2023-09-11 Monday - recovery? Yup, still OK-ish. RR/supp changes? Yup, still good.
What … worked / went wrong … today:
2nd day of good BP after stopping eleuthero, and energy quite OK.
How was I today?: Feeling 75-85%-ish (
), energy today () - compared, sleep Sunday night , sleep Monday night except a long stuttery thunderstorm seemed to excite my system (), nausea 0% , fog 10% (), 1 bite improved (), vertigo 0%, 100% of the time ().
Today working mainly on … recovery, RR by stopping eleuthero, energy, vertigo.
RR: HIGH BP PERIODS: 25th morning 5h, 31st afternoon 50', 3rd morning 4h, 5th: midday 2h. 6th: 9:30-9:50, 12:00-13:00. 7th: 2h, NSDR helped, slight movement brought it up for a time. 8th: possibly high in morning, unsure how many hours. 9th: Measured less, not de-stressing enough. 10th: de-tensing. And brilliant after dropping eleuthero. 11th: Only up a few minutes with physical strain. De-tensed.
|09:07:00|135|86|64|Despite Stress-Mails|
|10:41:00|136|86|77|ordering supps|
|11:30:00|170|94|86|after moving stuff in garden|
|11:30:00|138|89|84||
|11:31:00|153|91|82|typing|
|11:34:00|135|85|79|a few seconds rest|
|11:34:00|129|81|78|a few seconds rest|
|12:29:00|156|85|77|rail timetable for work|
|12:31:00|146|88|77|hot, jaw tense, work|
|12:35:00|137|87|73|relaxing, still work|
|15:04:00|157|92|56|fitting|
|17:56:00|143|89|80|fitting|
|18:40:00|156|81|78|moving carrying laptop|
|18:41:00|160|92|79||
|18:43:00|132|83|79|after a few seconds rest|
|19:46:00|142|93|81||
|19:48:00|128|83|81||
|22:39:00|124|72|71||
|00:43:00|95|79|64arr|arrh|
|01:27:00|92|61|65||
|02:16:00|107|69|69|arrh|
|05:40:00|100|77|73||
|07:41:00|103|72|72||
|09:01:00|123|86|61|12.09.23|
1) Since Aug 9th BALANCING PEM VS. PPA: post exertional malaise (doing things, quickly severe, muscles) ❌ vs. post postural ache (rest) ✅ is the only possible adjustment now, stiffness OK ✅: no TT, cos mate can't, gardening/moving ➔ 80%/3 (✅), talking 15' ➔ 80%/3 ❌. White lips70%? (❌). Can't do much more for exhaustibility/Energy and Sleep than keep track of triggers see 2), click for details:
EXHAUSTIBILITY today: “88%". Changed on Aug 23rd: Energy was up to 18-20(-24)% (TT 5:1, workout possible) since June 21st 2023 (and new symptoms better) from new circadian rhythm, but kept going down to 10% (TT 0-2 games) from monthly triggers, see #3 Triggers. Today's ENERGY profile moderately slow, with "12h rest"), 1h very slow, 2h slow, 1h medium/quick
SLEEP (click for details): 7h07, up "2x" (1h50), all deep, probably up to 30' more. May have been fairly awake 1.5h (0:43-2:16), not sure, since I'm not writing things down precisely, just re-constructing from the RR checks. But 1h it was at least. But only one other break aside from that... 70%. Which means less GABA, watch that. (✅/❌), everything else OK ✅ ➔ getting up: 80%/2 ✅. Needed a FCS in the evening, which actually is more practical than in the morning. Clavicle in the morning, so pressing and massager. Thunderstorm excitement: NSDR then 'exercise' and ear plugs helped, sneezy at 5:40.
Sleep 22:40-7:37 Sum: 1h20+7h37-(1h45+5’)’ = 8h57-1h50 =
2) Watching TRIGGERS (updated Aug 23rd 2023) that have brought up additional symptoms at least once a month and are continually bringing energy down from 20% to 10%, Histamine/MCAS symptoms: Nauseous sinus burning headache: 0% ✅, tongue burning: 10% day, 20% night ✅. Excitement (= stress) ✅: Mainly work and trying to transfer money without bankcard or phone at daytime, thunderstorm at night slightly. Click for list...."
