2023-02-22, Wednesday - Energy 10%
Successes: 
I feel a bit foolish - I just realized my lips hurt more from how/much I’m drinking at the moment…
The 3L is mainly almond milk/drink, partly soy, recently trying millet.
But all in single mouthfuls/gulps, 1-2 per capsule directly out of a tetra pak.
The lid of the sort I buy at the moment has a double-winding fairly sharp “thread”,
and to keep mishaps down I put my lips tightly around it (and even often close it after every gulp).
So 100-200 gulps = rasps per day… :rolleyes: . Let’s see if it improves at last…
Feels nice and luxurious to drink out of a cup, but a bit dangerous at first, so I’ll keep to the kitchen…
Sleep 90% / Feeling 80%-ish / nausea 0%, fog 10%
Learnt: 
Stearic acid as a filler isn’t too bad, see research.
Checking sodium bicarb for mast cells: I’ll report on that tomorrow.
New Habits: Click for details of the 4 I'm still working on. Last change Jan 14th.
Bed 23:30-8:30/9:00. 
Note thoughts and emotions (ACT) (
)
More leg stretches. ()
Cold foods out of fridge 2h earlier than eating. ()
Today's FM symptoms unchanged from WPI 11 & SSS 9, except....: SSS +0 headache (click for details)
Today’s symptoms sorted by the ACR 2016 criteria
Widespread pain, WPI = 11 of 19 areas: limb-Ache 8 (10%, stiff ?0%) + spine-pain 3 (10%), shoulder-girdles/hips 0 chest / abdomen / jaw 0
Symptom severity, SSS = severity 9 of 12: Fatigue 3 (90%), insomnia 3 (10%), fog 2 (10%), headache 0 (0%), GI 1 (10%), depression 0
Triggers & resulting Symptoms
JAB#3 (on Nov 7th) causing MCAS / histamine problems, esp. energy narrowed to (10-)15-20%, decreased to mostly 10-15% in January.From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips.
JAB#3 (on Nov 7th) → MCAS / histamine since end of Dec: 15-20% energy for under 45’, then white lips & pale face. But if I keep strain down to ‘half speed’ (70%) I can push on thru for hours - with a few breaks and lots of task-switching. Not that much specifically histaminey problems since end of Dec, occasionally sinuses and nausea, no more ill ache. Usually white lips & face 30%, and some sliding instead of walking indoors 10%, bit more cold intolerance 30% (long johns 24/7, 2 thick duvets at night). From Jan on, bit warmer (5-12° C), I’ve swapped long johns for a 2nd pair of pyjama trousers at night and when I’m pretty active at daytime sometimes no long johns, but when out slow cycling/walking. And don’t need hot water bottles any more, whether I can manage a cold shower (usually) or not.
Development summarized: Down: Nov 17th - Dec 1st, worst 17th-18th, best 20th & 29th. Up: Dec 2nd-6th, Down 7th-8th, Up: 9th-14th, best 13th-14th: Winning easily 4:0, and slow energy for 4h! Down: 15th-21st 7 days, Up 22nd to 24th winning roughly 3:1, Unsure: 25th-31st: TT 2:2 or no play possible: 25th 2:2(?), (26th 0), 27th: 2:2, (28th 0 - ordered supps, not cellar), Down: 1st-2nd, 4th. Up: 3rd, 5th. Both: 6th-11th - sinuses, tongue, lips, runny, DAO helping. Cold: 12th. 13th: GI: HP supps? 14th: B3-Flushing up!? 15th: Runny nose, 16th-21st & 25th-26th…: Tongue off and on. 23rd-25th: Sore buttock (& leg) muscles like after the jabs since 23rd. 26th: Cold, pain & fatigue, energy from 18% to 10% since 19th. Triggers tooth cleaning and moving out. 27th: Bad. 28th: Bad to better. 29th: OK, considering. 30th: No burning after 200g baked beans, but a bit, later, after then another 50g, short colon sting praps from the tomatoes, no stronger urge from them tho. 31st: Still haven’t regained appetite. From Feb 3rd on: 10% energy. Cold tolerance good, just not my fingertips. 8th: Bit of tongue after red beans, but OK. Feb 12th 6:00: Stronger histamine-y symptoms and stomach pang. Feb 15th: strong headache evening and night probably from red beans without DAO, praps also the sinus burning. Feb 18th: More energy for the first time. Very red lips, looking inflamed, go white when I press them together.
Treatments: Antihistamine, and extra GABA from Nov 29th. Stopping the antihistamine at the turn of the year quickly caused sleep problems.
