2023-09-27 Wednesday - recovery? Yes, a little, considering doc appt. another trigger, but managed well. RR/supp changes? Tried checking more, and was good, just 16:10 seems a bit tricky.
What … worked / went wrong … today:
New doc is actually planning on doing 3 things for the unresolved still slight cancer suspicion. This is something new, what if he really does!? 
15’ TT in the evening went OK too.
Habit encouragement… :
Time (= stress) management:
Keep blog time up: 
Keep forum time down:
Jump out of hamster wheels:
Self-treatments:
Wall sits: 
, but 15’ TT (and new doc)
Balance exercises: () - too short, but again at night as a test .
Prepare supps by 15:00 : 19:00 ()
Back exercises by 16:00 : 21:00 ()
Encapsulating by 17:00 : 19:30 ()
Treat 1) jaw , 2) cough , 3) UTI , rib OK , ignore lips.
Slight clavicle problems at night.
How was I today?: Feeling 75-85%-ish (), energy today (), sleep Tuesday night - but 7 annoying breaks, sleep Wednesday night , 0 bites ().
Today working mainly on … time management (OK), more self-treatments (new ones good), RR (but only in the evening when it seemed high), energy (dosage).
RR: HIGH BP PERIODS: 10th-12th ✅, 13th ❌, 14th ❌✅, 15th ✅✅, 16th ✅ night ✅, but headache, 17th ✅(✅), 18th (✅)(✅), 19th ?✅, 20th ❌❌. 21st (✅)(✅), 22nd (✅)(✅), 23rd ✅✅, 24th ✅(✅), 25th ✅(✅)✅, 26th ✅✅, 27th (✅)✅ A bit higher at 16:10 150-140-155 thru moving and discomfort.
|16:09:00|150|99|68|moved, typed|
|16:13:00|140|88|69||
|16:12:00|155|94|68|having to hold myself cos of back|
|19:17:00|139|85|68||
|20:39:00|153|97|66|after stress talk|
|20:47:00|164|98|70|after moving, eating etc. - I should only group readings once I’ve started resting!|
|20:48:00|151|91|67||
|20:50:00|148|94|69||
|20:52:00|143|88|65||
|20:53:00|147|87|65||
|20:54:00|142|86|65||
|20:55:00|147|85|65||
|20:56:00|149|86|64||
|20:57:00|141|83|64||
|20:58:00|141|83|63|Inside of 9 minutes is perfect|
|21:06:00|141|85|65|1x later, but after moving|
|22:06:00|154|89|66||
|22:07:00|145|92|67||
|22:09:00|142|79|66||
|22:10:00|138|77|66||
|22:17:00|151|86|65||
|22:13:00|128|89|69|down in 7 mins|
|23:35:00|137|72|69||
|23:36:00|114|71|65|down in 1 min|
|00:37:00|110|73|64||
|00:42:00|129|80|64|arrh|
|00:44:00|122|74|57||
|00:45:00|123|75|63||
|01:27:00|99|66|63||
|01:38:00|112|68|65||
|01:50:00|133|76|56|arrh|
|01:51:00|117|79|56||
|03:20:00|112|78|64|arrh|
|04:10:00|107|73|60||
|05:46:00|106|70|58|nauseous sinus headache, probably histamine rather than BP|
|06:46:00|145|78|58|After Up, windows, bed, pee|
|06:49:00|104|67|62|immediately after, down in 3 mins|
|06:59:00|144|84|67||
|07:00:00|124|77|60|down in 1 min|
|08:14:00|144|86|57|after poo, feeling very shaky|
|08:22:00|140|82|62|after typing this fast, arrh|
|08:23:00|140|82|55||
|08:25:00|129|86|58||
1) Since Aug 9th BALANCING PEM VS. PPA: post exertional malaise (✅) vs. post postural ache ✅. Stiffness ✅. TT 2:0 (moving 20%, talking 20%, counting 0%) ➔ 80%/3 (❌), gardening/moving ➔ 80%/3 (❌), talking 15' ➔ 80%/3 ❌, but talking with doc was 30' "on cortisol" and first I was OK as long as that held I was OK, then needed a few hours rest, music 1' ➔ 60%/5 ❌ (I think, didn't even feel like trying). White lips60-80%? (❌). Exhaustibility "90%" ❌ and sleep ✅, click for details:
EXHAUSTIBILITY today: “90%". Changed on Aug 23rd: Energy was up to 18-20(-24)% (TT 5:1, workout possible) since June 21st 2023 (and new symptoms better) from new circadian rhythm, but kept going down to 10% (TT 0-2 games) from monthly triggers, see #3 Triggers. Today's ENERGY profile moderately slow, with "14h rest"), 2h very slow, 0h slow, 0h medium/quick
SLEEP (click for details): 7h27, up 6x (53'), all deep. 6 before and FCS at 1:30 to try to reduce sleep breaks didn't. 1:35 FCS p0 cos of >GABA -1:48. 4:05 dry mouth cough. 5:43 106 wonky again, but tightrope walk OK, sinus headache 20% from 2x100g baked beans, nauseous when getting up. ✅, everything else OK ✅, 80%/2 ✅, ➔ getting up: 80%/2 ✅. I feel sleeping shorter was better for energy - or is it the other way round?