(1) JAB#3 (on Nov 7th 2022) caused MCAS / histamine problems like the first 2 till around July. Esp. ENERGY DOWN further to (10-)15-20% (max.), but more slow energy. Each jab -5%.
(2) Jan: TCM recommendations for a few weeks
(3) Feb: ~3% of levothyroxine pill Feb 24th till Mar 23rd: more energy, but lost appetite and weight and sleep, antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms (stopped cos causing nauseous sinus headaches & painfully dry mouth).
(4) Mar: inkling of Covid, negative, but cough, appetite, night sweats…
(5) Apr: cancer checking ending with weird onco,
(6) May 20th… 17 stress triggers, till end of May: 8-12%, seizures May-June every 10d.
June 21st: circadian rhythm Better to 18(-24)% a few days, but mostly back down to ~10%:
(7) July 19th-24th: 3 garden bird deaths
(8) July 31st-Aug 6th uro exam and methylene blue trial.
(9) Aug 9th… severe vertigo, checking, back to minimal blood meds.
3) DOCS: Last update Sep 7th: VERTIGO: My cardio agrees that I should focus on keeping blood pressure spikes down using supps and relaxation etc., but also meds at the moment, since the RR jumping up from 110 to 160 when I get up is a huge burden for the system and might well have caused the vertigo. Sep 4th: ONCO/URO: Sep 4th all cancer clear, slightly enlarged prostate, med for pee frequency (which I won't be taking). Click for details.
Starting Feb/March with “B symptoms” (GP Mar 29th: night sweats, cough plus appetite & weight loss), mamila swelling, PSA high Apr 20th. Mar 30th: So lung X-ray OK, Apr 6th: mamilla OK. Sweats OK Apr 9th, appetite OK-ish by June, weight OK-ish too, but down again after vertigo. Apr 24th: Weird, 20’ onco appointment, feedback STILL pending, incl. onco blood results (just others on July 20th). So now uro at least: Nothing to be seen, whether PSA & testosterone bloods or in bladder, just prostate a little enlarge, after phytosterols don’t seem to be working, prescribed a med for pee frequency which I doubt I’ll be taking. Feb-bloods: Ω3 needs increasing, much too low.
The risky eating the past few days went quite well, just a bit of wind. Eating late again today wasn’t sensible, altho it went OK. That was due to my wife needing a break after having lots to do, and wanting me to, too, and then suddenly have the idea before the thunderstorm to have a look around the bushes where I lost my stuff, which was silly, but still, sometimes things like that are mentally necessary. If I hadn’t procrastinated beforehand, I c’d’ve eaten before. I was better, I started with supps at 19:00, which would have been quite good. But I really need to get back to doing supps at 15:00 and being able to eat by 19:00. Mondays evenings are always taxing for my wife cos she has to clean out the guinea pigs cos the waste is collected Tuesdays. So I should know… (as well as reckon with things going wrong and not calculate it to procrastinate myself even more).
4) UNDER CONTROL: attention necessary ✅/(✅):
1) GI, pee, local pains, weather, dry mouth well under control: Details...
except GI: stools loose0% , appetite , pee pain: 0p1-2 , lower back unrest . Jaw: 2 new fillings June 23rd were enough, solved for the time being, but keep spaces free. Weather: SUN / WIND , dry mouth (day and) at night at least not hurting/sticky (
).
2) Seizures and esophagus blocks fairly under control - click for details on SEIZURES: GABA better up (also for pee pain). Aug 1st, July 25th + 7th were only seizure-ish 4-5x, increase in May-June was stress/histamine/less GABA: LAST Aug 9th: 2x. July 17th (2), Jun 23rd (4) & 16th & 6th (2), May 25th (2) &14th/13th, Apr 16th/15th. Last ESOPHAGUS BLOCKS: Sep 11th. Aug 31st, Aug 26th, Aug 8th, July 23rd & 16th, May 31st (all 3 cos distracted), before that Apr 4th ✅.
