2023-09-01 Friday - recovery? RR: good. Supp changes: good!
What … worked / went wrong … today: BP was OK so far, then the batteries went flat, so now I’m re-charging. (It says don’t use re-chargeable ones, but I’ve had no problems AFAIK.) I’m so pleased I thought up to shift sleep supps into the daytime. It may make me more tired, but my first interest is getting the BP under control, and being tired is nothing like having no energy - I think today that may also be cos I didn’t sleep enough cos of lack of discipline. Strangely I feel I’m gaining energy now.
4 mistakes before sleep and during sleep breaks cost me an hour of sleep. As sleep and blood pressure are both very good at the moment, I want to now try to sever the lead (haha, it’s a laptop) at night, unplug, put it somewhere where it’s hard to get.
This has also spawned the idea like I love to: Wrench things down, in this case decrease what I’m doing, selecting better and quicker.
My Beau lines have now definitely improved.
My right big toe nail inflammation lump has gone, still hurts a little, so still putting calendula essence on it sometimes. Only 1-2 slight maybe fungal spots on the sole.
My weight is (analogue 81.5kg so ) 78.5kg, that’s still good.
Trying just a warm shower didn’t improve my blue lips after it.
How was I today?: Feeling 75-85%-ish (
), energy today (-
), sleep Thursday night , sleep Friday night (), nausea 0(-10)% (), fog 10% (), no bites , vertigo 10%, 5% of the time () - after 2x15’ cycling to bring my cardio the clinic report.
Today working mainly on … recovery, RR vs. increasing/tolerating blood meds, energy, vertigo.
RR: I actually shouldn't be counting all readings at all, cos I measure mainly when it's highest. To be representative I should take let's say 2 averages an hour. Or actually no averages, just how long the high periods are. So 9:40-10:00 was 20' at 135/81 from a mail to 6 church people. 10:20-25 went up for 5' similarly. Then went up to 140 for 2' after cycling to doc, if it was that high there and back, that may have been 40'. I'd need to measure during such a ride. SBP went up again 135-140 from a stress work mail and feeding the guinea, but that's getting better. In the afternoon I felt the supps kick in, I doubt anything was much above 120. More under "research" below.
|09:17:00|124|82|56|after semi-stress mail + talking 5‘|
|09:40:00|138|84|49|Stress-mail surprisingly more stress church than work!|
|09:42:00|137|78|52||
|09:44:00|122|72|50|regulating|
|09:45:00|132|82|57|regulating|
|09:46:00|124|82|53|still some strain & pain|
|09:47:00|140|87|55|neighbour near|
|09:50:00|141|81|56|recovering, better to move? & eat|
|09:56:00|149|92|53|staircase, still strain & Ache|
|09:58:00|139|72|51||
|09:59:00|126|80|57|releasing tension a bit more, NSDR – church seems a problem? Or cause 6 people?|
|10:21:00|139|83|61|Loo, 1 stairs, tension 30%|
|10:23:00|143|82|65|Tension 30%|
|10:25:00|116|77|65|background noise (civil/road work) stopped, and tension down to 10%|
|10:55:00|128|79|78|cutting a bit of grass for the guineas, tension 0%|
|10:56:00|107|76|75|satisfied tension 0%|
|11:54:00|141|72|76|after report to cardio, colleague 2‘, vertigo 20% for 10-20‘, Ache 5, tension 10%|
|11:56:00|121|74|82|Ache 4, tension 5%|
|11:58:00|106|76|76|„tired“, Ache 3, tension 5%, getting up: vertigo 30%, suspect the vertigo is low not high BP|
|12:45:00|135|79|73|Garden 15‘, stairs, starting guinea|
|12:54:00|129|87|73|while feeding|
|13:07:00|140|80|74|Stress-work-mail about how much I need to work & feeding|
|13:34:00|137|88|69|feeding|
Avg from 9:00 to 14:00 = 131/80, excl. first readings 129.
Battery flat, but BP seemed low.
3 sleep mistakes tonight: 
Prolonging breaks (plant identifying) was unnecessary, but will have been OK for BP, 
exercise was the worst mistake, also possibly bad for BP, 
ending on checking forums added, cos too much thought stimulus. All the more annoying that none of these was necessary. 
Going to bed 30’ later, cos my wife asked me to stay up a bit, I could have turned into 10’ quality time, instead I again identified plants. So
I’ll now “unplug” at night?!
