JayCS’s Fibro Blog

Symptoms & Treatments
1617

2024-06-09 Sunday

Summary:

  • LDN May 20th- 3.5mg (Mar 21st- 3mg) :white_check_mark: for Energy “30%” :white_check_mark:, partly usable = 14% :x:, energy profile “very slow” :x:, but still TT (at 17:10) 1:1 (:white_check_mark:), jackknives :white_check_mark:, walking / cycling 15’ :x:.
  • Triggers: Doc appt. on May 29th: 9 days :x:. Re-exhausted from doc appt. Jun 7th :x: the day after - writing might at least set things straighter? :white_check_mark:. 0 bites :white_check_mark:.
  • Last focal seizure: Jun 5th (9d)
  • Sleep good :white_check_mark:: Screen curfew 19:40 :white_check_mark:, late bed cos of: wife / guinea pigs “:white_check_mark:”. QCS at 8:00 :white_check_mark:. Open window/fresh air: 4h :white_check_mark:.
  • Thoughts: -
  • Feelings: Coping well with these additional challenges I don’t really need, but know very I’m just doing them cos my wife wanted me to and praps get a tax compensation for retiring early now.
  • Cheer: Blackie sang from my window sill! 3 young ones!!! Survived raven and great woodpecker alarm. Where were the robins late and early?
  • From the current FMA UK newsletter: 1) “HEALS” helped implement mindfulness changes. 2) Working at an art gallery. 3) LDN for cognition and (minority) for pain. 4) Normal CBT is just as good as exposure therapy. 5) Ketamine implant promising.

Pic(k)s of the Day

= expanding happiness

Green waceling silhouette on window against lime tree opposite:

IMG_20240609_090710 Florfliege silhouette on window with lime tree smaller
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Stinging nettle flowers:

IMG_20240609_102824 stinging nettle flowers smaller
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Honey bee on trailing bellflower:

IMG_20240609_172606 honey bee on trailing bellflower best smaller
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Pink roses look classy against dark green:

IMG_20240609_172659 pink roses against dark green edel smaller
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Noble raven pair sitting on satellite dish, and flying off, after having “threatened peril”:

VID_20240609_175804 1'12'' raven pair off after threatening everyone sitting up on the sat
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VID_20240609_175804 1'32'' raven 1 of pair off after threatening everyone sitting up on the sat
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VID_20240609_175804 1'33'' raven 1 of pair off after threatening everyone sitting up on the sat
VID_20240609_175804 1'50'' raven 2 off after threatening everyone and then sitting up on the sat
VID_20240609_175804 1'50'' raven 2 off after threatening everyone and then sitting up on the sat828×584 37.7 KB

These 15 swift snaps are as much about the sun, the blue sky and the contrast with the lime tree as their speeding around in groups:

VID_20240609_081658.mp4 0'33'' 4 swifts distant in sun rays
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VID_20240609_081658.mp4 1'15'' swift wing 3 reflecting sun in blue sky
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VID_20240609_081658.mp4 1'15'' swift other wing reflecting sun in blue sky
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VID_20240609_081658.mp4 1'15'' swift wing 3 reflecting sun in blue sky
VID_20240609_081658.mp4 1'15'' swift wing 3 reflecting sun in blue sky788×416 29.2 KB

VID_20240609_081658.mp4 1'15'' swift wing reflecting sun in blue sky
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VID_20240609_081658.mp4 1'56'' 2 swifts in blue sky
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VID_20240609_081658.mp4 2'20'' swift in blue sky 01
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VID_20240609_081658.mp4 2'20'' swift in blue sky 02
VID_20240609_081658.mp4 2'20'' swift in blue sky 03
VID_20240609_081658.mp4 2'20'' swift in blue sky 1
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VID_20240609_081658.mp4 2'20'' swift in blue sky 2
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VID_20240609_081658.mp4 2'20'' swift in blue sky 3
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VID_20240609_081658.mp4 2'20'' swift in blue sky 4
VID_20240609_081658.mp4 2'50'' swift in blue sky above lime 2
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VID_20240609_081658.mp4 2'50'' swift in blue sky above lime 3
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LDN: May 20th- 3.5mg (Mar 21st-May 19th 3mg), click for effects/dosage...)

