I know this illness has no real cure right now. They aren’t even certain of the cause. But what I wouldn’t give for a week off of this pain train. Anyone else?
I would go to a theme park with my nephews. Go for a hike. Even a day shopping without having the “hangover” from doing too much. I think I would be in shock for a whole day of this happened.
Hi, yes I totally agree! I could use a vacation from pain! I would go shopping with my girls and go fishing with my husband and my boys. Do some yard work and do some baking. Ahhh to be without pain for even one day would be a dream come true!
Wow, wouldn’t that be amazing? It is so exhausting to be making the effort to work, clean, cook, do laundry, etc, etc, etc, and do it all while in pain that would put others without our illness in bed!
I would be happy to just enjoy my family, my husband, friends and be able to fully engage with them and not be fighting through the pain. To spontaneously be able to accept an invitation for a walk, out to lunch, or so many things without having to consider if I will be able to get through it. Or will I really pay for it the next day.
Yes, I like to indulge in that little fantasy, too. Now back to real life.
I once started a new medication. I had no pain for 3 days. I would not say it is a fantasy, more of a hope that it would happen again. If it happened to me, it could happen to others.
I do enjoy reading fantasy books, and escaping to an imaginary land. Those are fantasies. I think keeping a hope or dream alive is a challenge but it’s necessary to keep going.
Yep it would be a dream come true! To be able to go walking without paying for it afterwards. To be able to cook without needing help opening jars or cans. It would be awesome!
Sorry, I wasn’t trying to belittle your post in any way. I posted from where I am right now - not looking to the future and hoping for a cure.
I haven’t had the experience of a new medication giving me that sort of relief. I am happy for you that you have. And, yes, I am sure that it could help other people that way, too. As we all know, with this illness, any 2 people could get the same meds and react in totally different ways. But some will have the same reaction and get the relief that you spoke of.
Again, my apologies.
All of you are saying what I always think. I have fibromyalgia, and arthritis. I wish I could escape this constant pain, that seems like a dark cloud over my life. I never have any days without pain. I look forward to when I don’t have pain, when I’m not moving. At this point that is my goal. For the past month, my knees have been extremely painful to the point where I could barely walk. The pain let up yesterday evening. I went for a short walk today. This was the first time in over a year, that I was able to walk around my block. I will try to push myself because I know that exercise will make me feel better.
i had a TWO HOUR vacation from pain a couple weeks ago and it was wonderful. I told a friend and she laughed at me, said that sounds really foolish, are you pulling my leg? Later I sat here and cried. For ME that two hours was like two weeks to the beach for her. No one understands unless you have this disease. My daughter said last week, Mom, do you realize that when you talk to me, you complain all the time. I realize now that i DO say, It’s been hard to walk today or I’m sitting on ice right now. She has a family, a difficult job, finances, all those normal things, so I have a little post it note on my phone not to mention my pain. Thank goodness YOU guys are here. by the way, as a distraction, i have half a dozen orioles eating grape jelly at my feeder