family members who don’t understand what you are goin through and feel that you are giving excuses?