10th- 2.75mg, 9th 3mg, 8th ?2mg, 6th-7th 2.625mg, Feb 8th-Mar 5th 2.25mg better than 3mg. :white_check_mark: (Slowly up from Oct 1st ~0.07mg.
Walnuts, all apple sorts, larger portions of baked beans, I think that’s all LDN.
Forgetting Dec 23rd caused big energy dip immediately, so there’s no drug level, it works day to day. (It’s constantly and reliably improved mainly energy (from 10%), heaviness, walking (from 5’), fine motor skills, stiffness (from 70% down to 10%), recovery time, Ache, pains, sleep :white_check_mark:, possibly from Dec on drinking only 2L/d :white_check_mark: which is helping sleep, and possibly reducing histamine and/or tannin from walnuts :white_check_mark:, but not my paleness (yellow/white face, black eye rims and white lips) or listening ability/sense :x:. Last side effect was wobbliness, listening problems and Ache on day (1 and) 2 of 2mg (Dec 12th), before that “hangover” on Oct 20th :white_check_mark:.) .)
Dosage: Oct 1st ~0.07mg evenings, 8th 14:20 0.125mg, 9th-15th 10:00 0.125mg. 16th -19th 10:00 0.25mg. 20th-31st 0.5mg, 1st- 2x0.5mg, 10th (2+1)x0.5. 16th (1+1), 17th 2x0.5, 19th 1x1.5, Dec 11th 1x2, Dec 27th 1x2.25mg, Jan 10th 1x2.5mg, 16th 1x3mg. Feb 5th 1x1.5mg, Feb 8th 1.5+0.75=2.25mg. Mar 6th-7th 2.625mg, Mar 8th 2mg I think (2.75mg intended), Mar 9th 3mg, Mar 10th 2.75mg, Mar 21st- 3mg.
Additives: white capsules with TiO2 (HPMC with SiO2).

1) MAIN ISSUES: talking 15' ➔ 80%/3 ❌, music 5' ➔ 80%/3 (no nausea, strain less) ❌, white lips 70-80% (❌), TT (at 17:10) 1:1, won 2nd game surprisingly high, considering. I asked to keep my slight stress down by not using a cappuccino as a reward if he manages to beat me, for once (moving 10%, talking 10%, counting 20%) (✅), moving ➔ 75%/4: 10:40 exhausted after shop 10’. 12:28 just getting up stairs is such a strain today (❌), balance (✅), body fog (❌), jackknives ✅, SO post exertional malaise (❌), "post postural ache", "PPA" (✅), stiffness (✅), exhaustibility theoretically "70%" ✅ / actually "86%" ❌ and sleep 7h29 ✅ (Open window/fresh air: ✅. vQvCS: 8:00 ✅, "PPA": 2 ✅). Energy profile: more "very slow" than "slow", with "5h rest", 6h very slow, 5h slow, 0h medium, 0h quick. Click for past months...
EXHAUSTIBILITY: Theoretically stably better from circadian rhythm, then LDN since Oct 1st - but moderate triggers bring it down to 10% for days to weeks.
SLEEP (click for tonight's details): 7h29, all deep ✅, windows closed and ear plugs in at 3:00. QCS at 8:00 QCS = very quick very cold shower (22 issues under control).