SLEEP (click for details): 7h44, up 4x (38'), almost all deep ✅ ➔ Feeling 80% well, Ache 2 of 7 ✅, getting up: 80%/1 ✅. Nostrils 5-15% stuffy 100% of the night. Stomach up to 25% at 5. Excited to get stuff done 2-3x, pressure to get to sleep quickly using Yoga Nidra was a bit counter-productive.
A3 teeth0 cold shower0 p0 Sleep 0:45- Why not 21:00? 3rd # is LBU
Memos: Lower Back: short exercises, twist-stretched, yoga & hanging. massager.
2:20 4’ 80%/2/15% p0 st1 sip fw1’ cough0 deep air plugs0 cream/ gel/ HWB#0
(nostril/s5/5% nauseous5% stomach5% sinuses5% headache0% sore throat10% stools loose%0)
3:55 6’ 80%/2/15% p0 st1 sip fw1’ cough0 deep air0 A4 plugs0 cream/ gel/ HWB#0
(nostril/s10/5% nauseous5% stomach15% sinuses10% headache0% sore throat15% stools loose%0)
5:25 9’ 80%/2/15% p0 st1 sip fw4’ cough0 deep air A5 plugs0->/ cream/ gel/ HWB#0
(nostril/s5/15% nauseous10% stomach25% sinuses10% headache0% sore throat15% stools loose%0)
6:53 19’ 80%/2/15% p0 st1 sip fw4’ cough0 deep air plugs/ cream/ gel/ HWB#0 6 FCS#1
(nostril/s10/5% nauseous10% stomach15% sinuses10% headache0% sore throat15% stools loose%0)
-9:07 B1-4 0‘ in sun, 80%/2/15% p0 st1 sip fw4’ cough0 deep air0 plugs/
(nostril/s5/5% nauseous10% stomach15% sinuses5% headache0% sore throat5% stools loose%0) → stools loose0%
Sum: 9h07-45-(4+6+9+19=)38 = 8h22-38 = 7h44, up 4x (38’), almost all deep
ACTIVITIES (aim: 40% energy) ➔ ACHE: 80%/2, stools ➔ 80%/1 , ➔ TT 1:1 (picking up 0 balls) ➔ 80%/3 , gardening, moving ➔ 80%/3 , cos that was much longer and seems tougher, table tennis has got really hard.
ACTIONS ➔ PAINS : except GI: stools loose0% , appetite better from going back to pure veggies (), esophagus: carrots extra works , pee pain: 2xp1-2 , lower back unrest , finger tips: better. (). Lips still red inflamed, pressed to white (), hope drinking differently’ll help.
Click for details on Touch, Covid, Weather, last seizures Jan 14th & 15th, last esophagus block Feb 20th + 5th, last jaw pain praps Jan 30th.
Touch: Covid: Weather: Indoors Outdoors . Daylight lamp regularly on.
Last focal seizures: Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw: Hardly & seldom pain since Nov. A bit more in Jan. Jan 6th: Slightly psychosomatic from memory of a painful time. Jan 10th: A bit after tooth cleaning. After: regularly a little bit, 1-2x/d. Better since improving tooth care again and giving that side of the jaw a rest from chewing for a few days from Feb on.
Treatments
Click for details on bloods (Dec 9th, now Feb 9th: keen on results), practitioner ideas (last on Dec 20th), acupuncture (last on Dec 22nd). Last started masterwort (warily) and Hexacyl on Jan 6th - low & slow. 13th: Unsure if the stomach problems are from those two, so stop-start to see. 16th: again feel 2x2 drops is too much, stomach problems. 17th: 2x1 drop, 2x OK, praps a bit. 19th: 1-2x1 drop each again apparently too much (nausea). Feb 3rd: Starting to eat/feel a bit better after stopping the new practitioner's recommendations.
Bloods at cardio Dec 9th: Homocysteine a bit high, continue B3 and B2, phosphate not that bad. Leukocytes low! CK, muscular, too high, praps fibro?
Alternative health practitioner (“Heilpraktiker”) on Dec 6th+20th: Jan 6th: Started masterwort & Hexacyl, lower than recommended (2x1 drop each), adding 1/d. 9th: Further research after reply to take manganese and vit. E. 13th: Unsure if the stomach problems are from those 2, so stop-start to see. 16th: again feel 2x2 drops is too much, stomach problems. 17th: 2x1 drop, 2x OK, praps a bit. 19th: 1-2x1 drop each again apparently too much. 25th I don’t feel like taking “her” powders at the moment (fungi & chlorella don’t taste good, roasted pumpkin seeds sometimes yes), lost some fun in eating, need to reclaim that. 26th: nauseous after masterwort. 27th-31st OK after masterwort. Feb 1st: Still no appetite, so put new drops away. Feb 3rd: Starting to eat/feel a bit better without the new practitioner’s recommendations.
