Pain free....sorta... not any more:(

Press the control key and hold it down while also pressing the plus sign on the far right hand corner of your keyboard, Eeyore. If you want to make text smaller, hit control and minus sign.

Sugar substitutes affect fibro? Where did you hear this? I need to check this out because I love diet sodas and carbonaed sparkling water. I hope to not have to give both up! Meanwhile, I agree, think I've read that these sweeteners do affect migraines.

Eeyore, I think the ER is the best way for you to go. Go now as weekend staff is always reduced and not as good, supposedly. It's just horrible that you have to suffer this way. Let them try t figure this out. You shouldn't have to figure it out for yourself, as you're not a doctor.

Please let me know what happens, okay?

EeyoreLuver , I’m so sorry this migraine just won’t let go, I have been there !!! I so remember & it pains me to know what you are going through, are you scheduled to see a neurologist ? Or a pain dr? As far as triggers you have to keep a list of what ever you eat that makes it worse, I know for me if I eat pizza I get an instant h/a, try and avoid cheese, sugar, caffeine chochalate… I know when my neurologist first gave me the list of trigger foods I was like are you serious…??? Did I read that you drink pop ? Big no no, it’s keeping your sugar level up and as soon as your blood level for sugar drops instant h/a, actually it interesting I went to see a homeopathic dr. I told her that if I don’t eat I get a horrible h/a, and I have been waking up with doozies for 29 years, she thinks when I’m sleeping my blood sugar drops, triggers the liver to release toxins into blood stream and Bam instant h/a, my worst migraines are when I don’t eat , I know it’s hard but try to eliminate the sugar in your diet, like I stopped putting it in my coffee & tea & I notice a huge difference, I also snack a lot to make sure I don’t have huge drops in my blood sugar.
As far as the re-bound h/a, I’m sorry I just saw your question to me, I always check my messages, on my page, maybe you can leave me a message next time you have a specific question to me , I’m so sorry I just saw it… Anyway, rebound for me is when I get a migraine I take a fiorinol ( dr. Would rather prescribe fioricet) I have no clue, but the fiorinol works better for me. I suffered for 17 years & then one day I was out with a friend and I was complaining about this migraine, she had fiorinol, gave me one and wow!!! I was like finally something that helps !!! Anyway don’t ever take someone else’ s meds that is very bad, I know better now, so back to the rebound, if one didn’t work, I would take two, usually it would take it away, but occasionally when the med wore off it would come back, so I would take another one, usually by day 3-4, it becomes a cycle, I would take one or two, it would come back, take more, it would come back… When the medication wears off and the migraine comes back stronger that’s usually rebound, I have learned sometimes when 2 doesn’t even touch it … That’s when I go to the ER, happened 3 x this year, the idea is to prevent the migraine, know your triggers, I almost always wake up with a headache, if the pain is under a 5, I take 2 Tylenol, and sometimes just moving around helps, opposite of your typical migraine, most people lie down, and sometimes I have to if it’s a PMS, h/a, but the one that wakes me in the morning I have to get up, feels like I have been hanging upside down all night long and all the blood is in my head… This may sound crazy, but when my daughter was little the pressure was so bad in my head I would have her sit on my head LMAO, I’m not kidding, I do also have bad sinus issues so every change of season my headaches get worse.
I hope something I said helped, I do understand H/A 's Iv been researching them just about my whole life, thank god they are better than they used to be, but if my house was on fire I would prob grab my fiorinol over … Well that’s a bad example,
I’m rambling , when rebound hits five days off everything is a good way to get control, then try a fioricet & see if that helps…many times going to ER, would help my migraine, like you 2-3 shots of dilaudid, but the next day bam h/a, Iv learned over the years if I get all worked up about it, it got worse, now I would take an antiaxiety med, & it helps the h/a better than anything. Just a thought
Hope you get some relief, BTW- my last migraine was the day I was having surgery, because of not eating all day, having to wait & the stress of surgery, anyway the anesthesiologist gave me a sedative to just relax me, as soon as I sat back and relaxed it started to ease up… Worst migraine I ever had… That was in Sep.
Hugs & blessings

Did you lay down for a day after your spinal tap? I just ask because you can get spinal tap headaches that are supposed to be pretty killer.

