I've already been encouraged by being on this site. I don't feel like I'm crazy anymore. (at least not crazier than a normal person). I wanted to just throw all my symptoms out there and see if they are similar to anyone else's. Sometimes they are so random and weird. So here goes:
I have deep throbbing pain in odd areas like my forearms, front of my legs, the space between my thumb and forefinger, my elbows and the tops of my feet. I have pain other places but I can sort of understand knees, shoulders etc.
I have a stinging, numb feeling in certain toes and fingers. Sometimes my feet and toes will draw up in a spasm.
Oddly, my neck does not hurt very much which I hear as a common complaint for fibro
I can't remember anything! I call my kid's different names and I say things backwards. I've learned to just laugh about it with my family but it's embarrassing with other people.
I have lots of other crazy symptoms but I don't want to overwhelm everyone all at once. lol
I didn't start the neurotin yet and I already say words long, forget everything and I say words backwards and I also spell them that way when I type or write on paper. That bothers me. I also get the same throbbing, in the knuckle of both my thumbs, at where they attach to your palm. Always hurt, so do my wrists, stiff and sore all the time. Can't hold anything for more than few seconds and I'm pushing it if I hold on for more than a minute. I will drop what ever I am holding.
I get strange pains and cramps and sensations all over. I noticed that I get this itch that makes me thing some thing just crawled up my arm, leg, back, neck and stomach. And everywhere else. I go through so much aloe body lotion. It helps but the string itch, ( is what I call it ), comes and goes often.
I have burning pain in neck, jaw, back, arms, legs, ankles.
I have sharp pain in hands and upper arms.
Muscle spasms in back.
I've lost use of both of my arms before and about once a month my hands die on me.
I have muscle weakness in neck, arms and legs.
I also have body jerks, twitches, tingling in hands and feet, rashes on hands and feet that come and go on their own, fatigue, headaches, tinnitus, pain in bottom of feet from plantar fasciitis, shortness of breath, heart palpitations, rib pain, skin sensitivities, medication sensitivities...my god we might be here all day...lol.
I have strange symptoms too; at least according to my Dr. My feet tingle, spasms in my right foot that make my toes spread, tightness in my shins, discomfort in my groin area, pain in my back and neck, hands numb, squeezing sensation in my arms, overall muscle achiness (like I’ve done a major workout and haven’t)… Fatigue is a huge issue today. I sometimes have extreme itchiness on my arms and back. Brain fogs and word retrieval problems. I’m sure there’s more, but it’s taking too much effort to think this long…
I get a full body ache, it feels like an electric current of pain pulsing through my body. Sometimes it is so intense I can't sit, stand or lay down....I don't know what to do with myself, I usually take pain meds that make me sleepy and try to sleep it away. I was getting terrible cramps in my legs and feet at night, that has subsided since I started taking some magnesium calcium everyday. Extreme exhaustion that just comes out of no where. Very stiff and sore some mornings, or if I have been sitting or laying down for prolonged periods of time. I have the short term memory of gnat lol. I have to write everything done immediately or I won't remember. I have difficulty concentrating, no attention span anymore. This and my poor memory causes me so much stress, as I can't remember or focus on things at work. I also suffer from burning and itchy feet (could be diabetes related), and bouts of depression (first time I am admitting this).
I think this is great...the strange symptoms are what makes me feel like i'm crazy at times. knowing exactly what others are experieccing , in my opinion , is nothing other than helpful. HATS OFF TO YOU SINGINGTREES for sharing about the depression. You know my expirience with it now and theres nothing to be ashamed of. Talking about it takes a lot of weight off. I'm VERY PROUD OF YOU TOO:-)))
So here goes;
Burning and itchy feet. The pain in my feet travels up the middle and front of my legs. Shooting throbbing pain in my thighs. It feels like its running right through the bone from my hip to my knee. i have to change sides when I sleep or end up on my back.
Tingling in my fingers,mostly my pinky and ring finger. My fore arms and wrists ache and the pain runs right into the center of my palms. My hands fall asleep whenever I try to sleep and fingers hurt at every joint and stiffen up. the problems with my hands are a big problem when it comes to sleep. Hands are very weak.
Muscle twitches all the time,not painful,just disturbing. I feel a constant vibration in my body. sometimes all over but mostly hands and feet. there are times when I could swear that a bugs crawled on me or someones touched me.
The itch as referred to by someone. The feeling like I've baked out in the sun for a few days...and itchy at the same time. This doesn't happen often but when it does...theres nothing that helps.
Back pain in low back and accross the middle. sore ribs.
Ringing in the ears,vertigo. Sinus problems. cluster headaches. Sensitive to sound and light...this is a big problem. Makes me snappy as %#*#.
Saying things backwards.reading things backwards,searching for words...trouble speaking in full sentences. Short term memory loss. I write everything on the calendar.
I haven't heard anyone mention freezing/sweating...there seems to be know in between for me. I wash and change my underclothes at least twice a day.
Faintness when standing...I start to feel queezy when standing too long.
I have the freezing/sweating as well. I just talked to my PT about this yesterday because I've been sweating really bad these past couple of weeks. She said that she doesn't know how to help that but she thinks it might be the thalamus. I also have really bad night sweats.
I've been a member on here for a while now, but I only come on every now and again. Everytime I do come here though I can truly say I am comforted....comforted today that I am not alone or crazy. It's so hard being alive some days and constantly feeling like I'm going insane. I have so many symptoms - all of which every person here has described. They come and go and the intensity can vary day to day. When I get a flare up I swear I get every symptom all at once and it is incredibly overwhelming and depressing. I am on Cymbalta and lyrica, but I still get major flare ups. I have had a reduction in the overall pain making everyday life more tolerable, but I question how much the medicine actually helps. I kind of think that Fibro is just something that we all just have to deal with and no medication is every gonna truly help or solve it - at least not just yet. Perhaps the future will bring some new medical discovery. I hope and pray for this just as a I pray that there will be a cure for cancer and any other major disease. God help us all.