2023-08-22 Tuesday - recovery? Well, resting more helped be able to go for a 15’ cycle walk without problems, but that was definitely the limit. RR?: Couldn’t be bothered today. Statin pain?: Right thigh off and on, getting used to it, what can I do about it? Hmm, from what health.harvard says, I’m doing it all already.
I’ll be simplifying these blog entries from today on, so see Monday Aug 21st and before for what’s been happening up to now. I’ll leave most categories, replace #1 circadian rhythm, meal times,
What … worked / went wrong … today?:
How was I today?:
Feeling 65-75%-ish (
), energy today (), sleep Monday night (
), sleep Tuesday night (), nausea 0 (), fog 10% (), no bites , vertigo 0%, 100% of the time ().
Today working mainly on … recovery, RR vs. increasing/tolerating blood meds, getting & keeping energy back (& stiffness vs. Ache details), watching vertigo.
1) Early circadian rhythm for a) energy/sleep & b) Ache
1st meal a bit later, 2nd & 3rd early (slight intermittent fasting): ,
whilst keeping food amount up ()()(). IF = 12/12 (from ~9:00 to ~21:00)
Bed early / up early () (), screen time down () → Effective sleep (()).
“PEM” vs. “Ache without exertion” = post postural Ache . Rest was better than doing things.
1a) EXHAUSTIBILITY today: “92%". Changed on Aug 23rd: Symptoms and energy were up to 18-20(-24)% (TT 5:1, workout possible) since June 21st 2023 from new circadian rhythm, but kept going down to 10% (TT 0-2 games): 1) July 19th to 24th from bird deaths, 2) July 31st to Aug 6th from uro exam and methylene blue, 3) since Aug 9th due to "severe vertigo" etc. Click for today's ENERGY profile/envelope (= extremely slow?, with "?15h rest").
R rest: 100% exhaustion 90% of the time (15h),
VS very slow: 60% exhaustion 10% of the time (1h),
S slow: 40% exhaustion 0% of the time (0h),
M medium: 20% exhaustion 5% of the time (0h),
Q quick: 0-10% exhaustion 0% of the time (0h)
(pre-fibro: 0% exhaustion 100% of the time.)
SLEEP (click for details): 7h42, up 5x (50'), all deep ✅, vivid dreams re-living having to move out, plus wondering if I can simplify these entries more. Blood pressure getting up 121/73 (61), much lower than expected from the perturbations and heartbeat. 70%/2/5% p0 st3 fw2' fl0' deep/ air4x -A6/ drymouth30% sore throat5-10% tongue10% nostril/s0-10%, everything else OK ✅ ➔ getting up: 65%/2 ✅.
GABA A2/+A3/ A3:0 A4:0 teeth/ p0 FCS#1 3rd # is LBU
22:35-
23:58 30’ 6 70%/2/5% p0 st2 deep/ air/ A3/ drymouth30% throat5% tongue10%
2:05 5’ like 23:58 except 6, A4/ At+Ez, throat20%. ri.thigh 0-20%
3:18 4’ like 2:05 except A5/, throat 10%, arm tendonitis 0-20%.
4:50 4’ like 3:18 except A6/, vivid dreams re-living having to move out
6:45 7’ like 4:50 except A7:0, so vivid dreams, plus wondering if I can simplify these entries more.
-7:07 after further “perturbations” and heart beating, but brilliant levels of 121/73 (61) at 7:12, so it’s getting used to the meds and not a side effect.
1x FCS
Sum: 1h25+7h07-(30+5+4+4+7=)50’ = 8h32-50’ =
1b) ACTIVITIES ➔ ACHE = PEM (Post exertional malaise): no TT, hardly gardening/moving ➔ 70%/3 , talking ➔ 70%/4 . White lips70 ()
1c) REST/STIFFNESS / ACHE Stiffness OK, Ache just general, all over.
2) Histamine/MCAS symptoms
Nauseous sinus burning headache: Nope , tongue burning: Slight .
