2023-10-18 Wednesday - recovery?: Not complete from yesterday, but quickly better. RR/supp changes?: First measurements again confirm it’s usually OK. LDN?: up to 0.25mg from 16th on. How weird that I can play table tennis with full paddle & ball control constantly due to the LDN, but still only a limited time, and still only with restriction of movement and talking. I think that ‘control’ belongs to the LDN muscle effect, #3.
What … worked / went wrong … today:
Stable. 2 focal seizures I can’t explain unless I prepared less GABA pills without realizing, but only once a month is good.
Habit encouragement… :
Time (= stress) management: Blog earlier 
, forums less , jump off hamster wheels .
Self-treatments: Wall sits - as horse stance, balancing - sometimes difficult, often easy.
How was I today?: Feeling 75-85%-ish (), energy today (, relatively), sleep Tuesday night , sleep Wednesday night - maybe too good and needs to be less.
Today working mainly on … time management , better self-treatments , RR a bit, energy, esp. via VLDN .
VLDN
Dosage: Oct 1st ~0.07mg evenings, 8th 14:20 0.125mg, 9th-15th 10:00 0.125mg. 16th- 10:00 0.25mg.
VLDN 
for:
- Energy up from 10% to 18%: for activities - slowmo, walking: up from 5’ to 30’ - yep, listening: up from 3’ to 15’ () - depends/improving, stiffness - yep, shorter recovery times - definitely - not much more than one day for the dentist, all constantly . But
: still yellow/white face, black eye rims and white lips. - Pain: overall Ache - same, local: lower back - same, less - same / watching, hangover - no.
- Muscles: eyes = vision (), bladder: pee frequency & urge () - better,
constantly full paddle & ball control . - Sleep (taking it in the mornings): feel better in breaks, waking up better, more awake - .
Oct 16th on: night breaks (GI , dreams ), hangover feeling .
How to continue: I was aiming to keep 0.25mg for a week watching side effects, but actually they’ve totally gone again inside of 3 days, so I’ll jump to 0.5mg sooner.
RR: HIGH BP PERIODS around 4h/wk, night dip 30%, sometimes 10%, research? ❌ measuring? (✅) actively trying to decrease? (✅) - slomo.
1) Since VLDN Oct 1st: PEM VS. PPA: post exertional malaise when I try to use the extra energy (✅), hardly post postural ache ✅. Stiffness ✅. TT 3:1 and 2:0 (moving 20%, talking 20%, counting 0%) ➔ 90%/2, but when I got caught up in losing it went up to /3 (✅), gardening/moving ➔ 80%/3 (✅), talking 15' ➔ 80%/3 ❌ - improving, music 10' ➔ 70%/3 ❌ - improving. White lips 80% (❌). Exhaustibility "82%" ✅ and sleep ✅, click for details:
EXHAUSTIBILITY today: “82%". Changed on Aug 23rd: Energy was up to 18-20(-24)% (TT 5:1, workout possible) since June 21st 2023 (and new symptoms better) from new circadian rhythm, but kept going down to 10% (TT 0-2 games) from monthly triggers, see #3 Triggers. Today's ENERGY profile moderately slow, with "6h rest"), 2h very slow, 2h slow, 5h30 medium, 30' quick
SLEEP (click for details): 8h48, up 4x (59'), all deep, except at 4 for maybe 15' ✅. The 20% nauseous sinus headache when waking up the last times might again be cos of sleeping too long. Next: try sleeping less. ✅, everything else OK ✅, 80-70%/2 ✅, ➔ getting up: 80%/2 ✅. I do feel a like too tired at night, is that the LDN?
Sleep 22:30-
23:40 5’
1:50 20’ (outside for slug photo)
3:30 30’ 6. 60%
6:50 80% throat 10% 4’ nauseous 10% stomach 10%
-8:17 nostrils & nauseous sinus headache 20%.
Sum: 1h30+8h17-(5+20+30+4=)59’ = 9h47-59’ =
2) Watching "monthly" TRIGGERS, esp. of exhaustibility. Excitement (= stress) ✅: Getting more sensitive that slight opposition of cars etc. strains me quite a bit, working on that. Click for list, incl. Sept summary added Oct 2nd...."
