2023-09-30 Saturday - recovery?: Stabilizing low. RR/supp changes?: The spikes seem to vary.
What … worked / went wrong … today:
Esophagus block, maybe from the alarm rushing me to eat more? (And sweet potatoes is a typical culprit.) Could have tried waiting, but didn’t feel like it. Wife thinks 3x/m is “too often”.
Habit encouragement… :
Time (= stress) management: Blog earlier 
, forums less , jump off hamster wheels: 
Self-treatments: Jaw , wall sits , balancing , supps by 15:00: but 18:30 , back ex. by 16:00: , capsules by 17:00
How was I today?: Feeling 80-90%-ish (), energy today (), improving, sleep Friday night , sleep Saturday night .
Today working mainly on … time management , better self-treatments , RR , energy , screen curfew .
[details=“RR: HIGH BP PERIODS: 10th-12th , 13th , 14th , 15th , 16th night , but headache, 17th (), 18th ()(), 19th ?, 20th . 21st ()(), 22nd ()(), 23rd , 24th (), 25th (), 26th , 27th (: 16:00) , 28th:(: 17:15). 29th () afternoons risky? 30th () today the morning, and also the night was pretty high, 16-18 was OK, a peak period despite rest before 12, but did “end” on 140 after 8 mins, similar 20:25-20:45, however average of 138/86. It’s difficult to check it regularly when we’re sitting together, cos it annoys my wife, but praps like a 24h unit once every 15’? I need to write down what I’m doing more at the critical times, like in the evening I think I was eating and I ate late, but can never remember exactly.”]
|09:31:00|157|95|60|After eating, higher than expected|30.09.23||
|09:33:00|147|86|60|still flush|||
|09:34:00|152|92|61||||
|09:44:00|146|91|58|after typing|||
|09:45:00|154|89|60||||
|09:48:00|146|87|59|Cold, 17 mins|||
|11:19:00|159|81|68|after poo, warm, no flush any more|||
|11:20:00|153|83|65||||
|11:21:00|133|83|66|relaxed my left leg on stairs|||
|11:21:00|128|85|67|2 Mins|||
|11:47:00|159|80|66||||
|11:48:00|143|87|64||||
|11:49:00|139|79|62||||
|11:50:00|158|80|63||||
|11:51:00|139|82|60||||
|11:52:00|146|79|63||||
|11:53:00|134|82|62||||
|11:54:00|151|78|63||||
|11:55:00|140|83|61|8 mins|||
|12:15:00|142|96|65|working|||
|12:24:00|145|95|64|working|||
|12:32:00|145|90|61|working|||
|12:36:00|141|86|62|directly after work|||
|13:31:00|166|90|66|up and down stairs several times, moving stuff|||
|13:37:00|150|95|65||||
|13:39:00|142|83|63|arrh|||
|13:41:00|142|90|65||||
|13:45:00|140|80|67||||
|13:46:00|139|83|66||||
|13:47:00|139|85|66||||
|13:48:00|153|85|64||||
|13:49:00|142|88|65||||
|13:50:00|131|86|65||||
|14:07:00|152|90|62||||
|14:08:00|144|91|65|OK, considering I’m moving cos my alarm is telling me to eat|||
|15:27:00|151|94|74|after regurge|||
|15:41:00|140|98|72|arrh|||
|17:20:00|141|85|74||||
|17:21:00|125|77|73|arrh|||
|17:23:00|134|76|68|Well this is good, considering it’s the critical time…|||
|17:41:00|149|90|66||||
|17:44:00|141|89|64||||
|17:47:00|138|82|63||||
|17:49:00|136|91|62||||
|18:49:00|137|88|58|researching|||
|18:53:00|140|88|61||||
|18:59:00|134|89|56||||
|20:24:00|146|96|59|Keep missing it when we’re sitting together|||
|20:25:00|151|93|60|I think I was moving quite a bit|||
|20:26:00|142|91|56||||
|20:38:00|145|94|67||||
|20:40:00|126|82|59|Well, let’s see what the average then is|||
|20:41:00|137|85|59||||
|20:44:00|144|85|59|138,4|That’s under 140|141,375|
|20:45:00|140|85|57|86,2||88,875|
|22:45:00|124|85|58|before sleep|||
|00:02:00|115|74|57||||
|01:00:00|126|73|61|arrh|||
|01:37:00|124|78|58||||
|02:54:00|113|73|63|arrh|||
|04:55:00|118|68|58|Relatively high all night, why? Sinus headache till ?8|||
