Yes it's like that here in the UK on the NHS, I can get free stockings etc so I'll check that out, thanks.
I think over here in UK they're known as nitrazepam, a form of night sedation, some of our GP's here are a bit sniffy about prescribing them long-term but I'll certainly look into it to see what my GP thinks.
Thanks xx
Hi Lucy! I'm a sufferer for over 20 years and have been taking REQUIP for my RLS all that time.It works for me as long as I take it way before I go to bed. I have a hard time with meds....they take a while to get to where they're going :) Through the years my dosage has had to be bumped up and I still have problems like yours....been told neuropathy is part of the problem because I have severe scoliosis but I notice a bump in activity when I am on my feet alot which is almost every day that I can stand. Then there's two or three days in between where I'm in bed.
I am so sorry for what's going on with you. Nights are no fun with this going on....3/4's of the reason I don't get any sleep and no sleep...... just flares us, fogs us, and generally is the root of all evil if you ask me.
I hope you are feeling better soon Lucy! PeacenLove Always~Laurel
Hi Kelly,
Yes it is legs and feet that suffer more, but like you say they get more use!!
If I get my Husband to rub cream on my feet, yes it would be nice and relaxing, but would it stop there!!!......enough said.....!!!!.........need to wait for painkillers to work first these days.......ha ha ha !!!!
Hi Lucy-
I was allergic to Gabapentin, but after a 6 month flare. Lyrica is known as a miracle drug for many people, but it has many side effects that scared me away. But after 6 months I tried it as a last resort, and unlike any other drugs that I take, it really was a miracle drug. It worked quickly, and all my symptoms went away. Hard to believe but true.
However, after 6 weeks I developed stomach pain and digestive problems, which I have had for years anyway, but they all came back. I stopped the Lyrica and had withdrawal problems, mostly digestive, but also sleeping, and sweating at night.
The main side effects for most people are: weight gain, light-headedness, and being in a fog all the time.
I did not gain weight (many people do though), but definitely was in a fog, but the pain all went away.
Just stay on a low dose if you try it, and read up on it first. It could work wonders, but it may come at another price.
Michael
Like the flu....perfect! And the spots thinking they were age spots...me too! On my legs they blister up and scab and I have terrible varicose veins...a time or two I have scratched them and had them bleed like a artery spurt. On my arms and hands as well but they just kinda get a hard crust flaky thing and then I'm left with a dark spot. I'm about covered with them but have never said anything to my new Dr cuz my old one said "age spots" but never saw them blistered up.
Thanks for backing up some things...all of you. Always~Laurel
This sounds like my mom's psoriasis Laurel.
Well I have that too on my elbows but this is different. One spot here and there...I don't know...I'll check into it further. Thanks Sheila! <3
I don’t think you have to do anything different Lucy. Fibromyalgia is like Chrons. It can just pop up anywhere, anytime. There is no rhyme or reason to this disease. Lucy, this is why we can’t commit to anything or get good rest.
I use peppermint oil and massage into the muscles. I just invested in a good adjustable massager. It hurts, but it helps in the long run.
Hi Lucy-
Tricky123 said it the best. It just comes on unannounced and eventually leaves the same way.
When it is here, you treat the symptoms the best way you know how based on past flareups.
When it leaves, you need to be proactive in trying to keep it away, with good sleeping, eating, and excercise habits, as well as any preventative medications that seem to work for you.
Hello Tricky
Do you use peppermint oil to massage your muscles when they are in pain?
You mentioned just investing in a good adjustable massager that helps, would you please tell me more about it such as name and price and where I might find it. I have never gone for massages. I did once because someone gave me a gift certificate, but I was in agony for days after because the girl just was not trained in fibro massaging technique. But if I could find a good one to have in my home where I could use it myself I would be happy. Of course it can't reach all necessary places like your back. Or can it?
Love and gentle hugs
Rachel
Rachel, this long handled massager with infrared soothing heat is almost the same as my sister's and she says its a life saver. She couldn't carry on working without it. It reaches her back and her legs when she can barely move. http://www.walmart.com/ip/HoMedics-Extendable-Percussion-Massager/1... . You can also find them online at eBay or other stores so it will be shipped to your house.
Blessings, Sheila
I can only put peppermint oil in places I can reach and massage in. My boyfriend massages in where I can’t-neck, shoulders, deep tissue back. It’s the deep tissue that hurts. I call it the good hurt.
You would not like my massager because I’m already sore from it just using it today, but I can’t stand allowing these muscles to tighten up. I’m so used to pain, I’d rather have the feeling of good pain than bad pain all the time.
Those massagers, I bought 2, were bought at Woot.com, and they have expired now. They run different specials for different days. Rachel hopefully Sheila’s link will help you.
That one massager went down my shoulder-blade.
Hello Michael,
Yes I think you're both right, it is starting to ease now, last night I had no leg/feet tingling at all, and my legs are not as achy this morning.
Perhaps it was a slight flare that thankfully hasn't lasted very long.
Many thanks for all your advice.
Love Lucy xx
Thanks Sheila.
Yes, I have major bouts of restless legs and arms actually. The arms bother me more than the legs and feet. I take baclofen because my Meds interact with regular RLS Meds. I am up for several hours after midnight if. Don’t take it. Showers really help to soothe.
Ask your doctor about using a magnesium supplement it is a common cure for problems concerning your legs it's a miricle in a botlle especially for RLS it is inexpensive and works virtually straight away research magnesium and you will see what I'm saying is well documented it will save you yearrs of pain, but you must be under a doctors care
I was just going to suggest psoriasis. Pustular psoriasis, I believe. And there are several different types of psoriasis and they present differently than one another.
I send you hugs too,Theresa. It's so distressing when one of us feels that crummy. You hd me when you said you can barely walk. And I'll bet you pushed yourself and walked a bunch anyway, bless your heart. And if not, well then I'm glad you didn't! Severe pain in one of the three you mention is BAD ENUFF. But all three? That's what I call a lousy, lousy day!
Hugs and sympathy,
Petunia
I think a lot of fibro people do this, Lucy. I know I do. Sometimes I just cover the stomach. Or the legs plus stomach. Or one leg. I dunno what this is about, thought it was normal but I think it's fibro related and to do with our body's inability to regulate it's own body temperature.