Needing some encouragement

It has, again, been awhile since I have been on this site. I don't know why I do that when I always get so much out of reading all the things everyone deals with and how they still keep moving. I need to be more intentional about making this site a priority. Even if I don't comment or start a discussion, it helps just to see everyone else's comments.

I have been struggling for some time now ... actually for about the past 20 months. First, my dearest friend for the past 40 years, died from MS at the age of 56. We hadn't been able to see each other much due to the 100 miles that separated us and her illnesses as well as mine. But we were there for one another. Pick up the phone and it was like we'd spoken the day before. For her, I was glad that her suffering had ceased. Her life had been an incredible struggle for 25 years or more. But I miss my friend. We had another friend that we had known for most of those 40 years. She and I helped one another to survive our friend's passing. And wouldn't you know, 18 months later the second friend is now gone again at the age of 56. I don't think that I have really recovered from her passing. Again, it was a blessing for her from the COPD and heart issues and too many other things to list, but boy, do I really feel alone. You can't replace life-long friends like that. People who knew you when you were young and stupid and lived to be old and stupid together. Well, maybe not old, you can see what I mean. When I walked into the funeral home for her visitation there was a picture up of the 3 of us. That was all it took. I can't help but resent that my 2 best friends have left me here to carry on without them.

Since then, I have been having more health problems of my own. Liver tumors, stomach ulcers, migraines. Not to mention a boss who has suddenly started criticizing me for not keeping up with the things in the office like I used to be able to do. I have worked there for 14 years and, even if I were healthy, I wouldn't be able to work as well as I did when I was 44! The worst part about the two times she has felt the need to comment on my performance is that it feeds right in to how I already feel about myself. How frustrated I get for NOT being able to remember things, how I can't get as much done in a day as I need, how bad I feel by the time I get home in the evening, how sometimes the migraines are so bad I can barely function. And along with the Fibro, I am suffering greatly with the osteoarthritis again. Due to the ulcers, I am no longer able to take the Aleve I counted on twice a day to keep the worst of those symptoms at bey. So, I truly feel as if my health is on a downward spiral and I don't see it changing any time soon.

Wow, just read this through and I certainly sound as if I think I am the only person to have burdens that they carry. But I don't have my friends to talk to about it anymore. I miss them so much and that sadness just makes all the other pain worsen.

Thanks for listening and letting me get that all out.

Hello LovePug

I am sorry for your loss. Would you feel comfortable talking with your boss about your loss and health issues? I hope you are better soon and can find a way to cope. Maybe a trip to the doctor for a med change. You can come here anytime we will listen and let you know you are not alone.

LovePug,

You certainly do not sound like you believe you are the only person to have burdens. Your post breaks my heart. It certainly has been a rough time for you! Things like loosing a friend and struggling at work are things that are difficult for healthy people, let alone those of us that feel our burdens in such a physical way.I can't imagine loosing my best friend. I depend on her a lot for support, even though she may not understand the pain. I am so sorry for your loss. Not much much anyone can say can ever ease the burden of loosing friends, but I will keep you in my thoughts.

Gentle Hugs!!!!

Hi… Love pug, I recently changed my phone to a new phone. I no longer have the ben’s friends icon so for “some reason” I was attiment how to get back on this site… Even though I can’t remember the last time I was on here… And there you were,! love pug. : ) Your the reason I had to get back on here. I get it! I really do. I know we don’t know eachother but I care. I hope you will communicate with me because I am hoping to be a friend on here for you and God knows I need one. : ) I don’t know if we are friends on here or not… I haven’t even gotten that far once I got on here. I will look and if not. Look for my friend request. Ok? : )

You can always come here to share your woes as we all do . You are among friends here as well .
I just stopped by and read what you wrote and just wanted to send you some
HUGGGGGGGGGGGGGGGS
Suzie

Hi

I am going through the same thing at work. It is killing me emotionally. I am being micromanaged, criticized and humiliated due to my FM and other illnesses.