Excitement from talking, but kept that down.
TRIGGERS (updated Aug 23rd 2023): (1) JAB#3 (on Nov 7th 2022) caused MCAS / histamine problems like the first 2 till around July. Esp. ENERGY DOWN further to (10-)15-20% (max.), but more slow energy. Each jab -5%. (2) Jan. (TCM) (3) Feb. (T4), (4) Mar. (CoV) (5) cancer alert, DOWN to 8-12% by end of May (17 triggers, starting 20th). Better to ~18% from all this starting June 21st, but triggers regularly bringing it back down to ~10%, see Energy Exhaustibility. Click for developments....
3) Docs:
Last DOC update (simplified 18th): VERTIGO: Aug 9th-14th: No cause of the severe vertigo & wonky gait on the 9th found in stroke/neuro. 20th: Need to take the blood pressure and lipids more seriously now, even if the association with vertigo is unclear. URO/ONCO: Aut 18th: Had to postpone the bladder exam again. Aug 7th: Bloods for uro(/onco). July 31st: Uro exam extremely painful. The labs I got July 20th from onco didn't even include the onco labs. Still "waiting" for onco report for the “B symptoms” (night sweats, appetite & weight loss, starting Feb/March resolved by June). Click for details (also simplified Aug 18th…
Aug 9th-14th: Start blood meds again cos of the vertigo? If my bp is OK and it’s not helping the vertigo, but stopping me from table tennis? Aug 9th: Suspicion of stroke cos of severe vertigo, wonky gait, high blood pressure. Aug 7th: Uro/onco-Bloods. Jul 31st. Uro/onco appt. Apr 24th: Weird, 20’ onco appointment, no feedback. Apr 20th: Bloods OK, except PSA: prostate too high = cancer check. Apr 9th: Night sweats have inside of 2 nights switched over to the opposite extreme: cold, needing full winter bedstuff & sore throat. Apr 6th: My gyn(!): mamilla OK now. Apr 3rd: surgeon says wait with mamilla swelling, Mar 30th: lung X-ray OK (cough), Mar 29th GP says possibly B-symptoms. Early March: Antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms. 3% of a T4 for thyroid Feb 24th till Mar 23rd: more energy, but lost appetite and weight. Feb-bloods: Ω3 needs increasing, much too low.
4) Under control, attention necessary /():
1) Symptoms well under control: GI (via elimination), pee (via GABA: ENOUGH ✅), LOCAL PAINS (exercises, back: via using wall/door for support) ✅. Details...
except GI: stools loose0% , appetite , pee pain: 0p1-2 , lower back unrest .
2) Symptoms fairly under control - click for details on Weather: SUN / WIND ?✅ (layering off and on all the time), THIRST (✅), dry mouth (day and) at night ❌. Last SEIZURES (reduce GABA from Aug 17th??): Aug 9th: 2x. Aug 1st: 4-5x seizure-ish, so again GABA up, added 2x sublingual. July 25th seizure-ish 3-4x, so GABA up. July 17th: 2x. July 7th seizure-ish 4x. Jun 23rd 4x, Jun 16th, Jun 6th 2x ❌, May 25th 17:40 & 21:00, May 14th/13th, Apr 16th/15th, last ESOPHAGUS BLOCKS: Aug 8th, July 23rd & 16th, May 31st (all 3 cos distracted), before that Apr 4th ✅. JAW solved for the time being since June 23rd. ✅
Weather: Outdoors almost all day now, for energy/sleep from light and air - not too much pure sun, that’s all, but getting better used to it.
Dry mouth More thirst (4th litre) in April. Stopping antihistamine stopped it become painfully sticky at night, gel hardly necessary.