Sleep 23:10-6:57 4+5+5+4’, 0 deep doze. Sum: h50+6h57-(x5’=)18’ = 7h47-18’ = 7h29.
23:10 after listening to the original of Knock on Wood, cos I wanted a selection of ‘hooks’ to keep my mind off the doc - which worked out fine, it was actually thinking about the swift nesting boxes being unsuccessful.
0:26 1st 4’, closed 1st of 3 windows. Throat dry, but not sore, no ear plugs.
1:46 2nd 5’, 2nd pills, 2nd window, throat only slightly sore and dry, nostrils free, air smell only slightly fumes, no ear plugs.
2:55 3rd 5’, 3rd pills, 3rd window, now ear plugs.
4:33 4th 4’, 4th pills, no ear plugs, again 0 robins near, 1 on street & 1 GreatTit further away, but blackcap, and blackbirds
6:57 up. (thought 5th 4’, B0, maybe dozing? Nope, up)

2) Watching TRIGGERS, esp. of exhaustibility. Bites OK ✅. Histamine foods: 20g goat/cow cheese (✅). Strain: 13:50 only now do I realise I’m feeling so bad cos of the doc appt. on Friday, feeling OK on Friday was cortisol that pushed me thru for a certain time. 14:19 rattled and confused, can’t keep my mind on track. 17:10 despite heaviness TT 1:1, surprisingly. Doc appt. May 29th took 9d ❌. Bad sleep lab psychiatrist appt on Jun 7th ✅ that day, but ❌ from 8th on. Dentist's local anaesthesia on Feb 15th flared till Apr 28th ❌, next I'll need 3 tiny fillings, definitely without anaesthetic. Click for list Nov 7th 2022 to Feb 20th...."

(Nov) 7th 2022 caused MCAS / histamine problems like the first 2 till around July. Esp. ENERGY DOWN further to (10-)15-20% (max.), but more slow energy. Each jab -5%.
Made me stop cryotherapy/acupressure and acupuncture from Dec on!
2023:
(Jan) TCM recommendations for a few weeks took my appetite.
(Feb) ~3% of levothyroxine (T4) pill Feb 24th till Mar 23rd: more energy, but lost appetite and weight and sleep, antihistamine back up to 10mg to curb T4-insomnia & histaminey symptoms (stopped cos causing nauseous sinus headaches & painfully dry mouth).
(Mar) inkling of Covid, negative, but cough, appetite, night sweats…
(Apr) cancer checking ending with weird onco,
(May) 20th… 17 stress triggers, till end of May: 8-12%, seizures May-June every 10d.
(June) 21st: circadian rhythm Better to 18(-24)% a few days, but mostly back down to ~10%:
(July) 19th-24th: 3 garden bird deaths
(Aug) July 31st-7th uro exam and methylene blue trial. 9th… severe vertigo, check in clinic no result, so trying blood meds again. Hindsight: Painful uro exam on 7th, stiff neck from bird deaths, twist-stretching too much.
(Résumé) These triggers are “monthly” and kept bringing energy down from 20% to 10%.
(Sept) Histamine/MCAS symptoms (headaches 0%, tongue burning 10-20%, down. Further painful bladder exam injured (‘screaming’ 3d) & scarred me, caused UTI (2x3d). CoV-type infection (12th 10 days) (hantavirus??), work stress, abdomen pains, 24th-: listening to music painful, guinea pig, wife, CVD meds bad.
(Oct) (V)LDN helping a “lot”, Complex filling OK, CVD meds bad, BP low and slow OK.
(Nov) Atorvastatin difficult.
(Dec) Guinea pigs, atorvastatin, boss, often post postural Ache, DAO: baked beans tough, better with less sauce and more DAO, but walnuts OK without now. 28th: car trip to kids and and only 2x20’ bad for several days. NYE stress.
2024:
(Jan): (1st) DAO: 0x: 100g baked beans with reduced tomato sauce for 2nd meal caused tongue to burn a bit for half an hour, 3x: 150g for 3rd meal caused no burnt tongue or histamine reaction at all, despite the addition :white_check_mark:: Makes a difference! (2nd) Clearly severely woozy brain from talking during TT. (3rd) Are the seizures on Monday, pee and TT issues praps all caused by histamine from the baked beans, despite DAO preventing direct reactions, and that’s decreasing serotonin? 6th: Phone alarm music causing hurt from listening? (8th) Onco appt. better in evening, worse at night and next morning, OK by 10th. (11th) Contrast orally plus injected (doc thinks the excipients) caused a week of overall Ache, but energy and stiffness OK-ish, then (15th) fairly severe vertigo with walking problems and then 3h of vomiting, diarrhea the following day, but firm before and after, nausea and pain continuing till 18th, 7 days, then suddenly OK. Praps the oral one for gut, rather than the intravenous one (seemed not too bad in August), or praps cos too frequent/soon after the last. (25th) professional tooth cleaning.
(Feb) (3rd) stomach praps from apples & naltrexone, insomnia praps from naltrexone 3mg, pain praps from ezetimibe 3mg. Strain and sadness from guinea pig eating losing appetite and weight again, 7th better. (8th) LDN down to 2.25mg improved 4 issues, so increasing to 2.5, then 3mg was too much (cos next to GABA?). (15th) Dentist (cap-preparation) went well, but flare 17th-… from local anaesthetic (16th) temp cap fell of, (20th) got it put back on. (29th) Cap on.
(Apr 28th) Recovering from the anaesthetic after 10.5 weeks. Unsuccessfully re- trialling DAO (Apr 20th-) for vanilla and raspberry in yogurt (April 16th-24th) and marmite (e.g. 25th): only worked for sinuses, NOT for pee / dryness, sleep and possibly seizures (2 on Apr 22nd).
(May 29th) Good 20-25’ allergist appt., fairly recovered Jun 7th (9d) :x:,
(Jun 7th) Bad 20-25’ sleep lab psychiatrist appt, first :white_check_mark:, from Jun 8th on :x:.