Last focal seizures: Aug 9th: 13:42 & 15:40 (after vertigo). Aug 1st: 4-5x seizure-ish. July 25th: seizure-ish 3-4x. July 17th: 18:30 19:55 after thunderstorm. July 7th seizur-ish 4x. Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: Generally, mindfulness to be extremely careful and stop eating, spread supps & meal (length up to 2h), whenever there’s the slightest pressure. Sep 11th: unusually eating a peach, which I thought’d be easy, wasn’t tho. Aug 31st supps again. Aug 26th: drinking supps with buttermilk instead of almond milk, Aug 8th: carrot, then chocolate. July 23rd cos distracted by the Kami stress. July 16th I was concentrating on testing if hazelnuts increase my nicotinic acid flush with my 3rd meal, and disregarded a slight throat pressure, which went totally wrong, was the last straw for an esophagus block, so had to get it out, lots came out, incl. supps, and needed to wait quite a bit afterwards. (June 6th narrowly avoided.) May 31st, argument made me forget to concentrate on a small carrot. Apr 4th: Carrot, got it out quick. Mar 26th just the supps. Mar 23rd: Tiny bit of parsnip I think it was, had to get it out, had no patience to massage longer than 5-6’. Mar 13th (roughly) same as: Feb 26th: midday: block not waiting long enough with muesli after supps. Feb 20th eve: block from I think carrots resolved with massager. Feb 5th: From C-supps. Jan 19th: Sometimes do use massager a while to make sure. Jan 17th: I can take my B supps and then go to bed again atm. Jan 8th: Block after evening supps, maybe from twisting. Jan 7th: Testing if twisting before, while & after pills & food increases esophagus blocks Jan 6th: Slight blocks. Jan 5th: Medium block in evening. About 5x small blocks from pills around end of the year. Dec (20th, 15th) 11th (9th,) 1st, Nov 30th 2x, 29th 2x, (28th,) 24th, 22nd, 20th. Powder blocks in funnel if it’s too much in one go…
Left clavicle came up again at night, so I need to keep a grip on that all the time, strangely my right elbow from yesterday night didn’t recur, my right knee seems OK, sometimes my calves and soles aren’t OK, they don’t take too well to my occasional stretches, I still haven’t understood why treating them is often counter-productive.
SELF-TREATMENT & SUPPS optimal, stable, but necessary - NEW Sep 11th (started around 8th): Stopped eleuthero and reduced ginkgo to 2. Still NADH sometimes, lots of Ω3 (cos not enough from olive oil), plus passiflora, magnolia & 0.3g GABA at daytime instead of night. LDN might be manufactured this week. Aug 6th: 40 supps, 435€/m +20€/m cps. Last changes see before Aug 22nd. Next: LDN?
SELF-PHYSIO: Always OK, see before Aug 22nd what I now always do when needed. Next: jaw-joint?
Supps Aug 6th: 40 supps (was 42), costs 435€/m (was 470) +20€/m cps. Sep 11th (started around 8th): Stopped eleuthero and reduced ginkgo to 2 is reducing BP. Sep 1st: NADH, passiflora, magnolia and more GABA to daytime. Last changes see before Aug 22nd next: theanine divided up into 2x0.1g, maybe LDN, probably not creatine, colostrum or ATP again. For details on the lists, with dosing batches by times and tubs see before Aug 22nd:
No ‘research’ today
Quality of life: 85%, “Feeling well”: 80-85%.
Lessons in self-care:
a) I spose cutting thru to getting my work stuff done properly was more important than getting improving my daily routine, but
b) Now I need to try getting both improved.
c) Reducing forum time and increasing blog time (= more self-care by less care for others) is helping for routine and for BP.
Reasons to be cheerful:
a) 2nd twin pink rose directly next to the first a double blossom which was nothing on the red one, where there were up to 10 together, but on the pink one it’s unusual.
b) Got some difficult work stuff well on its way.
c) Robin singing more often, Blackbird sometimes slightly louder.
d) I like the thunderstorm.
Simplified: -
Foggies: -
Development: Look before Aug 22nd for more details. Click for links to "biggest successes" (after June 18th 2023), "summary" (on June 14th 2023), jab side effects, foods, blog references, e.g. abbreviations, & guideline for symptom tracking & trigger hunting
Entry changes (after June 19th 2023)
Biggest successes (after June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023
- 8 weeks after jab#3: stabilized
- 1st Jab-sfx-summary, last edit: Feb 7th.
- My food 2023.
- My blog references, e.g. abbreviations, supp chart/overview
- My “How to symptom track & trigger hunt”
- Next up…: Summaries
- Research ToDo: supps webinar on Dec 2nd, fibro webinar transcripts, the MCAS summit, read