How to cope living with fibromyalgia

Continuing the discussion from Is anyone else having trouble with this web site? I cant get into chat and it says 2 members on line but doesnt show who.?:

To the forum, I’m knew at posting here so please bear with me. I was reading a post from another suffering with terrible pain medication side effects & what they’re now trying. I hope this will explain the pain & medication given now. OTC headache medicine & omeperzole. I was diagnosed 1999 with my fibromyalgia & chronic fatigue syndrome, which I’ve never experienced all the medication I’ve had to take over the 25 years of pain. I take about 25 prescriptions a month & 8 otc supplements a day. Omepezole is a proton pump inhibitor for herd or acid reflux I’ve taken for years now, otc generic Tylenol wasn’t enough to help me. One which is really a keeper for fibromyalgia is a muscle relaxer called methencarbomal aka Roboxin name brand. I’ve also seen results from gabapentin which is actually a nerve blocker that is used for sleep, although peripheral neuropathy which I have. I used to take two a night with one lunesta & two quitepine . Unfortunately I now take 1800 mg a day for idiopathic peripheral neuropathy along with my other prescriptions. There are also a variety of options available if seeking for them from an pain & spine specialist I have them each year I think they are amazing for us sufferers. First is radiol frequency ablations mine are c2-5 both sides l2-5 both sides & my si’s my Botox in my head helps with my daily migraines but I also take zomig & an shot of ajovy which is about a $700.00 dollar shot I give myself, ubrevy & Liliptis no they’re around $1.000-$1500 hundred a month. Best guess for the early stages of fibromyalgia is the zomig very low cost for a. Another amazing medication & won’t break the bank for headaches is a life saver fiorecet, arthritis is so natural to have & it eventually turns into osteopenia next step it is osteoarthritis, then osteoporosis which I have. Alenoronate is a once a week thing for me. Then another thing that fibromyalgia patients have is dypysia two different spelling that’s the same. Unfortunately for me it’s now turned in to Barrett’s esophagus, you although it no gets is the problem you’ll never have it. With the way fibromyalgia effects are body that’s important to know is controversial is it autoimmune or isn’t it? Yes with everything that’s happening to me my provider says that yes it is. Autoimmune disease doesn’t breakdowns so many times in the body. My endoscopy with dilation to help me breathe was biopsy done July 2022 was fine. My biopsy endoscopy with dilation jaunuary 2024 wasn’t good I was diagnosed with Barrett’s esophagus because of a condition where I’ve had many angiograms which you must get a prescription for a blood thinner & take it for to long & it’s less effective with omeprazole .im on generic plavix clopedigriel. Please when available take generic it’s as effective as name brand. When your an recently diagnosed patient another prescription that you should’ve had duloxetine I’ve tried all this won overall no Side affects literally just the best. Yes I’ve been on lyrica a few days & my body doesn’t like it. Symbiosis listen to your body about medication it tells you if you take a new medication to replace another one my body signals go off after a couple days. I hope this helps some people. Also I didn’t mention one more amazing doctor treatment is trigger point injections money sometimes two a month will settle down your muscle spasms that month after about two days of the injections. Txs I hope everyone has been trying or will try these procedures that will help.
Arrowsmith25

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