2023-09-09 Saturday - recovery?: Yep, stable, TT 4:0. RR/supp changes? BP still shoots up and I’m wondering if it’s not the normal circadian rhythm, but more from energy supps. Ginkgo & eleuthero (“Siberian ginseng”) are for energy, and both are said to decrease high BP, but I’m taking them very high dose, praps that’s the problem. So I’m taking eleuthero out completely and reducing ginkgo to normal dose, and see how I feel.
What … worked / went wrong … today:
Bad start with checking insurance payment for health bills: limited hamster wheel, cos it wasn’t too much (12 bills), but they’d made one date mistake which was a bit nerve-wracking until I found that out - shouldn’t have been, but was. TT a bit late, 12:30 I think, too hot. Also noisy cos an event was being prepared around us - I did have the idea like when the kids come to go for my ear plugs, but they weren’t in the box and didn’t have time to look for others in my rucksack. Found them later in my room. Decided to immediately look for several sorts and even found a 3rd one for music/clubs, also useful if I want to hear people near talking. Instead of the previous cardboard box I put each in different small stable plastic/glass containers.
PC stuff in the afternoon was too long and stressful, again a hamster wheel 
, cos like often I thought “while I’m at it, I may aswell”, and all the many "may as well"s took 2-3h, all the time under time and multi-tasking pressure, not daring to take BP or even think about it probably being too high. And in between I cheated myself that it doesn’t feel too high, or rather it doesn’t matter, cos I’m not that tense and that’s what I was gonna watch out for today…
I started off with the PC stuff, cos I’d taken all my old vcfs/contacts into “the archives”, which needed to be re-organized anyway, which is important, cos if one of the places were broken, I wouldn’t be able to look anywhere for old stuff… And I needed these cos my phones have been missing for 5 days.
Getting used to new phone, where I need to put my old contacts.
Cat sitting is a bit of a strain, I’m actually realizing every caring for animals as well as meeting people and it seems even caring for plants is a strain for me.
Bit garden, not that much, but Sunday morning more, that’s when I realized that caring for plants is sometimes a strain, so these are all things I have to watch out for now.
How was I today?: Feeling 75-85%-ish (
), energy today () - compared, sleep Friday night , sleep Saturday night , nausea 0% , fog 10% (), bites no longer itching, diligent putting oils on (), vertigo 0%, 100% of the time ().
Today working mainly on … recovery, RR vs. increasing/tolerating blood meds (as well as definitely supps, NSDR & more), energy, vertigo.
RR: HIGH BP PERIODS: 25th morning 5h, 31st afternoon 50', 3rd morning 4h, 5th: midday 2h. 6th: 9:30-9:50, 12:00-13:00. 7th: 2h, NSDR helped, slight movement brought it up for a time. 8th: possibly high in morning, unsure how many hours. 9th: Measured less, planned to concentrate on de-stressing which hasn't worked well yet, at 19:00 141-154/87-96.
| 12:50:00 | 144 | 84 | 76 | |
|---|---|---|---|---|
| 12:51:00 | 136 | 84 | 73 | |
| 18:55:00 | 148 | 90 | 67 | |
| 18:56:00 | 142 | 87 | 66 | |
| 18:59:00 | 143 | 88 | 68 | |
| 19:03:00 | 141 | 96 | 68 | |
| 19:10:00 | 154 | 91 | 71 | |
| 22:23:00 | 151 | 84 | 70 | don’t feel stressed, feel tired, moved a lot, before sleep |
| 00:11:00 | 118 | 59 | 70 | |
| 01:47:00 | 100 | 63 | 71 | |
| 03:46:00 | 107 | 67 | 77 | |
| 05:21:00 | 118 | 84 | 73 | arrh |
| 07:24:00 | 99 | 70 | 68 | after having got up! |
| 08:30:00 | 137 | 78 | 62 |
1) Since Aug 9th BALANCING PEM VS. PPA: post exertional malaise (doing things, quickly severe, muscles) ❌ vs. post postural ache (rest) ✅ is the only possible adjustment now, stiffness OK ✅: TT 4:0 (moving 20%, talking 10%, counting 0%) ➔ 80%/3 ✅, gardening/moving ➔ 80%/3 ✅, talking 15' ➔ 80%/3 ✅. So all better, except tension & praps BP. White lips80% (❌). Can't do much more for exhaustibility/Energy and Sleep than keep track of triggers see 2), click for details:
EXHAUSTIBILITY today: “88%". Changed on Aug 23rd: Energy was up to 18-20(-24)% (TT 5:1, workout possible) since June 21st 2023 (and new symptoms better) from new circadian rhythm, but kept going down to 10% (TT 0-2 games) from monthly triggers, see #3 Triggers. Today's ENERGY profile extremely slow?, with "12h rest"), 1h very slow, 2h slow, 1h medium/quick
SLEEP (click for details): 8h18, up 4x (20'), all deep. sinuses20% headache20% at 0:10 (RR 118/59) ✅, everything else OK ✅ ➔ getting up: 80%/2 ✅.
