2023-10-13 Friday - recovery?: stable, but limited, always TT 4:0, but no chance of more games. RR/supp changes?: seems good, sometimes I check. VLDN?: Wondered whether to increase already, but for ease of checking I’ll best double from Monday.
What … worked / went wrong … today:
Glad of a work break made me revenge procrastinate and do gardening and garden research… but apart from that OK.
Habit encouragement… :
Time (= stress) management: Blog earlier 
, forums less , jump off hamster wheels - except garden stuff going well into the night, so no ignored screen curfew.
Self-treatments: Jaw , wall sits - I think, balancing - while cycling isn’t as effective, supps by 15:00: (bullk), back by 16:00: later , capsules by 17:00 - ordered.
How was I today?: Feeling 75-85%-ish (), energy today (, relatively), sleep Thursday night , sleep Friday night .
Today working mainly on … time management , better self-treatments , RR , energy, esp. via VLDN .
VLDN
Dosage: Oct 1st ~0.07mg, 1st 21:00: 2nd 22:30, 3rd on ~20:00, 8th 14:20 0.125mg, 9th-13th 10:00 0.125mg.
VLDN 
for:
- Energy up from 10% to “18”%: for activities - always limited in amount, walking: up from 5’ to 30’ - should have been OK, listening: up from 3’ to 15’ - music still difficult, doesn’t get thru to me, listening and talking too is always over my limit, even when I do it, like today during evening table tennis, stiffness - still good, shorter recovery times - even after talking much too much the recovery time was fairly quick and not ‘bad’, all constantly . But
: still yellow/white face and black eye rims. - Pain: overall Ache - still better, local: lower back - still no problem at all, less - still nothing new, hangover - still none now I’ve reduced overdoing it.
- Muscles: eyes = vision () - bit more on and off, but depends on the light and the sun was hardly out and I’m reducing indoor light, bladder: pee frequency & urge (/
) - urge still a bit too much, except at night. - Sleep: feel better in breaks, waking up better, more awake () - but maybe ruined by too sleep late and sleep breaks procrastinating long. Importantly, sleep breaks are still less now I’ve switched (V)LDN to mornings, despite procrastinating and pretty much completely ignoring the screen curfew to do my garden stuff. That would mean taking it in the evenings seems to have caused more sleep breaks.
VLDN
Nothing any more, only as ever needing to “curb my enthusiasm”.
How to continue: Increased dose, but avoiding strain by only using half the extra energy I have - still definitely necessary. Mornings better? - definitely.
RR: HIGH BP PERIODS around 4h/wk, night dip 30%, sometimes 10%, research? ❌ measuring? ❌ actively trying to decrease? ❌. Need a break from this for a few days, best start again before the cardio appt. on the 23rd.
1) Since VLDN Oct 1st: PEM VS. PPA: post exertional malaise when I try to use the extra energy (✅), hardly post postural ache ✅. Stiffness ✅. TT 3:1, 3:0 (moving 30%, talking 40%, counting 0%) ➔ 80%/3-4 (✅, 4 ❌ from the talking), gardening/moving ➔ 80%/3 (✅), talking 15' ➔ 80%/4 ❌, music 5' ➔ 60%/4-5 ❌ (I keep trying, wanting to like it). White lips80% (❌). Exhaustibility "82%" ✅ and sleep ✅, click for details:
EXHAUSTIBILITY today: “82%". Changed on Aug 23rd: Energy was up to 18-20(-24)% (TT 5:1, workout possible) since June 21st 2023 (and new symptoms better) from new circadian rhythm, but kept going down to 10% (TT 0-2 games) from monthly triggers, see #3 Triggers. Today's ENERGY profile moderately slow, with "6h rest"), 2h very slow, 6h slow, 1h30 medium, 30' quick
SLEEP (click for details): 7h17, up 4x (1h37), all less deep, but fairly, mainly brain chattering about garden stuff, cos I've been going overboard on it after the desire building up, and fearing the autumn will change too much for me to identify what I haven't yet managed to. (❌, but 'my fault', so ✅), nostrils a bit annoying 10-20%, air moist? cos panes misted up in the morning as it's colder outside, everything else OK ✅, 80%/2 ✅, ➔ getting up: 80%/2 ✅.
Sleep 23:10-
0:30 55’ 6
3:10 20’ fl15’
4:55 4’
6:26 18’ fl15’ poo
-8:04
Sum: 0h50+8h04-(55+20+4+18=)97’ = 8h54-1h37 =
2) Watching "monthly" TRIGGERS, esp. of exhaustibility. Excitement (= stress) ✅: work a bit, then garden a lot, which is nice, but going overboard isn't that good, altho it fulfils desire which increases satisfaction, so there! Click for list, incl. Sept summary added Oct 2nd...."
(1) JAB#3 (on Nov 7th 2022) caused MCAS / histamine problems like the first 2 till around July. Esp. ENERGY DOWN further to (10-)15-20% (max.), but more slow energy. Each jab -5%.
Made me stop cryotherapy/acupressure and acupuncture from Dec on!
(2) Jan: TCM recommendations for a few weeks
(3) Feb: ~3% of levothyroxine (T4) pill Feb 24th till Mar 23rd: more energy, but lost appetite and weight and sleep, antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms (stopped cos causing nauseous sinus headaches & painfully dry mouth).
(4) Mar: inkling of Covid, negative, but cough, appetite, night sweats…
(5) Apr: cancer checking ending with weird onco,
(6) May 20th… 17 stress triggers, till end of May: 8-12%, seizures May-June every 10d.
June 21st: circadian rhythm Better to 18(-24)% a few days, but mostly back down to ~10%:
(7) July 19th-24th: 3 garden bird deaths
(8) July 31st-Aug 6th uro exam and methylene blue trial.