I took some time off already and need to see a shrink tomorrow. I don't think I can handle the constant criticism any more. It breaks my heart because I am proud to be a member of my profession and to be able to contribute toward my family. I have a son in college and I am so hurt that I can't help him and that he has to see me going through this.

Not to mention the financial devastation. My boss is heartless and cruel. She has done nothing to help and in fact says that she has been through this herself. In the meantime I feel that any professional credibility that I have has been ruined. It hurts so much, my heart is broken and nobody seems to care at all at work. I never knew that we lived in such a cruel world.

Thanks for understanding. I am sorry that you are going through such treatment at work. It really is discrimination at its worst. And that is just the legality of it. The emotional side is truly devastating. Please accept my heartfelt condolences that you are dealing with this.

My situation is a very strange one. I work at a non-profit cemetery. I have for 14 years now. We are a very small office with only my boss and myself. It is literally right down the street from where I live, so I have NO commute to speak of and the dress code is so relaxed that I can wear jeans every day (even capri pants in the summer). I LIKE what I do and I am continuously told how good I am at my job. I see a lot of families at some of the worst times in their lives and do my utmost to help them navigate a situation that most of them have no experience with previously. Being a non-profit cemetery, I never have to push people to purchase things they don't need or get them to "add-on" things to jack up the sales figures. I couldn't have done this all this time if that had been the case.

As we have gotten older in the job, I have certainly struggled with getting up and down with overstuffed file drawers - we have hard copies of files going back 79+ years. It is nearly impossible to squeeze anything into those drawers, let alone open them when the tallest file drawer is above my head! I fully admit that I am slower than I was when I started all those years ago. I offer (and do) stay after work to get the job caught up/finished. Then I get in trouble for costing the office more hours in salary. I think the worst thing about her criticism is the unfairness of it all. Since the beginning of 2015, my boss and her husband, who is both our boss,(yes, I work in a situation where my boss and her boss are married, so guess who's side of the story he always hears) As I was saying, the boss's boss and my boss have been out of the office for approximately 75% of the time since the beginning of the year due to his mother being in very ill health. Many doctor appointments, banking things to oversee, medication to be overseen, etc. It has been very hard on both of them. Then the mother died in July and there was the funeral to arrange and get past, then the estate to handle, etc. All required my boss to be with him. I got all that at the time and I still do. It is a hard thing to lose a parent, even an elderly one, so these were all legitimate reasons to be gone from the office. I, however, continued to work and struggle along as best I could for months being on my own. When that all blew over, she was back to work, but she has a very skewed theory on what working hard means. She is a smoker and like every other public building in the US, we do not allow smoking in the building. I had to remind her of that when I first started to work there. I told her I would have to discontinue my employment there if she was going to smoke in the office. She explained that the previous person who held my position had smoked, too, and she (the boss) had slid into the habit of smoking at her desk. She immediately stopped smoking in the building. Now, however, she goes outside to smoke and, it is no exaggeration that within 15 minutes of arriving at work, she will be outside for her first of many smoking breaks of the day. Her husband and her son both work there, so most times you can find the 3 of them gathered outside the office door smoking and/or drinking coffee. I have not taken a coffee break in 14 years. We are only there 3 hours in the morning, out for lunch for an hour, back for 3 more hours. We started alternating Saturday mornings working them alone, so that we can get a full weekend off twice a month. My point with all this is that even when she is there, she isn't there to help with the work that we are getting further and further behind on. They are on vacation this week and I have been there alone again. The standing rule in our office is that the burials come first and the rest falls into line when we can get to it. That is exactly as it should be, but the rest - filing, ordering markers, processing deeds for the graves sold and mailing them out to families takes longer and longer to get on the list, let alone done! So, when she started talking to me one day and saying that I really wasn't working up to my potential and she was really disappointed in seeing how I had apparently lost my initiative and drive to get the work done, I nearly fell out of my chair. She even mentioned that she has no problem with "people" looking online at work, as long as their jobs are current! It was all I could do to not just let loose with all this and ask her what she thought she was doing pinning all this on me! But, practicality took over and reminded me that I am not financially ready to retire yet. That I still need to work and, at 58, I don't want to start over somewhere else to work for someone half my age. It sounds completely exhausting! Whenever she has found me looking at something online while at work, that has been my "coffee breaks" and they don't last for hours and hours!