Sleep 22:35-7h13, 4 breaks 20’ Sum: 1h25+7h13-(20)’ = 8h38-20’ =
2) Watching TRIGGERS (updated Aug 23rd 2023) at least once a month with additional symptoms and continually bringing energy down from 20% to 10%, Histamine/MCAS symptoms: Nauseous sinus burning headache: 0% ✅, tongue burning: 10% day, 20% night ✅. Excitement (= stress) ✅: Insurance payments, PC, cats, guinea, wife... Click for list...."
(1) JAB#3 (on Nov 7th 2022) caused MCAS / histamine problems like the first 2 till around July. Esp. ENERGY DOWN further to (10-)15-20% (max.), but more slow energy. Each jab -5%.
(2) Jan: TCM recommendations for a few weeks
(3) Feb: ~3% of levothyroxine pill Feb 24th till Mar 23rd: more energy, but lost appetite and weight and sleep, antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms (stopped cos causing nauseous sinus headaches & painfully dry mouth).
(4) Mar: inkling of Covid, negative, but cough, appetite, night sweats…
(5) Apr: cancer checking ending with weird onco,
(6) May 20th… 17 stress triggers, till end of May: 8-12%, seizures May-June every 10d.
June 21st: circadian rhythm Better to 18(-24)% a few days, but mostly back down to ~10%:
(7) July 19th-24th: 3 garden bird deaths
(8) July 31st-Aug 6th uro exam and methylene blue trial.
(9) Aug 9th… severe vertigo, checking, back to minimal blood meds.
In the evening I realized that new lumps might be from the bladder exam. Checking them caused stabs and bladder pain again, after a time that decreased again. The UTI is getting better, esp. after my daily tea tree oil application. More than once a day is too much for any of my skins, so the rest of the time I use calendula essence to calm and strengthen.
3) DOCS: Last update Sep 7th: VERTIGO: My cardio agrees that I should focus on keeping blood pressure spikes down using supps and relaxation etc., but also meds at the moment, since the RR jumping up from 110 to 160 when I get up is a huge burden for the system and might well have caused the vertigo. Sep 4th: ONCO/URO: Sep 4th all cancer clear, slightly enlarged prostate, med for pee frequency (which I won't be taking). Click for details.
Starting Feb/March with “B symptoms” (GP Mar 29th: night sweats, cough plus appetite & weight loss), mamila swelling, PSA high Apr 20th. Mar 30th: So lung X-ray OK, Apr 6th: mamilla OK. Sweats OK Apr 9th, appetite OK-ish by June, weight OK-ish too, but down again after vertigo. Apr 24th: Weird, 20’ onco appointment, feedback STILL pending, incl. onco blood results (just others on July 20th). So now uro at least: Nothing to be seen, whether PSA & testosterone bloods or in bladder, just prostate a little enlarge, after phytosterols don’t seem to be working, prescribed a med for pee frequency which I doubt I’ll be taking. Feb-bloods: Ω3 needs increasing, much too low.
4) UNDER CONTROL: attention necessary ✅/(✅):
1) GI, pee, local pains, weather, dry mouth well under control: Details...
except GI: stools loose0% , appetite , pee pain: 0p1-2 , lower back unrest . Jaw: 2 new fillings June 23rd were enough, solved for the time being, but keep spaces free. Weather: SUN / WIND , dry mouth (day and) at night at least not hurting/sticky (
).
A small block in the evening cos my wife was stressed out after a hard weekend day at work, but stopped in time. Things like that once again remind me I want to get the last meal earlier, which means doing my supps earlier…
2) Seizures and esophagus blocks fairly under control - click for details on SEIZURES: GABA better up (also for pee pain). Aug 1st, July 25th + 7th were only seizure-ish 4-5x, increase in May-June was stress/histamine/less GABA: LAST Aug 9th: 2x. July 17th (2), Jun 23rd (4) & 16th & 6th (2), May 25th (2) &14th/13th, Apr 16th/15th. Last ESOPHAGUS BLOCKS: Aug 31st, Aug 26th, Aug 8th, July 23rd & 16th, May 31st (all 3 cos distracted), before that Apr 4th ✅.
