When I get these, I have to go to the hospital to get an infusion. My neurologist calls in the orders. I have had them up to two before I called him. It is pure hell. The infusion last around 3-4 hours once started.
My regular med Zomig does not work during these times. I get Botox for migraines and am having them daily now, but the Zomig is stopping it daily till next week’s shots.
I wonder if a diuretic would help. I know when I take Zomig 5mg that I have to go to the restroom more frequently than usual. It seems to take the extra fluid off. I can’t take them due to becoming dehydrated. I have an ileostomy. It may work.
I get Botox every 3 months. It is expensive. My part is around $700.
When I get migraines, I lose my vision, then have a slight headache. But I also have had cluster headaches that lasted 3 weeks, totally un-treatable, and no sleep for that whole time, landing me in the ER. Have they ever mentioned cluster headaches to you? According to my neurologist, they can be more debilitating that a migraine.
http://en.wikipedia.org/wiki/Cluster_headache
http://www.mayoclinic.com/health/cluster-headache/DS00487
Good luck...and I'm commiserating with you right now, it's been a couple weeks of a low-grade kind of headache, with some wicked flare-ups !
I guess Im confused why your neuoligist would run tests?? I have jad migraines for 22yrs and yes if you cant take the right medication to deswell the blood vessels they can last for weeks. Exspecially with a flare. Two weeks ago I ended up in the er cause I had run out of my meds they had to give me two demarol injections threw a iv. They also reperscribed my normal medication which is butabutal/apap/500/50. I do have to pay for that out of pocket but its alot cheaper than imitrex. You can see if your pcp would perscribe something for you that would be alot cheaper than a nero visit. Also some of the companies will give you free meds if you qualify. I know you have to contact the company themselvesvia their website. But heat and cold compreses to the front of your head rotating between the two. Also if you could give blood. I noticed that helped me cause there was a time in my life i refused to take meds. Sorry for rambling hope this helps.
I could try that I am kinda afraid to take anything that would Make me peek more I have an issue with my bladder but if it takes away the pain I will take the extra trips to the bathroom. I will let u know how it works
Yea, I have a bladder disease and take elmiron for intercystial cystitis. Yet, I do notice that the migraine medicine Zomig makes me pee more. I think it is relieving my body of excess fluid. I mentioned this to my sweet neuro who retired, and he said he had never heard it but it made sense.
It just makes you go more just for a while longer.
I am glad I don’t have clusters. Good luck my friend.
I am afraid to take that med for mine because it acts as a blood thinner and Tylenol doesn’t work at all. My Dr says I should take but I just don’t care. I have had intercystil for 9 years.
It is a very mild one.
Yes. . . they can last for more than a week. . . for me, stress, noice, light, makes it worse. . . now I take a cup of black tea and eat green apples at the onset. . . and a bag of ice - ice pack on the place it hurts the most. . . even a wet towel over your eyes - that helps me. . . I was diagnosed with migraines in 1989. . . I have struggled with them. . . lately I noticed that Zoloft might be giving me the migraines - every week. . . psychiatrist changed zoloft (graduallly) to cellexa (I have taken cellexa before). . . it seems it is helping a little so far - have to wait maybe a month! I PRAY YOU GET SOME RELIEF SOON. . . GENTLE HUGS TO ALL - IRMA
Today I have had a migraine since last Thursday. I called the pain clinic and got an appt for Friday. He would not give me any Butabital/APAP/Caffeine TA. Why won’t he give them to me? I am kinda ticked because the Nucynta does not help with migraines like it does with fibro.
My migraines totally changed with fibro. They used to be the classical right eye, aura, blurry vision, runny nose, runny eye, sinus pressure- you get the picture. Now they have moved to the back of my head to the greater occipital nerve. That is one reason I think I qualify for the Botox. They are terrible.
Hugs to you guys.
Boy, you have my utmost sympathy. I can't imagine suffering horrific headache pain for days on end. Why don't you beard your doctor, so to speak, and ask him why he won't prescribe the meds you mention?
It's very interesting that your headaches have been impacted by fibro. But I guess that since they involve pain and fibro involves dysfunctionall pain signals that the two could co-mingle.
If I were you, I'd try to find out about the Botox treatments ASAP. NO ONE deserves to suffer like this!
Thanks I just got back from the er. I feel so much better I am hoping a good nights sleep will finish the job.
Please tell me that you weren't in ER for a day and a half!!! I hope not!
At any rate, I'm GLAD you're feeling better and the doctors found something to ease your migraine pain. How awful! You'd have to be beyond truly ill to sit for hours in an ER. And then to sit there with a migraine for all of that time...my gosh, you deserve a medal for your patience and calm, Eeyoreluver!
So glad you’re better. Was really worried about you.
The only medication that works for me is Cambria. It’s a powder that you mix with water and drink at first sign of a migraine.
There is a coupon on the company website, just FYI http://www.cambiarx.com/
Going to the chiropractor and getting adjustments really helps. The doctor stretches my neck out as there is a little muscle at the base of the skull which becomes tight.
I hope you sleep well and continue to feel better!
xx
Sunny
I get the Botox treatments every three months. I don’t know.
thanks my dr cant give me anything. there is no med that i can take other than otc meds. before i got the hemiplegic migraines i used to be able to take triptans but not now. if mine egt as bad as this last one the er is the only place i can go. just anpther part of my wonderful life.
i got to the er about 6pm and was out around 10pm. it was horriable being there with all the lights and noise and i couldnt get comforable in the bed. i was given 4 different iv meds and 1 oral. i didnt have a choice but to just sit and wait at the er it was my only chance of getting better.
thank to everyone for all your support. i tried to respond to everyone but the migraine made looking at a screen impossiable at times.
Stephanie