(3) DOCS: 14:51 decided I need to get the appt. out of my system by mailing to set things straight, even if nothing comes of it. 17:10 my 2nd TT mate was thinking to advise about anger about the doc, but I quickly convinced him I’m not in the least angry at her, taking her reactions personally at all, so we joked a bit about anger management. I just wrote the situation that I’d like my symptoms noted in a report, if possible an ME/CFS diagnosis, and pointed to more notes they must have about things like multiple exclusions for pain and fatigue (e.g. with spinal tap). And just ended “what do you think?” without any moralism, just pointing out what I think what had gone wrong and why. If this doesn’t work I could report her or write a bad review, but I believe these were beginner’s mistakes and that wouldn’t be fair and no help for anyone. Trying for higher disability from Apr 25th on. Click for latest (Jun 7th) details.)

DISABILITY: (May 29th) Allergist helpful (Jun 7th) sleep lab psychiatrist not helpful, coming up: (Jun 10th) public health officer. Then make another GP appt. and (Jun 26th) Cardio.
GP (Apr 25th): Just update (cancer and bp OK), and asking about possible help with sick notes and disability.
GP (Apr 25th): Just update (cancer and bp OK), and asking about possible help with sick notes and disability.
CARDIO (Apr 26th): Heart OK, (Feb 2nd) Belly plaque still “25” OK, next with bloods. (Dec 11th) Rosuvastatin?
DERM (Mar 19th): wart (but tea trea oil helped) on genetic enlargement under toenail.
ONCO: #2 (Jan 8th/11th/18th 2024): nothing in bloods or contrast CT, believes it’ll be nothing docs can find, the week of reactions likely from some excipient(s). That finishes the cancer exclusion Odyssey since April 2023.
URO (Nov 8th) IPP/PD shockwave therapy? (Bladder exam July 31st and bloods Aug 7th followed the vertigo/BP attack on the 9th - so maybe contributing, altho Aug 8th I could play TT 5:1.