Chinese Acupuncturist - Session #32 on Nov 4th., after 14 days “Energy still pretty stable at 20%, despite jab-nausea…”, now it’s down from that so often that I tried #33 22nd Dec. Wasn’t worth it: No improvement, sleep too short.
SELF-PHYSIO (click for details): 62'
white_check_mark: airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft 8x1’, teeth 2x2’, HWB 0x3’, breath exercises 3x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 4x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 1’, back 3’, !!aloe vera 0x1’, twist-stretch 1x1’, yoga/stretching 1x1’, hang 1x1’. wart x1.
Combine: next?
hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.
Supps Jan 8th (48 supps): Supp costs: 466€/m (8th) + 16€/m for empty capsules = 482€/m: Jan 11th: Still to get MSM, manganese, E as tocotrienol and my silymarin again. Yet to try: Creatine? ATP again, encapsulated, for phosphate?? Click for details on the lists, with dosing batches by times and tubs.
ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).
REGULAR as of Jan 8th (48 supps): (R-)ALA .2g, aloe vera juice 50+ml/d, apigenin 1x50mg, vit. B2 6x600mg, vit. B3/Nia 6x0.6=3.6g, vit. B5/Panto: 3x.5g vit. B12 (methyl-C) 1x5mg/4m s.c., AND B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 2x3x.5g, L-carnitine (Cr) 8x0.6g, copper (Cu) 1x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before meals, EGCg 1x(50%, incl. L-theanine?).5g, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 2x4,5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4x0.3g+2x.6g=2.4g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 2x0.6g, glutathione (gltt) 1x250mg, honokiol (Hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 2x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 2x50g, monkfruit 0.1g, myo-inositol 1x1g/1!d, olive leaf extract (oli) 2x.75, Ω3 1x5mg, passiflora (Pf) 3x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x.5g, PQQ 1, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 4x.5g, resveratrol (Rs) (50%) 2x.4g, rhodiola (Ro) 2x.35g, rutin (ru): 1x522. SAM-e (Sa) 2x.1g, Selenium 1x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: 6x0.6=3.6g (as much as B3). Plus rupatadine/Rupafin 1x/d since jab#3 Nov. Plus practitioners recommendations: #1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.
What-when-details: Updated Jan 8th.
ON TIME, EXCEPT WEDN EVE. LATE
“16:00” preparing pills
“18:15” A1 PF#1, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” myo-inositol + teeth
“19:30” A2=12+1 2xvB2#1 2xvB3 vB5#1 2Cr#1, PF#2, Cu, .3gGABA CoQ10 (oil) &! Se, 2xTMG#1. Meal: 1PQQ, 5ml Ω3 & Hon#1. monkfruit.
Meal 20: ’ +xylitol. Back exercises. Soak seeds. aloe.
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” chamomile
“21:00” A3 PF#3 0.3gGABA & .6glu & Qc#2 Hon#2 + 1 Rupafin or A2
“2:00” A4 300mg GABA + teeth
“4:00” +0.25 GABA
B=11/ ’ in sun/lamp “07:00” ALA, Ro#1, Qc#3 Rs#1 2xSAM-e EGCg + Fev/MSM#1 + Sily +2The.
Back exercises.
Soak Soak pumpkin seeds & almonds.
Teeth.
Meal ’ in sun/lamp. aloe.
’ in sun/lamp C=23/ with meal: 2xB2#2 2xvB3#2 vB5#2 3xvC#1 3xCr#2 .6GABA#4, gink#1, Oli#1 pine bark#1 2xTMG#2 2xEleu 2gly PEA Rutin = 23. (vit.D3 1/wk)
xylitol
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” 0 Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 "2"vB3#3 vB5#3 3xvC#2 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, TMG#3
xylitol
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#4, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:
The day's supp-compartments (8', plus 10' making capsules), Jan 8th
Pf: A1+A2+A3, vB2: 2A,2C,2D. vB3: 2A,2C,2D. vB5: A,C,D. vC:0A+3C+3D 8Cr: 2A+3C+3D, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: a2,a3,a4,C,D, Gi: C,D0,D Glutathione: B. Hon:A2.A3. Oliv: C,D. pine: C,D. Qc: A1.A3.B.E Ro:B,D Rs:B,D SINGLE: A1: 0xMgMal, luteolin. 2MgThreo. myo-inositol (15’ before meal 1x/(2)d) A2: Cu (separate from P5P etc.!)+0P5+1xQ10 (->ubiquinone <150mg/d! atm ubiquinol), 1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): ALA, EGCg, 2xeleu, , Ru, 2 Sa, Sily, 2Th, C: 2 Gly, PEA, DAO before risky meals? monkfruit usually evenings, aloe vera. D3 saturdays. (A2:0Se, up soon)
TALLIES Jan 9th: correct?
