i know that i have asked my dr to test me but i am not sure if they ever did. i know thats its common to have both. i have done some research on lupus cause my bestfriend has it. we have alot of the same health problems kinda weird. but at least we know how to help each other when we can. i will look into this and ask the drs about it. i thought it was weird to have it now 3 times in like 6 months.
ok lupus sounds just like fibro in many ways but as i read it describes many of the symptoms i have that do not go along with fibro. i have swelling alot mostly in my left ankle and foot. and now that the pleurisy seems to be coming back over and over. thanks for sending the link.
ok i did a quick search and found out the hospital i was born at is one of the top hospitals in Il. its not too far either maybe 20 min. away.
of cousre i have no gas in my car and every one is sleeping.
i am not sleeping i tried and no luck i just keep rolling from one side to the other. my head hurts so bad tears keep streaming from my eyes.
i feel like going to the hospital and telling them i am not leaving till they help. no giving me meds and sending me home but i am afraid that the dr may not like that. i am not sure how to get the treatment i need without being rude. i am so pissed right now and in so much pain i feel like i will go off on a dr who says they wont help or says they is nothing they can do. i am a very laid back person who never raises their voice but right now that is not me.
i feel like all this pain is changing me. and not for good either. i am not sure i know who to ask for what i need and make surei get it w/o screaming and yelling.
after 2 hours of not sleeping i took a walk at 1am. it was 33 degress. my friend told me it might help i figured it wouldnt hurt. after the 10 minutes or so walk all i was was very cold. it was very peacefull.
i was watching mystery dx and all i could think about was am i going to end up on this show. will it take years to figure out whats wrong with me. as u can imangine my depression is pretty bad right now. i dont have any strengh to care right now about fixing it. it takes all i have to just be awake and not beg someone to cut my head off. i think i have tried everything i know to help myself relax and get my mind off the pain but they r not working.
I’m so sorry you had to go out in the cold, to just try and see if it helps, my heart goes out to you, there have been times when I was so sick of the migraine… When someone asked what can I do, my ans was just shoot me in the head, " joking of course " but at the time … Ah not so sure… That was so long ago, and although I still get the occaisionally killer migraine, I have learned what triggers it and how to treat it, ( and for sure there have been times I have to go to ER, when all else fails,) I know you have tryed that, you need a good neurologist, rheumotologist and pain dr. My pain dr. Is a neurologist thank god I found him, can your primary dr. Give you something for sleep, anxiety, ??
I take both at night, you were waiting on a call, to see who takes your ins. Card ??? Did they call
you ? Keep calling them, I think Petunia has giving you some great info… Lupus ??? Good point ?
Hang on… Finding the right dr. Will help & hopefully treating that bronchitis will help ,
Hugs
thanks Dee. i am still trying to make sure i really do have the medical card. of course the person who was supposed to cal friday never did to tell me if i have it or not. i think stress caused this mirgaine. i do try to stay away from stress as much as possiable. but as we all know that is not possiable.
the pain from this miigraine not going away is causing stress that i have no way to control. i keep thinking somehow this migraine has to stop and come to an end. so far the pain just keeps getting worse.
i am really hoping that tomorrow i can get some answers. u r right i have thought i wish some one would just shoot me in the head.
ok this pain has to leave and fast. it seems that now sleep is happening less and less. and when i do sleep its not for long. i usually count on sleep as a way to escape my pain. i laid in my bed for two hours and didnt sleep at all.
i know i should just go back to the er and tell them about the continued pain and pressure in my head and hope they have a way to fix it. i was able to do ssome research and it seems like there is a possiablity i could have a migraine from too much spinal fluid. i am really scared about having another spinal tap after how the first one went. i guess thats why i havent gone back to the er even though i am ready to lose it from the pain.
Eeyorelover, if it's true that you have a headache from too much spinal fluid, you HAVE to go back to ER right away! I believe that's a deadly issue if you let it go. Can't the fluid just keep building and building? That would explain your massive pain and inability to sleep! I know you don't want to go but go to the good one that we discussed yesterday. This is not something you can mess with. Please go. And tell them exactly what you suspect. If nothing else, you'll get some pain meds and probably sleep a bit.