(CVD, incl. med effects: Jun 7th: Watching palpitations (regularly lately) / HR 40 (new discovery Jun 7th). Click for latest (Jun 7th) & next changes, and details...)

(Jun 7th) Watching palpitations / HR 40 = bradycardia.
Mar 21st: Horse stance 70’’ ➔ 164/107-90 ➔ 139/94-69 ➔ 136/87-70, each inside of 1’. Confirms stopping candesartan.
Mar 17th BP getting too low, so stopped candesartan.
Thought Mar 17th: If BP spikes were from MCAS flare after bladder exam (in the summer), why is it now not spiking after local anaesthetic flare (in the winter)?
Atorvastatin Dec 16th- 0mg and ezetimibe Feb 4th- 0mg - trying 1mg again once LDN is sorted. BP :white_check_mark:, despite only ~1mg.
CANDESARTAN (BLOOD PRESSURE): Even alone starting Oct 24th was dreadful, but spreading over the day in ~0.5mg specks from 31st on worked, up to 4mg (5) since Nov 6th, but checking RR 24th/25th too low, so down to 2mg from Dec 10th. Dec 17th: BP at night sitting down :white_check_mark: (SBP ~100), so 2mg is a good compromise :white_check_mark:. (Jan 28th) been taking <1mg lately. Mar 17th: 0 since a few days now, cos BP low now.
ATORVASTATIN (LIPIDS): Nov 13th 1mg/d, + caused severe fatigue/Ache, stopped 24th, re-started 27th with specks of the middle without the mantle excipients good, but 28th 1+1 and then 2mg too late caused insomnia, so earlier in the day, increasing quickly from 29th to Dec 2nd: 10mg+, un-mantled, with first only slight problems, but increasing week of 4th, so Dec 10th-13th 0mg, 14th 5mg later likely caused pain 20:00-23:00… Summary without coating: Dec 2nd-9th: 10mg+, 10th-13th 0mg, 14th-15th 5mg, 16th- 0mg). Further trials.
EZETIMIBE (LIPIDS): Feb 3rd: muscle pain praps from 3mg, so 4th- 0mg.

4) UNDER CONTROL ✅ (attention necessary (✅)): 12:28 Haven’t had bladder pain for ages now, got that under control. Watch GABA intake (compliance) better! Resumee Jun 2nd of Creatine monohydrate Apr 9th- 2x5g for more (slow) energy has had a small positive effect, but less than the LDN. Might be trying creatine malate next. Last seizure Jun 5th (2), 9 days since last. Last esophagus block May 7th: 7 months without. Carnitine Apr 14th-, EGCg Apr 13th-. Creatine Apr 9th- 2x5g, LDN May 20th- 3.5mg. Mar 21st-May 19th 3mg, Seizures slight, weekly & during TT from Mar 20th to Apr 2nd, then Apr 8th (3-4), Apr 22nd (2), May 2nd (1) 13th (1). Click for latest (May 13th) & next changes...

Latest: Seizures increased since Feb, and weekly since Mar 20th.
Reduced vit. C to 3x400mg, like Masterjohn recommends. Nux vomica D12 helping for nausea from music/talk, sleep and bladder not much. Also for sleep: Cocculus and acidum nitricum later. Supp costs ~400€.)

1) GI, pee, local pains (incl. jaw & bladder), weather, dry mouth and drinking well under control: So no details at the moment.
(2) Seizures and esp. esophagus blocks fairly under control - click for details. Last SEIZURES: 1-2x/m - Jun 5th (2) May 27th (1) 21st (1) 13th (1) & 2nd (1). Apr 22nd (2) & 8th (4), 2nd, Mar 28th, 20th & 2nd, Feb 19th & 14th & 3rd Jan 1st 2024. 2023: Dec 22nd & 2nd/3rd Nov 20th Nov 13th & 5th Oct (26th/27th Oct 18th/19th Sep 19th Aug 9th (vertigo day). July 17th. Last ESOPHAGUS BLOCKs May 7th. Oct 21st.)