Last focal seizures: Aug 9th: 13:42 & 15:40 (after vertigo). Aug 1st: 4-5x seizure-ish. July 25th: seizure-ish 3-4x. July 17th: 18:30 19:55 after thunderstorm. July 7th seizur-ish 4x. Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Generally, mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. Aug 31st supps again. Aug 26th: drinking supps with buttermilk instead of almond milk, Aug 8th: carrot, then chocolate. July 23rd cos distracted by the Kami stress. July 16th I was concentrating on testing if hazelnuts increase my nicotinic acid flush with my 3rd meal, and disregarded a slight throat pressure, which went totally wrong, was the last straw for an esophagus block, so had to get it out, lots came out, incl. supps, and needed to wait quite a bit afterwards. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Trialling decreased eleuthero (from 4 down to 0) and ginkgo (from 3 down to 2), see above.
SELF-TREATMENT & SUPPS optimal, stable, but necessary - NEW Sep 1st: NADH 10-20mg 20' again before meals, order Ω3 again (others too), passiflora & magnolia before 1st and 2nd meals instead of in the evenings, eleuthero up to 4x before 1st meal, keep up apigenin and myo-inositol in the evenings, in case. GABA down to max. 6x0,3 eve/night, +3x0,3 before meals. Aug 6th: 40 supps, 435€/m +20€/m cps. Last changes see before Aug 22nd. Next: LDN?
SELF-PHYSIO: Always OK, see before Aug 22nd what I now always do when needed. Next: jaw-joint?
Supps Aug 6th: 40 supps (was 42), costs 435€/m (was 470) +20€/m cps. Sep 1st: NADH, passiflora, magnolia and more GABA to daytime. Last changes see before Aug 22nd next: theanine divided up into 2x0.1g, maybe LDN, probably not creatine, colostrum or ATP again. For details on the lists, with dosing batches by times and tubs see before Aug 22nd:
‘Research’ today:
Looking at the research about ginkgo and eleuthero said they’re fine for reducing BP, but I’m suspicious.
Quality of life: 85%, “Feeling well”: 80-85%.
Lessons in self-care:
a) My wife’s state is a major problem for me, too. She tries to keep herself under control and oscillates between don’t be afraid of me and why do you do absolutely everything wrong. It’s safer for me to be wary.
b) Don’t want to distract from my own faults tho, I don’t think it’s necessary to please, it would just be better for me if I didn’t get so caught up.
c) My main focus should now be on
trialling reduction of eleuthero and ginkgo.
more tension control, incl. jumping out of my hamster wheels (just “for the sake of it” or “just because I can”),
preparing supps after 2nd meal again (too hot outside anyway),
balancing exercises regularly,
wall sits several times a day to decrease BP.
Reasons to be cheerful:
a) After all, it’s a good feeling to have got the PC backups done and found all the old contacts, most of what I need, nothing that’s making me worry.
b) Robin sang twice for about 3-4’, so it’s getting more.
c) Subadult Blackbirds coming round.
d) New flowers: First of the 2nd round of (small) rhododendron, Californian/gold poppy
e) Getting the hang of saving plants from parasites etc. by regularly going thru just to remove those leaves.
f) Tried using the self-made dung water.
g) Re-planting ferns, apple of Peru, barrenwort, lily of the valley where nothing was growing under the cherry has been really successful. Before, I’d put some old mossy branches and root dead wood there, but moss and esp. ivy hadn’t been successful (some ivy is coming up now, tho), some stinging nettles. That together is making a really nice wood/forest atmosphere. This has helped me re-interpret the garden as being half sunny flowery, half shady foresty. Stiil don’t need to leave it to its own, I think I’ll have a go at coaxing the best out of the ferns now, helping them to themselves. But as relaxed as I can…
h) And the usual: Blackbird still singing quietly, Dragonfly, Admirals, White Cabbage Butterflies, the chirpy-chirpy cheep-cheep gang, the oxeyes/suneyes on the increase again.
i) Drat, what was that, didn’t get saved, on the tip of my tongue… Good that I’m still relaxed about stuff.
Simplified: -
Foggies: Things falling and making a mess a few times every day goes without saying.
Development: Look before Aug 22nd for more details. Click for links to "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting
Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023
- 8 weeks after jab#3: stabilized
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My food 2023.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries
- Research ToDo: supps webinar on Dec 2nd, fibro webinar transcripts, the MCAS summit, read