2023-08-25 Friday - recovery?: slightly. RR?: too high 9:00-14:00, rest perfect to low.
What … worked / went wrong … today: Measuring RR went well, re-newing ways to influence it too, makes me wonder if I could have alleviated the vertigo attack using exercises and being more careful with twist-stretching. But the vertigo etc. came totally out of the blue, after feeling quite well 2 days, so no wonder I didn’t think of it.
How was I today?: Feeling 65-75%-ish (
), energy today (), sleep …day night (
), sleep …day night (), nausea 0(-10)% (), fog 10% (), no bites , vertigo 10%, 20% of the time ().
10:25 nimbly up and down stairs several times. Energy is not the problem at the moment.
Today working mainly on … recovery, RR vs. tolerating blood meds, energy, vertigo.
If my weight is now stable at 78-79kg, not 75 like I’d weighed a week ago, then eating breakfast late (as a bit of intermittent fasting IF / Time Restricted Eating TRE) would not be decreasing it at all, so I would continue with it. Needs checking. I just found on June 26th/27th that calling it TRE would be more suitable. Saturday 8:00 78.1kg.
Caring for the guinea pig is putting me on the spot with my biggest issues: care for others more than for myself. It smashed me this morning. So I need to de-stress. NSDR. Put on Wim Hof by mistake, that’ll do first. (some NSDR at the same time towards the end, automatically.) Hormesis yes, but good for me, I think, at least got pressure down (but only at first for a while). Shaky after, but I think I was before too, just couldn’t sense it. Now a big part of me is calm, another big part in an aftermath. Still better mind + body control. This may be the new way to go. Praps energy wise too.
0) self-24hBP too high (143-165-/73-87, better after Wim Hof breath-holding): 9:00-14:00, triggers praps humidity rather than feeding guinea pig up, down after exercises. 16:15 down to 108/67 ("tired eyes"), but up again 16:30-17:40 132-139/65-83, 18:10 123-130/70-80, 19:45 135/79, 21:00-22:30 114-125/66-68, 0:13-6:00 90-103/59-69, short exercises at night and back exercises first thing didn't seem to make a difference, but hardly dizzy or headache anyway, looking after the guinea pig for a while was stress, but
6:35 102/65 (58) before getting up.
6:59 120/60 (59) after getting up.
9:03 143/82 (57) half an hour after strain from helping feed guinea pig up.
9:35 145/73 (65) after stressing myself writing and guinea strain.
9:55 126/77 (63) after WHM, altho my heartbeat was throbbing “electric”.
/140 11:07-10 165/92 (89) 157 88 86 153 86 88, so WHM: 11:22 139/87 (81) 147/86 (80) 135/87 (80) 141/88 (76) hard to relax knowing I should have been feeding up the guinea from 11 on. 145/85 (78) 140/87 (77), OK this isn’t enough, try WHM again at 11:28-39, incl. NSDR a little, measuring on the 3rd breath out like after that in was 135/85 (82). Thunderstorm and thoughts of guinea pig and plans less this 2nd WHM. After it back up to 146/84 (76), so not sustainable. NSDR alone, more intensely, longer?
Now leaving the cuff on, unit half-stuffed into trouser pocket and measuring while doing things 11:47 158/93 (85).
12:10 166/103 (84) after feeding the guinea pig, had to break off tho, knew blood pressure had gone up, and pain of 5, exhaustion. Still split off small soft bits of apple & zucchini
12:24 159/86 (81)
12:28 133/76 (76) suddenly tired, sitting a few minutes. 12:30 136/77 (79)
12:40 after cycling3’ 12:57-59d after stairs etc. 150/80 (78) 153/82 (75) pee urge. 13:02-04 145/77 (76) after pee. 13:16-17 134/78 71 137/76 68 after 10’ YoNi.
13:31 133/74 (70)
13:43 136/79 72, 13:48 130(84 (71) after relief exercise. 14:02 131/78 (74).
This is all safe, so I’ll change over to user 3 and just do checks without writing down what I was doing, until it goes up again. That should be easier. Cuff on arm, unit in belt bag. Until I have to re-charge the batteries.
14:40 125/82 (73) 14:55 124/65 (69)
15:16 121/72 (70) 15:21 119/70 (72)
15:45 128/75 (65)
16:15 108/67 (64) eyes tired, relaxed, mails.
16:37 132/83 (66) 16:42 138/74 (68) after loo. 16:45 135/71 (66)
17:11 145/81 (66) loo 17:12 139/83 (78) standing 17:14 136/74 (68)
17:39 135/65 (69) arrh after 2x5’ walk
18:12 130/80 (64) while typing.
18:21-24 151/82 (59) loo, 126/70 (65) arrh after.
18:54 123/74 (60)
19:47 135/79 (61)
20:57 119/67 (61) arrh
22:02 125 66 (63) after moving 6 cans of water 20m.