Sleep 22:15-6:35 Sum: 1h45+6h35-(5+8+25+5+5+5=)53’ = 8h20-53’ =
2) Watching "monthly" TRIGGERS, esp. of exhaustibility. Excitement (= stress) ✅: Stress from wife cos of stopping the candesartan in the evening. Click for list...."
(1) JAB#3 (on Nov 7th 2022) caused MCAS / histamine problems like the first 2 till around July. Esp. ENERGY DOWN further to (10-)15-20% (max.), but more slow energy. Each jab -5%.
(2) Jan: TCM recommendations for a few weeks
(3) Feb: ~3% of levothyroxine pill Feb 24th till Mar 23rd: more energy, but lost appetite and weight and sleep, antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms (stopped cos causing nauseous sinus headaches & painfully dry mouth).
(4) Mar: inkling of Covid, negative, but cough, appetite, night sweats…
(5) Apr: cancer checking ending with weird onco,
(6) May 20th… 17 stress triggers, till end of May: 8-12%, seizures May-June every 10d.
June 21st: circadian rhythm Better to 18(-24)% a few days, but mostly back down to ~10%:
(7) July 19th-24th: 3 garden bird deaths
(8) July 31st-Aug 6th uro exam and methylene blue trial.
(9) Aug 9th… severe vertigo, checking, back to minimal blood meds.
Sep 12th: These have been stable for quite a time: Histamine/MCAS symptoms: Nauseous sinus burning headache: 0% , tongue burning: 10% day, 20% night . Watching “monthly” TRIGGERS (updated Aug 23rd 2023) that have brought up additional symptoms at least once a month and are continually bringing energy down from 20% to 10%.
3) DOCS: Last update Sep27th: Wife's GP: Seems very helpful, as well as nice. Recommends taking the CVD meds of course, but will get an appt for me with a cancer doc and ask my GI doc if he recommends another enteroscopy, last gastro was Feb22. Sep 12th: VERTIGO/BP: Reduce BP spikes. ONCO/URO: No uro cancer. Click for details.
Still no other explanation for the “B symptoms” Feb/March (Mar 29th: night sweats, cough plus appetite & weight loss) so back to T4 + CoV. feedback from onco appt. Apr 24th is STILL pending.
4) UNDER CONTROL ✅ (attention necessary (✅)): jaw ✅ - reduced to 30% just by pressing the whole hurting area from above the joint to 4cm away from it, 2) cough ✅ - I'm very surprised that using umckaloabo and bronchipret minimized the cough completely immediately, even when I get a bit cold ✅, but I'm keeping it up, 3) UTI ✅, but this time carrying on with at least a few calendula essence treatments a day, I'd used a pad cos of small pee drops a few days, wife appreciated that, but told me to stop it again, unnecessary. Rib completely OK now ✅, but a small neck/clavicle spot started up at night, pressing got it down ✅:
1) GI, pee, local pains, weather, dry mouth well under control: Details...
except GI: stools loose0% , appetite , pee pain: 0p1-2 , lower back unrest . Jaw: 2 new fillings June 23rd were enough, solved for the time being, but keep spaces free. Weather: SUN / WIND , dry mouth (day and) at night at least not hurting/sticky ().
2) Seizures and esophagus blocks fairly under control - click for details. Last SEIZURES: Sep 19th? (1). Aug 9th, vertigo day: (2). July 17th (2), Increase to 2-weekly in May-June was stress, histamine, and less GABA, before that monthly. Last ESOPHAGUS BLOCKS: Sep 25th: 15:15, but went thru, Sep 16th didn't! 11th. Aug 31st, 26th & 8th, July 23rd & 16th, May 31st, Apr 4th.