|06:15:00|119|77|58||||
|07:43:00|118|77|66|Same, which then counts as low, after getting up, even swinging out of bed, blinds & bedstuff…|||
|08:42:00|159|83|65||||
|08:44:00|124|74|58|low pulse before eating|||
[/details]
[details=“1) Since Aug 9th BALANCING PEM VS. PPA: post exertional malaise () vs. post postural ache . Stiffness . TT 2:1 (moving 15%, talking 10%, counting 0%) ➔ 80%/2 after 2 games, then ➔ pretty suddenly, starting with one hit 70%/6 with PEM (), gardening/moving ➔ 80%/3 (), talking back down to 5’ ➔ 80%/3 , music 1’ ➔ 60%/5 . White lips60-80%? (). Exhaustibility “90%” and sleep , click for details:”]
[details=“EXHAUSTIBILITY today: “90%”. Changed on Aug 23rd: Energy was up to 18-20(-24)% (TT 5:1, workout possible) since June 21st 2023 (and new symptoms better) from new circadian rhythm, but kept going down to 10% (TT 0-2 games) from monthly triggers, see #3 Triggers. Today’s ENERGY profile moderately slow, with “12h rest”), 2h very slow, 2h slow, 0h medium/quick"]
[/details]
SLEEP (click for details): 8h25, up 6x (30'), all deep, nauseous sinus headache & nostrils since about 5 ✅, everything else OK ✅, but still 70%/2 (✅), ➔ getting up: 70%/2 (✅), don't know if it was the headache, sleeping too long, too high blood pressure at night or what else...
Sleep 22:40-7:35, Sum: 1h20+7h35-(30)’ = 8h55-30’ =
[/details]
2) Watching "monthly" TRIGGERS, esp. of exhaustibility. Excitement (= stress) ✅: Talking I think it was. Click for list...."
(1) JAB#3 (on Nov 7th 2022) caused MCAS / histamine problems like the first 2 till around July. Esp. ENERGY DOWN further to (10-)15-20% (max.), but more slow energy. Each jab -5%.
(2) Jan: TCM recommendations for a few weeks
(3) Feb: ~3% of levothyroxine pill Feb 24th till Mar 23rd: more energy, but lost appetite and weight and sleep, antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms (stopped cos causing nauseous sinus headaches & painfully dry mouth).
(4) Mar: inkling of Covid, negative, but cough, appetite, night sweats…
(5) Apr: cancer checking ending with weird onco,
(6) May 20th… 17 stress triggers, till end of May: 8-12%, seizures May-June every 10d.
June 21st: circadian rhythm Better to 18(-24)% a few days, but mostly back down to ~10%:
(7) July 19th-24th: 3 garden bird deaths
(8) July 31st-Aug 6th uro exam and methylene blue trial.
(9) Aug 9th… severe vertigo, checking, back to minimal blood meds.
Sep 12th: These have been stable for quite a time: Histamine/MCAS symptoms: Nauseous sinus burning headache: 0% , tongue burning: 10% day, 20% night . Watching “monthly” TRIGGERS (updated Aug 23rd 2023) that have brought up additional symptoms at least once a month and are continually bringing energy down from 20% to 10%.
3) DOCS: Last update Sep27th: Wife's GP will get me a cancer appt., ask about GI and recommend if special bloods should be done (by my cardio, cos she does my special ones). Sep 12th: VERTIGO/BP: Reduce BP spikes. ONCO/URO: No uro cancer. Click for details.
Still no other explanation for the “B symptoms” Feb/March (Mar 29th: night sweats, cough plus appetite & weight loss) so back to T4 + CoV. feedback from onco appt. Apr 24th is STILL pending.
4) UNDER CONTROL ✅ (attention necessary (✅)):
1) GI, pee, local pains, weather, dry mouth well under control: Details...
except GI: stools loose0% , appetite , pee pain: 0p1-2 , lower back unrest . Jaw: 2 new fillings June 23rd were enough, solved for the time being, but keep spaces free. Weather: SUN / WIND , dry mouth (day and) at night at least not hurting/sticky ().