1) Since Aug 9th BALANCING PEM VS. PPA: post exertional malaise (doing things, quickly severe, muscles) ❌ vs. post postural ache (rest) (✅) is the only possible adjustment now, stiffness OK ✅: no TT ❌, gardening/moving ➔ 80%/3 (✅), improving it seems, but talking 5' ➔ 80%/5 ❌. White lips60%? (❌). Can't do much more for exhaustibility/Energy and Sleep than keep track of triggers see 2). Click for details:
EXHAUSTIBILITY today: “91%". Changed on Aug 23rd: Energy was up to 18-20(-24)% (TT 5:1, workout possible) since June 21st 2023 (and new symptoms better) from new circadian rhythm, but kept going down to 10% (TT 0-2 games) from monthly triggers, see #3 Triggers. Today's ENERGY profile veery slow, with "14h rest"), 2h very slow, 0h slow/medium/quick
[details=“SLEEP (click for details): 6h51, up 4x (62’), all deep. 80%/2/5% -A5
, everything else OK ➔ getting up: 80%/2 .” Four mistakes, see above.]
GABA A2/+A3/ A3/ A4:0 teeth✅ p0 FCS#1✅? (3rd # is lower back unrest)
Sleep 22:35-
23:37 25’ A4 fl20’
1:58 12’
4:30 20’ 6 A5.
6:09 5’ Haven’t drifted away even after 1h, AFAIK. So no more exercises at night.
-6:28
Sum: 1h25+6h28-(25+12+20+5=)62’ = 7h53-62’ = [/details]
2) Watching TRIGGERS (updated Aug 23rd 2023) at least once a month with additional symptoms and continually bringing energy down from 20% to 10%, Histamine/MCAS symptoms: Nauseous sinus burning headache: 0% ✅, tongue burning: 10% day, 20% night ✅. Excitement (= stress) ❌: talking was one main stress trigger, but I kept that down, 3x4', worse was mails that made me have to do something. Click for list...."
(1) JAB#3 (on Nov 7th 2022) caused MCAS / histamine problems like the first 2 till around July. Esp. ENERGY DOWN further to (10-)15-20% (max.), but more slow energy. Each jab -5%.
(2) Jan: TCM recommendations for a few weeks
(3) Feb: ~3% of levothyroxine pill Feb 24th till Mar 23rd: more energy, but lost appetite and weight and sleep, antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms (stopped cos causing nauseous sinus headaches & painfully dry mouth).
(4) Mar: inkling of Covid, negative, but cough, appetite, night sweats…
(5) Apr: cancer checking ending with weird onco,
(6) May 20th… 17 stress triggers, till end of May: 8-12%, seizures May-June every 10d.
June 21st: circadian rhythm Better to 18(-24)% a few days, but mostly back down to ~10%:
(7) July 19th-24th: 3 garden bird deaths
(8) July 31st-Aug 6th uro exam and methylene blue trial.
(9) Aug 9th… severe vertigo, checking, back to minimal blood meds.
3) DOCS: Last update (simplified 18th and 23rd): VERTIGO: Aug 9th-14th: No cause of the severe vertigo & wonky gait on the 9th found in stroke/neuro. 20th: Need to take blood pressure and lipids more seriously now, adding meds to all the supps, even if the association with vertigo is unclear. ONCO/URO: Onco Apr 24th was useless up to now. Bladder exam Sep 4th mainly cos of bladder problems (finger exam July 31st, bloods Aug 7th). Click for details.
Starting Feb/March with “B symptoms” (GP Mar 29th: night sweats, cough plus appetite & weight loss), mamila swelling, PSA high Apr 20th. Mar 30th: So lung X-ray OK, Apr 6th: mamilla OK. Sweats OK Apr 9th, appetite OK-ish by June, weight OK-ish too, but down again after vertigo. Apr 24th: Weird, 20’ onco appointment, feedback STILL pending, incl. onco blood results (just others on July 20th). So now uro at least. Feb-bloods: Ω3 needs increasing, much too low.
4) UNDER CONTROL: attention necessary ✅/(✅):
1) GI, pee, local pains, weather, dry mouth well under control: Details...
except GI: stools loose0% , appetite , pee pain: 0p1-2 , lower back unrest . Jaw: 2 new fillings June 23rd were enough, solved for the time being, but keep spaces free. Weather: SUN / WIND , dry mouth (day and) at night at least not hurting/sticky ().
