Aww thanks for the link Carol. I will have a good look now. Good point to the moving about. Will definitely take that advice as we can downward spiral a bit too quick if we don’t keep active. The weather here in south west England is fantastic at the mo so been getting plenty of fresh air too (although it’s a bit hard to breath some days). We’re so not used to this level of heat but loving it!
Yes I think I may ask my doc to refer to specialists for further information too as they should be quite helpful.
Thanks for all your pointers! I will go off to do some research now
Jo, we are all so pleased to hear from you again, and through your life is changing, I hope you will stay in touch! We all really miss you when you're gone!
Aww so sweet SK. Sorry for being a pain. I just zone in and out at times. Had a few major family health problems and have our hard days… But I had to come and give some good news to the best friends I could wish for. We understand each other like no others and I guess we’re lucky in that respect. The group on here is huge now isn’t it and I’ve missed out on meeting all the wonderful new people here. And lost touch for a bit with the friends I’ve grown to know.
I really hope everyone is staying well and will be visiting to see what others have to say and are experiencing.
I know, the site is growing by leaps and bounds! So many great new people, they're gonna love you just like the ones who have been around have come to know you! Don't know if Renie caught your good news yet or not, but she will be so happy for you! She is not feeling at all well! Wish she wasn't so far away from me!
I am 35 years young now lol and starting a little later in life but I had to wait for the right man to come along who will be the perfect father and husband. We’ll be getting married after the bum now lol and would be great to have some fibro friends there too. It’s a long way for most here as I live in England but we can always hope for a windfall.
I appreciate how hard it is for you right now having recently been diagnosed but it does get easier the longer you get to know the new you. I guess you probably have had many symptoms for a long time though although mine was pretty instantaneous due to car accident. Stay strong and don’t let the hard days get the better of your body or mind. It’s a learning process and it will take time to find the right medication and lifestyle that works for you.
Thanks for your kind words. I can tell you have the right mindset to live with this. You have the skills and gift to love and lead your life despite all obstacles. You’ve got a fantastic attitude Janie! Xx
Thanks Maria! I hope you are keeping well and send lots of fibro hugs. Always nice to have positive energy around! Trying not to get too excited as that is bit of a trigger as you probably know lol. Bit hard though sometimes… Xx
Aww bless her. What’s wrong? Send her some hugs for me if you “see” her first. It is a shame we can’t physically be there to give out the real hugs to our friends on here isn’t it? But I’m so thankful at least we are here. Thanks SK for everything. I bet everyone else loves you and all your helpfulness as much I do sweetie. I really hope you are keeping well as I know that you don’t have it easy yourself
I wondered a while back if I had EDS as someone mentioned its symptoms but mine are not that severe. It is still flipping painful though putting weight on my joints though don’t get me wrong lol.
I love that spoon theory too. So true isn’t it.
And right now I am loving my milkshakes and ice creams! Don’t know if it’s the hot weather though? Off my chocolate a bit though which is so not like me haha!
How is it for you though being an eds mom? You’re wisdom is still helpful to us with fibro especially as that is something I can’t appreciate just yet. I do worry about running out of spoons looking after a little one at time but will obviously readjust and have so much faith that I can so this. Having the perfect man of my dreams now really takes the weight off my mind though. You just have to take the opportunity to improve your lives and make it as “normal” as everyone else’s. we shouldn’t have to go without should we.
Thanks for your comments Susan. I really appreciate them xx
Folic acid seems to be a big one, I had to take it with Methotrexate, which I was given before Enbrel, by my Rheum. Then one of the gals here posted about a neutraceutical, that was giving great results to those with fibro and with autoimmune. I mentioned it to the Rheum, he was unfamiliar, so looked it up on his iphone, and told me it was just folic acid! He also told me it would be good for me!
Oh, Jo, congratulations to you!!! I had a feeling that you'd say this. It's wonderful news and you'll be such a good mum. You must be up on cloud nine!
But you might want to stay in touch on here in case symptoms get worse - hopefully NOT!
Again, all of my good wishes to you on this wonderful news! Thank you for telling us.
Yay girly! So good to hear from you! Yes I’m so happy atm. Makes a nice change from the stress the last few months too. Thought I was getting crohns disease lmao! Thanks for the kind words.
How are you doing? Simon says hi to everyone by the way. I’ve got a little touchpad coming in a couple days so he’ll be able to see the site better than on my phone.
Take good care of yourself! I am doing pretty good considering lack of Meds so far. Just the seagulls at 4am from having windows open in this heat… Grrrr lol. That didnt sound right. No they’re not coming in lol. Xx
Extra energy?! Yay!! I defo need some of that! And I will get some vitamins too although I have really good diet anyway. Anything that’s specific for pregnancy and definitely need to treat the fibro too or will get jealous lol. It’s really being grumpy without the medication but I’m too happy and positive at the mo to notice too much. Folic acid is quite a good one to start with I think isn’t it. I’ll have some shopping time tomorrow hopefully.