(1) JAB#3 (on Nov 7th 2022) caused MCAS / histamine problems like the first 2 till around July. Esp. ENERGY DOWN further to (10-)15-20% (max.), but more slow energy. Each jab -5%.
Made me stop cryotherapy/acupressure and acupuncture from Dec on!
(2) Jan: TCM recommendations for a few weeks
(3) Feb: ~3% of levothyroxine (T4) pill Feb 24th till Mar 23rd: more energy, but lost appetite and weight and sleep, antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms (stopped cos causing nauseous sinus headaches & painfully dry mouth).
(4) Mar: inkling of Covid, negative, but cough, appetite, night sweats…
(5) Apr: cancer checking ending with weird onco,
(6) May 20th… 17 stress triggers, till end of May: 8-12%, seizures May-June every 10d.
June 21st: circadian rhythm Better to 18(-24)% a few days, but mostly back down to ~10%:
(7) July 19th-24th: 3 garden bird deaths
(8) July 31st-Aug 6th uro exam and methylene blue trial.
(9) Aug 9th… severe vertigo, checking, back to minimal blood meds.
Sep 12th: These have been stable for quite a time: Histamine/MCAS symptoms: Nauseous sinus burning headache: 0% , tongue burning: 10% day, 20% night . Watching “monthly” TRIGGERS (updated Aug 23rd 2023) that have brought up additional symptoms at least once a month and are continually bringing energy down from 20% to 10%.
(10) Sept 4th bladder exam 3 days of ‘screaming’ while peeing (again 18th: seldom stabs few days), then a UTI and recurred for 3 days each, 22nd bladder pain and “2nd” UTI. 12th: CoV-type symptoms: fluey Ache, cough (recurred 18th a few days), belly discomfort, feverish, temperature till 16th, up 11x that first night, moving difficult. From before 20th: binge work stress. 21st: feverish, histaminey, 22nd: severe pain in right upper abdomen for a few days. 24th: felt ‘ill’ and realized I couldn’t hear music any more. (27th: New GP OK.). 18th: stopped CVD meds again for the time being.
Oct: 1st VLDN 0.07mg, 9th 0.125mg, 16th 0.25mg. 17th: Complex filling. Listening 15’ to very selected music improving.
3) DOCS: Last update (Oct 18th: Got a uro appt. for the 8th.) Oct 17th: Tooth filling had to be done much more complex, so x-ray, then 30'(?), ending with gagging. Oct 11th: GP#2's office checked back about onco, GI & bloods. Oct 9th: Pulled cardio appt on 23rd forward for bloods. Oct 1st/2nd: Get uro for lump since bladder exam, get dentist for filling fallen out again on 30th, get liver bloods checked by cardio on 23rd, cos wife says my face is a bit yellow (B3 risk). Sep27th: Wife's GP will get me a cancer appt., ask about GI and recommend if special bloods should be done (by my cardio, cos she does my special ones). Sep 12th: VERTIGO/BP: Reduce BP spikes. ONCO/URO: No uro cancer. Click for details.
Still no other explanation for the “B symptoms” Feb/March (Mar 29th: night sweats, cough plus appetite & weight loss) so back to T4 + CoV. feedback from onco appt. Apr 24th is STILL pending.
4) UNDER CONTROL ✅ (attention necessary (✅)) - at night I had a few small pangs in my left hand tendons, so will work on those too, as well as my jaw joint dent:
1) GI, pee, local pains, weather, dry mouth well under control: Details...
except GI: stools loose0% , appetite , pee pain: 0p1-2 , lower back unrest . Jaw: 2 new fillings June 23rd were enough, solved for the time being, but keep spaces free. Weather: SUN / WIND , dry mouth (day and) at night at least not hurting/sticky (
).
2) Seizures and esophagus blocks fairly under control - click for details. Last SEIZURES: 1x/m - Oct 18th. Sep 19th? (1). Aug 9th, vertigo day: (2). July 17th (2), Increase to 2-weekly in May-June was stress, histamine, and less GABA, before that monthly. Last ESOPHAGUS BLOCKS: 1-3x/m - Sep 30th, (25th,) 16th, 11th. Aug 31st, 26th & 8th, July 23rd & 16th, May 31st, Apr 4th.