Last focal seizures: Varying from 2-weekly (May-June, Oct-Dec, Feb-Apr: 11 / 5 / 12 / 18 / 8 / 5 / 6 / 14 / 10 / 11 / 8 / 6 / 9, so weekly mid-Feb and mid-Mar to mid-Apr, praps cos of creatine vs. GABA) to 4-weekly (before May, July-Sept, Jan). Increases from stress, histamine, and less GABA. Jun 5th (2) (9:54 rabbit holing, 17:52 beginning of TT, from less GABA). May 27th (1) 21st (1 after TT, forgot some GABA) & 13th (1: too little sleep) 2nd (1: after TT) Apr 22nd (2: after TT), 8th (4: errands, eating, TT, after meeting with kids on 7th) 2nd (1, TT) Mar 28th (1, TT) 20th (1, TT) 2nd (2) Feb 19th (1) Feb 14th (1) Feb 3rd (1) Jan 1st (3) Dec 22nd (?2, slight) Dec 2nd (1) & 3rd (1) Nov 20th (1) Nov 13th (1) 5th (1) Oct (26th-)27th (1) Oct 18th/19th (3). Sep 19th? (1). Aug 9th, vertigo day: (2). July 17th (2), 2 slight focal seizures about Dec 22nd? Dec 3rd (1) 13:00 during TT, after feeling a bit seizure-ish, and not able to win: GABA my main suspect, cos of less sleep breaks. Dec 2nd (1) after the dizziness of 15’ of concert or from too little GABA at night. Nov 20th (1) I think it was, after food fell off my spoon into a bowl… Nov 13th 20:30 slight cos of wind noise. Nov 5th very slightly seizure-ish at TT, then 20:50 (cos only 2x GABA at night, not compensated). Oct (26th-)27th 10:00 (seemingly seeing an ex-flat mate), seizure-ish 2x 26th. Oct 18th 17:50 (going on to busy street) & 20:15 (emotional music that could reach me). 19th: 11:00 table tennis. Sep 19th?? Aug 9th: 13:42 & 15:40 (after vertigo). Aug 1st: 4-5x seizure-ish. July 25th: seizure-ish 3-4x. July 17th: 18:30 19:55 after thunderstorm. July 7th seizure-ish 4x. Increase in May-June was stress, histamine, and less GABA: Jun 23rd: 11:30 12:15 14:00 15:06, 2 before, 2 after antihistamine, maybe from the confused night, taking sleep meds too late and more?? Jun 16th 20:05, June 6th 13:45 & 14:35. May 25th 17:40 & 21:00, maybe from higher histamine and not enough GABA lately, May 14th 9:00 and May 13th 20:00 from stress I think, but I have also reduced the night time GABA praps too much. Apr 16th 13:25, Apr 15th 22:00 (GABA too late plus cold type symptoms = histamine), Mar 31st 19:00 (too little GABA, too strenuous meeting), Jan 15th 10:40 (from a pee urge, only 2nd “wave”). Jan 14th 23:58 (no trigger, praps missing out on .6g GABA Friday). Jan 5th (after being scolded for being hyper). Dec 11th: 1x. Nov 21st: 2x.
Last esophagus blocks: May 7th 2024. Oct 21st 2023. Sep 30th, (25th,) 16th, 11th. Aug 31st, 26th & 8th, July 23rd & 16th, May 31st, Apr 4th. Deleted further details on/from Dec 30th 2023, cos last block worth counting on Oct 21st. Mindfulness, care, stop eating whenever there’s the slightest esophagus pressure.

