2023-10-23 Monday - recovery?: RR/supp changes?: Not enough I agree with my cardio, so back on candesartan at the lowest dose. LDN?: jumping up to 0.5mg from 20th on. Since the effects seem stable I may stay on 0.5mg for a while to see if the candesartan is doing anything good or bad.
What … worked / went wrong … today:
1st meal earlier off to a bad start due to bloods, so no wonder weight Tuesday morning down to 76.1kg
Slight headache and lots of dizziness during gardening Tuesday morning from re-starting the CVD meds.
Habit encouragement… :
Time (= stress) management: Blog earlier 
, forums less , jump off hamster wheels , 3rd meal 18:00-19:00 
, but 19:10 or so (), 1st meal 8:00-9:00 () - would have, except for bloods without having eaten.
Self-treatments: Horse stance , balancing .
How was I today?: Feeling 75-85%-ish (), energy today (, relatively), sleep Sunday night , sleep Monday night .
Today working mainly on … time management , better self-treatments , RR : cardio & then deciding to go back on candesartan, energy, esp. via LDN , getting weight back up from 77kg (Oct 22nd) by pulling 1st meal forward again : 77.6kg, Tuesday morning without supps etc. 76.1kg.
(V)LDN - added fine motor skills & available short term energy
Dosage: Oct 1st ~0.07mg evenings, 8th 14:20 0.125mg, 9th-15th 10:00 0.125mg. 16th-19th 10:00 0.25mg. 20th- 0.5mg
VLDN 
for:
- Energy up from 10% to 18%: for activities - , walking: up from 5’ to 30’ - dunno, listening: up from 3’ to 15’ () - deending, TT
fine motor skills and available short term energy, stiffness - , shorter recovery times - , all constantly . But 
: still yellow/white face, black eye rims and white lips. - Pain: overall Ache - OK-ish, local: lower back - 2-3 cold washes helped discomfort at night, less - better again, hangover - backlash from the walk not from the LDN.
- Muscles: eyes = vision () - OK-ish, bladder: pee frequency & urge () - OK-ish.
- Sleep (taking it in the mornings): feel better in breaks (), waking up better () - I never know when it’s time to get up, more awake () - OK-ish.
Nothing really since Oct 18th , except 20th: hangover 3h.
How to continue: Side effects of 0.25mg gone in 2-3 days, so watching how I go with jumping up to 0.5mg on 20th (and CVD meds from 23rd on).
RR: HIGH BP PERIODS around 4h/wk, night dip 30%, sometimes 10%, research? ❌ measuring? (✅) actively trying to decrease? (✅) - slomo. Deleting this for a month after today's cardio visit and deciding to take the CVD meds, then measuring again.
1) Since VLDN Oct 1st: PEM VS. PPA: post exertional malaise when I try to use the extra energy (✅), hardly post postural ache ✅. Stiffness ✅. no TT cos mates not there, gardening/moving ➔ 80%/3 (✅), talking 15' ➔ 80%/3 ❌, music 5' ➔ 70%/4 ❌. White lips 80% (❌). Exhaustibility "82%" ✅ and sleep ✅, click for details:
EXHAUSTIBILITY today: “82%". Changed on Aug 23rd: Energy was up to 18-20(-24)% (TT 5:1, workout possible) since June 21st 2023 (and new symptoms better) from new circadian rhythm, but kept going down to 10% (TT 0-2 games) from monthly triggers, see #3 Triggers. Today's ENERGY profile moderately slow, with "6h rest", 2h very slow, 2h slow, 5h30 medium, 30' quick
SLEEP (click for details): 8h22, up 5x (52'), all deep. ✅, everything else OK ✅, 80%/2 ✅, ➔ getting up: 70%/2 ✅. (slight headache, maybe BP med.)
Sleep 22:05
23:20 5’
0:25 4’
1:15 30’ fl25’
3:20 10’
5:30 3’
-7:19
Sum: 1h55+7h19-(5+4+30+10+3=)52’ = 9h14-52’ =
2) Watching "monthly" TRIGGERS, esp. of exhaustibility. 1-2 days recovery from complex filling on 17th. Excitement (= strain rather than stress) ✅?: Click for list, incl. Sept summary added Oct 2nd...."