A1=6+1 Pf#1 Qc1#1, Lut, 2 MgThreo, + myo-inositol + (DAO?)
A2=16 2vB2#1 "2"xvB3, vB5#1, 2xCr#1, Cu, Pf#2, Ga#1, Hon#1, Q10, Se, 2TMG#1 + Rup. = 16
+Ω3/PQQ/aloe +monkfruit +apigenin 16(+5) -1 vB5 = 15.
A3=5 Pf#3, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2
B=11 ALA, EGCg, Fev/MSM#1, Glutt, Qc#3, Ro#1, Rs#2, 2xSa, 2Th, Sily (DAO?) = 11/
C=22 2vB2#2 "2"xvB3#2 vB5#2 3xvC#1 3xCr#2 Ga#4 Gi#2 Ol#1 Pin#1 TMG#2 2xEleu 2xMgGly PEA Rut = 22 - vB5 = 21.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=15 2vB2#3 "2"vB3#3 vB5#3 3xvC#2 3xCr#3 Ga#5 Gi#3 Ol#2 Pin#2 TMG#3 Fev/MSM#2
25th: -vB5#3: so only 14/
E=4 Ell, Qc#4, Ro#2, Rs#2. Fev/MSM#3
B12 4-monthly, D3 Saturdays.
Development
I’m still doing what I can which means I’m “shuffling thru the day”, doing a lot of stuff, but very slowly. Weirdly usually winning at table tennis, when it’s possible at all, so it’s not affecting my fine motor skills, I seem to be playing better by not thinking about it, so I’m not sure about the fog. My language is getting more confused and regular mishaps. Today I felt better during table tennis than before, so we went for 3 games, instead of the 1 that I’d planned, and feared a backlash: Didn’t seem a problem tho!?
After back exercises Tuesday evening I felt like having a go at push ups cos I felt my arm muscles might be able to, but something in the ball of my left hand was hurting, partly right, so I stopped after 4. My body’s changing except my radical acceptance of it, and joy of life… My ambition later got the better of me and I tried the push ups again, and easily managed 10 quick ones by going easy on both thumb/hand balls (w?) which of course means increased strain on the arm muscles - but no problem, feels good, oxygen/lungs good too, just now both hands hurting a bit… The wrist joints have absolutely no problem, I guess it’s once against the tendons above and below. That’s also the feeling I had before starting the push ups, so I waited and tensed up a bit before starting to “warm them up” a bit, otherwise it’d’ve ended same as before.
Weird, but fun!
‘Research’ today:
Stearic acid and magnesium stearate as lubricant in supps
I’m not saying I don’t tolerate it, just the severity of my symptoms despite the amount I do makes me as careful as possible. And that’s the bottom line of my research now too… it seems safe for non-intolerant people:
I’ve looked at 3 balanced “pro” pages (1, 2, 3) and one fairly balanced German “con” page, very interesting to me
Stearic acid is actually found in foods, esp. meat and dairy. Possible dangers, like skin irritation, inhibited absorption of nutrients or T-cell suppression, were only found in small old animal studies using incredibly high doses. Magnesium stearate is an artificial compound of 4% magnesium with stearic acid which is quickly turned into stearic acid in the body. Some people say the stearate being artificial is an additional problem, but that would apply to many magnesium compounds, like the MIT-developed threonate. Stearic acid and stearates are both used as lubricants which help keep mixed substances, incl. supps, evenly distributed, plus keep the machines clean, which makes those supps cheaper. Stearic acid from meat and dairy would be a problem for strict vegans, and from plants will be from pesticide-laden cottonseed oil, only a problem for people trying to avoid all pesticides, which isn’t possible anyway, here the quercetin would need to be pesticide-free organic. (When supps are called organic that almost always just means non-synthetic, up to now I’ve only found 2-3 organic supps here in Germany.)
So it generally is well tolerated - aside however from people with allergies or oversensitivities to it, which I can’t remember having seen yet. Of my 50 supps, honokiol/magnolia bark is the only one I can’t find without stearate. I’ll be using it less warily now, despite eating “90%” vegan and “98%” organic (except almost all supps!).
Lessons in self-care #584 Could be doing better, forgot back exercises… 
Reasons to be cheerful #625 Sun/dry allowed cutting trees, that was fun!
Simplified #12 Put things in boxes so they don’t get so dusty.
Click for links to jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting
- 8 weeks after jab#3: stabilized
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My food apparently minus broccoli…
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries
- Research ToDo: supps webinar on Dec 2nd, fibro webinar transcripts, the MCAS summit, read