Last focal seizures: Aug 9th: 13:42 & 15:40 (after vertigo). Aug 1st: 4-5x seizure-ish. July 25th: seizure-ish 3-4x. July 17th: 18:30 19:55 after thunderstorm. July 7th seizur-ish 4x. Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Generally, mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. Aug 8th: carrot, then chocolate. July 23rd cos distracted by the Kami stress. July 16th I was concentrating on testing if hazelnuts increase my nicotinic acid flush with my 3rd meal, and disregarded a slight throat pressure, which went totally wrong, was the last straw for an esophagus block, so had to get it out, lots came out, incl. supps, and needed to wait quite a bit afterwards. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Jaw (Simplified Aug 18th): June 23rd: OK now, 2 new fillings were enough, solved for the time being.
Treatments under control: SELF-TREATMENT & SUPPS optimal & stable, but necessary - Aug 6th: 40 supps (was 42), costs 435€/m (was 470) +20€/m cps. Aug ~1st: pine bark again, + methylene blue + polysterols, Aug 5th Feverfew & PQQ again. July 25th (updated almost everything too): Increased eleuthero, decrease theanine to 2x0.1g and quercetin, added EGCG, all 4 in the B-supps. Next: LDN? Creatine?
SELF-PHYSIO (click for details): OK? Wrists: more (✅), jaw-joint: to do (❌). Air + light + movement all day. ✅ Cold showering every day ✅.
airing 5x2’, cold shower 1x(10’), cream/oil fc/ey/hd/ft x1’, teeth x2’, HWB 0x3’, breath exercises 5x1’, Y. Nidra 0’, massage gun 0x3’, daylight lamp/sun 6x5’, plantar/calf stretch x1’, acupressure 0x1’, palpate 0’, belly 3’, back 10’, !!aloe vera 0x1’, twist-stretch x1’, yoga/stretching x1’, hang x1’. wart x1.
Combine: next?
hunchback-pillow 0’. neck 1+ x1’, RR: 0, neck 2 0x1’, workout 7’, horse stance 1’, balance roll standing 5’, breath-hold 12’, jolt-jump 1’, marionette-hang 1’, shaking dance 1’, bent leg fall 1’.
Supps Aug 6th: 40 supps (was 42), costs 435€/m (was 470) +20€/m cps. Schedule TODAY: OK. Aug 7th: stopped methylene blue, seemed to cause more problems. Aug ~1st: pine bark again, + methylene blue + phytosterols, Aug 5th Feverfew & PQQ again. July 25th: EGCg again, eleuthero up to 3 and above, quercetin down cos of more rutin than suggested, next: theanine divided up into 2x0.1g? Creatine? Colostrum again?? ATP?? Click for details on the lists, with dosing batches by times and tubs:
69€/5000 capsules = 0,0138€/cps, x49/d atm = 0,68/d = 20€/m.
ZERO now: Arg, alpha-GPC 1x150mg, fisetin: 0x196mg, huperzia A, mumijo, NAC 1*.5g, NADH, psyllium (Ps), Ribose, rupatadine/Rupafin, Serrapeptase, Zinc, P5P (= vit. B6) 0x27mg (high).