I have no idea the side effects of not having my migraine treated. What I know is all my parents seem to care about is having the house clean for when my grandparents come in two weeks. My step dad woke me at 8:30am I almost ripped his head off. I had texted my mom about not sleeping. I think I got about 3 hours then was forced to clean. I am going to try to explain to my parents what is happening with this migraine and hope they will help. I will let u know how it goes.
If my parents don’t see me awake they assume I have been sleeping. That’s why I texted my mom to let her know I was awake. Either she didn’t read it before I was woke up or she didn’t say anything to my step dad about the fact I was up all night.
We have 2 weeks to get the house and my room where my grandparents will be staying.
All I know is that between my best friend and my parents some one is about to get their head ripped off. Most likely my friend 1st cause she keeps asking me if I am better and when I say no she just says I need to push through the pain. Well those days r over this pain is taking over my life weather I want it to or not.
Nothing and I mean nothing can distract me from the pain anymore. I wish that wasn’t the case but I swear each day the pain gets just a little worse.
I still maintain that you must get to the good ER ASAP so you can try and get some meaningful treatment. I can talk and listen but at the end of the day, that's not getting you any better. You can't wait until it's too late and you drop dead from the cumulative effects of theheadache, etc. Please get yourself over to the good hospital. If you go tonight you might possibly wake up pain free tomorrow morning. Isn't that a good enuff motivator?
Yes I think it is I just got the mail and I now have money for gas. I am going to tell my step dad where I am going and I hope he understands. U r right if I get relief I will sleep and I know not sleeping has to b making this whole thing worse. I hate to say this but I hope they find something wrong and admit me so I can hopefully get rid of this pain once and for all. My birthday is the 19th and this would be a great present to be finally pain free at least from this horrible migraine or what ever this beast is.
Oh EeyoreLuver, I am so sorry he woke you up !!! He obviously has no idea what you are going through, is there anyway you can just go to that other hospital, if they treat you, & there is no one to drive you home, they can’t kick you out. I know you are in the process of trying to find new dr. To see you ? Is there any update on that ?
I just can’t imagine he woke you to clean… Thats un-believable !!! How can anyone be so heartless, & insensitive. He deserves anything you gave him … & if it were me it sure wouldn’t have been help to clean the house !!! Oh my , that just makes me so mad !
My family & friends know, if I’m sleeping don’t wake me unless the house is on fire !!
I always tought my kids, don’t wake me unless it’s very, very, important…
I’m so sorry
Hugs
Ok, Eeyore,sounds like you're gonna go to the well rated hospital. That sounds like a great plan! I hope that the next time we hear from you, you've slept and are feeling better.
Trust me I am ready to give my friend a piece of my mind. She has lupus and migraines but she acts like her pain and problems r worse then everyone else's. She thinks that cause she suffers from simular problems that she has all the answers. I swear if she tells me one more time to push threw I will snap. Thanks for caring and telling me how u feel. I hope u feel better soon yourself.
I am currently waiting in the er waiting room. The name of the hospital I am at is Central Dosage Hospital in Winfield Il. I do hope the next message I leave will be positive. I hope I will return with good news. Luv u all. Thanks for every thing.
Ok I so should have found out about this er earlier. The nurse and the Dr took a detailed history. The Dr most likely I will b admitted due to the complexity of my migraine. He is going to repeat the ct which I hope sheds light on what’s wrong. He is also going to do blood work and do what he can to help the pain. I will let u know the results.
i sure hope you're admitted, Eeyore. And i hope the tests give him some insight into what's going on with you. heck, I hope you even get a good night's sleep tonight. And then some pain relief and answers.
Oh my gosh girl am I glad you went back, I’m praying they come up with some ans. and at the least treat that migraine, you have been through soooo much !!
Take a slow deep breath