(1) JAB#3 (on Nov 7th 2022) caused MCAS / histamine problems like the first 2 till around July. Esp. ENERGY DOWN further to (10-)15-20% (max.), but more slow energy. Each jab -5%.
Made me stop cryotherapy/acupressure and acupuncture from Dec on!
(2) Jan: TCM recommendations for a few weeks
(3) Feb: ~3% of levothyroxine (T4) pill Feb 24th till Mar 23rd: more energy, but lost appetite and weight and sleep, antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms (stopped cos causing nauseous sinus headaches & painfully dry mouth).
(4) Mar: inkling of Covid, negative, but cough, appetite, night sweats…
(5) Apr: cancer checking ending with weird onco,
(6) May 20th… 17 stress triggers, till end of May: 8-12%, seizures May-June every 10d.
June 21st: circadian rhythm Better to 18(-24)% a few days, but mostly back down to ~10%:
(7) July 19th-24th: 3 garden bird deaths
(8) July 31st-Aug 6th uro exam and methylene blue trial.
(9) Aug 9th… severe vertigo, checking, back to minimal blood meds.
Summary (Sep 12th): These have been stable for quite a time: Histamine/MCAS symptoms: Nauseous sinus burning headache: 0% , tongue burning: 10% day, 20% night . Watching “monthly” TRIGGERS (updated Aug 23rd 2023) that have brought up additional symptoms at least once a month and are continually bringing energy down from 20% to 10%.
(10) Sept 4th bladder exam 3 days of ‘screaming’ while peeing (again 18th: seldom stabs few days), then a UTI and recurred for 3 days each, 22nd bladder pain and “2nd” UTI. 12th: CoV-type symptoms: fluey Ache, cough (recurred 18th a few days), belly discomfort, feverish, temperature till 16th, up 11x that first night, moving difficult. From before 20th: binge work stress. 21st: feverish, histaminey, 22nd: severe pain in right upper abdomen for a few days. 24th: felt ‘ill’ and realized I couldn’t hear music any more. (27th: New GP OK.). 18th: stopped CVD meds again for the time being.
Oct: 1st VLDN 0.07mg, 9th 0.125mg, 16th 0.25mg. 17th: Complex filling. Listening 15’ to very selected music improving. 20th: LDN 0.5mg, 23rd: back to candesartan 4mg, atorvatastin 20mg, ezetimib 10mg.
3) DOCS: Last update Oct 23rd: Cardio took many bloods like I asked and convinced me to re-start the CVD-meds. Oct 17th: Complex 30' tooth filling. Oct 11th: GP#2's office checked back about onco, GI & bloods. Oct 9th: Pulled cardio appt on 23rd forward for bloods. Oct 1st/2nd: Get uro for lump since bladder exam, get dentist for filling fallen out again on 30th, get liver bloods checked by cardio on 23rd, cos wife says my face is a bit yellow (B3 risk). Sep27th: Wife's GP will get me a cancer appt., ask about GI and recommend if special bloods should be done (by my cardio, cos she does my special ones). Sep 12th: VERTIGO/BP: Reduce BP spikes. ONCO/URO: No uro cancer. Click for details.
Oct 21st (see 20th) pee frequency / urine retention med: I used to drink only 1.5L/d before fibro, plus lots of yogurt and raw veggies. Whist I’m not sure when that changed, 80/d supp capsules and my increased thirst and dryness are the reasons for drinking 3L/d and so for peeing more, so no sense in taking meds to artificially reduce my peeing. (Pulling my 3rd meal supps and the 1L almond milk forwards to 19:00 didn’t help for sleep breaks, and thirst and headache at night).
Still no other explanation for the “B symptoms” Feb/March (Mar 29th: night sweats, cough plus appetite & weight loss) so back to T4 + CoV. feedback from onco appt. Apr 24th is STILL pending.
4) UNDER CONTROL ✅ (attention necessary (✅)):
1) GI, pee, local pains, weather, dry mouth well under control: Details...
except GI: stools loose0% , appetite , pee pain: 0p1-2 , lower back unrest . Jaw: 2 new fillings June 23rd were enough, solved for the time being, but keep spaces free. Weather: SUN / WIND , dry mouth (day and) at night at least not hurting/sticky ().