I am trying to remind myself almost constantly that, as a Christian, I need really only concern myself about MY job and how I am doing - if I am doing the best I can while I am at work. But, I am a regular person, who fails to attain that goal many times and I get caught up in "but she". That is not my business, but it becomes so when she blames me for not getting this or that finished in as timely a manner as I may have in previous years. I know, I am rationalizing, but again, human.

Wow, aren't you glad you responded to my post??!!!? As I said, I really miss the old friends that I could vent to all this about and they would make me laugh and it would be okay. Until it all started up again at work - you know, the next day!

Now that I have that out - I really do empathize with your situation. And, yes, it is a cruel world and, some days, people are just the worst beings on the planet. That is why there are cookies, or ice cream, or whatever emotional eating you use to see you through the rough times. I don't have many friends on this site, either. Mostly because I go so long in between visits that I haven't really gotten around to that. I would love to add you to my list of friends. Do you know how to do that? I don't seem to recall. Anyways, thanks for "listening."

I was really crushed. I felt horrible and just wanted to leave. Of course, she said this to me when we first got to work. She is rather a passive-aggressive "office manager" and likes to point out mistakes that I have made - in front of other employees. About a year ago, I did call her out on that. I said I can accept her telling me of something I had done that she would like me to handle in another manner, but I would appreciate her doing it when there was only she and I in the office. She will do this in front of her boss, big surprise, but the day I spoke up about it, she had done this in front of one of the groundskeepers. "She wasn't aware that she did that" was her response. I told her that she absolutely does. I pointed out that she makes plenty of mistakes herself, but I don't come over to her office while her boss or her son or anyone is there and point them out to her at length! I just wanted to be treated fairly. So, then I get this period of her making an issue of how she speaks to me ... do I feel okay about her talking to me now, or should she wait, kind of thing. She doesn't want to appear as if she is uncaring about my feelings, kind of thing. It is so draining to have to try to just let those things go and not let it effect my day, but it does.

I now have stomach ulcers - never had those before. So, apparently I am not being very successful at just "going with it". We all know how the FM takes a toll on the quality of our sleep, or the ability to sleep at all. I have had so many migraines of late and am up in the middle of the night because of the pain. So, the next day I am not at my best because of so little rest. It is becoming a vicious cycle.

jannytheresa said:

Hi

I am going through the same thing at work. It is killing me emotionally. I am being micromanaged, criticized and humiliated due to my FM and other illnesses.

I took some time off already and need to see a shrink tomorrow. I don't think I can handle the constant criticism any more. It breaks my heart because I am proud to be a member of my profession and to be able to contribute toward my family. I have a son in college and I am so hurt that I can't help him and that he has to see me going through this.

Not to mention the financial devastation. My boss is heartless and cruel. She has done nothing to help and in fact says that she has been through this herself. In the meantime I feel that any professional credibility that I have has been ruined. It hurts so much, my heart is broken and nobody seems to care at all at work. I never knew that we lived in such a cruel world.

Hey, PurpleButterfly,

Thanks for responding. I have told my boss about my losses and my health issues. The losses she understands, but the FM she just thinks is some nonsense I make up to have an excuse for not working as hard. Anyway, thanks for the suggestions and concern.

purplebutterfly said:

Hello LovePugMain Room35

I am sorry for your loss. Would you feel comfortable talking with your boss about your loss and health issues? I hope you are better soon and can find a way to cope. Maybe a trip to the doctor for a med change. You can come here anytime we will listen and let you know you are not alone.