REGULAR as of July 26th (42 supps): (R-)ALA .2g, aloe vera juice 0ml/d, apigenin 1x50mg, vit. B2 3x1x600mg, vit. B3/Nia (2+2+1)x0.6=3.0g, vit. B5/Panto: 3x1x.5g vit. B12 (methyl-C) 0x5mg/4m s.c., BUT B12 1x0.2mg (all 3 good types) WITH vit. B9/5-MTHF 1x0.4mg, vit. C 3x2x.5g, L-carnitine (Cr) (3+3+2)x0.6g, copper (Cu) 0x2mg, vit. D3 20.000 IE = 500mcg, WITH vit. K2 (MK7) 200mcg, DAO before EGCg 3x1x(50%, incl. L-theanine?)113mg, ellagic Acid (Ell) 2x.2g (+43mg vit. C), eleuthero (eleu) 3x4.5mg, feverfew (fev) 3x.4g WITH 3x.2g MSM, GABA (Ga): 4-8x0.3g+2x.6g=2.4-3.6g, ginkgo (Gi) 3x168mg, (L-)glutamin (gltm, glu): 1x0.6g, glutathione (gltt) 4x250mg, honokiol (hon) (2%)x2x.4g=16mg, luteolin 1x.2g, magnesium glycinate (mag gly) 0x50mg, mag malate (mag mal) 0x45mg, mag threonate (mag threo) 3x2x50g, monkfruit 0-0.1g, myo-inositol 1x2x0.5g/1!-2d, olive leaf extract (oli) 2x1x.75, Ω3 1x5mg, passiflora (Pf) 2!x1x.35g, Levagen±PEA 1x0.3g, pine bark (pin) 2x1x.5g, PQQ 1x20mg, CoQ10 (Q10)(ubn) 1x.1g, quercetin (Qc) 3!x1x.5g (down in B-supps cos more rutin than suggested), resveratrol (Rs) (50%) 2x1x.4g, rhodiola (Ro) 2x1x.35g, rutin (ru): 1x522. SAM-e (Sa) 1x2x.1g, Selenium 0x.2mg, Silymarin (Sil) (80%) 1x.5g (+83mg L-cholin), (L-)theanine (The) 1x.2g (+.15g polyphenols) (next 2x0.1mg), TMG: (1-2+1-2+1)x0.6=3.0g (as much as B3). NO rupatadine/Rupafin in micro-amount (0.1-0.3mg) as often as needed since jab#3 Nov. No longer practitioner’s recommendations, cos lost appetite ((#1) masterwort / Imperatoria ostruthium, #2) Hexacyl (Sulphur D4, Lycopodium Ø, Berberis Ø), #3) add Steirocall comp. (for “arthrosis” & bones) (& umckaloabo). Not at all sure about any of these, after 3 weeks of Hexacyl, #4 bitter herbs when Hexacyl bottle is finished, #5 more B5 now, #6 “glutathione activator” → upping MSM, selenium, and have asked if manganese and vit. E are important. #7 Pro Mucosa: added Hericium, can’t increase glutamine, asked back about ficin and biotin, #8 Chlorella, #9 B9 as 5-MTHF for homocysteine.))
What-when-details: Updated July 26th.
“16:00” preparing pills
“17:30” A1 PF#1:0, 2x threo., Lut, Qc#1.
5’ “empty time” = to see if I need worry time.
“18:30” 2 myo-inositol + teeth
“18:30” A2=12+1 1xvB2#1 1xvB3 vB5#1 2xC#1, 2Cr#1, PF#(2->)1, 0Cu, .3gGABA#1 1xTMG#1. Meal: 1PQQ, 5ml Ω3, CoQ10 (oil) &! 0 Se & Hon#1. monkfruit.
Meal 20: ’ Back exercises. 2x glutathione, 1x phytosterols
“20:30” pre-A3 agigenin 1h before bedtime + teeth
“20:30” 0chamomile
“21:00” A3 PF#(3->)2, 0.3gGABA & .6glu & Qc#2 Hon#2 + 1%:0 Rupafin or A2
“2:00” A4 .3mg GABA + teeth
“4:00” +0.25 GABA etc., A5-A8, according to pee pain and seizure-ishness
B=11/ in sun/lamp “07:00” R-ALA, Ro#1, Qc#3:0 Rs#1 2xSAM-e EGCg (from July 26th again) 3xEleu (forward from C to B-batch, maybe slowly increasing, even to 4g/d!) + Fev/MSM#1 + Sily +0.2->0.1The.
Back exercises
0 Soak pumpkin seeds & almonds.
Teeth.
C=20 with meal: 1xB2#2 1-2xvB3#2 vB5#2 2xvC#2 3xCr#2 .6GABA#4+, gink#1, Oli#1, pine#1, 1-2xTMG#2 2threo. PEA Rutin = 20. (vit.D3 1/wk)
2x glutathione, 1x phytosterols
teeth
“11:00” D1(0) + Teeth (+2h/) Ellag#1, Fev/MSM#2, gi#2.