Also a friend of mine had one that didn't seal afterward and the spinal fluid leaked and caused major pains and terrible migraines for months.

Did you ever get checked for this, Eeyore?

Taerlyn, your poor, poor friend. How did he/she ever improve?

No current message from Eeyore. I wonder if she returned to the ER or got to feeling better?

i had to lay down for a half hour after the spinal tap and an hour after the blood patch. but since they screwed up on the blood patch and overdosed me with vulium and they had to reversse it they ended up reversing the zofram too and i was dry heaving so i wasnt totally still after the blood patch. the did give me more but i was heaving for like 15 minutes

i did not go the er. my bff took me out to dinner for my b-day. my head is starting t really hurt again i need to go home and go to bed. i am chilling att my bff’s house for right now but if i get woken in the middle of the night i will go in i assure u of that
for some reason i cant always respond using the reply button. so i am responding to everyone this way

Oh Eeyore! Yet another weekend spent in the ER. How sick of the place you must be!!! Beyond sick of it.

Well, I'm disappointed to hear that its come back. I sure hope you don't have to go back to the ER on your birthday. Maybe if you can sleep you'll feel a bit better.

Rest easy, my friend,

Petunia

thanks dee that does help. i hope the hospital can get rid of this. actually the night i got several daulited i still left with a migraine. however when i was admitted and given that med every 4 hours alone with other pain killers i did leave migraine free but the next day i woke up with one.

i did end up with the spinal head ache. i thought i was going to die. my stepdad even drove me to the er i looked so terriable. i couldnt do anythinng all i did was lay around and sleep.i only got up to used the washroom or eat and then right back to laying in bed.
they did the blood patch to stop the spinal head ache and it worked for that but didnt help the migraine

in order to try to get some good sleep i took an extra flexerial. i have the 10mg which is the highest dose unlesss u have the extended release. well let just it is not working very well. i passed out pretty quick but about 4 hours later i am awake. and in pain. this totally sucks cause the reason i took 2 in the first place is cause my back was really hurting and the spasms were really painfull. now i am stuck at home cause there is now way i am going to try to drive right now not knowing how taking 2 will effect my driving. i can drive and function just taking 1 but 2 not so sure.

i kinda feel wimpy. others have had a migraine last this long or longer. i am not sure what all the did during that time such as did they go to the er alot of just their dr or just dealt with it. i had this horriable nighmare that i had tb. i have been tested several times due to working with children. in the dream my friend told me i was fine and it would be a waste of time going to the dr. but i went anyways cause i felt like something was really wrong and in the dream i was write something was very wrong. can this dream be a signal to go get help for this migraine yet again? i know i dont have tb cause i dont have the symptoms and like i said this waas a dream. i have been having strange ones but i just cant help but wonder if this dream is a sign to go get checked for my migraines.

my bff and i r very close like sister close and many times she tries to give advice that i totally disagree with. so while i value her opinion on most things i have learned to just go with my gut feeling when it comes to my health. we both have asthma, migraines,bad allergies and we both get sick a lot. she has lupus and i have fibro. i need to be tested for lupus cause i think i might have it but going to the dr takes money i dont have. i may just end up using b-day money to go be seen cause i need refils on meds so i have to go with in a few weeks anyway.

i just wish i could have an ambulance take me to the er i want to go to. i know they wont with having 2 ers with in 15 minutes of my house. everyone is sleeping and i dare not wake my mom. she was up till midnight again with homework and she has to be at work by 8am. she is working ft plus taking excelerated classes online. if she not working or sleeping she is pretty much just working on her classes.

i will just wait a few more hours in pain i guess till i feel safe to drive. my stepdad is already at work.