Lovepug, I am sorry to hear of your emotional losses and work stress. It is good to see you back here reaching out. I can see you are in a difficult situation as employment is certainly important as is your health. It can be challenging maintaining harmony and balance. Have you considered a thorough point-by-point list of disadvantages vs. advantages of continuing employment there? I often use this method when considering solutions to particularly difficult situations. It helps me to gain perspective of what is best for me to see it all laid out in front of me for examination. I do hope things look up for you soon.
Hugs,
Laurie

Hi - pretty new here but wanted to reply to this. I'm dealing with grief right now too - although I know pet loss is very different than losing not just one but two close friends!!

But my meaning in sharing that with you here is just to acknowledge how much grieving can take out of one physically as well as emotionally. It can for sure heighten and exacerbate health issues you already have and the stress of that plus your work issues can cause new health problems too. Just wanted to respond and let you know I get it, and that I'm really sorry you lost the two people you were able to talk to and share with. If it helps to remember that the grief is adding an extra physical toll and that it won't always be this hard, try and remind yourself of that when things feel hopeless.

Thanks to all of you who took the time to respond. It does mean a great deal to get on this site and see all the concern and caring, by literal strangers! The benefits of this site are so many. It helps so much to have others tell me that I am not being ridiculous or making it all up. Sadly, all of you can be so empathetic because you have been or are going through many of the same things. Nothing like first hand experience to get you to see the other person's perspective.

One thing that puzzles me about this insidious illness, is why people who know us first hand, some for many years, suddenly don't believe us when we say that we are having a rough day. My normal response from my boss, if I even get one, is to take some ibuprofen and shake it off! At this time in my journey, I can't even do that because of the stomach ulcers. For all she has told me over the years about how much I mean to her - and not just as an employee - she simply refuses to accept this.

One last question and I will stop belaboring this point, I went to a concert with my daughter last night. She is a strong born-again Christian and I got seats for us in the 4th row of a TobyMac Concert. Some of you may know of him. I have never, in all my life, been to anything like that. When the lights would come on flashing so hard and rapidly, and the noise was so incredibly loud, I had to sit down. I got so disoriented. I didn't think of it at the time, but this morning, I woke with a migraine and my body hurt all over. Has anyone felt that sort of reaction to outside stimulus like that? I didn't really connect the 2 things until later in the day today. I stayed home from work today, so I am sure I will hear about it tomorrow, but was just curious if this is a fairly common reaction.

Hope everyone is having a good day wherever you are. Here in Ohio, we are having beautiful fall weather. Maybe I will go for a walk. Hugs to everyone!

My Neurologist in Iowa City said that I cannot EVER take ibuprophen or acetametaphin for the rest of my life for these give people rebound migraine headaches!

A couple of years ago I went to a Casino w/my sis & her dau & son in law. Baaad, baaaad, baaaaad idea! It was in April so the weather wasn't that warm & it was a windy night. All of the lights flashing & the seperate machines ALL making a different ring or ding or briiiing, some were wooowooowoooing or whistling or wahwahwahing......I had gone thru the $20 that I brought w/me & I was waiting for them to run out of $. It was horrible! Vertigo, pounding head, nausea, I felt like screaming. So I spent 15min outside in the cold wind & then 15min of noise & lights, for 2hrs, it felt more like an eternity. M

Thanks Luna02,

I didn't really want others to have gone through that experience with the lights and noise. However, I am glad to know that it was a response that can happen because of that stimuli. My head is better, but my body still aches. Some of that may be to the change in temp and atmospheric pressure we are having here in Ohio. Fall is definitely here. Cold and rainy one day, bright and humid the next and then bright and dry. Wait a moment and start it all again.

I will have to remember to not put myself in that position again. My daughter loved it - it was a birthday present for her 29th birthday. It was exciting and the music was wonderful, but I think I will have to stick to CD's or Pandora from now on.

LovePug (Patti)



Luna02 said:

My Neurologist in Iowa City said that I cannot EVER take ibuprophen or acetametaphin for the rest of my life for these give people rebound migraine headaches!