Last focal seizures: Sep 19th?? or so. Aug 9th: 13:42 & 15:40 (after vertigo). Aug 1st: 4-5x seizure-ish. July 25th: seizure-ish 3-4x. July 17th: 18:30 19:55 after thunderstorm. July 7th seizure-ish 4x. Increase in May-June was stress, histamine, and less GABA: Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Generally, mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. (Sep 25th: Sweet potato went down after 20-25’, not sure such a long wait with further eating is OK. But taking even more care with it on 26th was no problem. Also, taking a spoonful of omega 3 after the supps of the 2nd meal may have helped.) Sep 16th seemed scary. Sep 11th: unusually eating a peach, which I thought’d be easy, wasn’t tho. Aug 31st supps again. Aug 26th: drinking supps with buttermilk instead of almond milk, Aug 8th: carrot, then chocolate. July 23rd cos distracted by the Kami stress. July 16th I was concentrating on testing if hazelnuts increase my nicotinic acid flush with my 3rd meal, and disregarded a slight throat pressure, which went totally wrong, was the last straw for an esophagus block, so had to get it out, lots came out, incl. supps, and needed to wait quite a bit afterwards. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
SELF-TREATMENT & SUPPS optimal, stable, but necessary - NEW Sep 27th: Starting around the 20th I brought ginkgo back up to 3, seems good. Sep 11th (started around 8th): Stopped eleuthero and reduced ginkgo to 2. Still NADH sometimes, lots of Ω3 (cos not enough from olive oil), plus passiflora, magnolia & 0.3g GABA at daytime instead of night. Aug 6th: 40 supps, 435€/m +20€/m cps. Last changes see before Aug 22nd. Next: LDN!
SELF-PHYSIO: Always OK, see before Aug 22nd what I now always do when needed. Next: jaw-joint?
Supps Aug 6th: 40 supps (was 42), costs 435€/m (was 470) +20€/m cps. Sep 11th (started around 8th): Stopping eleuthero and reducing ginkgo to 2 is reducing BP. Sep 1st: NADH, passiflora, magnolia and more GABA to daytime. Last changes see before Aug 22nd next: theanine divided up into 2x0.1g, maybe LDN, probably not creatine, colostrum or ATP again. For details on the lists, with dosing batches by times and tubs see before Aug 22nd:
‘Research’ today
The three or five second rule" for eating something after it’s fallen on the floor is controversially/partly debunked by research. No, some types of bacteria can infect some types of food (esp. moist) from some surfaces (varies: one says less on carpets, another doesn’t) almost immediately. But yes, in one minute they can often do this much worse than in 5 seconds. And generally: Public flooring is cleaner than we think, and touching other places like refrigerator handles, wallets and light switches is not to be neglected.
The solifenacin for my OAB bladder has dry mouth as the most common side effect (but one study said ‘only’ 11%, whilst I’m always lucky in the draw). In my case, this could then cause more waking from that, from severe dry coughing, mouth sticking together. Apart from that constipation wouldn’t be a problem, UTI at the moment after the bladder exam and infections would. Hyperthermia from decreased sweating, hmm, no idea. Somnolence (sleepiness or drowsiness), and the succinate form is more likely to cause severe allergic reactions than the others.
It occurred to me, sort of an own ‘research’ hunch, that when it comes down to it, maybe all my treatments of local pains are at least partly types of “stretches” of the tendons (partly muscles): The single pressure from pressing and the regular quick pressure using a massager are both moving in and then out of the tendon
Quality of life: 85%, “Feeling well”: 70-80%.
Lessons in self-care:
a) I need to vent a bit: Preparing my supps in the evening I got sad after the new doc appointment, cos I feel so left alone when they say things like “I don’t know anything about supps”, me sort of like “heck, well you may not know anything about it, but what are you gonna do to help me then?”
b) Another vent: My wife was happy I’ve now gone to her doc, a different one, but when we were talking it suddenly emerged that I’m not taking the 4mg candesartan for my BP at the moment, cos I feel it is reducing my night BP too much and I think that’s the cause of non-sinus headaches. She got worked up that I hadn’t told her or rather she says that “we hadn’t agreed on it”, here her way of saying ‘do what I say’. That caused me difficulty with eating, had to take a break. But the problem is she hardly ever wants to talk about health details, cos it’s all too much for her.
c) Tailbone yuckiness at night may be from too long lying on my tailbone during evening back exercises, so earlier is better. Today I kept the sitting down.
d) I should only group RR readings once I’ve started resting!
Reasons to be cheerful:
a) Robin singing again in the evening,
b) Something shuffled in the dark behind the suneyes, I’m sure it was one or more of the subadult blackbirds.
c) The talk before she got narked was lovely.
d) Squirrels back in the morning, been seeing dark squirrels all around in the neighbourhood the past days. They make such a weird noise!
Simplified: -
Foggies: -
Development: Look before Aug 22nd for more details. Click for links to "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting
Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023