sorry for complaining i guess that i shouldnt i know that some people on here got to be in a lot more pain than me. at least it seems that way from blogs i have read. thanks for listening

Oh, Eeyore, that just stinks! I don't get migraines and think having a headache for a month is abnormal and hideous. I think you have every right to complain. And i do think you should trust your gut and go back to the ER. You need to lose that headache. They need to fix you up so that you can be pain free and they need to figure out what's going on.

yeah, I think lupus is a possibility, given your bronchial problems. i guess you won't get an answer to that part of the puzzle until you get your medicaid card. Have you had any ANA tests done? If so, have you had any positive results?

I hope that by now you're fit to drive and on your way to the ER. That's just no way to live, constantly being in the ER. Those docs owe it to you to find out what's going on.

Tired and in pain,

Petunia

i ended up being awake from 5:30am to 7:30am after going to bed after 1am. i did fall back asleep till till 4pm. but when i woke up i wish i havent. the pain was really intense. i know i need to get to the er but i thought i would update everyone 1st since i did want t eat before i left. i know my mom willl thinki am crazy and b made that she may have to come get me but oh well. i need some relief. i keep having this ringing in my ears and now the migraine is messsing with my sleep again. i will give updates as i have them.

Update:

Eeyore is back in the ER due to a very bad headache. She went back to the hospital where she got good care and is hopeful they can help her control or contain her headache. If i hear any more, I'll let you know.

ok i did get alot of relief by going to the er. i was not admitted this time. the er dr has no clue why the migraine of 60 days will not go away and stay away. as a matter of fact i still have a little pain left but i went from a 10 on the pain scale to a 2 so lots better. i am hoping getting some sleep after all the drugs i was given will make the rest of the pain go away and i wake up migraine free.

i will let u know what happens when i get up in the morning. oh and just to make thinngs worse i have a pelvis infecteion too. i waas given iv antibotics and i have to take oral ones too. all i ask is to be as pian free as can b on monday for my b-day.

please continue to pray that this migraine goes away for good this time. i havent had much sleep so i am hoping to sleep good tonight since my pain level is down.

thanks stephaine

thanks for letting others know what was happening with me u save me the trouble of using my phone to do the update.

when i end up in the luney bin u will know why. i went to the er and they helped the migraine. i came home hoping to sleep but this adominal pain is so bad that i cant. its like if its not one thing its another. i know this sound bad but i am tempted to go to another er show i can get relief from this adominal pain.

is it too much to ask to b able to sleep. i will decide what to do soon. as far as to go to another er or try to wait it out. the er i was at didnt give me a script for pain meds. i do still have a few from before i am going to take that and see what happens. i will let u know how it goes

no medical card yet it will take a few months unless i get approved for the disability 1st. i made it through the day not sure how. i had an interview for a job tonight and it went great. the job wont start till the 5th of Jan. but they will need me hear and there through out december.

my parents asked what i want to do tomorrrow for my b-day and i said sleep.i just want sleep. my pelvic is better i think the iv antibotic has started to work cause i am less pain today. i also started on the oral anibotic too. i had all three doses of it.

thanks for checking up on me it really means alot. i hope your r doing well.

ok good news and bad. the pain that kept me up ALL night is much better.

good news i had iv antibotics in the er and had the full dose of the oral one today. the pelvic pain is much better and thats what kept me up all night.

Bad news is that i got a horriable migraine while watching the movie but i must say the movie was awesome. i wont give details cause i dont want to spoil it for anyone. but if u r into twlight this last movie is a must see.

i am planning on sleeping as long as my body needs so if u dont here from me tomorrrow is cause i am getting much needed rest. i was so tired during the interview i had i have no idea how i made it home in one piece. its like i was in auto mode driving home like my body knew how to drive even though my brain didnt want to work. i am about to crawl in my nice comphy bed and pass out.

i will give and update either sometime tomorrow night or sometime tuesday. have a happy monday everyone.