Last focal seizures: Oct 18th 17:50 (going on to busy street) & 20:15 (emotional music that could reach me). Sep 19th?? Aug 9th: 13:42 & 15:40 (after vertigo). Aug 1st: 4-5x seizure-ish. July 25th: seizure-ish 3-4x. July 17th: 18:30 19:55 after thunderstorm. July 7th seizure-ish 4x. Increase in May-June was stress, histamine, and less GABA: Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: 1-3x/m. Generally, mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. Sep 30th: sweet potato. (Sep 25th: Sweet potato went down after 20-25’, not sure such a long wait with further eating is OK. But taking even more care with it on 26th was no problem. Also, taking a spoonful of omega 3 after the supps of the 2nd meal may have helped.) Sep 16th seemed scary. Sep 11th: unusually eating a peach, which I thought’d be easy, wasn’t tho. Aug 31st supps again. Aug 26th: drinking supps with buttermilk instead of almond milk, Aug 8th: carrot, then chocolate. July 23rd cos distracted by the Kami stress. July 16th I was concentrating on testing if hazelnuts increase my nicotinic acid flush with my 3rd meal, and disregarded a slight throat pressure, which went totally wrong, was the last straw for an esophagus block, so had to get it out, lots came out, incl. supps, and needed to wait quite a bit afterwards. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
SELF-TREATMENT & SUPPS optimal, stable, but necessary - NEW Oct 16th: Silymarin 2x.5g now, LDN! - starting 0.07mg in the evenings, 9th: 1.25mg in the mornings, 16th: LDN 0.25mg, mornings. Aug 6th: 40 supps, 435€/m +20€/m cps. Last changes see before Aug 22nd.
SELF-PHYSIO: Always OK, see before Aug 22nd what I now always do when needed. Jaw-joint end of Sept.
Supps Aug 6th: 40 supps (was 42), costs 435€/m (was 470) +20€/m cps. 16th: Silymarin 2x.5g now, LDN 0.25mg. Sep 27th: Starting around the 20th I brought ginkgo back up to 3, seems good, so I reckon the eleuthero was a problem. Sep 11th (started around 8th): Stopping eleuthero and reducing ginkgo to 2 is reducing BP. Sep 1st: NADH, passiflora, magnolia and more GABA to daytime. Last changes see before Aug 22nd next: theanine divided up into 2x0.1g, probably not creatine, colostrum or ATP again. For details on the lists, with dosing batches by times and tubs see before Aug 22nd:
No ‘research’ today
Quality of life: 85%
Lessons in self-care:
When I’d’ve had to manouevre past a car coming towards me it caused high strain, so very quickly I went to the side.
Reasons to be cheerful:
a) Plant life:
aa) I’m considering writing down the list of wild plants in front of our house for a bit of education, cos some people do ask “why”. Seems over the top tho.
b) Bird life:
ba) A green woodpecker is around and once flew directly over the garden shouting so loudly startling, as well as probably startled.
c) Animal life:
ca) bank vole with his big ears and eyes greeted me perkily out of the hole of the cardboard bird food box and I could film him at heart’s content. Bit like Tom’s Jerry…
cb) outside at 2 for slug photo on the egg I broke, only 1 Spanish slug tho, not tiger or black-keel like I was hoping. But “the website” where I asked what to do with the slug eggs said if I only have 3 Spanish slugs and praps some others too, in doubt for the accused, leave the eggs hidden. But I’ve already brought them out cos of the bricks they were in that I needed for my stone garden, I’ll have a look
d) Plant, bird & animal life:
da) Putting out more guinea pig straw into the garden today as mulch was fun.
db) Got some fresh grass from outside for the guineas, they squeaked delightedly as soon as I came thru the door, they could apparently smell it cos it was fresh and wet.
e) Human life:
ea) Wife’s in a kind mood, that’s nice.
eb) Looking forward to colleague and friend coming tomorrow, let’s see if I can take more than 20’ of them…
ec) TT twice fun(ny) as ever.
f) Environment:
fa) I do love the fresh air, and am still always warm enough, although everyone’s complaining it’s cold, I think that’s just cos I’ve got full winter attire on, keep moving and am now watching out for changing wet shoes quicker.
fb) There are so many beautiful >100yo buildings around us, I aim to cherish them and that more and stop taking them for granted.
Simplified: -
Foggies: Lots of things fell down today, like the egg I’ve left out for hedgehog and slugs.
Development: Look before Aug 22nd for more details. Click for links to "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting
Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023