22:27 114/68 (57) identifying plants.
/ 0:13 131/83 (64) pee urge 103 64 (56) after 0:42 100/69 (56) identifying
2:22 99/59 (58)
3:22 !!90/62 (61) pee urge!
103/63 (55) after loo
7:01 123/74 (59) after getting up 7:10 124 74 61 after walking and back exercises!
7:43 117/66 (63) arrh typing this.
8:45 115/79 (55) after strain of looking after the guinea for 10’, so maybe yesterday was the weather after all?
9:07-9:12 145/90 (62) after getting up and straining high pee urge, 138/78 (58) after moving down and up after that, 131/74 (53) 126/72 (54) after
1) Since Aug 9th BALANCING PEM VS. PPA: post exertional malaise (doing things, quickly severe, muscles) ❌ vs. post postural ache (rest) (✅) is the only possible adjustment now, stiffness OK ✅: no TT, gardening/moving ➔ 80%/3 (❌), talking 5' ➔ 80%/3 ❌. White lips60-80% (❌). Can't do much more for exhaustibility/Energy and Sleep than keep track of triggers see 2), click for details:
EXHAUSTIBILITY today: “92%". Changed on Aug 23rd: Energy was up to 18-20(-24)% (TT 5:1, workout possible) since June 21st 2023 (and new symptoms better) from new circadian rhythm, but kept going down to 10% (TT 0-2 games) from monthly triggers, see #3 Triggers. Today's ENERGY profile extremely slow, with "15h rest"), 1h very slow, 0h slow/medium/quick: I felt OK, occasionally almost 'normal' and 'light' in the afternoon, but only because I kept my movements down. In the morning the feeling that every movement or no movement was too much for my blood pressure, altho a bit wired.
SLEEP (click for details): 7h41, up 4x (49'), all deep. 80%/2/5-20% 4xp0 st2 deep/ air4x -A8 drymouth30% sore throat10% tongue20% ✅, everything else OK ✅ ➔ getting up: 80%/2 ✅.
GABA A2/+A3/ A3:0 A4:0 teeth✅ p0 FCS#1✅? (3rd # is lower back unrest)
Sleep 22:35-
0:13 30’ 70%/2/5% A5 fw2’ fl25’ rest as normal
2:22 5’ 99/59 (58) A6
3:22 9’ 90/62 (61) fl5’ A7
5:50 5’ 103 63 55 A8 clavicle
-7:05 nostrils20%
Sum: 1h25+7h05-(30+5+9+5=)49’ = 8h30-49’ =
2) Watching TRIGGERS (updated Aug 23rd 2023) at least once a month with additional symptoms and continually bringing energy down from 20% to 10%, Histamine/MCAS symptoms: Nauseous sinus burning headache: 0% ✅, tongue burning: 10% day, 20% night ✅. Excitement (= stress) ❌: In the morning trying to help feed up the guinea first thing, then trying it alone at 11:40 were enormous stress triggers, difficult for body and mind, better after WHM and Yoga Nidra ✅, but trying a bit of looking after Saturday morning was stress WITHOUT increasing my blood pressure at all. Click for list...."
(1) JAB#3 (on Nov 7th 2022) caused MCAS / histamine problems like the first 2 till around July. Esp. ENERGY DOWN further to (10-)15-20% (max.), but more slow energy. Each jab -5%.
(2) Jan: TCM recommendations for a few weeks
(3) Feb: ~3% of levothyroxine pill Feb 24th till Mar 23rd: more energy, but lost appetite and weight and sleep, antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms (stopped cos causing nauseous sinus headaches & painfully dry mouth).
(4) Mar: inkling of Covid, negative, but cough, appetite, night sweats…
(5) Apr: cancer checking ending with weird onco,
(6) May 20th… 17 stress triggers, till end of May: 8-12%, seizures May-June every 10d.
June 21st: circadian rhythm Better to 18(-24)% a few days, but mostly back down to ~10%:
(7) July 19th-24th: 3 garden bird deaths
(8) July 31st-Aug 6th uro exam and methylene blue trial.
(9) Aug 9th… severe vertigo, checking, back to minimal blood meds.
Wanted to take my vertigo clinic report and praps own blood pressure measurements to my cardio today for the appointment on Tuesday, but my high blood pressure and the rain kept me from doing so, so I’ll try Monday.
3) DOCS: Last update (simplified 18th and 23rd): VERTIGO: Aug 9th-14th: No cause of the severe vertigo & wonky gait on the 9th found in stroke/neuro. 20th: Need to take blood pressure and lipids more seriously now, adding meds to all the supps, even if the association with vertigo is unclear. ONCO/URO: Onco Apr 24th was useless up to now. Bladder exam Sep 4th mainly cos of bladder problems (finger exam July 31st, bloods Aug 7th). Click for details.