SELF-TREATMENT & SUPPS optimal, stable, but necessary, Carnitine Apr 14th-, Apr 13th EGCg, Apr 9th- creatine 2x5g (Mar 19th- 2g in the morning), LDN May 20th- 3.5mg. Mar 21st-May 19th 3mg, (Jan 16th: Less magnolia bark and pine bark cos of possible vertigo side effect. No ellagic acid (not convinced of use) or feverfew (serotonin and dizziness as possible side effect). Jan 16th: LDN 3mg. Jan 10th: ~29 supps + LDN (was 40) costs ~400€/m (was 350€/m) +20€/m cps. Last changes see before Aug 22nd.)
SELF-PHYSIO: Always OK, see before Aug 22nd what I now always do when needed. Jaw-joint end of Sept. Nov: salivating technique(s) for dry mouth:
Supps: Carnitine Apr 14th-, EGCg Apr 13th-. LDN May 20th 3.5mg (Mar 21st-May 19th). 3mg, Mar 19th- creatine monohydrate 2g before morning meal. If monohydrate doesn't work, then the malate form. Jan 18th: Reduced vit. C to 3x400mg like Masterjohn suggests. Jan 10th: 29 supps + LDN cost 400€/m (was 395€/m) +20€/m cps. Try creatine again when LDN is plateauing, if not the monohydrate then the malate form. 16th: no feverfew (reduces serotonin, possible dizziness), less magnolia bark and pine bark (cos of possible dizziness/vertigo). 10th: no ellagic acid (not convinced of use). Dec 22nd/23rd: stopping ginkgo caused hearing/tinnitus/balance problems for 15h. Apigenin for sleep seldom. Dec 19th/20th: DAO working for walnuts, but only 10% (on 13th) for baked beans. No B2 lately. Nattokinase Nov 4th- : 1x0.1g, from 15th 2x0.1g. Oct 16th: Silymarin 2x.5g now, LDN Oct 1st- 0.25mg, 9th- 1.25mg, 16th- 0.25mg, 20th 0.5mg, Nov 1st- (1+1)x0.5mg, 10th- 2x0.5 and 1x0.5mg, 17th- 2x0.5, 19th- 1x1.5mg, Dec 11th 1x2mg, 27th 2.25mg, 10th 2.5mg, 16th 3mg. Deleted details Dec 30th: Stopped eleuthero, cos of BP. NADH. Theanine 2x0.1g since about Sept. Last changes see before Aug 22nd. Probably not colostrum or ATP again. For details on the lists, with dosing batches by times and tubs see before Aug 22nd:

‘Research’ today

  1. In their newsletter, Hazel Boreland from FMA UK illustrates how then 10-week programme HEALS for health condition management with mindfulness was more helpful to her than others, mainly cos of the education on behaviour change, e.g. the ‘Tiny Habits’ technique (“This is about making tiny changes in your life that over time become habits, and tying them in with something you already do”. - as said I’ve long become expert and learnt to implement most new habits immediately.)

  2. That newsletter also linked to the article about Stacey Smith working with fibro at the London National Gallery (which I love almost as much as the Tate, so interested):
    Working life | 'Fibromyalgia is as much a part of me as my red hair and love of leopard print' - Museums Association

  3. And also to an LDN for fibro pain study:
    https://www.medpagetoday.com/rheumatology/fibromyalgia/107722
    It didn’t fare well for pain on average, but:
    “naltrexone showed signs of providing a genuine benefit for cognition.”
    “Still, roughly one-quarter of the naltrexone group reported a 50% improvement in pain intensity, versus just 14% of the placebo group, which the investigators considered a clinically relevant point to consider in interpreting the overall findings.”