2) Seizures and esophagus blocks fairly under control - click for details. Last SEIZURES: Sep 19th? (1). Aug 9th, vertigo day: (2). July 17th (2), Increase to 2-weekly in May-June was stress, histamine, and less GABA, before that monthly. Last ESOPHAGUS BLOCKS: Sep 25th: 15:15, but went thru, Sep 16th didn't! 11th. Aug 31st, 26th & 8th, July 23rd & 16th, May 31st, Apr 4th.
Last focal seizures: Sep 19th?? or so. Aug 9th: 13:42 & 15:40 (after vertigo). Aug 1st: 4-5x seizure-ish. July 25th: seizure-ish 3-4x. July 17th: 18:30 19:55 after thunderstorm. July 7th seizure-ish 4x. Increase in May-June was stress, histamine, and less GABA: Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Generally, mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. Block again from sweet potatoes maybe rushed by my phone alarm reminding me to eat? (Didn’t want to wait that long this time.) (Sep 25th: Sweet potato went down after 20-25’, not sure such a long wait with further eating is OK. But taking even more care with it on 26th was no problem. Also, taking a spoonful of omega 3 after the supps of the 2nd meal may have helped.) Sep 16th seemed scary. Sep 11th: unusually eating a peach, which I thought’d be easy, wasn’t tho. Aug 31st supps again. Aug 26th: drinking supps with buttermilk instead of almond milk, Aug 8th: carrot, then chocolate. July 23rd cos distracted by the Kami stress. July 16th I was concentrating on testing if hazelnuts increase my nicotinic acid flush with my 3rd meal, and disregarded a slight throat pressure, which went totally wrong, was the last straw for an esophagus block, so had to get it out, lots came out, incl. supps, and needed to wait quite a bit afterwards. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
SELF-TREATMENT & SUPPS optimal, stable, but necessary - NEW Sep 11th (started around 8th): Stopped eleuthero and reduced ginkgo to 2. Still NADH sometimes, lots of Ω3 (cos not enough from olive oil), plus passiflora, magnolia & 0.3g GABA at daytime instead of night. Aug 6th: 40 supps, 435€/m +20€/m cps. Last changes see before Aug 22nd. Next: LDN!
SELF-PHYSIO: Always OK, see before Aug 22nd what I now always do when needed. Next: jaw-joint?
Supps Aug 6th: 40 supps (was 42), costs 435€/m (was 470) +20€/m cps. Sep 27th: Starting around the 20th I brought ginkgo back up to 3, seems good, so I reckon the eleuthero was a problem. Sep 11th (started around 8th): Stopping eleuthero and reducing ginkgo to 2 is reducing BP. Sep 1st: NADH, passiflora, magnolia and more GABA to daytime. Last changes see before Aug 22nd next: theanine divided up into 2x0.1g, maybe LDN, probably not creatine, colostrum or ATP again. For details on the lists, with dosing batches by times and tubs see before Aug 22nd:
‘Research’ today: a BP longer drop after getting up and after eating isn’t that normal, both are compensated for, eating by constriction and faster heartbeat.
(I was wondering about a day where I had under 60 bpm upon awakening, and then higher upon eating.)
Orthostatic/postural hypotension: “You have orthostatic hypotension if your blood pressure drops more than 20 millimeters of mercury in systolic pressure or 10 millimeters of mercury in diastolic pressure within three minutes of standing up.” (But before it says there’s no number, it’s individual, so I’m confused.)
“When a person eats, their body redirects blood to the digestive tract to aid with digestion. This causes a temporary decrease in blood pressure elsewhere in the body. To compensate, blood vessels outside of the digestive tract constrict, causing the heart to beat faster and more forcefully. This helps maintain healthy blood pressure throughout the body. Some people experience a persistent drop in blood pressure after eating. This happens when the blood vessels outside of the digestive system do not constrict. Doctors refer to this condition as postprandial hypotension, or low blood pressure after eating. A person with high blood pressure is more likely to experience postprandial hypotension.” High blood pressure after eating: Is this normal?
Quality of life: 85%, “Feeling well”: 70-80% (so down a bit)
Lessons in self-care: -
Reasons to be cheerful: -
Simplified: -
Foggies: -
[details=“Development: Look before Aug 22nd for more details. Click for links to “biggest successes” (after June 18th 2023), “summary” (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting”]
Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023
- 8 weeks after jab#3: stabilized
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My food 2023.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
[/details]