Starting Feb/March with “B symptoms” (GP Mar 29th: night sweats, cough plus appetite & weight loss), mamila swelling, PSA high Apr 20th. Mar 30th: So lung X-ray OK, Apr 6th: mamilla OK. Sweats OK Apr 9th, appetite OK-ish by June, weight OK-ish too, but down again after vertigo. Apr 24th: Weird, 20’ onco appointment, feedback STILL pending, incl. onco blood results (just others on July 20th). So now uro at least. Feb-bloods: Ω3 needs increasing, much too low.
4) UNDER CONTROL: attention necessary ✅/(✅). Left clavicle and shoulder slightly: acupressure and massager, before it gets worse. Right big toe nail lump less now, fungus under foot OK, but needs continual attention. Click for details:
1) GI, pee, local pains, weather, dry mouth well under control: Details...
except GI: stools loose0% , appetite , pee pain: 0p1-2 , lower back unrest . Jaw: 2 new fillings June 23rd were enough, solved for the time being, but keep spaces free. Weather: SUN / WIND , dry mouth (day and) at night at least not hurting/sticky ().
2) Seizures and esophagus blocks fairly under control - click for details on SEIZURES: GABA better up (also for pee pain). Aug 1st, July 25th + 7th were only seizure-ish 4-5x, increase in May-June was stress/histamine/less GABA: LAST Aug 9th: 2x. July 17th (2), Jun 23rd (4) & 16th & 6th (2), May 25th (2) &14th/13th, Apr 16th/15th. Last ESOPHAGUS BLOCKS: Aug 8th, July 23rd & 16th, May 31st (all 3 cos distracted), before that Apr 4th ✅.
Last focal seizures: Aug 9th: 13:42 & 15:40 (after vertigo). Aug 1st: 4-5x seizure-ish. July 25th: seizure-ish 3-4x. July 17th: 18:30 19:55 after thunderstorm. July 7th seizur-ish 4x. Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Generally, mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. Aug 8th: carrot, then chocolate. July 23rd cos distracted by the Kami stress. July 16th I was concentrating on testing if hazelnuts increase my nicotinic acid flush with my 3rd meal, and disregarded a slight throat pressure, which went totally wrong, was the last straw for an esophagus block, so had to get it out, lots came out, incl. supps, and needed to wait quite a bit afterwards. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
SELF-TREATMENT & SUPPS optimal, stable, but necessary - Aug 6th: 40 supps, 435€/m +20€/m cps. Last changes see before Aug 22nd. Next: LDN?
SELF-PHYSIO: Always OK, see before Aug 22nd what I now always do when needed. Next: jaw-joint?
Supps Aug 6th: 40 supps (was 42), costs 435€/m (was 470) +20€/m cps. Last changes see before Aug 22nd next: theanine divided up into 2x0.1g, maybe LDN, probably not creatine, colostrum or ATP again. For details on the lists, with dosing batches by times and tubs see before Aug 22nd:
‘Research’ today:
I dabbled a bit in blood pressure influencing, but need to look into that a lot more now.
Looked up “onychia” again today and saw it usually comes with pus and stuff, but what I have on my right big toe is just a tiny lump that hurts, and it’s getting better from keeping it clean, calendula essence and tea tree oil, so to translate it as onychia the last months was exaggerated.
Quality of life: 85%. “Feeling well”: 70-80%.
Lessons in self-care: I seem to need to de-stress and relax even more. It seems that includes stopping listening to music.
Reasons to be cheerful:
a) My wife thinks she saw a bird of prey similar to an eagle with a one yard wing span with white belly and grey wings Wednesday evening directly over our garden again, similar to the one we’d seen high above some time ago, but I can’t figure out what that might have been, and an ornithologist I wrote to said that we do sometimes have sea eagles near here, but that’d only fit to the enormous bird of prey July 7th.
b) Blackbird is now sometimes singing his quiet song in the trees.
c) A jack alone, latecomer, called his mates who’d already gone over to their sleeping place, but somehow they still seemed to hear him, and chattered back, so he knew where to fly (strange that he didn’t before)
d) Identified even more plants, what’s left I’ll just have to watch till they change, but praps different photo perspectives’ll help too.
e) Happy that our guinea seems to be making it, but it’s really scary. Hasn’t pooped yet since his op, except the poops he eats himself, which is at least something. But we are managing, or my wife is managing, to get quite a variety of stuff into him. And the first night without pain killer seems to have been better for him.
f) Pretty pleased with the state of the garden, there could be many more colours, yes, but the grass in the meadow is turning a luscious green from the tons of rain.
g) No worry about too little water the past weeks.
Simplified: Started leaving cuff on my arm.
Foggies: OK at the moment.
Development: Look before Aug 22nd for more details. Click for links to "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting
Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023
- 8 weeks after jab#3: stabilized
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My food 2023.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries
- Research ToDo: supps webinar on Dec 2nd, fibro webinar transcripts, the MCAS summit, read