A couple of years ago I went to a Casino w/my sis & her dau & son in law. Baaad, baaaad, baaaaad idea! It was in April so the weather wasn't that warm & it was a windy night. All of the lights flashing & the seperate machines ALL making a different ring or ding or briiiing, some were wooowooowoooing or whistling or wahwahwahing......I had gone thru the $20 that I brought w/me & I was waiting for them to run out of $. It was horrible! Vertigo, pounding head, nausea, I felt like screaming. So I spent 15min outside in the cold wind & then 15min of noise & lights, for 2hrs, it felt more like an eternity. M

Oh yes - even going to the grocery store can trigger my migraines with the bright lights and all the people moving around within my sight. And I haven't been able to go to a concert in ages. So sorry you had that experience!

As far as people not getting it even after years of knowing us, I think it's two things. The first is that the idea of always being sick is confusing to people who have never experienced it so they don't understand how some days we can do things and other days we can't because when they're sick - they just rest until it's over right?

Well, it's never over for us, so we have to push to do things on better days and even on bad days we often make ourselves do things that a healthy person would never do if they suddenly felt the way we feel. So then seeing us pushing and doing things, and not having out sickness be obvious with like a rash or sneezing or something, they have trouble processing that yes we always feel bad and yes some days are worse than others and yes we're always doing our best. To them it seems like we're just half-assing it some days because we're a little tired or maybe we aren't as sick as we claim because look at all that work you did yesterday, etc. It sucks, and empathetic people who try and understand can overcome that thinking eventually, but I think it's a natural sort of struggle for many people??

The second thing comes in when it's people who really care about us personally - usually family members who are especially invested in our well-being. For them there's often this sense of denial where they don't Want to accept that we're going to be sick for the rest of our lives, they don't Want to think about how this person that they love is always in pain - their brains just don't let them fully accept it. And even for people less invested in us but who still care for us, like friends and even yea bosses and co-workers, it can be easier to pretend away this idea of all day every day sickness. It's easier for them to think it can't be true, or to just forget about it sometimes because it's painful and uncomfortable for them to accept the idea (not as painful and uncomfortable as we are, mind, but then we can't pretend away the pain can we? heh).

Hi Lovepug, I wanted to check in and see how you are doing? Hugs.

Hey Auburnm!

Sorry - I really am bad about checking in here very frequently. Thanks for checking on me, tho', I truly appreciate it. As far as the stress from work, that has let up somewhat. The past 2 days have been slow enough that I was able to crank out a LOT of paperwork and caught up on many things that have been just postponed until I could get them. So that has felt wonderful.

Healthwise, things are okay. I am still having a lot of problems with my right knee swelling and pain under and below my kneecap. If I am extremely careful about any stress I put on it, I can get through most days. I was home for a there and back in the same day trip yesterday. I hadn't been back there in 5 months. My brother needed help getting a vehicle - he was just in a wreck last Saturday night that he was lucky to walk away from with as little damage to himself as he did - but the car was totaled. While there I, of course, checked in with my mom. At the last minute, she asked if I could take her to the grocery. I assumed, erroneously, that she would use an electric cart while there, but she preferred that I push her in an old style wheelchair with a basket on the front. By the time we were leaving an hour later, my right knee was screaming at me and my lower back was, too. Then there were my hands/wrists with the arthritis! So, today, instead of decorating the tree, I have been on the computer Christmas shopping.

I think my mental outlook is better - but I go back on Jan.19th to have another EGD to see if the stomach ulcers bear up that theory. So, pretty much life as I know it. I am getting more concerned about my brain fog, tho'. There are seriously times - and so frequent that I can't really distinguish between the incidents much - when I don't just momentarily forget a word or what I was just saying, but it just doesn't come at all. I know that word is in there, but it won't come out. Truly frustrating. I know that a lot of my meds add to that problem, but it doesn't really matter in my day to day what is causing the problem, but just that I have it at all. It can be scary.

Well, enough of that. I hope you are doing well. And, if I don't "talk" with you again before then, I want to wish you a Merry Christmas (hope that isn't offensive to you) and a Happy New Year. Be safe and feel well!

Patti

Auburnm said:

Hi Lovepug, I wanted to check in and see how you are doing? Hugs.