2) Seizures and esophagus blocks fairly under control - click for details on SEIZURES: GABA better up (also for pee pain). Aug 1st, July 25th + 7th were only seizure-ish 4-5x, increase in May-June was stress/histamine/less GABA: LAST Aug 9th: 2x. July 17th (2), Jun 23rd (4) & 16th & 6th (2), May 25th (2) &14th/13th, Apr 16th/15th. Last ESOPHAGUS BLOCKS: Aug 31st, Aug 26h, Aug 8th, July 23rd & 16th, May 31st (all 3 cos distracted), before that Apr 4th ✅.
Last focal seizures: Aug 9th: 13:42 & 15:40 (after vertigo). Aug 1st: 4-5x seizure-ish. July 25th: seizure-ish 3-4x. July 17th: 18:30 19:55 after thunderstorm. July 7th seizur-ish 4x. Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Generally, mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. Aug 31st supps again, Aug 26th: drinking supps with buttermilk instead of almond milk, Aug 8th: carrot, then chocolate. July 23rd cos distracted by the Kami stress. July 16th I was concentrating on testing if hazelnuts increase my nicotinic acid flush with my 3rd meal, and disregarded a slight throat pressure, which went totally wrong, was the last straw for an esophagus block, so had to get it out, lots came out, incl. supps, and needed to wait quite a bit afterwards. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
SELF-TREATMENT & SUPPS optimal, stable, but necessary - NEW Sep 1st: NADH 10-20mg 20' before meals, order Ω3 again (others too), passiflora & magnolia with 1st and 2nd meals instead of in the evenings, eleuthero up to 4, keep up apigenin and myo-inositol in the evenings, in case. GABA down to max. 6x0,3 eve/night, +3x0,3 before meals. Aug 6th: 40 supps, 435€/m +20€/m cps. Last changes see before Aug 22nd. Next: LDN?
SELF-PHYSIO: Always OK, see before Aug 22nd what I now always do when needed. Next: jaw-joint?
Supps Aug 6th: 40 supps (was 42), costs 435€/m (was 470) +20€/m cps. Sep 1st: NADH, passiflora, magnolia and more GABA to daytime. Last changes see before Aug 22nd next: theanine divided up into 2x0.1g, maybe LDN, probably not creatine, colostrum or ATP again. For details on the lists, with dosing batches by times and tubs see before Aug 22nd:
Research’ today:
a) Chris Masterjohn released his 2h38 long methylene blue info to the public today, and like I suspected says: If you don’t need it, it’ll harm you - it did, so I don’t…
b) Circadian blood pressure changes: Peaks 8:00-9:00 and 16:00-18:00 this official German site says. 24BPM it says measures every 15’, at night every 30’. But from what it says about sports, 200/100 can happen then, this I have never ever reached, and a lot of my movement with my energy problems could be considered sports. And here it adds it’s normal for it to go up during sports and then down afterwards. On another German page, based on national recommendations here, it says that the studies that found it may be better for length of life to reduce SBP to 120 or under were small and had some flaws, as well as only examining young fit people! The difference for death, heart weakness, but also too low heart pressure with problems like falls was 1 person in 100! I know many recent studies about statins and medical comments on this show only this kind of difference. So last named link does recommend to take into account the personal situation of the patient.
What this means to me is to analyze, try to decrease the spikes and re-evaluate together with my cardio. It’s no surprise to me that everyone has spikes 16:00 to 18:00, I’m influencing them by taking my supps in time for that. Maybe I should if I also have a spike at 9:00 take my passiflora and magnolia bark with my early morning supps, I’ll have to analyze that spike too tho, up to now I can only see the afternoon one regularly. I can also influence my behaviour, i.e. don’t do stressful or sporty things in circadian spike times.
Quality of life: 90% (but “Feeling well”: 75-85%)
Lessons in self-care:
Reasons to be cheerful:
a) 2 subadult Robins visited me whilst I was changing the water at the back of the garden. If I were there more, they would be around me more, too. Maybe I should.
b) Seemed to have more energy in the evening, and calmer/sleepy, less tense, but not zombified.
c) Blackbird again singing his quiet song in the vine.
d) Nice to ‘walk’ around the garden in the dark of the evening. Love for the plants.
e) Remembered to stir the dung water I’ve got going. Bit late in the year, but still.
f) I love the call of our local great tit, it’s so cheerful.
Simplified: -
Foggies: -
Development: Look before Aug 22nd for more details. Click for links to "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting
Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023
- 8 weeks after jab#3: stabilized
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My food 2023.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries
- Research ToDo: supps webinar on Dec 2nd, fibro webinar transcripts, the MCAS summit, read