“14:00” Meal ’ in sun +aloe
“14:15” D=15/ ’ in sun vB2#3 1-2xvB3#3 vB5#3 2xvC#3 3Cr#3, .6GABA#5, gink#3 Oli#2, pine#2, 1-2xTMG#3
2x glutathione, 1x phytosterols
teeth
“16:00” preparing pills: 5x to encapsulate.
E “17:00” (“meal/acids+2h”) Ellag#2, Fev/MSM#3 Qc#(4=)3, Ro#2, Rs#2.
A1 “18:00”
myo-inositol
Eat + aloe + PQQ+Ω3 if not earlier.
A2 + apigenin & heating down
(B12 s.c.: 2022-11-04, 2022-04-10, 2022-01-10: B12 5mg methylcobalamin s.c.)
eve:
The day's supp-compartments (8', plus 10' making capsules), July 26th
Pf: A1:0+A2+A3, vB2: 1C,1D, 1A. vB3: 1-2C,1-2D.1A, vB5: C+D+A. vC:2C+2D+2A 8Cr: 3C+3D+2A, Ell: D0+E. Fev/MSM: B,D0. Ga 4-5x: C,D,a2,a3-a6(-a8), Gi: C,D0,D Glutathione: 2-3x after meals. Hon:A2.A3. MgThreo: 2C,2D,2A. Oliv: C,D. pine: C,D. Qc: (B.)E.A1.A3. Ro:B,E Rs:B,E SINGLE: A1: 0xMgMal, luteolin. myo-inositol (15’ before meal 1x/(2)d) A2: 0Cu (separate from P5P etc.!)+0P5+1xQ10 (ubiquinone <150mg/d!, not ubiquinol), 0x1xSe. (A2:Ω/Pq:meal, A3: apigenin) A3: Glutamin (0c1), B (or C): R-ALA, EGCg, 3xeleu, Ru, 2 Sa, Sily, Th, C: PEA, DAO before risky/all meals. monkfruit usually evenings, aloe vera. vit. D3/K2-MK7 saturdays. (A2:0Se)
TALLIES July 26th:
A1=7+1 Pf#0 Qc#1, Lut, 2 MgThreo + 2myo-inositol + (DAO?)
A2=12 1vB2#1 1-2xvB3, vB5#1, 2xvC#1, 2xCr#1, 0Cu, Pf#2->1, Ga#1:0.3g, Hon#1, Q10, 0Se, 1-2TMG#1 (0 Rup). = 12-14.
+Ω3/PQQ/0aloe +monkfruit +apigenin 10(+4) =14.
A3=5 Pf#3->2, Ga#1, Gltm, Hon#2, Qc#3
A4=1 Ga, A5=1 Ga#2 etc.
B=11 ALA, EGCg, Eleu more, Fev/MSM#1, Qc#3:0, Ro#1, Rs#2, 2xSa, 1-2Th, Sily (DAO?) = 10-11.
C=20 1vB2#2 2xvB3#2 vB5#2 2xvC#2 3xCr#2 Ga#(4+) Gi#2 Ol#1 0Pin#1 2TMG#2 (Eleu in B) 2xMgThreo PEA Rut = 20.
after meal: 2xGlutt.
D0=2 Ell, Fev/MSM#2, Gi, + (DAO?)
D=11-13 vB2#3 1-2xB3#3 vB5#3 3xCr#3 Ga#(5+) Gi#3 Ol#2 0Pin#2 1-2TMG#3 Fev/MSM#2
after meal: 2xGlutt.
E=5 Ell, Qc#(4->)3, Ro#2, Rs#2. Fev/MSM#3 = 5
B12 4-monthly, D3 Saturdays.
‘Research’ today:
Quality of life
Lessons in self-care:
Reasons to be cheerful:
Simplified:
Foggies:
Development
Click for links to "entry changes" (after June 19th 2023), "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting
Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023
- 8 weeks after jab#3: stabilized
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My food 2023.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries
- Research ToDo: supps webinar on Dec 2nd, fibro webinar transcripts, the MCAS summit, read