2) Seizures and esophagus blocks fairly under control - click for details. Last SEIZURES: 1x/m - Oct 18th/19th (3). Sep 19th? (1). Aug 9th, vertigo day: (2). July 17th (2), Increase to 2-weekly in May-June was stress, histamine, and less GABA, before that monthly. Last ESOPHAGUS BLOCKS: 1-3x/m - Oct 21st. Sep 30th, (25th,) 16th, 11th. Aug 31st, 26th & 8th, July 23rd & 16th, May 31st, Apr 4th.
Last focal seizures: Oct 18th 17:50 (going on to busy street) & 20:15 (emotional music that could reach me). 19th: 11:00 table tennis. Sep 19th?? Aug 9th: 13:42 & 15:40 (after vertigo). Aug 1st: 4-5x seizure-ish. July 25th: seizure-ish 3-4x. July 17th: 18:30 19:55 after thunderstorm. July 7th seizure-ish 4x. Increase in May-June was stress, histamine, and less GABA: Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: 1-3x/m. Generally, mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. Oct 21st: sweet potato. Sep 30th: sweet potato. (Sep 25th: Sweet potato went down after 20-25’.) Sep 16th seemed scary. Sep 11th: peach. Aug 31st supp. Aug 26th: supps with buttermilk, Aug 8th: carrot, then chocolate. July 23rd distracted. 16th distracted. (June 6th narrowly avoided.) May 31st carrot, distracted. Apr 4th: Carrot. Mar 26th supps. Mar 23rd: Parsnip. Mar 13th & Feb 26th: muesli after supps. Feb 20th: massager helped. Feb 5th: supps. Jan 19th: massager sometimes. Jan 17th: B supps and back to bed is OK atm. Jan 8th: supps. Jan 5th-7th small. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th.
SELF-TREATMENT & SUPPS optimal, stable, but necessary - NEW Oct 16th: Silymarin 2x.5g now, LDN! - starting 0.07mg 20:00, 9th on 10:00: 1.25mg, 16th on 10:00: LDN 0.25mg, 20th 10:00: 0.5mg. Aug 6th: 40 supps, 435€/m +20€/m cps. Last changes see before Aug 22nd.
SELF-PHYSIO: Always OK, see before Aug 22nd what I now always do when needed. Jaw-joint end of Sept.
Supps Aug 6th: 40 supps (was 42), costs 435€/m (was 470) +20€/m cps. 16th: Silymarin 2x.5g now, LDN 0.25mg. Sep 27th: Starting around the 20th I brought ginkgo back up to 3, seems good, so I reckon the eleuthero was a problem. Sep 11th (started around 8th): Stopping eleuthero and reducing ginkgo to 2 is reducing BP. Sep 1st: NADH, passiflora, magnolia and more GABA to daytime. Last changes see before Aug 22nd next: theanine divided up into 2x0.1g, probably not creatine, colostrum or ATP again. For details on the lists, with dosing batches by times and tubs see before Aug 22nd:
No ‘research’ today
Quality of life: 85%
Lessons in self-care:
I spose I need to be on the safe side with my CVD, but I hope the meds aren’t too taxing. Like my cardio said I can’t put myself in a golden cage, and there’s too many things curbing me from keeping lipids down (appetite) and blood pressure down (strain).
Reasons to be cheerful:
a) Plant life:
aa) Finally solved 2 (x3) mystery plants I’ve been following for months, now the tool is able to see they’re just early forms of something that’s already growing quite a bit (bellflower / campanula and margerite / leucanthemum).
ab) One or two further blossoms, like viper’s bugloss (Natternkopf).
ac) Going for the tulips, daffodils and “ornamental onion/allium” (Zierlauch) ‘Purple Rain’ (Prince 1984/ cocktail).
b) Bird life:
ba) Before dawn robin singing thrice, later too, regularly. Jackdaws swarming out. Nervous blackbird “police” tut-tutting a cat.
bb) Robin near me while (re-)planting bulbs etc.
c) Animal life:
ca) No one’s eating the mouse, I spose it’s better to put it under the bushes then, maybe next to our animal graves
d) Plant, bird & animal life:
e) Human life: Wife seems pleased she’s back to work to keep her mind off the problems of the world and the health problems of her, me and Harley.
f) Environment: Quite enjoying the weather.
g) Body: -
Simplified: -
Foggies: -
Development: Look before Aug 22nd for more details. Click for links to "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting
Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023