  4. Study: Traditional CBT as effective as exposure therapy for fibromyalgia

  5. Silo Pharma's ketamine implant for fibromyalgia shows promise

Quality of life: 90%

Lessons in self-care: -
Reasons to be cheerful:
a)-d) Plant, bird & animal life:
a) Plants: (Newest blossoms) -
b) Birds:
*(Every day cheer, song/calls/seen: Woodpigeons :white_check_mark: Robins :white_check_mark: Blackbirds :white_check_mark: Sparrows :white_check_mark: (Nuthatches 0) Magpies :white_check_mark: Dunnocks :white_check_mark: Great&BlueTits :white_check_mark: Jacks on the increase (from immigrated ones) :white_check_mark: (Chaffinch nearby :white_check_mark:) (Chiffchaff nearby :white_check_mark:) Collared dove 0. Blackcap :white_check_mark: Swifts 16x :white_check_mark: Birds bathing 4x :white_check_mark: Great Woodpecker :white_check_mark:) Latest / earliest robin song: …HARDLY LATE / HARDLY EARLY (maybe shy cos of raven attack, cos back on Monday), blackbirds: 22:15 / 4:30.
(Regular cheer, song/calls/seen: Raven(s) - beautiful and exciting, despite danger and after all a kind of bird of peril, like all raptors, they have to remind me how easily all the young birds might well become bird food.)

  • Blackbirds, 3 young!: Young blackbird 9:26 in cellar entrance, flew off a bit, preening, near, some things are had to land on. 10:40 2 young blackbirds often near veranda. 12:28 saw 3 young blackbirds simultaneously for the first time. 14:51 2 young, 1 swooped around neighbour’s cherry. 14:53 One young getting cherries, the other chirping more baby-like down below. Again a 3rd one, safe now.
  • Blackie blackbird: 13:33 Blackie sang from the window sill in front of my 1st floor room, I saw his head, quickly ducken, was able to tape him, keeping my head down. 20:32 Blackie singing in the street opposite my window again.
  • 22:30 no robin, blackbirds stopped at 22:15 with their go to bed scolding. Weather is OK, but rain looming up.
  • Predators (ravens + Great Woodpecker): 18:01 Alarm by Blackie and Blaxie turned out to be from a pair of ravens , the 3 young ones were flying to and fro, sometimes scarpered behind each other in a straight line. Good they learnt about danger without harm. But of course ravens have to eat “meat” too. After looking for cats for 20’ I saw them sitting on one of the highest rooves, then flew off slowly, and Blackie could sing his song again. Great Woodpecker regularly: 11:31 alarm call, magpie and great woodpecker around. 14:51 on lilac, blackbird chased him. 14:53 enemy-from-above alarm call, maybe cos of him. 18:34 one blackbird scolding, one enemy-from-above-call 19:17 enemy-from-above.
  • I’ve often mistaken blackcap for dunnock, but heard dunnock again today: higher, thinner voice.
  • No chaffinch in the garden area normally, but in neighbourhood, like chiffchaff.

c) Animals: (guinea pig antics :white_check_mark:. Redbrown squirrel :white_check_mark:, maybe 2)
Bats 0 Bank voles :white_check_mark:. Insects: bees, bugs :white_check_mark:
Guinea pigs: I’ve read more tree leaves for the guinea pigs, see if they like them like they love hazel leaves.
11:29 bank vole near not as scared as recently.
14:19 Sorry I killed a big housefly by mistake, just wanting to usher out by swinging a towel.

e) Human life: (TT laughter (:white_check_mark:) - whoops, forgot a few days last week. Skip-Bo :white_check_mark: Wife :white_check_mark: Art :white_check_mark: Music listening :white_check_mark: Nice talks :white_check_mark:)
f) Environment: (Outdoors :white_check_mark:.)
g) Body: (“Theoretical” energy 30% (:white_check_mark:).) Bladder pain 0 for months now!
Foggies: (Body (:x:). Brain (:x:).) Audio noted the raven alarm and table tennis etc. twice copiously, I’m regularly now forgetting things I’ve just done (inside the last 30 or 60’)
Simplified: Still learning to remember the shoe simplification procedure.

Click for development/summaries and see profile...

More details before Aug 22nd.
Entry changes (June 19th 2023)
Biggest successes (June 18th 2023)
Summary of fibro 2020-2021, jabs 2022 and first half of 2023