(9) Aug 9th… severe vertigo, checking, back to minimal blood meds.
Sep 12th: These have been stable for quite a time: Histamine/MCAS symptoms: Nauseous sinus burning headache: 0% , tongue burning: 10% day, 20% night . Watching “monthly” TRIGGERS (updated Aug 23rd 2023) that have brought up additional symptoms at least once a month and are continually bringing energy down from 20% to 10%.
(10) Sept 4th bladder exam 3 days of ‘screaming’ while peeing (again 18th: seldom stabs few days), then a UTI and recurred for 3 days each, 22nd bladder pain and “2nd” UTI. 12th: CoV-type symptoms: fluey Ache, cough (recurred 18th a few days), belly discomfort, feverish, temperature till 16th, up 11x that first night, moving difficult. From before 20th: binge work stress. 21st: feverish, histaminey, 22nd: severe pain in right upper abdomen for a few days. 24th: felt ‘ill’ and realized I couldn’t hear music any more. (27th: New GP OK.). 18th: stopped CVD meds again for the time being. Oct 1st starting LDN…
3) DOCS: Oct 12th: Garden research made me not want to do the doc phone calls. Last update Oct 11th: GP#2's office checked back about onco, GI & bloods. Oct 9th: Pulled cardio appt on 23rd forward for bloods. Oct 1st/2nd: Get uro for lump since bladder exam, get dentist for filling fallen out again on 30th, get liver bloods checked by cardio on 23rd, cos wife says my face is a bit yellow (B3 risk). Sep27th: Wife's GP will get me a cancer appt., ask about GI and recommend if special bloods should be done (by my cardio, cos she does my special ones). Sep 12th: VERTIGO/BP: Reduce BP spikes. ONCO/URO: No uro cancer. Click for details.
Still no other explanation for the “B symptoms” Feb/March (Mar 29th: night sweats, cough plus appetite & weight loss) so back to T4 + CoV. feedback from onco appt. Apr 24th is STILL pending.
4) UNDER CONTROL ✅ (attention necessary (✅)) - swishing with salt water now helps dry mouth ✅, pee urge sometimes stronger, sometimes frequency, has that got to do with GABA?:
1) GI, pee, local pains, weather, dry mouth well under control: Details...
except GI: stools loose0% , appetite , pee pain: 0p1-2 , lower back unrest . Jaw: 2 new fillings June 23rd were enough, solved for the time being, but keep spaces free. Weather: SUN / WIND , dry mouth (day and) at night at least not hurting/sticky ().
2) Seizures and esophagus blocks fairly under control - click for details. Last SEIZURES: 1x/m - Sep 19th? (1). Aug 9th, vertigo day: (2). July 17th (2), Increase to 2-weekly in May-June was stress, histamine, and less GABA, before that monthly. Last ESOPHAGUS BLOCKS: 1-3x/m - Sep 30th, (25th,) 16th, 11th. Aug 31st, 26th & 8th, July 23rd & 16th, May 31st, Apr 4th.
Last focal seizures: Sep 19th?? Aug 9th: 13:42 & 15:40 (after vertigo). Aug 1st: 4-5x seizure-ish. July 25th: seizure-ish 3-4x. July 17th: 18:30 19:55 after thunderstorm. July 7th seizure-ish 4x. Increase in May-June was stress, histamine, and less GABA: Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: 1-3x/m. Generally, mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. Sep 30th: sweet potato. (Sep 25th: Sweet potato went down after 20-25’, not sure such a long wait with further eating is OK. But taking even more care with it on 26th was no problem. Also, taking a spoonful of omega 3 after the supps of the 2nd meal may have helped.) Sep 16th seemed scary. Sep 11th: unusually eating a peach, which I thought’d be easy, wasn’t tho. Aug 31st supps again. Aug 26th: drinking supps with buttermilk instead of almond milk, Aug 8th: carrot, then chocolate. July 23rd cos distracted by the Kami stress. July 16th I was concentrating on testing if hazelnuts increase my nicotinic acid flush with my 3rd meal, and disregarded a slight throat pressure, which went totally wrong, was the last straw for an esophagus block, so had to get it out, lots came out, incl. supps, and needed to wait quite a bit afterwards. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
SELF-TREATMENT & SUPPS optimal, stable, but necessary - NEW Oct 1st: LDN! - starting 0.07mg in the evenings, 9th: 1.25mg in the mornings. Aug 6th: 40 supps, 435€/m +20€/m cps. Last changes see before Aug 22nd.
SELF-PHYSIO: Always OK, see before Aug 22nd what I now always do when needed. Jaw-joint end of Sept.
Supps Aug 6th: 40 supps (was 42), costs 435€/m (was 470) +20€/m cps. Sep 27th: Starting around the 20th I brought ginkgo back up to 3, seems good, so I reckon the eleuthero was a problem. Sep 11th (started around 8th): Stopping eleuthero and reducing ginkgo to 2 is reducing BP. Sep 1st: NADH, passiflora, magnolia and more GABA to daytime. Last changes see before Aug 22nd next: theanine divided up into 2x0.1g, probably not creatine, colostrum or ATP again. For details on the lists, with dosing batches by times and tubs see before Aug 22nd:
‘Research’ today
Only garden ‘research’ tho… 
Partly cos my wife had switched to guest user on my laptop cos she couldn’t find ‘hers’, which caused having to reset which made me lose the health research tabs like BP/RR…
Quality of life: 85%
Lessons in self-care:
It’s time to do what I want after all that work. But I remember last time I didn’t do enough which later caused a few slight problems.
Reasons to be cheerful:
So satisfactory to do some garden stuff again and forget everything else!
Simplified: -
Foggies: -
Development: Look before Aug 22nd for more details. Click for links to "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting
Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023